Thank you Chrissi Kelly for giving me the opportunity to share my story. I sincerely hope that others struggling with complete smell loss, for whatever reason, will find some kind of comfort 🙏
Kim Price, thank you so very much for sharing your story and most importantly your coping skills. I am 6 weeks away from my fall that caused a skull fracture and total loss of smell and taste. I am still in desperate mode. I am reading books, joining channels, smell training, taking prednisone and connecting with anyone I can. I already have an apt with a Smell & Taste Unit at University of Florida in July! You are so enduring and it was a pleasure to listen to your video.
Dear Melanie, Thank you very much for reaching out to me and for your lovely message. I am so sorry to hear that due to a fall you have lost your sense of smell and ability to experience flavour. It’s good to hear that you are researching the topic and connecting with others to help to understand and feel less alone with your sensory loss. It’s early days since your fall, and it sounds like you are doing all the things you can to try and re-gain your sense of smell. You mention smell training - I little tip I’ve read about, is to try and imagine/conjure the smell memory of the object you are holding, say a lemon or a rose when you are smell training. I confess it’s really hard to do especially when one’s immediate response is to feel so sad and desperate at the loss. On a good day when I’m relaxed I like to try and conjure in my mind say the smell of a rose and it can really make me feel comforted and nostalgic. Fingers crossed that your sense of smell returns, it may take time and be a slow process…meanwhile please feel free to make contact if ever you wish to, my email is kimprice05@gmail.com My very best wishes, Kim
I enjoyed watching this. I lost my sense of smell due to a benign tumor (myxoma) endoscopically removed about three years ago. I can't smell anything at all (but can taste everything). It is a hidden disability and I really enjoy hearing from others what their experiences are with having anosmia. Thank you for sharing your story!
Very true words I can identify so much. Its 18 months for me due to Covid and I'm still adjusting. Its really important to keep cooking and eating well. And nature and sports can be our boosters
Wonderful stuff, Kim. Really wonderful. Your description of the mechanism of your injuries is almost identical to the one I give of my own. Very insightful with your points about grieving, rationalising as a coping method, focusing on the positive. I really get what you mean about experiencing nature and food texturally, visually, haptically and kinesthetically. The isolation of anosmia is claustrophobic. All the more so in lockdown! And I have music on all the time, it provides a substitute canvas for life and gives it shape, form and emotional context.
Thank you Ed, for your very kind words and understanding. Have you joined the AbScent Mighty Network? A safe space for t.b.i. patients like you and I...to share and connect.
Thank you Chrissi Kelly for giving me the opportunity to share my story. I sincerely hope that others struggling with complete smell loss, for whatever reason, will find some kind of comfort 🙏
Kim Price, thank you so very much for sharing your story and most importantly your coping skills. I am 6 weeks away from my fall that caused a skull fracture and total loss of smell and taste. I am still in desperate mode. I am reading books, joining channels, smell training, taking prednisone and connecting with anyone I can. I already have an apt with a Smell & Taste Unit at University of Florida in July! You are so enduring and it was a pleasure to listen to your video.
Dear Melanie,
Thank you very much for reaching out to me and for your lovely message. I am so sorry to hear that due to a fall you have lost your sense of smell and ability to experience flavour.
It’s good to hear that you are researching the topic and connecting with others to help to understand and feel less alone with your sensory loss.
It’s early days since your fall, and it sounds like you are doing all the things you can to try and re-gain your sense of smell.
You mention smell training - I little tip I’ve read about, is to try and imagine/conjure the smell memory of the object you are holding, say a lemon or a rose when you are smell training. I confess it’s really hard to do especially when one’s immediate response is to feel so sad and desperate at the loss. On a good day when I’m relaxed I like to try and conjure in my mind say the smell of a rose and it can really make me feel comforted and nostalgic.
Fingers crossed that your sense of smell returns, it may take time and be a slow process…meanwhile please feel free to make contact if ever you wish to, my email is kimprice05@gmail.com
My very best wishes, Kim
I enjoyed watching this. I lost my sense of smell due to a benign tumor (myxoma) endoscopically removed about three years ago. I can't smell anything at all (but can taste everything). It is a hidden disability and I really enjoy hearing from others what their experiences are with having anosmia. Thank you for sharing your story!
Very informative, and you are a delight to listen to!
Such an inspiration and really helpful tips and tricks. Thankyou ❤
Very true words I can identify so much. Its 18 months for me due to Covid and I'm still adjusting. Its really important to keep cooking and eating well. And nature and sports can be our boosters
Wonderful stuff, Kim. Really wonderful. Your description of the mechanism of your injuries is almost identical to the one I give of my own.
Very insightful with your points about grieving, rationalising as a coping method, focusing on the positive.
I really get what you mean about experiencing nature and food texturally, visually, haptically and kinesthetically. The isolation of anosmia is claustrophobic. All the more so in lockdown!
And I have music on all the time, it provides a substitute canvas for life and gives it shape, form and emotional context.
Thank you Ed, for your very kind words and understanding.
Have you joined the AbScent Mighty Network? A safe space for t.b.i. patients like you and I...to share and connect.
@@kimprice4319 No... How do I join?