I get dystonia with my reactions too. I've found a few other folks who report similar symptoms. I am always searching for other folks who react this way. I think we need to raise awareness in the medical community that dystonia can be a sign of anaphylaxis or near-anaphylaxis. Thanks for sharing.
Thank you so much for not showing vomiting-I also have emetephobia. I can usually handle seeing it through a screen, but I (and I'm sure many others) appreciate it! ❤️ but as always love watching your videos!
Hi and yes I am another person who is suffering from this issue. I was always the person who wasn't affected by someone else being sick but since my health problems deterated it now affects me really badly even if they are not actually being sick but you can see that their colour of the skin has changed ready for them to be sick. So thank you for not showing it! Take care lot's of love from me kelli xxxxxx
hey everyone! just wanted to give a quick update. I mentioned in a previous vlog that I was undergoing massive hip surgery on December 22nd. I was in the hospital for Christmas, but I'm going home today. The pain isn't fun but I am overwhelmed and so grateful for the prayers, positive vibes and nice words. This is the most supportive channel and I am so thankful for everyone here. I hope your day is manageable, and that the holiday season is treating you well. I know they can be really hard for a lot of people. so feel free to message me if you need support. Much love!
Hi Cristina, I'm come from Germany, but I'm current on exchange in Colombia. Seeing (and hearing) the german Christmas Carol made me a little bit homesick but also very happy. Thank you for sharing and Merry Christmas!
The saline/IV bag shortage probably has to do with the fact that a vast majority of it is produced in Puerto Rico, which still hasn't received adequate aid. The medical industry is one of the main exports of the island, without Puerto Rico, the US will have a shortage of medical supplies. Merry Christmas Christina, you're amazing and watching your videos every week is one of my favorite things.
I think it's awesome and super interesting that essential oils don't give you a mast cell reaction! It feels like they are so strong smells and that would do something, but it's nice that you get to enjoy them! I hope you and your family had a wonderful holiday
The whole cycle of getting strong and then a problem occurs and you’re back to square one is basically what an elite athlete goes through their entire career. It’s mentally tough.
You poor, poor thing. So brave to vlog through your dystonia. It just broke my heart to see you like that. It’s Christmas tonight, so Merry Christmas to you. Hope you had a fabulous day with your family.
omg that was first time ive seen a mass cell reaction as bad as that my heart went out to you you are amazing and after this even more strong xxhugs from uk xxx
Goodness, that dystonia episode looked exhausting. I so appreciate the avoidance of sickness and gagging on your channel; I never really had the word emetophobia as a self-descriptor until recently, but I have it as well. So sorry your leg issues have you discouraged, I’m wishing you as much healing and painlessness as possible. Oh geez, I loathe magazines that include perfume samples-I agree they’re absolutely like bio warfare for a lot of different medical reasons. I adore your humor so much! You sliding down the exam table made me laugh my butt off, “I don’t think this is gonna work...” So much lol. Oh my gosh, half off the cbd balm? Yeah, I might be getting that sometime soon now since I definitely can’t afford it full price. I hope your Christmas was everything you wished for ❤️
Thank you so much for not showing vomiting!!! Even though i read the comments about it before watching this part, i started freaking out when you said it. Thank you!!! Also: A late Merry Christmas from Germany.
I was also raised with a lot of German traditions, because my family lives in a town founded by German settlers, and both my parents are descended from German immigrants. It just doesn't feel like Christmas without lebkuchen, pffernuse, wassail and German carols!
there's a phone app called twilight and a desktop add-on called f.lux, they dim the screen and filter out blue light between sunset and sunrise (or when you set them to turn on) and are so helpful before bed, sometimes twilight will stop working on my phone and the jump in brightness actually hurts - the definitely help with going from reading my phone to sleep.
