Taylor Spatial Frame, my experience 2018

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  • Опубликовано: 17 ноя 2024

Комментарии • 26

  • @sherrywright6410
    @sherrywright6410  5 лет назад

    Hi Cindy,
    thank you for your comment and your question, you are right- it is very cool to have these conversations with people and have the opportunity to share this information.
    As for your dorsiflex I would mention it to your physician (which you have already done) and your physiotherapist h/she e will likely give you some exercises that over time, will help with your flexibility.
    I also have limited range with my dorsiflex although I am still only midway through my recovery program. I expect to have full range of motion as I see improvements on a regular basis and the real work on restoring my lost muscles has yet to begin.
    Good luck to you as you continue on this recovery journey.
    kindest regards,
    sherry

  • @katavittinger4155
    @katavittinger4155 2 года назад

    I just had the surgery two weeks ago (August 19, Friday), and have a very different story.
    First of all, I got this TSF because my bones in my leg grew in a wrong way (idk how to say this, English is not my first language😅), and this device is going to straighten and put my bones in the right way. My leg is also 1 cm shorter than the other, and they are correcting this as well.
    The surgery went well, I got something in my spine that made my legs numb for hours so I couldn't feel the pain. And there was a device which continuosly gave me medication through my spine for 2-3 days (so I only had a minimal pain in the first few days, which is very good). So I couldn't get out of bed at all. On Monday, they took this off, and that day I could start walking.
    I had to spend 10 days in hospital btw.
    The pain is bearable for me, I only take medications at night so I can sleep without waking up to pain. BUT I HAVE A VERY WEIRD FEELING. My bones and everything in my leg is just cracking and it's worse than pain (for me. Bc I can take medications for pain, but I can't do anything with this cracking). The daily adjusting hurts though.
    Oh and I have to clean my "wounds"/" holes" (what you call that?😂 where these things come out of my leg) every second or third days.
    I have to wear this device for 3-4 months, so now I can't go to school for a while (I don't want to go with this device, because I'm afraid that someone will push me accidentally)
    Btw after they take this off, I will have a knee surgery as well in the future.
    I hope you can understand, I can't explain everything that well bc as I said, English is not my first language😅

    • @sherrywright6410
      @sherrywright6410  2 года назад +2

      Hi Kata,
      thank you for your letter,
      I am sorry you are going through this difficult time but I’m also very pleased that by wearing the Taylor Spatial Frame you will soon have a better quality of life. Wearing the frame is not easy and is definitely a different experience for everyone who wears it.
      I’m glad to hear the pain is manageable for you. As my situation was different from yours I’m not familiar with the cracking sensation you are experiencing. That being said I do have some suggestions for you.
      First, if you are concerned about the cracking or anything else related to your new frame I would suggest you speak to your surgeon about this, it may be a normal part of your healing process or it may be something that requires more attention, I don’t know.
      Second, find ways to distract yourself, call a friend, turn on a favorite movie or pod cast, read a great book whatever you need to do to put your focus elsewhere.
      Third, find ways to navigate through the uncomfortable times. For me breathing exercises and meditation were helpful. There are many great pain meditation videos available online. Find some that work for you and use these tools whenever you need them.
      I know that 3-4 monthes may seem like a very long time but trust me before you know it the time will pass and soon you will be sporting a new leg and a new life! Your confidence will grow and so will your enjoyment of life all because you had the courage and the strength to do what was difficult in this moment.
      I am proud of you for making a difficult decision that will improve your life and help you grow as a person.
      Keep up the great work! Good luck in your recovery.
      Kata never stop striving for your dreams and your goals. You got this girl!

    • @katavittinger4155
      @katavittinger4155 2 года назад +1

      @@sherrywright6410 thank you so much! 🥺
      The cracking is becoming better everyday with the adjusting, and the doctor said it's totally fine, that I feel that (it would be hard explain why because of my english).
      I'm also happy about this situation, because even though it's hard and painful, my leg will be so much better in the future! I visited the doctor a few days ago, and he said my leg already looks much better in the Xray🥰
      Of course I would rather be at events, parties, visiting places, going to the mall etc right now, and it's hard to stay away from these for a few months, but it's worth it. I can do any of this next year with a much healthier leg🥰
      And thank you for the tips🥺❤

  • @18zory
    @18zory 6 лет назад

    Thank you for share your experience.

