I have lupus and constantly suffering from chronic pain and can't sleep, no appetite because of the nausea. I don't have the butterfly rash on my face but coz of the chronic pain I go through everyday of my life my face turns red like I'm using blush... For many years I've been battling lupus and unfortunately I've been diagnosed countless times with anemia, kidney problems, headaches, nausea, collapsing anywhere, can't handle cold or hot weather, always covering up and using alot more clothes than anyone else, having the flu and never getting better, and the list goes on... I suffer from anxiety and depression. Many times I wanted to end my life and more coz of the pain I was in. I hated this person I've become, it wasn't me. But now I know what I have lupus and overlapping scleroderma.... And now everyday I wake up, with my swallen face, fingers, and I'm ready to face the unknown and that's how I feel about lupus you never know what to expect next... So no matter what life throws at me this I'M A WARRIOR, FIGHTER.... No matter the weather we are in this together... You'll never know how strong you are until you try and let the warrior come out in you..... ♥️😘🦋🦋
Have cured yes cured 4 cases of Lupus breathing hydrogen 30 min a day, When cured you can stop the hydrogen. Look it up on Google "autoimmune disease matricular hydrogen" Cases reported 70. 90. and 100 per cent cured. Have been treating many diseases with hydrogel for 7 years.
Have you ever been assessed for Mixed Connective Tissue Disease? It's made up of LUPUS, SCLERODERMA, POLYMIOSITIS. RAYNAUDS DISEASE, FIBROMYALGIA. I have your symptoms and I was diagnosed by a University Hospital Rheumatologist Professor as Mixed Connective Tissue Disease.
Yes, I highly agree. Diagnosed with so much and the symptoms have been there for years. Although, I caught Covid in June/2022, in my opinion, I do feel Covid brought a lot of illnesses out and to end stages. Unfortunately, I'm severely allergic to multiple meds so I am on all perscribed vitamins and herbs, some fruits and some vegetables. I actually feel much better within my soul, than I do my body. Many doctors always said, it's just in your head.... Ankylosing Spondylitis, lupus, multiple Sclerosis etc... take care of yourself and my prayers 🙏🏼
I was diagnosed with Lupus and APS a year and a half later after giving birth to my son. It’s started with very painful joint pains, temperature, rashes, and all sorts of things. However, currently I am fighting it.
Hi there, whatever e illness. Do a detox programme. Basically all diseases are due to a built up of toxin. Grudually, the vital organs like liver and kidneys began to break down. These 2 organs are the main waste disposal elements in a human body. Therefore, the sick must do a detox : cut off if possible sugar, salt, oily and spicy foods, fast foods, preserved foods, carbs, glutens, dairys, red meat, seafoods... all these foods are very difficult for a sick person to digest. Try a light diet: more vegs esp green, some fruits(some like banana has too much sugar), White meat like salmon, chicken, turkey, no pork becos its very toxic, nuts, olive oil... Myself had fatty liver and high colestriol. Was led to diet by the Spirit of God after followin His command to tithe last saturday in church. After 1 week dietin was much better alry🙌🏻👑✝️⚖🛡🛐🛐🛐🦅🕊🕊🕊🙂 Edit: Was Miraclely healed of severe covid on 3rd day after contractin e disease by not wearin mask while travellin in e bus on may 30, 2020. I prayed and was waitin to see doctor 3 hr later when clinic open. Meantime, took 100gm of licorice and boil it in abt 3 cups of water. Drank it and was healed. China also use this medicine.😊
I seem to have almost everything associated with Lupus except the butterfly rash. I have Sjogren's, Hypothyroidism, Psoriatic Arthritis, Chronic Fatigue, Polymyalgia Rheumatica, Fibromyalgia, and a digestive disorder. My liver doesn't seem to be producing enough bile and now they are suggesting that I get my gallbladder out because of stones. I wouldn't be surprised if they lump it all in one and say I have Lupus.
Has anyone ever been tested with the new tests that are available for Lyme disease? There are a lot of people that have suffered for years and were diagnosed with Lupus, MS, Parkinson’s, etc…A lot of them had LYME, Babesiosis, Bartonella, plus other bacterial infections. These infections mimic many of the above mentioned diseases and cause almost all of the same symptoms and more.