I loved seeing your traditions around this time, it’s so interesting to see how different people celebrate this time of year. I am going to teach myself to crochet this year that is my plan I love seeing you making things to keep warm and I want to be able to do that too and make presents for people. I totally understand your frustrations too because though we have different illnesses it is a cycle of building up muscle and stamina and then you relapse and cannot work out and then you start again...it’s annoying so I get that totally! It was me who suggested wearing the earrings each day but that is such a shame they have the earrings on one piece of card but next year you will have lots of pretty things to wear. Xxx
Ugh my home health pharmacy is badly affected by the shortage and its been really hard trying to ration my stash of saline but I might be in serious trouble soon. I've been watching Tiffani's vlogs too, its so unfair but I know shes a fighter (and her dad is hilarious!) and even though that hospital isnt the greatest (I actually used to go there) I know she'll get the care she needs. Thank you SO MUCH for that promo code. My spoonie friend is visiting from new york and is buying it for us to try!!! I can't wait to tell you how it works!!!
Watching this from the hospital, thank you so much for your videos! A really fun way to kill a half hour haha. I'm so sorry the kinesio barrier reacted with your body, I was really hoping that was gonna work 😔
Another emetophobic here and I watch your videos with my finger hovering over the exit button. Now I know I don’t have to do that and I love you for it. Subscribed and hitting the notification bell.
I hope you had a good Christmas. Just had a new knee so lots of pain it made me quite sad over Christmas but your videos cheer me up you’re so positive and it’s contagious hugs xxx
The three “mess”-keteers! I love that you guys have each other. Merry Christmas and Happy New Years! PS-I’ve been watching the vlog you highlighted, Tiffani Ntanos, for the last few weeks, and when the hospital had the cops come search her room because of her CBD and took it away, it was so upsetting. I’m glad it was resolved in the end cause she’s got enough to worry about.
Can so relate to the cycle of getting better, working towards the future, then BAM! Something comes up that knocks you back down... crazy about the shortage, hopefully that's remedied soon haven't come accross it in CO.
Merry Christmas to you and your family and I hope you all had a great Christmas. Thank you so much for your vlogs as they have really helped me to cope with my health issues and to know that I am not the only one who is going through these issues. Once again thank you very much take care and God bless you all lot's of love from me kelli xxxxxx
Holy crap I've had that same reaction to over stress before...... Like severe stress. I'm still not tested for mast cell yet. I have signs and symptoms and I'm being sent to an allergist soon but.... I've never seen a reaction like that from you on the channel before..... That was definitely eye opening.
I hope you had a great Christmas!!! I love the name messkateers, it's adorable. I was wondering if it would be possible if you could maybe caption points where you're wearing a vog mask and talking, primarily in public. I'm not normally an issue but when there's a lot of other ambient noise in the background it can be hard for me to hear what you're saying. If it's too much for you to do don't worry, I can normally still have a general idea of what you're saying. Love and spoons.
That barrier cream caused me to literally break out in blisters. it looked like 3rd degree burns. It was awful. I will have to show you pictures sometime.
I get similar mast cell reactions off and on. Sometimes they are just mast cell reactions and sometimes they are not. In some cases, it can be the first sign of a blood infection and can go unoticed for weeks before your white count goes up, fever sets in, and you feel sick. In the earliest stages, your body tries to fight it and you will notice a slight increase of reactions, but they clear up with what ever you usually use to clear up mast cell reactions. I have a primary immune deficiency on top of mast cell stuff and can be on deaths door with no fever. Anytime you have long term iv access, you are at much higher risk of nasty blood infections. Ask your doctor to order blood cultures. Cultures will show what organisms are growing and what antibiotic is best, before any signs of sepsis or shock set in. Your home health nurse can draw the blood so you don't have to go in to the lab. It's far better to get cultures and not need them, than it is to not get them and end up hospitalized very sick. I'm not trying to be the after Christmas grinch, but have been down this path more than once. I've been told by ER doctors more than once that I look fine, only to end up in the ICU days later. The doctors that manage my TPN know me well and will order cultures when requested.😊
So I got 2 great gifts today... My etsy order arrived delivered by my cousin and you uploaded your vlog. I truly hope this sleep specialist will help you and the guys at theramu were really sweet. I wish they legalized CBD oil in my country since im allergic to all rubs, special joint balms, gels, anything to help with the pain I am allergic...
