Nope. At first I wondered if it was Compartment Syndrome. I kept comparing it to my own mystery illness: fatigue, pain in all joints, mental fog, all of which comes and goes, sometimes bothering me for hours or for weeks, then going away for days or weeks. My blood tests were mostly normal, so the PA asked me if I wanted a referral to rheumatology. I'm like, how would I know who I need a referral to? I don't want to bother a specialist if it's something simple like eating more oranges.
I spent 22 years horrific years of my life trying to get an autoimmune diagnosis. In the end, it wasn’t a doctor who figured it out, it was me. Be your own advocate! Unfortunately, my journey with the medical community did not improve after getting a diagnosis. Women, in pain, without obvious reasons, is not taken seriously. Must be hysteria. So my faith has been deeply shaken by doctors.:(
Agreed. I keep going to the er for unbearable pain in my left upper stomach abdominal. I get morphine. Ct scan blood test. Because I have uri often ( kidney problems( thry immed go uti. Even though cultures always come back normal. Then the go i dont see a problem. Send me away . Last one just said I dont know why your in pain. . Thencdischarges me. Been 3x. Yes the imned morphine helps. But I go in unable to sit . Its infuriating. How did you figure yours out. ,
@@jamesingwersen4240...lots of things cause pain in that area. Referred gallbladder, h.pylori infection, ulcers, cancer. Why are they checking your kidneys when it's your stomach area? Renal conditions usually affect back not stomach.
As soon as you said the part about her not touching most of her food I yelled "SCURVY!" at my monitor, lol. Glad I was right and didn't embarrass myself in front of my cat
And that in aaaaalllll of those blood tests they don't just test people's vitamin levels from the get-go. Especially here in the US where just about nobody eats a proper diet and almost nobody has access to a nutritionist. Our education system when it comes to diet is pathetic. Why wouldn't you first test their vitamin/mineral levels? That alone could narrow the field tremendously when you're dealing with weird cases.
Nearly died of heart disease and NAFLD. Plus had a myriad of gastric problems. Not once was I asked about my diet, or given any dietary advice. I discharged myself against all protestations from the doctors and have spent the last 3 years figuring it all out. Grateful for my life! ❤️
@@angelataylor2049Had huge gastric issues. Much better, but not fixed entirely (yet). Probably a lot caused by liver. Also have food allergies, so my diet is probably not for everyone. Just recently went NO SALT and NO SUGAR. This has helped both the heart and liver immensely. Also I avoid all oil except very high quality olive oil. Someone mentioned somewhere they can only take Spanish olive oil and not Italian. This has been true for me too! 🤷 I have veggies, chicken, fish and fruit. Not very exciting I know. The biggest thing I've found arr things with both oil and salt in - ie. packet chips and processed foods. You'll need to work out what's right for you of course. Takes a lot of experimentation - and much frustration! But you can do it! 😊 Good Luck! ❤️❤️❤️
@@angelataylor2049 Hi! They didn't even discuss my gastric problems with me, but I've been continually changing my diet over 3 years - and making many mistakes! I think it will always be an individual thing, but only recently I gave up ALL sugar and ALL salt. (I still miss salt). 😫 But if you have no heart problems, lower your salt intake a lot, but DEFINATELY give up all sugar. My diet has been whittled down to lightly sautéd veggies, with herbs and garlic etc. (Give up very spicy stuff for sure). Fish or chicken, either steamed or lightly fried in extra virgin olive oil. Eggs. I've been making omelettes. Olive oil again. Some fruit, but not much. Some nuts. (Dry rossted). Not all nuts agree with me, you'll have to check for yourself there. No grains or dairy. No processed foods whatsoever. It has taken me 3 years to actually get this far. I had such little willpower. Obviously you don't need to be so strict. Play around and see what's right for you! Oh, I'm now taking a lot of supplements. I've tried those for years, but vitamins etc. also made me feel sick. 🤷 But now I can take certain ones. Had blood tests a few days ago and my vitamin and mineral results were top notch! Hope this was somewhat helpful. Good luck! 💚
I'm shocked the doctors even bothered to keep looking. Most I've seen will order a few tests and when they are normal, they just give up. I'm glad they didn't give up on this lady.
The wildest thing about this story was that the patient a) wasn't told it was all in her head and sent home, and b) not accused of being drug seeking and sent home
Spot on! (Sadly). As a chronically ill person with a very painful autoimmune disease that most drs know precious little about; I've experienced that COUNTLESS times. Two different times, it nearly cost me my life. I am also in a wheelchair, and when I showed up for what ended up being polymicrobial, highly resistant bacteremia. I was in a ton of pain and had a temp of 103 F. They refused to give any pain med other than Tylenol, and would not even look at or talk to ME about my symptoms. There was absolutely no good reason for this, and I kept asking them to speak to me. Nevertheless, they ignored me and addressed all their questions, etc to my husband. It was not because they couldn't understand me, I certainly wasn't being disruptive; nothing at all like that. It was WILD. I wish I could tell you that it was the first I'd experienced it, but it wouldn't be the truth. This particular time, I just couldn't take the pain, and we ended up leaving so I could take at least my regular pain relievers at home. At least they had drawn blood cultures, but they take two days to finalize. Two days later, we get a phone call from an infectious disease doctor we actually knew. It was right at the beginning of the COVID crisis; when it was really deadly and there was no vaccines, and no specific treatment protocols...basically trial and error and just treating it as a typical respiratory virus. A lot of people were succombing to it; particularly immunocompromised people like myself. The day after our hospital visit, the Governor (we live in Michigan) signed the lockdown order, and visitors were barred from hospitals. Anyway; this doctor was doing 24 hour shifts at the hospital, and had already lost several patients. The ICU was now full; and it was the same or nearly so across the state. I literally felt SO bad for this man; who is so compassionate, because he sounded so tired and just; well...haunted. Soon, we knew it wasn't just because of the COVID patients he was losing. He told us that I had six different organisms in each culture (they took two separate samples...one from my port, and one from my arm. It's how they confirm that it isn't just accidental skin contamination. If you get the same results in both, it almost certainly is actually in the bloodstream). He told us he had never seen this in 20+ years of I.D. practice, and how sorry he was. He told us that he would be happy to admit me if we wanted that, and they could try some things and maybe help with the pain, but that he knew of no case in which someone; even younger patients like myself (I was 40 y.o), had survived something like this. I told him how much I appreciated him calling, and his kindness over the years. I said that I didn't want to go back to the hospital though. If he really thought it was that unlikely to change anything, then the ICU with no visitors even allowed was the LAST place I wished to be. I was NOT going to be saying goodbye to my family on FaceTime. He said he understood, and respected that. I asked about hospice care (I'll interject here that this was hardly a new topic of discussion for us. My husband and I had been living with the uncertainty of my roller-coaster health struggles for a long time. It had never been this real before, but I had a living will, and we had discussed what we though we would do when this inevitably happened one day. The doctor actually sounded a little better by the end of the discussion; simply because he realized he hadn't actually rocked our world quite as much as he had feared. I told him I was okay, and not to worry about us. Afterward, we called my primary care doctor, and had hospice in less than 48 hours later. Needless to say, I didn't die. (Sorry...I am not writing from rhe hereafter; cool as that would be, lol). How did that happen? Well; it's anybody's guess really, but there is a theory. First; I found out that's its not all that uncommon to "graduate" from hospice...and I don't mean via a pine box. The body has healing mechanisms we don't fully understand, a prognoses are always just a best guess based on available statistics. The younger and stronger we are, the more difficult it can be to accurately predict how an illness will impact us. The best guess for how I survived is that while I was sick with the bacterial infections; I also ended up getting COVID, which did progress to pneumonia. In both conditions; the frequent cause of death is cytokine storm, or the massive immune response that develops. It not only kills the infection; but it can also kill the body itself in the process. Because I was on immunosuppressants, and was fighting two infections at the same time, it may just be that my immune system was prevented from mounting that kind of deadly reaction, but nevertheless reacted ENOUGH that (after almost six months) I could recover (from the most immediate threats anyway). But; as I said, it's anyone's guess. I've had people tell me it's a miracle; and maybe to them it is. But for me; as well as my family, it is WAY more complicated. It would be nice if our Healthcare system and communities at large were more prepared to deal with medical PTSD. If there's one thing I have learned in this, it's that we have an epidemic of medical trauma. Anyone who goes through a major illness or surgery; or has a loved one go through that, definitely is going to have some trauma related to all of that, and addressing it well would predictably have a significant effect on overall health, including long after that traumatic situation has passed. In meeting so many with experiences like mine, the scale of this public health threat is every bit as dangerous (or more so) as COVID). While I didn't die (not yet anyway); this experience had an ENORMOUS impact on my life. To be honest, I struggle with where I am now. My body is even more screwed up than before, and my mental health has also taken a beating. Between my illness and my dad's diagnosis with Alzheimer's over the same period, my family has also suffered a lot. My sister; whom I've always been so close to, has basically cut ties. She's a good person, but it's like she just couldn't cope. She literally accuses us of making up the situation; despite the fact that she took care of me herself while I was sick. She was here for every hospice visit. Of course it doesn't make any sense, and I KNOW she knows that. It is really bizarre, but she simply cannot face how close she came to losing me. You'd think that she wouldn't respond to that by purposely cutting me off; but logic isn't part of this. She is traumatized. I have severe PTSD myself, and there is a LOT that I have no memory of...it turns out that when your brain is boiling, it doesn't work so well. Anyway; it has been tough. I think that ut honestly probably would have been easier on everyone if I had died. But I didn't. I had no choice then, and I have fewer still now. This kind of experience; and just long term illness and disability in general, is EXTREMELY isolating. I have also since found out that my sister's reaction; while not terribly common, also isn't exactly rare. Our society is really weird about illness, disability, and ESPECIALLY death, and none of that is helpful at all. My sister and I had a lot of trauma growing up, and she also is a war vet. She recently entered treatment for alcoholism; which surprised me. I don't know what will happen down the line, but I've had to accept that she may never be able to go back to being the sister I once knew. I won't ever be the same either. I have had little treatment to manage my conditions since that time, because I literally can't go to a medical facility and not have a massive panic attack. I haven't been in our master bedroom in our home for three years because the worst panic attack I had was going in there after all of this; when I was immediately back in the time where everyone was there, waiting for me to die. It's funny, because now that it's over, everyone else has moved on, but I am like the walking dead...alive, but not really living. I am; mentally and physically, a shadow of who I once was. Much of my medically related trauma, and the reason I struggle to get even basic preventative care now, is because of the years of dismissal and even outright cruelty I have faced by the medical profession...long before AND since my hospice experience. We have a very LONG way to go in terms of dealing with medical gaslighting, profiling, etc; particularly when it comes to women, those experiencing mental health struggles, and those with visible and invisible long term illnesses and disabilities. 💔
Spot on! (Sadly). As a chronically ill person with a very painful autoimmune disease that most drs know precious little about; I've experienced that COUNTLESS times. Two different times, it nearly cost me my life. I am also in a wheelchair, and when I showed up for what ended up being polymicrobial, highly resistant bacteremia. I was in a ton of pain and had a temp of 103 F. They refused to give any pain med other than Tylenol, and would not even look at or talk to ME about my symptoms. There was absolutely no good reason for this, and I kept asking them to speak to me. Nevertheless, they ignored me and addressed all their questions, etc to my husband. It was not because they couldn't understand me, I certainly wasn't being disruptive; nothing at all like that. It was WILD. I wish I could tell you that it was the first I'd experienced it, but it wouldn't be the truth. This particular time, I just couldn't take the pain, and we ended up leaving so I could take at least my regular pain relievers at home. At least they had drawn blood cultures, but they take two days to finalize. Two days later, we get a phone call from an infectious disease doctor we actually knew. It was right at the beginning of the COVID crisis; when it was really deadly and there was no vaccines, and no specific treatment protocols...basically trial and error and just treating it as a typical respiratory virus. A lot of people were succombing to it; particularly immunocompromised people like myself. The day after our hospital visit, the Governor (we live in Michigan) signed the lockdown order, and visitors were barred from hospitals. Anyway; this doctor was doing 24 hour shifts at the hospital, and had already lost several patients. The ICU was now full; and it was the same or nearly so across the state. I literally felt SO bad for this man; who is so compassionate, because he sounded so tired and just; well...haunted. Soon, we knew it wasn't just because of the COVID patients he was losing. He told us that I had six different organisms in each culture (they took two separate samples...one from my port, and one from my arm. It's how they confirm that it isn't just accidental skin contamination. If you get the same results in both, it almost certainly is actually in the bloodstream). He told us he had never seen this in 20+ years of I.D. practice, and how sorry he was. He told us that he would be happy to admit me if we wanted that, and they could try some things and maybe help with the pain, but that he knew of no case in which someone; even younger patients like myself (I was 40 y.o), had survived something like this. I told him how much I appreciated him calling, and his kindness over the years. I said that I didn't want to go back to the hospital though. If he really thought it was that unlikely to change anything, then the ICU with no visitors even allowed was the LAST place I wished to be. I was NOT going to be saying goodbye to my family on FaceTime. He said he understood, and respected that. I asked about hospice care (I'll interject here that this was hardly a new topic of discussion for us. My husband and I had been living with the uncertainty of my roller-coaster health struggles for a long time. It had never been this real before, but I had a living will, and we had discussed what we though we would do when this inevitably happened one day. The doctor actually sounded a little better by the end of the discussion; simply because he realized he hadn't actually rocked our world quite as much as he had feared. I told him I was okay, and not to worry about us. Afterward, we called my primary care doctor, and had hospice in less than 48 hours later. Needless to say, I didn't die. (Sorry...I am not writing from rhe hereafter; cool as that would be, lol). How did that happen? Well; it's anybody's guess really, but there is a theory. First; I found out that's its not all that uncommon to "graduate" from hospice...and I don't mean via a pine box. The body has healing mechanisms we don't fully understand, a prognoses are always just a best guess based on available statistics. The younger and stronger we are, the more difficult it can be to accurately predict how an illness will impact us. The best guess for how I survived is that while I was sick with the bacterial infections; I also ended up getting COVID, which did progress to pneumonia. In both conditions; the frequent cause of death is cytokine storm, or the massive immune response that develops. It not only kills the infection; but it can also kill the body itself in the process. Because I was on immunosuppressants, and was fighting two infections at the same time, it may just be that my immune system was prevented from mounting that kind of deadly reaction, but nevertheless reacted ENOUGH that (after almost six months) I could recover (from the most immediate threats anyway). But; as I said, it's anyone's guess. I've had people tell me it's a miracle; and maybe to them it is. But for me; as well as my family, it is WAY more complicated. It would be nice if our Healthcare system and communities at large were more prepared to deal with medical PTSD. If there's one thing I have learned in this, it's that we have an epidemic of medical trauma. Anyone who goes through a major illness or surgery; or has a loved one go through that, definitely is going to have some trauma related to all of that, and addressing it well would predictably have a significant effect on overall health, including long after that traumatic situation has passed. In meeting so many with experiences like mine, the scale of this public health threat is every bit as dangerous (or more so) as COVID). While I didn't die (not yet anyway); this experience had an ENORMOUS impact on my life. To be honest, I struggle with where I am now. My body is even more screwed up than before, and my mental health has also taken a beating. Between my illness and my dad's diagnosis with Alzheimer's over the same period, my family has also suffered a lot. My sister; whom I've always been so close to, has basically cut ties. She's a good person, but it's like she just couldn't cope. She literally accuses us of making up the situation; despite the fact that she took care of me herself while I was sick. She was here for every hospice visit. Of course it doesn't make any sense, and I KNOW she knows that. It is really bizarre, but she simply cannot face how close she came to losing me. You'd think that she wouldn't respond to that by purposely cutting me off; but logic isn't part of this. She is traumatized. I have severe PTSD myself, and there is a LOT that I have no memory of...it turns out that when your brain is boiling, it doesn't work so well. Anyway; it has been tough. I think that ut honestly probably would have been easier on everyone if I had died. But I didn't. I had no choice then, and I have fewer still now. This kind of experience; and just long term illness and disability in general, is EXTREMELY isolating. I have also since found out that my sister's reaction; while not terribly common, also isn't exactly rare. Our society is really weird about illness, disability, and ESPECIALLY death, and none of that is helpful at all. My sister and I had a lot of trauma growing up, and she also is a war vet. She recently entered treatment for alcoholism; which surprised me. I don't know what will happen down the line, but I've had to accept that she may never be able to go back to being the sister I once knew. I won't ever be the same either. I have had little treatment to manage my conditions since that time, because I literally can't go to a medical facility and not have a massive panic attack. I haven't been in our master bedroom in our home for three years because the worst panic attack I had was going in there after all of this; when I was immediately back in the time where everyone was there, waiting for me to die. It's funny, because now that it's over, everyone else has moved on, but I am like the walking dead...alive, but not really living. I am; mentally and physically, a shadow of who I once was. Much of my medically related trauma, and the reason I struggle to get even basic preventative care now, is because of the years of dismissal and even outright cruelty I have faced by the medical profession...long before AND since my hospice experience. We have a very LONG way to go in terms of dealing with medical gaslighting, profiling, etc; particularly when it comes to women, those experiencing mental health struggles, and those with visible and invisible long term illnesses and disabilities. 💔
Never had a doctor be that curious about health. Generally if you're not dying they do one test and then tell you to go home and exercise. Your friends keep asking if you've seen the doctor and you've seen 12 useless ones. You occasionally get a sympathetic specialist that says your other doctors should really care more about that but it's outside their field, have a nice day.
Modern Docters in a nutshell: Doctor proceeds to Google your symptoms on web MD.... "I see you are suffering quite severely from day to day, but all your tests are normal and you are not dying, so have a nice day!"
This is also where British sailors got the nickname, "limey", from the lime juice they would carry aboard ship to ward off scurvy. It kept much longer than fresh produce. Finally, this is also where limes began their long association with rum.
Many, many years ago (1959-1961) I volunteered at a poorly funded public hospital in the children’s ward, usually reading to kids or running errands for the overworked nursing staff. Occasionally, because of lack of staff, they asked me to do something that probably wouldn’t happen today; help with a patient. In this case, an 18 month old child was admitted with scurvy (and his mom charged with neglect) because she had never fed him ANYTHING other than grocery store milk in a bottle, and was leaving him alone for hours while she partied. That poor baby was prescribed a balanced diet of puréed veggies, fruits and meat, but he wasn’t having it! My job was to cuddle him on my lap with his arms pinned while the nurse spooned in the puréed peaches, etc. He couldn’t go to a foster family until he tolerated being fed; fortunately that only took a couple of days.
