Wow super impressed you were able to make it through medical school with the illness. Absolutely no way I could even make it through a few days. Great insight.
Thank you very much for this video. It sounds like my own stor and helps a lot to understand what is going on in my body. . I wish more doctors would understand this system. I am suffering celiac disease (not diagnosed for a very long time) hashimoto , inflammations, heart problems, PEM, diziness…and still need to waste my less energy to explain our authorities that it is not a matter of will that I can“t get back to work, sports, social life etc. and that my problem is not a depression. This costs so much energy which I don’t have. and which I need to turn around the snowball system. Greetings from germany 🙏🏻
Thank you so much for sharing your knowledge with us and speaking slowly and clearly and using language that is easy to understand even for non-native speakers like me.
So good! Very educational and it seems like a very reasonable explanatory model. Extra plus for speaking at a leisurely speed. Thanks! Greetings from Sweden.
That was very interesting as someone who has battled this for 7 years. I had to eat a low histamine diet for months as i was getting hives, swellings allergic to nearly everything. It was so hard but now i eat what i want and sometimes get itching around my mouth and face but not extreme anymore. I unfortunately still get PEM and it is stopping me really living a normal life. In the house crippling fatigue for days each week. I must find out the root cause of this. Thankyou so much for this.
Thank you for not coming across like a smiling jovial expert. It’s so disheartening . You present the facts and show us respect for our disrupted life. I’m exhausted and have been for 3- years post my 4th Moderna vaccine. I have Hashimotos and couldn’t get a correct medication dosage to manage my Hashimotos hypothyroidism since that 4th Moderna. I’m not intending to bash vaccines. I wish I had stopped at the 3rd vaccine. But because my husband had to have vaccines to qualify for a kidney transplant, I also had to participate in receiving multiple vaccines. You have listed all the symptoms I struggle with. Thank you for this validation.
This was a great explanation. Although some doctors smiled at me when I started to do all the different types of treatments I followed my instincts and kept going on with doing them. Hearing your explanations assures me that I am on the right way . Still hoping for the final snowballeffect, but I probably need more patience especially with pacing. Thank you 😊 Hope my English is understandable as I am German 😅
I have been diagnosed with this for several years now but the gp's don't really believe in it, they refer you to a clinic where you have talking therapy to 'manage' it. I have all of the symptoms you describe but have no way of explaining this to a young GP who last said a year ago I was premenopausal! I literally thought hearing this was like listening to me.. I've had the itch response to more & more foods, over sensitive to stimulus, noise, light. Over stressed, can't stand for long. Bla bla..I've been in a stressful relationship for about 4 years which seems to be getting easier but i still have the added stress of not working. We don't have functional drs in the UK & the Drs we do have just send you to talking therapy. How does 1 heal from this if having to go it alone? Is there anything I can do myself as I obviously am not a dr so can't perform tests & don't have the same support in GPs in tge UK.. is that even possible to heal myself. Also would you be able to put this presentation forward using diagrams? Sorry for the length but I've had this for years & since Covid have got way worse, the brain fog is unbearable & now my spine pain is just unbearable too. 🙏 can you help me please?
One day I gave a new friend a lift home. A few days later I had the illness ME. The other two friends in car also developed ME and became wheelchair bound. The new friend said she had a serious virus but had recovered at time she took lift. Also a neighbour who was a nurse working in surgery said when she contacted ME the three people present at one time together also developed ME shortly afterwards. I don’t understand this. The nurse said that it is due to having a double virus. An old standing virus plus new one that interacts with it. This would explain outbreaks of ME . If you have one virus present a common new virus can spark off ME.
