Caring and coping when a loved one has pulmonary fibrosis

It’s hard to watch a loved one struggle with pulmonary fibrosis. The role of a caregiver can be physically and emotionally draining. In this session from the PFF Education Symposium, join a few PF caregivers for a roundtable discussion as they discuss their experiences and provide guidance.

[@daisies4444]

Thank you, that was brilliant! Very helpful indeed!

[@lorismith5369]

So helpful ! Thank you to all!

[@janiceadams8844]

My husband has fibrosis and emphysema stage 2 he won't except it

[@whendis.roberts9903]

My Dad is too sicl for a lung transplant.. Sucks

[@teritravis2545]

How do I help my BF who revd diagnosis a few months ago. DR said he may live for 2 yrs. BF in deep depression.. he goes into a cocoon.. and shuts down. Doesn't communicate to me much.. told me he dreamt of proposing to me.. now all his plans are kaput...I don't know how to tell him when he shuts down. He also had 2. outs of COVID. What do I do?

[@pfforg]

We recommend joining a support group. You don't have to go through this alone, and your BF might really find some solace in meeting others who know exactly what he's going through.
Find a support group here: www.pulmonaryfibrosis.org/supportgroups
Further, no one, including a doctor, can tell someone how long they will live. Every single case of PF is unique, and some people live and thrive for many years. We have a huge amount of resources to help you. Can you give us a call and talk with us directly? We can be reached at 844.TalkPFF.

[@Sarahdrybones]

I was just diagnosed and I'm 65 with kidney disease. I am widowed live alone no family. I'm in Florida and I have a German Shepherd service dog as I have knee replacements and hip. I need to find a pulmonologist in Sun City Center Florida. Can I live in my home still?

[@Pastorjasoncox]

I have this
No money
Not doing the transplant

[@DavidSmith3750]

How are you doing. ??