Two Brothers, Same Rare Kidney Disease | Meet Tyler and Jaxon

Meet Tyler and Jaxon Levondosky, two brothers with the same exact genetic mutation that causes a very rare, progressive (and currently untreatable) version of rare kidney disease. Both boys showed symptoms as infants, however, Jaxon wasn’t diagnosed until he was 18 months old, and Tyler at 4 years old. This particular genetic mutation is known to cause kidney failure within the first two decades of their lives.
Tyler and Jaxon take supplements and blood pressure medication with hopes of keeping them stable for as long as possible. Thankfully, these treatments have proven effective, and now, at age 9 and 12, their kidney disease is under control.
Both boys participate in an elite track and field club and have qualified in the Mid-Atlantic District and Regional meets. In 2022, Tyler qualified and competed in the Junior Olympics in Greensboro, North Carolina!
By supporting NephCure, you'll be supporting people like Jaxon and Tyler and helping find a better treatments and ultimately a cure for those affected by rare kidney diseases. Click here to donate: give.nephcure.org