Hi friends!! Thank you soo much for 700 subscribers! You all make me feel so loved and supported and I am so grateful for you all. I hope you have a wonderful weekend💚
Aww you are so welcome! I am so sorry to hear about your flare they are seriously the worst and so unpredictable. You are so not alone I am right there with you, we got this💚
CONGRATS ON 725 SUBSSSSSS KENNA!!! YOU DESERVE 10 MILLION!!! Your positive attitude is incredibly inspiring despite everything you're going through, thank you for being such a strong soul and inspiring others along the way!!!
Hahaha when you said I look like a hot mess, I misheard and thought you said I look like hummus. I was so confused, I was like how does one look like hummus
@@KennaKrueger I used to cry, but after decades of dealing with chronic health issues and lots of incompetence in the healthcare system, I start getting irritated and politely aggressive. This week I spent the better part of four days making phone calls to sort out a mess with insurance and my specialty medication. A new specialty pharmacy bought out my specialty pharmacy and another specialty pharmacy, needed to run me through the other one they bought out, and my insurance company had no idea what was going on.
@@Dulcimerist i need to start learning how to be politely aggressive haha because I still cry. That sounds like such a mess to have to deal with, I hope it is figured out now!
@@KennaKrueger Yeah, my medication ships on Monday. I started the process of filling it a full week early, so it works out. If you're able to, always fill your prescriptions early and slowly build up a buffer supply of medication so that issues like this never cause you to abruptly run out of medication - going off of certain medications cold turkey can be dangerous, so that buffer supply can be a lifesaver! Next time you find yourself crying, have some affirmations written down to help fire you up! It's okay to get angry!
Those Cape Cod chips are SO GOOD!!!!! Does your Costco get the Fit Crunch protein bars? Those are amazing! I've also picked up some really good pho cups that just need the little packets opened and then pour boiling water on to make.
yes they were delicious! And I am not sure but I think those bars have a dairy product in it which I stay away from because it makes things worse! I remember seeing those pho cups too, they look delicious! When I was healthy I would eat pho my boyfriends family makes and it was soooo good
Hi Kenna, I didn't realize you could still eat orally with a GJ. Does eating cause you any stomach pain? Does any of it go through or are you just suctioning it out? Sorry for all the questions, a tube may be in my future and just trying to be prepared. Thanks for all you do to support our community!
Baileys Irish Cream would be delicious in that drink. What does alcohol do with your gastroparesis? Does it make things worse? I have to be cautious/responsible with alcohol because of my Ehlers Danlos, POTS, digestive dysmotility, etc. Somehow a moderate amount reduces my POTS and dizziness, though.
I personally don't try to drink much alcohol because I am afraid that it won't sit well and personally don't really like the taste. The last alcohol I had was a couple sips of wine around Christmas time but I wasn't as sick then and I also had such a small amount because I didn't like it haha Thats kind of crazy though that it helps reduce some of the dizziness
@@KennaKrueger Yeah, the taste of alcohol takes some getting used to. I tend to get tired of the taste of alcohol before I have a chance to get drunk, which is probably a good thing. Alcohol is a vasodilator, and vasodilation helps to reduce my Ehlers Danlos circulatory issues; like dysautonomia, POTS, Raynaud's, dizziness, and fainting. It's impossible for me to pass out if I have alcohol in my system.
I hope you start getting more energy soon kenna it’s really not nice I’m glad your bowels sorted themselves kind off I wish mine would it would make ,my week I have to wait on outpatient or go hospital for an X-ray which I had the start of the week as I had surgery on Tuesday it was a sacral nerve stimulator in my bum and leads to me spine I’ve two cuts lots of swelling every day I wake up I just want to feel comfortable ..the smoothie looked good and the coffee drink the surgeon wants another test on my small bowel it’s annoying each test takes months ...I think you should get a medical supplies trolly thing you rest kenna thinking of you 🤗
I am starting to get my energy back slowly! Some days I have a bunch of energy while other days I feel soo exhausted but I am happy to have those few good days. I am glad you finally got one of your surgeries I hope it starts helping you soon! Yes the constant tests can be a lot but I always hope they show something helpful. I am looking into a little cart to organize my medical supplies so I think that is what I will end up going with. You get some rest too and I will be thinking of you!
