The Girl Who Couldn't Move | S06 E05 | Medical Documentary | All Documentary
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- Опубликовано: 20 апр 2019
- Carol and Fred Kurpiel adopt two seemingly healthy children, when suddenly, they notice something strange with one of them. For some reason, young Ashley's big toes are in an unusual position with a bump on each of them, and she has a lump on her shoulder, which spreads to her arm.
People suffering from illnesses un or misdiagnosed, discuss their journey to finding a diagnosis.
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I love when they talk to all these doctors and then you see the one that actually speaks on the show and know a bomb is about to drop
Though she's adopted she looks so much like her mum
I was thinking the exact same thing!
Was about to comment that! :)
I was looking for this comment
"Dramatic blink!" gives it that extra effect!
Ashley is such an inspirational person. It always amazes me, as someone who suffers from Lupus another autoimmune disorder that effects my life in so many negative ways, that people who seem to be so far worse off than I am are just so positive and don't let it stand in their way. She is absolutely beautiful and so naturally strong, kind, active and wonderful. Her parents must be so very proud of her. So much love and strength.
Ahhh! I’m so sorry Ashley had to go through that. She is such a brave girl. Her parents are so supportive.
Luna plata
i see u alot on this 🤔
i aggwe
agger
agree
Random Ruffel I like these weird illness documentaries.
Just because you go see a doctor doesn't mean they know every possible disease out there, especially if its outside their specialty. Bone doctor knows bone diseases and an oncologist knows cancer.
American doctors, yes😏😏😏
the second they said surgery my heart dropped. one of the worst things for fop.
It accelerates the condition 😢
I spent my whole Sunday watching videos from this series, tried to change but I’m stucked.... just so interesting!!!!!
The fam should’ve sued the first doctor who misdiagnosed her and amputated her arm as a result.
Nana Sol They said 90% of people with FOP get misdiagnosed.
Wolfz Music misdiagnosis is one thing. Amputation is a whole another crisis.
@@fly2174 it's only malpractice if diagnosis is unreasonable. But the diagnosis was plausible and more likely, so they did the right think to try and save her, it was just bad luck.
Aldranza M again, the misdiagnosis by itself is not grounds for a malpractice lawsuit. The amputation that resulted from the misdiagnosis is the issue here. The doctors shouldn’t have recommended the surgery without a 100% certain diagnosis confirmed by multiple medical options given the rarity of the condition.
AABSOLUTELY!!!! And his license should be removed forever!!!
This is absolutely the most devastating episode of Mystery Diagnosis I've ever seen.
I hate it when the doctors dismissed the girl's symptoms and said "their is nothing to worry about". But her parents knew in their minds that they were not making the symptoms up. It is like the doctors think they are crazy and need to calm down.
Ashley is one of the bravest woman I have ever seen! Truly great!❤
I had all the symptoms Jake did, and when I got to the tired/jaundice stage I got rushed to hospital and treated for leukaemia for 6 months..
Liz Kimber hope all is well with you now
ASHLEY WAS SUCH A CUTE BABY!!
Yes she is
Ashley is one of the bravest woman I have ever seen! Great!❤😊
One of the most frightening cases i have ever heard of: eerie disease, wrong diagnosis ,invalidization of a child , tragic consequences , horrified parents , ill-fated girl.Ashleys courage and will is something unbelievable
When I saw her toes, my first thought was FOP, but I was like 'Nah, they've already made an episode about a guy with FOP'. Once again, I was really sad when they said the diagnosis. No child deserves to go through such thing.
Yeah considering it’s so rare, I was amazed to find out that Matt Horick had the exact same disease
As soon as I said the toes I knew it was FOP especially after seeing Matt’s toes
Btw we have the same name!
@@ameliabester6500 Yeah^^
Yeah that was my first thought too
Poor little girl, That’s very sad.. 😭
Ikr
I definitely agree with you
Most of Ashly’s case, was back in the 80’s. No one knew, what FOP was. Some doctors maybe still don’t know yet today, what that disease is.