@@graveseeker Learning about babies is no longer treated as a normal part of life.When I was growing up,it was.I'm from a large family.My aunt had 10 kids.As soon as an older child reached age 4 or 5,they were given responsibility for a younger child,including changing a diaper,giving a bottle or food(and learning to prepare same),and tending and playing with the baby while mom was busy with housework.If anything happened that the older child couldn't handle,go get mom.My sibs and I were all a year apart,so this didn't apply,but my aunts with enough kids to do the two-tier thing did.If people did that with kids today,some busy body would turn them in for child abuse.
Two years ago I came down with a rare and painful disease called "polymyalgia rheumatica". I saw a doctor who sent me to a rheumatologist who sent me for regular blood work for over a year (the myalgia typically lasts for 1-5 years). They checked all kinds of things. I also had some rather bad arthritis to go with it (I never had that before). I was also at the same time diagnosed with osteoporosis (I'm a 60 year old very active male who has been weightlifting since I was 17 so that was a surprise). I continued to have problems with my shoulders, even after the rheumatologist declared the myalgia to be resolved. They sent me to a physiotherapist who got me going on a bunch of exercises for my shoulders. I'm Canadian and I got what I thought was rather good health care. I saw my regular doctor and the rheumatologist several times, as well as several phsyio sessions. When I asked the rheumatologist why I got the myalgia, he just said that I was "unlucky". I was dissatisfied with that, especially since I still had significant shoulder pain and arthritis in my hands even though he had declared the myalgia to be resolved. I asked the physio what injury they were treating but they couldn't tell me. On my own I figured out that there must me a missing factor here. I thought that it might be diet related. I was eating a relatively balanced healthy diet but I also ate quite a lot of sugar as well. I exercise a lot so I thought that sugar was no big deal as long as I wasn't getting fat, and I wasn't. How wrong I was. Out of desperation I decided to eliminate sugar (and all drugs) from my diet just to see what happened. What happened was that my shoulder pain, which I thought was never going to go away, went away. And so did the arthritis in my hands. I haven't been tested for bone density recently but I'm willing to bet that that is improving as well. I'm now back to lifting weights and doing active things and other than the usual little aches and pains of a 60 year old lifelong athlete, I'm feeling really good. I'm convinced that all these problems are related to systemic inflammation caused by too much sugar intake. That's a self-diagnosis but I'm willing to bet that it's correct. The thing is that out of the many health practitioners that I came across during my care for the myalgia not one of them ever asked about or talked about diet. Maybe they just assumed that people aren't willing to change dietary habits or maybe they are trained not to deal with "lifestyle" issues and "stick to the facts". It's a shame because in my case I'm convinced that diet was the most important thing to address and yet it was completely ignored. I had to figure it out on my own despite having first world medical care, including highly trained and highly paid doctors and specialists. I think they even tried to help me but somehow diet was not even considered. And that's a real failing of modern medicine. I don't think that mine is an isolated case.
That’s incredible and what most doctors don’t tell you is that nutrition is not a big part of their medical training. Same thing for vets. It’s literally the thing that they should know most about but they are just looking to solve the problem rather than prevent the problem.
Modern doctors treat symtoms, not the whole body. What pisses me off most is that when treating patients with cancer, doctors don't say a single word about the need to change lifestyle and diet, they just bombard patients with extremely harsh treatments but completely forget about the many factors that would help people to survive.
@@peggyhofmann9187 If we actually practiced health care instead of sick care then many of the symptoms that they are trying to treat would go away. That would be a disaster for the pharmaceutical industry though, they need those symptoms, and a sick population in general, in order to peddle their product. Most doctors have been co-opted in one way or another by the huge profits made by selling drugs instead of promoting health.
I'm glad to hear your results. My PMR began in May of 2016, and after spending 17 months at 15 mg of Prednisone, unable to taper, I began Keto (no sugar, very little carbs), and was pain free in 10 days and began tapering. In 3 months I was off Prednisone and done with PMR. I was still on methotrexate for my RA, and every time I tried to taper off MTX I got pain in my hands/wrists. Keto was helping but it was very slow. I discovered Carnivore, just eating meat, fish, eggs and butter, 30 days later I was off MTX and pain free, the only time my hand/wrist pain returned was when I included plant foods in my diet. It's now nearly 6 years later, I eat mostly meat, fish, eggs and butter, some days is regular Keto, a little bit of plant food on the side. I'm 70 and have never felt this good in all my life.
I wholeheartedly concur w you abt the failing of 1st world medical care: it takes NO account into diet unless ur getting tested for food allergies. It's not isolated at all...to the contrary, it's pervasive
I had this but not to her severity. When i suggested this to my Hematologist he blew me off and told me , " noone gets scurvy anymore. ". So i went home and started adding back into my diet the fruits and veggies other doctors had told me not to eat. Guess what? Back to normal in a couple of months!
Exactly the same thing happened to me. Doctors operate by some probability matrix and disregard the particular patient history. I told mine that I don't eat fruits and I have endless gum infection but it was dismissed because "you are not a smoker". The vit C test came back below normal.
@@ExtaTer Yup, this is why I tell people that it takes me a minimum of 2 years to break in a new doctor. I don't react to anything like "the average person"! Still searching for that 'average person'.
Persistent bruising, petechiae (small blood rashes), & pain & pressed down areas of skin on extremities, that doesn't bounce back, possible bleeding from the gums or loosening teeth, weakness?? Sounds like a review of her diet would also be investigated!!
@charlesmckinley29 Wasn't this story in Canada, though?! Either way, I long for the day where the medical industry is not "customer" focused, but more appropriately "patient care" focused; it's always gotta be about money with this species :/
I think this experience emphasizes the need for doctors to ask about a sick person’s diet. People think they eat a balanced diet but it’s imbalanced. Doctors also tend to say, “Watch your diet.” Or when they have a patient who’s losing weight, “Keep what you’re doing because it’s working.” Without even asking what their diet really is.
Mine saw that I lost quite a bit of weight. First thing she asked me was how much fruits and veggies I was eating. I’d been keeping a food diary in my phone so I showed it to her. She was pleasantly surprised by how hard core I was about stopping soda. By this point, it’d been almost 3 months since I’d even touched soda.
Yes, my friend was losing wt, Dr said good keep doing what you’re doing, he said but Dr I haven’t changed anything in my diet, Dr said don’t worry it’s good you’re losing unnecessary wt. when she went to another Dr that was going to do surgery on her back in a few mo, they did needed testing, they told him he was a diabetic.
As a hospital dietitian, this story made me all the more sad that a) the admitting MD didnt ask basic nutrition questions immediately (hows your appetite? Any food allergies/restrictions?), and b) the nursing/PSW team didnt flag her poor intake earlier. If either of these had been done, a consult to the RD could have saved her from days of unnecessarily tests and pain.
I feel like in medicine, there is no clear way to go. You are taught particular steps to follow and you do them. Those side quests of knowing the patient's diet are sometimes not taught or known... I think a dietary specialist should be present aside from doctors in hospitals that is specifically tailored toward each patient's diet. As in get the history of what a patient eats... And figure out an alternative solution while the main doctor prepares the medical side of screening tests that this patient may need. Doctors are overwhelmed with the number of things they need to get done for every single patient, and diet is a huge aspect that isn't taught very well in medicine, and that frankly, they don't have much time for when they need to take care of multiple patients and ensure that they get the rest they need. I am talking mainly about residents who are on call, and have few hours of sleep in 24h, who are technically the primary care physicians when the attending isn't present. On top of that, residents have to also study for examinations, and so don't have the extra time to really understand all that nutrition has to offer in patient care. I also recently watched a pregnant celebrity be annoyed after giving birth to her child for being disturbed a lot by the medical care team for questions that you may compare weighted as equally important to nutrition. So, some patients feel a lot of stress at hospitals and feel annoyed to be asked nutrition questions when they expect tests and treatments instead, these days.
There is a dietary specialist in each hospital it's a registered dietitian. Not every patient sees them automatically, they have to be referred by a doctor, or another healthcare professional if there's a concern. So the dietary questions still have to be asked first during examination. It could just be one, like the dietitan suggested above ( any dietary restrictions, allergies, intolerances)
Maybe those patients who are able could be given a little booklet with questions to ask themselves & answers they should flag up to doctors. Patients may have changed their diet, exercise regime, working hours, type of job, amount of rest, environment etc & maybe should be mentioning these things to doctors.
People will lie about their diets-- they know what they SHOULD eat, and what they ARE eating is not close. It's even worse if you have an eating disorder. They, like this woman, may have bizarre restrictions on what they will eat, and not want to admit it.
@@argusfleibeit1165 that's why explaining to them their possible future is enough to make them confess. It may seem insensitive, but telling them straight up that your diet may be responsible, so the whole truth is necessary or you may never recover or something similar will make the patient more likely to say the truth.
I ran the 10k in college on a National level. I have also been anorexic since 12 years old and still struggle at 85 lbs 30 years later. I ended up not being able to hardly walk, with what we thought was shin splints…… but it was bilateral stress fractures. It’s not worth it. Trust me. I just had open heart surgery from complications or severe anorexia. I also have gastroparesis which I didn’t know. So with the most amazing medical service dog, after 10 months in Vanderbilt this last year and a GJ feeding tube, I hope to recover. Just be healthy. Much love from Kentucky Lesley and medical service dog Jake.
My husband is chronically ill and is frequently in the hospital. Never ever has a doctor asked so many questions and been so thorough. Investigating every aspect of his symptoms in order to diagnose him correctly.
they just give bandaids. Wont look at the root. Naturopaths will do that. Pay the extra money to get a nutritionist or a Naturopath to help out. Deep Warfare Prayer and healing my gut has been the best help with dealing with my dx chronic illness.
You're angry at the wrong thing. All that blood work analysis was done quickly and expertly, they just don't share every step like this, because they're experts and there's no sense sharing frightening yet mere possibilities with the lay person. The amazing, almost unbelievable, part of this story is all the imaging tests the insurance company approved. Must've been one hell of a policy. X-rays, MRI, CT; all approved without anything but subjective complaints and a rash? THAT'S why people get sent home- INSURANCE approvals DENIED.
You are right. This is the problem after Obamacare. Doctors have like 10 minutes to see patients and they aren't allowed to do tests unless they already know that they will likely be confirmatory. It's all about money now. It's horrible, sad and a sign of the times that we live in. After COVID, many people have damaged guts, damaged T-cells, and all kinds of other problems like kidney damage, asthma, allergies, autoimmune disease. People with COVID damage have to first heal the gut because everything else depends on it. They have to deal with any sleep issues and make sure that they are getting adequate sleep. Then they have to investigate what is left over after fixing these things over about six months or more. Working with specialists in heart, lungs, rheumatology, etc. can be helpful so long as they are the type of doctors who don't just prescribe pills but actually try to help patients. There are very few left like this and most of them who are honest have decided to become concierge because they can't spend enough time with patients on the big health insurance plans. I hope that your husband will recover soon!
Testing for vitamin and mineral levels should always be one of the very first steps because: - it's rather cheap - you can narrow down the possible diagnosis - you can check the overall health status, because only a well nourished and fed body has the best chance of healing and the best self-healing capabilities - if there are any deficiencies you have to check for compatability of supplements and medication.
does seem odd that the first panels didn't cover all this, all vitamin and mineral levels I feel like everytime I've been to the ED and gotten blood tests this is what they check. Especially with things like B12 deficiencies. They already checked iron, so it just seems odd.
I have been having to beg my Dr.s to just check my vitamin & minerals and I have know multiple deficiencys and must take supplements for almost everything and they tell me they can't just order them and all sorts of nonsense. I have had to fight for that testing so much and they sometimes tell me they did order it when they did not.
Ah yes, but they haven’t found a way to treat it with copyrighted and thus expensive drugs so must test for the drug-treatable stuff first. There’s no money in testing for vitamin deficiencies…
@homemade6950 have you tried naturopathic doctors? In my country that term is specific to people with verifiable training, whereas anyone can hang a shingle out for “natural care”. Nonetheless, some natural care type places can connect you with that type of testing. The downside is it’s almost always privately funded by your own pocket :/
Not a chance that a doctor orders a vitamins/minerals panel, even when there is anemia and the like. If I were a practicing doctor, I would order one for each patient. Until the hospital/practice manager tell all doctors to save money on avoidable tests - in places like here in the UK, with socialised medicine...
When my twins, who were preemies, were in the NICU it was a cafeteria staff member who first realized and told me I needed more ascorbic acid/vitamin C in my diet. After I got the orange juice she had told me to get she explained that a lot of first time moms believe the lie that babies won't drink breast milk if the mother drank or ate a strong source of acid, like oranges. She had worked there so long that she had figured out how to tell if a person wasn't getting enough vitamin C just by looking at them. I had worked in a post-op unit in a previous career, so I knew how strong those impressions can be having figured out how to recognize a woman in an abusive relationship just by looking at her eyes. When you have the experience of reading people that way you know what you know. It's amazing how long that skill lasts after you quit using it regularly.
People often get scurvy from taking too much ascorbic acid long term as well since ascorbic acid is only the outer layer of the whole vitamin C complex that is found in nature. If you must supplement, please use a whole food based supplement, not a lab created isolate.
While watching this...I called it, before the skin biopsy! My professor will be pleased. A patient's nutritional history is very important. Just discovered this channel and really appreciated this video👍🏻
In my experience, very few doctors would take the time to do all these tests to find out what is the causing factor in this woman's health. They simply say the pain is all in your head and send you home. The problem is, Doctors get paid regardless of the care they give you, so why would they bother? They already got your money when you walk in the door.
Exactly, if there is more work than they get paid for, they won't bother. There are very few doctirs left who actually care about their patients health and/or life. As to running multiple tests... forget it.
You just opened my eyes to my rash, fatigue, and pain in my legs! I have had hemoglobin issues lately, I need to go back to my doctor and have some bloodwork. Thank you.
@@marianking1379ascorbic acid is synthetic vitamin C. We actually need to be ingesting real whole vitamin C provided by real food. Best bet is to just look up foods high in vitamin C and double up on it. Beets are an excellent source of that but most people dont like them.
Sauerkraut was a big part of fighting scurvy on sailing vessels. Preserving citrus long term6is difficult, but cabbage has a lot of vitamin C. Pickling it and storing it in barrels made it a supply that could last months longer than fresh fruit.
I keep reading the C goes way up when fermenting the cabbage (krout). It's super easy to make, and I use red cabbage just to boost nutrient level even more.
@@chuachua-hj9zd Yeah, basically. Sauerkraut is pickled, fermented cabbage. It's usually finely shredded and not spicy, as opposed to kimchi, which from what I've experienced is chunky and spicy.
As I worked in the hospital drawing blood in the ER, we had a patient that died because of extrmely low vitamins and the dr missed to test for that. She learned such a lesson that every single one of her patients would get tested for vitamins before any extensive testing.
I had scurvy (massive vitamin c deficiency) + most other vitamins and minerals deficient, due to undiagnosed lyme disease my body was trying to fight. The doctors I went to, just shot the dozens of debilitating symtoms off as „mental problems“. It was so amazing, how fast I recovered/got ny life back by just taking high dose vitamins. I will never forget the start of it - from almost not being able to reach the bathroom by myself (for many weeks) to dancing around in joy, full of energy just hours later (because I started on Vitamin C and salt) I had bloodwork at the time, showing my salt (sodium) was deficient. The doctor said: „good job. sodium is bad for you anyway“ So yes - always start by looking what the body is missing, when you have symptoms!
@@evad8262 ummmm, what? Tbh seeing hyponatremia in anyone who doesn't eat some extreme diet would be a cause for concern... Honestly even if you did have a weird diet, you do need electrolytes to, you know, keep your nerves firing...
@@sianmilne4879 - simple reason: my adrenals could not cope anymore. my body just was so exhausted to fight against borrelia. (I had full blown addison symptoms) So many people (elderly, chronicly sick) are doing so much better, when taking in more salt. (and it is so wrong, that most doctors consider salt as „bad“)
Listen to the patient, don’t dismiss their concerns and information, and don’t jump to conclusions. Too many women have suffered (or died) because the doctor didn’t listen or brushed off their concerns. Be a great doctor and help your future patients to live their best lives! ❤😊
@@joanhoffman3702This. I am a woman with chronic stomach/pelvic pain. It's gone on for over 20 years. They've done the usual checks, mostly OK, but wouldn't look any further. Recently an emergency admission diagnosed me with gallstones, due to have gallbladder removed soon. On discussion with the surgeon it's possible alot of my symptoms could be down to it. He's amazed that no-one had ever checked seeing as I fit the 5 F's for gallstones to a T, Female, fair, forty/fifty, fat and freckles. Another F is for fasting : irregular eating habits. 1 in 3 women (over 2 times less in men) have gallstones. They can also cause referred chest/shoulder pain. Fingers crossed that my surgery will be the answer.
@@trippinggauntlet4520look into Dr. Eric Bergs videos about gallbladder issues first. You n me at be able to heal it without surgery. We aren’t meant to gave stuff yanked out of our bodies.
An old-school dentist like my USC trained stepfather would have spotted this problem immediately. As a nutritionist, I once had a client just like this patient. It took me 2 minutes to get to the root of the problem. Creating two separate camps, one of Physicians and the other of dentists, is a mistake. Excellent video! It actually had me wondering until the end. Your explanation of the essential molecules the body needs that require vitamin C for their production was excellent. It's wonderful that you introduced your listeners to L-carnitine.
The separation of dental from medical is something that baffled me. They are always preaching how dental health affects your whole body, but yet no one in a hospital can or will look in a patients mouth. Very frustrating as elderly cannot get to dentists when they are older, sicker, and/or afraid.