Oh man, I hate when smells that I have allergic reactions to sneak into my safe spaces! Hopefully it all cleared up well for you. I just picked up a work shift at a location where I don't usually work and they had a scented oil burner that I had horrible respiratory reactions to and I was stuck wearing a mask and still having reactions to for 8 hours, yuck! At least my usual work place is accommodating and they stopped using scented oil/ wax burners for me. And I agree that fun socks make everything better! Happy holidays!
I'm definitely going to look into the Theramu Relieve Pro CBD Balm! I've been getting botox- I think January or February will be 1 year now. I do get some relief, but not nearly enough!! I'm still on Fioricet, and Sumatriptan, and I still have pain that those won't decently cut. I have IIH, but they yanked me off the Diamox (which was helping), when I landed in the hospital with what looked like a stroke, ecause my last lumbar puncture was high-end normal pressure. They just think I have conversion disorder, and since I'm on a lot of meds, they just decided I don't need it, "it was one to easily just DC". ....AND, my head hurts even worse since!
I also have a lot of instability in my neck, my TMJ, and upper thoracic. And I know all of those, especially the 2 foremost, cause a lot of the intractable neck/head pain. I'm thinking that I may have to actually address this issue soon... ugh!
I can't thank you enough for the code! I have been curious about that. I've had two rounds of Botox for chronic migraines and can't wait to try something that won't put more medications in my sensitive stomach during an attack. I'll let you know how it works.
My old pulmonologist insisted that chromolyn could not be helping me. So glad you can get it. Also fwiw The mueller version of KT tape is much easier on my skin.
I am new at your channel and was wondering why you celebrating St. Nikolaus because I didn't know american celebrate, but with your german background it explains it. Lots of love from Germany.
I am going to have to try the barrier cream. I wish I had heard about it when I had a burn on my leg. I had very large burn on the back of my thigh and we used paper tape and was so bad for my skin and I had a bad allergic reaction to the adhesive.
Don't worry we believe you have real friends, you doing better than me on that front, I never see anyone (friends wise), I hope that changes. Your friends are so lucky making them things, crafts always look good. Yes I also need to get into better bedtime routine, I know it's doable but staying consistent is an issue, we'll get there ;) :) x
Thats some bull Cromolyn nebulizer has been used for Cf patients for years with no issues as i have CF as well and use it for that.So your german Nice. I am French and Canadian French and Vietnamese and Irish and Russian and Shawnee Indian
The Nutcracker's great! I just went to see it on the 16th (California Ballet Co. in San Diego). I adore the costumes. Especially Clara and (I think they're called) the party dancers (similar gowns to Clara, but different colors. I met one who was in a lime green one). Do the vogmasks help with the perfume spill (?) that occurred? Almost seems like you'd need a cartirdge respirator, like for spray painting.
Ironically I’ve just found out about that barrier cream recently and have been using it without reacting (which is so tough for me) so bummed it didn’t work out for you. 😣
So, I have been doing my best to research CBD products. Since it's such a confusing market and enmeshed in contradictory laws, it's so hard to do (on top of the lack of quality research). One thing to consider when choosing products is to be as certain as you can be of where the hemp is sourced/grown. Hemp is excellent at removing toxins and metals from soil (so much so that it is used for this purpose specifically) so if the hemp/CBD is sourced from places with poor environmental regulations, that's a big risk, IMO. I don't know where Theramu sources, so I'm not trying to correct you in any way. Just something I found and wanted to share here for anyone thinking of trying it. Thanks for opening these discussions, Cristina :) For example, Italian farmers using hemp to clean soil: www.cbsnews.com/news/cannabis-plant-soil-decontamination-italy-vincenzo-fornaro/
I'm always excited for your vlogs! I'm so done with my pain, at the moment I'm on oxycodon to help with it, it helps but of course I'd rather not take it for long. So I'm willing to try the whole weed oil/balm industry, but I've got a question, does the company send their products over to the Netherlands? Because if they don't I'm going to pay a whole lot more than I want to, to be honest
Theramu does, but shipping (at least to Germany) was around $40 USD when I checked, and you would still need to pay VAT/customs tax on it. I would recomend ordering from an EU based company such as www.lovecbd.org/ (UK based) or www.zamnesia.com (also EU, with more balm/salve options). There are a lot more EU based options, and even a few 'head shops' in Amsterdam that focus on CBD oil/balms and will answer questions.
