Spina bifida (myelomeningocele, meningocele, occulta) - causes, symptoms, treatment
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- Опубликовано: 17 июл 2024
- What is spina bifida? Spina bifida is a birth defect where the backbone doesn't close completely and can result in three main types-spina bifida occulta, meningocele, and myelomeningocele. Find our full video library only on Osmosis: osms.it/more.
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This is good very basic info, but as a 41 year old with SB, I must add that their are many variations in between these models. I was technically diagnosed with 'occulta' as a baby, but I have many of the lifelong neurological problems that are considered part of the more severe forms. I was also born with club feet, and had one spine surgery at age 4 plus several feet surgeries. Some of my neurological problems come from a tethered spinal cord, which is also a common issue in SB patients. A MRI of my spine looks nothing like a normal spine. I have a lipoma that many of my nerves go into at the base of my spine, slightly to the side of where a spinal cord should be, yet mine was "hidden" under the skin. I do have the typical indicators on the outside, but my diagnosis was the in the late 70's/early 80's and they know much more about it now than they did back then. Now adults with SB have trouble finding doctors who know as much about it as the patients. We tend to know more, because, sadly, it is treated as a childhood disease, not as a lifelong birth defect, even though it truly is. Thanks for teaching people about it... more awareness is needed for sure!
Thank you very much for your post. I was diagnosed with SBO but like you, am experiencing many more neurological complications. May I ask how your hidden lipoma was found under the skin? Was it during surgery? Your description of a spot next to your lower spine sounds very similar to my own physical sensations too.
I have a dought, hair with sack its called spinebifida occulta
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Wow, I'm sorry that your suffering with so much. I pray that you can find a caring doctor who is more knowledgeable and can help ease your pain. 🙏💕
wow..... just with this one single video, i could clearly explain to others with confidence what i've just learned. these osmosis videos are amazing!!! thank you
I’m 15 years old and i just found out that I have spina bifida myelomeningocele (the most severe part) I have a scar on my back and I was always told that they removed something and I’ve never given it much thought, I also have absolutely no sensation on my right foot, but I can still move it, I was told that it was this way because they touched a nerve in surgery and I lost sensation, my parents told me these lies because they didn’t want me to feel like i had limits or like i was disabled in some way, I have always performed badly in P.E, and people always tell me that i run funny, I just found out because i was having back pains and I started to limp a little, but im truly grateful for my parents because really if I had known I would have used this as an excuse to not do P.E, to stop running because I ran weird, anyway this video really helped me understand this condition but now im afraid, the doctor told me about how surprised he was that I can run, walk and do stuff, since I had the most severe type of spina bifida, and that Im really lucky and stuff but now there is so much that i dont know like will i lose the ability to walk as i get older??? Will my kidneys fail??? I’m so afraid now and i wish this limp never have appeared so I wouldn’t have known that i had this
Hopefully it will ease your mind to know that I am 41 and still walking! Painfully, of course, but mind over matter... I was made fun of as a child for limping, and sometimes people actually thought I did it on purpose to look tough! I have a large back scar, and had several club feet surgeries. It took me years to accept my differences because kids told me I was ugly and different. Don't let them bring you down, ever! You are strong and amazing. Take care of any urinary infections quickly, but try to avoid them at all. I had the worst ones during pregnancy, but I survived, and my baby, who is now 8 years old, came out normal and healthy! Your baby's will have a higher risk than normal of having Spina Bifida, but you can learn precautions if you decide later to have children one day. I wish you the best, and try not to worry much about it. We can live long happy lives; proof right here!
Debbie Bezalel me too!!!
I have the worst case and just had a tethered cord surgery
Debbie Bezalel dm me on Instagram @geaux.noah and we can explain it
watch out not to put too much pressure on the foot without sensation, purchase custom made sole to avoid developing calluses.
Thank you for such an informative video. My daughter was just diagnosed with Myelomeningoclele Manque. Your video helped me understand what a blessing it is that I can say the Manque part of her diagnosis!
yey! thank you osmosis! this was our topic last friday and I need to review again about it though I have a notes,I still need to watch this for additional.
You guys are absolutely awesome. Your videos are detailed and the explanations are easy to understand.
