I've got fibromyalgia. It is a horrible condition. I was dx in my mid-twenties. I have to have carers to support me now. I live in a bungalow. Cannot work. It is a life changer. Wish the medical system take us more seriously 😒 😪
I was diagnosed with Fibromyalgia 19 years ago, I have seen so many changes in the treatment and the way I am treated now, I have battled so hard to stay healthy and living a full life however this year I have had to give up work because I have been struggling so much, I also have osteoarthritis, under active thyroid disease, Dercums disease this is similar to fibromyalgia but has huge painful sort of lipomas all over the torso arms top of legs, I also have hemiplegic migraine and diabetes, I also have severe depression and anxiety it has been very difficult to hold my job because of my sickness leave. I’m not sure how old this is but fibromyalgia is now recognised by medical professionals and there are many treatments but sadly no cure there’s no cure for Dercums disease either so I have 4 conditions that are debilitating and have no cure but I definitely have fought so hard to stay at work and living a “normal life “ but I have after almost 20 years and I have had to stop working 😢😢😢😢😢😢
I’ve had Fibromyalgia for 10 yrs and still work full time which is really hard. My days off are spent in bed exhausted. The worst thing I face is a few of my colleagues don’t take it seriously and if I’m off sick I face hostility. There needs to be more awareness in the UK.
I have a similar issue here in the States. My boss told me he was going to "force" (his words, not mine) to come in 5 hours early with no guarantee I would get off early. I did that for two days, a day later, I was so incredibly sick, I couldn't make it out of bed for two days.
I honestly don’t know how you do it. I did work for 2 for two after my dx but my manager made working miserable (for everyone not just me). The day I couldn’t stand up out of my chair and I managed to roll to some support to get up I knew something had to change. There is no more acceptance in the US than in the UK.
I can relate!! Work is exhausting and it takes me so much to get through the day. The hostility faced from missing work just makes it worse. Thankfully I now work from home.
I get where you are. I also have had for 30 yrs. It ruined my nursing career and now I’m on disability . I’d love for them to find a treatment that really works. Lyrica and savella did me no good.
Same here. At 25 i read a book about it and thought 'yes' this is it. So many doctors and self found treatments later. I got laughed about. At 60 years i finally got diagnosed. They said there s no treatment and i already tried what was best for me. Now 62 and nothing is changing.
When she said she had to bring family with her to a doctor's visit to be her advocate, it hit home with me. I kept asking my sister to come with me to visits because I felt like no one would believe me.
I've had pain in my muscles, my bones, and my joints almost every single day. For the past 15 years specially in hot weather. My doctor tested me for arthritis it came negative. Pain is constant. Finally, my doctor doubtful told me I think you have fibromyalgia. I've been investigating this illness, and I cried because I finally have at least a diagnosis that makes sense.
Please read every label. Leave oot of your diet every new preservative, eat as natural as you can. No fast foods! I'm not healed but it's not as bad as it has been. Now it's joints like knees, hips, shoulders and upper arm muscle pain. I wouldn't wish this on any living thing. The foods do make a difference.
I was fortunate to have it since childhood. I have severe level throughout my body. One learns to pace oneself. I was tested for allergies. Results were sensitivity in environmental and all foods. While being a child, I had trained my brain to "turn off" the pains. I keep enough pain so I do not cause problems because of having 100% no feeling of my nerves. When a doctor tells me how much pain I amm in, I have "turn on" my brain to answer the question. Thus is how I learned to cope with constant pain so that I am not on meds non-stop.
@@grandmalizard4056same here: I have herniated discs from upper neck all the way to lower back and sciatica pain on right leg amongst a host of other issues including neurological and my shoulders, both, along with neck and especially lower back pain are constantly throbbing. This is horrible. 😢😢
I was officially diagnosed with fibromyalgia 9 years ago but had symptoms for 12 years. 23 years ago I was diagnosed with SLE (Lupus). Fibromyalgia is ugly, painful, dibilitating. Thank you for repeating this
I was diagnosed back in 1994. Nobody knew what it really was back then but I had a Nurse Practitioner research about it and it took a long time to finally say I had fibromyalgia but so many would say I was a hypochondriac. Love to have Dr Oz really saying this is a real disease! It’s tough to go through! I have allot of the symptom it’s horrible. I don’t wish it on anyone’
Believe me, I understand! I’m not as strong as I used to be before getting Fibromyalgia & it’s so disappointing-I can’t even begin to tell you!!! If you have it, you definitely know what I’m talking about! 🙄 The muscle aches & pains, Chronic Fatigue, not being able to do things the way I once did, being so overwhelmed because the life I once lived seems light years away are all symptoms I’ve experienced and am sure many people who suffer from this can relate to! So for someone to say it’s not a real illness or it’s all in our head have no clue just how much we endure daily, along with fighting to be the best person we can despite all these limitations imposed on us through no fault of our own. We are not lazy people-far from it! We are very motivated and do our very best to keep ourselves busy, doing what we can to keep ourselves mobile & not overcome by stiffness or pain. So please understand why we need patience and understanding. We are fighting for our lives & need all the kindness and compassion we can get! It means so much to hear people validate us in a world that is so harsh & judgmental!
I was diagnosed with fibromyalgia after 17 months of being off work. My G.P actually told me I had to smarten up, walked out of the examination room and slammed the door. Eventually I was sent to a rheumatologist who diagnosed me in 15min. This did actually happened from a traumatic episode involving eye pressure. The ophthalmologist pressed on my eyeball to decrease the pressure in my eye which in turn pressed on other parts of my head this was excruciating. Shortly after this episode I started having incapacitating symptoms. I now have lived with this for 18yrs life is a day at a time however not as I would like my life to be. I am and was a single person at the time the stress from no income no one believing you and people thinking your a hypochondriac was overwhelming. At least now it is acknowledged and there are a few suggested alternatives but not cures. LA🇨🇦
I very truly understand & feel your pain. I'd write so much to share with you but truly DO understand you as I've gone beyond. My faith has pulled me to live these days. Please do take care.
I am 23 years old. Live in the UK and was diagnosed with fibromyalgia in august 2022 after experiencing all the symptoms since I was 14 years old… it’s a horrendous condition and I’ve had to quit every job I’ve had including my DREAM job… I now don’t work and struggle daily with horrible symptoms that have already affected my life. Some doctors still don’t believe it’s real either which is so annoying. We get treated like liars and it’s disgusting
@@RoxyfromUk I am the same. None seem to listen or want to help when they hear the name “fibromyalgia” it’s horrible. And it’s scary. We live with emergency type symptoms everyday so never know from one to the next of we need emergency help or not. We need more research to be done and a cure in the future!
Fibromyalgia started when I was in my 20’s. I’m 62 now. I went through so many doctors telling me it’s all in my head. Finally in my late 30’s I was diagnosed. But there was no real treatment. I had endometriosis, chronic yeast infections. Became diabetic in my 40 and was diagnosed with diabetic neuropathy in my ribs and other areas. Now have osteoarthritis. It is à challenging everyday. I especially have more pain when the weather changes. Very sensitive to the environment. The flair ups are horrible! Monthly I have a week out of a month that I feel good. And stress exacerbates everything!
Hello from Thailand. It took 14 years before I got diagnosed because I was referred to a Rheumatologist. But prior to the diagnosis I was told I was psychosomatic, stressed and hypochondriac. Fibromyalgia is also not known in Thailand. 😢
I was diagnosed finally in 2007 after 4 years of fighting the system to be heard. Because I had other illnesses they said it was that. It was only until I went to one Dr and I broke down and said I don't care if you tell me I'm dying but just tell me so I know as I can't live like this anymore. I has a blood test to check inflammation levels and the same day I was asked to go back. I saw a rheumatologist who did the point test and she told me you have fibromyalgia also osteoarthritis in my hands feet and knees. My journey began and its a hard long and sometimes lonely road. I wish every fibro warrior the courage to keep going and know you are not alone ♥️
Me too! No support or help just painkillers which drs just wanna dish out like sweeties 🍬 so you get out of the door and make more money from pharmaceutical companies 😮
The RA my primary sent me to called me to tell me she won’t treat fibromyalgia, but I can still be seen. I went bc my primary wanted me to. She touched my foot and asked me two questions and said she looked over my notes from all the specialists I’ve seen and she agreed with the diagnosis. So that was it bc she won’t treat pts with fibro. They even had a sign at the front desk stating that. I couldn’t believe it. I also have auto immune issues per my neurologist, but I guess that didn’t matter. So glad my pcp has been amazing and never made feel crazy.
You can get rid of the pain using infra red Devices !!!! I also wear a Tourmaline Magnetic Belt in bed which heats my back up !!!! But Nobody understands or believes you anyway, so you have to cure yourself !!!! There are loads of Devices to cure it, like Cold Lasers, Ultrasound, Infra Red Cavitation Devices and Tourmaline Magnetic Supports !!!! I take pain Killers and to wake myself up I take a Caffeine Tablet and have a pot of tea or coffee !!!!
I'm 68 years young. In 2001 I got diagnosed. During my late 30s-40s I was a bodybuilder and ballet dancer. Plus working nights full time for the USPS. I was making huge strides and reach my goals up the ladder. When I went to the gym to start prepping for my next contest I suddenly fell like I had over trained, tired hurting I knew something was wrong. That ended my bodybuilding forever. The real thing I don't understand the connection with weight gain. Has there been any research and studies about the connection on this part of the symptoms? I am not the only one who has this happen. Most of my Fibromyalgia friends have gain a lot of weight. Thanks for helping bring this disease out of the trash can and supporting us. Linda
I’ve been diagnosed with fibromyalgia since 2001. And yes, it is a nightmare. I am now 74. I was on opioids for 22 years and finally got off them this year with the help of my PCP. He was a godsend in that respect. I am now taking Gabapentin and OTC medication. Thankfully I have not had a debilitating bout with fibromyalgia since being weaned off the opioid medication. In response to why I think I have gained some weight is the fact that when I don’t feel good I think if I’ll just eat something I will feel better. Doesn’t usually make me feel good, just makes me feel fat😢!
I watched my daughter go from an active little girl always out working with her horse to curling in a ball watching old black and white reruns of Andy Griffith show. She was only about 12 when she was diagnosed. We tried everything to help her but nothing worked. We were so blessed to have doctors that realized what she had. I spent countless hours on the computer doing research trying so hard to find help for her. She is now 29 and married with kids and it has not been an easy thing to do. We help a lot with the kids and very grateful for the opportunity. All three of my kids have it to one degree or another but she got it really bad. My son found a natural doctor where he was living with his wife and got tremendous help but my younger daughter has so many other things with it that she can't take a lot of meds and supplements that he could take. People don't see what she is going through so they don't believe she has it. Even after all these years because they only see her when she having a "good" day. It is so frustrating.
I am currently suffering from fibromyalgia myself . My doctor told me my symptoms sounded like fibromyalgia. That was a year ago and I am still suffering with no further help from him. I just recently went back with burning sensations across my shoulders and under my arm pits, fatigue and my arms and legs going numb and or tingling. I was also diagnosed with graves disease several years ago. He made me feel like I was a hypochondriac and told me was going to leave me alone because there was no cure or remedy for it. I'm 56 yrs young and this has affected my quality of life. I want answers, a second opinion and some genuine help. Thanks Doctor Oz it helps hearing from others with the same issues.