Sending prayers and light to this little lady.
Here We Go Again With “ Dramatic Eyes “
The blinks are here again kids..
FOP looks literally like the worst disease that could ever be and I genuinely worry for anyone that’s diagnosed with it I mean I can’t imagine having a child with this debilitating disease it’s awful. As for this particular patient Ashley her parents should have sued that idiot surgeon for putting so much pressure on the mother to have the arm amputated 🤦🏻♀️
This is why when we speak of doctors. We say that they "practice" a certain type of medical work. Because they still do not know it all. They are still "practicing". So of course they won't and aren't going to know everything. Who does? I went for years undiagnosed and I had a heart condition that most doctors played off as panic attacks. I didnt get diagnosed until I was 17. I said all of that to say this. I may not trust every doctor I see but in some rare circumstances a few actually paid attention in med school. And those guys are the real MVPs. I'm glad they finally figured out what was going on in both of these cases!
Her "made you look" shirt was perfect for her 😂😍
I didn't notice that!
@@emanjabadi307 24:57
@@nightowl3808 she's a very positive person🧡
@@emanjabadi307 that she is.
That's awesome. Just goes to show the kind of person she is
This is an old report Ashley now is basically a skeleton now and uses a wheelchair
Are there more recent updates/documentaries on how she is doing?
@@kloister4741 google her name, you mustve heard of her before
Noora Queen I don’t see pictures of her in a wheelchair.
Noora Queen Did the Birth Parent or Parents use drugs or take Medicine's , were they, either Prescribed Medicines that rob the body of Essential Minerals and Vital Vitamin's to build proper Structures to form Embryos to assist that to develop in the Womb properly?????? How well are trainee Doctors being Trained or and Surgeons anywhere in the World????????????
@@MariaMaria-wv1sy ... It's a genetic mutation means day 0, when the egg was formed, the mutation was already there, most likely, drugs are not used during pregnancy (only a select 15+ drugs can be used and have been proven that cause no harm) but again, is just bad luck, no way to prevent it no way to see it until the symptoms appear and then u go to search the genome. This being told by a med student and carrier of several genetic diseases, not quite as bad as her tho.
One of the saddest stories. It's not fair to go through so much pain and suffering. 26:30
My 29 year old daughter died from TTP. After diagnosis they couldn't stabilize her to treat it.
I've now read that she's completely immobile :(
How sad !
Sad indeed
What?? Nooooooooo :(
I can't imagine going through these situations in the US; there's no way any insurance company would cover these problems. Seems like the doctors were very mediocre too.
Even if you don't pay they still have to treat you... its the law. The medicines are the only thing that has to be paid for and usually there are different type such as generic that insurance will cover. It wont effect your credit either.
I can guarantee all major medical advancements have been made in America bc of its "horrible" system.
Some one has been brain washed and not informed correctly.
I lost a cousin to 911 leukemia because he got sick so quickly and the Zadroga Bill wasn’t even on the table yet. He was denied payment by his insurance for out of network expenses, thus denied further treatment. He went up to the vacation cabin in Maine to rest, de-stress, had a seizure, and died before the ambulance arrived.
It's unbelievable that you speak about brainwashing! Major medical advancements happen in Europe too the last decades, such as Germany, UK, Sweden and other, and without those insane billions for insurance companies and shareholders, sitting in offshore bank accounts, doing nothing, of which only a fraction goes into research.
