My son is 5 and has SB and scoliosis and is such a dear lil boy. He walks independently, although his leg muscles are weak and can't walk too far. This is still a learning journey for me as well as him....thanks for sharing your video.
I'm so proud of you Jackie! Good for you for not letting your disability keep you from doing anything! I've had 8 surgeries for my scoliosis and SB. I'm in school currently to do Social Justice and an advocate for persons living with a physical disability and/or mental illness. Keep up the good work and cheers to your friends and family for being such a great support system for you!!
i am 27 and i have Spina Bifita and scoliosis. I get offended when people use the term "disease" or "suffering". My parents and family have been very supporting and loving, i cannot ask for more!
I have exactly the same medical problems as yourself. When I was 12 years old I remember being examined by a group of student nurses and having to be completely naked for all the exam.
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours
My son is 5 and has SB and scoliosis and is such a dear lil boy. He walks independently, although his leg muscles are weak and can't walk too far. This is still a learning journey for me as well as him....thanks for sharing your video.
I'm so proud of you Jackie! Good for you for not letting your disability keep you from doing anything! I've had 8 surgeries for my scoliosis and SB. I'm in school currently to do Social Justice and an advocate for persons living with a physical disability and/or mental illness.
Keep up the good work and cheers to your friends and family for being such a great support system for you!!
I wish more people were aware of Spina Bifida just like cancer awareness, autism and etc. great video. I was born with SB as well.
I have spina bifida and scoliosis! I am 20. This is so nice just to see that there are other people out there like me! :)
I have also the same problem. Thank you showing your awareness.
i am 27 and i have Spina Bifita and scoliosis. I get offended when people use the term "disease" or "suffering". My parents and family have been very supporting and loving, i cannot ask for more!
I have exactly the same medical problems as yourself. When I was 12 years old I remember being examined by a group of student nurses and having to be completely naked for all the exam.
God bless you, I'm 37 an was born with spina bifida scoliosis
Great video.I have Spina Bifida too ,but not scoliosis.Best wishes.
Wow great video! Can you explain more about your feet? Du you have any sensation or movement in your feet and toes at all or are they fully paralyzed?
I wished you showed how you put your brace on.
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours
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I wonder how you can stand unaided if you were born with dislocated hips and spina bif? I never was able to!
i have spina bifida i have the same cruches .
I was born with Spina Bifida also
Do you wear diapers
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours
whoa! I didn't realize there was someone who has both Spina Bifida and scoliosis and has almost everything that I have! I am also short, I limp as well(my right leg is shorter) but my leg isn't as short as yours, my right foot looks almost exactly like my left except it's shorter of course and the toes curl and it has kind of red or purple coloring on it sometimes and you can see the vains, and I was also born with a dislocated hip as well but I'm not sure if they fixed that or not. all I know is I was born with it. I can't tell if it is still dislocated. haha. I may honestly not be as bad as you with the Spina Bifida, especially since I can walk but my scoliosis is definitely more noticeable than yours