Doc Boster. PLEASE make a 5 min video that i can have people watch that gives an overview of MS so i can stop explaining it 5 times a day! Fatigue and how one day is good and one is not would be awesome!
Aaron. Congratulations on being voted the "Top Doc" in MS again in Columbus Ohio's Columbus Monthly magazine. Your patients at The Boster Center for MS are fortunate to have you"
"Hair grows quickly. Well maybe not mine." Haha. Thanks for answering my question. A lot of my patients come to me already diagnosed with MS, but I would say I recommend a spinal tap in around 15-20% of people being evaluated for MS. For most, the history/exam/MRI make the diagnosis abundantly clear. In terms of recording, people should be very careful because recording someone without their permission is actually illegal in many states (including California where I practice).
Awesome video Dr B! 👍🏻👏🏻 I also found Dr Bieber recently. He is awesome too. So now I have two awesome MS doctors on RUclips that I follow. So not only have I been filling my head with Dr Bosters knowledge, But I am also filling it with the other Dr B's knowledge 😉 👏🏻👏🏻👏🏻😎😎😎 Thank you gentlemen
Hi Dr. Boster, could you make a video on intermittent fasting in MS? I’ve heard IF can heal some symptoms by not sure what to believe! Thanks for all the time you put into doing these videos. The way you describe things makes so much more sense than he way others do!
Great video! I do miss the weekly live question/answer sessions you held in 2019. There was something extra personable about those live MS village meetings. 😀
High quality content as I've become accustomed to though I don't take it for granted...10 years ago when I was diagnosed, there were no channels such as yours that I knew of. I watch Dr Beaber's channel too...so much help, all of it! And to all, remember you visit your dr. at his/her "practice" and there you get an "opinion". I have a much more knowledgeable opinion too, though not a dr.'s obviously, now as a result of all of the resources at my fingertips...and since we're talking opinions...it is my opinion that the patient should have the final say with regard to delay or not of treatment due to Covid....after all, it is the patient who will bear the burden of any decisions made...and btw, by my math last week sometime when I did the math, positive Covid tests in this country were about 1.311% of the population and given all the safeguards in place now, people should be allowed to continue their therapy if they choose to...just my opinion.
For recording and transcribing, if your doctor allows it, try Abridge. My neurologist was the one that recommended it to me. The app fully records, transcribes, and highlights topics that are discussed. It is a great reference for the "What did he say about that?". Best of all, it's a free app!
Hi Dr B. Thanks for another informative video. Surprised that you wouldn't allow an appointment to be recorded. Sort of imagine it as a very customized version of these videos based on your clinical observation and what I tell /ask you. You're not camera shy. 😀 How is the pandemic affecting medical conferences? Are they going on as Zoom meetings? What about research and clinical trials - will there be a gap in the pipeline in a few years time? I mean if people's approved treatments are being put on hold /delayed ... Stay safe. From regional Victoria Australia now in shutdown 2.0, but with numbers nowhere like the US.
Spinal tap / lumbar puncture is the one thing I'd be reluctant to do again! The procedure was ok but the weeks of feeling sick afterwards was grim... had to lie down flat all the time!
Hey Dr! Awesome video as always! I’ve heard you mention a few times that remylination therapy is a few years out. Are there any drugs being tested now or is research close to starting any clinical trials?
Yes I. Have a question why do I feel liquid coming out of my left hand. I was diagnosed in 2013. I asked my doctor and the only thing the Dr.could tell me am sorry, that's what happens to most of my questions. I'm SORRY
Great videos as always! One thing that has been bugging me since my diagnosis in December is that I feel perfectly fine. I've had one maybe two attacks but other than that everything is normal, I go to the gym 5 - 6 times a week and usually go mountain climbing once a week. Got great balance and no fatigue or anything, I'm taking Tecfidera and it's going smoothly. I'm just constantly worrying that I've been misdiagnosed and I can't relate to anyone with MS, what could be going on? If I truly have MS then I hope I can keep it the way it is now. Thanks and sorry for the long message.. 😅
Thanks Doc for you do and share with us. I’ve had 5 Ocrevus infusions and my 6th this November. I read somewhere in a daily MS Society email that the killing of the B cells so they can’t excite the T cells may help deflect the covid virus. I’m curious if this is so or has my cogfog once again confused me? We have a small MS forum here in Florence Oregon that had been meeting second Friday every month at the Senior center. It’s been a few months since last meet. I share your posts every meeting.
