Patient Stories: Living with Myopic Macular Degeneration - Theresa Mabe

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  • Опубликовано: 22 авг 2024

Комментарии • 79

  • @rachelhitchcock616
    @rachelhitchcock616 6 месяцев назад +3

    Thank you for sharing your story. It’s important to hear stories of young people with various eye conditions. We’re not really well represented in the vi/blind space. ❤

  • @seapearl1240
    @seapearl1240 Год назад +5

    Hi Theresa, I am diagnosed with Myopia MD too in September 2022 and just had first Avastin injection treatment and overcome my terrifying first injection wasn't not so terrible after all. I feel exactly the same with you. I was severely nearsighted at 7-8 yes old too and retina stretched thin symptoms is very similar. Feeling isolated and alone with anxiety frustrated too but thanks to your great attitude to share this with me/us out there. Your sharing of experience and connect with others with same sickness is very helpful. There are a lot of people with ARMD but we need this type of platform like yours to share our thoughts/experiences with Myopic Macula Degeneration. Thank-You. You are pretty AWESOME !👍💪😍👏

  • @oscardennis
    @oscardennis 3 года назад +7

    Thank you! I feel so alone in this prison!

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      What u mean

    • @ninaolmedo-perez9017
      @ninaolmedo-perez9017 6 месяцев назад

      See my reply below.... you are not alone, and I get it, feeling its being in a prison, scary and not being able to escape it 😢

  • @ninaolmedo-perez9017
    @ninaolmedo-perez9017 6 месяцев назад +1

    Thank you!, I was diagnosed 2017, had to have injections... I definitely don't drive at night... been stable since that bleed, thank goodnessssss
    Thank you again for sharing ❤

    • @badreddinegacem
      @badreddinegacem 6 месяцев назад

      Stable for 7 years, and that is pretty good. What's your prescription ?

    • @badreddinegacem
      @badreddinegacem 6 месяцев назад

      Also do you have it in both eyes

  • @heidi1410
    @heidi1410 3 года назад +10

    My story is the exact same as yours! Nice to know I’m not alone. What is your prescription? Mine gets worse every year, even in my mid 30’s. -17.5 & -18.25 last week :(
    I’m grateful for the injections that are helping maintain what vision I do have, and that I’m still able to wear contacts too.

    • @seapearl1240
      @seapearl1240 Год назад +1

      I am similar prescription too. -18 & -21

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      Me too! I'm about to take my first injection ever this week! Will I ever stop having them?

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      @Basedeyecel doc told me 3 injections over 3 months, then we'll see

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      @Basedeyecel you think it'd be enough?

  • @sheilaklein569
    @sheilaklein569 2 года назад

    Thanks for sharing

  • @ricardotorresricky1248
    @ricardotorresricky1248 3 года назад +5

    Thank you so much for sharing your experience.
    My fiancee has CNV and I think this mightve helped her. She has had such a hard time coming to grips with this.... I don't know what I can do to help her. I've bought AREDS2 and she got her 1st shot of Lucentis... I don't know what else to do.

    • @bittersweet4992
      @bittersweet4992 3 года назад

      I am the same way, I am a female and I was recently diagnosed with CNV its so scary

    • @zineblgouilmi5855
      @zineblgouilmi5855 Год назад +1

      Hello 👋 i had my second injections i was diagnosed with myopic cnv im so scared can u please share your experience with me ? and if there is a chance it might happened to the other eye ? Im terrified

    • @kittyjoujou7201
      @kittyjoujou7201 Год назад +1

      @@zineblgouilmi5855 ena zeda kifek 😥 najjmou na7kiw privé

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@@kittyjoujou7201ana tan kifek

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@@zineblgouilmi5855same here pls share your experience with me

  • @mblabezza
    @mblabezza 2 года назад +1

    Slay queen. I relate so hard.

  • @magnus33john
    @magnus33john 3 месяца назад

    Ironically you perfectly described my eye's😅 Headed in tom to deal with the oil slick in my right eye.

  • @otiebrown9999
    @otiebrown9999 Год назад +2

    Does myopia cause the degeneration?
    If you prevent myopia, would that prevent it?

  • @bittersweet4992
    @bittersweet4992 3 года назад +6

    what is your vision like now? I have CNV and I have received two injecitons. I was diagnosed last year in december and like you said there is not a lot of people with this

  • @renebouwman973
    @renebouwman973 2 года назад +6

    I was diagnosed Myopic Macular Degeneration last december 2021. I have 3 injections and my sight is stabile but not as good as before. Do you know if this is progressive? Because my doctor says I don't need injections at this moment. I am 62 but still able to drive car night and day

    • @seapearl1240
      @seapearl1240 Год назад

      I am similar with your cases at 63 with Myopic MD and with do 2nd injection next week. What is the name of your injection?

