I Don't Know What is Going on - Clinical Trial Side Effects
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- Опубликовано: 28 сен 2024
- P.O. Box
Jenny Appleford
7211 Haven Ave, Unit E-407
Rancho Cucamonga, CA 91701
INSTAGRAM: jenny_appleford
FACEBOOK: Our Brave Jenny
For business inquiries: veganapplefords@gmail.com
DIAGNOSIS:
March 19th, 2021 Stage IIIA Non Small Cell Lung Cancer (Non-Smoking)
February 2022 Stage IV Non Small Cell Lung Cancer (spreading to Brain, and other parts of lung and lymph nodes)
Gene Mutation EGFR with Exon 20 Insertion
TREATMENTS: Received or currently Receiving
2021: 8 Rounds of Chemotherapy (Carboplatin and Paclitaxel) with 30 concurrent radiation treatments to chest and lung
Failed Immunotherapy directly after Chemo and Radiation (Durvalumab, 1 round)
2022: Current Chemo Plan; ongoing
6 rounds of Chemotherapy (Carboplatin, Alimta, and Avastin)
Carboplatin is now COMPLETE and I continue Alimta and Avastin
Targeted Brain Radiation (Completed)
Our GoFundMe Link:
gofund.me/5edf...
The purpose of my channel is to document my cancer journey to look back on, and/or help anyone else going through anything similar. It is also to potentially help loved ones supporting those who are in this fight as well. My main goal is to have footage of this journey for my husband and children to look back on. I originally created this channel as a sort of video diary for my family.
Thank you so much for following along on this journey. Your love and support help me so much.
Jenny, I was a cancer research clinical trial manager, and if you were in our trial at the University, we would say that you need to call in and just tell the trial team what is going on and how you’re feeling. That is part of the clinical trial protocol, to be a resource for you, and also for us to help manage any symptoms you may be having. You look beautiful for the wedding, and Kyle’s love for you is in everything he does as yours is for him.
@ Sharon Maxwell Exactly!
✨💖✨
Yes this is true. I’m in a clinical trial and there is a 24/7 line to call in on. Please see if that is available to you. I’m so sorry to see you suffer. My heart goes out to you. Maybe the ER is the best place to be right now.
Aw jenny hope you feel better soon love Lizanne ❤️
Call the team. NOW. The unknown is worse than the known. If this is a reaction/adjustment to these new treatments let them know and don’t suffer needlessly .
Praying for you and hoping you get some relief very soon.x
This is the third time I have watched her journey from start to finish…anyone else here with me binge watching? Dear Jenny kept pushing through every trial, treatment, radiation, etc all for the love for her kids, husband and family. I have no idea how her body endured so many years of fighting cancer….but she finally BEAT CANCER! Cancer needs a body to thrive in and hers is not allowing that to happen anymore. Jesus please comfort her children, Kyle and her beautiful family as the try to move forward in this thing called life. 🙏🏼🙏🏼🙏🏼🌹🙏🏼🙏🏼🙏🏼
I keep watching these old videos and tearing…. I just can’t believe she’s gone.
Me too 😢💔 Miss you Jenny Poo 🐞
Me too. Doesn't seem real
I'm watching too late . I remember I watched this video over a year ago. Now I see that she passed it's so sad.
I hate the thought she’s no longer with us damn shame all the crap she had to endure for nothing😢
Thank you for showing me what real love looks in a marriage ❤
When you came back up in the black dress, I literally said aloud, "Oh my gosh. She is stunning." I'm sorry you are feeling bad. Sending prayers often. ❤
Same thoughts 💭! Jenny is gorgeous & filled with exuberant light. Kyle is a sweetheart, & I’m grateful they have each other & their children. This is a difficult time to say the least. Yet Jenny’s attitude is inspiring. You two go, with the joy! Sending love, always. Belle 💗
Me too. You are beautiful and you will get through this, darling xx❤
Ditto ❤
Please call in. They want you to. It’s very important that they know what is going on with you. Sometimes they can make adjustments by phone. Our son had liver sarcoma and chemo. Several times he had to call in and once had to go back into hospital. He is one year cancer free. Please call your manager. Please don’t wait! The sooner you call, the sooner they will be able to help you feel better.
It’s so comforting that you lived a life of happy and joy and love. Aside of the cancer struggles, you lived the best life. You left your mark on millions of people. You were so blessed here on earth I can only imagine how amazing it is for you in heaven. I pray God holds Kyle tight and guides him through. I can see his focus being on your beautiful children. ❤ I won’t ever forget you.