The singer, Kris Kristofferson was diagnosed about 10 years ago with Alzheimer’s and they just recently found out it was the neurological effects of untreated Lyme disease…he didn’t have Alzheimer’s disease. It was the way the Lyme bacteria attacks the central nervous system.
@Brian Armstrong I would definitely talk with your primary physician about seeing a Rheumatologist if you are noticing several issues like the ones you mentioned. Lupus is one of many issues that could be the cause of joint pain and pleurisy.
My mom has lupus and two brothers had it. My brothers died from it (neonatal lupus syndrome and one brother died in his early 40's from an aortic dissection).
I have lupus, fibromyalgia, and mast cell syndrome. Not for the faint of heart and it was hard for people to understand the extent of these because I was so active and pushed thru so much. Now that I'm older, I'm not capable to do so. They say you're making it more then it is or you're a hypochondriac.... I don't want sympathy just understanding.
I am afraid of the meds because of the side effects, so I am trying an elimination diet and have found some foods that cause flares. I have fibromyalgia, arthritis, lupus , sjogrens and a few other things. Has anyone else tried this? I started with keto and got rid of type 2 diabetes.
Gluten completely, and limit my dairy and sugar they seem to affect me the most. Low carb reduces my inflammation the most it seems like. I have am currently working towards all organic food but it's high so it takes a while to build a supply. I recently learned that tea bags contain plastic abd that the boiling water releases tons of micro plastic which I think complicates things even more
Worry my daughter can have this. Can a blood test show it or is it just at times bloodtests can show Lupus? Something is wrong, I know, but it's not easy with one doctor and a daughter who is neurodivergent..all is believed to be results of stress and anxiety. It's that too, but I know there's something more to what she's going through.
Theres about 11 symptoms suggesting. Google it. No no specific test..my ana is 1:60. Have them do the autoimmune panel. RNP. Ds..dna smith test etc..i suffered getting diagnosed
@@geography6874I HAVE THEM ALL, FOR YEARS NOW. I'M AT MY WITS END. THEY WONT TREAT ME UNTIL, I'M OFF A MED, THAT A DOCTOR PUT ME ON, FOR SERVER MUSCLE, DISTINCTION. 😢I CRY ALL THE TIME NOW, SO SO TIRED, CAN'T EAT, 😲 MY MOUTH IS FULL OF SORES. CAN'T HARDLY WALK, 🤬 HEADACHES JOINT FEVERS ETC🌺
HI🌺 I'M REALLY SORRY 😔 YOUR DAUGHTER IS GOING THROUGH MOST ROUGH TIME. HAVE THEY LOOKED AT A MYOPATHY,/MYOSITIS. THERE, ARE MANY DIFFERENT TYPES. THEY HAVE SIMILAR SYMPTOMS. I KNOW FROM, EXPERIENCE IT'S SO MUCH WORSE, WHEN THEY DON'T KNOW WHAT IT IS. I'M GOING THROUGH, JUST THE BEGINNING OF LUPUS AND MIXED CONNECTIVE TISSUE DISEASE. YET, THEY ARE STILL, STUFFING ME AROUND, BECAUSE OF A MEDICATION I AM ON. THEY, KNOW 🤔 HOW ILL, I AM, BUT WON'T SEE ME, UNTIL I'M OFF THE MEDS. WISHING YOU AND YOUR DAUGHTER THE BEST❤
Years before I got worse symptoms I had these: arthritis that started out of nowhere, fevers, skin and mouth ulcers. Then 2 years ago it suddenly got much worse, I had rash on my cheeks, top of arms, fingers, legs, sight problems and eyelid rash, high bloodpressure and liver issues, among other things.
@@dailydose5709 Your wrong, I was born to a mum who had really bad lupus nephritis and was given 6 weeks to live but her consultant was able to turn it around and 5 years later she had me and I was born without lupus but have developed it in the last year.
Would like to point out....Not Everyone with Lupus gets the Butterfly rash!! ....I'm currently going through a Terrible flare up! 😢
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
I have no butterfly rash either. I hav started taking 500 mgs of THC edibles- it cures ALL MY SYMPTOMS
Both of my sisters have/had lupus 🙏
Hi what is a butter fly rash please
I have a fast pulse sometimes that isn't one of the symptoms is it
I have lupus and constantly suffering from chronic pain and can't sleep, no appetite because of the nausea. I don't have the butterfly rash on my face but coz of the chronic pain I go through everyday of my life my face turns red like I'm using blush...