Another excellent detailed videos. Only regret was not finding this channel sooner.
very clear and relevant information, not too quickly explained and great illustrations. Your video's teach me in minutes what teachers try to explain in 2 hours. thank you very much.
hahahahahahaha. XD indeed
You are the best 👍
Learned more in this video than in the 20 minute lecture from my GA professor. Thank you! - a very happy PT student
Glad it was helpful, Kendra! 💖
Thank you for the great explanation! I have been suffering from stage 2 kidney failure because of spina bifida and this info really helped out with learning more about it.
We're happy that we're able to help through our video, Samuel. 🙏🏼
Subscribed. I enjoy the format of the videos!! Thanks for clearing everything up. ;)
Thanks for watching Lisa! Did you know that if you like & review us on Facebook then you’ll get access to our videos hours or even days before they’re published on RUclips? Check it out here: bit.ly/2u35D6J
Osmosis is making my nursing school experience much easier. I read the topic at head and then watch your videos to get a clear understanding you guys are a life saver thank you for your work!!!!
That's awesome to hear - what school do you go to?
Osmosis I am 3rd level at Southern University in Louisiana
That's awesome! Would you be willing to share our videos with your classmates at Southern Univ. of Louisiana through the FB page?
Thankyou this really helped in my school project.
i have seen many medical tutorial video but i have never seen comprehensive and simple but yet detailed explanation like yours. please do more video .. YOU ARE THE BEST!!!!!!!!!!
That's the plan, Fasil! We're glad you're finding our videos useful. If you haven't yet checked out our educational platform we have a bunch of tools that we think you'd like. These include unreleased videos, tens of thousands of flashcards and multiple choice practice questions, study workspaces, and daily exam schedule organizers to help you learn medicine. You can sign up for a free trial of Osmosis Prime here: bit.ly/2ut5ZEJ
i am from ethiopia that means i have no creditcard or means of paying for the course. i would like to join the platform but you know . so what do you recommend for people like me who cannot pay online
thank you! I love all your videos!
Awesome video! I've got Spina Bifida, and have always known how define it in layman's terms.
this is so helpful to people, i have a step brother with a very extreme case of spinabifida, nice video 👍
Glad it was helpful, Chlloe! 💙
Thanks, for Your video. I took many informatinons about spinabifida . But , I want ask You is it curable or not?
Is he alright
Very informative page.thanks for uploading such beautiful videos.
your classes are awesome ....please make video on HYDROCEPHALUS
This is a really good explanation.
You're the best ❤ THANKS ❤
This is so so helpful.. Thank u so much sir.......❤ from 🇱🇰
My child was diagnosed with spina bifida, now 7 years old with a condition of 10 kg weight, sometimes admitted to the hospital 1 month 4x for the treatment process. thanks for information
thanks! can you explain where does the 'spina bifida aperta' lies in the whole spectrum ?
awesome vdo...i completely underatand what is spina bifida instead of reading book....good job
Spina Bifida cystica occurs when there is an actual protrusion of the spinal cord and meninges through a defect in the vertbral arch. Spina bifida cystica can take two forms. Meningocele and myelomeningocele. Spina bifida occulta is the mildest form of spina bifida and occurs when there is a gap in one or more of the vertebral arches, but the spinal cord and meninges remain within the vertebral canal. Approx. 10 percent of the general population has this variation in development. bladder and/or motor problems
Hi i am moaaz coming from 7 years after this video was released
I really apperciate what you did and thank you for this amazing information
you really helped me in college☺
Wow, thank you, Moaaz! 💫 🥰 💖
Relation to cerebrospinal fluid leaks and ehlers danlos? Please do videos on cerebrospinal fluid leaks and chiari malformations. Great job!
Your videos are so very helpful
great video..I feel like I got lucky..I have last defect occulta. I've never had a problem except for when I began to gain weight.
Thank you osmosis ❤️
thank you. great video
Very good . Thank you .
Thankyou osmosis ❤
Plzzz make more vedios on misculoskeletal pathology.
ie.- Osteomyelitis, paget's disease, ewing's sarcoma.