@@KennaKrueger I’m glad you have a little more energy yeah one surgery of my list I think there doing Botox to my bladder they say my bladder is Fowler’s disease which I have no clue what that is ...a few good days sounds amazing hun it sounds like you get the best medical support and home support ...there’s a girl I used to watch on RUclips who has a medical trolly thing I love you tubeie pads I hope when my surgery is down there is something cute ...I just hate that they know my bladder is ruined my bowels are lazy and have fully stopped and my stomach is slow they say I need to have another small intestine test then surgery to remove the large bowel pending what the small bowel it says I need to eat a egg sandwich with a tube in 😫😖I hate eggs and I have coeliac disease...so that’s gone out the window the more I eat the more I suffer your the exact same does it feel better when you drain the nausea and just feeling weak and crappy 💕💕xx
@@kerryhorrocks4453 Aww it sounds like you are going through so much and can't catch a break I am so sorry. You are so strong and I hope with each day and each test things can get a little better for you. And yes it does feel a lot better when I drain, the nausea and pressure go down a lot.
@@KennaKrueger sounds good that the pressure feels like your stomach is about to pop and the nausea I’m always taking anti sickness meds but sometimes I’m sick before they work I’m happy for you that your more comfortable now my surgery scars are so raw and my spine hurts a lot but it will heal quick my biggest fear is my stomach and bowels my bladder spasms hurt but the bowel and stomach are always there I love watching your channel it help me and others suffering feel normal ❤️
Don’t blame you, making phone calls to almost anything is a pain these days to talk to a live person 🤪 Also, a question, you say constipation, are you talking about just draining, or are you able to go to bathroom like everyone else. Others on here with your condition can only drain from their tube, they can’t go to bathroom like most of us
Yes they are such a pain! And nope I go to the bathroom like everyone else. I have had issues with it for a while but can mostly manage it with medications!
I wish they could provide us people with chronic illnesses a personal assistant to help with phone calls and handling a lot of the extra stuff we have to do.
Hi friends!! Thank you soo much for 700 subscribers! You all make me feel so loved and supported and I am so grateful for you all. I hope you have a wonderful weekend💚
Thank you for sharing the good and the bad!! I'm in a really bad flare of my gastroparesis right now and videos like this make me feel not as alone
Aww you are so welcome! I am so sorry to hear about your flare they are seriously the worst and so unpredictable. You are so not alone I am right there with you, we got this💚
Def keep makin these girl! As a fellow GP warrior i love getting to see these! 💚
Aww thank you so much that means a lot! I wish you all the best💚💚
CONGRATS ON 725 SUBSSSSSS KENNA!!! YOU DESERVE 10 MILLION!!! Your positive attitude is incredibly inspiring despite everything you're going through, thank you for being such a strong soul and inspiring others along the way!!!
OMG THANK YOU!!! You are too kind thank you so much!!
Your attitude is so admirable! keep going you got this ❤️
Aww thank you so much this means a lot!!❤️
ooof i wish i could have coffee, it makes my acid reflux go crazyyy
Aw sorry to hear that :(
Hahaha when you said I look like a hot mess, I misheard and thought you said I look like hummus. I was so confused, I was like how does one look like hummus
hahaha omg I would be confused too😂😂
I absolutely hate medical phone calls too! Especially if it leads nowhere and you end playing phone tag.
Omg yes!! They almost always lead to nowhere and I end up crying at some point
@@KennaKrueger I used to cry, but after decades of dealing with chronic health issues and lots of incompetence in the healthcare system, I start getting irritated and politely aggressive. This week I spent the better part of four days making phone calls to sort out a mess with insurance and my specialty medication. A new specialty pharmacy bought out my specialty pharmacy and another specialty pharmacy, needed to run me through the other one they bought out, and my insurance company had no idea what was going on.
@@Dulcimerist i need to start learning how to be politely aggressive haha because I still cry. That sounds like such a mess to have to deal with, I hope it is figured out now!
@@KennaKrueger Yeah, my medication ships on Monday. I started the process of filling it a full week early, so it works out. If you're able to, always fill your prescriptions early and slowly build up a buffer supply of medication so that issues like this never cause you to abruptly run out of medication - going off of certain medications cold turkey can be dangerous, so that buffer supply can be a lifesaver!
Next time you find yourself crying, have some affirmations written down to help fire you up! It's okay to get angry!
@@Dulcimerist yes I always fill my medications early for the same reason! And I will definitely have to do that thank you!
Those Cape Cod chips are SO GOOD!!!!!
Does your Costco get the Fit Crunch protein bars? Those are amazing!
I've also picked up some really good pho cups that just need the little packets opened and then pour boiling water on to make.
yes they were delicious! And I am not sure but I think those bars have a dairy product in it which I stay away from because it makes things worse! I remember seeing those pho cups too, they look delicious! When I was healthy I would eat pho my boyfriends family makes and it was soooo good
@KennaK watch The Frey Life Mary organized her tubie supplies and medical supplies really well
Thank you for the suggestion! I actually just went out yesterday and got a little cart to organize and it looks so much better!
