I was diagnosed 21 years ago never have I ever heard anyone talk about temperature control. I sweet all the time. So thank you for bringing it to light.
Was diagnosed with in Feb 2024 tremors stared in 2022 . It sure when it started but had severe anxiety in 2006 and since my diagnosis I found temperature regulation and very tired during day also constapation and lack of wanting food. Still very new to all this u do take ropinrole right now this has been a huge help
Hello. New to the channel. This is helping me understand the disease more. I was diagnosed Thursday and everyone sharing helps me not feel so alone as I can relate to so many of the issues that have been shared. Thank you for sharing
💕I know I'm gonna have to make about 60 signatures in the next few days, all in one sitting. I have some tricks, but I can't always get them to work. I use a big barreled pen, and a stencil to keep me in the perimeters, but I just cannot seem to complete my whole normal sized signature. Music used to help, but now I just have to let myself make tiny tiny signatures. I remember in second grade, getting in trouble with the math teacher for writing tiny. It was the only way I could write neat. It was very scary though. I couldn't believe a person could be so mad at me for writing tiny, when the penmanship had been so spot on. A sort of ominous PTSD comes over me. I'm not trying to be difficult, but I feel like that's going to be the nature of people having to wait for paper signatures to think since they often are already just irritated being at work. I miss writing too, in a fluid type of way, where others could read it, even after I couldn't read it myself.I liked knowing I could leave a note that could be read. Randomly I sometimes can. 50/50 chance.
Gosh this is such a great podcast I was diagnosed in 2021 and literally have every symptom that was mentioned I have the ghost smells but I have no actual smell I have the constipation lack of impulse control Tremors shifting when I walk so I have that tight gate a lot of brain fog confusion depression hallucination I'm so glad I found this channel thank you
Kat Hill.. Try a weighted blanket or quilt from your waist down, overhanging the foot of the bed to trap in the heat. Your feet will feel way more comfortable and because your torso and arms are under youre usall bedding you should not suffer from sweating. Hope this helps :)
I haven't been diagnosed with PD yet, although I'm almost certain I have it., or something akin to it, With symptoms going back to my mid 30's about 14 years ago, which started with double vision and a persistent jaw tremor...which over rhe last 8 years has progressed to repeated falls, shuffling gait , more tremors, swallowing issue, asphyxiation, partial and peripheral hallucinations, insomnia, bladder issues..I found myself nodding and agreeing with everything discussed here. Although my g.p tends to judge me based on previous tourette diagnosis and put my confusion and memory issues down to meds I take for herniated discs.and that i may also have essential tremor..which I disagree with, the g.p referred me to a falls clinic , and not a neurologist which I asked for. I've been having new problems with eyesight where everything appears much closer to me than normal, which is freaking me out , so I'm seeing an optometrist this Thursday.
Hey there, Luke from Canada. Ive been diagosed Pd in 2019 however Ive been having digestive issues (constipation) and temperature regulation decades before diagnosed. Also had issues with anxiety especially during high stress situations at work for example. In 2019 the tremors and muscle rigidity began that pointed the PD dianostic.
Hi, I’m from Alberta Canada, I have non-motor symptoms and having difficulty so that my children understand what I am going through, other the pst year my symptoms have been increasing
Yes, being slow to adjust from feeling hot or feeling cold to feeling like one's temperature is "normal" is a part of many people's experiences of Parkinson's. These are parts of the "autonomic" impacts of Parkinson's.
We hear you. Pain is one of the most challenging aspects of living with Parkinson's for many people. Here are some additional resources about pain: ruclips.net/video/8X9qp31SLME/видео.html ruclips.net/video/ZKq4b5vUR7g/видео.html davisphinneyfoundation.org/pain-and-parkinsons/
I was diagnosed 21 years ago never have I ever heard anyone talk about temperature control. I sweet all the time. So thank you for bringing it to light.