Here's some info from the ocrevus website: www.ocrelizumabinfo.global/en/homepage/additional-topics-of-interest/covid-19.html I think it says that outcomes are similar to MS patients in general. I didn't see a comparison to the general population but I might have missed it. One set of data is thru 4/30 with an additional set thru 5/31.
Greetings Dr Boster. I'm watching from Texas. I have been diagonosed with MS for around 10 years, but some symptoms predate that. My thoughts are that MS has different causes like envrioment, runs in family being two main ones. I could be wrong but it seems the research lumps it in one cause thus preventing good solid drug choices that hit the cause, and that's why some drugs work better with some people and not on others. I can't be the first one to think this. I don't see all the research, or all the data that gets shared, nor would I understand it if I did. I tried to keep the question simple, hopefully the answer is fairly easy. The drugs I have used must be working because I can still walk around on my two feet, sometime with a cane, which is better than being what I was told at the DX that I would be wheelchair bound by now.
Great video as usual I have a question have you had any patients say to you they are having problems with generic amprya- the non generic I have been on both and noticed a big difference.😊
Thank you, Dr. Boster! Wonderful videos. My question is: There is B Cell depletion DMTs like rituximab, ocrelizumab. Is there any DMT to deplete only immune cells, which target myelin cells?
I have had MS since 2011, well that is when I was diagnoised . I have trouble with my feet and legs. I was wondering if a circulation promotor really helps ? ( like the one Dr Ho had)
Dr Boster, I have been on Tysabri for 6 months. It has dramatically improved the lesions in my brain, but the lesions in my spine are essentIally unchanged. These in my spine effect my quality of life daily. At what point would you consider adding another agent or changing the DMT? Should I not expect improvement or just allow more time? How long after starting tysabri do you continue to see improvements in newly diagnosed/naive patients? Thanks...from Georgia.
Hello Dr. Boster! I'm on ocrevus and I experience some side effects. Most of them are side effects of the methylprednisolon though. I chose Ocrevus because of the effectiveness and also because it is well tolerated by most people (I could choose from the 'first line' treatments + ocrevus), so I would like to stay on ocrevus, but the side effects of the prednisolon are bothering me. From what i've read, the manufacturer recommends to use methylprednisolon before IV, that sounds to me that it is optional. Skipping the prednisolon could make the difference for me between staying on ocrevus long term, or not. I do not have infusion reactions when getting the IV's. Have you given Ocrevus withouth prednisolon? And what is your opinion about this thought?
Question, are you able to actually answer questions on symptoms people might have or do you not do that because people might take it as actual medical advice ? Just wondering if you can even discuss symptoms at all on this channel ?
What are your opinions on the importance of Uric acid in MS? Mine has been consistently low and progressed recently to undetectable levels despite “stable MS” on MRI. I’m also curious if worsening complex/atypical migraine has any relation to MS or if I’m just the unluckiest person on the planet.
Hello, Dr. Boster. My apologies for asking this question on several of your older videos, however I was wondering what your possible outlook for a person that was *technically diagnosed with a pediatric case of multiple sclerosis would look like. In addition to that, what kind of things would you recommend a pediatric MonSter to do to fight back? [to be honest, I was diagnosed at 14 but I'm 25 years old now]
Hi, really enjoyed your video, it was very informative. I have a question, do the most effective drugs, tysabri, lemtrada etc stop patients from developing secondary progressive Ms? I can't seem to find an answer to this question anywhere. Thanks
hello doc boster, very informative video as always and I thank you for that! you said tysabri and ocrevus are kinda the same... I’m on tysabri and it seems that it isn’t helping me at all and my doc is about to switch me to ocrevus so if it’s the kinda the same then why the switch?
Thank you, Dr. Boster! Question: What about the use of antivirals for MS? There had been a few studies with Valtrex & Amantadine, but not enough. What do you think?
I’m also interested in this question. I started Valtrex recently just because. COVID has me stressed like everyone so let’s keep the virus in check. I read a study recently about someone taking antiretrovirals for HIV that stopped his MS in its tracks. But it was just one guy...