Since 2012 after surgeries I was diagnosed with Fibromyalgia and no one u derstands. Worsening. I want my life back! Disabled and in chronic pain 24/7. Migraines, Ulcers, Injections, Acupuncture, Chiropractic Treatments, PT causes more pain up to a week. Flu like symptoms, feel like I’m beaten u daily, stomach issues, bladder, pelvic pain, so tired, muscle spasms, heavy leg pain, feet, spine, neck, numbness, prickly pains, all over. Stress from angry husband makes me worse. It is just devastating!
I’ve had Fibromyalgia since I was around 8 yrs old. My mom took me to the pediatrician a few times cause I was crippled in pain & wanted to stay in bed. I kept telling her my body hurts, especially my thighs & hamstring area. Every time I’d ride my bike lots, usually on the weekends, then Monday I had a hard time getting up! My mom & the pediatrician had tagged me as lazy & not wanting to go to school, but I loved school back in grade school. I had many friends then. Eventually the pediatrician diagnosed me with “growing pains”. I’m almost 60 yrs old now & I must be growing big time cause I’m still having those pains but far more severe now & daily now, pretty much 24/7. Once in a blue moon I’ll have a day or maybe two if I’m lucky where I can get more movement in. That’s a rare occurrence now though. The first doctor that mentioned that I could have fibro was in 2006 at age 42! He prescribed me a low dose benzo… 1mg PRN. I miss the person I was when I was seeing that particular doctor. For the first time in my life I was finally feeling normal! Even took a job promotion which moved me out of state. Ever since then I have been unable to find another doctor to follow his protocol for me. I do not understand how any doctor can watch a patient suffer, when there is a definite treatment/med for that patient that will help them regain their life/mobility/cognitive functioning again??? I’m sooo sick of the excuses doctors give me!!! It’s what works for ME! It’s what makes ME better. I’m not everyone else, nor is everyone else me. Fibromyalgia is not a cookie cutter illness, so the treatments aren’t going to be either. I’m glad to hear Dr. Oz call it what it truly is though… a disease. A progressive one too! It’s not just an illness or a chronic condition!!! I’m living proof of that. It’s the stress it puts on our bodies from breaking down our musculoskeletal system that allows other illnesses to tag-on. I know I have costochondritis cause I was hospitalized for 3 days thinking I was having a heart attack back in 1998. All kinds of testing, nuclear testing, scans, monitors, etc… for THREE days to only be told nothing was wrong with me??? And now if I wear a bra? Oh what a nightmare that turns into. I feel like a boa is squeezing me around my rib cage area. In 2013 I had to go to another doctor because my low back & hips felt like they were about to snap apart or crumble. X-rays revealed then that I now also have yet another condition called “Ankylosing Spondylitis”. I’m still fighting with my current practitioner telling me that low dose benzodiazepine cannot be prescribed where pain is present. That’s a bunch of horse pooey!!! I’m so tired of hearing all the nonsense! Like help me plz, stop just watching me struggle already!!! I cannot understand what is going on in the medical community these days? It’s absolutely insane but doctors want to say it’s the fibro patients that are the insane ones? How am I insane because I’m advocating for my own health & well being? How are these doctors not insane for denying me the help that I know for a fact works for me? Oh & they talk to me as if I’m some drug addict. Everyone says, “Well find another doctor that will help you.” 😂 If only! It’s like they’re all reading from the same manual… “It’s all in your head”, “We don’t prescribe those meds at this clinic”, “You need an antidepressant”, “You need to eat a vegan diet” (Which I have tried & tried but every time I end up gaining weight from bloating & plant based causes me to become so inflamed). I honestly don’t know what to do anymore other than go to the nearest dispensary & start that whole protocol again. Then I’ll have to listen to the doctor about that! 🤦♀️🙏🏼🤦♀️
I've been going through this exact same stuff...constant pain in ribs...like a snake and the arthritis ...now they want to put me on anti depressing drugs...I'm so allergic to that crap...benzos work with oxy and I can funtion...but no...they'd rather watch me suffer...I'm at my end...even thoughts of ending my life are next...I hate my drs...condescending jerks who are so disrespectful ...what next?
@@debisigward9900 idk what state you’re in but if your local dispensary has Delta8 THC-O (I like the strawberry flavored one)… try that. I prefer the oil, but they sell vapes, gummies & other forms. A few drops under the tongue (am, pm or as needed) & you can mix it with your favorite pain reliever lotion too. I use an ointment called “Blue Stop”. Hope this helps.🙏🏼
My Chiropractor that understands the correlation between the nerve signals from the brain which travel through the neck helped me so much. Light exercises and stretching are crucial to manage my pain. Also I cut out inflammatory foods including meat & dairy. Managing stress is important.
@linasofit1801, I'm so glad you've found great relief! I'm still working on it... But as a caveat to your elimination diet, be aware that I was vegetarian for years and eventually hit an energy wall on a mountain hike (pre-Fibro) and literally had to be carried the rest of the way up and then down the mountain... 🧱 😢 My doctor ran blood tests for the sudden loss of energy and complete and absolute fatigue... He discovered I was severely anemic! 😮 He gave me uron pills, but also, against what I wanted, I had to start incorporating red meats. Lo and behold, my energy levels soared!!! Now, years later and having even more pain than my normal Fibro, and gaining weight, I tried KETO & eliminated glutens like refined carbs, sugars. WOW!!! Ina few weeks, I lost 10 lbs & so quickly! The bloating and puffiness are disappearing too! 😅 So, I would highly suggest you reduce or eliminate refined carbs and sugars and keep the meat in your diet for less inflammation and keeping your energy levels high and nutrients. I'm hearing this from many Functional Medicine & other doctors on YT as well! Wishing you wellness, Namaste 🙏 🕊
Meat is not inflammatory! Processed carbs, refined sugars, de natured, overly processed foods with fillers and chemicals, alcohol, too much caffeine, dairy products for some, especially with added sugar…….under exercised, or over exercised, weather changes such as heat, humidity and freezing cold, rain……..drugs both illegal and pharma…there is a myriad of other things can trigger fibro…………Mine was extremely exacerbated by an accident in 2000…a broken pelvis with a 5 hr surgery and a month in the hospital triggered my fibro to the extreme….it’s a lifelong journey of healing..
Am now 38, at 35 I had Covid. I was hospitalized for 2 months in December 2020. Now June 2023 I have being leaving in pain. Just few months ago I was told I have fibromyalgia. Me having Covid was very, very,very traumatic. I was intubate and had a tracheotomy. I never experienced this before. At the beginning I thought is because I was in the hospital for so long in coma. But am 3 years into it, and still dealing with this. I have being told is all in my head. Is so frustrating because am still in pain and family thinks is all in my head is very hard..
Exactly especially when you have PTSD no one believe you . They say it's all in your mind covid hit me to the point where I had to sleep sitting up every muscle was affected accept my eyes.
My symptoms started after my sons birth. He is my only child due to my excruciating pain since his birth. I have finally been diagnosed with fibromyalgia and rheumatoid arthritis. I’m still not really getting any help. I would never ever hurt myself however I’m looking forward to my end. I can’t wait to be out of pain one day. The mental is just as bad I’m angry and emotional all the time as well.
Muscle aches, stiffness, cant sit or stand for prolong periods, unable to formulate thoughts into words etc… Also having this for illness for over a decade I can also attest to the changes in barometric pressure triggering flares
I hoped to see more recovery stories in the comments. I was diagnosed 25 years ago. I was going through a divorce i didnt want and my health was poor. I remember laying in bed with about 5 ice packs. It lasted about a year or more but the most severe intensity was in the beginning. It's been gone for 25 years. In fact i forgot about it until my sister described her symptoms to me. Thank you for this video and i hope more people will post recovery stories. For all still suffering, don't give up. Stay strong.
This episode is from 2013. It's a shame that nothing has changed regarding recognizing and treating Fibromyalgia (and other similar and often comorbid conditions). "Health Care" is one of the biggest rackets ever.
Thank you Dr. OZ Show for this topic. I was diagnosed in 1997. I was 34 years old. However, I've hurt for years with no idea what actually triggered it. My mom hurt for years, too and never had a diagnosis. My coworkers were cruel because I called in to work so often and my husband thought I was being lazy. It was and is horrible. I'm on permanent disability and take a mix of medications that work for me with a few extra to help me through flare-ups. I was told that a disability diagnosis with fibro in the mix is the worst thing you can have in your medical history. That, too, I hope has changed. Barometric Pressure effects me and people think it's just in my head. My mom was pegged as a hypochondriac. She passed in 1999 from leukemia, but suffered undiagnosed for decades of fibro. I hope doctors see this that still don't believe. I saw a rheumatologist back in 2000. He said, straight to my face i had nothing wrong and i needed to stop making appointments for things that aren't there. Later, I found out that he finally believed in fibromyalgia. I've never received an apology from him, but I hope he remembered being so cruel to me during my appointment with him.
Yes, takes a long time to get diagnosed. It took me about 10 years to get diagnosed. Why I was to young to have anything wrong and the Dr did not believe in fibromyalgia.
It took me years and myltiple doctors to get a diagnosis. I lost over 100 lb, had my implants removed, my iud removed and changedmy diet.m; nothing worked. I thought i was crazy and just being a baby ut the pain, fatigue and utter exhaustion was very real. I finally just got my diagnosis a month and a half ago. Im hoping to find some semblance of relief.
I've been suffering 5 long years. I have exhausted neurologist after neurologist and test after test with no answers for certain. My quality of life isn't worth living. I feel so hopeless. I am so tired of pain. I am literally a hermit now and haven't been able to work.I am also a single mother and am inches away from becoming homeless because of my suffering. This makes a lot of sense to me. I will soon be seeing a rheumatologist. Pray for me please that I finally get some answers and help.
Mine was triggered by an awful bout of Lyme Disease..this was back before anyone knew much about Lyme so I had it a while before getting a diagnosis. It was also confusing because right before this I was hospitalized with pre-eclampsia and a high risk twin pregnancy in which I had renal failure. After healing from the Lyme, I kept getting what I thought were various viruses and the flu over and over.
Me too, after 2 tic bites & bullseye rash...which made me so exhausted. I couldnt make it to the clinic. The tests for lyme ate not dependable. They care more about dogs and horses getting it, then humans.
@@clarissamonaghan7218 In the US, mercury dental amalgam was banned in 1840’s but some kept it going and created the American Dental Association. A great documentary is, Evidence of Harm.
Grinding and heat on mercury amalgam filling releases mercury vapor directly through the blood brain barrier. Also, root canals. You can find info on YT exposing both.
This is my journey as well, and infuriates me as well. It took me 10 years to find out I have fibromyalgia.! 10 years!! I was persistent. I refused to go away. I kept going back and speaking up and finding resources to keep fighting for myself. When I was diagnosed in 2018, I came to terms with it, and came up with a new plan for living with this.