I’m sitting just rewatching videos of Jenny and the fam😢❤❤❤❤
I know, makes me feel glad to see her...brave soul😢💔💔😢
As a child of a mother who was a fierce cancer warrior, I would like to ask you, Jenny, to not feel sorry for your loved one. As families and friends of cancer fighters, all we want is you by our side. We know all the pain and suffering you are enduring for us. We are so sorry you have to endure so much for us, it’s so unfair. But at the same time, we are so grateful for you being there.
I could have written your comment word for word. I only would have added my younger brother as well. The strength, courage, and SELFELESSNESS is truly amazing. ❤💜🤍❤
Im so sorry for what you're going through - but you two are such a good example of what a true marriage is.
In retrospect, this is both happy and sad.
I don’t comment often but I always watch and 👍. I want you to know coming from someone who was in your children’s shoes for my entire childhood, You are an amazing mom and wife, I don’t have to know you to see that is so completely obvious. You are not burden to your husband or children and they would rather have you there, sick but fighting rather than not have you there at all. My dad fought so hard for 9 years to stay with us, he was diagnosed with a pheochromocytoma when I was 3 and diagnosed with MENS2 a few years later. He was 40 when he passed, a year younger than I am now. I wear every wrinkle and grey hair like a badge of honour that I have survived longer than the greatest man on earth, my hero, my dad ever got to. I am praying for you and your family every day.🤲💚 You are their hero! And you are an inspiration. All my love and support 💚💚💚🕊
@raebird1797 such a beautiful post.
that was so beautiful what you said about her not being a burden to her husband and children and they do want you there to keep fighting and she shows so much strength and resiliance in doing it. I am sorry for your families loss.
I have been where you are, I was diagnosed with breast cancer at 34 and also discovered I had the BRAC 1 gene. I had 2 children and my husband but I felt so alone. My mom’s whole family, all the girls either had breast or ovarian cancer. Chemo made me feel so bad and I did have thinning of my hair. My heart goes out to you so much and I am so glad you have a supportive family. I had that with my mom and dad, I had no siblings. The terrible thought having cancer brings a person but just stay positive. When I was at my lowest I had to say to myself “I’m going to do this, I’m going to be a survivor. Tomorrow is a new day.” Fast forward ahead and this year I was 23 years cancer free. I did every precaution I could do. I had both breasts off, a hysterectomy and I was a heavier person and I lost 90 lbs and reached my weight watchers goal.
You will get through this, we are all sending our prayers and love to you, I wish I wasn’t in Canada and closer to you at this time of need. You have such a wonderful husband and support system
Take care you are in my thoughts xoxo
That's so awesome! So glad your better and have such a positive outlook! ❤
If you had truly been where she was, you would be dead now
No one would ever know the battle you are bravely facing. Your hubby is the very best! Be blessed.
I also have stage 4 lung cancer. I wish I could have met Jenny. I have watched her journey over and over and it helps me alot. I continue to watch kyle and the kids and hopefully someday we will meet in heaven.❤
You looked absolutely Beautiful in your black dress. You two are an adorable couple.💞
are you aware she left this earth 💔 and is in the sparkling sky
@@louern123 just saw the video Kyle made after I made that comment. Bless his heart. Prayers for him and the children. Jenny went from earth angel to heavenly angel.
@@louern123 just saw the video Kyle made after I made that comment. Bless his heart. Prayers for him and the children. Jenny went from earth angel to heavenly angel.
Please, Jenny, call the clinical trial resource manager assigned to your case. I know you are scared, but the sooner you call, the sooner they can help you. Sending hugs love, strength and comfort to you, and your family.❤️❤️
The chills aches and pains Jenny are a sign of opiate withdrawal that’s why when you take it you feel 100% better. It is a clear sign.
That little black dress is gorgeous and perfect on you. You look so pretty!
I don't normally comment, but you should call your medical team to make sure the rash is not some sort of allergic reaction that needs to be addressed. It is their job to monitor you. Take care and good luck!
Life can be so unfair..😢
You didn't ask for this. It's what you have to go through, and you will come out stronger.
One minute at a time girl. One second at a time if that is what you need. Uncertainty is scary and if you weren't scared something would be seriously wrong with you. You don't need to stay strong. That's what Kyle and the rest of us are here for.