@@NestingInNashville Count me as a second person! I accidentally discovered Valtrex removed all my MS neuro symptoms when I was taking it for canker sores. Then I found out it's used as a part of "biomedical" treatment for autistic kids & seems to help.
I feel like any DMT is useless since that PIRA video ,, maybe couple good years without medication better than living with the side effects of the drugs yet with nothing for sure ..
Hi, Doctor Boster. I have some liver damage after my treatment with Mavenclad and although it's mild I'm concerned about how well I would tolerate other DMTs in the future ,as well as steroids, all on top of my symptons meds . Is it common for MS patients to acumulate liver damage due to all the treatments and how is that dealed with?
Hello doctor! It's me, Joanna from Greece 🇬🇷. Well.. Lemtrada didn't work on me. I keep getting worse. ● What is your opinion about stem cell therapy?????
Hey Dr B. Are there any studies about post partum relapses following Lemtrada. I know there’s a general risk in MS but would love to know if there’s any research specific to Lemtrada. Thank you from a currently pregnant MSer in 🇬🇧
Hello Dr. Boster. I started having problems with my fingers. They started to itch and my dr gave me a lotion to use. It helps but now I have to wear white cloth glove to stop me from scratching the skin around fingertips. Any suggestion?
Doctor B. we hear so much about MS being misdiagnosed around 20% of the time the last time I read up on the subject. Why wouldn’t a neurologist take a spinal tap as a final confirmation?
I had a neurological examination today. I have had nautical vertigo for 3months. Some say it was bppv lateral canal. the examination was normal, but earlier MR pictures said: a few small periventricular lesions. Not looking like demyelinating lesions. They said they will look at the pictures, and maybe take another MR, or not, since there was no problems in the examination Can an MS pasient have completely normal neurological examination at the start?
Hey Doctor B, I'd really like to hear you talk about Trigeminal Neuralgia. This is a possible symptom that scares me a lot, because I've heard the pain is excruciating and it is hard to treat. I recently had some numbness and mild pain around the left side of my jaw and I was scared that it may be the beginning of TN. Could you elaborate on TN a bit?
@@AaronBosterMD thanks a lot! Do you think that TN can ever present as continuous mild pain before developing into the excruciating "lightning bolt" pain?
Hi Dr Boster. Don't worry the UK is in the middle of a heat wave too. I'm having my first yearly brain mri with contrast next week eeep!!!. Just curious on the scenario of what might happen next if contrast shows/doesnt show new/old lesions. I was told I'm at higher risk of developing ms as I had 1 lesion on the optic nerve and 1 pv lesion last year. Thanks and keep up the good work 😄
Don't take it too seriously, Sian. It won't hurt, and the results of the MRI don't always collaborate with how you're actually feeling / doing. Brandon Beaber actually put out a recent video on this subject, look it up! Good luck, good news.👌‼️
Thanks for the videos. I have a question about contrast. I've had bad reactions to the contrast (nausea, sudden urges for bathroom, slight swelling in lips) and I'm not sure I want to get it for my next scans. Personally I care less about an 'active' lesion vs just a new lesion on regular scans. I'm curious if you feel it's bad to get regular scans without contrast.
Doc Boster. PLEASE make a 5 min video that i can have people watch that gives an overview of MS so i can stop explaining it 5 times a day! Fatigue and how one day is good and one is not would be awesome!
Excellent suggestion. Thanks Richard.
Yes please!
Yep.
Great suggestion that would be very helpful to many people I bet.
That's a really good idea.
Aaron. Congratulations on being voted the "Top Doc" in MS again in Columbus Ohio's Columbus Monthly magazine. Your patients at The Boster Center for MS are fortunate to have you"
Thankyou for these Monday morning videos Aaron. It's a great way to get the week started. Thankyou again.
I look forward to your clips every Monday, thank you for sharing your knowledge and insight!
"Hair grows quickly. Well maybe not mine." Haha. Thanks for answering my question. A lot of my patients come to me already diagnosed with MS, but I would say I recommend a spinal tap in around 15-20% of people being evaluated for MS. For most, the history/exam/MRI make the diagnosis abundantly clear. In terms of recording, people should be very careful because recording someone without their permission is actually illegal in many states (including California where I practice).