Good video. I am a now disabled fnp who had to quit working due to mecfs 10 yrs ago. I am still moderately sick but not as severe as I was at first. Currently I am on keto diet and avoiding sugar, also taking nadh and coqten and a multivitamin daily as well as antihistamines.and Prozac. This combo as well as extra sleep with a sleeping pill as needed seem to help a little. I study biochem for a limited time everyday to keep my brain active
Yes Anthony William recommends adrenal snacks every 1-2 hours. And teaches how to replenish and heal the liver glycogen stores to heal hypoglycaemia. The root cause is EBV in late stage inflaming the nervous system. Thyroid healing by Anthony William will give you much added understanding and help you help others with it! You CAN fully heal! 🌸
Dr. Brown, I became ill with ME in 1982 (will never refer to it as CFS after the scoundrels at the CDC gave it that name to intentionally cripple us as 'malingerers') and now 42 years later as I'm in my 70's, as expected my symptoms and crashes are more frequent and more intense. I do a LOT of my own research but one of my worst symptoms I've never found a satisfactory explanation for and I wonder if you can shed some light on which of the systems you mention might be responsible for it. Over the years from time to time I would experience the feeling of wearing an iron vest with a vice on it and that vice would tighten and tighten throughout the day till my ribs feel like they will break. This would last a month or so and then fade away, however now it happens every day by about 10am it begins and tightens till my ribs have actually popped out of joint - according to a chiropractor I once saw - my voice becomes a whisper and at its worst I can hardly swallow. I realize our biggest problem is inflammation in our spine and brain and have always just written this symptom off as that, but could it be something else in the systems you mentioned that is causing it? I live in a remote area, we have no doctors and I wouldn't go to an allopathic one even if we had one. I stopped going to doctors decades ago and I think it is why I have survived as long as I have. Thank you for your videos and for any light you might shed on this horrible symptom I and I'm sure others are dealing with.
I'm not sure if it's related, but my eosinophil count and IgE (immunoglobulin) blood test results are always double the normal range. Oddly, even though they're elevated, I typically only experience debilitating CFS symptoms and not actual allergies. However, my iron levels have consistently been normal. Additionally, I also have insomnia, IBS, and functional dyspepsia. What's mainly confusing is people who have completely normal test results, no underlying conditions, and their illness didn't start from a virus. Unfortunately I was in remission after 5 years, until a few months ago I caught appendicitis and relapsed. my CFS became mild to severe and been bedridden for a couple months now. Thanks for the info.
@@nickh7724 My understanding is that mast cell activation can look like / cause fatigue, orthostatic intolerance, brain fog, GI issues, etc. a histamine protocol might be worth looking into with your doctor.
@@cfsdocbrown how do you get tested for MCAS? Also, if you have time to answer, why, in your understanding, did I relapse/or get much worse after having COVID/appendicitis four months ago, going from mild to very severe/bedridden? The stress of the viral and bacterial infections both at the same time, definitely did put a significant toll on me.
@@nickh7724 there is no great test. Got to treat based on clinical presentation. It’s really common to relapse with new/significant stressors once you have CFS symptoms. Your body becomes sensitized so it jumps to that shut down state more readily.
This right here is RUclips gold!! I often watch videos from Robert Naviaux about the Cell Danger Response OR all the mind-body coaches and the polyvagal theory and both made sense to me but I couldn't decide who was right. Finally someone who brings both together! If I may ask you two questions: If I understand it correctly you said that the CDR begins before the ANS/limbic system dysfunction. What makes you think so and is it possible that it's the other way around? Do you think that pathogens like Lyme that hide in the body are responsible for keeping the CDR going and it's not possible to recover unless these pathogens are eliminated? Best regards from Germany!
Sehr viel wahrscheinlicher ist erst eine CDR im Körper, die dann an das Nervensystem kommuniziert. Dass der Dominoeffekt vom Nervensystem startet ist eher unwahrscheinlich, wenngleich bei theoretischer und isolierter Betrachtung möglich. Borrelien sind allerdings nicht mit Viren zu vergleichen, die verstecken und manipulieren ihren Wirt, also uns, anders
Deficiencies, unbalanced Hormones. Interests. Uninteresting environments.
Lack of friendship SUPPORTIVE FRIENDS.
Wow super impressed you were able to make it through medical school with the illness. Absolutely no way I could even make it through a few days. Great insight.
Love the snowball and bleeding cell metaphors. Nice job putting the pieces together!
Thank you very much for this video. It sounds like my own stor and helps a lot to understand what is going on in my body. . I wish more doctors would understand this system. I am suffering celiac disease (not diagnosed for a very long time) hashimoto , inflammations, heart problems, PEM, diziness…and still need to waste my less energy to explain our authorities that it is not a matter of will that I can“t get back to work, sports, social life etc. and that my problem is not a depression. This costs so much energy which I don’t have. and which I need to turn around the snowball system.
Greetings from germany 🙏🏻
Thank you so much for sharing your knowledge with us and speaking slowly and clearly and using language that is easy to understand even for non-native speakers like me.