Oh, Jenny don't be afraid to take the Ativan, it will help with the anxiety as well as nausea. Maybe the chills mean the trial drug is helping your immune system to kick in and fight. Stay strong sweetie!!
Jenny, Ativan is our friend. Take it when you need it, it is a gift and it will help you.
I’m a RN. I think you should call your team and tell them what’s going on asap. Appears to definitely be side effects or an allergic reaction to your new clinical trial treatment regime Keep us informed.
Jenny is experiencing opiate withdrawal that’s why she feels 💯 better when she takes it.
@@denisepaulsenfulthat's what I was thinking
You and Kyle looks so nice together and your outfits 🤩.
Jenny, you are a legend, keep up the fight. You both look so cute. GO TO THE HOSPITAL NOW.
xx
i am so grateful to be a part of your journey - i wish i could meet you one day ❤ i hope you feel better soon 🙏🏻
Jenny is looking, when into the car , like Snow White, the blue dress with the fluffy short sleeves, her hair style , her pretty white skin with these beautiful blue eyes . She looked like a Queen to the wedding . And Kyle ,wow , such a handsome young man . Love you,guys !
We all have to pray for Jenny. Please unite and pray in Gods name, amen
Please call your Dr ASAP! Or head to the ER! Today! Love You & your family!❤️
As a mom and just a fellow human being my heart aches that you are experiencing this right now. I am praying for you tonight and will hold you in my thoughts. Your heart and the heart of your husband represents the good in our world. You are amazing and you are doing "it."
I have been watching your videos for a while now and I have to say that you are such an inspiration to me. I am chronically ill and don’t leave the house or my bed very often so it is inspiring that you are out there doing things despite not feeling well. I would be curled up in bed feeling sorry for myself. You show me that I can do so much more. I also love the relationship that you have with your husband. It’s clear that he adores you. i wish everyone to have love like you have.
I can relate to being emotional about falling. I recently have started falling and I cannot get up without help. The inability for me to get up is unerring. It feels weird to have a body that can’t do what is supposed to do. And now I am always afraid of my next fall.
You are clearly such a good wife and mother. Please don’t give those negative feelings any attention. They are lucky to have you.
Prayers
Jenny, I am so sorry that you’re not feeling well, it broke my momma heart to see you so sad, defeated and just feeling so bad. I’m praying that you get better soon.
Hi jenn...listen, I'm terminal so I know how it feels to not be able to hang like I use to. I fell in my bathroom the other night and laid there for an hour before I was found. But you are doing AMAZING! I have no hope for recovery now and I'm fighting this alone but you can do this! Remember, it's ok to not feel okay emotionally and I will pray for you! Don't risk it and get checked out! Keep us posted! 💙💙🙏🙏
Thinking of you with love and prayers.
Omg Jenny I'm so sorry you're going through this. Don't wait too long to get medical attention. You're a great mom and don't forget that! 🙏❤🥰
Thank you! I spoke with my team and I am going to see them tomorrow. 💗
I'm SO glad you are going in to get medical attention tomorrow! Don't ever say you're a bad wife or mom...that couldn't be further from the truth silly gal! We all love you and are sending prayers from Florida !😘
Oh sweet Jenny you were such a wonderful human being in all the sense of the word , Heaven must feel honored to have there .
Hi Jenny. I'm praying for you every single day. Please go to hospital, or at least call them and ask if this is what is expected from the clinical trial. You maybe over did things at the wedding. You looked absolutely stunning btw. Just beautiful 😍
I definitely think I overdid it 🫢 oops. I spoke with my medical team and I will be going in to see them tomorrow. 💗
And thank you! ✨
Brilliant 💕
@@jennyapple4704 maybe to much protein ? i hope you get better soon and your a beautiful mother and wife. Dont ever feel that your not... Your kids and husband want you there with them and they love you so much. Remember the vows For better or worse in sickness and in health.. Your husband really demostrates a great and caring one who is there right by your side You have a beauful marriage and love that it will get you throught the rough times. You are enough just the way you are.. I know how frustrating it must be to want to do all the things you use to do and i hope soon someday you will be back to your old self again.. I hope you get answers tomorrow.. Make sure you tell them everything you ate at he wedding maybe an allergic reaction to something in the food. Document it and that can help you have that paper to share with your dr. FEEL BETTER SOON .((((HUGS))))
Praying 🙏📿 for you. I pray this may just be an initial reaction and it goes away quickly and never comes back while the treatment eradicates the cancer.