After WWII, the USA was undestroyed, it has an extremely rich natural land stolen with genocide, so it attracted great minds from Europe, it had its own great minds too so it pioneered. Still, Europe has its single payer universal healthcare with very small compulsory fees, and if you buy a private insurance, its ten times cheaper than the USA, you don't have to get indebted just to get well, AND medical research is well funded, since the profits, the subsidies and the contributions are enough. Modern, developed countries are perfectly capable to fund expensive research in a lot of ways, and still offer universal healthcare. Cut a little back on other public expenses. Raise the compulsory fees a bit, but so many people pay in, that it will be millions. Acquit from tax money going into research. Raise 2% luxury goods tax. And there are a thousand other ways, some of which, Europe DOES use. AND the most developed countries have higher life expectancy than you. The only difference is that a few people make only tens of millions instead of hundreds of millions
So, who is the brainwashed one? Are you just a nationalist who can believe anything in order to protect national pride, or you profit personally? Very affordable healthcare is an automatic right, not a privilege, AND perfectly possible. Nobody HAS to be destroyed for life in order to SAVE their life. @@rebeccahughes7766
Brave young woman.
So the doctors thought Ashley's lumps were tumors and they wouldn't know until they cut her open and saw/tested it. Did she actually have tumors??
If not, they would have noticed during surgery that it was bone. In that case why the fck would they take her arm and shoulder off?! so confusing and distressing >.
It's because the growth was at the stage before it turns into bone, so on the tests it looked like fibromatosis tumours on the muscle. If they'd done the test later, then they would've found bone when they operated. At the time they thought they were performing a life saving surgery to stop the muscle tumours and that's why they took her arm.
The doctor was too unexperienced and removed her arm and activities a disease wow.
chill, a lot of doctors don’t know about these rare diseases, so they’re often misdiagnosed :/
They wouldn't have known to look at her feet. That would have told them look to FOP but it was all new to them
She's gone through so much
I know I shouldn't be laughing but 21:42 is the funniest and most unnecessary thing. We didn't need it, but you gave it to us anyway.
Dat eye blink, tho.
This is so sad Ashley is strong 💪🏾
at the start I was like focus on one person at a time
So so sad
Keep strong Ashley
My best friend's cousin has FOP, it's such a sad diagnosis
Go Jake with your filming 😃💜🇦🇺
I have heard of FOP before
Jeffrey Smith
same with an old man who is literally a statue except for his jaw - kinda
it’s depressing but ya know
thas aw tha cookie crumblz
Same
I was born with fop and almost every month there's a lump, i got 3 lumps on my back its only a couple of months ago I developed 1 my chest i don't know what to do again its unbearable i was told nothing can be done about it
The `cure` needs to be something that genetically `rewrites` the damaged genes and corrective treatments that are based on the own patients DNA that has been genetically repaired and replaces that of the damaged areas.
0:21
*Ultra legendary pro vip* blink intensifies
*WHAT IS UP WITH THE EYE ZOOMING!*
For some reason my mother doesn’t like me watching these, it’s probably because I get like really stressed and I cry and I feel so bad
She looks just like her mom even though she adopted
How can the mother discover the lump that late, and its that big!?
Ate too many carrots lol
I was told no surgery would help, it'll only make it worse just gotta live with it
Mt ex bf has ITP and he had a flare up when we were together and it looked rlly bad! The doctors surprisingly found out the same way when he was getting a cyst removed, they took his blood and he had platelets of 1 !
Is this not an old episode? I feel I've seen these stories before
This whole show is old, it used to run on tv years ago
Jacci A yes I remember watching this on this channel ages ago
@@fuzzymilk niiceeeee
This series was on tv about a decade ago.
The thing about the girl who lost her arm which is incredibly shocking is that if the doctors had just X-Rayed her shoulder, they should have been able to see the bone developing as a white mass, and then wouldn't have had to amputate the arm at all.
The doctors werent trained in bones. So likely were unable to recognize the difference between a cloudy mass (usually a tumor) and calcification of muscle. However they truly should have got a specialist doctor to check it out before just jumping to a diagnosis
I think what happened was the developing bone haven't turns into a bone yet and the doctors were oncologists so they can easily identify the lump as tumour
Secondly this case happened long ago when FOP was too new even for doctors
But yeah this is such a tragic.... And just made me more cautious about seeing doctor
Even though Ashley is adopted she looks soo much like her mum
If you want to take away that much blood from me I will start to pass out😰
Sooo... Ashley's mother noticed the gigantic lump 'one day'? How could it appear in one day? Parents usually helps 3year-old to dress up and wash every day, no? How fast does FOP can progress? Does it happen over few hours?