So good! Very educational and it seems like a very reasonable explanatory model. Extra plus for speaking at a leisurely speed. Thanks! Greetings from Sweden.
That was very interesting as someone who has battled this for 7 years. I had to eat a low histamine diet for months as i was getting hives, swellings allergic to nearly everything. It was so hard but now i eat what i want and sometimes get itching around my mouth and face but not extreme anymore. I unfortunately still get PEM and it is stopping me really living a normal life. In the house crippling fatigue for days each week. I must find out the root cause of this. Thankyou so much for this.
Thank you for not coming across like a smiling jovial expert. It’s so disheartening . You present the facts and show us respect for our disrupted life. I’m exhausted and have been for 3- years post my 4th Moderna vaccine. I have Hashimotos and couldn’t get a correct medication dosage to manage my Hashimotos hypothyroidism since that 4th Moderna. I’m not intending to bash vaccines. I wish I had stopped at the 3rd vaccine. But because my husband had to have vaccines to qualify for a kidney transplant, I also had to participate in receiving multiple vaccines. You have listed all the symptoms I struggle with. Thank you for this validation.
So sorry you suffered all this, and happy that you are improving. Thanks for sharing your story ❤
Thank you for sharing your story with us.
That's the best explanation I've heard and you put it all together so clearly, thank you 🙏
This was a great explanation. Although some doctors smiled at me when I started to do all the different types of treatments I followed my instincts and kept going on with doing them. Hearing your explanations assures me that I am on the right way . Still hoping for the final snowballeffect, but I probably need more patience especially with pacing. Thank you 😊 Hope my English is understandable as I am German 😅
Your English is great.
This is the best doggone description I’ve seen, and I’ve seen a lot. Great job, Doc.
This is a fantastic video! ❤ Easy to follow, very informative! Thank you!
Thank you for this, you are helping me understand what’s going on in my body. I’ve been sick nearly 4 years.
Get the book Medical medium from your library.
Thank you so much for sharing your story and educating. very comprehensive overview of ME/CFS
Very interesting and makes a lot of sense. I have many of the same problems due to long covid. Thankyou so much.
Get the book medical medium, will help you recover!
I have been diagnosed with this for several years now but the gp's don't really believe in it, they refer you to a clinic where you have talking therapy to 'manage' it. I have all of the symptoms you describe but have no way of explaining this to a young GP who last said a year ago I was premenopausal! I literally thought hearing this was like listening to me.. I've had the itch response to more & more foods, over sensitive to stimulus, noise, light. Over stressed, can't stand for long. Bla bla..I've been in a stressful relationship for about 4 years which seems to be getting easier but i still have the added stress of not working. We don't have functional drs in the UK & the Drs we do have just send you to talking therapy. How does 1 heal from this if having to go it alone? Is there anything I can do myself as I obviously am not a dr so can't perform tests & don't have the same support in GPs in tge UK.. is that even possible to heal myself. Also would you be able to put this presentation forward using diagrams? Sorry for the length but I've had this for years & since Covid have got way worse, the brain fog is unbearable & now my spine pain is just unbearable too. 🙏 can you help me please?
One day I gave a new friend a lift home. A few days later I had the illness ME. The other two friends in car also developed ME and became wheelchair bound. The new friend said she had a serious virus but had recovered at time she took lift. Also a neighbour who was a nurse working in surgery said when she contacted ME the three people present at one time together also developed ME shortly afterwards. I don’t understand this. The nurse said that it is due to having a double virus. An old standing virus plus new one that interacts with it. This would explain outbreaks of ME . If you have one virus present a common new virus can spark off ME.
Thank you so much for this, very easy to understand :)
Thank you, this is helpful and encouraging.
Good video. I am a now disabled fnp who had to quit working due to mecfs 10 yrs ago. I am still moderately sick but not as severe as I was at first. Currently I am on keto diet and avoiding sugar, also taking nadh and coqten and a multivitamin daily as well as antihistamines.and Prozac. This combo as well as extra sleep with a sleeping pill as needed seem to help a little. I study biochem for a limited time everyday to keep my brain active
Can I ask what nad
Yes Anthony William recommends adrenal snacks every 1-2 hours. And teaches how to replenish and heal the liver glycogen stores to heal hypoglycaemia.
The root cause is EBV in late stage inflaming the nervous system.