You are an AMAZING reporter/story teller. Im a Nurse and I am fascinated by this video. You can tell all of the work you put in and how much you enjoy the field! Thanks for the video💕
I've been dealing with tons of health issues for the past 5 years. Every doctor visit has been a total waste of time... each one either dismissing my symptoms or alarmed by symptoms and getting hyperfocused on MISdiagnosing me. At the same time, they've been resistant to getting extensive testing done... like how one doctor put it, "Look, I can order the MRI for you but we generally don't want to do that because it puts a strain on the medical system." Exact words. Anyway, I had to solve these issues myself. I studied and studied and determined that I needed to check my b12 levels, because that might explain my string of bad health issues. Sure enough, my b12 levels were dangerously low. The only reason I was tested for it was because I found a doctor who doesn't dismiss me, and I recommended that we check my b12 levels, and she said, "Oh sure, we can test your b12". It took years to find a doctor that would entertain my ideas. She asked if I ate meat. I said that I eat plenty of meat and even take b12 supplements, and that I would like injections for b12 because clearly my body isn't absorbing it through food or dissolvables. She actually just agreed with me, and didn't argue like the majority of US doctors I've seen before. United States health system is a terrible experience when you have mysterious chronic issues. You lose LOTS of money, time, sanity, and trust in the overall system.
Hi!! Glad to hear that you finally getting your vitamin check and can solve all your problems, so the b12 test shows low b12 in your blood? Or shows normal range?
Check to see if you have the MTHFR gene . I promise it is not a swear word, it's fixed by using the methylated versions of b vitamins especially B12. There's a lot on RUclips about B12 deficiency and how the gene expression prevents your body if you have this genes and the gene combinations, from absorbing B12 from food. I have that problem, and I take methylated b vitamins. I went to a holistic physician, best thing that happened to me
It’s significant that the last thing the docs looked at was nutrition. And that was almost accidental, since they noticed her food tray. Doctors really need more focus on human nutrition.
True. I had to find a Dr. who specialized in nutrition to lose weight & find out which supplements I needed. I lost 5 pounds a week, cutting out sugar/ soda. ( I was in my 30's). It's harder as I get older. Most Drs don't study nutrition. My sister in law, a registered nurse, never heard of CO Q 10.
@jaydencparker4968 Functional Diagnostic Nutrition Practioner. I help educate clients on how the body works, look for healing opportunities, use functional labs, and help coach clients through lifestyle changes to improve imbalances and bring health improvement.
It's difficult for a doctor to be an expert at medical practice and also nutrition. This is why highly trained registered dietitians are becoming so valued in the Healthcare system. We are trained to assess nutrition and even do physical assessments to identify diagnoses just like this!!
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
I wish they were readily available in my place. Microdosing was my next plan of care for my husband. He is 59 & has so many mental health issues plus probable CTE & a TBI that left him in a coma 8 days. It's too late now I had to get a TPO as he's 6'6 300+ pound homicidal maniac. He's constantly talking about killing someone. He's violent. Anyone reading this Familiar w/ BPD know if it is common for an obsession with violence.
@@BestOffer-ii9ny So sorry to hear this. Have you tried carnivore? I'm 72 and was disabled at 50 with chronic pain from fibromyalgia and chronic fatigue syndrome, anxiety and depression, and I believe the other diagnosis was Major Depressive Disorder. After going carnivore, my anxiety and depression are gone and I am off those meds, my pain is minimal, and I am no longer type 2 diabetic. Also lost ALL my excess weight while eating ALL I wanted and never going hungry. I know of a lot of mental issues helped by carnivore, including a friend who is a Navy Veteran. She has suffered for many years with PTSD, and no treatment has ever helped her. She is now much better after going carnivore. And this is available in ALL countries. Be careful with your husband, as I know what it is like living with abuse and sick husband. God bless you!! ❤️🤗🙏🙏
More fascinating is >>> Watch >>> LOW CARB LIFE ( RUclips ). This man has so much guest with testimonies, eating carnivore and keto/carnivore. People who got cured from depression, anxiety. So maybe, you do not even psychedelics. Good luck and whatch all videos on the chanel LOW CARB LIFE.🎉
honest to goodness I think you have just solved an issue I have... after 2 years of Drs and specialists not being able to find out what is wrong with me ... I think you just did it... it all fits so perfectly, down to the test results, that by the way the Drs did not connect the dots with would you believe... bless you ...
Returns to the old saying of 'You are what you eat'. The human body is quite remarkable when it comes to self-repair, and if we listen to what our own bodies try to tell us, it can boost our health quite nicely!
@@graveseeker Yes, in a Godless Dumb-Down Leftist "educated," neo Sodom Gomora/ sinfull world, where Sudden Adult Death, teaches us, "Death is the wages of sin." [Romans 6:23]
I had a very good doctor'. My cholesterol was higher than it should be. But instead of pulling out his prescription pad he asked me a question. He asked, 'what are you eating?' So I told him I love cheese and I was eating grilled cheese, cheese omelets, Mac and cheese, cheese crackers and cheesecake, so I don't have to eat much meat for protein. So he said, ' okay, I want you to cut way down on all that cheese and come back in 2 weeks . I did and my cholesterol went down 20 points. So I avoided a prescription drug because this doctor asked questions first. So I changed my diet. Thanks for the video.
We need more doctors like this 👍 I was also eating alot of cheese and was having horrible knee pains. I decided to do what I did so many years ago to cure my eczema, I cut out wheat, dairy and sugar. In 3 weeks knee pains greatly reduced. Then I incorporated exercises to reduce knee pain and strengthen the muscles that support knees. What a relief to be rid of the pain. It was so bad at times, I had to climb the stairs like a toddler.
I think disordered eating is more common than we like to imagine. It’s going to be important for medical professional to start probing more about what exactly people are eating or their attitudes towards certain food and diets. I’m hopeful that as these issues become more prominent culturally we can adapt how we advise patients to look after themselves, beyond weight and shape, and bring awareness to the dangers of restriction without oversight to treat things like rashes or IBS
There are way too many be scared of this food videos, which may result in clicks for content creators, but are not leading to good health for viewers. 😉👍💙🕊
Agreed. I also think (not that this is an unpopular opinion) that doctors need to have more training in nutrition and diet, on top of being willing to collaborate with dieticians in the medical setting. As a fat person, so many doctors have just been like "lose weight" and I'm like ok, any idea on how to? Any insight into diet? Exercise? I know the basic idea, but with how much misinformation and bs is out here on the internet on top of everyone's individual needs for nutrition, it's so irresponsible for doctors to tell patients to lose weight and not provide any sort of information (based on the individual because there still are variances) or referral to someone who could actually help (on top of also investigating beyond the weight and figuring out if there are underlying issues as well/not writing off patients because they're thin so they must be "healthy").
Or they could send someone who they were concerned about to a Registered Dietitian. Just got confirmation of a Zinc deficiency today from tests, but I was 90% confident I was correct from the clinical signs and the diet history.
@@Dietconsulting @stephaniethesoprano YES!! I know Drs can be hesitant, especially GPs in a clinic setting, to refer out for more input. Medicine should be tackled by a team, not a single person, or even a team with a single area of expertise. And stephanie, it is disgusting how often people are listened to or not based on weight stigma. I know those who have had medical issues ignored because "there's no way they could have high blood pressure at BMI 20"! Friends of mine have had their issues completely ignored and been told to "just lose weight", when it has NOTHING to do with what they came in for. Doctors may fail to even investigate further once they see someone's shape. Weight needs more separation from health in healthcare and I think there are some changes coming--there's some push to shift away from BMI--but for now, we are harming people and giving them disordered eating patterns. We're making people's entire lives about their weight, and psychologically, that is NOT how we maintain health.
As someone who has been a runner for a long time, I know how typical of us as a group it is to first think, "Oh, I will take a few days off and stretch some more, and I will be fine...." Sometimes we do need people like you to protect us from ourselves.
Thank you so much. My grandson is 8yrs old and he doesn't eat Any vegetables or fruits. I was just telling my son about the risk of scurvy if my grandson never eats vegetables or fruits. I am a retired nurse but I feel he might just see me as a nagging mom. I will share this video with his family. Love your videos😊
He's been primed to only eat the foods he loves. Sugar and refined carbs put one "off" real food. Any kids brought up on crunchy veggies and snacks will actually reach for them on the table. He's only 8. Time to limit the fake foods, whilst introducing the new.
What an expensive way of finding out a vitamin C deficiency. I hope doctors look into patient’s nutritional health more. Mine is great. She found out I had gluten intolerance from a few minor symptoms, during a routine check up. As soon as I cut out gluten all of the annoying symptoms went away.
@@cyan2067 Not pleasant symptoms that are embarrassing. But I’ll list them in case it helps someone. Stomach ache that was on the milder side, white lining material in the stool (I thought it was a parasite!), some bloating, and the worst and embarrassing was itching at anus. Basically my intestines and digestive tracts were irritated. It took about a week to notice that all symptoms went away when I stopped gluten.
My sister is going through something similar. Drinks too much wine, eats only one substantial meal per day. She’s been having b12 infusions but still no relief. I imagine she hasn’t disclosed her drinking and poor diet to her doctors.
There's a lot of promotion for the one meal per day. OMAD, it might be ok for some, but we all have different needs. I think moderation is preferable to the many fads being promoted. I hope your sister finds what she needs for good health.
Has she had confirmed a b12 deficiency? B12 is one of the "one carbon donors", the others are folate/b9 and the amino acid methionine; that together form a metabolic complex known as "one carbon metabolism". By default being low on one of these means you're low on the others as well, since they are co-dependently metabolized. Some other nutritional cofactors are copper, zink, molybenum, b2 and b6 for several enzymes involved to be formed. I dealt with this a while back and it took a meticulous diet to solve it. The symptoms were brutal! Also, some riskfactors for developing a deficiency are low intake, alcohol abuse, pregnancy and infections.
I'm 67, and all my life my family and friends refer to me as a "fruit bat," because I love fruit/veggies so much. No one in our household goes without fruit/veggies, so I can have a big sigh of relief after listening to your video. I am surprised I didn't think of scurvy, we take it for granted that people eat fruit/veggies- but in the US a lot of people cannot afford nutritious varied foods that we need... On that note, we always urge people to donate monies to their local food banks! It is one way people can supplement their diets :).
Plus the people who avoid fruits and vegetables are often not into their health so they eat many of the candies and drinks that are packed with ascorbic acid as a preservative.
And here I thought that the US is a rich country! Silly me. We eat plenty fruit and vegs Here in our country South Africa which is rated as a 3rd world country. That just goes to show. Even poor people have access to fruit and vegs.
@@guysumpthin2974 why not? I have been eating pork for the past 50years and am still healthy at age 74, no medication and praise God my Healer for it! Also butter, full cream and all dairy with fat on the meat and fruit and veggies. If there is something people should have much less of it is sugar and refined flour...those are deadly for sure.
I spend less on food than almost anyone I know and fruits and veggies. The problem is people eat a lot of junk food and so they don't like the taste of healthy food. Money is not the issue for 90% of the people.
This video is an example of infective enthusiasm. I would not naturally consider myself at all interested in a woman the other side of the world with a hard to explain medical issue, but this nurse with her cheery enthusiasm makes the whole thing enthralling and I had to watch to the end and I learned a bit too:)
It’s a good idea to make note of what happens to your body after you eat or don’t eat certain things, and use that information to protect yourself. What goes into our bodies is very important. And what we don’t put into our bodies matters as well.
Exactly. I've had intermittent painful joint issues that medical science has been CLUELESS re understanding (including specialists, lots of tests, etc). I've noted correlations re activity (like heavy exercise or lots of light exercise) and diet, and basically managed it MYSELF. A lot cheaper, less hassle, and more effective than lots of tests and "we don't find anything to treat". Thankfully, as I've aged, it's gradually gotten better, but it's still not gone and 43+ years is a long time to have such an issue.
Amazingly interesting! I had blood clots, had a surgery but there was no doctor to inform me what causes it! The blood clotting factors presented in your video blew my mind! My husband works as a registered nurse at the emergency department and he says that he loves it as he feels like a detective.
My 17 yr old son when to the dr for severe pain in his back and legs. I have fibromyalgia, herniated discs & nerve damage from a car accident we were in when he was younger. They didn't treat him when he was little because they said he'd heal. Now he's in so much pain, he can barely move without groaning. The dr we saw did an X-ray of his back, told us it was musclo-skeletal (not sure if i spelt it right) and sent him to physical therapy. We also found out he's magnesium deficient. We don't know what his vitamin c is - our son doesn't eat fruit or red meat. My son left angry and ashamed for being in pain. It's heartbreaking.
Keep digging! I hope you find answers. I’m not a doctor but I think there could be many causes. A lot of vegetables have just as much nutrition as fruits. Potatoes (eaten with the skin) have a lot of nutrition and most people like them. Just a suggestion… or you could look into a multivitamin.
So sorry he is going through that, he’s young he can get stronger. Our sons lives matter. We too often dismiss them in society. Hang in there mom. Heal his mind too. He needs help there too. ❤
What's even more fascinating about the doctor who discovered citrus fruits work to cure scurvy, is that he didn't use his own discovery. He believed the real cause of scurvy was "putrefaction." It took another 19 years until it was officially included as part of sailors' diets.
And even then they thought it was the acids or something, hence they used lime juice instead of lemon or other citrus juice, as they thought the more acidic the better it worked. And the reason that many other cultures/groups didn’t get scurvy is because they would pack fermented vegetables (sauerkraut or kimchi etc) to eat on their long boat voyages.
this is amazing, i think my dad has scurvy but doc failed to diagnose this, adter watching this video i asjed my doctor for a shit ton of Vit C prescription and now he improved his leg conditin. Thanks to you, keep up the good work 🎉
Your channel is FASCINATING!! As someone who has worked as a registered nurse for 23 years AND someone who has several chronic health and autoimmune diseases, I consider myself pretty experienced in symptom awareness and physical assessment. However, the scurvy diagnosis was completely unexpected. I've always related low vitamin B to nerve, muscle and sometimes speech impairment. Never have I considered edema, muscle pain or petechiae to be a symptom. Thank you so very much for this knowledge!! I appreciate every video you put out. I take away new knowledge from every single one that I watch❤❤
Instead of shaming patients for going on elimination diets for incredibly valid reasons, people need to be shaming the 'doctors', who do not understand- or care to understand- the why, and who refuse to support their patients in the way that they should be.
I just wanted to say I appreciate your channel so much, not all doctors on RUclips are created equal and I appreciate your knowledge, kindness and professionalism
Great video! The mystery of it really pulled me in. When I saw the rash my immediate thought was scurvy. I’m currently studying to become a dietitian, and I’d have been really curious to see what this patient was eating!
It's a pleasure to support the time and effort you put into these. Have really found interest in the one-week locum videos you've done recently, where the thread of investigation and diagnosis can show.
Yes I guessed scurvy when you mentioned her being in a restrictive diet and omitting the fruits and the vegetables. I’m an RN, I love your channel! Your enthusiasm in medicine and science is contagious! Great job!
I heard that glucose interferes with vit. C absorption and that carnivores need less C as a result. To the best of my knowledge, carnivores don't get scurvy.
I love the way you present medical information so people can understand how you break down the medical conditions that happen in our bodies. Thank you! 🙌🏻
I always learn so much from you! My husband is actually allergic to citric acid, so he can't have many fruits other than melons, bananas, and some berries. He was worried about how he can get vitamin C if he can't have a lot of fruit. So interesting that he can get it from red peppers and broccoli! We learned so much, thank you!
As someone who all my life was told I have a citric acid allergy I just wanted to share. 1. The ONLY commercially available blood thinner is straight citric acid, meaning beware of blood transfusions. And 2. Actually your body both NEEDS and makes citric acid. So while it is possible to have a sensitivity an actual allergic reaction is impossible as you would just die. A citrus oil allergy however.... is very common and covers pretty much all the same things. I always had problems with kiwis, strawberries and tomatoes too though, and the only commonality? Citric acid! 🤔 but guess what? Certain pollen allergies (in my case birch) can actually cross react with a citrus allergy causing people with citrus allergies to have problems with other fruits as well, even though it's not actually the acid but the citrus fruits. How does this help in practicality? No worries about blood thinners or all those things that add citric acid, avoid citrus oils, and you can probably have some kiwis and strawberries in smaller amounts, especially if it isnt pollen season!! Its a small detail, but it changed my life. I even found that I can have oranges in small amounts as long as I avoid the peel 🤯 but those mini peppers you can get at aldis are still my best friends. (90% vit c per!) Sprry for so long, Just wanted to share in case it helps you.
@@rileydruley3993 That is very interesting! Thank you for sharing! I sent everyone's replies to my husband to educate himself. I love Aldi and those mini peppers! I'm going to put some of them in his lunch for a snack 😊
Loved your energetic and passionate delivery on this and your other journeys of suspense and discovery. It's infectious...in a good way. You should teach. "Let food be thy medicine."
This is what I love about internal medicine -- the detective work. I figured it was diet related; some vitamin deficiency. Nutrition is the last thing doctors think about.
As an aspiring dietitian, I’ll just say it’s amazing how many people take on very restrictive diets without consulting a healthcare professional first. So many think healthcare providers won’t understand and will just judge them. We need to be aware of our biases to make patients comfortable with sharing what they’re doing with their lifestyles! Great video by the way, love the way you model clinical decision-making! (Edited for clarity)
My GP basically called me an ignorant moron when I told him what my diet was. He refused to even glance at any of the multitudes of articles I printed up for him to read on either at the appointment or in his spare time. He told me that I need to stop doing what I’m doing and start eating huge amounts of vegetables with a tiny amount of meat.
@@sidneybuckaloo I’m so sorry you had that experience! It really hurts when a doctor or other healthcare professional writes off what you have to say without even considering it. It happens way too often.
I’m in Canada. We do it here because they’re aren’t enough practitioners. Waiting lists are years long. You have to figure out how to get through every day on your own. Our health care system steps right up for acute cases and emergencies but for long term chronic conditions trial and error is the fastest way to figure things out.
The doctors no longer have time to thoroughly investigate anything! When they schedule 10 or 15 minutes per appointment, there’s no enough time to question things.
Had the opposite experience with my daughter. She had liver enzyme issue with no immunity to hep B even though she'd been vaccinated multiple times. We were sent to a specialist. She only talked abt diet and didn't listen to our answers. We are overweight so she already made up her mind what our diets were like. We said we ate chicken - she told me to stop frying so much fried chicken. It was boneless skinless baked chicken we were eating not fried. We said we only eat out once a month - she said try to cut back to once a week. Me and my daughter looked at each other like can you believe this. I said "ok increase eating out got it". We brought up how unhealthy the school menu was and she told my daughter to "take a pack of raisins". We've gotten better health advice for a cosmo mag. She didn't talk abt the liver and she didn't run any tests. I wonder how much she changed the insurance to judge us for being overweight and give her "recommendations"
Yep, just use doctors for what you need them for (blood tests etc ) then help fix yourself with that information. There's lots to try for liver issues. Fasting, coffee enemas, liver flush. I'd start with konjac noodles, well cooked mushrooms, TUDCA, and small amts of peeled apple. Slowly increase good fat. Butter, rare cooked steak fat. Don't give up. Try infrared sauna if you are in pain.