Awesomely done 👌🏻♥️
thank you for all your videos. I'm gonna score good marks in my university exams . all because of you thank u so much 😄😄😄☺😊
We love hearing this, Kavya! We're glad you're finding our videos useful. If you haven't yet checked out our educational platform we have a bunch of tools that we think you'd like. These include unreleased videos, tens of thousands of flashcards and multiple-choice practice questions, study workspaces, and daily exam schedule organizers to help you learn medicine. You can sign up for a free trial of Osmosis Prime here: bit.ly/2ut5ZEJ
always wondered about this.
do you have a video on borderline personality disorder?
Yep! Check out our video called cluster B personality disorders
These videos are amazing
very well written
Great video. I wonder if the affected section of spinal cord (depicted at 0:46--> as the donut-resembling ring with a triangular piece missing) will remain that way or rather develop to a normal one with a delay (so that only the vertebral arch would defect persist). Because wouldn't some important, dorsal neural cell nuclei and tracts otherwise be missing from that level completely? Or is the neural tube enclosure defect tiny enough to not cause any noticeable changes e.g. in the function of sensory and motor tracts of the spinal cord?
The best video ever ❤
Hey thanks for this video..it's very beneficial
Thank you, Prabhjot! If you’re interested in getting early access to our videos, check us out on Facebook: bit.ly/2u35D6J, or, even better, get exclusive access to dozens of our unreleased videos now at our website: bit.ly/2ut5ZEJ.
Thank you for helping me understand the back I’ve been so embarrassed of.
Glad to be of help, Miraclle! 😊
Thank you so much
Thank.you.very.much.sir.
Big thanks from sudan
yessss i too loveeeeee osmotic videoss😍😋
Very useful info in a crisp manner 🤘🏻
Glad it was helpful! 🥰
Can you tell me the mechanism of neural tube and an explame if impairment?
Thanks
I like your channel benefitial for students
That's why were here! If you haven’t yet checked out our educational platform we have a whole bunch of tools, beyond the videos, to help you learn medicine. You can sign up for a free trial of Osmosis Prime at www.osmosis.org/
Hiii Amit I am very very problem piz help my child piz
it is a great video to explain because i have my sister having spina bifeda and because the spina bifeda she have a kidneys problem and heart problem the spina bifeda it is so hard to have it becuase is so sad at the same time
Excellent video
Thank you
Hi Justina! Thanks! 💖
tnq so much
Super helpful
And before "leaving behind"in the definition.please guide
Do you have NEC video ?
Olá, pode acontecer estridor na laringe, intestino preso, hipertensão Intracraniana, e deficiência cognitivo na espinha bifida oculta?
Really amazing...👍🏻
The way you explain is the best way i think
Thanks for the video
Explanation level 💯
Thanks for the wonderful feedback, Akshita! ❤️
well done
I'm 19,I have just found that I have Spina Bifida noted at LV5 after I did a X-Ray Scan on the lower back because I have mild lower back pain,What Should I do, please?
Sorry for my bad grammar.
Regards from Egypt.
Consult a good doctor or maybe a neurologist
You will be fine I have the kind of spina bifida where I knew it happened from birth and I’m going strong 12 years
Can someone explain dorsal osseous dysraphism at S1?
I was told I had this along with tarlov cyst disease
Good info
Actually meninges aren't derived from the Neural tube, but anyway great video :)
A relative was born sleeping bc of the type of spina bifida they had. None of us got to see him either. All we were told was that he had the worst of the condition. They lost him at 5 months gestation so I'm trying to understand more
Thank you so much 😍😍
You're welcome, Deepika! 😊
I have a dought please answer eneone. Sack with hair its called spinebifida occulta?
Explanation 🔥🔥🔥🔥
Glad you think so, Sandeep! ❤️
You might want to update your video. It does not include the most severe form of SB . That Rachsisis the whole Spine is exposed with a 99 percent fatality rate. I have have myleomeningocele
My brother had Spina Bifida. I think his was most severe kind. He couldn't walk or talk. Had fluid in his head so he had a shunt. My parents were told he wouldn't live past 3 years. He passed away of kidney failure at the age of 24.
What did you say after "completely meet after...."please complete this line
You use iPad for writing information right?
i like to describe scientific things as osmosis when i want to save my breath and now I have found this channel, thank you.
You're welcome! 😊
After surgery baby safe na.. Baby walking seeting and all happy na.. Sir tell me. My baby just born 14august 2021..
lovely content ❤️
Thanks, Jyotisman! ❤️
THANKS
You're welcome! ♥️
I have spins big idea occulta and I need to have surgery in a few days. My sacral dimple started acting up and now I need to get an abscess removed. I will give you updates.
