Autism Awareness Month - Sibling Poem

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  • Опубликовано: 29 апр 2013
  • My younger brother, Justin, has autism and I wrote this poem inspired by Autism Awareness Month (April). I want to share it to provide my perspective on autism and promote awareness of the challenges that many families experience with this complex neurological disorder.
    Please feel free to comment with any similar stories or ideas for how to support the autism community.
    Untitled -- Autism Awareness Sibling Poem
    At age two my brother was diagnosed
    With a special state of mind
    It didn't seem to make sense
    This undeserved family consequence
    Confusion quickly shifted to resentment
    Cold shoulders, loud noise
    No playtime or shared toys
    A deeply desired brother void
    Parental tension escalation
    Held back family recreation
    Self inflicted pain, nothing the same
    So little experience to gain
    Then the divorce, of course
    We were torn apart
    Thrown off from the very start
    Shattered by anger and uncertainty
    Young ambiguity suddenly hit
    So much attention given to J
    Comprehension, I wasn't okay
    Maybe it was my fault
    Therapy sessions would persist
    Enlisted emotional support
    A constant inspection of right or wrong
    Trying to mitigate bad inner direction
    Removal made some sense
    I tried to escape and hate
    Allow myself to ignore
    Close the Autism-divorce door
    ***
    Regardless of chaos and never speaking
    Initial frustration by the lack of what I was seeking
    I have always loved my brother
    And we will always have a unique bond
    Good times we've had are so very special
    His joy and cheer can be incredible
    We've seen the best parent and sister example possible
    Unconditional love and courage that's unstoppable
    Reflecting half-full on autism actions
    A few dark, understandable reactions
    It actually accelerated personal growth
    A test supreme to any classroom
    Justin shaped who I am
    I further appreciated my best friend Sam
    Redefined relationships and interconnection
    Developed the ability to be provide constant affection
    He fostered judgment out of sight
    An open mind and history to write
    This desire to never pass up opportunity
    Drive and ambition became standard to me
    The unreal life I've lived
    Has been fueled so much by Justin
    And for that
    I am forever thankful
    I came to the realization
    The rich life and function we are blessed
    For many with Autism in this world does not exist
    Gratitude and respect is the least we owe
    Not only for that of sacrifice
    But for the many gifts of Autism
    Like invaluable perspective, patience and purity
    Strength of persistence and tackling uncertainty
    The constant reminder that life is short
    There is so much to see and do
    We have the ability to make dreams come true
    The freedom of our voice and choice
    With all of the things to embrace in our world
    Now how do we bring awareness to the autistic boy and girl?
    Their body, mind and soul is still right here
    Happy sad emotions are expressed quite clear
    J and I were fortunate to have great family and resources
    What about those without positive forces?
    It's a systemic problem we face today
    For one in one-hundred-ten the norms are not okay
    Interacting in our world is just different with Autism
    We should work to make it less of a prison
    I envision a community with far more acceptance
    An education system that's far less irreverent
    The challenges faced by my parents, Justin and others
    Are far beyond what I can even imagine
    But I know that by working hard together
    We can change the worlds we all live in forever

Комментарии • 4

  • @TerceiraLove
    @TerceiraLove 8 лет назад

    Awesome creativity. I have been thinking of writing a book about my sister with autism. It is really a daily struggle with her challenges, I wish people understood her more.-Vanessa

  • @erikhaug2470
    @erikhaug2470  11 лет назад

    Autism Awareness Month - Sibling Poem