Mine started with a massive house move resulting in glandular fever that I never fully recovered from. I then had an 18-month descent into physical and mental hell; I thought I was losing my mind; my cognitive function and memory were so bad I was terrified I had early onset dementia. After lots of test I was referred to a Rheumatologist and diagnosed. I'm not 5 years in and still struggling. My memory and cognitive function are still awful, chronic pain & fatigue, sleep disturbance, I can't work or maintain independent living and honestly struggle to feel a sense of purpose. It frustrates me that modern medicine treats symptoms and not causes because I want to overcome this awful condition. I feel like I am literally dragging myself around 24/7
I had fibromyalgia for some years but just got my diagnosis. It’s horrible and so painful. I also have weakness in my legs, when it happens I can hardly walk or stand up. It usually comes in the evening or when I’ve been walking for a little while. It feels like the legs just disappears, I also feel the weakness in my arms. When I tell my family and friends this and how much pain I’m in they say oh that can not be true or you must be positive and I heard a person who heals from this. I do t feel like people believe me
Ive had fibro since at least 18 MONTHS OLD. tested positive for EB during a 3 week hospital stay. I've never had joint pain. It's in the connective tissue. Tendons and ligaments. Inches AWAY from the joints and connecting to joints. With trp's in the muscle tissue. ( Peas to grapes with satellites) My DX came at 23 , 1988, when my doc called in a doc from Harvard University to see me after my legs went out after I had my first child a week earlier. Pelvic trauma) He had just completed as lead physician, a ten year study on this mystery disorder. I couldn't believe he said.. "I know what's wrong with you. " Sent me to Dr Gorman , rheumatologist extrordinaire.. Put me through 6 months of intense PT and phsyco therapy ( which determined i had no depression or phsyco somatic causation of symptoms. And I continue to this day with every 5 years, phsyce eval, and in PT every year for 6 weeks to address any compensating muscles and strengthening of weak muscles. Retraining .. strength training, cardio, light stretch, and massage to address trp's. My diet is clean, I eat only what was available prior to 1900. So no prepackaged military grade rations. Lol full of preservatives and fake ingredients. My pain at 57 is no worse than at 4 years old. And I know any trauma needs to be addressed after a fall, or stub of toe.. to prevent compensating and reflex dystrophy. As a child , things I did intuitively are now mainstream treatment. I have run support groups to encourage GETTING UP UPON AWAKENING. don't allow for the flood of pain that happens when you are wide awake. Just wake up and get up. This stops 50 percent of pain from flooding in. ( Adrenaline) and making it harder to get up and easier to stay in bed. It's not deteriorating unless you don't move, weak muscles hurt more than for muscles. I take no meds except low dose opiates I use to do my PT at home or in person. Everyday, I do 45 minutes of whatever uses every muscle in my body. Some days it's "snow angels, others it's a air jogger machine, a walk through the woods outback, up in the lake down the street. This induces my own adrenaline, dopamine, oxytocin and ( lol fibro fog) Docs all my life where fascinated by my record. Including growing up in Woburn Ma.. * A Civil Action* where we had a cluster of luekemia and other cancers and if my issue was the lower end of exposures .. as most I grew up with including two siblings were doing drugs in elementary school. And became addicts by graduation. I believe my research shows an exposure during government bio testing late 60s early 70s all down the east coast by the research facility at the time in Florida. The prequel to The real Anthony Fouci, by RKJr.. By where they mutated a parent virus 6 ways and sprayed it mosquito repellant in low income areas. NeighborHoods, bus stations, train stations and a few airport terminals to PR , DR and Other countries that relatives would come and go regularly. Fibromyalgia, MS, Lupus, AIDS, Chronic FATIGUE/ ME. DEPENDANT upon genetics and what the body could fight. The research was to figure out why a few survived bubonic plague but many more died. Some got sick some got no symptoms many died. The difference was if one or both or neither had certain genes. If none, they died, if one you get sick but not die, if both parents had it, you barely got sick and survived.. those were the few who took care of the rest. I do not remember the gene, but the parent virus used was brucellus, that was mutated. As children we were allowed to run behind these trucks in fog you couldn't see your hand in front of your face. That smelled not like deet, but kettle corn. In Woburn, they built Cummings park, dig out the ground, dump toxic waste, pour concrete foundations .. we played in that water. It looked like the Caribbean. With dead birds trying to nest in the sides of the digs.
3 doctor appointments to get a diagnosis??? , try 9 years!. Praying every day that a diagnosis would come. Then when it does you are told by some doctors: there's no cure and most Dr's , Physios, specialists (no matter what you go to see them for ' waste of time coming here, *fixing that* (whatever 'that' might be ) is probably because of fibro and wont make much difference'. i.e go away, we're not wasting time & money even looking at you, you're on the bin heap. I've been referred to so many departments, only one who treated me as they would with any other patient was dermatology. The doctor and each nurse were so lovely to me I cried, they asked why and I said everyone else when they hear that F word (fibro) sends me packing. They said you are hear because of a skin condition and thats what we're going to help you with, and fhey did, it cant be cured but I now have the right creams etc so when it flares up, it isn't as bad usually. Having my skin condition usually manageable has improved my life a bit, if every department just treated their condition my life could have been so much easier. Early menopause age 32 brought mine on.
I was just diagnosed after having chronic pain issues for over 10 years. Now that I know what it is I’m hoping it will be easier to find was to handle it.
I’ve had it 21 yrs. Back in the day I had a few old doctors tell me I was just imagining it, get more sleep etc. I persisted because I knew my body and that something was not right. I’d always been very athletic. Never had pains. Suddenly I couldn’t move. Took me 5 yrs to get a diagnoses. The rheumatologist figured it out in 2 minutes. Forever grateful. And it’s much more manageable today than 21 yrs ago. there’s something so freeing just having the diagnoses and knowing you’re not crazy like they make you feel even though you know your own body.
13:16 This explanation of the augmented pain is correct if you listen to his words, but his visual display is wrong. The whole body isn’t usually in extreme pain all the time. It moves around. The intensity increases in a particular area and maybe one other. The symptoms ebb and flow. Some times if I smack my hand on the counter, I may simply say ouch and be fine. Another day my fingertips feel raw and sting every time I gently touch anything. Another day, I can be walking fine and instantly feel shooting pains in my right leg and left elbow. It can last for a few days or just a few minutes. It’s all so random.
Doctor Oz, I do not know why you are so shocked, today’s doctors have so many patients in a day, they don’t have the time to listen!! They do not give you any pain meds to help you function during the day. And that is sickening and not fair to people that need meds. My body pain keeps me up all night, my legs ache all night and I wake myself up from trying to calm the pain down. I’ve had this since I’m 30 years old. I have had body pain for 32 years of my life!! I gave up on doctors, they all say that you need to get out more and do things, you are probably depressed. Yes, depression sets in when you are horrible pain all the time. Explaining this to every doctor that you go is frustrating. Getting a new doctor to understand that………..My chronic pain caused my depression! My depression did not cause my chronic pain. Therefore, it is not in my head!!
I'm in pain all time I sometimes am so excausted all time yet Im lucky if get two hours sleep I can't get out bed I wake up like I never went bed but bloods show I'm run down all time and I always have chest fibremo infections my back so sore I hate when I say I'm sore again my family sick it I'm sick it but I finally got word from doctor that I two had fibremyoliga glad u brought up the awareness more awareness needs be done for women or men with this crippling condition
Going to a chiropractor helped me enough to not need to be on medication. After months of being in pain, and nothing being found wrong with me, I too thought I was going crazy. I try to visit chiropractor at least quartly to keep me functioning.
I was diagnosed in my late 20 and didn't believe I have that but dr.tell me it's alot because of stress and I was in war but I still didn't believe then around my 40 I start feeling worse . I'm trying to be positive in my head. Good luck to all who have this condition
I'm a 61 year old guy and have had fibromyalgia for life. My doctor literally told me I'm a hypochondriac. He suggested to me to have a positive outlook on life, practice a religion, see a psychologist or take antidepressants.
I'm sorry your doctor is an idiot. Find a good Rheumatologists near your age or older. I was misdiagnosed the first 2 years I had FM by a different doctor. My boss suggested I go to see her Rheumatologists. She has severe Rheumatoid Arthritis. Her doctor diagnosed me on my first visit. He has been my doctor for 32 of the 34 years I've had FM. He is the kindest, most caring doctor I have ever seen. There are others like him out there, and you might not be as lucky at finding a great doctor like I have, but don't stop searching! You deserve better than the one you have!
#1 please run for office again! I’m from Wisconsin! 2. I have fibromyalgia since I was in my early twenties and my dr. Is very good but he’s retiring in March and my husband has MS for about almost 20 years and he’s on the top Acura I think and we have the same family dr. Where can I get the PHA serum and how much serum do you get and what is the cost?
I’ve been dealing with this since 2008 and trying to find a Dr that is compassionate and understanding has been my biggest struggle! It’s disheartening when you have a Dr make you feel it’s in your head and you have family that doesn’t understand your constant pain!
In my case it all began in 02 with a tick bite, the bullseye rash, and the Doctor knew for sure it was Lyme Disease, but chose not to treat it. A year or two later the doctor said Fibromyalgia, then still yet a year or two later, Lupus. Now four kinds of Arthritis. I was so sick for so long, my body went into atrophy, it's only by God's grace that I'm alive. This appears to be epidemic, but no one believes it's real, except those who have it.I Need HELP! Is there any help?
Dr. Oz buenos días. Felicitaciones por sus conocimientos y sus programas que son de gran orientación en la salud. Cómo podríamos ver en RUclips con tradición al español. Cordial saludo de Salomón Rodríguez. Lo veo desde Colombia.
Fibromyalgia is a progressive disease. It can cause Neuropathy and is an autoimmune and nerve condition that is embedded in our genomes. It causes our neurons in our brain that trigger and misfires the brain to neuron response is to think we are in constant pain. I have nerve damage, which is a beast of it's own. I stood up for myself and persisted for 2 years. I knew what I had but don't self diagnose. Talk to your doc. My Doc now not only works with me however also my team of specialists. It is exhausting and Neoropathy as well as tendon and muscular atrophy. So painful. I wish this lady the best. ❤😊
I’ve had Fibromyalgia for decades. The pain and fatigue kept me from being an active mother when my kids were young. Okay great, if you have the diagnosis doesn’t mean you’re going to feel better. It’s very hard to get pain medication that’s effective. Advil and Tylenol are worthless. I’ve been in a terrible flare-up for months. Spending months in bed is not living! Yes, depression and PTSD is part of the problem. Widespread extreme pain, headaches, IBS, terrible sleep and overweight are many of the symptoms. All the blood tests come out negative. That’s great but doesn’t change the severe pain.
I was diagnosed with chronic fatigue and Fibromyalgia 20 years ago and just this year rheumatologist diagnosed me with Elher Danlos or hEDS it feels like it's not even a relief to know because it seems nothing helps for pain or any symptoms...I am still fighting for disability on top of having had back surgery and other issues.
I had childhood trauma and then had an accident in 2013 and I fell on my back. That was when I started feeling widespread pain, burning sensations everywhere, brain fog, headaches, dry eyes, and chronic fatigue. This is what helps me: stetching, light exercise, Vitamin B for energy, magnesium cream, and magnesium tablets, as well as a heatpack / electric blanket, spa, or sauna.
The rheumatologist in our city have banded together and agreed not to see fibro patients saying it is not a rhematological. Condition. Some medical provider needs to own this disease?
It took a little over 4 years and about 5 different doctors before I got a diagnosis. I’ve had it for 24 years now. It is most definitely life changing. I think I had every test possible prior to a diagnosis. It was so frustrating. I deal with pretty much all of these symptoms that go along with Fibro. It’s seems to me personally that the longer I deal with this the worse the symptoms get and the more symptoms I get. How do people get to a point where they get the symptoms under control?