For many years I've been battling lupus and unfortunately I've been diagnosed countless times with anemia, kidney problems, headaches, nausea, collapsing anywhere, can't handle cold or hot weather, always covering up and using alot more clothes than anyone else, having the flu and never getting better, and the list goes on...
I suffer from anxiety and depression. Many times I wanted to end my life and more coz of the pain I was in. I hated this person I've become, it wasn't me.
But now I know what I have lupus and overlapping scleroderma....
And now everyday I wake up, with my swallen face, fingers, and I'm ready to face the unknown and that's how I feel about lupus you never know what to expect next...
So no matter what life throws at me this I'M A WARRIOR, FIGHTER.... No matter the weather we are in this together... You'll never know how strong you are until you try and let the warrior come out in you..... ♥️😘🦋🦋
Have cured yes cured 4 cases of Lupus breathing hydrogen 30 min a day, When cured you can stop the hydrogen. Look it up on Google "autoimmune disease matricular hydrogen" Cases reported 70. 90. and 100 per cent cured. Have been treating many diseases with hydrogel for 7 years.
Have you ever been assessed for Mixed Connective Tissue Disease?
It's made up of LUPUS, SCLERODERMA, POLYMIOSITIS. RAYNAUDS DISEASE, FIBROMYALGIA.
I have your symptoms and I was diagnosed by a University Hospital Rheumatologist Professor as Mixed Connective Tissue Disease.
Doctors need to start listening more to symptoms and stop being so hard to give a diagnosis…people such as myself are out here suffering
Yes! I became distraught..10 years being blown off! They called it fibro.
Yes, I highly agree. Diagnosed with so much and the symptoms have been there for years.
Although, I caught Covid in June/2022, in my opinion, I do feel Covid brought a lot of illnesses out and to end stages. Unfortunately, I'm severely allergic to multiple meds so I am on all perscribed vitamins and herbs, some fruits and some vegetables. I actually feel much better within my soul, than I do my body.
Many doctors always said, it's just in your head.... Ankylosing Spondylitis, lupus, multiple Sclerosis etc... take care of yourself and my prayers 🙏🏼
@@deecee901into my 5th year now. a lot of that is waiting for appts, results, referrals....
I was diagnosed with Lupus and APS a year and a half later after giving birth to my son. It’s started with very painful joint pains, temperature, rashes, and all sorts of things. However, currently I am fighting it.
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Bless you. What is APS? Take care.
May Allah gives you patient.can you tell me how much your esr was?
I'm diagnosed with Lupus..have a lots of pains , weakness nd breathing problem at certain times not on meds
Hi there, whatever e illness. Do a detox programme. Basically all diseases are due to a built up of toxin. Grudually, the vital organs like liver and kidneys began to break down. These 2 organs are the main waste disposal elements in a human body.
Therefore, the sick must do a detox : cut off if possible sugar, salt, oily and spicy foods, fast foods, preserved foods, carbs, glutens, dairys, red meat, seafoods... all these foods are very difficult for a sick person to digest.
Try a light diet: more vegs esp green, some fruits(some like banana has too much sugar),
White meat like salmon, chicken, turkey, no pork becos its very toxic, nuts, olive oil...
Myself had fatty liver and high colestriol. Was led to diet by the Spirit of God after followin His command to tithe last saturday in church. After 1 week dietin was much better alry🙌🏻👑✝️⚖🛡🛐🛐🛐🦅🕊🕊🕊🙂
Edit: Was Miraclely healed of severe covid on 3rd day after contractin e disease by not wearin mask while travellin in e bus on may 30, 2020.
I prayed and was waitin to see doctor 3 hr later when clinic open. Meantime, took 100gm of licorice and boil it in abt 3 cups of water. Drank it and was healed. China also use this medicine.😊
I have 4 out of 5. I got diagnosed 35 years ago.