The aches and pain sound like withdrawal symptoms from your pain medication. I had the same thing when I tried to come off one of my medications. I would mention it to your pain management team. I hope you get some pain relief that suits you soon xxx
I agree!
Thats exactly what I thought as soon as she said she quit taking it. Maybe ease off of it.
I also said same
You get flashes too if you suddenly just stop taking an opiate based pain medication, very important to talk with your doctor how to do with it and specially now when she has started to take a new treatment, to be sure which is side effects from the treatment or withdrawal (which can be absolutely horrible too).
She was so beautiful and awesome
Ok Jenny!! I am only 57 seconds in and I had to stop and comment on how pretty you are.. So gorgeous! Now back to the video!! 😘💝💝
My daughter reacted exactly how you describe with the extreme cold and body pain, and she would go as white as a ghost; this was after a few doses of a pain medication. They had to start addiction treatment in the hospital when she was about 4 days post op. When she came home a few days later, I would have to take her to the pharmacy everyday for Methadone - no small feat for someone who had just had major hip surgery at age 20. Considering how many times she had taken narcotics for different operations this was a real shock to us.
Jenny, don’t let guilt over how much you cancer impacts your family eat at you - it is a psychological cancer of its own that will send you to some very dark energy-sapping places. You need that energy to go into being as well as you can be. You two have a beautiful relationship and Kyle absolutely deserved the award he got. Just keep going one day at a time, and treasure it, no matter how rough because if you get through today, it will turn into tomorrow….
I love your black dress, you look absolutely beautiful Jenny. It's so good seeing you and your husband enjoying yourselves. Your such a beautiful soul. Happy Thanksgiving to you and your beautiful family 🙏❤️🙏
:( your relationship with kyle was so unbelievably sweet and perfect. i miss you jenny. im so glad you got to experience so much love and so much happiness during your time on this earth because you truly deserved it so so much
I can really relate to feeling like a bad mom/wife. My twins were 13 when I got very sick and bedridden for 14 long years. Like Kyle told you, my daughters and hubby love me so and just want me to use my energy to get better and not to be too sad about the situation. It is clear your husband children love you more than you can imagine. Take their love and use it to fight this retched cancer. I believe in you!
Hello how are you doing?
Oh I didn't know she passed. Heaven has a beautiful angel
Prayers for you Jenny. ❤️
While in trials always call your team Jenny. Don’t wait, stay ahead of pain.
Jenny you are so beautiful. We will always remember you.
J helped alot of people I think
Jenny,please don't go there where you're thinking that you're a bad wife and mother, because you're not, you're having horrible side effects to the trial medication and you're coping really well. I think you're one very strong person and I have nothing but the utmost admiration for you you are a shining example to
to everyone
Jenny, please dont hesitate to contact your medical team. They are available 24 hours each and every day. You looked so pretty at the wedding. Kyle so handsome! Happy Thanksgiving to you, Kyle, Ellis and sweet Winnie😘
I’m, no words….
Prayers to you and Kyle
Oh Jenny it’s so sad to see you struggling. You and Kyle looked so wonderful at the wedding! Just lovely. Take your pain meds so you can rest. Praying you feel better soon❤
Unfortunately, even though I never knew Jenny appleford, I cannot believe she is gone. I feel shook up.
Oh, Jenny. I’m so sad to see you in so much pain, and as a mama myself, hearing you talk at the end just made me weepy. Praying for you, that you’d all feel peace and comfort that only a loving and powerful God can give.
Hi how are you doing?
Im so sad for this. Ur such a good person
You need to go tonight! Do not mess around with this. Trust me. Call your Dr.
🙏🙏🙏🙏🙏🙏🙏 prayers and happy thoughts too you all!
Jenny, you looked absolutely stunning in the dress you wore to the wedding. I know Kyle was so proud to have you on his arm. I am praying for you! I’m praying for Kyle and the kids. I’m praying for a positive clinical trial. And I’m praying you know how much we all love you. Please use the pain meds, call your team for guidance and go to the City of Hope Emergency Room whenever you need. You deserve all of the respite from cancer that you can get. And know that you are an amazing mother and wife. Your fortitude and determination is palpable. Your family knows how much you love them. Please feel better💝
Praying that Jesus will wrap you in his loving arms and give you peace and comfort. Please call your team.