Was diagnosed with in Feb 2024 tremors stared in 2022 . It sure when it started but had severe anxiety in 2006 and since my diagnosis I found temperature regulation and very tired during day also constapation and lack of wanting food. Still very new to all this u do take ropinrole right now this has been a huge help
Hello. New to the channel. This is helping me understand the disease more. I was diagnosed Thursday and everyone sharing helps me not feel so alone as I can relate to so many of the issues that have been shared. Thank you for sharing
I hate not being to write
💕I know I'm gonna have to make about 60 signatures in the next few days, all in one sitting. I have some tricks, but I can't always get them to work. I use a big barreled pen, and a stencil to keep me in the perimeters, but I just cannot seem to complete my whole normal sized signature. Music used to help, but now I just have to let myself make tiny tiny signatures. I remember in second grade, getting in trouble with the math teacher for writing tiny. It was the only way I could write neat. It was very scary though. I couldn't believe a person could be so mad at me for writing tiny, when the penmanship had been so spot on. A sort of ominous PTSD comes over me. I'm not trying to be difficult, but I feel like that's going to be the nature of people having to wait for paper signatures to think since they often are already just irritated being at work. I miss writing too, in a fluid type of way, where others could read it, even after I couldn't read it myself.I liked knowing I could leave a note that could be read. Randomly I sometimes can. 50/50 chance.
All of y’all are my heroes!! Your experiences and insights are inspiring.
A zillion thanks. So glad to hear about problems I have with pain and sweating.
Gosh this is such a great podcast I was diagnosed in 2021 and literally have every symptom that was mentioned I have the ghost smells but I have no actual smell I have the constipation lack of impulse control Tremors shifting when I walk so I have that tight gate a lot of brain fog confusion depression hallucination I'm so glad I found this channel thank you
Glad you found us! We're here for you!
Also I have found that my internal signals are dulled. Often I don’t “feel” for instance an urge to pee until it’s too late.
Kat Hill.. Try a weighted blanket or quilt from your waist down, overhanging the foot of the bed to trap in the heat. Your feet will feel way more comfortable and because your torso and arms are under youre usall bedding you should not suffer from sweating. Hope this helps :)
Extremely helpful discussion
I haven't been diagnosed with PD yet, although I'm almost certain I have it., or something akin to it, With symptoms going back to my mid 30's about 14 years ago, which started with double vision and a persistent jaw tremor...which over rhe last 8 years has progressed to repeated falls, shuffling gait , more tremors, swallowing issue, asphyxiation, partial and peripheral hallucinations, insomnia, bladder issues..I found myself nodding and agreeing with everything discussed here. Although my g.p tends to judge me based on previous tourette diagnosis and put my confusion and memory issues down to meds I take for herniated discs.and that i may also have essential tremor..which I disagree with, the g.p referred me to a falls clinic , and not a neurologist which I asked for. I've been having new problems with eyesight where everything appears much closer to me than normal, which is freaking me out , so I'm seeing an optometrist this Thursday.
Good luck with getting a proper diagnosis.
I highly recommend seeing an optical neurologist and a movement specialist both are available only in cities
Thank you for all your time and work
so good to see Shan on the panel! ❤
Hey there, Luke from Canada. Ive been diagosed Pd in 2019 however Ive been having digestive issues (constipation) and temperature regulation decades before diagnosed. Also had issues with anxiety especially during high stress situations at work for example. In 2019 the tremors and muscle rigidity began that pointed the PD dianostic.
Excellent
I have had dry needling more times than I can count, for stiff lower back which causes me pain. It works very well when I have an acute episode.
Hi
Hi, I’m from Alberta Canada, I have non-motor symptoms and having difficulty so that my children understand what I am going through, other the pst year my symptoms have been increasing
Yes for me temperature is an issue I usually feel colder than anyone else with me.
You're not alone in that! Hopefully you found some helpful info in our video.
Best Ever!!!!!
Tolterodine helps me with the urges so much
What bands does Kevin wear on his left hand?
Is feeling cold also part of PD
Yes, being slow to adjust from feeling hot or feeling cold to feeling like one's temperature is "normal" is a part of many people's experiences of Parkinson's. These are parts of the "autonomic" impacts of Parkinson's.
Is it possible to have episodes of feeling cold even on a hot day for a little while accompanied by fatigue , that goes and comes on its own???
Hi Kevin
I'm so tired of dealing with contant pain
We hear you. Pain is one of the most challenging aspects of living with Parkinson's for many people. Here are some additional resources about pain:
ruclips.net/video/8X9qp31SLME/видео.html
ruclips.net/video/ZKq4b5vUR7g/видео.html
davisphinneyfoundation.org/pain-and-parkinsons/