If you ever think you need a test the doctor isn't willing to do, an attorney gave me a script to use: tell the doctor I want you to write the medical criteria why you are refusing to do this test (what kind of test you are requesting). The doctor will automatically know that their liability is on the line and that you can take this letter to an attorney so they will answer you that they don't do that or they won't do that and then you say: I want you to write a letter describing the medical criteria why you are refusing to do this test and I want to copy of it placed in my medical record as a permanent part of my record. They will either leave or ask to be excused for a moment, go out of the room, and come back with completely cooperative. They will order the tests, refer you to the specialists or order the diagnostics, whatever it takes to clear their liability. I hope this helps.
Yes..I agree, doctors don't know much when it comes to dietary needs when it comes to medicine . It's usually just take a pill & it will fix the symptoms...never mind the cause! ?.
I'm a regular person with nutritional knowledge. As soon as she said petechiae and bruising, I thought oh, Scurvy perhaps. How could doctors not know this? Interesting to hear about how things can get when severe though.
You ask how doctors "could not know this," but western medicine schools, from all I hear and have observed myself, they don't spend too much time teaching new docs about nutrition. Isn't that amazing?!😮💥🤯💥 If big corrupted greedy drug companies can't make a ton off of patients pushing their prescriptions, and vitamins are cheap--you can buy them almost everywhere, where is the profit in researching nutrition??
This poor woman's pain aside, must have been pretty cool for the doctors and nurses to see an actual case of scurvy outside the textbooks. Like a little time traveling.
@@anyatrioli3734 No doubt a lot of us are broke, but if scurvy is on the rise, lifestyle would be the culprit. An orange costs less than a bag of chips. Choose wisely.
I have a nutrition degree, I did figure it out, but should have a lot sooner. Knowing about the very restrictive diet really was key...I hope Jennifer talked to a registered dietitian, and maybe an allergist since she was worried about food sensitivities and allergies, as well as someone experienced with eating disorders...
This!!! I get being concerned about food allergies or sensitivities. I have hypothyroidism which has made my body not tolerate gluten as well as it used to. I talked to a dietitian who told me that certain vitamins and supplements can help with that. One of those supplements has also helped put my thyroid in check as well. Who knew selenium could be so powerful?
@@mcrchickenluvrWhy would you take supplements or medications when you could just eliminate gluten? No one should be eating it. Zonulin wears holes in the intestines. Also, it is well-known that if you have thyroid problems, you should not be eating it....
Agreed! We are what we eat! However, there's a difference between allergies and intolerances with foods. Allergies cause a histamine response - which is what the allergist tests for. An intolerance causes inflammatory response, and there are currently no tests for that! The only way to determine intolerance is diligence in doing an elimination / reintroduction diet. (I've done it, and it was tough! ) To really do it thoroughly, it can take 3-6 months or more, depending on the body's reactions. Most people don't want to put that much energy into documenting what they eat. I was lucky enough to have a doctor who knew about the importance of the positive and negative impact of foods. She insisted I do it, & she checked my progress every month for 6 months until we had clear information! I'm doing much better with 12 years using an informed choices diet. What we put in our bodies needs much more attention in med school as well as general education. Plus, what we eat needs to be much earlier in the diagnosis process!
Hello Dr. when you talked about her restricting fruit and veggies from her diet due to her fears of allergies I right away concluded that her symptoms were brought on by downstream manifestations of nutritional deficiencies, now I ponder that why the medical professionals are not honing on to the simplest issues at the same time by first asking the patients about their life style rather than first focusing on the worst. I fervently believe that our approaches to nutritional education of the patients would eliminate lot of these issues. I am not a medical doctor but 90 % of my family is and these are the conversations I have with them on a regular basis and being heath centric with emphasis on nutrition as well as social connectivity is the key to our health.
I love your enthusiasm and the way you can explain everything it's so easy to understand it. Thank you so much for sharing all of your knowledge with us ( the public, and your followers ).❤😊
Thank you, I'm on the carnivore diet for about a year now & I used to supplement vitamin C but haven't in a few months now... Ive been bruising easier & habing issiues w/one knee ... I'm loading up on vitamin C as i write this *thanks for the reminder!*
@@drSJV If your diet has very low sugar in it the vitamin C eaten in meat is adequate. Also, it should be noted that meat is more bio-available and thus absorbed by your body more thoroughly when compared to fruits and veggies. This is why those on the carnivore diet don’t you most likely don’t need to take supplements of Vitamin C or sneak in a fruit or veggie high in Vitamin C..
I’ve been doing carnivore for 7 months, but unlike most feeling amazing, my energy has lowered, so I’m adding in fruits and honey per Paul Saladino. I think I’m one of those people who does best with some carbs. ❤
I have a problem with something that you said at the 1:59 mark. "As a doctor you're trained to think about the most deadly conditions first". I must have listened to over a thousand videos on RUclips where doctors have said the exact opposite. That the most simple explanation is more often than not, the correct one, and if someone has a sore knee is probably just a sore knee and not some rare cancer. This is why serious diseases (like cancer) go untreated and undiagnosed for months if not years. I live next to one of the best and largest hospitals in America. My mom had lung cancer and they insisted that it was allergies for MONTHS before they ever correctly diagnosed her. By that time, it was too late. :( I know that YOU seem like a very smart and "on top of your game" doctor, but not everyone is like you. I wish they were though.
Initially, sailors were fed dried meat during long voyages, and they never got scurvy. In order to reduce costs, they started to feed sailors grain instead of meat. This is when they started to get scurvy. Carbohydrates prevent the absorption of vitamin C and that is why they got scurvy. Interestingly enough, this is why people who have been on a carnivore diet for decades never get scurvy.
I'm so impressed by going through such in depth lengths that one solved this medical mystery. I am almost on 2 years and I still believe I do not have an accurate diagnosis on why I am having difficulty walking. I had been an active individual and now just holding on.
Same! Still undiagnosed with anything that explains my weakness in my legs. From super active to struggling to get up the stairs--at many pints bedbound for months. 4 years in, 12 specialists later, and still not diagnosis. I hope you get both answers and recovery! ❤
Love your videos! I wish all doctors had your enthusiasm for diagnosis. (My husband went to several doctors over 4 years, telling them something was very wrong as he felt terrible and was always exhausted. Doctor #7 finally figured it out when he was completely decompensated; at that point, his liver tumor was 20 cm. He had fibrolamellar cancer, not regular hepatic cancer, and fibrolamellar is unrelated to hepatitis or cirrhosis. They should have listened to him when he said something was very wrong. He mostly got told he was getting older and maybe he had a chronic sinus infection . . . Despite bad bloodwork, nobody seemed interested in really figuring out the problem. I guess he didn't look the part because he was our state's number one road bicycle racer at the start of it. He ended up dying after a heroic and brutal 5-year fight that may never have happened with an earlier diagnosis. So, keep being the awesome doctor you are!) I had some tremor issues and, as an active person that ate well (Ironman-distance triathlete), I had no idea what the problem could be. Turned out I was deficient in Vitamin B1. I didn't eat a lot of processed foods that were fortified with thiamine. Not a fan of beans. I do eat a lot of fish and other meats. For whatever reason, my body seems to use more, and I have to supplement to stay in the normal range. It does go up with supplementation so not likely an absorption issue. Who gets Beriberi? Apparently, I do.
Who gets BeriBeri? I had rock bottom Thiamine (Vitamin B1) with IBD. GI inflammation can impair GI absorption. eg colitis. Apparently Vitamin B1 can drop down to concerning levels in just 30 days if it’s deficient.
Medics get really excited at such a rarity of our times 😆 I know of one case in Dublin where a lad had restricted himself to beer and Pot Noodles! When an eventual scurvy diagnosis was arrived at EVERYONE came around for a look. Most had never seen it.
Excellent Doctor!! Im a dietitian and I really enjoyed the video. It made me think how many clinical conditions and symptoms are actually related simply to some sort of nutritional deficiency that is never diagnosed.
Thinking of how physicians are more likely to recognize diseases they have seen before, I was reminded of a co-worker of mine (in central California). She went back to Chicago to be with her folks for Thanksgiving, and came down with a a terrible foamy diarrhea-- bad enough that they admitted her to the hospital. The Chicago doctors couldn't diagnose it, so she came back here and went to a local doctor. The symptoms complemented by history (she had gone hiking in the mountains shortly before she left for Chicago) pointed to giardiasis (colloquially known as beaver fever), for which she was treated and recovered. It is a parasitic disease of beavers that can be communicated to humans; when beavers were re-introduced near Yosemite they weren't tested for it, and brought it with them.
Giardia is a bacteria (I think) and is in many water supply, like wells, lakes, etc. Any private or public water supply can have it. Many hospitals have additional water filtration and treatment, to try and reduce patient risk, in case its present , even in low concentration. . (Already low immunity while in hospital). Google giardia in water. Lots of information out there.
It's not a beaver specific disease. Giardia is a common parasite in open streams and lakes where animals poop...which is everywhere. Hikers normally do not consume untreated water because of this. Yes, dogs and other animals can get it, but there is medication.
Ever so grateful for your description of this condition- I've experienced it...?!very terrifying -yet so easily helped...if only I'd realized it then...THANK you!
I like the way you tell your stories, and letting us try to guess the diagnosis. I’m in my 60’s and just now learning about real benefits of nutrition ? This should be taught in school not just from mom saying ‘eat your vegetables’ .
Reminds me of Dr Grenfell's work on the East Coast of Canada. One girl was healthy while all other family members were sick. Turns out she was eating potato skins from the garbage pail and was the only one without a vitamin deficiency.
All the vitamins in a potato comes from the skin itself while the rest is mostly starch, because it's a root vegetable spending most of its life in the earth.
Sorry you have had such a bad experience with your healthcare providers. I've had good care with my doctor and health plan willing to keep looking for the cause of hard to identify problems. There're good people out there, good luck fine one to help you look after your health. 😉👍💙🕊
The patient isn't the bottleneck, you could provide all the information in the world in any format to the doctor and it would make no difference. Zero answers, zero help, zero prevention, zero mitigation, western medical way. Dr. Google is far more useful. Can't wait until we have ChatGPT medical vending machines that roll into the office on wheels, spit out a lab requisition or prescription and be on our way. Same or better outcome, less wait, less money.
@@Globodyne that would be so nice! There's time you know exactly what it is.. like an ear infection but you have to sit and wait for hours for the Dr to tell you it's an ear infection and write a prescription.. that takes 3 mins
I guessed immediately. I take supplements to avoid this myself. I have severe gastro issues, so I’m on an extreme low residue diet, which means practically no fruits or vegetables. With so much societal disdain for overweight people, I often have to educate doctors who attribute my malnutrition to what they assume is a poor diet from laziness, bad food choices, etc. It’s immensely frustrating that the people with the greatest understanding of the millions of diagnosis out there get so pigeonholed into the “obvious”.
Don't do supplements is not the full form of C drink lime water. Full form of C Stay away form all sugars and all foods that make sugar potatoes, pasta,rice,all grains,corn,night shade vegetables. Will fix your GI issues plus restore vitamin levels
I guessed the anemia part immediately but maybe that's a bit easy lol. I didn't guess the actual diagnosis until you mentioned she cut out all fruits and veggies. Also wanna say that as a medical nerd who can't actually work in healthcare, I love these types of videos! They're so fun
Then you need to FIRE your GP (and your insurance company if necessary). Their job is to cure the patient. Denial of diagnostic services is cause for lawsuits when permanent disability or death is the result.
The diet hint did most of the heavy lifting for me 😄 Symptoms implicating joints + vessels (weakened capillary walls causing leakage of fluids and Hb) -> connective tissue disorder + nutritional changes = possible Scurvy. I really enjoyed this kind of video, It's great to see the process of elimination in a diagnosis mapped out like that!
Did you figure out the diagnosis before I revealed it in the video?!
Nope I didn't but I feel like I got a good educational video to start my day!! Keep up the great work Doc! Look forward to the next
Nope. At first I wondered if it was Compartment Syndrome.
I kept comparing it to my own mystery illness: fatigue, pain in all joints, mental fog, all of which comes and goes, sometimes bothering me for hours or for weeks, then going away for days or weeks. My blood tests were mostly normal, so the PA asked me if I wanted a referral to rheumatology. I'm like, how would I know who I need a referral to? I don't want to bother a specialist if it's something simple like eating more oranges.
Yep just as you said she didn't eat any fruit and most vegetables. I remember hearing about scurvy and it just jumped out at me.
No I didn't. I love this content though. More like this would be welcome. ❤
Nope, was thinking of the b's first before I went to the C
I spent 22 years horrific years of my life trying to get an autoimmune diagnosis. In the end, it wasn’t a doctor who figured it out, it was me. Be your own advocate! Unfortunately, my journey with the medical community did not improve after getting a diagnosis. Women, in pain, without obvious reasons, is not taken seriously. Must be hysteria. So my faith has been deeply shaken by doctors.:(
Agreed. I keep going to the er for unbearable pain in my left upper stomach abdominal. I get morphine. Ct scan blood test. Because I have uri often ( kidney problems( thry immed go uti. Even though cultures always come back normal. Then the go i dont see a problem. Send me away . Last one just said I dont know why your in pain. . Thencdischarges me. Been 3x. Yes the imned morphine helps. But I go in unable to sit . Its infuriating. How did you figure yours out. ,
@@jamesingwersen4240...have u been checked for h.pylori? Simple test. Keep pressing them.
@@jamesingwersen4240...lots of things cause pain in that area. Referred gallbladder, h.pylori infection, ulcers, cancer. Why are they checking your kidneys when it's your stomach area? Renal conditions usually affect back not stomach.
Check out Dr. Brooke Goldner 🙏🏾
This is so true!
As soon as you said the part about her not touching most of her food I yelled "SCURVY!" at my monitor, lol. Glad I was right and didn't embarrass myself in front of my cat
Hahaha love this!
I guessed it at the pinpoint bruising…
@@SDChick Good for you?
Same here 😂
@SDChick same:)
The fact that doctors do not ask about diet before going into lengthy investigation of 'unusual' symptoms is mindblowing
The sad part is that most doctors don't know what a healthy diet consists of...ditto nutritionists. It's the training (or lack thereof).
And that in aaaaalllll of those blood tests they don't just test people's vitamin levels from the get-go. Especially here in the US where just about nobody eats a proper diet and almost nobody has access to a nutritionist. Our education system when it comes to diet is pathetic. Why wouldn't you first test their vitamin/mineral levels? That alone could narrow the field tremendously when you're dealing with weird cases.
E X A C T L Y 🤦♀️
Thats how the hospitals earn by making patients go through lots of examination
Now days do doctors still care about your diet?
Nearly died of heart disease and NAFLD. Plus had a myriad of gastric problems.
Not once was I asked about my diet, or given any dietary advice.
I discharged myself against all protestations from the doctors and have spent the last 3 years figuring it all out.
Grateful for my life! ❤️
Was it your liver causing your gastric issues, I have them and I wonder what your diet was to help yourself? Thanks
@@angelataylor2049Had huge gastric issues. Much better, but not fixed entirely (yet).
Probably a lot caused by liver. Also have food allergies, so my diet is probably not for everyone.
Just recently went NO SALT and NO SUGAR.
This has helped both the heart and liver immensely.
Also I avoid all oil except very high quality olive oil.
Someone mentioned somewhere they can only take Spanish olive oil and not Italian. This has been true for me too! 🤷
I have veggies, chicken, fish and fruit. Not very exciting I know.
The biggest thing I've found arr things with both oil and salt in - ie. packet chips and processed foods.
You'll need to work out what's right for you of course.
Takes a lot of experimentation - and much frustration!
But you can do it! 😊
Good Luck! ❤️❤️❤️
Almost died and discharged yourself anyway… alright. Really glad you’re ok
@@angelataylor2049 Hi! They didn't even discuss my gastric problems with me, but I've been continually changing my diet over 3 years - and making many mistakes!
I think it will always be an individual thing, but only recently I gave up ALL sugar and ALL salt. (I still miss salt). 😫
But if you have no heart problems, lower your salt intake a lot, but DEFINATELY give up all sugar.
My diet has been whittled down to lightly sautéd veggies, with herbs and garlic etc. (Give up very spicy stuff for sure).
Fish or chicken, either steamed or lightly fried in extra virgin olive oil.
Eggs. I've been making omelettes. Olive oil again.
Some fruit, but not much.
Some nuts. (Dry rossted). Not all nuts agree with me, you'll have to check for yourself there.
No grains or dairy.
No processed foods whatsoever.
It has taken me 3 years to actually get this far. I had such little willpower. Obviously you don't need to be so strict. Play around and see what's right for you!
Oh, I'm now taking a lot of supplements. I've tried those for years, but vitamins etc. also made me feel sick. 🤷
But now I can take certain ones.
Had blood tests a few days ago and my vitamin and mineral results were top notch!
Hope this was somewhat helpful. Good luck! 💚
A carnivore diet or keto Low low carb will help a lot.
I'm shocked the doctors even bothered to keep looking. Most I've seen will order a few tests and when they are normal, they just give up. I'm glad they didn't give up on this lady.
That's exactly what I was thinking! My thought was since Canada has universal healthcare, they didn't mind ordering all those tests.
Same
True, in the US they'd give her pain meds and send her home with a referral lol
i was wondering how long she suffered with symptoms before her diagnosis ...
Me too.
The wildest thing about this story was that the patient a) wasn't told it was all in her head and sent home, and b) not accused of being drug seeking and sent home
I know. I get that all the time from the doctors around here.
Same
Yep
Spot on! (Sadly). As a chronically ill person with a very painful autoimmune disease that most drs know precious little about; I've experienced that COUNTLESS times. Two different times, it nearly cost me my life. I am also in a wheelchair, and when I showed up for what ended up being polymicrobial, highly resistant bacteremia. I was in a ton of pain and had a temp of 103 F. They refused to give any pain med other than Tylenol, and would not even look at or talk to ME about my symptoms. There was absolutely no good reason for this, and I kept asking them to speak to me. Nevertheless, they ignored me and addressed all their questions, etc to my husband. It was not because they couldn't understand me, I certainly wasn't being disruptive; nothing at all like that. It was WILD. I wish I could tell you that it was the first I'd experienced it, but it wouldn't be the truth.