I get that shakey ughhhh i feel u and freaking its bogua that lol cow said i was faking it but i once had to go to th er cuz shaking perissted more than 2 hrs
Hi Christina! I'm about to start PT for EDS Joint Protection and POTS rehab. Do you have any tips or exercises that you really think work for your joint laxity?
since you react to perfumes and such, i understand that you might not know this, but how come you can use stuff from lush? i’m not sensitive to smells at all but i can’t use lush things because they are so so fragrent.
I know this sounds strange, but my PT uses Pepto-bysmol as a barrier for me for my K-tape so I don't blister. Trust me, I was skeptical at first too, but it works SOOO good. So if you happen to have any at the house you could try a Swatch test and see if you react? P.S. I'm sorry if this comment annoys you, I totally understand unsolicited advice can be annoying so just let me know and I'll keep the lips zipped! 💜
Mass cell attacks are scary as hell , it's like an epileptic seizure only your awake for it. c.f. air hunger is worse . Being cronically or terminally ill is hell believe it's not faked or exaggeration
I was watching a girl (Tiffani Ntanos) she was using CBD cream and her friend got her CBD bears while she was in the hospital. She was vlogging about it. The next day the police was in there taking all her CBD products and going thru her fathers prescriptions as he was staying with her. It was so embarrassing for her. I hear they are making CBD illegal. I have no idea why. It is hemp not pot. But there you have it
I'm sorry you had such a bad reaction to the cream. Sadly a lot of soaps and balms have fragrances in them EVEN though they label them as fragrance free on the big label, and often when you look at the ingredients really small on the back they'll list fragrance its quite frustrating. Part of this is because soap and balm companies don't actually have to list their complete ingredients list, and there really isn't any regulation of these companies going on even if they obviously should. And they also have a weird habit of hiding their allergen ingredients behind bs science jargon names. For example if the thing lists anything with a "laur", "coco", "lauryl", etc, the item has coconut and or palm. The same kind of thing happens with peanuts so yeah you have to Google it cuz there are just too many names for these things. Also if it has anything that can be shortened down to SLS has coconut/palm derivatives in it. They also like to hide dyes in their products, I seriously don't understand what they get from tricking people like this. This is why I avoid anything not from a local soap maker and am trying to learn how to make my own personal care products without dying because multiple chemical sensitivity and lye do not mix well together. Also thank you so much for not including emetic stuff I have emetaphobia so badly that it even makes it hard to even listen to the words associated with it besides stomach sick.
I get dystonia with my reactions too. I've found a few other folks who report similar symptoms. I am always searching for other folks who react this way. I think we need to raise awareness in the medical community that dystonia can be a sign of anaphylaxis or near-anaphylaxis. Thanks for sharing.
Hello,
I have dystonic reactions as well. Have you found other people or videos? I'm not finding much about it.
Thank you so much for not showing vomiting-I also have emetephobia. I can usually handle seeing it through a screen, but I (and I'm sure many others) appreciate it! ❤️ but as always love watching your videos!
Yes, I am another one and I am SO grateful. My emetophobia has gotten so much better in the past years but I am still glad to not see and hear it.
Hi and yes I am another person who is suffering from this issue. I was always the person who wasn't affected by someone else being sick but since my health problems deterated it now affects me really badly even if they are not actually being sick but you can see that their colour of the skin has changed ready for them to be sick. So thank you for not showing it! Take care lot's of love from me kelli xxxxxx
hey everyone! just wanted to give a quick update. I mentioned in a previous vlog that I was undergoing massive hip surgery on December 22nd. I was in the hospital for Christmas, but I'm going home today. The pain isn't fun but I am overwhelmed and so grateful for the prayers, positive vibes and nice words. This is the most supportive channel and I am so thankful for everyone here. I hope your day is manageable, and that the holiday season is treating you well. I know they can be really hard for a lot of people. so feel free to message me if you need support.
Much love!
