Toby, you are genius. I have been following you for years, I love you man. PLEASE keep these up, the CFS commuity really needs to learn from success and interviewing the people who have BTDT are like the best sources, plz plz plz find more of these amazing souls and interview then to find out their ingredients to success. Life changing. THANK YOU for sharing!!! This gave me so much hope. I was really in a dark place this morning.
Bea, I followed you on Instagram for a while. I'm so happy to watch your recovery story here! Im so incredibly happy for you and csnt wait for your book!
Great interview thank you. I just got my GP diagnosis and see a couple of specialists soon, as well as my endocrinologist for Graves’ and Hyperthyroidism. It’s a dramatic life change and I’m glad to be seeing people recover. Thank you both. 🙏🙏
Hey Guys! I hope you found this amazing story helpful for your own recovery journey! If you want a path to follow, a plan to have and a routine and structure to move forwards with you can learn more about The Online Recovery Program here join.cfshealth.com/mentor -
I got CFS n 1989. Glad to hear her story. I Wud like to chat with her. Cud u have her whole name so I can git n touch? Or where can I enteract with CFS patients? TY
M K I went through this program a few years back, and although I am not recovered and have crashed since, it is really helpful and gives structure and guidance to a group of patients who are basically invisible and given up on. I had to figure EVERYTHING out myself without any support and trying to find some way to handle it. My doctors didn’t tell me about rest breaks, restorative movement, the importance of meditation or pacing. I wish I knew about the program when I first got sick, because my doctors told me to push myself, go for walks, find something to do and that I was too young to be seriously ill. If I had known to NOT push myself, which caused crashes and permanent deterioration of my health, I would probably be recovered by now. I have been ill for ten years.
Ronniechops Hi. Please, don’t blame yourself for not having recovered. This is one of the many problems with these programs. Imagine cancer patients saying “if only I had done better/followed this lifestyle program I would have recovered”. It’s completely insane. There are now biomarkers to prove that ME is a serious disease i.e. NOT cured by lifestyle changes.
Ronniechops On a business level, these guys could not have a better environment. The patients are desperate, ME/CFS doesn’t get attention in the news so they can “scam” freely AND they put the responsibility on the poor patients.
M K I don’t blame myself (unduly) at all. I haven’t been disciplined in following my routine, I haven’t been respectful of my own boundaries and limitations and there have been unforeseen events in my life as well as other illnesses, and all this has resulted in many crashes and deterioration of my health. This is not blaming, this is reality and an objective view. I blame my doctors at the time I became ill more than anyone else. They didn’t give me the correct guidance and advice and told me to do the very things that made me more ill. Point is, some programs are scams. This, however, is not one. He clearly says, over and over, this is work, long term and not a quick fix or cure. It is meant to give better quality of life and for some it will produce enough improvement and stability over time to help them recover.
@@ronjakh I see. But it should be clearly stated that it is for coping. As my ME-doctor said, there are way too many issues about ME/CFS for it to be cured by any lifestyle changing programs. But I agree that there are more scammy programs out there such as ANS, DNRS and especially Lightning Process. It should not be "hard work" for you to recover from an illness. This illness is not your fault and it will not change based on the way you live. I'm sure that if and when they do find a cure, these programs will disappear VERY quickly. I was once putting my faith to these kind of programs too, but it quickly gets old. The people who "recovered" were never anyone you know personally. Every real person I know would say the things you do ("it helped a bit but then it stopped") and it really shouldn't be that way.
Toby, you are genius. I have been following you for years, I love you man. PLEASE keep these up, the CFS commuity really needs to learn from success and interviewing the people who have BTDT are like the best sources, plz plz plz find more of these amazing souls and interview then to find out their ingredients to success. Life changing. THANK YOU for sharing!!! This gave me so much hope. I was really in a dark place this morning.
What an inspiring story - thanks so much Bea & CFS health for sharing this ❤️
Bea, I followed you on Instagram for a while. I'm so happy to watch your recovery story here! Im so incredibly happy for you and csnt wait for your book!
Great interview thank you. I just got my GP diagnosis and see a couple of specialists soon, as well as my endocrinologist for Graves’ and Hyperthyroidism. It’s a dramatic life change and I’m glad to be seeing people recover. Thank you both. 🙏🙏
These videos are one thing that helps me
They don’t really help though… they just sell courses
Bea, you are so likeable and inspiring, thank you 🥰
Thanks Bea and Toby, this is full of great wisdom and laughs 😂😂 love your work!
Hey Guys! I hope you found this amazing story helpful for your own recovery journey! If you want a path to follow, a plan to have and a routine and structure to move forwards with you can learn more about The Online Recovery Program here join.cfshealth.com/mentor -
I found this very helpful, thank you
Why?
I got CFS n 1989. Glad to hear her story. I Wud like to chat with her. Cud u have her whole name so I can git n touch? Or where can I enteract with CFS patients? TY
Wish people would donate to research instead of these scam programs
M K I went through this program a few years back, and although I am not recovered and have crashed since, it is really helpful and gives structure and guidance to a group of patients who are basically invisible and given up on. I had to figure EVERYTHING out myself without any support and trying to find some way to handle it. My doctors didn’t tell me about rest breaks, restorative movement, the importance of meditation or pacing. I wish I knew about the program when I first got sick, because my doctors told me to push myself, go for walks, find something to do and that I was too young to be seriously ill. If I had known to NOT push myself, which caused crashes and permanent deterioration of my health, I would probably be recovered by now. I have been ill for ten years.
Ronniechops
Hi. Please, don’t blame yourself for not having recovered. This is one of the many problems with these programs.
Imagine cancer patients saying “if only I had done better/followed this lifestyle program I would have recovered”.
It’s completely insane. There are now biomarkers to prove that ME is a serious disease i.e. NOT cured by lifestyle changes.
Ronniechops
On a business level, these guys could not have a better environment. The patients are desperate, ME/CFS doesn’t get attention in the news so they can “scam” freely AND they put the responsibility on the poor patients.
M K I don’t blame myself (unduly) at all. I haven’t been disciplined in following my routine, I haven’t been respectful of my own boundaries and limitations and there have been unforeseen events in my life as well as other illnesses, and all this has resulted in many crashes and deterioration of my health. This is not blaming, this is reality and an objective view. I blame my doctors at the time I became ill more than anyone else. They didn’t give me the correct guidance and advice and told me to do the very things that made me more ill. Point is, some programs are scams. This, however, is not one. He clearly says, over and over, this is work, long term and not a quick fix or cure. It is meant to give better quality of life and for some it will produce enough improvement and stability over time to help them recover.
@@ronjakh
I see. But it should be clearly stated that it is for coping. As my ME-doctor said, there are way too many issues about ME/CFS for it to be cured by any lifestyle changing programs. But I agree that there are more scammy programs out there such as ANS, DNRS and especially Lightning Process.
It should not be "hard work" for you to recover from an illness. This illness is not your fault and it will not change based on the way you live. I'm sure that if and when they do find a cure, these programs will disappear VERY quickly.
I was once putting my faith to these kind of programs too, but it quickly gets old. The people who "recovered" were never anyone you know personally. Every real person I know would say the things you do ("it helped a bit but then it stopped") and it really shouldn't be that way.
What was the Instagram ? Beaboh ...
Is she Norwegian? Funny she sounds ENglish. lol. Norway had a trial of rituximab but it did not work.