Hi Kenna, I didn't realize you could still eat orally with a GJ. Does eating cause you any stomach pain? Does any of it go through or are you just suctioning it out? Sorry for all the questions, a tube may be in my future and just trying to be prepared. Thanks for all you do to support our community!
What camera do you use ? 🤭Quality is amazing
Canon g7x mark 2!
Baileys Irish Cream would be delicious in that drink.
What does alcohol do with your gastroparesis? Does it make things worse? I have to be cautious/responsible with alcohol because of my Ehlers Danlos, POTS, digestive dysmotility, etc. Somehow a moderate amount reduces my POTS and dizziness, though.
I personally don't try to drink much alcohol because I am afraid that it won't sit well and personally don't really like the taste. The last alcohol I had was a couple sips of wine around Christmas time but I wasn't as sick then and I also had such a small amount because I didn't like it haha Thats kind of crazy though that it helps reduce some of the dizziness
@@KennaKrueger Yeah, the taste of alcohol takes some getting used to. I tend to get tired of the taste of alcohol before I have a chance to get drunk, which is probably a good thing.
Alcohol is a vasodilator, and vasodilation helps to reduce my Ehlers Danlos circulatory issues; like dysautonomia, POTS, Raynaud's, dizziness, and fainting. It's impossible for me to pass out if I have alcohol in my system.
@@Dulcimerist oooo that makes sense!
I hope you start getting more energy soon kenna it’s really not nice I’m glad your bowels sorted themselves kind off I wish mine would it would make ,my week I have to wait on outpatient or go hospital for an X-ray which I had the start of the week as I had surgery on Tuesday it was a sacral nerve stimulator in my bum and leads to me spine I’ve two cuts lots of swelling every day I wake up I just want to feel comfortable ..the smoothie looked good and the coffee drink the surgeon wants another test on my small bowel it’s annoying each test takes months ...I think you should get a medical supplies trolly thing you rest kenna thinking of you 🤗
I am starting to get my energy back slowly! Some days I have a bunch of energy while other days I feel soo exhausted but I am happy to have those few good days. I am glad you finally got one of your surgeries I hope it starts helping you soon! Yes the constant tests can be a lot but I always hope they show something helpful. I am looking into a little cart to organize my medical supplies so I think that is what I will end up going with. You get some rest too and I will be thinking of you!
@@KennaKrueger I’m glad you have a little more energy yeah one surgery of my list I think there doing Botox to my bladder they say my bladder is Fowler’s disease which I have no clue what that is ...a few good days sounds amazing hun it sounds like you get the best medical support and home support ...there’s a girl I used to watch on RUclips who has a medical trolly thing I love you tubeie pads I hope when my surgery is down there is something cute ...I just hate that they know my bladder is ruined my bowels are lazy and have fully stopped and my stomach is slow they say I need to have another small intestine test then surgery to remove the large bowel pending what the small bowel it says I need to eat a egg sandwich with a tube in 😫😖I hate eggs and I have coeliac disease...so that’s gone out the window the more I eat the more I suffer your the exact same does it feel better when you drain the nausea and just feeling weak and crappy 💕💕xx
@@kerryhorrocks4453 Aww it sounds like you are going through so much and can't catch a break I am so sorry. You are so strong and I hope with each day and each test things can get a little better for you. And yes it does feel a lot better when I drain, the nausea and pressure go down a lot.
@@KennaKrueger sounds good that the pressure feels like your stomach is about to pop and the nausea I’m always taking anti sickness meds but sometimes I’m sick before they work I’m happy for you that your more comfortable now my surgery scars are so raw and my spine hurts a lot but it will heal quick my biggest fear is my stomach and bowels my bladder spasms hurt but the bowel and stomach are always there I love watching your channel it help me and others suffering feel normal ❤️
@@kerryhorrocks4453 Thank you so much and I am wishing you quick healing and minimal pain!
Don’t blame you, making phone calls to almost anything is a pain these days to talk to a live person 🤪 Also, a question, you say constipation, are you talking about just draining, or are you able to go to bathroom like everyone else. Others on here with your condition can only drain from their tube, they can’t go to bathroom like most of us
Yes they are such a pain! And nope I go to the bathroom like everyone else. I have had issues with it for a while but can mostly manage it with medications!
I wish they could provide us people with chronic illnesses a personal assistant to help with phone calls and handling a lot of the extra stuff we have to do.
@@Dulcimerist omg yes i love that idea!