They denied my disability because they don't believe in fibromyalgia . I can't work either. I do UBER BECAUSE ITS MY OWN SCHEDULE. very sad to not be able to work to survive. People hate you because they don't understand you.
8:19 I finally was able to meet with the right neurologist. I had suspected MS, Multiple Sclerosis, but the Neurologist had something else in mind. Within a 10-15 minute discussion, he told me that he didn’t think that I had MS and he was pretty certain what I had. Within the next two days he had a full work up completed. I came back a month later and he was able to rule out MS and confirm Fibromyalgia. His comment was that he was going to get me on a treatment that would get me back in the game. I found this very empowering. I felt that now that I could name it, I could address it.
@@dee81877 I was already on Gabapentin pre diagnosis. This neurologist put me on Amitriptyline and I felt a significant initial improvement. However, I had to switch to another neurologist who reviewed the record and was concerned that I had a father and paternal grandmother who suffered dementia in their older years. At this time (2016), there were studies that associated Amitriptyline with dementia. It was a correlation study, not a causation study. Did the medication cause the dementia, or were people predisposed to dementia more likely to be prescribed the medication. Anyway, out of an abundance of caution, we switched to DUloxitine. That was an effective move , but didn’t completely take care of pain. Later we added pregabelin (Lyrica). Then we reduced and phased out the Gabapentin. Not sure if this was the best move or not. I wonder if some kind of balance in between would be ideal. The best medication was Aimovig for my migraines. One shot in the belly every four weeks. There was a significant decrease in migraines. I still have quite a few, but not daily anymore. Other therapies that are great that are not from the neurologist are constant stretching and movement. Epsom salt soaks. Hydrotherapy. Massage. Myofascial release is amazing as well as occipital release. Over time one builds up their own menu of tips and tricks. Massage the scalp with the kind of hair brush with the plastic bristles with the tiny round balls on the tips to help stave off a migraine.
I’ve just recently been diagnosed with SLE (Lupus) and fibromyalgia. What I want to know is anyone with fibromyalgia, have you found something that helps or gives you relief?? Does anything work? Any medication or routines? Anything? I have brain fog, sore calf muscles, sore quads, tingles in my feet and hands at times, sensitivity to cold, lately headaches for 48hours even with nurofen. My lupus affects my joints only at this point, particularly my knees. I’m on hydroxychloroquine 200mg for the lupus.
I have myofascial pain syndrome and chronic migraines and I’m told all the time the pain is in in my head. I have many symptoms similar to fibromyalgia. I wish myofascial pain syndrome would be talked about more. It’s very isolating and I believe similar to how many with fibromyalgia may feel. 😢 I have had a Nerologist tell me “I think you have fibromyalgia” but i personally do not have pain all over my body though.
A refreshing show. Im in the UK and I've had fibromyalgia for over 14 years. Its horrendous and devastating. Im sick of it. Im also disgusted how "friends" still dont believe me.
The UK and gp,s do Not recognise FYBROMYALGIA at all. I understand completely. Its horrible to be treated so horribly. I transfered my medical records to the UK after I moved here. They will not recognise it at all. I had my clothes jerked down to my knee,s by the gp while she pushed her index finger into my skin and loudly asked me does it hurt here? How about here? I have been hung up on the phone several times. It was so bad I have to take my husband in the office with me if I go to the doctor. I am from America originally. They are cruel to me here. I have never ever been treated like this from a doctor. Its very stressfull. I am housebound now.
I was diagnosed with Fibromyalgia 24 years ago at the age of 33. After pain meds. Lyrica and so many anti inflammation meds. I gave up on the meds. Haven't had a pain free day in all these years.
That’s me stuck in bed everyday the pain is horrendous.i was diagnosed 10 years ago,hate trying too explain it too people ,I was someone with 3 jobs never sat down at all always busy busy .not now 5 mins walk I’m exhausted pain and fatigue floor me 😢
My fibro didn't start until after I had a child and had spinal block done for my c-section. Wonder if it damages something in sensation center when feeling reactivates
I completely understand having to have family members accompany me to confirm what I’m saying is true and no, I’m not going nuts. On the maternal side of my family had: my aunt - lupus, fibromyalgia & arthritis My mom: arthritis, and migraines - passing of pancreatic cancer. My next aunt: had dementia/Alzheimer’s So, my GI was the one Dr who wanted me to take several blood test. I was going to her via my pulmonologist. She took so many tests, that I had a autoimmune disease & lupus come up. It’s in my family - for years my aunt suffered; bc of her lupus & arthritis. How they all survived into their 90’s still amazes me. But my GI Dr??? Im thankful of her.
Took 8 years and 20 doctors to finally diagnose me. Rheumatology dont know jack about fibro fyi. Also, neurology looked at me crazy. Pain Management clinic diagnosed me.
I have fibromyalgia and I was lucky enough to figure it out on my own. I then went to a doctor and told them I believe I might have it and they were able to just confirm. The things that changed my life since then are diet and exercise. The days where I feel like I can't get out of bed or walk are the days I really need to take my butt to the gym. Even if I can only manage to do a warmup and stretch I have found it dramatically improves my symptoms. I also take advantage of my "good days" and work on strengthening my muscles to make everyday tasks less exhausting. In regard to diet, I try to avoid sugar and carbs because they tend to cause excess inflammation. When I get lazy and start to slip from this I get a brutal reminder of why I do it in the first place. I definitely don't feel perfect by any means, but I can have a somewhat normal life by doing these "simple" things.
I think you may have miss diagnosed yourself . Not being rude but with fibro the gym is a swear word it's just not going to happen. I've had it for over 30 yrs, I have learnt that if my body neads to rest then that is what I do. Pushing yourself to do things your boy can't cope with is not going to help you in the long run
I have this along with multiple sclerosis and I have reached the point where I’m done. It’s not worth it. Life is terrible when you have fibromyalgia and no one wants to help. I just want the pain to stop. My MS isn’t really the problem it’s the Fibromyalgia. I’m 70 and have had it since the later 1980. I see no way out.😢😢😢
I am a retired RN and had the multiple symptoms years before diagnosis by a wonderful VA nurse practitioner. I was diagnosed with rheumatoid arthritis and lupus in my 40's. By a rheumatologist.
Do any of you also have a all over body redness/inflammation of tissue? Not so much a rash but redness and achiness, hurting. But it does show up as a rash on my face. As the redness/inflammation spread slowly down my arms, symmetrically, it eventually attacked the elbows. Same happening to upper legs and now knees, heading down to my ankles. Thanks
I've been dx'd w Fibromayalgia for ~ 10 years. Personally speaking, I have to say that if someone tried that OMT on me it would shut me down bc it would hurt so much. I cannot enjoy even a simple massage. My muscles and skin are too hypersensitive to relax and enjoy. It would end up feeling like big pain.
So how did he make her better again because i have not been mad better. I am so sick and hurting all the time. I have been told i have fibromyalgiaand there are no treatments for it.
I am a man and had fibromyalgia for 10 years and saw 7 doctors with no diagnosis. I finally went online and it was obvious to me I had fibromyalgia so I made an appointment with a rheumatologist and she immediately diagnosed me with fibromyalgia. The medications were ineffective and one thing that helped a lot was severely limiting starches and sugars which helped a lot.
I have fibromyalgia. I’m 53 5 feet tall and I have a daughter who is 34 and she has severe cerebral palsy . My daughter is like having an eight month old in a woman size body. She is 5’2 138 pounds. She is in a wheelchair. Basically I live for 2 people. I have osteoarthritis both my knees and bone to bone. My fingers are swollen at the joints and my fingers are becoming deformed. I wish to lay down but I’m too busy.
I've got fibromyalgia. It is a horrible condition. I was dx in my mid-twenties. I have to have carers to support me now. I live in a bungalow. Cannot work. It is a life changer. Wish the medical system take us more seriously 😒 😪
Find a good (older) Rheumatologists. They have a lot of FM patients.
I have had it for 13 years now. It's a horrible illness. I wish you all the best.
I was diagnosed with Fibromyalgia 19 years ago, I have seen so many changes in the treatment and the way I am treated now, I have battled so hard to stay healthy and living a full life however this year I have had to give up work because I have been struggling so much, I also have osteoarthritis, under active thyroid disease, Dercums disease this is similar to fibromyalgia but has huge painful sort of lipomas all over the torso arms top of legs, I also have hemiplegic migraine and diabetes, I also have severe depression and anxiety it has been very difficult to hold my job because of my sickness leave. I’m not sure how old this is but fibromyalgia is now recognised by medical professionals and there are many treatments but sadly no cure there’s no cure for Dercums disease either so I have 4 conditions that are debilitating and have no cure but I definitely have fought so hard to stay at work and living a “normal life “ but I have after almost 20 years and I have had to stop working 😢😢😢😢😢😢
I’ve been diagnosed w/fibromyalgia since 1977. Prayers for all! Hang in there!
🙏🏼😇
31 years of Fibromyalgia for me 15 years old it started I'm now 46.
I’ve had Fibromyalgia for 10 yrs and still work full time which is really hard. My days off are spent in bed exhausted. The worst thing I face is a few of my colleagues don’t take it seriously and if I’m off sick I face hostility. There needs to be more awareness in the UK.
I have a similar issue here in the States. My boss told me he was going to "force" (his words, not mine) to come in 5 hours early with no guarantee I would get off early. I did that for two days, a day later, I was so incredibly sick, I couldn't make it out of bed for two days.
Try metformin
I honestly don’t know how you do it. I did work for 2 for two after my dx but my manager made working miserable (for everyone not just me). The day I couldn’t stand up out of my chair and I managed to roll to some support to get up I knew something had to change.
There is no more acceptance in the US than in the UK.
🙏🏾
I can relate!! Work is exhausting and it takes me so much to get through the day. The hostility faced from missing work just makes it worse. Thankfully I now work from home.
I've had this horrific illness for almost 30yrs... it's the most misunderstood illness I believe ever😢 it's like a life nightmare!!!
Metformin
@@LibertyLaura1776 ?
I get where you are. I also have had for 30 yrs. It ruined my nursing career and now I’m on disability . I’d love for them to find a treatment that really works. Lyrica and savella did me no good.
@@NurseSue425 same most RX they use antagonizes this illness
Same here. At 25 i read a book about it and thought 'yes' this is it.
So many doctors and self found treatments later. I got laughed about. At 60 years i finally got diagnosed. They said there s no treatment and i already tried what was best for me.
Now 62 and nothing is changing.
When she said she had to bring family with her to a doctor's visit to be her advocate, it hit home with me. I kept asking my sister to come with me to visits because I felt like no one would believe me.
My sister went with me. She still doesn’t understand either and after almost 30 yrs later. 🥲
I've had pain in my muscles, my bones, and my joints almost every single day. For the past 15 years specially in hot weather. My doctor tested me for arthritis it came negative. Pain is constant. Finally, my doctor doubtful told me I think you have fibromyalgia. I've been investigating this illness, and I cried because I finally have at least a diagnosis that makes sense.
Please read every label. Leave oot of your diet every new preservative, eat as natural as you can. No fast foods! I'm not healed but it's not as bad as it has been. Now it's joints like knees, hips, shoulders and upper arm muscle pain. I wouldn't wish this on any living thing. The foods do make a difference.