This particular time, I just couldn't take the pain, and we ended up leaving so I could take at least my regular pain relievers at home. At least they had drawn blood cultures, but they take two days to finalize. Two days later, we get a phone call from an infectious disease doctor we actually knew. It was right at the beginning of the COVID crisis; when it was really deadly and there was no vaccines, and no specific treatment protocols...basically trial and error and just treating it as a typical respiratory virus. A lot of people were succombing to it; particularly immunocompromised people like myself. The day after our hospital visit, the Governor (we live in Michigan) signed the lockdown order, and visitors were barred from hospitals.
Anyway; this doctor was doing 24 hour shifts at the hospital, and had already lost several patients. The ICU was now full; and it was the same or nearly so across the state. I literally felt SO bad for this man; who is so compassionate, because he sounded so tired and just; well...haunted. Soon, we knew it wasn't just because of the COVID patients he was losing.
He told us that I had six different organisms in each culture (they took two separate samples...one from my port, and one from my arm. It's how they confirm that it isn't just accidental skin contamination. If you get the same results in both, it almost certainly is actually in the bloodstream). He told us he had never seen this in 20+ years of I.D. practice, and how sorry he was. He told us that he would be happy to admit me if we wanted that, and they could try some things and maybe help with the pain, but that he knew of no case in which someone; even younger patients like myself (I was 40 y.o), had survived something like this. I told him how much I appreciated him calling, and his kindness over the years. I said that I didn't want to go back to the hospital though. If he really thought it was that unlikely to change anything, then the ICU with no visitors even allowed was the LAST place I wished to be. I was NOT going to be saying goodbye to my family on FaceTime. He said he understood, and respected that. I asked about hospice care (I'll interject here that this was hardly a new topic of discussion for us. My husband and I had been living with the uncertainty of my roller-coaster health struggles for a long time. It had never been this real before, but I had a living will, and we had discussed what we though we would do when this inevitably happened one day. The doctor actually sounded a little better by the end of the discussion; simply because he realized he hadn't actually rocked our world quite as much as he had feared. I told him I was okay, and not to worry about us. Afterward, we called my primary care doctor, and had hospice in less than 48 hours later.
Needless to say, I didn't die. (Sorry...I am not writing from rhe hereafter; cool as that would be, lol). How did that happen? Well; it's anybody's guess really, but there is a theory. First; I found out that's its not all that uncommon to "graduate" from hospice...and I don't mean via a pine box. The body has healing mechanisms we don't fully understand, a prognoses are always just a best guess based on available statistics. The younger and stronger we are, the more difficult it can be to accurately predict how an illness will impact us. The best guess for how I survived is that while I was sick with the bacterial infections; I also ended up getting COVID, which did progress to pneumonia. In both conditions; the frequent cause of death is cytokine storm, or the massive immune response that develops. It not only kills the infection; but it can also kill the body itself in the process. Because I was on immunosuppressants, and was fighting two infections at the same time, it may just be that my immune system was prevented from mounting that kind of deadly reaction, but nevertheless reacted ENOUGH that (after almost six months) I could recover (from the most immediate threats anyway). But; as I said, it's anyone's guess. I've had people tell me it's a miracle; and maybe to them it is. But for me; as well as my family, it is WAY more complicated. It would be nice if our Healthcare system and communities at large were more prepared to deal with medical PTSD. If there's one thing I have learned in this, it's that we have an epidemic of medical trauma. Anyone who goes through a major illness or surgery; or has a loved one go through that, definitely is going to have some trauma related to all of that, and addressing it well would predictably have a significant effect on overall health, including long after that traumatic situation has passed. In meeting so many with experiences like mine, the scale of this public health threat is every bit as dangerous (or more so) as COVID).
While I didn't die (not yet anyway); this experience had an ENORMOUS impact on my life. To be honest, I struggle with where I am now. My body is even more screwed up than before, and my mental health has also taken a beating. Between my illness and my dad's diagnosis with Alzheimer's over the same period, my family has also suffered a lot. My sister; whom I've always been so close to, has basically cut ties. She's a good person, but it's like she just couldn't cope. She literally accuses us of making up the situation; despite the fact that she took care of me herself while I was sick. She was here for every hospice visit. Of course it doesn't make any sense, and I KNOW she knows that. It is really bizarre, but she simply cannot face how close she came to losing me. You'd think that she wouldn't respond to that by purposely cutting me off; but logic isn't part of this. She is traumatized. I have severe PTSD myself, and there is a LOT that I have no memory of...it turns out that when your brain is boiling, it doesn't work so well. Anyway; it has been tough. I think that ut honestly probably would have been easier on everyone if I had died. But I didn't. I had no choice then, and I have fewer still now. This kind of experience; and just long term illness and disability in general, is EXTREMELY isolating. I have also since found out that my sister's reaction; while not terribly common, also isn't exactly rare. Our society is really weird about illness, disability, and ESPECIALLY death, and none of that is helpful at all. My sister and I had a lot of trauma growing up, and she also is a war vet. She recently entered treatment for alcoholism; which surprised me. I don't know what will happen down the line, but I've had to accept that she may never be able to go back to being the sister I once knew. I won't ever be the same either. I have had little treatment to manage my conditions since that time, because I literally can't go to a medical facility and not have a massive panic attack. I haven't been in our master bedroom in our home for three years because the worst panic attack I had was going in there after all of this; when I was immediately back in the time where everyone was there, waiting for me to die. It's funny, because now that it's over, everyone else has moved on, but I am like the walking dead...alive, but not really living. I am; mentally and physically, a shadow of who I once was. Much of my medically related trauma, and the reason I struggle to get even basic preventative care now, is because of the years of dismissal and even outright cruelty I have faced by the medical profession...long before AND since my hospice experience. We have a very LONG way to go in terms of dealing with medical gaslighting, profiling, etc; particularly when it comes to women, those experiencing mental health struggles, and those with visible and invisible long term illnesses and disabilities. 💔
Spot on! (Sadly). As a chronically ill person with a very painful autoimmune disease that most drs know precious little about; I've experienced that COUNTLESS times. Two different times, it nearly cost me my life. I am also in a wheelchair, and when I showed up for what ended up being polymicrobial, highly resistant bacteremia. I was in a ton of pain and had a temp of 103 F. They refused to give any pain med other than Tylenol, and would not even look at or talk to ME about my symptoms. There was absolutely no good reason for this, and I kept asking them to speak to me. Nevertheless, they ignored me and addressed all their questions, etc to my husband. It was not because they couldn't understand me, I certainly wasn't being disruptive; nothing at all like that. It was WILD. I wish I could tell you that it was the first I'd experienced it, but it wouldn't be the truth.
This particular time, I just couldn't take the pain, and we ended up leaving so I could take at least my regular pain relievers at home. At least they had drawn blood cultures, but they take two days to finalize. Two days later, we get a phone call from an infectious disease doctor we actually knew. It was right at the beginning of the COVID crisis; when it was really deadly and there was no vaccines, and no specific treatment protocols...basically trial and error and just treating it as a typical respiratory virus. A lot of people were succombing to it; particularly immunocompromised people like myself. The day after our hospital visit, the Governor (we live in Michigan) signed the lockdown order, and visitors were barred from hospitals.
Anyway; this doctor was doing 24 hour shifts at the hospital, and had already lost several patients. The ICU was now full; and it was the same or nearly so across the state. I literally felt SO bad for this man; who is so compassionate, because he sounded so tired and just; well...haunted. Soon, we knew it wasn't just because of the COVID patients he was losing.
He told us that I had six different organisms in each culture (they took two separate samples...one from my port, and one from my arm. It's how they confirm that it isn't just accidental skin contamination. If you get the same results in both, it almost certainly is actually in the bloodstream). He told us he had never seen this in 20+ years of I.D. practice, and how sorry he was. He told us that he would be happy to admit me if we wanted that, and they could try some things and maybe help with the pain, but that he knew of no case in which someone; even younger patients like myself (I was 40 y.o), had survived something like this. I told him how much I appreciated him calling, and his kindness over the years. I said that I didn't want to go back to the hospital though. If he really thought it was that unlikely to change anything, then the ICU with no visitors even allowed was the LAST place I wished to be. I was NOT going to be saying goodbye to my family on FaceTime. He said he understood, and respected that. I asked about hospice care (I'll interject here that this was hardly a new topic of discussion for us. My husband and I had been living with the uncertainty of my roller-coaster health struggles for a long time. It had never been this real before, but I had a living will, and we had discussed what we though we would do when this inevitably happened one day. The doctor actually sounded a little better by the end of the discussion; simply because he realized he hadn't actually rocked our world quite as much as he had feared. I told him I was okay, and not to worry about us. Afterward, we called my primary care doctor, and had hospice in less than 48 hours later.
Needless to say, I didn't die. (Sorry...I am not writing from rhe hereafter; cool as that would be, lol). How did that happen? Well; it's anybody's guess really, but there is a theory. First; I found out that's its not all that uncommon to "graduate" from hospice...and I don't mean via a pine box. The body has healing mechanisms we don't fully understand, a prognoses are always just a best guess based on available statistics. The younger and stronger we are, the more difficult it can be to accurately predict how an illness will impact us. The best guess for how I survived is that while I was sick with the bacterial infections; I also ended up getting COVID, which did progress to pneumonia. In both conditions; the frequent cause of death is cytokine storm, or the massive immune response that develops. It not only kills the infection; but it can also kill the body itself in the process. Because I was on immunosuppressants, and was fighting two infections at the same time, it may just be that my immune system was prevented from mounting that kind of deadly reaction, but nevertheless reacted ENOUGH that (after almost six months) I could recover (from the most immediate threats anyway). But; as I said, it's anyone's guess. I've had people tell me it's a miracle; and maybe to them it is. But for me; as well as my family, it is WAY more complicated. It would be nice if our Healthcare system and communities at large were more prepared to deal with medical PTSD. If there's one thing I have learned in this, it's that we have an epidemic of medical trauma. Anyone who goes through a major illness or surgery; or has a loved one go through that, definitely is going to have some trauma related to all of that, and addressing it well would predictably have a significant effect on overall health, including long after that traumatic situation has passed. In meeting so many with experiences like mine, the scale of this public health threat is every bit as dangerous (or more so) as COVID).
While I didn't die (not yet anyway); this experience had an ENORMOUS impact on my life. To be honest, I struggle with where I am now. My body is even more screwed up than before, and my mental health has also taken a beating. Between my illness and my dad's diagnosis with Alzheimer's over the same period, my family has also suffered a lot. My sister; whom I've always been so close to, has basically cut ties. She's a good person, but it's like she just couldn't cope. She literally accuses us of making up the situation; despite the fact that she took care of me herself while I was sick. She was here for every hospice visit. Of course it doesn't make any sense, and I KNOW she knows that. It is really bizarre, but she simply cannot face how close she came to losing me. You'd think that she wouldn't respond to that by purposely cutting me off; but logic isn't part of this. She is traumatized. I have severe PTSD myself, and there is a LOT that I have no memory of...it turns out that when your brain is boiling, it doesn't work so well. Anyway; it has been tough. I think that ut honestly probably would have been easier on everyone if I had died. But I didn't. I had no choice then, and I have fewer still now. This kind of experience; and just long term illness and disability in general, is EXTREMELY isolating. I have also since found out that my sister's reaction; while not terribly common, also isn't exactly rare. Our society is really weird about illness, disability, and ESPECIALLY death, and none of that is helpful at all. My sister and I had a lot of trauma growing up, and she also is a war vet. She recently entered treatment for alcoholism; which surprised me. I don't know what will happen down the line, but I've had to accept that she may never be able to go back to being the sister I once knew. I won't ever be the same either. I have had little treatment to manage my conditions since that time, because I literally can't go to a medical facility and not have a massive panic attack. I haven't been in our master bedroom in our home for three years because the worst panic attack I had was going in there after all of this; when I was immediately back in the time where everyone was there, waiting for me to die. It's funny, because now that it's over, everyone else has moved on, but I am like the walking dead...alive, but not really living. I am; mentally and physically, a shadow of who I once was. Much of my medically related trauma, and the reason I struggle to get even basic preventative care now, is because of the years of dismissal and even outright cruelty I have faced by the medical profession...long before AND since my hospice experience. We have a very LONG way to go in terms of dealing with medical gaslighting, profiling, etc; particularly when it comes to women, those experiencing mental health struggles, and those with visible and invisible long term illnesses and disabilities. 💔
Never had a doctor be that curious about health. Generally if you're not dying they do one test and then tell you to go home and exercise. Your friends keep asking if you've seen the doctor and you've seen 12 useless ones. You occasionally get a sympathetic specialist that says your other doctors should really care more about that but it's outside their field, have a nice day.
I have to add “but your labs look normal”.as a common answer too. Frustrating
@@celestejohnson9227 images show abnormalities but those are not pathological.
Yea I think her rapidly dropping hemoglobin indicated that she pretty much was
Modern Docters in a nutshell:
Doctor proceeds to Google your symptoms on web MD....
"I see you are suffering quite severely from day to day, but all your tests are normal and you are not dying, so have a nice day!"
Yep
This is also where British sailors got the nickname, "limey", from the lime juice they would carry aboard ship to ward off scurvy. It kept much longer than fresh produce. Finally, this is also where limes began their long association with rum.
Many, many years ago (1959-1961) I volunteered at a poorly funded public hospital in the children’s ward, usually reading to kids or running errands for the overworked nursing staff. Occasionally, because of lack of staff, they asked me to do something that probably wouldn’t happen today; help with a patient. In this case, an 18 month old child was admitted with scurvy (and his mom charged with neglect) because she had never fed him ANYTHING other than grocery store milk in a bottle, and was leaving him alone for hours while she partied. That poor baby was prescribed a balanced diet of puréed veggies, fruits and meat, but he wasn’t having it! My job was to cuddle him on my lap with his arms pinned while the nurse spooned in the puréed peaches, etc. He couldn’t go to a foster family until he tolerated being fed; fortunately that only took a couple of days.
We are not taught how to deal with babies. Fortunately, most of us figure it out. Unfortunately, there be narcissists among us.
Awww, the poor little soul. Some people don't even love their own baby. So sad!
You are a true hero.
Thank you.
@@graveseeker Learning about babies is no longer treated as a normal part of life.When I was growing up,it was.I'm from a large family.My aunt had 10 kids.As soon as an older child reached age 4 or 5,they were given responsibility for a younger child,including changing a diaper,giving a bottle or food(and learning to prepare same),and tending and playing with the baby while mom was busy with housework.If anything happened that the older child couldn't handle,go get mom.My sibs and I were all a year apart,so this didn't apply,but my aunts with enough kids to do the two-tier thing did.If people did that with kids today,some busy body would turn them in for child abuse.
Two years ago I came down with a rare and painful disease called "polymyalgia rheumatica". I saw a doctor who sent me to a rheumatologist who sent me for regular blood work for over a year (the myalgia typically lasts for 1-5 years). They checked all kinds of things. I also had some rather bad arthritis to go with it (I never had that before). I was also at the same time diagnosed with osteoporosis (I'm a 60 year old very active male who has been weightlifting since I was 17 so that was a surprise). I continued to have problems with my shoulders, even after the rheumatologist declared the myalgia to be resolved. They sent me to a physiotherapist who got me going on a bunch of exercises for my shoulders.
I'm Canadian and I got what I thought was rather good health care. I saw my regular doctor and the rheumatologist several times, as well as several phsyio sessions. When I asked the rheumatologist why I got the myalgia, he just said that I was "unlucky". I was dissatisfied with that, especially since I still had significant shoulder pain and arthritis in my hands even though he had declared the myalgia to be resolved. I asked the physio what injury they were treating but they couldn't tell me.
On my own I figured out that there must me a missing factor here. I thought that it might be diet related. I was eating a relatively balanced healthy diet but I also ate quite a lot of sugar as well. I exercise a lot so I thought that sugar was no big deal as long as I wasn't getting fat, and I wasn't. How wrong I was. Out of desperation I decided to eliminate sugar (and all drugs) from my diet just to see what happened. What happened was that my shoulder pain, which I thought was never going to go away, went away. And so did the arthritis in my hands. I haven't been tested for bone density recently but I'm willing to bet that that is improving as well. I'm now back to lifting weights and doing active things and other than the usual little aches and pains of a 60 year old lifelong athlete, I'm feeling really good.
I'm convinced that all these problems are related to systemic inflammation caused by too much sugar intake. That's a self-diagnosis but I'm willing to bet that it's correct.
The thing is that out of the many health practitioners that I came across during my care for the myalgia not one of them ever asked about or talked about diet. Maybe they just assumed that people aren't willing to change dietary habits or maybe they are trained not to deal with "lifestyle" issues and "stick to the facts". It's a shame because in my case I'm convinced that diet was the most important thing to address and yet it was completely ignored. I had to figure it out on my own despite having first world medical care, including highly trained and highly paid doctors and specialists. I think they even tried to help me but somehow diet was not even considered. And that's a real failing of modern medicine. I don't think that mine is an isolated case.
That’s incredible and what most doctors don’t tell you is that nutrition is not a big part of their medical training. Same thing for vets. It’s literally the thing that they should know most about but they are just looking to solve the problem rather than prevent the problem.
Modern doctors treat symtoms, not the whole body. What pisses me off most is that when treating patients with cancer, doctors don't say a single word about the need to change lifestyle and diet, they just bombard patients with extremely harsh treatments but completely forget about the many factors that would help people to survive.
@@peggyhofmann9187 If we actually practiced health care instead of sick care then many of the symptoms that they are trying to treat would go away. That would be a disaster for the pharmaceutical industry though, they need those symptoms, and a sick population in general, in order to peddle their product. Most doctors have been co-opted in one way or another by the huge profits made by selling drugs instead of promoting health.