Fruitbat! Glad you are home and on the mend. May your new year be blessed with health and happiness. :D
Christina is voleghgkg
Hi fun is you like to be
Hi Cristina,
I'm come from Germany, but I'm current on exchange in Colombia. Seeing (and hearing) the german Christmas Carol made me a little bit homesick but also very happy. Thank you for sharing and Merry Christmas!
The saline/IV bag shortage probably has to do with the fact that a vast majority of it is produced in Puerto Rico, which still hasn't received adequate aid. The medical industry is one of the main exports of the island, without Puerto Rico, the US will have a shortage of medical supplies.
Merry Christmas Christina, you're amazing and watching your videos every week is one of my favorite things.
I think it's awesome and super interesting that essential oils don't give you a mast cell reaction! It feels like they are so strong smells and that would do something, but it's nice that you get to enjoy them! I hope you and your family had a wonderful holiday
The whole cycle of getting strong and then a problem occurs and you’re back to square one is basically what an elite athlete goes through their entire career. It’s mentally tough.
I was sad to see you so reactive. I am glad to see you bubbly after your mast cell reaction.
❤️God bless you, Christina, from a Connecticut admirer. ❤️
Oh my goodness! Christina, you opened my whole box on the vlog! 🙈 You are so adorable and sweet and I love the scarf on you! Love ya 💕
Aww that's so lovely, even I was excited for her whilst watching the vid, great gifts, kind of you. xx
You poor, poor thing. So brave to vlog through your dystonia. It just broke my heart to see you like that. It’s Christmas tonight, so Merry Christmas to you. Hope you had a fabulous day with your family.
You are one of my favorite RUclipsrs.
omg that was first time ive seen a mass cell reaction as bad as that my heart went out to you you are amazing and after this even more strong xxhugs from uk xxx
Goodness, that dystonia episode looked exhausting. I so appreciate the avoidance of sickness and gagging on your channel; I never really had the word emetophobia as a self-descriptor until recently, but I have it as well. So sorry your leg issues have you discouraged, I’m wishing you as much healing and painlessness as possible. Oh geez, I loathe magazines that include perfume samples-I agree they’re absolutely like bio warfare for a lot of different medical reasons. I adore your humor so much! You sliding down the exam table made me laugh my butt off, “I don’t think this is gonna work...” So much lol. Oh my gosh, half off the cbd balm? Yeah, I might be getting that sometime soon now since I definitely can’t afford it full price. I hope your Christmas was everything you wished for ❤️
HAPPY 22ND BIRTHDAY CHRISTINA!!Hope you have a wonderful time!
Thank you so much for not showing vomiting!!! Even though i read the comments about it before watching this part, i started freaking out when you said it. Thank you!!!
Also: A late Merry Christmas from Germany.
I was also raised with a lot of German traditions, because my family lives in a town founded by German settlers, and both my parents are descended from German immigrants. It just doesn't feel like Christmas without lebkuchen, pffernuse, wassail and German carols!
Amazing to see other zebras out there!!
Well I was about to be off to bed. Then I saw a new video from my favorite channel!!
there's a phone app called twilight and a desktop add-on called f.lux, they dim the screen and filter out blue light between sunset and sunrise (or when you set them to turn on) and are so helpful before bed, sometimes twilight will stop working on my phone and the jump in brightness actually hurts - the definitely help with going from reading my phone to sleep.
I loved seeing your traditions around this time, it’s so interesting to see how different people celebrate this time of year. I am going to teach myself to crochet this year that is my plan I love seeing you making things to keep warm and I want to be able to do that too and make presents for people. I totally understand your frustrations too because though we have different illnesses it is a cycle of building up muscle and stamina and then you relapse and cannot work out and then you start again...it’s annoying so I get that totally! It was me who suggested wearing the earrings each day but that is such a shame they have the earrings on one piece of card but next year you will have lots of pretty things to wear. Xxx
Ugh my home health pharmacy is badly affected by the shortage and its been really hard trying to ration my stash of saline but I might be in serious trouble soon. I've been watching Tiffani's vlogs too, its so unfair but I know shes a fighter (and her dad is hilarious!) and even though that hospital isnt the greatest (I actually used to go there) I know she'll get the care she needs. Thank you SO MUCH for that promo code. My spoonie friend is visiting from new york and is buying it for us to try!!! I can't wait to tell you how it works!!!