    • @sherrywright6410
      @sherrywright6410  6 лет назад

      You are welcome, I hope you found it useful to hear about my experience.
      kindest regards,
      sherry

  • @thespiritsafe
    @thespiritsafe 5 лет назад

    Thanks so much for uploading. I am seeing an osteopath soon with suspected tibiar torsion. Likely surgery would require a frame like this. I am worried because I have a 3 year old son who is very active and my wife does not drive. Were you able to drive with the frame? I am concerned as I have a small, low sedan. I am also worried about dependency on pain medication.

    • @sherrywright6410
      @sherrywright6410  5 лет назад

      Hi, I'm glad you've taken the time to connect with me - it is so important to be speak with someone who has been on a similar journey.
      I was not driving while I had the frame on, I was advised that my insurance would not be valid if I were in an accident, I chose not to take that risk.
      The fact that you have a three year old child will definitely keep you hopping, if your frame does not have a foot plate you should be pretty mobile and will have no problem chasing after your little one. You will likely be more tired than usual - just allow yourself time to rest as your body need to rest more during the healing process.
      As for your concern about becoming dependent on pain medication - I will be honest with you, I was also very concerned, several times I decided not to take my pain meds in order avoid becoming addicted. Let me tell you this is not the answer - it is much more difficult to chase pain than it is to stay on top of it. When you are wearing a TSF (Taylor Spatial Frame) your body is dealing with exceptional circumstances and needs to be treated accordingly, use your medication as required and as directed, speak with your surgeon if you have any concerns at all, they will help you find the right balance between being comfortable and not being overly medicated. Explore other options for pain management such as breathing techniques, these may help you get through a difficult moment but don't hesitate to use your medication if you are feeling really uncomfortable- that is what the medication is for.
      I hope this provides some insights as to what to expect while on this fascinating journey, I wish you well with your recovery. Don't hesitate to reach out to me again if you have anymore questions or concerns.
      One last comment, I've had incredible results from my TSF and I'm sure you will as well. Have faith in the process and stay strong and positive and you will see amazing results.
      Wishing you well,
      Sherry

  • @DAVIDLEEBANKS
    @DAVIDLEEBANKS 6 лет назад +1

    Hi , first off I just want to say Thankyou so much for making this video ! I currently have the Taylor Spatial Frame on my leg but for a different trauma . I had my surgery September 5th and went home 3 days later. The issue that I’m having now is the pain . Some days are good days and some days are REALLY REALLY BAD . The pins are what typically hurt so much especially after adjusting the Taylor Spatial frame. I just want to know if you have or had this issue and what did you do about it ?

    • @sherrywright6410
      @sherrywright6410  6 лет назад +1

      Hi David, I'm sorry to hear that you are going through this - that being said, for me the pain was worth it to know that my bone was growing back on it's own. Yes I did experience severe pain and my suggestion to you is to be in communication with your doctor about the pain as adjustments may need to be made to your medications. I also recommend that you stay on top of your pain meds in order to keep the pain under control, it is very difficult to 'chase' pain so try to stay on top things by taking your meds as needed- don't try to be a superstar and not use painkillers- it's not worth it. At first, I was concerned that I may become addicted to the pain meds but my surgeon assured me he would not let this happen. Right now your body needs help fighting the pain so use the medications as you need them. In my case the pain eventually subsided and I was less reliant on the pain killers, I'm sure this will be the case for you too. I know you are very strong and courageous because you have chosen to wear the Taylor Spatial Frame, just know that you have everything you need already inside you to get through this difficult part of your journey. Be patient with yourself and the process, it will get better I promise. good luck to you. Sherry.