I was fortunate to have it since childhood. I have severe level throughout my body. One learns to pace oneself. I was tested for allergies. Results were sensitivity in environmental and all foods. While being a child, I had trained my brain to "turn off" the pains. I keep enough pain so I do not cause problems because of having 100% no feeling of my nerves. When a doctor tells me how much pain I amm in, I have "turn on" my brain to answer the question. Thus is how I learned to cope with constant pain so that I am not on meds non-stop.
if i were you i would have your doctor run a full thyroid panel as most times it is a thyroid problem
Metformin
@@grandmalizard4056same here: I have herniated discs from upper neck all the way to lower back and sciatica pain on right leg amongst a host of other issues including neurological and my shoulders, both, along with neck and especially lower back pain are constantly throbbing. This is horrible. 😢😢
I was officially diagnosed with fibromyalgia 9 years ago but had symptoms for 12 years. 23 years ago I was diagnosed with SLE (Lupus). Fibromyalgia is ugly, painful, dibilitating. Thank you for repeating this
Metformin
Same here
I was diagnosed back in 1994. Nobody knew what it really was back then but I had a Nurse Practitioner research about it and it took a long time to finally say I had fibromyalgia but so many would say I was a hypochondriac. Love to have Dr Oz really saying this is a real disease! It’s tough to go through! I have allot of the symptom it’s horrible. I don’t wish it on anyone’
Me too. 1994. So sorry 😢
Believe me, I understand! I’m not as strong as I used to be before getting Fibromyalgia & it’s so disappointing-I can’t even begin to tell you!!! If you have it, you definitely know what I’m talking about! 🙄 The muscle aches & pains, Chronic Fatigue, not being able to do things the way I once did, being so overwhelmed because the life I once lived seems light years away are all symptoms I’ve experienced and am sure many people who suffer from this can relate to! So for someone to say it’s not a real illness or it’s all in our head have no clue just how much we endure daily, along with fighting to be the best person we can despite all these limitations imposed on us through no fault of our own. We are not lazy people-far from it! We are very motivated and do our very best to keep ourselves busy, doing what we can to keep ourselves mobile & not overcome by stiffness or pain. So please understand why we need patience and understanding. We are fighting for our lives & need all the kindness and compassion we can get! It means so much to hear people validate us in a world that is so harsh & judgmental!
It ig painfulll.
I was diagnosed in 1983 , I am 70 years old now, they called it Fibromyositis back then! They knew nothing then 😢
Try metformin
I was diagnosed with fibromyalgia after 17 months of being off work. My G.P actually told me I had to smarten up, walked out of the examination room and slammed the door. Eventually I was sent to a rheumatologist who diagnosed me in 15min. This did actually happened from a traumatic episode involving eye pressure. The ophthalmologist pressed on my eyeball to decrease the pressure in my eye which in turn pressed on other parts of my head this was excruciating. Shortly after this episode I started having incapacitating symptoms. I now have lived with this for 18yrs life is a day at a time however not as I would like my life to be. I am and was a single person at the time the stress from no income no one believing you and people thinking your a hypochondriac was overwhelming. At least now it is acknowledged and there are a few suggested alternatives but not cures. LA🇨🇦
I’m had fibromyalgia since I was mid twenties. It was triggered by a virus, EBV, I am now 80.
I very truly understand & feel your pain. I'd write so much to share with you but truly DO understand you as I've gone beyond. My faith has pulled me to live these days. Please do take care.
Metformin
I am 23 years old. Live in the UK and was diagnosed with fibromyalgia in august 2022 after experiencing all the symptoms since I was 14 years old… it’s a horrendous condition and I’ve had to quit every job I’ve had including my DREAM job… I now don’t work and struggle daily with horrible symptoms that have already affected my life. Some doctors still don’t believe it’s real either which is so annoying. We get treated like liars and it’s disgusting
Praying for you. I hope you can get your dream job back. Be a spokesperson for this!
I am struggling with my Doctors. I’m too scared to go now.
I have this to don't what to do .
@@Fellyfell Thankyou so much! I have a TikTok account I use to talk about my conditions and treatment options etc.
@@RoxyfromUk I am the same. None seem to listen or want to help when they hear the name “fibromyalgia” it’s horrible. And it’s scary. We live with emergency type symptoms everyday so never know from one to the next of we need emergency help or not. We need more research to be done and a cure in the future!
Fibromyalgia started when I was in my 20’s. I’m 62 now. I went through so many doctors telling me it’s all in my head. Finally in my late 30’s I was diagnosed. But there was no real treatment. I had endometriosis, chronic yeast infections. Became diabetic in my 40 and was diagnosed with diabetic neuropathy in my ribs and other areas. Now have osteoarthritis. It is à challenging everyday. I especially have more pain when the weather changes. Very sensitive to the environment. The flair ups are horrible! Monthly I have a week out of a month that I feel good. And stress exacerbates everything!
Metformin
I am a diabetic also . I have had fibromyalgia for 30 years. Diagnosed. Moved to the UK. They will not accept my diagnosis from another country.
What is diabetic neuropathy in the ribs? How is that diagnosed? I have alot of pain in my ribs
What did they do for it?
@@LibertyLaura1776isn't that a bad drug tho? Side effect wise
Hello from Thailand. It took 14 years before I got diagnosed because I was referred to a Rheumatologist. But prior to the diagnosis I was told I was psychosomatic, stressed and hypochondriac. Fibromyalgia is also not known in Thailand. 😢
That’s sad. They have the internet.
I was diagnosed finally in 2007 after 4 years of fighting the system to be heard. Because I had other illnesses they said it was that. It was only until I went to one Dr and I broke down and said I don't care if you tell me I'm dying but just tell me so I know as I can't live like this anymore. I has a blood test to check inflammation levels and the same day I was asked to go back. I saw a rheumatologist who did the point test and she told me you have fibromyalgia also osteoarthritis in my hands feet and knees. My journey began and its a hard long and sometimes lonely road. I wish every fibro warrior the courage to keep going and know you are not alone ♥️
I use Infra Red Devices and Tourmaline Magnetic Supports to get rid of the Pain !!!! I have a lot of Devices to get rid of the Pain !!!
Metformin
How is arthritis diagnosed?
My rheumatologist said, " there's no cure for fibro, so you don't need to come back. " you can bet I didn't go back. Sad.
My rheumatologist said the same thing to me.
Me too! No support or help just painkillers which drs just wanna dish out like sweeties 🍬 so you get out of the door and make more money from pharmaceutical companies 😮
I had the same comment from my rheumatologist
The RA my primary sent me to called me to tell me she won’t treat fibromyalgia, but I can still be seen. I went bc my primary wanted me to. She touched my foot and asked me two questions and said she looked over my notes from all the specialists I’ve seen and she agreed with the diagnosis. So that was it bc she won’t treat pts with fibro.
They even had a sign at the front desk stating that. I couldn’t believe it. I also have auto immune issues per my neurologist, but I guess that didn’t matter. So glad my pcp has been amazing and never made feel crazy.
I've had fibromyalgia over 13 years. I'm praying people, friends & family understand. Everyday I suffer which they don't understand.
You can get rid of the pain using infra red Devices !!!! I also wear a Tourmaline Magnetic Belt in bed which heats my back up !!!! But Nobody understands or believes you anyway, so you have to cure yourself !!!! There are loads of Devices to cure it, like Cold Lasers, Ultrasound, Infra Red Cavitation Devices and Tourmaline Magnetic Supports !!!! I take pain Killers and to wake myself up I take a Caffeine Tablet and have a pot of tea or coffee !!!!
Me too and the same love and hugs to you
Metformin
@@LibertyLaura1776 what does that help with ?
My words have disappeared
I'm 68 years young. In 2001 I got diagnosed. During my late 30s-40s I was a bodybuilder and ballet dancer. Plus working nights full time for the USPS. I was making huge strides and reach my goals up the ladder. When I went to the gym to start prepping for my next contest I suddenly fell like I had over trained, tired hurting I knew something was wrong. That ended my bodybuilding forever. The real thing I don't understand the connection with weight gain. Has there been any research and studies about the connection on this part of the symptoms? I am not the only one who has this happen. Most of my Fibromyalgia friends have gain a lot of weight.
Thanks for helping bring this disease out of the trash can and supporting us.
Linda
Weight gain is more likely from the medications prescribed. I was always 135lbs 5'4 and went on cymbalta a few years ago and now weigh around 180lbs.
I’ve been diagnosed with fibromyalgia since 2001. And yes, it is a nightmare. I am now 74. I was on opioids for 22 years and finally got off them this year with the help of my PCP. He was a godsend in that respect. I am now taking Gabapentin and OTC medication. Thankfully I have not had a debilitating bout with fibromyalgia since being weaned off the opioid medication.
In response to why I think I have gained some weight is the fact that when I don’t feel good I think if I’ll just eat something I will feel better. Doesn’t usually make me feel good, just makes me feel fat😢!
I watched my daughter go from an active little girl always out working with her horse to curling in a ball watching old black and white reruns of Andy Griffith show. She was only about 12 when she was diagnosed. We tried everything to help her but nothing worked. We were so blessed to have doctors that realized what she had. I spent countless hours on the computer doing research trying so hard to find help for her. She is now 29 and married with kids and it has not been an easy thing to do. We help a lot with the kids and very grateful for the opportunity. All three of my kids have it to one degree or another but she got it really bad. My son found a natural doctor where he was living with his wife and got tremendous help but my younger daughter has so many other things with it that she can't take a lot of meds and supplements that he could take. People don't see what she is going through so they don't believe she has it. Even after all these years because they only see her when she having a "good" day. It is so frustrating.
Metformin
@@LibertyLaura1776 Thanks, I will mention it to her.
I am currently suffering from fibromyalgia myself . My doctor told me my symptoms sounded like fibromyalgia. That was a year ago and I am still suffering with no further help from him. I just recently went back with burning sensations across my shoulders and under my arm pits, fatigue and my arms and legs going numb and or tingling. I was also diagnosed with graves disease several years ago. He made me feel like I was a hypochondriac and told me was going to leave me alone because there was no cure or remedy for it. I'm 56 yrs young and this has affected my quality of life. I want answers, a second opinion and some genuine help. Thanks Doctor Oz it helps hearing from others with the same issues.
Since 2012 after surgeries I was diagnosed with Fibromyalgia and no one u derstands. Worsening. I want my life back! Disabled and in chronic pain 24/7. Migraines, Ulcers, Injections, Acupuncture, Chiropractic Treatments, PT causes more pain up to a week. Flu like symptoms, feel like I’m beaten u daily, stomach issues, bladder, pelvic pain, so tired, muscle spasms, heavy leg pain, feet, spine, neck, numbness, prickly pains, all over. Stress from angry husband makes me worse. It is just devastating!
I hear you x 🥰
Also stomach issues, muscles spasms too!
I’ve had Fibromyalgia since I was around 8 yrs old. My mom took me to the pediatrician a few times cause I was crippled in pain & wanted to stay in bed. I kept telling her my body hurts, especially my thighs & hamstring area. Every time I’d ride my bike lots, usually on the weekends, then Monday I had a hard time getting up! My mom & the pediatrician had tagged me as lazy & not wanting to go to school, but I loved school back in grade school. I had many friends then. Eventually the pediatrician diagnosed me with “growing pains”. I’m almost 60 yrs old now & I must be growing big time cause I’m still having those pains but far more severe now & daily now, pretty much 24/7. Once in a blue moon I’ll have a day or maybe two if I’m lucky where I can get more movement in. That’s a rare occurrence now though.