I have severe emetophobia and I really appreciate it! ❤️
Watching this from the hospital, thank you so much for your videos! A really fun way to kill a half hour haha. I'm so sorry the kinesio barrier reacted with your body, I was really hoping that was gonna work 😔
Another emetophobic here and I watch your videos with my finger hovering over the exit button. Now I know I don’t have to do that and I love you for it. Subscribed and hitting the notification bell.
“The 3 Mess-keteers” that is genius 😂
Christina, you are such a fast hat maker! I'm impressed. :D
I hope you had a good Christmas. Just had a new knee so lots of pain it made me quite sad over Christmas but your videos cheer me up you’re so positive and it’s contagious hugs xxx
That barrier cream is awesome!!
Hi, Christina, you know more medication than any doctor I love your videos.
I hope you had a happy birthday as well!! 🎉
I look forward to see your videos, I to have a chronic illness and know it can be hard. love you!
The three “mess”-keteers! I love that you guys have each other. Merry Christmas and Happy New Years! PS-I’ve been watching the vlog you highlighted, Tiffani Ntanos, for the last few weeks, and when the hospital had the cops come search her room because of her CBD and took it away, it was so upsetting. I’m glad it was resolved in the end cause she’s got enough to worry about.
Can so relate to the cycle of getting better, working towards the future, then BAM! Something comes up that knocks you back down... crazy about the shortage, hopefully that's remedied soon haven't come accross it in CO.
Merry Christmas to you and your family and I hope you all had a great Christmas. Thank you so much for your vlogs as they have really helped me to cope with my health issues and to know that I am not the only one who is going through these issues. Once again thank you very much take care and God bless you all lot's of love from me kelli xxxxxx
Ha ha loved the exam table clip. 🤣🤣
Holy crap I've had that same reaction to over stress before...... Like severe stress. I'm still not tested for mast cell yet. I have signs and symptoms and I'm being sent to an allergist soon but.... I've never seen a reaction like that from you on the channel before..... That was definitely eye opening.
I hope you had a great Christmas!!! I love the name messkateers, it's adorable. I was wondering if it would be possible if you could maybe caption points where you're wearing a vog mask and talking, primarily in public. I'm not normally an issue but when there's a lot of other ambient noise in the background it can be hard for me to hear what you're saying. If it's too much for you to do don't worry, I can normally still have a general idea of what you're saying. Love and spoons.
My family is German too! I miss Germany so much at Christmas time. Loved this video!
You should make a video of the youtubers you enjoy watching! Chronic illness and just all youtubers! I’m always looking for new channels to watch!
chronically_ill_chronicle Chronically Jaquie is an amazing channel also she's my daily vlogger that I watch
I nearly spit out my drink when you said the promo is for 50 percent! 😂 I'm SO THRILLED!!!
That barrier cream caused me to literally break out in blisters. it looked like 3rd degree burns. It was awful. I will have to show you pictures sometime.
oh man you were watching the royal opera version of nutcracker?!!! its so beautiful their costume desgin is so amazing
Happy birthday!
I get similar mast cell reactions off and on. Sometimes they are just mast cell reactions and sometimes they are not. In some cases, it can be the first sign of a blood infection and can go unoticed for weeks before your white count goes up, fever sets in, and you feel sick. In the earliest stages, your body tries to fight it and you will notice a slight increase of reactions, but they clear up with what ever you usually use to clear up mast cell reactions. I have a primary immune deficiency on top of mast cell stuff and can be on deaths door with no fever. Anytime you have long term iv access, you are at much higher risk of nasty blood infections. Ask your doctor to order blood cultures. Cultures will show what organisms are growing and what antibiotic is best, before any signs of sepsis or shock set in. Your home health nurse can draw the blood so you don't have to go in to the lab. It's far better to get cultures and not need them, than it is to not get them and end up hospitalized very sick. I'm not trying to be the after Christmas grinch, but have been down this path more than once. I've been told by ER doctors more than once that I look fine, only to end up in the ICU days later. The doctors that manage my TPN know me well and will order cultures when requested.😊
So I got 2 great gifts today... My etsy order arrived delivered by my cousin and you uploaded your vlog. I truly hope this sleep specialist will help you and the guys at theramu were really sweet. I wish they legalized CBD oil in my country since im allergic to all rubs, special joint balms, gels, anything to help with the pain I am allergic...