I’m so sorry , I hope you’re doing good and stayin well, God bless you 🙏🏽❤️❤️❤️❤️
same all minus the sharp cheat pains diagnosed 2019
@@firstjohnfourandone4930 I’m so sorry, I hope you’re doing well too, God bless u🙏🏽❤️❤️❤️❤️
@@ivyamaru9537 🤗💪Thanks so much
@@firstjohnfourandone4930 you’re welcome 😊❤️
I had all these symptoms for years and didn't even know wat was wrong and now doctors r just now trying to diagnose me with this
same.5 yrs now
I seem to have almost everything associated with Lupus except the butterfly rash. I have Sjogren's, Hypothyroidism, Psoriatic Arthritis, Chronic Fatigue, Polymyalgia Rheumatica, Fibromyalgia, and a digestive disorder. My liver doesn't seem to be producing enough bile and now they are suggesting that I get my gallbladder out because of stones. I wouldn't be surprised if they lump it all in one and say I have Lupus.
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Fatty liver is very common with some of those autoimmune diseases you have. Take Tudca for your liver.
Has anyone ever been tested with the new tests that are available for Lyme disease? There are a lot of people that have suffered for years and were diagnosed with Lupus, MS, Parkinson’s, etc…A lot of them had LYME, Babesiosis, Bartonella, plus other bacterial infections. These infections mimic many of the above mentioned diseases and cause almost all of the same symptoms and more.
The singer, Kris Kristofferson was diagnosed about 10 years ago with Alzheimer’s and they just recently found out it was the neurological effects of untreated Lyme disease…he didn’t have Alzheimer’s disease. It was the way the Lyme bacteria attacks the central nervous system.
I'm in the initial diagnosis stage with my rheumatologist.
Be very careful! some meds are toxic! Causes more damage than the disorder it self!!
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
I have all 5, seeing my rheumatologist next month about possible Lupus
Extremely extreme fatigue: I couldn't even roll over.
Sharp stabbing chest pain: Pleurisy.
The butterfly rash is the one I got last.
@Brian Armstrong I would definitely talk with your primary physician about seeing a Rheumatologist if you are noticing several issues like the ones you mentioned. Lupus is one of many issues that could be the cause of joint pain and pleurisy.
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
I have had all of those. The doctor does not take it seriously when I have mentioned this to them.
My mom has lupus and two brothers had it. My brothers died from it (neonatal lupus syndrome and one brother died in his early 40's from an aortic dissection).
Thanks for the information.
God Bless!!
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
I have lupus, fibromyalgia, and mast cell syndrome. Not for the faint of heart and it was hard for people to understand the extent of these because I was so active and pushed thru so much. Now that I'm older, I'm not capable to do so. They say you're making it more then it is or you're a hypochondriac.... I don't want sympathy just understanding.
I am afraid of the meds because of the side effects, so I am trying an elimination diet and have found some foods that cause flares. I have fibromyalgia, arthritis, lupus , sjogrens and a few other things. Has anyone else tried this? I started with keto and got rid of type 2 diabetes.
Parasite and liver cleanses are recommended by those who go the non-medical route.
Milkthistle and digestive enzymes with protein rich diet does aliviate some symptoms. My lupus started in my liver and pancreas and then spread.
Gluten completely, and limit my dairy and sugar they seem to affect me the most. Low carb reduces my inflammation the most it seems like. I have am currently working towards all organic food but it's high so it takes a while to build a supply. I recently learned that tea bags contain plastic abd that the boiling water releases tons of micro plastic which I think complicates things even more
My test was negative for lupus but I have the symptoms that is why the tested me.
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
You cannot test negative for lupus. You can have lupus without the blood markers. Negative blood markers does not rule out lupus.
Sadly like me many doctors stop at the ana test and stop running other labs or dismiss lupus all together at that point.
@@LampWaters What are the other labs you are referring to? I would like to know what to ask for besides ANA test. Thank you!
@@LampWatersinsist on it. Same here.
I get that chest pain often can even take in a slight breath feels like I’m being stabbed
Me too it's not fun
I am suffering from Sjogrens but part of the 40% that is seronegative and I am gaslite.😡😞
Worry my daughter can have this. Can a blood test show it or is it just at times bloodtests can show Lupus? Something is wrong, I know, but it's not easy with one doctor and a daughter who is neurodivergent..all is believed to be results of stress and anxiety. It's that too, but I know there's something more to what she's going through.
Theres about 11 symptoms suggesting. Google it. No no specific test..my ana is 1:60. Have them do the autoimmune panel. RNP. Ds..dna smith test etc..i suffered getting diagnosed
Ask for A.N.A test. I think it could be negative if she isn’t experiencing flare ups. So be sure to test only during a flare up of symptoms
How to diagnose lupus?