Hi Dr. Boster! In your next Q&A, could you talk about lesions involving the Corpus Callosum? What - if anything - does this tell you about a patient?
Thank you Aaron! Doing a Great job Informing & opening dialogue!!!
Great video Dr.B.Thank you for allowing many to ask questions.You are a true blessing to your MS village :-)
Thank you Dr. Boster
Awesome video Dr B! 👍🏻👏🏻
I also found Dr Bieber recently. He is awesome too. So now I have two awesome MS doctors on RUclips that I follow. So not only have I been filling my head with Dr Bosters knowledge, But I am also filling it with the other Dr B's knowledge 😉
👏🏻👏🏻👏🏻😎😎😎
Thank you gentlemen
Hi Dr. Boster, could you make a video on intermittent fasting in MS? I’ve heard IF can heal some symptoms by not sure what to believe! Thanks for all the time you put into doing these videos. The way you describe things makes so much more sense than he way others do!
Great video! I do miss the weekly live question/answer sessions you held in 2019. There was something extra personable about those live MS village meetings. 😀
High quality content as I've become accustomed to though I don't take it for granted...10 years ago when I was diagnosed, there were no channels such as yours that I knew of. I watch Dr Beaber's channel too...so much help, all of it! And to all, remember you visit your dr. at his/her "practice" and there you get an "opinion". I have a much more knowledgeable opinion too, though not a dr.'s obviously, now as a result of all of the resources at my fingertips...and since we're talking opinions...it is my opinion that the patient should have the final say with regard to delay or not of treatment due to Covid....after all, it is the patient who will bear the burden of any decisions made...and btw, by my math last week sometime when I did the math, positive Covid tests in this country were about 1.311% of the population and given all the safeguards in place now, people should be allowed to continue their therapy if they choose to...just my opinion.
Sir please make a small videos series for Residents Neurology. Thanks
For recording and transcribing, if your doctor allows it, try Abridge. My neurologist was the one that recommended it to me. The app fully records, transcribes, and highlights topics that are discussed. It is a great reference for the "What did he say about that?". Best of all, it's a free app!
I'd love to know your history of what led you to become an MS specialist. Thanks again for the videos! xx
Sharing is caring ❤️
Hi Dr B. Thanks for another informative video.
Surprised that you wouldn't allow an appointment to be recorded. Sort of imagine it as a very customized version of these videos based on your clinical observation and what I tell /ask you. You're not camera shy. 😀
How is the pandemic affecting medical conferences? Are they going on as Zoom meetings? What about research and clinical trials - will there be a gap in the pipeline in a few years time? I mean if people's approved treatments are being put on hold /delayed ...
Stay safe.
From regional Victoria Australia now in shutdown 2.0, but with numbers nowhere like the US.
Spinal tap / lumbar puncture is the one thing I'd be reluctant to do again! The procedure was ok but the weeks of feeling sick afterwards was grim... had to lie down flat all the time!
Hey Dr! Awesome video as always!
I’ve heard you mention a few times that remylination therapy is a few years out. Are there any drugs being tested now or is research close to starting any clinical trials?
👋 Dr. Boster
Yes I. Have a question why do I feel liquid coming out of my left hand. I was diagnosed in 2013. I asked my doctor and the only thing the Dr.could tell me am sorry, that's what happens to most of my questions. I'm SORRY
Wonderful video as always 🙂
Great videos as always!
One thing that has been bugging me since my diagnosis in December is that I feel perfectly fine.
I've had one maybe two attacks but other than that everything is normal, I go to the gym 5 - 6 times a week and usually go mountain climbing once a week.
Got great balance and no fatigue or anything, I'm taking Tecfidera and it's going smoothly.
I'm just constantly worrying that I've been misdiagnosed and I can't relate to anyone with MS, what could be going on?
If I truly have MS then I hope I can keep it the way it is now.
Thanks and sorry for the long message.. 😅
I'm so happy for you,I hope your ms stays mild and boring for you.
Thanks Doc for you do and share with us. I’ve had 5 Ocrevus infusions and my 6th this November. I read somewhere in a daily MS Society email that the killing of the B cells so they can’t excite the T cells may help deflect the covid virus. I’m curious if this is so or has my cogfog once again confused me? We have a small MS forum here in Florence Oregon that had been meeting second Friday every month at the Senior center. It’s been a few months since last meet. I share your posts every meeting.