What happened
Hello, just wanted to ask, do you guys agree with Folic Acid fortification (adding synthetic Folic Acid to food), foods like rice or bread ?? Or do you prefer the natural Folate??????? I heard it decreases risk of Neural Tube Defects like Spina Bifida. Studies from 2015 says that Folic Acid fortification is 95% successful in terms of decreasing risk of Spina Bifida within 3 years but a synthetic is different from an organic.. so...... Just wanted to ask do ya'll agree with Folic Acid fortification?
The amount of folic acid that’s recommended, especially if your expecting to conceive, is actually a lot around 400 micrograms per day and most of the time folate from natural sources is not enough to meet the daily requirements.... and for folic acid to really work and prevent neural tube defects like this, the folic acid regimen should have been started 3 or so months before pregnancy... so yes, in my opinion food fortification is a good thing so that we could Increase the folic acid levels of the general population even before they become pregnant...
Si vous mettez la traduction sur les dessins, comment voulez vous qu'on comprenne vos schémas et explications !!!!??
Hi i have a spina bifida, im french and im verry good !
Hiii.... Glad to know that.... When u come to kn
What if the back is just normal but curved like,and it does not have lump skin
Does anyone if i can do boxing/martial arts with occulta???
You can live an active life
awesome guys😉
Thank you, Prithvi! Did you know that if you like & review us on Facebook then you’ll get access to our videos a day before they’re published on RUclips? Check it out here: bit.ly/2u35D6J
In my nursing book it says meningomyelocele and meningocele ,both comes under spina bifida cystica and in other book both the cases is presented different ,can you please explain it for me ?
u have saved my embriology paper
Woohoo! Glad to help! 🙏🏼
cover embryology in ur videos... that will be very helpful
We will eventually! You can vote for upcoming videos by becoming a Patreon subscriber. www.patreon.com/osmosis
I have Spina Bifida Occulta
SPO Visuals: Dimple and Birthmark.
Spina Bifida symptoms are as follows;
* Lower Back Pains
* Strain on lower back constantly
* Sleep Apnea
*Insomnia
*Leg Numbness
*Bladder and Kidney problems
*Skin problem sore in-between my buttocks
Some of which have become more frequent recently hense coming here looking for information...
Spina Bifida Occulta has many symptoms and problems...
They just diagnosed me with spinabifida , because I had two l5's that have fused what type would that be?
Occulta
i have the 3rd one
I have myelomeningocele I just turned 31 on Monday.
thanks
I love its
ياريت حد يقولي علي علاج ليها لاني تعبت ادعولي
L4-s1 which type ?
When in case of occulta everything is normal so y is that called spina bifida ?
can you do hydrocephalus
We will eventually, Roman! You can vote for upcoming videos by becoming an Osmosis Prime subscriber. You can sign up for a free trial here: bit.ly/2ut5ZEJ
Can you prepeare Bell Paralysis ozmosis?
We will eventually, oğuzhan mallı!In the meantime, you can see all of our exclusive and unreleased videos, access thousands of flashcards and board-style quiz questions, and much, much more by becoming an Osmosis Prime subscriber. Check us out! bit.ly/2ut5ZEJ
I find it thanks
Respected sir
Which kind of software is used for such kind of presentation. I am pharmacist and i want to make such presentations vedeo for youtube
Can u help sir?
Hi Irfan! Thanks for asking! Here's how Osmosis videos are made: www.osmosis.org/blog/2020/11/27/how-osmosis-videos-are-made# Hope this helps! 😊
i am diagnosis with the first type i.e. MENINGOMYLOCELE since birth having having urine and stool incontinence.. Thanks for the video.. nicely explained.. :)
I have that to
@@billieeyelash7636 can we talk about it..?
@@kaizoku5883 yes how old are you?
@@billieeyelash7636 i am 19
@@kaizoku5883 I'm thirteen lmao sorry I never check my phone so I didn't see the message
Just found out today that I have spina bifida occulta. Thanks for the info!!
Same here :/ what did you do for it?
Pls how to I identify ,I have cute son age 4 months he's back by sack with hair .with out fliud