    • @DAVIDLEEBANKS
      @DAVIDLEEBANKS 6 лет назад

      That was my issue I was taking little to no medication at all because I was so afraid that I would get addicted to it ! But after taking your advice and speaking with my doctor I feel comfortable with taking it and now the pain is starting to ease up. Thankyou so much for these videos they are really helpful for people going through the same thing as us. You are a really strong person God bless you and I pray for a speedy comfortable pain free recovery for you .

    • @sherrywright6410
      @sherrywright6410  6 лет назад

      Wow David, thank you so much for your kind words and warm wishes!
      I truly hope that these videos were helpful to you and others looking for information about the Taylor Spatial Frame experience.
      As for you, I'm glad to hear that you are learning to manage the pain, you will still have some days that are tougher than others, just remember to keep your faith and know that things will eventually get better.
      Wishing you all the best on your recovery journey.
      cheers,
      sherry

  • @lilysnowden2405
    @lilysnowden2405 3 года назад

    I am meant to get mine at the beginning of February and I am honestly terrified. Any advice to make it easier and the build up to surgery better would be much appreciated.

    • @sherrywright6410
      @sherrywright6410  3 года назад

      Lily thank you for reaching out to me!
      First let me say that I’m sorry you are going through this, whatever the reason the Taylor Spatial Frame (TSF) was recommended for you means that you have a serious situation… for that I am sorry.
      Second, it is perfectly normal to be frightened- I too was terrified at the thought of wearing a TSF. My initial thoughts were the device was barbaric and medieval and there was absolutely no way I was going to wear one!
      However, the more I educated myself about the TSF the more comfortable I became with the idea and the more I became convinced it was the right procedure for me.
      Let me say that it is not easy to wear a frame, it is difficult both physically and mentally. That being said, it is Totally Worth it! (at least it was for me) I was able to grow 11 cm of new bone naturally and that was important to me. In fact I grew the new bone faster than scheduled! Of course everyone is different and your experience may be different from mine.
      Lily in answer to your questions: the best way to prepare for this is to arm yourself with information, gather enough information for you to have a good understanding of the process and the procedures you are about to undergo. That being said too much is too much, you can bog yourself down with too many details that can all become overwhelming. Once you feel you have a good understanding of what to expect then let it go, have faith in your surgical team and your health care providers, they will take good care of you.
      Get yourself as healthy as possible before the surgery, this includes a good diet and exercise program to minimize your recovery time. If you don’t already, then get in the practice of meditating daily, meditate on good health and healing, meditate on being calm and relaxed and meditate on inner strength.
      You are obviously a strong and courageous woman to even consider wearing a TSF. Remember this, all the strength and courage you will need to overcome this life challenge is already within you. This experience will make you stronger and will give you some great stories to tell later.
      Lily I have no doubt that you will come through this with flying colours!
      Thank you again for reaching out to me, please know that I am here to answer any questions you may have or if you just need to connect with someone who has actually walked the path you are about to take.
      Remember your doctors are a good resource when you have questions about your personal procedure.
      Good luck with your procedure and your recovery,
      Wishing you well,
      kindest regards,
      Sherry

    • @lilysnowden2405
      @lilysnowden2405 3 года назад

      @@sherrywright6410 Thank you for replying to me and your kind words! I am only 18 so I'm finding the whole thing quite overwhelming. I've just watched all of your videos and have found them informative and comforting so thank you. One thing I am still concerned about that I can't find much information on is scarring and how severe it might be. Can you shed any light on this?