Here's some info from the ocrevus website: www.ocrelizumabinfo.global/en/homepage/additional-topics-of-interest/covid-19.html
I think it says that outcomes are similar to MS patients in general. I didn't see a comparison to the general population but I might have missed it. One set of data is thru 4/30 with an additional set thru 5/31.
Greetings Dr Boster. I'm watching from Texas. I have been diagonosed with MS for around 10 years, but some symptoms predate that. My thoughts are that MS has different causes like envrioment, runs in family being two main ones. I could be wrong but it seems the research lumps it in one cause thus preventing good solid drug choices that hit the cause, and that's why some drugs work better with some people and not on others. I can't be the first one to think this. I don't see all the research, or all the data that gets shared, nor would I understand it if I did. I tried to keep the question simple, hopefully the answer is fairly easy. The drugs I have used must be working because I can still walk around on my two feet, sometime with a cane, which is better than being what I was told at the DX that I would be wheelchair bound by now.
Great video as usual I have a question have you had any patients say to you they are having problems with generic amprya- the non generic I have been on both and noticed a big difference.😊
Hi Dr Boster! Thanks so much for all your amazing videos. I was wondering if MS can cause cervical stenosis or disk degeneration.
Thank you, Dr. Boster! Wonderful videos. My question is: There is B Cell depletion DMTs like rituximab, ocrelizumab. Is there any DMT to deplete only immune cells, which target myelin cells?
Could you please talk about Fabry Disease as one of the MS mimics? Thanks 🙏
I have had MS since 2011, well that is when I was diagnoised . I have trouble with my feet and legs. I was wondering if a circulation promotor really helps ? ( like the one Dr Ho had)
Dr Boster, I have been on Tysabri for 6 months. It has dramatically improved the lesions in my brain, but the lesions in my spine are essentIally unchanged. These in my spine effect my quality of life daily. At what point would you consider adding another agent or changing the DMT? Should I not expect improvement or just allow more time? How long after starting tysabri do you continue to see improvements in newly diagnosed/naive patients?
Thanks...from Georgia.
With lemtrada I usually have to take a few weeks off work after the infusion, will the same apply for ocrevus infusion? Days, weeks or none at all?
Have you heard anything about fenebrutinib for PPMS?
Hello Dr. Boster! I'm on ocrevus and I experience some side effects. Most of them are side effects of the methylprednisolon though. I chose Ocrevus because of the effectiveness and also because it is well tolerated by most people (I could choose from the 'first line' treatments + ocrevus), so I would like to stay on ocrevus, but the side effects of the prednisolon are bothering me. From what i've read, the manufacturer recommends to use methylprednisolon before IV, that sounds to me that it is optional. Skipping the prednisolon could make the difference for me between staying on ocrevus long term, or not. I do not have infusion reactions when getting the IV's. Have you given Ocrevus withouth prednisolon? And what is your opinion about this thought?
Choosing between an MRI with contrast and without, which is best? What are the pros and cons?
Question, are you able to actually answer questions on symptoms people might have or do you not do that because people might take it as actual medical advice ? Just wondering if you can even discuss symptoms at all on this channel ?
He doesn’t give any specific advice to individuals situations. Not permitted
What are your opinions on the importance of Uric acid in MS? Mine has been consistently low and progressed recently to undetectable levels despite “stable MS” on MRI. I’m also curious if worsening complex/atypical migraine has any relation to MS or if I’m just the unluckiest person on the planet.
Hello, Dr. Boster. My apologies for asking this question on several of your older videos, however I was wondering what your possible outlook for a person that was *technically diagnosed with a pediatric case of multiple sclerosis would look like. In addition to that, what kind of things would you recommend a pediatric MonSter to do to fight back? [to be honest, I was diagnosed at 14 but I'm 25 years old now]
Hi, really enjoyed your video, it was very informative. I have a question, do the most effective drugs, tysabri, lemtrada etc stop patients from developing secondary progressive Ms? I can't seem to find an answer to this question anywhere. Thanks
hello doc boster, very informative video as always and I thank you for that! you said tysabri and ocrevus are kinda the same... I’m on tysabri and it seems that it isn’t helping me at all and my doc is about to switch me to ocrevus so if it’s the kinda the same then why the switch?