The first doctor that mentioned that I could have fibro was in 2006 at age 42! He prescribed me a low dose benzo… 1mg PRN. I miss the person I was when I was seeing that particular doctor. For the first time in my life I was finally feeling normal! Even took a job promotion which moved me out of state. Ever since then I have been unable to find another doctor to follow his protocol for me. I do not understand how any doctor can watch a patient suffer, when there is a definite treatment/med for that patient that will help them regain their life/mobility/cognitive functioning again??? I’m sooo sick of the excuses doctors give me!!! It’s what works for ME! It’s what makes ME better. I’m not everyone else, nor is everyone else me. Fibromyalgia is not a cookie cutter illness, so the treatments aren’t going to be either.
I’m glad to hear Dr. Oz call it what it truly is though… a disease. A progressive one too! It’s not just an illness or a chronic condition!!! I’m living proof of that. It’s the stress it puts on our bodies from breaking down our musculoskeletal system that allows other illnesses to tag-on. I know I have costochondritis cause I was hospitalized for 3 days thinking I was having a heart attack back in 1998. All kinds of testing, nuclear testing, scans, monitors, etc… for THREE days to only be told nothing was wrong with me??? And now if I wear a bra? Oh what a nightmare that turns into. I feel like a boa is squeezing me around my rib cage area.
In 2013 I had to go to another doctor because my low back & hips felt like they were about to snap apart or crumble. X-rays revealed then that I now also have yet another condition called “Ankylosing Spondylitis”. I’m still fighting with my current practitioner telling me that low dose benzodiazepine cannot be prescribed where pain is present. That’s a bunch of horse pooey!!! I’m so tired of hearing all the nonsense! Like help me plz, stop just watching me struggle already!!! I cannot understand what is going on in the medical community these days? It’s absolutely insane but doctors want to say it’s the fibro patients that are the insane ones? How am I insane because I’m advocating for my own health & well being? How are these doctors not insane for denying me the help that I know for a fact works for me? Oh & they talk to me as if I’m some drug addict. Everyone says, “Well find another doctor that will help you.” 😂 If only! It’s like they’re all reading from the same manual… “It’s all in your head”, “We don’t prescribe those meds at this clinic”, “You need an antidepressant”, “You need to eat a vegan diet” (Which I have tried & tried but every time I end up gaining weight from bloating & plant based causes me to become so inflamed).
I honestly don’t know what to do anymore other than go to the nearest dispensary & start that whole protocol again. Then I’ll have to listen to the doctor about that! 🤦♀️🙏🏼🤦♀️
I've been going through this exact same stuff...constant pain in ribs...like a snake and the arthritis ...now they want to put me on anti depressing drugs...I'm so allergic to that crap...benzos work with oxy and I can funtion...but no...they'd rather watch me suffer...I'm at my end...even thoughts of ending my life are next...I hate my drs...condescending jerks who are so disrespectful ...what next?
@@debisigward9900 idk what state you’re in but if your local dispensary has Delta8 THC-O (I like the strawberry flavored one)… try that. I prefer the oil, but they sell vapes, gummies & other forms. A few drops under the tongue (am, pm or as needed) & you can mix it with your favorite pain reliever lotion too. I use an ointment called “Blue Stop”. Hope this helps.🙏🏼
I have it
Pregablin or Gabapentin. Not Xanax.
all...and all over again...
My Chiropractor that understands the correlation between the nerve signals from the brain which travel through the neck helped me so much. Light exercises and stretching are crucial to manage my pain. Also I cut out inflammatory foods including meat & dairy. Managing stress is important.
@linasofit1801,
I'm so glad you've found great relief! I'm still working on it... But as a caveat to your elimination diet, be aware that I was vegetarian for years and eventually hit an energy wall on a mountain hike (pre-Fibro) and literally had to be carried the rest of the way up and then down the mountain... 🧱 😢
My doctor ran blood tests for the sudden loss of energy and complete and absolute fatigue...
He discovered I was severely anemic! 😮 He gave me uron pills, but also, against what I wanted, I had to start incorporating red meats.
Lo and behold, my energy levels soared!!!
Now, years later and having even more pain than my normal Fibro, and gaining weight, I tried KETO & eliminated glutens like refined carbs, sugars.
WOW!!! Ina few weeks, I lost 10 lbs & so quickly! The bloating and puffiness are disappearing too! 😅
So, I would highly suggest you reduce or eliminate refined carbs and sugars and keep the meat in your diet for less inflammation and keeping your energy levels high and nutrients.
I'm hearing this from many Functional Medicine & other doctors on YT as well!
Wishing you wellness, Namaste 🙏 🕊
Meat is not inflammatory! Processed carbs, refined sugars, de natured, overly processed foods with fillers and chemicals, alcohol, too much caffeine, dairy products for some, especially with added sugar…….under exercised, or over exercised, weather changes such as heat, humidity and freezing cold, rain……..drugs both illegal and pharma…there is a myriad of other things can trigger fibro…………Mine was extremely exacerbated by an accident in 2000…a broken pelvis with a 5 hr surgery and a month in the hospital triggered my fibro to the extreme….it’s a lifelong journey of healing..
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That definitely doesn't work for everyone, unfortunately
@@LibertyLaura1776how does that help? X
Am now 38, at 35 I had Covid. I was hospitalized for 2 months in December 2020. Now June 2023 I have being leaving in pain. Just few months ago I was told I have fibromyalgia. Me having Covid was very, very,very traumatic. I was intubate and had a tracheotomy. I never experienced this before. At the beginning I thought is because I was in the hospital for so long in coma. But am 3 years into it, and still dealing with this.
I have being told is all in my head. Is so frustrating because am still in pain and family thinks is all in my head is very hard..
It's NOT in your head. And you are not alone. ❤
Please look into TCM for help. They are really the only healthcare focused on healing as opposed to living with this condition.
Exactly especially when you have PTSD no one believe you . They say it's all in your mind covid hit me to the point where I had to sleep sitting up every muscle was affected accept my eyes.
My symptoms started after my sons birth. He is my only child due to my excruciating pain since his birth. I have finally been diagnosed with fibromyalgia and rheumatoid arthritis. I’m still not really getting any help. I would never ever hurt myself however I’m looking forward to my end. I can’t wait to be out of pain one day. The mental is just as bad I’m angry and emotional all the time as well.
I was wondering if you found any relief. The pain is unbearable. I have been diagnosed with RA & Fibromyalgia.
Have you tried Duoxetine or other nerve prescriptions?
Muscle aches, stiffness, cant sit or stand for prolong periods, unable to formulate thoughts into words etc… Also having this for illness for over a decade I can also attest to the changes in barometric pressure triggering flares
I hoped to see more recovery stories in the comments.
I was diagnosed 25 years ago. I was going through a divorce i didnt want and my health was poor.
I remember laying in bed with about 5 ice packs. It lasted about a year or more
but the most severe intensity was in the beginning. It's been gone for 25 years. In fact i forgot about it until my sister described her symptoms to me.
Thank you for this video and i hope more people will post recovery stories. For all still suffering, don't give up. Stay strong.
This episode is from 2013. It's a shame that nothing has changed regarding recognizing and treating Fibromyalgia (and other similar and often comorbid conditions). "Health Care" is one of the biggest rackets ever.
It’s Not Healthcare! It’s sickness care!
This is from 2013??? It is so sad!!! Ur absolutely right!! Wow!
Thank you Dr. OZ Show for this topic. I was diagnosed in 1997. I was 34 years old. However, I've hurt for years with no idea what actually triggered it. My mom hurt for years, too and never had a diagnosis. My coworkers were cruel because I called in to work so often and my husband thought I was being lazy.
It was and is horrible. I'm on permanent disability and take a mix of medications that work for me with a few extra to help me through flare-ups. I was told that a disability diagnosis with fibro in the mix is the worst thing you can have in your medical history. That, too, I hope has changed.
Barometric Pressure effects me and people think it's just in my head.
My mom was pegged as a hypochondriac. She passed in 1999 from leukemia, but suffered undiagnosed for decades of fibro.
I hope doctors see this that still don't believe. I saw a rheumatologist back in 2000. He said, straight to my face i had nothing wrong and i needed to stop making appointments for things that aren't there. Later, I found out that he finally believed in fibromyalgia. I've never received an apology from him, but I hope he remembered being so cruel to me during my appointment with him.
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It is linked to leukemia and hodkinsons I advice to get tested for Asperger's add the reason why mcas take vitamin c drips
why do you keep writing metformin shouldn’t you be writing low dose naltrexone
Yes, takes a long time to get diagnosed. It took me about 10 years to get diagnosed. Why I was to young to have anything wrong and the Dr did not believe in fibromyalgia.
I am a fibromyalgia patient. I need to talk desperately to this dr.ple. thanks.
It took me years and myltiple doctors to get a diagnosis. I lost over 100 lb, had my implants removed, my iud removed and changedmy diet.m; nothing worked. I thought i was crazy and just being a baby ut the pain, fatigue and utter exhaustion was very real. I finally just got my diagnosis a month and a half ago. Im hoping to find some semblance of relief.
I've been suffering 5 long years. I have exhausted neurologist after neurologist and test after test with no answers for certain. My quality of life isn't worth living. I feel so hopeless. I am so tired of pain. I am literally a hermit now and haven't been able to work.I am also a single mother and am inches away from becoming homeless because of my suffering. This makes a lot of sense to me. I will soon be seeing a rheumatologist. Pray for me please that I finally get some answers and help.
Mine was triggered by an awful bout of Lyme Disease..this was back before anyone knew much about Lyme so I had it a while before getting a diagnosis. It was also confusing because right before this I was hospitalized with pre-eclampsia and a high risk twin pregnancy in which I had renal failure. After healing from the Lyme, I kept getting what I thought were various viruses and the flu over and over.
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Me too, after 2 tic bites & bullseye rash...which made me so exhausted. I couldnt make it to the clinic. The tests for lyme ate not dependable. They care more about dogs and horses getting it, then humans.
Fibromyalgia can be an Autoimmune Condition related to Aluminum or Mercury (Thimerosal) Toxicity.
And here in Australia unless your in a health care fund all fillings children everyone were to be mercury even though banned in so many countries
@@clarissamonaghan7218 In the US, mercury dental amalgam was banned in 1840’s but some kept it going and created the American Dental Association. A great documentary is, Evidence of Harm.
Fibromyalgia IS a autoimmune disease, caused by mcas.
Grinding and heat on mercury amalgam filling releases mercury vapor directly through the blood brain barrier. Also, root canals. You can find info on YT exposing both.
I got diagnosed with fibromyalgia after a tetanus jab
This is my journey as well, and infuriates me as well. It took me 10 years to find out I have fibromyalgia.! 10 years!! I was persistent. I refused to go away. I kept going back and speaking up and finding resources to keep fighting for myself.
When I was diagnosed in 2018, I came to terms with it, and came up with a new plan for living with this.