Any recommended blood test can be done to detect lupus?
BLOOD TEST- CRP,ESR,ANA PROFILE,CPK
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Blood tests- ANA
@@geography6874I HAVE THEM ALL, FOR YEARS NOW.
I'M AT MY WITS END.
THEY WONT TREAT ME UNTIL, I'M OFF A MED, THAT A DOCTOR PUT ME ON, FOR SERVER MUSCLE, DISTINCTION.
😢I CRY ALL THE TIME NOW, SO SO TIRED, CAN'T EAT, 😲 MY MOUTH IS FULL OF SORES.
CAN'T HARDLY WALK, 🤬 HEADACHES JOINT FEVERS ETC🌺
@@elizabethhunt6149 if Ana is positive then is it sure for lupus or any other blood test must taken plz suggest
My daughter gets all those symptoms, including recurrent pericarditis and APS , but has negative ANA and so not lupus. Been like that for 8 years now.
HI🌺 I'M REALLY SORRY 😔 YOUR DAUGHTER IS GOING THROUGH MOST ROUGH TIME.
HAVE THEY LOOKED AT A MYOPATHY,/MYOSITIS.
THERE, ARE MANY DIFFERENT TYPES.
THEY HAVE SIMILAR SYMPTOMS.
I KNOW FROM, EXPERIENCE IT'S SO MUCH WORSE, WHEN THEY DON'T KNOW WHAT IT IS.
I'M GOING THROUGH, JUST THE BEGINNING OF LUPUS AND MIXED CONNECTIVE TISSUE DISEASE.
YET, THEY ARE STILL, STUFFING ME AROUND, BECAUSE OF A MEDICATION I AM ON.
THEY, KNOW 🤔 HOW ILL, I AM, BUT WON'T SEE ME, UNTIL I'M OFF THE MEDS.
WISHING YOU AND YOUR DAUGHTER THE BEST❤
Bloodwork alone cannot diagnose or rule out Lupus. While it's rare not to have a positive ANA with Lupus it is possible.
I'd get a second opinion and try to get her on the meds. I'm ana negative and not giving up that there's some help when I really need it.
Bull
My ana was 1:40
@@LampWatershave them run the rnp. Smith dsdna..led to me being taken seriously
Thanks for the info.
How are you doing, Hope you have a great day
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Yes i dont haventhe butterfly rash an headaches
But my spine us effected cannibis drops put me un remission but u hav fybro
I have all of them and have ccp positive test
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Any treatment?
Sadly no 😢
Ofc there is treatment, but no cure.
Treatment yea. BUT no cure.
I have SLE and no fun. Tested 3x times. Positive each time
Yes there are people who still die from lupus!!
See your doctor for an accurate diagnosis. Hahahahahahahaha!!!!!!
With the help of (dr adima )on RUclips my Lupus was cure thank you sir you are a great.❤ ❤
Ya 😂all I get out off them, low on iron.. Or its your flybromygia..
you make it sound easy . just go to your doctor to help. So you say . Even specialists don't know what to do. just dismiss and SEE YA IN 6 MOS.
Years before I got worse symptoms I had these: arthritis that started out of nowhere, fevers, skin and mouth ulcers. Then 2 years ago it suddenly got much worse, I had rash on my cheeks, top of arms, fingers, legs, sight problems and eyelid rash, high bloodpressure and liver issues, among other things.
I have all but the sharp chest pain. I don't think my specialist will believe me.
See your Dr. ? REALLY? I don't even know what they do anymore....know what they don't do!
Can a woman give birth to a child after this disease??
No
They can!! They just have a higher chance of miscarriage.
Yes.
Yes I gave birth after my one and only child, however this was difficult for my health but my daughter was born healthy.
@@dailydose5709 Your wrong, I was born to a mum who had really bad lupus nephritis and was given 6 weeks to live but her consultant was able to turn it around and 5 years later she had me and I was born without lupus but have developed it in the last year.
What is the medication?
I have many autoimmune diseases but thank god not Lupus!
Take cannibis drops with tumeric
@@fionaestherfortuin4185what is cannibies drop
Can you say which, please?
Loss of hearing
6. You start howling at the moon
I'll see myself out