Oh man, I hate when smells that I have allergic reactions to sneak into my safe spaces! Hopefully it all cleared up well for you. I just picked up a work shift at a location where I don't usually work and they had a scented oil burner that I had horrible respiratory reactions to and I was stuck wearing a mask and still having reactions to for 8 hours, yuck! At least my usual work place is accommodating and they stopped using scented oil/ wax burners for me.
And I agree that fun socks make everything better!
Happy holidays!
I'm definitely going to look into the Theramu Relieve Pro CBD Balm! I've been getting botox- I think January or February will be 1 year now. I do get some relief, but not nearly enough!! I'm still on Fioricet, and Sumatriptan, and I still have pain that those won't decently cut.
I have IIH, but they yanked me off the Diamox (which was helping), when I landed in the hospital with what looked like a stroke, ecause my last lumbar puncture was high-end normal pressure.
They just think I have conversion disorder, and since I'm on a lot of meds, they just decided I don't need it, "it was one to easily just DC". ....AND, my head hurts even worse since!
I also have a lot of instability in my neck, my TMJ, and upper thoracic. And I know all of those, especially the 2 foremost, cause a lot of the intractable neck/head pain. I'm thinking that I may have to actually address this issue soon... ugh!
I can't thank you enough for the code! I have been curious about that. I've had two rounds of Botox for chronic migraines and can't wait to try something that won't put more medications in my sensitive stomach during an attack. I'll let you know how it works.
My old pulmonologist insisted that chromolyn could not be helping me. So glad you can get it.
Also fwiw The mueller version of KT tape is much easier on my skin.
I am new at your channel and was wondering why you celebrating St. Nikolaus because I didn't know american celebrate, but with your german background it explains it. Lots of love from Germany.
Yeah our cardiologist said it’s because the saline is made in Puerto Rico so
I am going to have to try the barrier cream. I wish I had heard about it when I had a burn on my leg. I had very large burn on the back of my thigh and we used paper tape and was so bad for my skin and I had a bad allergic reaction to the adhesive.
Don't worry we believe you have real friends, you doing better than me on that front, I never see anyone (friends wise), I hope that changes. Your friends are so lucky making them things, crafts always look good. Yes I also need to get into better bedtime routine, I know it's doable but staying consistent is an issue, we'll get there ;) :) x
Oh my goodness I had a nurse named Kayla that was my favorite in hospital!! All good nurses are named Kayla it seems :)
Thats some bull Cromolyn nebulizer has been used for Cf patients for years with no issues as i have CF as well and use it for that.So your german Nice. I am French and Canadian French and Vietnamese and Irish and Russian and Shawnee Indian
The Nutcracker's great! I just went to see it on the 16th (California Ballet Co. in San Diego). I adore the costumes. Especially Clara and (I think they're called) the party dancers (similar gowns to Clara, but different colors. I met one who was in a lime green one).
Do the vogmasks help with the perfume spill (?) that occurred? Almost seems like you'd need a cartirdge respirator, like for spray painting.
i use d'fluff from lush to shave its pink and it smells like strawberry it is sooo good x
Ironically I’ve just found out about that barrier cream recently and have been using it without reacting (which is so tough for me) so bummed it didn’t work out for you. 😣
So, I have been doing my best to research CBD products. Since it's such a confusing market and enmeshed in contradictory laws, it's so hard to do (on top of the lack of quality research). One thing to consider when choosing products is to be as certain as you can be of where the hemp is sourced/grown. Hemp is excellent at removing toxins and metals from soil (so much so that it is used for this purpose specifically) so if the hemp/CBD is sourced from places with poor environmental regulations, that's a big risk, IMO. I don't know where Theramu sources, so I'm not trying to correct you in any way. Just something I found and wanted to share here for anyone thinking of trying it. Thanks for opening these discussions, Cristina :) For example, Italian farmers using hemp to clean soil: www.cbsnews.com/news/cannabis-plant-soil-decontamination-italy-vincenzo-fornaro/
I'm always excited for your vlogs! I'm so done with my pain, at the moment I'm on oxycodon to help with it, it helps but of course I'd rather not take it for long. So I'm willing to try the whole weed oil/balm industry, but I've got a question, does the company send their products over to the Netherlands? Because if they don't I'm going to pay a whole lot more than I want to, to be honest
Theramu does, but shipping (at least to Germany) was around $40 USD when I checked, and you would still need to pay VAT/customs tax on it. I would recomend ordering from an EU based company such as www.lovecbd.org/ (UK based) or www.zamnesia.com (also EU, with more balm/salve options). There are a lot more EU based options, and even a few 'head shops' in Amsterdam that focus on CBD oil/balms and will answer questions.