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Soooo sorry that was your experience i went through the same thing to all of us stand strong God bless all
Mine started with a massive house move resulting in glandular fever that I never fully recovered from. I then had an 18-month descent into physical and mental hell; I thought I was losing my mind; my cognitive function and memory were so bad I was terrified I had early onset dementia. After lots of test I was referred to a Rheumatologist and diagnosed. I'm not 5 years in and still struggling. My memory and cognitive function are still awful, chronic pain & fatigue, sleep disturbance, I can't work or maintain independent living and honestly struggle to feel a sense of purpose. It frustrates me that modern medicine treats symptoms and not causes because I want to overcome this awful condition. I feel like I am literally dragging myself around 24/7
Same here
I so understand that, and know how you feel, sending a gentle big hug ♥️
I had fibromyalgia for some years but just got my diagnosis. It’s horrible and so painful. I also have weakness in my legs, when it happens I can hardly walk or stand up. It usually comes in the evening or when I’ve been walking for a little while. It feels like the legs just disappears, I also feel the weakness in my arms. When I tell my family and friends this and how much pain I’m in they say oh that can not be true or you must be positive and I heard a person who heals from this. I do t feel like people believe me
Sounds like myasthenia gravis, which I have. Ask your doctor about it.
Ive had fibro since at least 18 MONTHS OLD. tested positive for EB during a 3 week hospital stay.
I've never had joint pain. It's in the connective tissue. Tendons and ligaments. Inches AWAY from the joints and connecting to joints. With trp's in the muscle tissue. ( Peas to grapes with satellites)
My DX came at 23 , 1988, when my doc called in a doc from Harvard University to see me after my legs went out after I had my first child a week earlier. Pelvic trauma)
He had just completed as lead physician, a ten year study on this mystery disorder.
I couldn't believe he said.. "I know what's wrong with you. "
Sent me to Dr Gorman , rheumatologist extrordinaire..
Put me through 6 months of intense PT and phsyco therapy ( which determined i had no depression or phsyco somatic causation of symptoms. And I continue to this day with every 5 years, phsyce eval, and in PT every year for 6 weeks to address any compensating muscles and strengthening of weak muscles. Retraining .. strength training, cardio, light stretch, and massage to address trp's.
My diet is clean, I eat only what was available prior to 1900. So no prepackaged military grade rations. Lol full of preservatives and fake ingredients.
My pain at 57 is no worse than at 4 years old. And I know any trauma needs to be addressed after a fall, or stub of toe.. to prevent compensating and reflex dystrophy.
As a child , things I did intuitively are now mainstream treatment.
I have run support groups to encourage GETTING UP UPON AWAKENING. don't allow for the flood of pain that happens when you are wide awake. Just wake up and get up. This stops 50 percent of pain from flooding in. ( Adrenaline) and making it harder to get up and easier to stay in bed.
It's not deteriorating unless you don't move, weak muscles hurt more than for muscles.
I take no meds except low dose opiates I use to do my PT at home or in person. Everyday, I do 45 minutes of whatever uses every muscle in my body. Some days it's "snow angels, others it's a air jogger machine, a walk through the woods outback, up in the lake down the street. This induces my own adrenaline, dopamine, oxytocin and ( lol fibro fog)
Docs all my life where fascinated by my record. Including growing up in Woburn Ma.. * A Civil Action* where we had a cluster of luekemia and other cancers and if my issue was the lower end of exposures .. as most I grew up with including two siblings were doing drugs in elementary school. And became addicts by graduation.
I believe my research shows an exposure during government bio testing late 60s early 70s all down the east coast by the research facility at the time in Florida. The prequel to The real Anthony Fouci, by RKJr..
By where they mutated a parent virus 6 ways and sprayed it mosquito repellant in low income areas. NeighborHoods, bus stations, train stations and a few airport terminals to PR , DR and Other countries that relatives would come and go regularly.
Fibromyalgia, MS, Lupus, AIDS, Chronic FATIGUE/ ME. DEPENDANT upon genetics and what the body could fight.
The research was to figure out why a few survived bubonic plague but many more died. Some got sick some got no symptoms many died.
The difference was if one or both or neither had certain genes. If none, they died, if one you get sick but not die, if both parents had it, you barely got sick and survived.. those were the few who took care of the rest.
I do not remember the gene, but the parent virus used was brucellus, that was mutated.
As children we were allowed to run behind these trucks in fog you couldn't see your hand in front of your face. That smelled not like deet, but kettle corn.
In Woburn, they built Cummings park, dig out the ground, dump toxic waste, pour concrete foundations .. we played in that water. It looked like the Caribbean. With dead birds trying to nest in the sides of the digs.
3 doctor appointments to get a diagnosis??? , try 9 years!. Praying every day that a diagnosis would come. Then when it does you are told by some doctors: there's no cure and most Dr's , Physios, specialists (no matter what you go to see them for ' waste of time coming here, *fixing that* (whatever 'that' might be ) is probably because of fibro and wont make much difference'. i.e go away, we're not wasting time & money even looking at you, you're on the bin heap. I've been referred to so many departments, only one who treated me as they would with any other patient was dermatology. The doctor and each nurse were so lovely to me I cried, they asked why and I said everyone else when they hear that F word (fibro) sends me packing. They said you are hear because of a skin condition and thats what we're going to help you with, and fhey did, it cant be cured but I now have the right creams etc so when it flares up, it isn't as bad usually. Having my skin condition usually manageable has improved my life a bit, if every department just treated their condition my life could have been so much easier. Early menopause age 32 brought mine on.
I was just diagnosed after having chronic pain issues for over 10 years. Now that I know what it is I’m hoping it will be easier to find was to handle it.
John Sarno, Howard Schubiner, Alan Gordon, Bruce Lipton.. mind body
I’ve had it 21 yrs. Back in the day I had a few old doctors tell me I was just imagining it, get more sleep etc. I persisted because I knew my body and that something was not right. I’d always been very athletic. Never had pains. Suddenly I couldn’t move. Took me 5 yrs to get a diagnoses. The rheumatologist figured it out in 2 minutes. Forever grateful. And it’s much more manageable today than 21 yrs ago. there’s something so freeing just having the diagnoses and knowing you’re not crazy like they make you feel even though you know your own body.
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13:16 This explanation of the augmented pain is correct if you listen to his words, but his visual display is wrong. The whole body isn’t usually in extreme pain all the time. It moves around. The intensity increases in a particular area and maybe one other. The symptoms ebb and flow.
Some times if I smack my hand on the counter, I may simply say ouch and be fine. Another day my fingertips feel raw and sting every time I gently touch anything. Another day, I can be walking fine and instantly feel shooting pains in my right leg and left elbow. It can last for a few days or just a few minutes. It’s all so random.
That’s exactly my experience. Definitely can feel it moving around.
I was diagnosed yesterday after years of unexplainable pain...😢
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Doctor Oz, I do not know why you are so shocked, today’s doctors have so many patients in a day, they don’t have the time to listen!! They do not give you any pain meds to help you function during the day. And that is sickening and not fair to people that need meds. My body pain keeps me up all night, my legs ache all night and I wake myself up from trying to calm the pain down. I’ve had this since I’m 30 years old. I have had body pain for 32 years of my life!! I gave up on doctors, they all say that you need to get out more and do things, you are probably depressed. Yes, depression sets in when you are horrible pain all the time. Explaining this to every doctor that you go is frustrating. Getting a new doctor to understand that………..My chronic pain caused my depression! My depression did not cause my chronic pain. Therefore, it is not in my head!!
I hear you, I'm so the same
Western doctors suck. Eastern/Integrative/Holistic modalities are the way.
It took all of that for many years, and I finally just got diagnosed with fibromyalgia
Makes you suicuidal😢 frustarting no quality of life
I'm in pain all time I sometimes am so excausted all time yet Im lucky if get two hours sleep I can't get out bed I wake up like I never went bed but bloods show I'm run down all time and I always have chest fibremo infections my back so sore I hate when I say I'm sore again my family sick it I'm sick it but I finally got word from doctor that I two had fibremyoliga glad u brought up the awareness more awareness needs be done for women or men with this crippling condition
Impressive video. It's one of the best I've seen .
Going to a chiropractor helped me enough to not need to be on medication. After months of being in pain, and nothing being found wrong with me, I too thought I was going crazy. I try to visit chiropractor at least quartly to keep me functioning.
Thank you!
YES ALL THE QUESTIONS AT THE BEGINNING YES YES YES AND CAN'T GET THE DR TO DO ANYTHING
Hi Dr , would U please make an episode, as well, about purpura...
Thanks...
You missed 2symptoms.cant sleep in morning to finish rest.also burning hot pain in all joints.elbows ,shoulder joints wrists.
I was diagnosed in my late 20 and didn't believe I have that but dr.tell me it's alot because of stress and I was in war but I still didn't believe then around my 40 I start feeling worse . I'm trying to be positive in my head. Good luck to all who have this condition
I have Fibromyalgia as well and am in excruciating pain head to toe. I do take duloxetin but nothing has taken the pain away.
I'm a 61 year old guy and have had fibromyalgia for life. My doctor literally told me I'm a hypochondriac. He suggested to me to have a positive outlook on life, practice a religion, see a psychologist or take antidepressants.
I'm sorry your doctor is an idiot. Find a good Rheumatologists near your age or older. I was misdiagnosed the first 2 years I had FM by a different doctor. My boss suggested I go to see her Rheumatologists. She has severe Rheumatoid Arthritis.
Her doctor diagnosed me on my first visit. He has been my doctor for 32 of the 34 years I've had FM. He is the kindest, most caring doctor I have ever seen. There are others like him out there, and you might not be as lucky at finding a great doctor like I have, but don't stop searching! You deserve better than the one you have!
Try PRISTÌQUE
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@@LibertyLaura1776 I took metformin for at least a year for pre diabetes but it didn't help with my fibromyalgia.
@@LibertyLaura1776why do you keep repeating that 😅
#1 please run for office again! I’m from Wisconsin!
2. I have fibromyalgia since I was in my early twenties and my dr. Is very good but he’s retiring in March and my husband has MS for about almost 20 years and he’s on the top Acura I think and we have the same family dr. Where can I get the PHA serum and how much serum do you get and what is the cost?
I’ve been dealing with this since 2008 and trying to find a Dr that is compassionate and understanding has been my biggest struggle! It’s disheartening when you have a Dr make you feel it’s in your head and you have family that doesn’t understand your constant pain!
In my case it all began in 02 with a tick bite, the bullseye rash, and the Doctor knew for sure it was Lyme Disease, but chose not to treat it. A year or two later the doctor said Fibromyalgia, then still yet a year or two later, Lupus. Now four kinds of Arthritis. I was so sick for so long, my body went into atrophy, it's only by God's grace that I'm alive. This appears to be epidemic, but no one believes it's real, except those who have it.I Need HELP! Is there any help?
I wish I can find a treatment to help me with my pain with Fibromaigia.
Dr. Oz buenos días. Felicitaciones por sus conocimientos y sus programas que son de gran orientación en la salud. Cómo podríamos ver en RUclips con tradición al español. Cordial saludo de Salomón Rodríguez. Lo veo desde Colombia.
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Fibromyalgia is a progressive disease. It can cause Neuropathy and is an autoimmune and nerve condition that is embedded in our genomes. It causes our neurons in our brain that trigger and misfires the brain to neuron response is to think we are in constant pain. I have nerve damage, which is a beast of it's own. I stood up for myself and persisted for 2 years. I knew what I had but don't self diagnose. Talk to your doc. My Doc now not only works with me however also my team of specialists. It is exhausting and Neoropathy as well as tendon and muscular atrophy. So painful. I wish this lady the best. ❤😊
I’ve had Fibromyalgia for decades. The pain and fatigue kept me from being an active mother when my kids were young. Okay great, if you have the diagnosis doesn’t mean you’re going to feel better. It’s very hard to get pain medication that’s effective. Advil and Tylenol
are worthless. I’ve been in a terrible flare-up for months. Spending months in bed is not
living! Yes, depression and PTSD is part of the problem. Widespread extreme pain, headaches,
IBS, terrible sleep and overweight are many of the symptoms. All the blood tests come out negative. That’s great but doesn’t change the
severe pain.