I wondered about this too!
Yes. It's triggered by trauma, it says in the video, so say she bonked her shoulder on the table at dinner and she's usually bated before. That'd be 24 hours to become as large as that was.
@@eowyn-faramir-reads I know that it's triggered by trauma. How mother didn't notice enlarging lump. It grows in alarming speed, it shoud have worried mother sooner.
During a flare-up, the extra bone can develop as fast as 24h.
Even tho she found out late she couldn't fix Ashleys problem
I had a pilinidol sinus had surgery for it I swear it's more uncomfortable now then it was before surgery
is it healing poorly or is it just uncomfortable scar tissue? (have you had someone check it hasn't recurred?)
@@harkerx9029 I think its just mostly uncomfortable scare tissue
😢
“Get to the ‘bottom’ of his case?” Ha, ha, ha,ha!!!!!
Poor girl god bless her
That is meaningless
Agreed. What a sweet girl and it's so sad to see her suffer like this
Ohhhh!! Is this the 2nd name of Monsters inside me??
no, monsters inside me is mostly about bugs and parasites. I looove Monsters Inside Me though haha
This episode was on just a year or so ago?
Many years ago.
I'm scared watching this cause I got a lump in chest that's connected to arm and its difficult to move my hand around i don't wanna lose my hand
@@killingeveedits8228 I'm 21 I was born with it, as I got older 1 or 2 things kept happening, large bumps popping up on my back, my spine is curved badly as we speak, my joints gets tighter no matter what I do just recently I was hospitalized due to a massive lump in chest turns out it's just like the rest on my back now I can't raise my hand or move it around
@@killingeveedits8228 yeah it is
@@killingeveedits8228 I did I been in and out the hospital since the age of 13 & there is nothing anyone can do, all they do is give me pills to take that's it. After the swelling goes down the bone or whatever it is remains there
@@killingeveedits8228 yes I'm sure its fop i was born with it my big toes are just as you see the display picture and all symptoms are the same fop isn't curable its just something that people like myself have to live with
@@killingeveedits8228 the pills they gave is for the pain which don't ever works
Fop is terrible!😮
Many doctors are so snobby and condescending and then make mistakes likes these. I can not wait til AI is what is checking our medical situations.
Yes, I'm still waiting for the day they come up with a machine that can scan and detect every little abnormality that may be in our body.
I wonder if the biological parent have this condition in their family and that's why they gave her up. They could have saved her a lot of trouble if they were upfront.
TTP almost sound like Sickle Cell Anemia in some aspects of how it caused blood to clot except with TTP the red blood cells are being attacked and Sickle cell the red blood cells are formed differently making them kinda useless to a certain degree I would say If these diseases were a human TTP would be someone who is born physically challenged and TTP would be someone who sustained an injury and was left physically challenged basically 2 different beginnings but the same outcome 1 is hereditary and the other isn’t
I’m in complete shock with so much different kind of sickness;( video after video I’m like gulping down ruqia water and Zamzam water.:(
water aint gon save you bro
@@shaymk7257 I was about to say similar, doesn't matter what you do, anything can pop up at anytime :(
26:30 for the second person :)
I don't understand why people like Jake don't ask for help when something is evidently not right with their body.
Is Ashley still alive?
Is this called the mannequin disease?
And iam complaining about my depression , silly me ...
Noo your emotions are valid too, remember!
3 minutes in and even I know what Ashley has
It's curable in Ayurveda....
Where are they training these doctors lol
We need to bone up on FOP and find a cure PDQ. Cheers!
6 viles of blood isn’t even a lot
Well his parents did say he was normally healthy. So 6 viles was probably a lot to him. But yeah, in reality it's not a lot.