    • @RangelGabriel
      @RangelGabriel Год назад +1

      Does your vision get any better with injections? I don't have it, but my mom does and it's really hard for her to be in the dark about it. Injections are way too expensive where we live and the doctor said that in her case it's better not to involve any injections, I don't know why.

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@RangelGabriel stay strong. How is she now?

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      How long has it been since your last injection

  • @TruckDriver2005
    @TruckDriver2005 3 года назад +4

    I'm just wondering what your prescription level is?

  • @mischievousoliver6678
    @mischievousoliver6678 Год назад +1

    I’ve had vision problems my whole life. Recently, I had the same experience with the wavy vision in my left eye. I see a specialist every six months and they said that nothing can be done with my left eye. I’m very afraid that it could happen in my good eye. I’d love to be able to correspond with you.

    • @Pax6368
      @Pax6368 2 месяца назад

      There are other options. People have reversed their condition with nutrition!

  • @myroncardozo2671
    @myroncardozo2671 3 года назад +4

    I m also sufferings but the dry one.wet one very dangerously

    • @sujitkumar-wx6bk
      @sujitkumar-wx6bk 3 года назад

      Am aslo 😥

    • @chev290c
      @chev290c Год назад +1

      me too. Dry one on my left eye. Distorted vision 😥 am I'm 35

  • @amandagaskell9602
    @amandagaskell9602 2 года назад +4

    Does lattice degeneration progress quickly? I’m so worried, I was just diagnosed. Do I need to see a retina specialist for it or my regular ophthalmologist?

    • @enyawdgink3926
      @enyawdgink3926 2 года назад +2

      I have it too. I have been worried but prayer has really helped

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      What is your status now? Give us an update

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@@enyawdgink3926how r u now

    • @mariac.5021
      @mariac.5021 5 месяцев назад

      I see a retina specialist, he has saved my vision.

  • @oscarsoto7099
    @oscarsoto7099 6 месяцев назад

    El stress fue la causa de mi maculopatia central cerosa y me pongo inyecciones eylea cada 2 meses. Desde hace 3 años es maculopatia humeda

  • @oscardennis
    @oscardennis 3 года назад +1

    I’m no longer drive!

  • @effentjes
    @effentjes 3 года назад +6

    I had my first injection yesterday. Injection doesn't hurt, but after, omg. I am worried about depth perception and falling when I walk my dog because I have a scotoma with distortion in my right eye.

    • @bittersweet4992
      @bittersweet4992 3 года назад +2

      ive had two injections and it helped my vision drastically, i still dont see as clear as I used to but it improved

    • @seapearl1240
      @seapearl1240 Год назад +1

      My 2nd one is next week too. Let's hope it will improve my vision.

    • @RangelGabriel
      @RangelGabriel Год назад +1

      How is y'all vision after injections? Do you feel as if you're now more self-sufficient, given it's slightly better now?

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@@seapearl1240when do you no longer need injections?

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад +1

      ​@@RangelGabrielhow r u holding up?

  • @clumsybong4466
    @clumsybong4466 5 месяцев назад

    I have myopic cnvm in my right eye will i get it on another eye if it not treated?

  • @agungsurya3624
    @agungsurya3624 2 года назад

    What your prescreption

  • @joiamed8544
    @joiamed8544 2 года назад

    Do you use the cannabis for help?

  • @sewlykhatun521
    @sewlykhatun521 Год назад

    Dear Theresa
    I have same Myopic Macular Degeneration. Is there sny opportunity for cure

  • @myroncardozo2671
    @myroncardozo2671 3 года назад +1

    You r from?

  • @TARPD
    @TARPD 2 года назад +2

    I love your spirt

  • @myroncardozo2671
    @myroncardozo2671 3 года назад +1

    Hello

  • @SuperPulsars
    @SuperPulsars 3 года назад +3

    How are you able to see without glasses?

    • @jadec7722
      @jadec7722 2 года назад

      If she has myopic degeneration she cant

    • @gertiethedino
      @gertiethedino Год назад +1

      Very thick contact lenses, lol. They dry out quickly, so I can only wear them for a few hours at a time before my eyes start screaming at me.

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@gertiethedino are u the girl in the video?

    • @badreddinegacem
      @badreddinegacem 8 месяцев назад

      ​@@gertiethedinodo tell

  • @SoniaRossi72
    @SoniaRossi72 3 года назад

    0:51

  • @superstrangevideo
    @superstrangevideo 3 месяца назад

    Damn, never seen anyone so happy about having AMD. Not to be rude, but why in hell are you laughing about this? Your attitude about this is actually annoying and impossible for me to continue watching the video. Btw, everyone has some small holes in their retina, not just those with lattice degeneration. I was told I had LD in 2000 and my ophthalmologist never even mentions it to me anymore. Told me not to worry about it. Anyway, all the best for you.

    • @jordynburdette1767
      @jordynburdette1767 9 дней назад

      Some people deal with hard things different . Some people laugh to keep from crying . People can get through things however they need to . I have dark humor no pun intended so I’m constantly making jokes about this .