Before MS our brains had movement patterns. We didn’t have to think about walking, balance, getting up or down. Post MS, we created and taught our brains incorrect patterns. The negative movements performed extra slowly will make us stronger to perform the movement. If you lift your leg with your hands then lower it down super slowly. Can’t get up from the floor ? Then go down very slowly and controlled. If you’re always looking down then you’re going down. Look up at the top of the stairs and go up. Look at the horizon and walk forward. Get back the proper movement patterns.
Great interview! So much of this makes sense and therefore gives me hope (which I’ve always had - 28yrs - but this gives me more). I’ve already downloaded Gretchen’s book and look forward to reading it.
I have severe spasticity. In both legs with my MS. I've been on crutches 11 1/2 years and also have trouble with balance. If movement & balance problems are caused by breaks in the myelin sheath, will these exercises still help over time and can the brain still be rewired?
Excellent question! And thanks for watching. I am not a doctor like Dr. Gretchen, but neuroplasticity suggests improvements can be made! It also may depend on damage is done. The brain has much more reserves than the spinal column. Definitely reach out to Dr. Gretchen, she may be able to give a further answer and may be able to help.
From my personal experience First DX with Primary Progressive MS. Over time developing 22+ brain lesions, and more lesions from top to bottom on my spine, MRI showing progression every year. I went from assistive devices, to wheelchair, to using nothing. As my disease progresses I am thriving. The damage done is correcting over time- with diligence, hard work, consistency ,and a positive attitude. Hope will make you smile, hard work will bring you joy! ❤️💪🏼 PS Join the CMSC(Consortium of MS Centers) and take the classes. You can even attend their annual meeting. All the latest news and discoveries for MS!
I am process I getting my diagnosis not sure if MS or Neuropathy I had Mono a long time ago. I have a Ms signs since March 2020 after I got Covid I never recovered I got worse .
Oh I am sorry you are experiencing symptoms. Keep advocating for yourself and seeking answers. There are many things it could be. Auto immune diseases and conditions can be very tricky to diagnose. Keep me posted.
Get your copy of the book here amzn.to/3rlHYyC
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Thank you so much for having me as a guest Vickie! It is always a pleasure chatting with you and sharing with your community!
It was so awesome to chat with you again!
Before MS our brains had movement patterns. We didn’t have to think about walking, balance, getting up or down. Post MS, we created and taught our brains incorrect patterns. The negative movements performed extra slowly will make us stronger to perform the movement. If you lift your leg with your hands then lower it down super slowly. Can’t get up from the floor ? Then go down very slowly and controlled. If you’re always looking down then you’re going down. Look up at the top of the stairs and go up. Look at the horizon and walk forward. Get back the proper movement patterns.
All excellent tips! Thanks!
Great interview! So much of this makes sense and therefore gives me hope (which I’ve always had - 28yrs - but this gives me more). I’ve already downloaded Gretchen’s book and look forward to reading it.
Excellent! Let me know how you like the book.
ICE Roller I use over my legs ankles feet arms it helps with burning pain numbness
Oh an ice roller! Great idea!
I work out 5 -6 days a week exercise and Diet helps
It really does, doesn’t it?
I have severe spasticity. In both legs with my MS. I've been on crutches 11 1/2 years and also have trouble with balance. If movement & balance problems are caused by breaks in the myelin sheath, will these exercises still help over time and can the brain still be rewired?
Excellent question! And thanks for watching. I am not a doctor like Dr. Gretchen, but neuroplasticity suggests improvements can be made! It also may depend on damage is done. The brain has much more reserves than the spinal column. Definitely reach out to Dr. Gretchen, she may be able to give a further answer and may be able to help.
From my personal experience First DX with Primary Progressive MS. Over time developing 22+ brain lesions, and more lesions from top to bottom on my spine, MRI showing progression every year. I went from assistive devices, to wheelchair, to using nothing.
As my disease progresses I am thriving. The damage done is correcting over time-
with diligence, hard work, consistency ,and a positive attitude. Hope will make you smile, hard work will bring you joy! ❤️💪🏼
PS Join the CMSC(Consortium of MS Centers) and take the classes. You can even attend their annual meeting. All the latest news and discoveries for MS!
Thank you so much! That gives me hope! ❤️
@@sukijohnson5398 oh honey there is always hope!! 😊💕
@@rawsomehappy ppms 34 yrs we need to talk. how can we connect?
I am process I getting my diagnosis not sure if MS or Neuropathy I had Mono a long time ago. I have a Ms signs since March 2020 after I got Covid I never recovered I got worse .
Oh I am sorry you are experiencing symptoms. Keep advocating for yourself and seeking answers. There are many things it could be. Auto immune diseases and conditions can be very tricky to diagnose. Keep me posted.
2:28 😅