Thyroid healing by Anthony William will give you much added understanding and help you help others with it!
You CAN fully heal! 🌸
Dr. Brown, I became ill with ME in 1982 (will never refer to it as CFS after the scoundrels at the CDC gave it that name to intentionally cripple us as 'malingerers') and now 42 years later as I'm in my 70's, as expected my symptoms and crashes are more frequent and more intense. I do a LOT of my own research but one of my worst symptoms I've never found a satisfactory explanation for and I wonder if you can shed some light on which of the systems you mention might be responsible for it.
Over the years from time to time I would experience the feeling of wearing an iron vest with a vice on it and that vice would tighten and tighten throughout the day till my ribs feel like they will break. This would last a month or so and then fade away, however now it happens every day by about 10am it begins and tightens till my ribs have actually popped out of joint - according to a chiropractor I once saw - my voice becomes a whisper and at its worst I can hardly swallow. I realize our biggest problem is inflammation in our spine and brain and have always just written this symptom off as that, but could it be something else in the systems you mentioned that is causing it?
I live in a remote area, we have no doctors and I wouldn't go to an allopathic one even if we had one. I stopped going to doctors decades ago and I think it is why I have survived as long as I have. Thank you for your videos and for any light you might shed on this horrible symptom I and I'm sure others are dealing with.
You overlooked the psychosocial element doctor.
I'm not sure if it's related, but my eosinophil count and IgE (immunoglobulin) blood test results are always double the normal range. Oddly, even though they're elevated, I typically only experience debilitating CFS symptoms and not actual allergies. However, my iron levels have consistently been normal. Additionally, I also have insomnia, IBS, and functional dyspepsia.
What's mainly confusing is people who have completely normal test results, no underlying conditions, and their illness didn't start from a virus.
Unfortunately I was in remission after 5 years, until a few months ago I caught appendicitis and relapsed. my CFS became mild to severe and been bedridden for a couple months now.
Thanks for the info.
Oh man, I’m sorry you are going through that. Were you using antihistamines to recover the first time?
@@cfsdocbrown no, because I weirdly barely ever had/have allergy symptoms. Especially after I relapsed
@@nickh7724 My understanding is that mast cell activation can look like / cause fatigue, orthostatic intolerance, brain fog, GI issues, etc. a histamine protocol might be worth looking into with your doctor.
@@cfsdocbrown how do you get tested for MCAS?
Also, if you have time to answer, why, in your understanding, did I relapse/or get much worse after having COVID/appendicitis four months ago, going from mild to very severe/bedridden? The stress of the viral and bacterial infections both at the same time, definitely did put a significant toll on me.
@@nickh7724 there is no great test. Got to treat based on clinical presentation. It’s really common to relapse with new/significant stressors once you have CFS symptoms. Your body becomes sensitized so it jumps to that shut down state more readily.
This right here is RUclips gold!! I often watch videos from Robert Naviaux about the Cell Danger Response OR all the mind-body coaches and the polyvagal theory and both made sense to me but I couldn't decide who was right. Finally someone who brings both together!
If I may ask you two questions: If I understand it correctly you said that the CDR begins before the ANS/limbic system dysfunction. What makes you think so and is it possible that it's the other way around?
Do you think that pathogens like Lyme that hide in the body are responsible for keeping the CDR going and it's not possible to recover unless these pathogens are eliminated?
Best regards from Germany!
Sehr viel wahrscheinlicher ist erst eine CDR im Körper, die dann an das Nervensystem kommuniziert. Dass der Dominoeffekt vom Nervensystem startet ist eher unwahrscheinlich, wenngleich bei theoretischer und isolierter Betrachtung möglich. Borrelien sind allerdings nicht mit Viren zu vergleichen, die verstecken und manipulieren ihren Wirt, also uns, anders
Hans Selye--General Adaptation --Read the book "The Intelligent Body by Kyle Davies...I recovered with this.
CFS fybromyalgia symptoms?.do you have heds
Thanks for the recommendation.
Make psychosocial number six on your list. It is a primary cause of CFS and not just a result of it.
What mold binders did you use please?
Digestive ENZYMES
Probiotics?
Why do Cindy Bateman, Nancy Klimas and Dan Peterson not heal most of their pasients?
I'm not familiar with these clinicians so I can't answer. Perhaps you could expand on what their theory of practice is?
@@cfsdocbrown Sure :)