I'm glad to hear your results. My PMR began in May of 2016, and after spending 17 months at 15 mg of Prednisone, unable to taper, I began Keto (no sugar, very little carbs), and was pain free in 10 days and began tapering. In 3 months I was off Prednisone and done with PMR. I was still on methotrexate for my RA, and every time I tried to taper off MTX I got pain in my hands/wrists. Keto was helping but it was very slow. I discovered Carnivore, just eating meat, fish, eggs and butter, 30 days later I was off MTX and pain free, the only time my hand/wrist pain returned was when I included plant foods in my diet. It's now nearly 6 years later, I eat mostly meat, fish, eggs and butter, some days is regular Keto, a little bit of plant food on the side. I'm 70 and have never felt this good in all my life.
I wholeheartedly concur w you abt the failing of 1st world medical care: it takes NO account into diet unless ur getting tested for food allergies. It's not isolated at all...to the contrary, it's pervasive
I had this but not to her severity. When i suggested this to my Hematologist he blew me off and told me , " noone gets scurvy anymore. ". So i went home and started adding back into my diet the fruits and veggies other doctors had told me not to eat. Guess what? Back to normal in a couple of months!
Doctors told you not to eat fruits and vegetables? WTF. Are these doctors, or "doctors"?
@@zzasdfwas Yup, I have Crohns disease and it's a trigger.
Exactly the same thing happened to me. Doctors operate by some probability matrix and disregard the particular patient history. I told mine that I don't eat fruits and I have endless gum infection but it was dismissed because "you are not a smoker". The vit C test came back below normal.
@@ExtaTer Yup, this is why I tell people that it takes me a minimum of 2 years to break in a new doctor. I don't react to anything like "the average person"! Still searching for that 'average person'.
@@zzasdfwas the KETO nut doctors tell people to stay away from fruits altogether coz they've got fructoses 🤣
I think this video just saved my life. I’ve been having severe leg pain and all of these symptoms for a while. I was near my wits end.
Persistent bruising, petechiae (small blood rashes), & pain & pressed down areas of skin on extremities, that doesn't bounce back, possible bleeding from the gums or loosening teeth, weakness?? Sounds like a review of her diet would also be investigated!!
It could be a potassium deficiency also.
Same here❤
Are you avoiding fruit and veg too? If you eat a proper amount of fruit and veg it's unlikely to be vit c deficiency.
It's been 11 months since your comment. Has more vitamin C alleviated your symptoms?
It's fascinating how doctors will perform AAAAALL these tests before asking, "Hey, what are ya eatin'?" Nutrition is far more important than we think.
I've heard this from doctors themselves, that in medical school, they focus on nutrition for like 45 min. It's one class. It's all about big pharma
Nutrition should be first on the list
Seriously, it was one of the first questions I was asking at the beginning of the story! How is that not part of basic info taking?!
@@TyneeBubblesno $$$$ in it!
@charlesmckinley29 Wasn't this story in Canada, though?!
Either way, I long for the day where the medical industry is not "customer" focused, but more appropriately "patient care" focused; it's always gotta be about money with this species :/
I think this experience emphasizes the need for doctors to ask about a sick person’s diet. People think they eat a balanced diet but it’s imbalanced. Doctors also tend to say, “Watch your diet.” Or when they have a patient who’s losing weight, “Keep what you’re doing because it’s working.” Without even asking what their diet really is.
Mine saw that I lost quite a bit of weight. First thing she asked me was how much fruits and veggies I was eating. I’d been keeping a food diary in my phone so I showed it to her. She was pleasantly surprised by how hard core I was about stopping soda. By this point, it’d been almost 3 months since I’d even touched soda.
Ask questions in general! Seems like I have to do all the research and then when I try to talk about I just get pushed out
Yes, my friend was losing wt, Dr said good keep doing what you’re doing, he said but Dr I haven’t changed anything in my diet, Dr said don’t worry it’s good you’re losing unnecessary wt. when she went to another Dr that was going to do surgery on her back in a few mo, they did needed testing, they told him he was a diabetic.
@@alicesais770Wow. Yep, HOW you lose weight is an important fact the dr needs to know.
I told my Dr I eat Doritos everyday and I'm addicted. He said he wished he could have my diet and still look like me. ... like thanks doc
As a hospital dietitian, this story made me all the more sad that a) the admitting MD didnt ask basic nutrition questions immediately (hows your appetite? Any food allergies/restrictions?), and b) the nursing/PSW team didnt flag her poor intake earlier. If either of these had been done, a consult to the RD could have saved her from days of unnecessarily tests and pain.
I feel like in medicine, there is no clear way to go. You are taught particular steps to follow and you do them. Those side quests of knowing the patient's diet are sometimes not taught or known... I think a dietary specialist should be present aside from doctors in hospitals that is specifically tailored toward each patient's diet. As in get the history of what a patient eats... And figure out an alternative solution while the main doctor prepares the medical side of screening tests that this patient may need. Doctors are overwhelmed with the number of things they need to get done for every single patient, and diet is a huge aspect that isn't taught very well in medicine, and that frankly, they don't have much time for when they need to take care of multiple patients and ensure that they get the rest they need. I am talking mainly about residents who are on call, and have few hours of sleep in 24h, who are technically the primary care physicians when the attending isn't present. On top of that, residents have to also study for examinations, and so don't have the extra time to really understand all that nutrition has to offer in patient care. I also recently watched a pregnant celebrity be annoyed after giving birth to her child for being disturbed a lot by the medical care team for questions that you may compare weighted as equally important to nutrition. So, some patients feel a lot of stress at hospitals and feel annoyed to be asked nutrition questions when they expect tests and treatments instead, these days.
There is a dietary specialist in each hospital it's a registered dietitian. Not every patient sees them automatically, they have to be referred by a doctor, or another healthcare professional if there's a concern. So the dietary questions still have to be asked first during examination. It could just be one, like the dietitan suggested above ( any dietary restrictions, allergies, intolerances)
Maybe those patients who are able could be given a little booklet with questions to ask themselves & answers they should flag up to doctors. Patients may have changed their diet, exercise regime, working hours, type of job, amount of rest, environment etc & maybe should be mentioning these things to doctors.
People will lie about their diets-- they know what they SHOULD eat, and what they ARE eating is not close. It's even worse if you have an eating disorder. They, like this woman, may have bizarre restrictions on what they will eat, and not want to admit it.
@@argusfleibeit1165 that's why explaining to them their possible future is enough to make them confess. It may seem insensitive, but telling them straight up that your diet may be responsible, so the whole truth is necessary or you may never recover or something similar will make the patient more likely to say the truth.
I ran the 10k in college on a National level. I have also been anorexic since 12 years old and still struggle at 85 lbs 30 years later. I ended up not being able to hardly walk, with what we thought was shin splints…… but it was bilateral stress fractures.
It’s not worth it. Trust me. I just had open heart surgery from complications or severe
anorexia. I also have gastroparesis which I didn’t know. So with the most amazing medical service dog, after 10 months in Vanderbilt this last year and a GJ feeding tube, I hope to recover. Just be healthy. Much love from Kentucky Lesley and medical service dog Jake.
You are in my prayers. You are worth living a healthy life ❤
👍💐🌹
All the best Lesley. Keep on keepin’ on!
Y not try carnivore ❤
How are u doing now?❤
My husband is chronically ill and is frequently in the hospital. Never ever has a doctor asked so many questions and been so thorough. Investigating every aspect of his symptoms in order to diagnose him correctly.
they just give bandaids. Wont look at the root. Naturopaths will do that. Pay the extra money to get a nutritionist or a Naturopath to help out. Deep Warfare Prayer and healing my gut has been the best help with dealing with my dx chronic illness.
You're angry at the wrong thing. All that blood work analysis was done quickly and expertly, they just don't share every step like this, because they're experts and there's no sense sharing frightening yet mere possibilities with the lay person. The amazing, almost unbelievable, part of this story is all the imaging tests the insurance company approved. Must've been one hell of a policy. X-rays, MRI, CT; all approved without anything but subjective complaints and a rash? THAT'S why people get sent home- INSURANCE approvals DENIED.
You are right. This is the problem after Obamacare. Doctors have like 10 minutes to see patients and they aren't allowed to do tests unless they already know that they will likely be confirmatory. It's all about money now. It's horrible, sad and a sign of the times that we live in. After COVID, many people have damaged guts, damaged T-cells, and all kinds of other problems like kidney damage, asthma, allergies, autoimmune disease. People with COVID damage have to first heal the gut because everything else depends on it. They have to deal with any sleep issues and make sure that they are getting adequate sleep. Then they have to investigate what is left over after fixing these things over about six months or more. Working with specialists in heart, lungs, rheumatology, etc. can be helpful so long as they are the type of doctors who don't just prescribe pills but actually try to help patients. There are very few left like this and most of them who are honest have decided to become concierge because they can't spend enough time with patients on the big health insurance plans. I hope that your husband will recover soon!
Most of them are just concerned about paying off their Mac-Castles & their trophy wives' credit cards
Hospital doctors aren't personal physicians. You need to see your personal GP if you want that kind of deep dive.
Testing for vitamin and mineral levels should always be one of the very first steps because:
- it's rather cheap
- you can narrow down the possible diagnosis
- you can check the overall health status, because only a well nourished and fed body has the best chance of healing and the best self-healing capabilities
- if there are any deficiencies you have to check for compatability of supplements and medication.
does seem odd that the first panels didn't cover all this, all vitamin and mineral levels I feel like everytime I've been to the ED and gotten blood tests this is what they check. Especially with things like B12 deficiencies. They already checked iron, so it just seems odd.
I have been having to beg my Dr.s to just check my vitamin & minerals and I have know multiple deficiencys and must take supplements for almost everything and they tell me they can't just order them and all sorts of nonsense. I have had to fight for that testing so much and they sometimes tell me they did order it when they did not.
Ah yes, but they haven’t found a way to treat it with copyrighted and thus expensive drugs so must test for the drug-treatable stuff first. There’s no money in testing for vitamin deficiencies…
@homemade6950 have you tried naturopathic doctors? In my country that term is specific to people with verifiable training, whereas anyone can hang a shingle out for “natural care”. Nonetheless, some natural care type places can connect you with that type of testing. The downside is it’s almost always privately funded by your own pocket :/
Not a chance that a doctor orders a vitamins/minerals panel, even when there is anemia and the like. If I were a practicing doctor, I would order one for each patient.
Until the hospital/practice manager tell all doctors to save money on avoidable tests - in places like here in the UK, with socialised medicine...
When my twins, who were preemies, were in the NICU it was a cafeteria staff member who first realized and told me I needed more ascorbic acid/vitamin C in my diet. After I got the orange juice she had told me to get she explained that a lot of first time moms believe the lie that babies won't drink breast milk if the mother drank or ate a strong source of acid, like oranges. She had worked there so long that she had figured out how to tell if a person wasn't getting enough vitamin C just by looking at them. I had worked in a post-op unit in a previous career, so I knew how strong those impressions can be having figured out how to recognize a woman in an abusive relationship just by looking at her eyes. When you have the experience of reading people that way you know what you know. It's amazing how long that skill lasts after you quit using it regularly.
Me with my 2000 units of vitamin C a day.
Too much sugar in the diet can interfere with proper absorption of vitAmin C. Glucose and C compete via the same uptake mechanism.
@@maranscandy9350 Thanks!
As if orange juice would solve vitamin C deficiency 😅😂
People often get scurvy from taking too much ascorbic acid long term as well since ascorbic acid is only the outer layer of the whole vitamin C complex that is found in nature. If you must supplement, please use a whole food based supplement, not a lab created isolate.
While watching this...I called it, before the skin biopsy! My professor will be pleased. A patient's nutritional history is very important. Just discovered this channel and really appreciated this video👍🏻
Please do more medical mysteries just like this! You could even make it a whole series on its own. Just like House!
Better than House because it's real!
Yes I thought it was like following a House story which I love!
Yes, medical mysteries are my fave! 🎉
Yes! I used to love that show Mystery Diagnosis! Would love to see more of this.
I’d subscribe!
In my experience, very few doctors would take the time to do all these tests to find out what is the causing factor in this woman's health. They simply say the pain is all in your head and send you home. The problem is, Doctors get paid regardless of the care they give you, so why would they bother? They already got your money when you walk in the door.
I thought exactly the same thing.
Yep
Definitely... Unfortunately
Exactly, if there is more work than they get paid for, they won't bother. There are very few doctirs left who actually care about their patients health and/or life.
As to running multiple tests... forget it.
Great point. In other systems doctors get paid upon the recovery of the patient.
Oh my God, as a caretaker, I cannot explain how helpful this video was
You just opened my eyes to my rash, fatigue, and pain in my legs! I have had hemoglobin issues lately, I need to go back to my doctor and have some bloodwork. Thank you.
Eat some oranges or 1000 mg ascorbic tabs each day
I get like that during my period… going to try vitamin c
@@marianking1379ascorbic acid is synthetic vitamin C. We actually need to be ingesting real whole vitamin C provided by real food. Best bet is to just look up foods high in vitamin C and double up on it. Beets are an excellent source of that but most people dont like them.
Bell peppers as well
@@marianking1379bell peppers as well
Sauerkraut was a big part of fighting scurvy on sailing vessels. Preserving citrus long term6is difficult, but cabbage has a lot of vitamin C. Pickling it and storing it in barrels made it a supply that could last months longer than fresh fruit.
I keep reading the C goes way up when fermenting the cabbage (krout). It's super easy to make, and I use red cabbage just to boost nutrient level even more.
Is it similar to kimchi?
@@chuachua-hj9zd Yeah, basically. Sauerkraut is pickled, fermented cabbage. It's usually finely shredded and not spicy, as opposed to kimchi, which from what I've experienced is chunky and spicy.
@@chuachua-hj9zd kimchi is even better, and yes.
@@carlos_takeshi thank you for your reply
As I worked in the hospital drawing blood in the ER, we had a patient that died because of extrmely low vitamins and the dr missed to test for that. She learned such a lesson that every single one of her patients would get tested for vitamins before any extensive testing.
Which vitamins were really low? Did the patient look emaciated or like they were starving?
I had scurvy (massive vitamin c deficiency) + most other vitamins and minerals deficient, due to undiagnosed lyme disease my body was trying to fight.
The doctors I went to, just shot the dozens of debilitating symtoms off as „mental problems“.
It was so amazing, how fast I recovered/got ny life back by just taking high dose vitamins.
I will never forget the start of it - from almost not being able to reach the bathroom by myself (for many weeks) to dancing around in joy, full of energy just hours later (because I started on Vitamin C and salt)
I had bloodwork at the time, showing my salt (sodium) was deficient. The doctor said: „good job. sodium is bad for you anyway“
So yes - always start by looking what the body is missing, when you have symptoms!
i had severe sepsis a few years back but im still so glad they also checked my vitamin levels. turns out on top of the sepsis i also had hypokaelemia.
@@evad8262 ummmm, what? Tbh seeing hyponatremia in anyone who doesn't eat some extreme diet would be a cause for concern... Honestly even if you did have a weird diet, you do need electrolytes to, you know, keep your nerves firing...
@@sianmilne4879 - simple reason: my adrenals could not cope anymore.
my body just was so exhausted to fight against borrelia.
(I had full blown addison symptoms)
So many people (elderly, chronicly sick) are doing so much better, when taking in more salt. (and it is so wrong, that most doctors consider salt as „bad“)
As a final year med student, what I have learnt from all this is the importance of taking a good history
What most doctors skip.
Listen to the patient, don’t dismiss their concerns and information, and don’t jump to conclusions. Too many women have suffered (or died) because the doctor didn’t listen or brushed off their concerns. Be a great doctor and help your future patients to live their best lives! ❤😊
And if you dictate, speak clearly please! 😂
@@joanhoffman3702This. I am a woman with chronic stomach/pelvic pain. It's gone on for over 20 years. They've done the usual checks, mostly OK, but wouldn't look any further.
Recently an emergency admission diagnosed me with gallstones, due to have gallbladder removed soon. On discussion with the surgeon it's possible alot of my symptoms could be down to it. He's amazed that no-one had ever checked seeing as I fit the 5 F's for gallstones to a T, Female, fair, forty/fifty, fat and freckles. Another F is for fasting : irregular eating habits. 1 in 3 women (over 2 times less in men) have gallstones. They can also cause referred chest/shoulder pain.
Fingers crossed that my surgery will be the answer.
@@trippinggauntlet4520look into Dr. Eric Bergs videos about gallbladder issues first. You n me at be able to heal it without surgery. We aren’t meant to gave stuff yanked out of our bodies.
An old-school dentist like my USC trained stepfather would have spotted this problem immediately. As a nutritionist, I once had a client just like this patient. It took me 2 minutes to get to the root of the problem. Creating two separate camps, one of Physicians and the other of dentists, is a mistake.
Excellent video! It actually had me wondering until the end. Your explanation of the essential molecules the body needs that require vitamin C for their production was excellent. It's wonderful that you introduced your listeners to L-carnitine.
The separation of dental from medical is something that baffled me. They are always preaching how dental health affects your whole body, but yet no one in a hospital can or will look in a patients mouth. Very frustrating as elderly cannot get to dentists when they are older, sicker, and/or afraid.
You are an AMAZING reporter/story teller. Im a Nurse and I am fascinated by this video. You can tell all of the work you put in and how much you enjoy the field! Thanks for the video💕
I've been dealing with tons of health issues for the past 5 years. Every doctor visit has been a total waste of time... each one either dismissing my symptoms or alarmed by symptoms and getting hyperfocused on MISdiagnosing me. At the same time, they've been resistant to getting extensive testing done... like how one doctor put it, "Look, I can order the MRI for you but we generally don't want to do that because it puts a strain on the medical system." Exact words.
Anyway, I had to solve these issues myself. I studied and studied and determined that I needed to check my b12 levels, because that might explain my string of bad health issues.
Sure enough, my b12 levels were dangerously low. The only reason I was tested for it was because I found a doctor who doesn't dismiss me, and I recommended that we check my b12 levels, and she said, "Oh sure, we can test your b12". It took years to find a doctor that would entertain my ideas. She asked if I ate meat. I said that I eat plenty of meat and even take b12 supplements, and that I would like injections for b12 because clearly my body isn't absorbing it through food or dissolvables. She actually just agreed with me, and didn't argue like the majority of US doctors I've seen before. United States health system is a terrible experience when you have mysterious chronic issues. You lose LOTS of money, time, sanity, and trust in the overall system.
Hi!! Glad to hear that you finally getting your vitamin check and can solve all your problems, so the b12 test shows low b12 in your blood? Or shows normal range?
You are treating a symptom. What causes your low B12? It's probably affecting more than that.