Thank you, Dr. Boster! Question: What about the use of antivirals for MS? There had been a few studies with Valtrex & Amantadine, but not enough. What do you think?
I’m also interested in this question. I started Valtrex recently just because. COVID has me stressed like everyone so let’s keep the virus in check. I read a study recently about someone taking antiretrovirals for HIV that stopped his MS in its tracks. But it was just one guy...
@@NestingInNashville Count me as a second person! I accidentally discovered Valtrex removed all my MS neuro symptoms when I was taking it for canker sores. Then I found out it's used as a part of "biomedical" treatment for autistic kids & seems to help.
I feel like any DMT is useless since that PIRA video ,, maybe couple good years without medication better than living with the side effects of the drugs yet with nothing for sure ..
Hi, Doctor Boster. I have some liver damage after my treatment with Mavenclad and although it's mild I'm concerned about how well I would tolerate other DMTs in the future ,as well as steroids, all on top of my symptons meds . Is it common for MS patients to acumulate liver damage due to all the treatments and how is that dealed with?
Hello doctor! It's me, Joanna from Greece 🇬🇷. Well.. Lemtrada didn't work on me. I keep getting worse.
● What is your opinion about stem cell therapy?????
Hey Dr B.
Are there any studies about post partum relapses following Lemtrada. I know there’s a general risk in MS but would love to know if there’s any research specific to Lemtrada. Thank you from a currently pregnant MSer in 🇬🇧
Hello Dr. Boster. I started having problems with my fingers. They started to itch and my dr gave me a lotion to use. It helps but now I have to wear white cloth glove to stop me from scratching the skin around fingertips. Any suggestion?
Doctor B. we hear so much about MS being misdiagnosed around 20% of the time the last time I read up on the subject. Why wouldn’t a neurologist take a spinal tap as a final confirmation?
I had a neurological examination today. I have had nautical vertigo for 3months. Some say it was bppv lateral canal. the examination was normal, but earlier MR pictures said: a few small periventricular lesions. Not looking like demyelinating lesions. They said they will look at the pictures, and maybe take another MR, or not, since there was no problems in the examination
Can an MS pasient have completely normal neurological examination at the start?
Hey Doctor B, I'd really like to hear you talk about Trigeminal Neuralgia. This is a possible symptom that scares me a lot, because I've heard the pain is excruciating and it is hard to treat. I recently had some numbness and mild pain around the left side of my jaw and I was scared that it may be the beginning of TN.
Could you elaborate on TN a bit?
Here are 2 videos I've made on trigeminal neuralgia:
ruclips.net/video/b11h6QEXZdg/видео.html
ruclips.net/video/tWOaZXFOPxc/видео.html
@@AaronBosterMD thanks a lot! Do you think that TN can ever present as continuous mild pain before developing into the excruciating "lightning bolt" pain?
Hi Dr Boster. Don't worry the UK is in the middle of a heat wave too. I'm having my first yearly brain mri with contrast next week eeep!!!. Just curious on the scenario of what might happen next if contrast shows/doesnt show new/old lesions. I was told I'm at higher risk of developing ms as I had 1 lesion on the optic nerve and 1 pv lesion last year. Thanks and keep up the good work 😄
Don't take it too seriously, Sian. It won't hurt, and the results of the MRI don't always collaborate with how you're actually feeling / doing. Brandon Beaber actually put out a recent video on this subject, look it up! Good luck, good news.👌‼️
I have recently started having seizures. Are seizures common along side MS or is this just a fluke?
I was recently diagnosed with MS in feb, I have two daughter, how likely would my daughters develope Ms
Thanks for the videos. I have a question about contrast. I've had bad reactions to the contrast (nausea, sudden urges for bathroom, slight swelling in lips) and I'm not sure I want to get it for my next scans.
Personally I care less about an 'active' lesion vs just a new lesion on regular scans. I'm curious if you feel it's bad to get regular scans without contrast.
Hello doctor! What is the third drug of the three best drugs?🤯 If I don't know it, my head will explode.. please let me know 😂 I'm on Tecfidera 😅
Im guessing Lemtrada
Your thoughts on the recent mice studies on ursolic acid as a remyelination drug?
Hello 👋
Hello 👋