What is MY Cancer Risk? Lynch Syndrome Explained: And How to Get Tested | The Patient Story
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- Опубликовано: 28 сен 2024
- Lynch Syndrome is a condition that increases the risk of developing numerous cancers. To better understand Lynch syndrome and how to test for it early, we sat down with Dr. Michael Hall, a medical oncologist at Fox Chase Cancer Center.
In this conversation, he discusses Lynch syndrome, what cancers patients would be more at risk for, and who should get tested.
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Content of this video:
02:25 - What is Lynch syndrome?
05:43 - Cancers Lynch Syndrome patients may be more at risk for
06:36 - Who should get tested for Lynch syndrome?
10:23 - Lynch syndrome and cancer treatments
12:06 - Is there a vaccine for Lynch syndrome on the way?
13:18 - What is the process of getting tested for Lynch syndrome?
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I have both the MSH2 and MSH6 mutations resulting in Lynch and was diagnosed with Stage 3C Ovarian Cancer at 30 in 2019. I am thankfully NED (without evidence of disease) since Dec 2019, but videos like this NEED more exposure! I cannot tell you how many times I've had to educate my own healthcare team about what Lynch is and why it's important. Genetic testing is so important, thank you for shining a light on this very common issue!
Never heard of Lynch Syndrome and the only cancer with Syndrome in it I've heard of is Sezary Syndrome a rather formidable T Cell Lymphoma.
So many providers are unaware of Lynch Syndrome. It is scary as a person who is positive for Lynch Syndrome.
What makes you suspect you have Lynch Syndrome --a bowel cancer or family history?
Thank you. A good, balanced & informative description of Lynch Syndrome.
Never heard of this why is it not more widly known
Really informative video.
If anyone can direct me to a reputable online company that I can access from Australia I would be extremely grateful. I have been told my maternal family have a genetic predisposition for bowel cancer but I cannot get testing without knowing which gene is involved. I don’t have access to those details and so my hands are tied. Medical care is shot here in Australia.
I’m an RN and had never heard of Lynch Syndrome until now. I was aware of the BRCA genes. I have a friend with breast cancer and have had several patients diagnosed with breast cancer. I learn something new every day.
I have Lynch Syndrom. I got a Lynch tumor in my bile ducts. The surgeon tried to take the tumor out but unfortunately the cancer grew back. I then got immunotherapy, Nivolumab and within three months the cancer was gone. Immunotherapy, check point inhibitors often work exceptionally well on Lynch tumor if given before the patient had radiotherapy or chemotherapy. It is important to give immunotherapy to Lynch patients as a first line treatment. It then can be curative and not just palliative.
I have homozygous mutations on all 4 of these possible locations, how risky is it? Should I bother telling my doctor?
Fantastic explanation. I have Lynch. MSH2