What is it like to live with a brain injury?
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- Опубликовано: 10 мар 2022
- A metaphor to explain what it is like to live with an injured brain and why someone with a brain injury can't explain it.
Each year, traumatic brain injuries (TBI) contribute to a substantial number of deaths and cases of permanent disability. A TBI is caused by a bump, blow or jolt to the head or a penetrating head injury that disrupts the normal function of the brain. The severity of a TBI may range from “mild” to “severe.” Even an injury labeled "mild" will not feel mild to the person affected by it.
TBI in the United States:
An estimated 2.8 million people sustain a TBI annually.
Of them:
50,000 die,
282,000 are hospitalized, and
2.5 million, nearly 90%, are treated and released from an emergency department.
TBI is a contributing factor to a third (30%) of all injury-related deaths in the United States.
Every day, 153 people in the United States die from injuries that include TBI. 
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40 years after a brain injury and not once in all those years has anyone ever asked me what's it like living with a brain injury, or even the individual items eg double vision, which I've tried to tell others about. Thanks for your excellent videos, proving I'm never too old to learn something new.
My step-daughter suffered a TBI last Friday night. She fell off a golf cart. The doctors have said that it is severe. She remains in stable but critical condition. I have been searching everywhere to hear from someone about where she is now which is a level 2 sedation. What sedation did you experience? Where you confused about where you were and why you were there? I am very curious about this phase of her recovery.
I had a TBI 27 years ago at the age of 17, from a car accident, and this is the best explanation I’ve ever seen. Thank you so much for this. I’ve only been asked a few times over all these years what is it like living with brain injury, now I know how to perfectly answer it next time!
I haven't seen a video from you in a while. Welcome back! It's always nice hearing from professionals on the question of Brain Injury.
Living with brain damage is a real suffering course because there is no escape, not even a moment's respite. It follows you everywhere like a shadow, even in your dreams where it takes the form of bizarre personifications and strange, broken landscapes.
Love the yarn analogy
I know firsthand the struggle of TBI after a bad car wreck 27 years ago...
The best way I can describe having a TBI is: like sitting on a couch with 1000 jumbled cords around you, bedding a specific cord, but having no idea where that cord is
I love you. Thank you for making these videos. I got hit by a train. In New York. I was in a wheelchair because of broken bones. But the hardest thing for my recovery is the brain injury that I have. And you really help me a lot.
Brilliant !!!
Thank you from the uk :)
Very helpful. TY.
New content, sweet 🤩
Love the analogies, more please!
Hmmm new intro music, the old one was a test for my noise sensitivity & migraine trigger, but there's been a lot of things like that, that I've not noticed until lately
Thanks Natalie 😊
I'm a TBI surviver and I Thank you for this video
So nice to have a current video from you 💖 I'm so happy that I found your videos they are helping me understand even when others don't understand. I had a brain stem stroke almost 5 years ago and it is very difficult still. Listening to your videos really helps me though. I will keep you in my thoughts and prayers 💖
So pleased to see you back from a mother with a son with TBI England
Wow! You are incredibly understanding of a TBI Thank you so much for this!
This is a great metaphor. I've used several of your past video tips and found them very helpful. Thank you. I hope you have a great day.
I said Who am I? Word searching, 16 years later , i just get called brain damaged. I have made great strides. But now being discarded to the streets. I can cook my own food. I just have a hard time around groups of people. I need no yelling.. i can say it has been a hell of a battle.
The hard part is when you visit the doctor, they expect a complete answer. I've forgotten more of my symptems, then I remember. Notes don't help, because I only focus on the most recent event. I sound like a politician evading a question, lots of words, no coherence.
excellent
Hi Natalie my son has a brain injury 6 month ago we are at home with him doing therapy every day he is giting stronger making progress but he's not talking git we really pray for that.
Thankyou
top video as always...its an interesting point,I looked after my dad for a while with dementia and was always asking him this,he could not tell me (I could then not tell his doctors his problems) but now my brains broken, I understand..I'm not normal sitting,standing or walking...but try explain this to someone and they will hear only part of what you say and think they understand....when their actions clearly show they did not....keep up the good work,you are an inspiration.
Oh wow I just discovered you Thankyou
This is so good 😊 💜
I know what it's like - lonely. I had a severe traumatic brain injury 6 years ago. My family hasn't contacted me in five years. Too broken for them. Husband dead, dog dead, wish I had died in my car accident.
What is the song link that played in the background “you are not alone…”
I can easily explain what my Brain injury feels like....Total mental exhaustion everyday ,all day . Imagine staying up all night or no sleep for a couple days , that's what it feels like.
My dogs understand.
Am I the first comment? Wow hey I have a brain injury I’m very happy I found this video
Could you do a video on grocery shopping with a TBI? I've gotten to the point where I panic and start to feel rage when in florescent lighting in the stores. I guess it's just too overwhelming at times with all the different products, noises and people. I've gotten better in the past 4 years but it still happens from time to time. Thanks
I actually have one! Look for it on my channel page. ;-)
Sept 2019 ……
I suppose every one of us is different. At the workplace I do quite well but out in the wild I pretty much keep to myself. You're right, no one's interested and I'm not going to blame them- everyone has their own issues. I'm going through a divorce and the wife isn't interested either and I've stopped trying.
Getting a little older so I'm going to do some part time work, perhaps for my old company.
I don't know what the solution is. Find an enclave of damaged people?
Lol made me laugh, even if it’s not funny I just know what you’re going through….. i’ve lived with a brain injury pretty much my whole life and didn’t really tell anyone other than my immediate family that knew so I’ve pretty much struggled with humiliation my whole life I still have to work to support myself it’s just a complete mess but somehow I managed to go on….
Thank you.
You have helped put Words and visualization to ongoing experiences that accompany TBI survivors 24/7.
I am 4 1/2 yrs post-injury, and still... Every Day, every hour, holds its own challenges, victories, and disappointments.
And by the very nature of the Injury and "Brains" of the system... makes the journey difficult to discuss.
However, Emphasizes how Vital to the Discussion of Brain Injury Care and Rehabilitation, this simple concept is.
Thanks for sharing!