I am old enough to be your mother and I cannot even put into words how much I admire you both as a couple, and you, Jenny, as a warrior. You are so strong and positive and I can't believe how well you handle it all, especially with two very young children. I am praying for your healing and for a beautiful holiday season for your whole family.
I love you Jenny ❤
I'm 30 from Germany I got diagnosed with lymphoma last month. I wish you and your family the best ❤️❤️❤️❤️
Oh sweetheart - so sorry that you're feeling so bad! You're not putting anyone through anything - cancer is putting you through ALL of this. Cancer sucks - you rock!💓
This is the first time watching you that I cried. I am so numb to life I never cry.. I hope they can give you a medication that will make you feel better. This is not your fault and there is no reason to feel bad.
I still watch Jenny's videos. Her bravery will always inspire me. She was so physically beautiful and spiritually beautiful. I really miss her voice. It was so calm during everything she was going through. Like so many thousands and thousands of others, I miss Jenny.
Hang in there Jenny. Let your doctors know what’s going on. Don’t suffer in silence. Praying for you! ❤️
I love you, Jenny, Kyle and kiddos! I am so sorry you have to go through this... my Grandma is going through Chemo treatments and advanced Breast Cancer, it is hard and awful, she raised me, because my mom passed away when I was 2 weeks old. I will continue to pray for you.
Jenny è morta il 5 novembre 😢 Guarda gli ultimi video 😢
This is heartbreaking for so many reasons. I hope you’re feeling better.
You looked amazing for the wedding!! Your dress was stunning!!
Your husband is so handsome, and such a gentleman. Sending blessings to you both.
Awe Jenny my heart and prayers going out for you. Cancer sucks and makes you feel horrible. That fall could have shocked your body. Prayers that God heal you and place a hedge of healing and protection around you! Clinical trials are at times harder than regular treatments our oncologist told us. So prayers for you and your beautiful family!!!
You looked so beautiful at the wedding. I loved your dress!
I hate seeing you so sick. I hope you get to the ER right away and find out what is going on. I was so hopeful that the new medication wouldn't bother you. I am praying for you honey and as horrible as this is, I know you will get better.
Please don't ever say you're a bad wife or mom. I totally understand you feel guilty for not being able to do everything for your family, but none of this is your fault. It just shows what a loving and selfless person that you are. But they love you unconditionally and would do anything for you. So please don't feel bad because this is temporary.
Sending you a huge hug and so many prayers. 🙏❤❤❤🤗
You both looked lovely for the wedding. I am sorry that your weekend ended with so much pain. Prayers for you 🙏💗
Nobody wants to take pain meds but I always feel a lot better. I am glad you’re having a meeting. Zofran is a life saver.
Absolutely right. And she had cancer, so they're even more important now.
Speaking as someone who has a dear friend struggling with addiction to painkillers, the unfortunate truth is that many people *do* want to take pain meds.
I’m so sorry Jenny and Kyle. You are going through so much. We are all praying and sending up POSITIVE thoughts to you.. please feel better Jenny. We’re here for you!❤❤❤ And Jenny you looked amazing in the black dress, simply stunning ❤❤❤
Wow-when you ‘revealed’ yourself in that black dress I literally said “wow” out loud! You looked so beautiful! I’m sorry that you are feeling scared and in pain and I pray that the doctors will be able to help you with your symptoms and put your mind at ease (a little at least)!
I hope you’re feeling better since this video!
Kyle is Handsome inside and out🥰
Sending big but gentle huggles to you all from Scotland. 🥰
In tears cause you are so precious, I hate to see you hurting. You are so loving, beautiful, kind and so brave. You give my heart hope. You and your husband. I am praying with all my heart for you. Hang in there, you are so special 💗
Just call in Jenny, and let them know what is going on. Maybe they have something to help with the symptoms. You are such a great Mom and wife, you deserve all the love and then some!
Hello how’re you doing?
I strongly believe, that you need to call your team immediately!
