my foster child has cystic fibrosis, she is currently very unwell and has a 10% chance of survival please pray for her, her dream is to find a cure for cf soon
In 2001, my cousin was born with cf and although she only lived for five shorts and memorable years, she is now at rest. My cousin died at the age of five in 2006. I wish one day they will find a cure and stop these inasent children/adult from dying and I wish they had found a cure sooner! R.I.P to all the people who have passed away from cf. And to all the people still fighting it god bless and breathe easy!
My heart goes out to all children and adults with Cystic Fibrosis. My son Richard had C F and a double lung transplant . He was a very special man. He did all he can to live. My son Steven and I bought Richard an Ipad during his last three years on earth he was able to cope using his Ipad to communicate with the rest of the world. He wrote a book about his life and how wonderful it was to be alive and how it was to cope day to day with C F.My son Steven and I started the Richardsfusco foundation we help kids with C F who cannot afford an Ipad.
I know this video is old and nobody is going to see this, but is the girl at 1:16 Christina from AGT? I remember seeing her on the show and thinking she was amazing for having such an amazing singing voice while also having CF!
My Big cousin Evan is almost 34 years old, him and his little brother Adam were both diagnosed with CF at a very young age, Adam died at about 7 years old and Evan sometimes blames himself for his brothers death. Evan has been my role model as long as I have known him because he's a survivor. Evan has been talking about doing Hospice soon, because he is done with the pain and he said it scares him because sometimes the pain takes over, he said it scares him because sometimes when the pain takes over he gets angry for no reason and he has actually made me cry, but that was before I knew what was happening, I hate the fact that there is no cure and the only way to make the pain stop is to die. I don't want him to die but if it makes the pain stop then I'll try to fulfill any last wishes for my cousin
In relation to the information that you requested, the condition is known as fetus gigantism, there was continued confusions at the hospital that made my home research time consuming, slow, and extremely delaying. This would be the same for my immediate family. This is strictly coded informations at the highest levels because of the rarity of the condition.
We are providing kids at Mass. General Hospital with ipads to at least try to soften the blow. I would prefer a cure however in the mean time kids can think about other things while in the hospital.
my foster child has cystic fibrosis, she is currently very unwell and has a 10% chance of survival please pray for her, her dream is to find a cure for cf soon
In 2001, my cousin was born with cf and although she only lived for five shorts and memorable years, she is now at rest.
My cousin died at the age of five in 2006. I wish one day they will find a cure and stop these inasent children/adult from dying and I wish they had found a cure sooner!
R.I.P to all the people who have passed away from cf.
And to all the people still fighting it god bless and breathe easy!
My heart goes out to all children and adults with Cystic Fibrosis. My son Richard had C F and a double lung transplant . He was a very special man. He did all he can to live. My son Steven and I bought Richard an Ipad during his last three years on earth he was able to cope using his Ipad to communicate with the rest of the world. He wrote a book about his life and how wonderful it was to be alive and how it was to cope day to day with C F.My son Steven and I started the Richardsfusco foundation we help kids with C F who cannot afford an Ipad.
Ralph Fusco I too am a parent survivor. Hope you are doing good today. 💕
Here’s to my daughter who died at 23 but lead a life most would be envious of. God please, cure cystic fibrosis. 💕
Beautiful video!
I know this video is old and nobody is going to see this, but is the girl at 1:16 Christina from AGT? I remember seeing her on the show and thinking she was amazing for having such an amazing singing voice while also having CF!
My Big cousin Evan is almost 34 years old, him and his little brother Adam were both diagnosed with CF at a very young age, Adam died at about 7 years old and Evan sometimes blames himself for his brothers death. Evan has been my role model as long as I have known him because he's a survivor. Evan has been talking about doing Hospice soon, because he is done with the pain and he said it scares him because sometimes the pain takes over, he said it scares him because sometimes when the pain takes over he gets angry for no reason and he has actually made me cry, but that was before I knew what was happening, I hate the fact that there is no cure and the only way to make the pain stop is to die. I don't want him to die but if it makes the pain stop then I'll try to fulfill any last wishes for my cousin
In relation to the information that you requested, the condition is known as fetus gigantism, there was continued confusions at the hospital that made my home research time consuming, slow, and extremely delaying. This would be the same for my immediate family. This is strictly coded informations at the highest levels because of the rarity of the condition.
We are providing kids at Mass. General Hospital with ipads to at least try to soften the blow. I would prefer a cure however in the mean time kids can think about other things while in the hospital.
This is so sad 😞
I have cf too can u help me I'm frighting for my life I'm only nineteen my is coming too a end
Are you still alive at 24 years old?