That's a very weird case tbh
did you figure out what was causing the b12 deficiency? very often intestinal worms are the culprit
Check to see if you have the MTHFR gene . I promise it is not a swear word, it's fixed by using the methylated versions of b vitamins especially B12. There's a lot on RUclips about B12 deficiency and how the gene expression prevents your body if you have this genes and the gene combinations, from absorbing B12 from food. I have that problem, and I take methylated b vitamins. I went to a holistic physician, best thing that happened to me
It’s significant that the last thing the docs looked at was nutrition. And that was almost accidental, since they noticed her food tray. Doctors really need more focus on human nutrition.
True. I had to find a Dr. who specialized in nutrition to lose weight & find out which supplements I needed. I lost 5 pounds a week, cutting out sugar/ soda. ( I was in my 30's). It's harder as I get older. Most Drs don't study nutrition. My sister in law, a registered nurse, never heard of CO Q 10.
Yeah, I am an FDN and we explore body function looking for healing opportunities. This is why we exist.
@@ericaburns-worship what is FDN?
@jaydencparker4968 Functional Diagnostic Nutrition Practioner. I help educate clients on how the body works, look for healing opportunities, use functional labs, and help coach clients through lifestyle changes to improve imbalances and bring health improvement.
It's difficult for a doctor to be an expert at medical practice and also nutrition. This is why highly trained registered dietitians are becoming so valued in the Healthcare system. We are trained to assess nutrition and even do physical assessments to identify diagnoses just like this!!
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
I wish they were readily available in my place.
Microdosing was my next plan of care for my husband. He is 59 & has so many mental health issues plus probable CTE & a TBI that left him in a coma 8 days. It's too late now I had to get a TPO as he's 6'6 300+ pound homicidal maniac.
He's constantly talking about killing someone.
He's violent. Anyone reading this
Familiar w/ BPD know if it is common for an obsession with violence.
@@BestOffer-ii9ny So sorry to hear this. Have you tried carnivore? I'm 72 and was disabled at 50 with chronic pain from fibromyalgia and chronic fatigue syndrome, anxiety and depression, and I believe the other diagnosis was Major Depressive Disorder. After going carnivore, my anxiety and depression are gone and I am off those meds, my pain is minimal, and I am no longer type 2 diabetic. Also lost ALL my excess weight while eating ALL I wanted and never going hungry. I know of a lot of mental issues helped by carnivore, including a friend who is a Navy Veteran. She has suffered for many years with PTSD, and no treatment has ever helped her. She is now much better after going carnivore. And this is available in ALL countries. Be careful with your husband, as I know what it is like living with abuse and sick husband. God bless you!! ❤️🤗🙏🙏
@@BestOffer-ii9ny BPD doesn't have violent tendencies. Maybe hard to control emotions, but never to kill anyone, I hope.
@@bettyjohnson2964 People on carnivore do fine, I'm glad it is helping you.
More fascinating is >>>
Watch >>>
LOW CARB LIFE ( RUclips ).
This man has so much guest with testimonies, eating carnivore and keto/carnivore.
People who got cured from depression, anxiety.
So maybe, you do not even psychedelics.
Good luck and whatch all videos on the chanel LOW CARB LIFE.🎉
honest to goodness I think you have just solved an issue I have... after 2 years of Drs and specialists not being able to find out what is wrong with me ... I think you just did it... it all fits so perfectly, down to the test results, that by the way the Drs did not connect the dots with would you believe... bless you ...
Also look into connective tissue disorders
That's amazing.
This sounds a lot like my elderly sister. I will get her on vitamin c tomorrow since it’s late where I am for the stores.
Returns to the old saying of 'You are what you eat'. The human body is quite remarkable when it comes to self-repair, and if we listen to what our own bodies try to tell us, it can boost our health quite nicely!
Few know the remedy to the symptoms the body sends them. We eat the recommended SAD diet and presume it's working.
@@graveseeker Yes, in a Godless Dumb-Down Leftist "educated," neo Sodom Gomora/ sinfull world, where Sudden Adult Death, teaches us, "Death is the wages of sin." [Romans 6:23]
And if we listen to those who aren't listening to us who know bodies best, it can kill us.
I had a very good doctor'. My cholesterol was higher than it should be. But instead of pulling out his prescription pad he asked me a question. He asked, 'what are you eating?' So I told him I love cheese and I was eating grilled cheese, cheese omelets, Mac and cheese, cheese crackers and cheesecake, so I don't have to eat much meat for protein. So he said, ' okay, I want you to cut way down on all that cheese and come back in 2 weeks . I did and my cholesterol went down 20 points. So I avoided a prescription drug because this doctor asked questions first. So I changed my diet. Thanks for the video.
Also, cholesterol varies day to day. Most of these MDs are giving ppl cholesterol drugs based on one blood test.
What was ur source of cheese? A lot of cheese is being made with cooking oil these days.
@@maryanne7161 Cheddar cheese mostly.
We need more doctors like this 👍
I was also eating alot of cheese and was having horrible knee pains. I decided to do what I did so many years ago to cure my eczema, I cut out wheat, dairy and sugar. In 3 weeks knee pains greatly reduced.
Then I incorporated exercises to reduce knee pain and strengthen the muscles that support knees. What a relief to be rid of the pain. It was so bad at times, I had to climb the stairs like a toddler.
Rare, really rate!
Your presentation makes a person hold interest into what you are saying. Looking forward to seeing more of your videos.
I think disordered eating is more common than we like to imagine. It’s going to be important for medical professional to start probing more about what exactly people are eating or their attitudes towards certain food and diets. I’m hopeful that as these issues become more prominent culturally we can adapt how we advise patients to look after themselves, beyond weight and shape, and bring awareness to the dangers of restriction without oversight to treat things like rashes or IBS
There are way too many be scared of this food videos, which may result in clicks for content creators, but are not leading to good health for viewers. 😉👍💙🕊
Agreed. I also think (not that this is an unpopular opinion) that doctors need to have more training in nutrition and diet, on top of being willing to collaborate with dieticians in the medical setting. As a fat person, so many doctors have just been like "lose weight" and I'm like ok, any idea on how to? Any insight into diet? Exercise? I know the basic idea, but with how much misinformation and bs is out here on the internet on top of everyone's individual needs for nutrition, it's so irresponsible for doctors to tell patients to lose weight and not provide any sort of information (based on the individual because there still are variances) or referral to someone who could actually help (on top of also investigating beyond the weight and figuring out if there are underlying issues as well/not writing off patients because they're thin so they must be "healthy").
Or they could send someone who they were concerned about to a Registered Dietitian. Just got confirmation of a Zinc deficiency today from tests, but I was 90% confident I was correct from the clinical signs and the diet history.
@@Dietconsulting @stephaniethesoprano YES!! I know Drs can be hesitant, especially GPs in a clinic setting, to refer out for more input. Medicine should be tackled by a team, not a single person, or even a team with a single area of expertise.
And stephanie, it is disgusting how often people are listened to or not based on weight stigma. I know those who have had medical issues ignored because "there's no way they could have high blood pressure at BMI 20"! Friends of mine have had their issues completely ignored and been told to "just lose weight", when it has NOTHING to do with what they came in for. Doctors may fail to even investigate further once they see someone's shape.
Weight needs more separation from health in healthcare and I think there are some changes coming--there's some push to shift away from BMI--but for now, we are harming people and giving them disordered eating patterns. We're making people's entire lives about their weight, and psychologically, that is NOT how we maintain health.
If you think about it, who really knows the right way to eat?
As someone who has been a runner for a long time, I know how typical of us as a group it is to first think, "Oh, I will take a few days off and stretch some more, and I will be fine...." Sometimes we do need people like you to protect us from ourselves.
Thank you so much. My grandson is 8yrs old and he doesn't eat Any vegetables or fruits. I was just telling my son about the risk of scurvy if my grandson never eats vegetables or fruits. I am a retired nurse but I feel he might just see me as a nagging mom. I will share this video with his family. Love your videos😊
If you can't get him to tolerate plant foods, raw or rare beef has some vitamin C in it, and beef liver has more than muscle meats do.
Thank you for tour comments.
He's been primed to only eat the foods he loves. Sugar and refined carbs put one "off" real food.
Any kids brought up on crunchy veggies and snacks will actually reach for them on the table.
He's only 8. Time to limit the fake foods, whilst introducing the new.
@@Cosmic-Cat.m
Siobhan has such a beautiful personality! Everyone who knows her must feel lucky.
What an expensive way of finding out a vitamin C deficiency. I hope doctors look into patient’s nutritional health more. Mine is great. She found out I had gluten intolerance from a few minor symptoms, during a routine check up. As soon as I cut out gluten all of the annoying symptoms went away.
Thankfully it likely costed this woman 0. Praise be to Canadian healthcare lol
She emphasized this need at the end of the video…
what were your symptoms?
@@cyan2067 Not pleasant symptoms that are embarrassing. But I’ll list them in case it helps someone. Stomach ache that was on the milder side, white lining material in the stool (I thought it was a parasite!), some bloating, and the worst and embarrassing was itching at anus. Basically my intestines and digestive tracts were irritated. It took about a week to notice that all symptoms went away when I stopped gluten.
How interesting, thank you for sharing
My sister is going through something similar. Drinks too much wine, eats only one substantial meal per day. She’s been having b12 infusions but still no relief. I imagine she hasn’t disclosed her drinking and poor diet to her doctors.
There's a lot of promotion for the one meal per day. OMAD, it might be ok for some, but we all have different needs.
I think moderation is preferable to the many fads being promoted. I hope your sister finds what she needs for good health.
If one meal it means her body in ketosis and no alcohol allowed. Its the same as you would be fasting and drinking wine, which a huge No.
You get into ketosis if you eat no carbs. If she eats carbs in her single meal, there is no ketosis
Has she had confirmed a b12 deficiency? B12 is one of the "one carbon donors", the others are folate/b9 and the amino acid methionine; that together form a metabolic complex known as "one carbon metabolism". By default being low on one of these means you're low on the others as well, since they are co-dependently metabolized. Some other nutritional cofactors are copper, zink, molybenum, b2 and b6 for several enzymes involved to be formed. I dealt with this a while back and it took a meticulous diet to solve it. The symptoms were brutal!
Also, some riskfactors for developing a deficiency are low intake, alcohol abuse, pregnancy and infections.
People with alcohol problems tend to have low B12.
I will never skim over questioning about diet in an OSCE again! Thanks for the great video!
I'm 67, and all my life my family and friends refer to me as a "fruit bat," because I love fruit/veggies so much. No one in our household goes without fruit/veggies, so I can have a big sigh of relief after listening to your video. I am surprised I didn't think of scurvy, we take it for granted that people eat fruit/veggies- but in the US a lot of people cannot afford nutritious varied foods that we need... On that note, we always urge people to donate monies to their local food banks! It is one way people can supplement their diets :).
Plus the people who avoid fruits and vegetables are often not into their health so they eat many of the candies and drinks that are packed with ascorbic acid as a preservative.
And here I thought that the US is a rich country! Silly me. We eat plenty fruit and vegs Here in our country South Africa which is rated as a 3rd world country. That just goes to show. Even poor people have access to fruit and vegs.
And “don’t eat pork,don’t even touch it’s dead carcass” - the owners manual (in two different chapters)
@@guysumpthin2974 why not? I have been eating pork for the past 50years and am still healthy at age 74, no medication and praise God my Healer for it! Also butter, full cream and all dairy with fat on the meat and fruit and veggies. If there is something people should have much less of it is sugar and refined flour...those are deadly for sure.
I spend less on food than almost anyone I know and fruits and veggies. The problem is people eat a lot of junk food and so they don't like the taste of healthy food. Money is not the issue for 90% of the people.
This video is an example of infective enthusiasm. I would not naturally consider myself at all interested in a woman the other side of the world with a hard to explain medical issue, but this nurse with her cheery enthusiasm makes the whole thing enthralling and I had to watch to the end and I learned a bit too:)
She's a doctor, not a nurse.
She is a doctor.
It’s a good idea to make note of what happens to your body after you eat or don’t eat certain things, and use that information to protect yourself. What goes into our bodies is very important. And what we don’t put into our bodies matters as well.
Most people eat loads of cytotoxins every day. They poison themselves and then wonder why they get sick.
Exactly. I've had intermittent painful joint issues that medical science has been CLUELESS re understanding (including specialists, lots of tests, etc).
I've noted correlations re activity (like heavy exercise or lots of light exercise) and diet, and basically managed it MYSELF. A lot cheaper, less hassle, and more effective than lots of tests and "we don't find anything to treat".
Thankfully, as I've aged, it's gradually gotten better, but it's still not gone and 43+ years is a long time to have such an issue.
Amazingly interesting! I had blood clots, had a surgery but there was no doctor to inform me what causes it! The blood clotting factors presented in your video blew my mind!
My husband works as a registered nurse at the emergency department and he says that he loves it as he feels like a detective.
He's probably one of the good ones :)
My 17 yr old son when to the dr for severe pain in his back and legs. I have fibromyalgia, herniated discs & nerve damage from a car accident we were in when he was younger. They didn't treat him when he was little because they said he'd heal. Now he's in so much pain, he can barely move without groaning. The dr we saw did an X-ray of his back, told us it was musclo-skeletal (not sure if i spelt it right) and sent him to physical therapy. We also found out he's magnesium deficient. We don't know what his vitamin c is - our son doesn't eat fruit or red meat. My son left angry and ashamed for being in pain. It's heartbreaking.
Perhaps consider getting him to lean towards carnivore. Try if for 30 days. Nothing to loose. All the best ❤
Keep digging! I hope you find answers. I’m not a doctor but I think there could be many causes. A lot of vegetables have just as much nutrition as fruits. Potatoes (eaten with the skin) have a lot of nutrition and most people like them. Just a suggestion… or you could look into a multivitamin.
@@dk.650 Meat and dairy cause inflammation in the body so I’d avoid meat and dairy as much as possible.
So sorry he is going through that, he’s young he can get stronger. Our sons lives matter. We too often dismiss them in society. Hang in there mom. Heal his mind too. He needs help there too. ❤
If he doesn’t eat red meat, check his zinc! He probably needs to be on a daily multi vitamin/mineral designed for men. Especially if he is vegan.
What's even more fascinating about the doctor who discovered citrus fruits work to cure scurvy, is that he didn't use his own discovery. He believed the real cause of scurvy was "putrefaction." It took another 19 years until it was officially included as part of sailors' diets.
And even then they thought it was the acids or something, hence they used lime juice instead of lemon or other citrus juice, as they thought the more acidic the better it worked.
And the reason that many other cultures/groups didn’t get scurvy is because they would pack fermented vegetables (sauerkraut or kimchi etc) to eat on their long boat voyages.
this is amazing, i think my dad has scurvy but doc failed to diagnose this, adter watching this video i asjed my doctor for a shit ton of Vit C prescription and now he improved his leg conditin. Thanks to you, keep up the good work 🎉
Your channel is FASCINATING!! As someone who has worked as a registered nurse for 23 years AND someone who has several chronic health and autoimmune diseases, I consider myself pretty experienced in symptom awareness and physical assessment. However, the scurvy diagnosis was completely unexpected. I've always related low vitamin B to nerve, muscle and sometimes speech impairment. Never have I considered edema, muscle pain or petechiae to be a symptom. Thank you so very much for this knowledge!! I appreciate every video you put out. I take away new knowledge from every single one that I watch❤❤
...vitamin C?
Good morning how are you doing
Oh yes b deficiency can give fibromyalgia. Peripheral neuropathy.
Instead of shaming patients for going on elimination diets for incredibly valid reasons, people need to be shaming the 'doctors', who do not understand- or care to understand- the why, and who refuse to support their patients in the way that they should be.
I just wanted to say I appreciate your channel so much, not all doctors on RUclips are created equal and I appreciate your knowledge, kindness and professionalism
Gosh, never seen anyone so enthusiastic about their career... More power to them in helping to heal the rest of us... ~~~Peace~~~
Incredible. So informative. As an retired ICU nurse, I like these videos. Initially, I was thinking it was some tick disease.
Great video! The mystery of it really pulled me in. When I saw the rash my immediate thought was scurvy. I’m currently studying to become a dietitian, and I’d have been really curious to see what this patient was eating!
That’s what I thought too.
It's a pleasure to support the time and effort you put into these. Have really found interest in the one-week locum videos you've done recently, where the thread of investigation and diagnosis can show.
Thanks so much Colin for your generosity and support! Hoping to do more of these mystery cases and locum videos too!!
Yes I guessed scurvy when you mentioned her being in a restrictive diet and omitting the fruits and the vegetables. I’m an RN, I love your channel! Your enthusiasm in medicine and science is contagious! Great job!
IIRC, organ meats (offal) can be an excellent source of ascorbic acid. The lady could have prevented scurvy. I'm vegetarian so what do I know.
I heard that glucose interferes with vit. C absorption and that carnivores need less C as a result. To the best of my knowledge, carnivores don't get scurvy.
@@graveseekerI haven’t had a fruit or vegetable for over 5 years. No scurvy here. I only eat meat and am in the best health of my life at age 56.
@@FeedmeSeymore agreed me to eat meat eggs never got any thing except better. Don't trust doctor's.
@@graveseekeryou mean actual carnivores or omnivores that eat like carnivores?
I love the way you present medical information so people can understand how you break down the medical conditions that happen in our bodies. Thank you! 🙌🏻
If I was a doctor I would be delighted to work with a pharmacist like you, and would recommend such person to my patients.
I always learn so much from you! My husband is actually allergic to citric acid, so he can't have many fruits other than melons, bananas, and some berries. He was worried about how he can get vitamin C if he can't have a lot of fruit. So interesting that he can get it from red peppers and broccoli! We learned so much, thank you!
Make sure he eats them raw since vitamim C disintegrates at 112 degrees.
Ruminant meat has lots of vitamin c
can also supplement!
As someone who all my life was told I have a citric acid allergy I just wanted to share. 1. The ONLY commercially available blood thinner is straight citric acid, meaning beware of blood transfusions. And 2. Actually your body both NEEDS and makes citric acid. So while it is possible to have a sensitivity an actual allergic reaction is impossible as you would just die. A citrus oil allergy however.... is very common and covers pretty much all the same things. I always had problems with kiwis, strawberries and tomatoes too though, and the only commonality? Citric acid! 🤔 but guess what? Certain pollen allergies (in my case birch) can actually cross react with a citrus allergy causing people with citrus allergies to have problems with other fruits as well, even though it's not actually the acid but the citrus fruits. How does this help in practicality? No worries about blood thinners or all those things that add citric acid, avoid citrus oils, and you can probably have some kiwis and strawberries in smaller amounts, especially if it isnt pollen season!! Its a small detail, but it changed my life. I even found that I can have oranges in small amounts as long as I avoid the peel 🤯 but those mini peppers you can get at aldis are still my best friends. (90% vit c per!) Sprry for so long, Just wanted to share in case it helps you.
