Gidon's Story | A patient and advocate for Gaucher Disease in Australia

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  • Опубликовано: 10 апр 2023
  • This is Gidon's story. Diagnosed at three years of age, Gidon has been receiving bi-weekly treatment for many years. As the founder of the Gaucher Association of Australia and New Zealand his commitment to advocating for access to newer, more innovative treatment options for people living with rare diseases is a poignant example of never settling.
    There are approximately 100 Australians who live with #Gaucher disease, an ultra-rare #Lysosomal storage disorder.

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