Praying praying praying for you here in Stockholm, Sweden 🇸🇪 Wednesday night 😢❤️❤️
Please don’t wait too long to call your team. Your a wonderful mom and wife! Honey you have cancer….you would do the same, and more for them. I’m sending positive healing thoughts and lots of hugs❤🌻💐
I hope you have gone to the hospital and/or spoken with the clinical trial team. You are correct that it isn’t quality of life. Perhaps they can give you some meds or an indication of what is “normal” or an expected reaction to this targeted therapy. Maybe the immune response is kicking the cancer cells like a missile and you are feeling it? In terms of falling I would let them know. It doesn’t sound like a balance issue or confusion issue-it’s more of a strength issue. They are different things. There is what you want to do-walk all over Disneyland and expend lots of energy at weddings, etc and then there is what the reality of your situation is-which is chemo after recovering from a thoracentesis. I think compromising would be good. Using a scooter or wheelchair. Of course you are sad and upset at not being able to do what you used to-I think most of us would. It’s what you need to do right now-not forever-but right now until you hear differently! You don’t want to overdo it and fall and really hurt yourself. A short term gain for long term pain. You’re not a burden-even if you feel like it. You’d help Kyle if the role was reversed. Yes, he may get tired, sad, worried-all normal. That doesn’t mean you’re a burden. It means you both are human. I am continuing to pray for your emotional, spiritual and physical well-being. Gentle hugs to you across the miles Jenny. 🤍🙏🤍🙏
Hello how are you doing?
We love you. Jenny. I struggle with my faith when good people like you, have to suffer ❤️❤️ I’m so praying for you
Hi Jenny, you're so strong and beautiful and so is your family!! I literally found your channel because I was looking for a chocolate cake recipe and chose to use yours, and then I saw your cancer videos and was so shocked that someone so young and healthy could just be hit with this out of the blue! I'm praying for so much success in your treatments and for more happy times in your future! 💖
Hi how are you doing?
Oh Jenny it’s so hard to see you struggling at times. I am praying for you. 🌸🙏😊
I’m so sorry you’re feeling so bad😢 It seems your body needs a lot of rest and try not to overdo it with activities. Sending love and healing ❤️
Today I feel a lot better and I’ve rested all day. I think I was overdoing it.
I’m a new subscriber, I just found your channel a few days ago. I’ve been trying to watch your older videos to catch up. You have a wonderful husband & beautiful children. I will keep you in my thoughts & prayers. May God bless you & heal you. 🙏🏼✨💞
5:31 You look SO beautiful. You and Kyle are my favorite people on RUclips, I just adore you! Do not feel bad for Kyle or your family, they love you!They would do anything for you and you for them, and they know it!
Please feel better don’t wait go to hospital now let them figure out how to help you. There’s got to be a medication missing to help you feel better. I am happy that you were able to go to the wedding and you looked stunning then the park. Don’t worry about the fall think ahead you’ll get your strength back soon! One day at a time sweetie!!!
Awww the end made me cry ..Dont feel bad, they are there for u...you got this! prayers for healing and strength 💜💜
Oh Jen stay strong you are amazing . I know the feelings being a cancer survivor myself.
Jenny we love you... Sometimes I can not watch all of your videos otherwise I will cry like a crybaby. You're a fighter I wish you all the best and I hope you will feel better
Jenny, you look like a princess! Beautiful!
You are beautiful Jenny - you have my prayers for full recovery - I will say a Rosary for you - Mere - Christchurch, New Zealand
Love you jenny! Send you a big hug! This is probably a rough patch with the new treatment, hopefully you'll adapt soon, don't feel bad, your family love you and would do everything and anything for you
Jenny you looked gorgeous at the wedding and kyle looked great. Im so sorry that you are feeling so terrible. You are in my prayers.
Oh sweet Jenny. I’m
So sorry you’re in pain and having so many side effects. Please go in and let them help you. Kyles love for you is so amazing and I love that you come to us when you are down and share with us. Sending up prayers for you Jenny. Hang in there. You are amazing! ❤
Hello how are you doing?
Praying for you...its so hard to see you suffering 🙏 💔 and I can't imagine how hard it is on you..your a beautiful wife and mother..prayers sent..
You’re such an amazing person and I’m praying for you and your family. I validate your feelings. This is so hard. I imagine I’d feel similarly to you if I was in your shoes. Like others have said, you’re beautiful inside and out and we are rooting for you.
You looked so beautiful in your dress. Glad you had fun. Praying for you. You are so so strong. Call the trial team as soon as you her symptoms.
Hi Jenny. I also never comment, but I think of you often and always hope you are doing well. You are so strong and brave, but I agree with the person who said you should report what’s going on to the doctors running the trial, and you shouldn’t wait! They may be able to alleviate these symptoms.