    • @sherrywright6410
      @sherrywright6410  3 года назад

      @@lilysnowden2405 Hi Lily, that’s a really good question, like you I also found very little information about scarring before I wore the TSF.
      The truth is it does leave scars, at least in my case it did. As the bone is transported either up or down, the pins holding the bone in place are stationary, this means that the skin tears a bit with each adjustment, don’t worry you hardly feel that at all. The scars that I have are surface scars meaning they are on the surface of the skin and can barely be felt when I touch them. They are very narrow and have now darkened up so they really are not very noticeable. My scars are different lengths (this is due to the fact that not all pins are adjusted the same amount.) I have several scars in various places on my leg, all varying lengths. I had 17 entry points from the pins and have scars at many of the pin sites, not all pins left scars.
      Lily because you are so young, I would imagine you will heal and recover much quicker than I did. Younger skin tends to be softer and much more pliable than older skin which takes longer to heal, in that sense you have a great advantage over me, you may not even have the scarring that I have had.
      Remember, after your frame is removed and your wounds have healed you can start to apply products that will help minimize the scarring. I have used Bio-Oil and I feel that has really helped. This is something you will definitely want to discuss with your doctor, he/she may recommend something that is better suited for your skin type.
      I am not ashamed of my scars as they are an important part of my life story, that being said, I plan to get a beautiful tattoo that celebrates my long journey once my scars have matured enough to hold the ink.
      The important thing to remember is how your body functions, you are being given a great opportunity to heal your body, the scars you accumulate along the way are all part of your life’s story, embrace them whatever way you can.
      I hope this answers your questions.
      Lily I’m so glad my videos gave you a little bit of comfort.
      Remember you are so much stronger than you realize!
      You’ve got this.
      Wishing you well,
      Sherry

  • @vijyamanral
    @vijyamanral 6 лет назад +1

    Hey.. I've had the frame put 5 days back.. And there's this numbness in my feet.. And when i try to walk, the nerves of the feet pain.. Did you also feel the painful sensation in the nerves?

    • @sherrywright6410
      @sherrywright6410  6 лет назад

      Hi Vijya,
      First let me say, that I am sorry you are going through this difficult and challenging time. Second, not all patients have the same experience with the Taylor Spatial Frame. In my case three of my pins are running through the nerves, an area which was also severely damaged in my accident, I do experience pain, numbness and tingling in the area affected. I will say that things get better as time passes, the pain settles down and you also get used to a certain level of discomfort. If you are truly concerned be sure to talk to your surgeon and explore different ways to cope with the pain. Managing the pain will be one of your greatest challenges throughout this process. Find a method for pain management that works best for you. Remember to be patient with yourself, the process and the people around you. This is an amazing procedure that will allow your body to repair itself, it is not easy but it is definitely worth it!
      sherry

    • @vijyamanral
      @vijyamanral 6 лет назад

      sherry wright Thanks a lot... Helped a lot.. 😊.. Hope you get well soon . May god give you strength and turn these difficult days into joyful days too. Good luck. 😊

  • @ttvharoonkiller6805
    @ttvharoonkiller6805 4 года назад

    Hey i Got my first Taylor spatialt frame when i was 6 now im 12 i Got it on off on off and now 1 day from now they take it off forever

    • @sherrywright6410
      @sherrywright6410  4 года назад

      wow, you've certainly been a trouper!
      good for you.
      I hope the TSF was effective and that you got the results that were intended. You will be a better person because of the challenges you have already faced. Good Luck on your recovery journey and in all that you do.
      kindest regards,
      sherry

    • @ttvharoonkiller6805
      @ttvharoonkiller6805 4 года назад

      sherry wright thanks 🙏

  • @vijyamanral
    @vijyamanral 6 лет назад

    Hey again... Hope you're doing well... I Just wanted to know whether the tsf you had on has been removed or not.. I actually want to know the duration as to how long is it gonna take to heal the bone

    • @sherrywright6410
      @sherrywright6410  6 лет назад

      Hi Vijya, thank you for your question, I hope you are well. Originally when I had the frame put on I was told I would have it on for 15 monthes in order to regenerate and heal 11 cm of new bone, I still have the frame on and I have regenerated the entire 11 cm and now I'm waiting for the bone to solidify and get stronger. It is my understanding that for every day of new bone growth it takes two additional days to solidify and get stronger (so 1/3 of the time in the frame the bone is growing and 2/3 of the time the bone is getting stronger ).
      I hope this was helpful and has answered your question.
      Good luck with your healing I hope all is going well for you.
      Continue to be strong, you're doing great, this is a difficult journey you are on. You will get through this a stronger person with some great stories to tell.
      kindest regards,
      sherry

    • @vijyamanral
      @vijyamanral 6 лет назад

      @@sherrywright6410 thanks a lot.. 😊
      My best wishes to you too..