Emily Horton Thanks so much for this!
I get that shakey ughhhh i feel u and freaking its bogua that lol cow said i was faking it but i once had to go to th er cuz shaking perissted more than 2 hrs
My sleeping self takes my retainer out in the middle of the night
There is a hypoallergenic version in that brand!!
Hello could you tell me the website for the pro balm? Thanks🤪
+Erin's World It should be right in the description box, theramu.com/products/relieve-pro but here it is
What makeup do you use? I have been having lots of issues with allergies lately... I wish you wonderful festivities 😊❤
we gotta meet up in person when im in boston for CF clinic
How was the trip to the bathroom Wednesday night? DId you end up reacting?
Hi Christina! I'm about to start PT for EDS Joint Protection and POTS rehab. Do you have any tips or exercises that you really think work for your joint laxity?
I'm on the other end kt tape doesn't stick to me at all happens with bandaids too we have no idea why
since you react to perfumes and such, i understand that you might not know this, but how come you can use stuff from lush? i’m not sensitive to smells at all but i can’t use lush things because they are so so fragrent.
Hi I wanted to let you know that they make skin Barrier wipes by the same company
have you thought about learning do your own port or a family member
I know this sounds strange, but my PT uses Pepto-bysmol as a barrier for me for my K-tape so I don't blister. Trust me, I was skeptical at first too, but it works SOOO good. So if you happen to have any at the house you could try a Swatch test and see if you react?
P.S. I'm sorry if this comment annoys you, I totally understand unsolicited advice can be annoying so just let me know and I'll keep the lips zipped! 💜
Marisa Visser peto-bysmol?? Really??
Jessica B I know. It sounds bananas. But it works so so well.
Mass cell attacks are scary as hell , it's like an epileptic seizure only your awake for it. c.f. air hunger is worse . Being cronically or terminally ill is hell believe it's not faked or exaggeration
I was watching a girl (Tiffani Ntanos) she was using CBD cream and her friend got her CBD bears while she was in the hospital. She was vlogging about it. The next day the police was in there taking all her CBD products and going thru her fathers prescriptions as he was staying with her. It was so embarrassing for her. I hear they are making CBD illegal. I have no idea why. It is hemp not pot. But there you have it
I'm sorry you had such a bad reaction to the cream. Sadly a lot of soaps and balms have fragrances in them EVEN though they label them as fragrance free on the big label, and often when you look at the ingredients really small on the back they'll list fragrance its quite frustrating. Part of this is because soap and balm companies don't actually have to list their complete ingredients list, and there really isn't any regulation of these companies going on even if they obviously should. And they also have a weird habit of hiding their allergen ingredients behind bs science jargon names. For example if the thing lists anything with a "laur", "coco", "lauryl", etc, the item has coconut and or palm. The same kind of thing happens with peanuts so yeah you have to Google it cuz there are just too many names for these things. Also if it has anything that can be shortened down to SLS has coconut/palm derivatives in it. They also like to hide dyes in their products, I seriously don't understand what they get from tricking people like this. This is why I avoid anything not from a local soap maker and am trying to learn how to make my own personal care products without dying because multiple chemical sensitivity and lye do not mix well together. Also thank you so much for not including emetic stuff I have emetaphobia so badly that it even makes it hard to even listen to the words associated with it besides stomach sick.
Yeah our cardiologist said it’s because the saline is made in Puerto Rico so