Jax's Story | Xeroderma Pigmentosum | Sun Control of Minnesota

Everyone has some sensitivity to sunlight. It's the reason we tan or sunburn, get sun freckles, or even skin cancers. But when this sensitivity turns extreme, xeroderma pigmentosum (XP), a rare skin disease, may be the culprit.
The outdoors can be catastrophic to those with XP. People with this condition need to be covered from head to toe, and even the simplest slip of a sweatshirt cuff could prove dangerous.
Because the body cannot protect itself from UV light, a person’s risk of getting skin cancer skyrockets. It’s estimated that XP can raise the risk of getting skin cancer 10,000-fold. Most children with XP are diagnosed with skin cancer before they reach 10 years old.
This is Jax's story.
Take a look at how we partnered with 3M to provide the ultimate piece of mind for this amazing family.
To learn more about XP, please visit:
rarediseases.o...

[@cajayson8301]

They are amazing parents....this disease is AWFUL but they were determined to help their son in every way possible. Bravo to them and 3M for helping out. May we soon cure XP.

[@coffeeeloverfree7309]

While watching a movie called Midnight Sun, I just found out about this condition. Good bless this sweet baby and amazing parents!!!

[@amandarusso9141]

Same here!

[@barbara.sexaloid]

Look at that little dude in his spacesuit!! Precious

[@yannicschelfhout5370]

Reminds me about Epidermolysis bullosa (EB), which is - unimaginably - even worse. However, I don't mean to down-talk the severity of Jax's condition - keep strong little buddy!

[@gowtham-vc7gk]

I’m from India with a mild grade of XP.. I’ll be glad to get in touch with the community.. please let me know some details..

[@corineusa1454]

I love that 3M just did it, no woke bull, they actually made a difference for this youngster & his Family. WELL DONE 3M!!👍

[@mmay6621]

Nice school system!

[@hassannoor8796]

my dear my son ------ pigmentosum atack

[@shahjahankhan4792]

i m from dhaka,I really need to contact with them,,is it possible any way

[@msccreation3089]

Is he going to school ?

[@JJ-ee1mk]

fun time I’m not sure man

[@odexavenly]

maybe home schooled

[@Hambonehoven]

They answer that at 1:40