Yes but do keep in mind that in extraction of blood you take blood sugars, and other proteins that travel through the veins. So loss of then in such a quick fashion doesn’t give the body time to compensate for the loss of sugar and proteins. So it may feel like a large amount of blood. In my experience I’ve felt very drained after 6 viles. But only because the body can’t instantaneously compensate for the sugar loss.
feels like a lot at the time, until you've had your sugary drink and a little rest
The times I’ve had 6 viles taken I was dizzy as heck, didn’t last too long though
Big boy paranoid
FffB.
Couldn't have said that better myself.
May Allah protect our kids ;(
Amen🧡
Your imaginary friend isn't real.
@@Springfairy92 that’s mean :/
@@Springfairy92 😂😂😂
Second
Y
First
Second
*nobody cares*
@@theqaptain9618 😢 Sad
i whould have just told my parents to put me down after amputation i whouldnt be able to live with myself i can bareley live with myself now also when my whole body turns into bone
What! for sure with certainty was she near death before they took her arm and shoulder off? So her medical condition was going to worsen but not was it before that was that confirmed for certain or partly before her shoulder and arm was chopped off. Why are some people claiming to be Doctors or Surgeons? And leading non Doctors their patients into trusting them? What's that about? Such a sad case, a tragedy. Was that girl going to die that day or within a few days, were her Surgeons have absolutely Certain without a doubt about that before they convinced the mother to allow them to remove her daughters shoulder and arm???????????
... I'll pretend that makes sense, because it looks like a 7 year old with the attention span of a dead mouse just wrote that. Still, I know what you mean and I agree with the most part of what you said.
he didn't decide to amputate until she was already in surgery, so he obviously saw something that he felt necessitated the amputation
Fibrotic tumours often limit movement in the area of muscle they can inhabit. If he had not removed her arm and shoulder he would not have removed all of the tumour, allowing it to progress and cause muscle rigidity and sever pain, leading to probable paralysis.
Why does every couple want to start a family?
Ok I'm glad the first couple adopted.
I could never let doctors cut my child's arm off like that.
they thought she had a massive tumour and would have died, so you're saying you would choose death over amputation...
@@harkerx9029 no.... I would take her for more opinions....
@@mustangboss1246 she had no time she was on death's door!!
Essentially all they knew At the time that it was an Aggressive tumour and where treating it as such. The issue with fibrotic tumours is they can encase and paralyse the muscles they form near or on. It causes extreme rigidity and often horrible pain. In your typical tumour case if he had left the arm and or shoulder there, tumour tissue would have still been there and allowed to tumour to progress more, essentially paralysing her with great pain and stiffness.
@@lunalaver7342 to each his own... Some people like to cut there kids up... And some prefer to give there child a better chance... The muscle tissue with this disorder turn to bone... She might of still had use of her arm had they left it alone
Ew feet
My question is y didnt the adoption place see FOP i the dna dont that gotta run a full chromosome test before adopting them out ??
So you're saying that less than perfect kids don't need an adoptive family? It's not a commodity, you know.
you're assuming that a) it can be seen on that test, b) that if it can, the test definitely covers every illness (literally impossible) and c) that the test was even done. And ignoring that ill kids need homes too
Having grown up in the system I can say the more knowledge a family has the better. To often kids are placed back in the system because the adopting family are not prepared to deal with the issues. I know we don't live in a perfect world and we can't always have all the answers. These kids do deserve a loving home even more so then a healthy child because the amount of support and care are endless in these cases. It would just be nice to find the right family the first time vs. living with the rejection of a family on top of their medical issues.
Dannion M They didn’t have the advanced required genetic testing in that time. And besides as presentation and diagnosis of these ailments weren’t seen as often, testing wasn’t as invasive and thorough as it is today.
This was in the 80s. Those things didn’t even exist back then. At least not even near the way they do now
Moral: When you adopt, make sure they don't give you any broken ones.
that's not really a moral, that's saying sick or disabled kids don't deserve families and homes...
Sometimes you just never know, they could develop things later in life or they may not have much information on the child’s parents