@@rileydruley3993 That is very interesting! Thank you for sharing! I sent everyone's replies to my husband to educate himself. I love Aldi and those mini peppers! I'm going to put some of them in his lunch for a snack 😊
Loved your energetic and passionate delivery on this and your other journeys of suspense and discovery. It's infectious...in a good way. You should teach. "Let food be thy medicine."
This is the first time in YEARS when I was interested in a medical case. This was so interesting, thank you!
You thoroughly cautioned against the use of (excess) vitamin C supplements for all the most important reasons, and I am so impressed!
This is what I love about internal medicine -- the detective work. I figured it was diet related; some vitamin deficiency. Nutrition is the last thing doctors think about.
Its so refreshing to see how excited you are about doing the detective work and finding the answer.
As an aspiring dietitian, I’ll just say it’s amazing how many people take on very restrictive diets without consulting a healthcare professional first. So many think healthcare providers won’t understand and will just judge them. We need to be aware of our biases to make patients comfortable with sharing what they’re doing with their lifestyles! Great video by the way, love the way you model clinical decision-making!
(Edited for clarity)
My GP basically called me an ignorant moron when I told him what my diet was. He refused to even glance at any of the multitudes of articles I printed up for him to read on either at the appointment or in his spare time. He told me that I need to stop doing what I’m doing and start eating huge amounts of vegetables with a tiny amount of meat.
@@sidneybuckaloo I’m so sorry you had that experience! It really hurts when a doctor or other healthcare professional writes off what you have to say without even considering it. It happens way too often.
@@annieh1315 it’s frustrating and makes me not trust doctors. They think they’re gods. Not all of course but many of them do.
I’m in Canada. We do it here because they’re aren’t enough practitioners. Waiting lists are years long. You have to figure out how to get through every day on your own. Our health care system steps right up for acute cases and emergencies but for long term chronic conditions trial and error is the fastest way to figure things out.
The doctors no longer have time to thoroughly investigate anything! When they schedule 10 or 15 minutes per appointment, there’s no enough time to question things.
My hubby said it before you gave the diagnosis :) he’s not a Dr but he is a chemist and chemical engineer and has a fascination with scurvy!
Had the opposite experience with my daughter. She had liver enzyme issue with no immunity to hep B even though she'd been vaccinated multiple times. We were sent to a specialist. She only talked abt diet and didn't listen to our answers. We are overweight so she already made up her mind what our diets were like. We said we ate chicken - she told me to stop frying so much fried chicken. It was boneless skinless baked chicken we were eating not fried. We said we only eat out once a month - she said try to cut back to once a week. Me and my daughter looked at each other like can you believe this. I said "ok increase eating out got it". We brought up how unhealthy the school menu was and she told my daughter to "take a pack of raisins". We've gotten better health advice for a cosmo mag. She didn't talk abt the liver and she didn't run any tests. I wonder how much she changed the insurance to judge us for being overweight and give her "recommendations"
I have had eerily similar experiences and thought, "Is this doctor DEAF?"
Who is the QUACK doctor? What is her name? Where is she practicing her BS QUACKERY?😮
Yep, just use doctors for what you need them for (blood tests etc ) then help fix yourself with that information. There's lots to try for liver issues. Fasting, coffee enemas, liver flush.
I'd start with konjac noodles, well cooked mushrooms, TUDCA, and small amts of peeled apple. Slowly increase good fat. Butter, rare cooked steak fat. Don't give up. Try infrared sauna if you are in pain.
If you ever think you need a test the doctor isn't willing to do, an attorney gave me a script to use: tell the doctor I want you to write the medical criteria why you are refusing to do this test (what kind of test you are requesting). The doctor will automatically know that their liability is on the line and that you can take this letter to an attorney so they will answer you that they don't do that or they won't do that and then you say: I want you to write a letter describing the medical criteria why you are refusing to do this test and I want to copy of it placed in my medical record as a permanent part of my record. They will either leave or ask to be excused for a moment, go out of the room, and come back with completely cooperative. They will order the tests, refer you to the specialists or order the diagnostics, whatever it takes to clear their liability. I hope this helps.
@@jibberoverjava very helpful thank you 🌸
Yes..I agree, doctors don't know much when it comes to dietary needs when it comes to medicine . It's usually just take a pill & it will fix the symptoms...never mind the cause! ?.
Love that you are very into real medical diagnostics. Wish there were more doctors like you. 🙂
I'm a regular person with nutritional knowledge. As soon as she said petechiae and bruising, I thought oh, Scurvy perhaps. How could doctors not know this?
Interesting to hear about how things can get when severe though.
You ask how doctors "could not know this," but western medicine schools, from all I hear and have observed myself, they don't spend too much time teaching new docs about nutrition.
Isn't that amazing?!😮💥🤯💥
If big corrupted greedy drug companies can't make a ton off of patients pushing their prescriptions, and vitamins are cheap--you can buy them almost everywhere, where is the profit in researching nutrition??
This poor woman's pain aside, must have been pretty cool for the doctors and nurses to see an actual case of scurvy outside the textbooks. Like a little time traveling.
Wrong. It's likely to get more common due to misinformation and crazy dmb diets like the carnivore or keto fads.
It's actually on the rise, especially with uni students, as we are so broke
@@anyatrioli3734 How is being broke an argument against scurvy???? Meat is less expensive than a damn lemon?
@@anyatrioli3734 No doubt a lot of us are broke, but if scurvy is on the rise, lifestyle would be the culprit. An orange costs less than a bag of chips. Choose wisely.
@@tryphenasparksI assume a broke college student sustaining themselves exclusively on roman noodles, soda, sweet tea, and beer.
I have a nutrition degree, I did figure it out, but should have a lot sooner. Knowing about the very restrictive diet really was key...I hope Jennifer talked to a registered dietitian, and maybe an allergist since she was worried about food sensitivities and allergies, as well as someone experienced with eating disorders...
This!!! I get being concerned about food allergies or sensitivities. I have hypothyroidism which has made my body not tolerate gluten as well as it used to. I talked to a dietitian who told me that certain vitamins and supplements can help with that. One of those supplements has also helped put my thyroid in check as well. Who knew selenium could be so powerful?
I'm with you on this one.
RDs follow the USDA food guides like they are the Bible, which are actually designed to make people sick, not healthy.
@@mcrchickenluvrWhy would you take supplements or medications when you could just eliminate gluten? No one should be eating it. Zonulin wears holes in the intestines. Also, it is well-known that if you have thyroid problems, you should not be eating it....
Agreed! We are what we eat! However, there's a difference between allergies and intolerances with foods. Allergies cause a histamine response - which is what the allergist tests for. An intolerance causes inflammatory response, and there are currently no tests for that!
The only way to determine intolerance is diligence in doing an elimination / reintroduction diet. (I've done it, and it was tough! )
To really do it thoroughly, it can take 3-6 months or more, depending on the body's reactions. Most people don't want to put that much energy into documenting what they eat.
I was lucky enough to have a doctor who knew about the importance of the positive and negative impact of foods. She insisted I do it, & she checked my progress every month for 6 months until we had clear information!
I'm doing much better with 12 years using an informed choices diet.
What we put in our bodies needs much more attention in med school as well as general education.
Plus, what we eat needs to be much earlier in the diagnosis process!
Hello Dr. when you talked about her restricting fruit and veggies from her diet due to her fears of allergies I right away concluded that her symptoms were brought on by downstream manifestations of nutritional deficiencies, now I ponder that why the medical professionals are not honing on to the simplest issues at the same time by first asking the patients about their life style rather than first focusing on the worst. I fervently believe that our approaches to nutritional education of the patients would eliminate lot of these issues. I am not a medical doctor but 90 % of my family is and these are the conversations I have with them on a regular basis and being heath centric with emphasis on nutrition as well as social connectivity is the key to our health.
I love your enthusiasm and the way you can explain everything it's so easy to understand it. Thank you so much for sharing all of your knowledge with us ( the public, and your followers ).❤😊
Thank you, I'm on the carnivore diet for about a year now & I used to supplement vitamin C but haven't in a few months now...
Ive been bruising easier & habing issiues w/one knee ...
I'm loading up on vitamin C as i write this *thanks for the reminder!*
You will soon be deficient in many other substances too and too high in nitrates. High protein diet is heavy for the body
Don't forget your electrolytes I use Dr. Sten Ekberg's powder if I don't I get dizzy.
@@drSJV If your diet has very low sugar in it the vitamin C eaten in meat is adequate.
Also, it should be noted that meat is more bio-available and thus absorbed by your body more thoroughly when compared to fruits and veggies. This is why those on the carnivore diet don’t you most likely don’t need to take supplements of Vitamin C or sneak in a fruit or veggie high in Vitamin C..
Manganese is another defficiency to watch out for on carnivore! 🙂 And be cautious not to get hypervitaminosis A from liver intake.
I’ve been doing carnivore for 7 months, but unlike most feeling amazing, my energy has lowered, so I’m adding in fruits and honey per Paul Saladino. I think I’m one of those people who does best with some carbs. ❤
I have a problem with something that you said at the 1:59 mark. "As a doctor you're trained to think about the most deadly conditions first". I must have listened to over a thousand videos on RUclips where doctors have said the exact opposite. That the most simple explanation is more often than not, the correct one, and if someone has a sore knee is probably just a sore knee and not some rare cancer. This is why serious diseases (like cancer) go untreated and undiagnosed for months if not years. I live next to one of the best and largest hospitals in America. My mom had lung cancer and they insisted that it was allergies for MONTHS before they ever correctly diagnosed her. By that time, it was too late. :( I know that YOU seem like a very smart and "on top of your game" doctor, but not everyone is like you. I wish they were though.
I've been told "if you hear hooves don't think zebra".
It is terrible. They take an oath, and yet we are gas-lighted by our own drs. i am so sorry to hear this happened to your mom. So so wrong. :(
💯💯💯
I love mystery diagnosis stuff but it's all so unrealistic compared to how the medical system actually works.
As a PA, we were taught to consider both the most deadly and the most common.
Your second sentence includes the words ‘trained doctor’. Will leave it at that.
Initially, sailors were fed dried meat during long voyages, and they never got scurvy. In order to reduce costs, they started to feed sailors grain instead of meat. This is when they started to get scurvy. Carbohydrates prevent the absorption of vitamin C and that is why they got scurvy. Interestingly enough, this is why people who have been on a carnivore diet for decades never get scurvy.
I'm so impressed by going through such in depth lengths that one solved this medical mystery. I am almost on 2 years and I still believe I do not have an accurate diagnosis on why I am having difficulty walking. I had been an active individual and now just holding on.
Same! Still undiagnosed with anything that explains my weakness in my legs. From super active to struggling to get up the stairs--at many pints bedbound for months. 4 years in, 12 specialists later, and still not diagnosis.
I hope you get both answers and recovery! ❤
Love your videos! I wish all doctors had your enthusiasm for diagnosis. (My husband went to several doctors over 4 years, telling them something was very wrong as he felt terrible and was always exhausted. Doctor #7 finally figured it out when he was completely decompensated; at that point, his liver tumor was 20 cm. He had fibrolamellar cancer, not regular hepatic cancer, and fibrolamellar is unrelated to hepatitis or cirrhosis. They should have listened to him when he said something was very wrong. He mostly got told he was getting older and maybe he had a chronic sinus infection . . . Despite bad bloodwork, nobody seemed interested in really figuring out the problem. I guess he didn't look the part because he was our state's number one road bicycle racer at the start of it. He ended up dying after a heroic and brutal 5-year fight that may never have happened with an earlier diagnosis. So, keep being the awesome doctor you are!) I had some tremor issues and, as an active person that ate well (Ironman-distance triathlete), I had no idea what the problem could be. Turned out I was deficient in Vitamin B1. I didn't eat a lot of processed foods that were fortified with thiamine. Not a fan of beans. I do eat a lot of fish and other meats. For whatever reason, my body seems to use more, and I have to supplement to stay in the normal range. It does go up with supplementation so not likely an absorption issue. Who gets Beriberi? Apparently, I do.
Nutritional yeast has B vitamins. I found out in low in B12 and also need but D 2
Who gets BeriBeri? I had rock bottom Thiamine (Vitamin B1) with IBD. GI inflammation can impair GI absorption. eg colitis. Apparently Vitamin B1 can drop down to concerning levels in just 30 days if it’s deficient.
I have caro (sprouted and roasted barley) for b vitamins
Medics get really excited at such a rarity of our times 😆 I know of one case in Dublin where a lad had restricted himself to beer and Pot Noodles! When an eventual scurvy diagnosis was arrived at EVERYONE came around for a look. Most had never seen it.
I'm a clinical dietitian and this has given me more insight... very surprised at the symptoms
Excellent Doctor!! Im a dietitian and I really enjoyed the video. It made me think how many clinical conditions and symptoms are actually related simply to some sort of nutritional deficiency that is never diagnosed.
Thinking of how physicians are more likely to recognize diseases they have seen before, I was reminded of a co-worker of mine (in central California). She went back to Chicago to be with her folks for Thanksgiving, and came down with a a terrible foamy diarrhea-- bad enough that they admitted her to the hospital. The Chicago doctors couldn't diagnose it, so she came back here and went to a local doctor. The symptoms complemented by history (she had gone hiking in the mountains shortly before she left for Chicago) pointed to giardiasis (colloquially known as beaver fever), for which she was treated and recovered. It is a parasitic disease of beavers that can be communicated to humans; when beavers were re-introduced near Yosemite they weren't tested for it, and brought it with them.
Isn't that the same parasite a lot of dogs carry and spread?
Please elaborate on this. I have got a dog. Very interesting.
@muurrarium9460 dogs are an unlikely vector of Giardia. Your more likely to get it from contaminated water. Unless dog poop is on your menu.
Giardia is a bacteria (I think) and is in many water supply, like wells, lakes, etc. Any private or public water supply can have it. Many hospitals have additional water filtration and treatment, to try and reduce patient risk, in case its present , even in low concentration. . (Already low immunity while in hospital). Google giardia in water. Lots of information out there.
It's not a beaver specific disease. Giardia is a common parasite in open streams and lakes where animals poop...which is everywhere. Hikers normally do not consume untreated water because of this. Yes, dogs and other animals can get it, but there is medication.
“3 quarters of a cup of raw broccoli” 😂.
Siobhan, thank you for making medicine so exciting. You were definitely made for this. I learned a lot!
..... or one Barbados cherry aka acerola 😀
Or FRESH MEAT
Ever so grateful for your description of this condition- I've experienced it...?!very terrifying -yet so easily helped...if only I'd realized it then...THANK you!
I like the way you tell your stories, and letting us try to guess the diagnosis.
I’m in my 60’s and just now learning about real benefits of nutrition ? This should be taught in school not just from mom saying ‘eat your vegetables’ .
They used to teach this in elementary school in the mid 1960s, At least in the ones I attended.
Reminds me of Dr Grenfell's work on the East Coast of Canada. One girl was healthy while all other family members were sick. Turns out she was eating potato skins from the garbage pail and was the only one without a vitamin deficiency.
I love potato skins, so much flavor and nutrition!
All the vitamins in a potato comes from the skin itself while the rest is mostly starch, because it's a root vegetable spending most of its life in the earth.
From my experience no drs would ever care to go this far in determining a cause. They would just say it's all in your head you must be a drug seeker.
Sorry you have had such a bad experience with your healthcare providers. I've had good care with my doctor and health plan willing to keep looking for the cause of hard to identify problems. There're good people out there, good luck fine one to help you look after your health. 😉👍💙🕊
Ha! True enough!
Same. If you even answer yes to one of their questions they'll think you're lying
The patient isn't the bottleneck, you could provide all the information in the world in any format to the doctor and it would make no difference. Zero answers, zero help, zero prevention, zero mitigation, western medical way. Dr. Google is far more useful. Can't wait until we have ChatGPT medical vending machines that roll into the office on wheels, spit out a lab requisition or prescription and be on our way. Same or better outcome, less wait, less money.
@@Globodyne that would be so nice! There's time you know exactly what it is.. like an ear infection but you have to sit and wait for hours for the Dr to tell you it's an ear infection and write a prescription.. that takes 3 mins
You are an awesome doctor!!! You truly care about your patients!
I guessed immediately. I take supplements to avoid this myself. I have severe gastro issues, so I’m on an extreme low residue diet, which means practically no fruits or vegetables. With so much societal disdain for overweight people, I often have to educate doctors who attribute my malnutrition to what they assume is a poor diet from laziness, bad food choices, etc. It’s immensely frustrating that the people with the greatest understanding of the millions of diagnosis out there get so pigeonholed into the “obvious”.
Don't do supplements is not the full form of C drink lime water. Full form of C
Stay away form all sugars and all foods that make sugar potatoes, pasta,rice,all grains,corn,night shade vegetables. Will fix your GI issues plus restore vitamin levels
I guessed the anemia part immediately but maybe that's a bit easy lol. I didn't guess the actual diagnosis until you mentioned she cut out all fruits and veggies. Also wanna say that as a medical nerd who can't actually work in healthcare, I love these types of videos! They're so fun
Your enthusiasm is contagious! You're smart as hell, and adorable as heck!
There's no way my GP would refer me for such comprehensive investigations!
Then you need to FIRE your GP (and your insurance company if necessary). Their job is to cure the patient. Denial of diagnostic services is cause for lawsuits when permanent disability or death is the result.
Money 💰 🤑
Wow! I never would have guessed that diagnosis!! 😮 LOVE these medical mysteries!! 💕 Fantastic detective work from her doctors.Thanks Siobhan! 😊
As à medical student I really appreciate this video ,thank u
The diet hint did most of the heavy lifting for me 😄
Symptoms implicating joints + vessels (weakened capillary walls causing leakage of fluids and Hb) -> connective tissue disorder + nutritional changes = possible Scurvy.
I really enjoyed this kind of video, It's great to see the process of elimination in a diagnosis mapped out like that!