I am 74 years old and I cannot remember a truly good day in my life because of Fibromyalgia.
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@@LibertyLaura1776metformin?Medikament??
I know how you feel.People telling you your crazy or lazy and don't want to work is just as bad as the fibro
So you just fake being ok
What is the treatment plan 😮
Low dose naltrexone works for me
I was diagnosed with this many years ago and now have been diagnosed with a connective tissue disorder. Could they be one and the same?
I was diagnosed with chronic fatigue and Fibromyalgia 20 years ago and just this year rheumatologist diagnosed me with Elher Danlos or hEDS it feels like it's not even a relief to know because it seems nothing helps for pain or any symptoms...I am still fighting for disability on top of having had back surgery and other issues.
Hi does fibromyalgia feel like a noisy brain, or nerve pain?
I was diagnosed in 2009 but I had it since I was a teenager
Had it over 20 years, At UPMC pain Center. Pittsburgh, PA
I had childhood trauma and then had an accident in 2013 and I fell on my back. That was when I started feeling widespread pain, burning sensations everywhere, brain fog, headaches, dry eyes, and chronic fatigue. This is what helps me: stetching, light exercise, Vitamin B for energy, magnesium cream, and magnesium tablets, as well as a heatpack / electric blanket, spa, or sauna.
The rheumatologist in our city have banded together and agreed not to see fibro patients saying it is not a rhematological. Condition. Some medical provider needs to own this disease?
Immunologist
They need to be ran out of town
Where do you live?
It took a little over 4 years and about 5 different doctors before I got a diagnosis. I’ve had it for 24 years now. It is most definitely life changing. I think I had every test possible prior to a diagnosis. It was so frustrating. I deal with pretty much all of these symptoms that go along with Fibro. It’s seems to me personally that the longer I deal with this the worse the symptoms get and the more symptoms I get. How do people get to a point where they get the symptoms under control?
26 years since a fall though it's linked to Asperger's add hypomobility if you have these myself included it's mcas
We need to be heard and stand up for ourselves. In medical schools should study and learn about fibromyalgia.
Does anyone have the definition of OMT? She didn’t fully explain it and those look like chiropractic moves…. 🧘🏽
Would have loved for my Fibro to have been diagnosed in 3 visits. More like 3 years of monthly visits😢
Right
There is no pharmaceutically profitable outcome for diagnoses.
Pregablin
I wish that social security would acknowledge it as a debilitating disease and there is no cure. I can’t work.
They denied my disability because they don't believe in fibromyalgia . I can't work either. I do UBER BECAUSE ITS MY OWN SCHEDULE. very sad to not be able to work to survive. People hate you because they don't understand you.
8:19 I finally was able to meet with the right neurologist. I had suspected MS, Multiple Sclerosis, but the Neurologist had something else in mind. Within a 10-15 minute discussion, he told me that he didn’t think that I had MS and he was pretty certain what I had. Within the next two days he had a full work up completed. I came back a month later and he was able to rule out MS and confirm Fibromyalgia. His comment was that he was going to get me on a treatment that would get me back in the game. I found this very empowering. I felt that now that I could name it, I could address it.
What were your treatments that helped?
@@dee81877 I was already on Gabapentin pre diagnosis. This neurologist put me on Amitriptyline and I felt a significant initial improvement. However, I had to switch to another neurologist who reviewed the record and was concerned that I had a father and paternal grandmother who suffered dementia in their older years. At this time (2016), there were studies that associated Amitriptyline with dementia. It was a correlation study, not a causation study. Did the medication cause the dementia, or were people predisposed to dementia more likely to be prescribed the medication. Anyway, out of an abundance of caution, we switched to DUloxitine. That was an effective move , but didn’t completely take care of pain. Later we added pregabelin (Lyrica). Then we reduced and phased out the Gabapentin. Not sure if this was the best move or not. I wonder if some kind of balance in between would be ideal. The best medication was Aimovig for my migraines. One shot in the belly every four weeks. There was a significant decrease in migraines. I still have quite a few, but not daily anymore.
Other therapies that are great that are not from the neurologist are constant stretching and movement. Epsom salt soaks. Hydrotherapy. Massage. Myofascial release is amazing as well as occipital release. Over time one builds up their own menu of tips and tricks. Massage the scalp with the kind of hair brush with the plastic bristles with the tiny round balls on the tips to help stave off a migraine.
I’ve just recently been diagnosed with SLE (Lupus) and fibromyalgia. What I want to know is anyone with fibromyalgia, have you found something that helps or gives you relief?? Does anything work? Any medication or routines? Anything?
I have brain fog, sore calf muscles, sore quads, tingles in my feet and hands at times, sensitivity to cold, lately headaches for 48hours even with nurofen. My lupus affects my joints only at this point, particularly my knees.
I’m on hydroxychloroquine 200mg for the lupus.
I have myofascial pain syndrome and chronic migraines and I’m told all the time the pain is in in my head. I have many symptoms similar to fibromyalgia. I wish myofascial pain syndrome would be talked about more. It’s very isolating and I believe similar to how many with fibromyalgia may feel. 😢 I have had a Nerologist tell me “I think you have fibromyalgia” but i personally do not have pain all over my body though.
Fibromyalgia is a syndrome of many symptoms. If you have more than just muscle pain, it's more likely you have Fibromyalgia.
I have both myofascial pain syndrome and fibromyalgia. Sound like you have fibromyalgia as well.
Metformin
Listen to Dr. Genevera Liptan who will help you understand that muscles and fascia are both affected
A refreshing show. Im in the UK and I've had fibromyalgia for over 14 years. Its horrendous and devastating. Im sick of it. Im also disgusted how "friends" still dont believe me.
The UK and gp,s do Not recognise FYBROMYALGIA at all. I understand completely. Its horrible to be treated so horribly. I transfered my medical records to the UK after I moved here. They will not recognise it at all. I had my clothes jerked down to my knee,s by the gp while she pushed her index finger into my skin and loudly asked me does it hurt here? How about here? I have been hung up on the phone several times. It was so bad I have to take my husband in the office with me if I go to the doctor. I am from America originally. They are cruel to me here. I have never ever been treated like this from a doctor. Its very stressfull. I am housebound now.
@@debrandw246I’m so sorry that you have been treated this way that is unacceptable 😢 I hope things got better for better? Xx
I was diagnosed with Fibromyalgia 24 years ago at the age of 33. After pain meds. Lyrica and so many anti inflammation meds. I gave up on the meds. Haven't had a pain free day in all these years.
Is there any connection between premature births and fibromyalgia
That’s me stuck in bed everyday the pain is horrendous.i was diagnosed 10 years ago,hate trying too explain it too people ,I was someone with 3 jobs never sat down at all always busy busy .not now 5 mins walk I’m exhausted pain and fatigue floor me 😢
I had fibromyalgia for 10 yrs.before diagnosed.that was 1983 to 1994.did so much to my body,I still live with the after effects today.2023.
My fibro didn't start until after I had a child and had spinal block done for my c-section. Wonder if it damages something in sensation center when feeling reactivates
Fibromyalgiachanged my life for worse
I've had it since I was 30, I am 83 now !!!
I completely understand having to have family members accompany me to confirm what I’m saying is true and no, I’m not going nuts.
On the maternal side of my family had: my aunt - lupus, fibromyalgia & arthritis
My mom: arthritis, and migraines - passing of pancreatic cancer.
My next aunt: had dementia/Alzheimer’s
So, my GI was the one Dr who wanted me to take several blood test. I was going to her via my pulmonologist. She took so many tests, that I had a autoimmune disease & lupus come up. It’s in my family - for years my aunt suffered; bc of her lupus & arthritis. How they all survived into their 90’s still amazes me.
But my GI Dr??? Im thankful of her.
Took 8 years and 20 doctors to finally diagnose me. Rheumatology dont know jack about fibro fyi. Also, neurology looked at me crazy. Pain Management clinic diagnosed me.
I have fibromyalgia and I was lucky enough to figure it out on my own. I then went to a doctor and told them I believe I might have it and they were able to just confirm. The things that changed my life since then are diet and exercise. The days where I feel like I can't get out of bed or walk are the days I really need to take my butt to the gym. Even if I can only manage to do a warmup and stretch I have found it dramatically improves my symptoms. I also take advantage of my "good days" and work on strengthening my muscles to make everyday tasks less exhausting. In regard to diet, I try to avoid sugar and carbs because they tend to cause excess inflammation. When I get lazy and start to slip from this I get a brutal reminder of why I do it in the first place. I definitely don't feel perfect by any means, but I can have a somewhat normal life by doing these "simple" things.
Get to tbe gym? I don't think so.😉
I think you may have miss diagnosed yourself . Not being rude but with fibro the gym is a swear word it's just not going to happen. I've had it for over 30 yrs, I have learnt that if my body neads to rest then that is what I do. Pushing yourself to do things your boy can't cope with is not going to help you in the long run
I have this along with multiple sclerosis and I have reached the point where I’m done. It’s not worth it. Life is terrible when you have fibromyalgia and no one wants to help. I just want the pain to stop. My MS isn’t really the problem it’s the Fibromyalgia. I’m 70 and have had it since the later 1980. I see no way out.😢😢😢
I am a retired RN and had the multiple symptoms years before diagnosis by a wonderful VA nurse practitioner. I was diagnosed with rheumatoid arthritis and lupus in my 40's. By a rheumatologist.
Do any of you also have a all over body redness/inflammation of tissue? Not so much a rash but redness and achiness, hurting. But it does show up as a rash on my face. As the redness/inflammation spread slowly down my arms, symmetrically, it eventually attacked the elbows. Same happening to upper legs and now knees, heading down to my ankles. Thanks
I also had a bullseye tick bite at 15
I've been dx'd w Fibromayalgia for ~ 10 years. Personally speaking, I have to say that if someone tried that OMT on me it would shut me down bc it would hurt so much. I cannot enjoy even a simple massage. My muscles and skin are too hypersensitive to relax and enjoy. It would end up feeling like big pain.
I've had it for years and it getting worse I wish I could get some help
So how did he make her better again because i have not been mad better. I am so sick and hurting all the time. I have been told i have fibromyalgiaand there are no treatments for it.
I am a man and had fibromyalgia for 10 years and saw 7 doctors with no diagnosis. I finally went online and it was obvious to me I had fibromyalgia so I made an appointment with a rheumatologist and she immediately diagnosed me with fibromyalgia. The medications were ineffective and one thing that helped a lot was severely limiting starches and sugars which helped a lot.
Metformin eliminated my symptoms. I don’t have diabetes
What do you take for it ?????
I have fibromyalgia. I’m 53 5 feet tall and I have a daughter who is 34 and she has severe cerebral palsy . My daughter is like having an eight month old in a woman size body. She is 5’2 138 pounds. She is in a wheelchair. Basically I live for 2 people.
I have osteoarthritis both my knees and bone to bone. My fingers are swollen at the joints and my fingers are becoming deformed. I wish to lay down but I’m too busy.
Try metformin