Be Happy and stay strong. I am 20 and living with same condition . I know it is difficult but you can make life beautiful with your willpower and determination.
I am 12 years old I have the same condition and I’m a girl. It’s not common for girls to have this condition. But I do and I keep my head up and try to stay strong. My mom always tells me that god game me this condition because I was strong enough to have it. but to this day I still struggle with this condition but I try to keep my head up and have fun with my life.
Hey Sadie. I’m a 41yo female and I have this condition too. Your mom is right, you are strong enough. It’s not always easy, but it is possible. I was told I’d never have a normal life or children. I’ve been married 23 years and I have three daughters. I had three successful pregnancies and gave birth to three healthy girls. Even with the struggles of infections and limitations, life is good. I wish you the best.
Diane McCreary hi!! i am now 14 years old & i had a major surgery last summer & it has changed my life dramatically!! i am so much more confident & i’m starting high school this year! and i am so happy to hear you have healthy girls!! stay strong!!
I'm 19 years Old with B.E and I've gone through major surgeries and I self catheterize now It's nowhere near easy because i don't have anyone to talk to around or much information about how it will be as I am growing older.. I also try to keep positive but sometimes it gets me thinking about why I'm so different from everyone else and my doubts about the future too. It's great seeing you talk about the positives in this video it's really helped me fit in a bit seeing I'm not alone
Think you for finding my video and I am glad it helped you if you need to chat with someone I am happy to chat with you try and stay strong the is light at the end of the tunnel test me on that one Matt
I'm so glad that I'm not the only one in this world with bladder exthropy, my life is very tough and I am only 12, but I am just so surprised how many people with this birth defect out there.
ReveiwsOnReveiw 612 Yes you'll find many of them online obviously but in my country(sweden) there are only about a 100+ with it which makes it very rare. What helped me a lot was to talk with other people with bladder exstrophy and come to terms with your situation. If you can't accept yourself physically down there you wont find a partner who will. Best of luck in life, if you have any question feel free to ask me :)
Matthew Phillip George Wrigley yeah I definitely understand some days r good other days r bad it is so crazy I’ve never talk to anyone else that has this I also have kidney disease and seizures as I’ve gotten older unfortunately I’m sicker most of the days
My son was born with Bladder Exstrophy. He is 27 years old today, and it was a bumpy ride....but thank God so far. Bless you people and have faith
Think you for finding this on hear i understand what you are saying about your son and being a bumpy ride think you for your kind words
Be Happy and stay strong. I am 20 and living with same condition . I know it is difficult but you can make life beautiful with your willpower and determination.
Furqan Sajid how r u doing I have it
I am 12 years old I have the same condition and I’m a girl. It’s not common for girls to have this condition. But I do and I keep my head up and try to stay strong. My mom always tells me that god game me this condition because I was strong enough to have it. but to this day I still struggle with this condition but I try to keep my head up and have fun with my life.
May i have your contact please ?
Regards
Sadie S how r u doing? I have it and I’m 39
Hey Sadie. I’m a 41yo female and I have this condition too. Your mom is right, you are strong enough. It’s not always easy, but it is possible. I was told I’d never have a normal life or children. I’ve been married 23 years and I have three daughters. I had three successful pregnancies and gave birth to three healthy girls. Even with the struggles of infections and limitations, life is good. I wish you the best.
Diane McCreary hi!! i am now 14 years old & i had a major surgery last summer & it has changed my life dramatically!! i am so much more confident & i’m starting high school this year! and i am so happy to hear you have healthy girls!! stay strong!!
I'm 19 years Old with B.E and I've gone through major surgeries and I self catheterize now
It's nowhere near easy because i don't have anyone to talk to around or much information about how it will be as I am growing older..
I also try to keep positive but sometimes it gets me thinking about why I'm so different from everyone else and my doubts about the future too. It's great seeing you talk about the positives in this video it's really helped me fit in a bit seeing I'm not alone
Think you for finding my video and I am glad it helped you if you need to chat with someone I am happy to chat with you try and stay strong the is light at the end of the tunnel test me on that one Matt
I'm so glad that I'm not the only one in this world with bladder exthropy, my life is very tough and I am only 12, but I am just so surprised how many people with this birth defect out there.
ReveiwsOnReveiw 612 Yes you'll find many of them online obviously but in my country(sweden) there are only about a 100+ with it which makes it very rare. What helped me a lot was to talk with other people with bladder exstrophy and come to terms with your situation. If you can't accept yourself physically down there you wont find a partner who will. Best of luck in life, if you have any question feel free to ask me :)
ikr bro it sucks
Brandon Knight do u have snapchat
Brandon knight can you give me your email or other contact . I am 20 and living with bladder extrophy.
Brandon, Do you have facebook, or any contact details you can share with me, I am 22 years old, im Australian and living with bladder exstrophy
How r u doing now I have it
Yeah i am doing ok i guess i have my good days and my bad days
I am finding it hard as I all so have mental health problems as well
Matthew Phillip George Wrigley yeah I definitely understand some days r good other days r bad it is so crazy I’ve never talk to anyone else that has this I also have kidney disease and seizures as I’ve gotten older unfortunately I’m sicker most of the days
@@missyblove8082 Oh understand if you what you can send me a email and you can chat to me there if you like i am happy to chat
Matthew Phillip George Wrigley missyblindsay04@yahoo.com
I am a girl with same condition