I wasn't diagnosed until age 50. I'm so glad to be able to arm my children with knowledge and help them get into preventive mode now, so that they will not struggle the way I have. Raising awareness in the medical community is so needed. Being treated like a crazy person when something is genuinely wrong is not ok.
3 years ago when I told a doctor I had EDS they were like what’s that? Now when I tell them they know what it is! The word is getting out and Zebras aren’t alone anymore. People like you Izzy & Miss America are the reason, thank you! 💕
This is amazing. I'm only 24 and my EDS has gotten to the point where I am lucky if I can do normal daily activities and I honestly feel so jealous of people like this who can do things like school and omg pageants!!! But the fact that the word is getting out there and the research is getting better and better gives me so much hope. Like maybe I'll actually be able to not use my wheelchair and maybe I'll get to do amazing things like these ladies! Ughhh so amazing!!
Hang in there. I started having symptoms in my late 20's and wasn't diagnosed for 10 years. For me, the pain eased a bit each decade. I am now in my 50's and it's better now than when I was in my 20's. Hormones definitely play a role in exacerbating pain.
@@marygoff3332ime 43 though muscle pain has got worse since 36 though some symptoms have got better thus is worse ime sure thyroid etc has lot to do with it is your fybromyalgia pain better now that's great
I just made the call today to a rheumatologist! I’m hopeful that I’ll get the answers I’m looking for~ Especially now that I’m in nursing school and planning on a very physical career, I need to get this figured out
It can be helpful to print out the diagnostic criteria checklist for hypermobile Ehlers Danlos syndrome to bring with you to the appointment, to help ensure you're properly screened. Wish I had done this for the first rheumatologist appointment I had in 1996, as it would've been better for me to be properly screened and diagnosed back then instead of having everything delayed until 2013.
I am 56 and in the process of getting my daughter diagnosed. She already has been diagnosed with POTs and I’m sure she has EDS which leads me to believe that the 20 year struggle I had to get diagnosed with fibromyalgia 16 years ago was wrong and that I have EDS too. It’s such a help to have people like you bringing education and awareness to sufferers and the general public.
Both of y’all were so confident and natural. I love seeing people like her crush interviews with their intelligence even though they get stereotyped as airheads just because of their hobbies. Really cool video!!
A loved one was just diagnosed with this. I am in tears seeing your shining beautiful courageous faces. Thank you so much for putting yourself out on a limb and doing this.
I have been following you for 2 years now and I just wanted to say thank you! I got diagnosed with hEDS today after suspecting it for 2 years and bringing it up to my doctor about a year ago. When I found out my 2nd cousin had it and as her mom was explaining I thought that’s where all my pain could be coming from. I went straight to RUclips and found you! You have been the biggest help to me along this journey and helped me find a lot more of my symptoms that were related to EDS. You are truly doing so much for this community. From helping us figure out if we have EDS or other connective tissue disorders to helping us manage our pain and other symptoms. Again a HUGE thank you from me and all the other people you have helped!!❤️
This is great. Good to see someone in what is traditionally thought of as a vital, energetically demanding role who is dealing with EDS. Having that out there gives young men and women permission to work around needed accommodations and still fulfill those roles, rather than avoid them. Thanks!
Thank you. My daughter and son this last year officially have the EDS diagnosis with all the co morbidities. Genetics say it's from me. In hindsight that explains a lot. So I have my 14 year old watching your videos. She can take it all in from someone like you way more than anyone in a white coat. Love your spirit and personality in conveying hard things.
I thought I had EDS for a while. Two of my children have symptoms so I took them to get checked, and they were diagnosed with EDS. I have my own appt this coming week! I am hoping I will finally get my own diagnosis at 35!
I turn 48 and I got diagnosed with EDS, mine is the Classical type. I’m constantly in chronic pain and I deal with chronic fatigue! I have a picture of my doctor’s paperwork that says that I have it. My Neurologist is the one that did the diagnostic. I would like to host a “ Bowling 🎳 for the cure to end EDS” event at my local bowling alley. I work there as a housekeeper, too.
After so many years watching your channel and feeling my symptoms progress little by little, I finally scheduled a rheumatologist appointment for friday!! I'm really hoping she knows at least a little bit about EDS even tho I'm not 100% sure it is what I have, I wrote everything I feel in my phone so I don't miss a thing, and honestly the perspective of having a name and being able to find more effective ways of dealing with it is amazing. It happened 3 years ago when I realized I am autistic and I'm feeling it happening in the next months. Also I'm really into genetics as well and I just realized after almost 2 years studying languages at college 😂 but here the system is different so I'll have to go through 6 years of med school and then 3 years of specialization to have my degree, and I plan on working as a doctor to help people find their diagnosis. Even tho I'll probably have to drop my graduation after more than 75% of it completed, I just feel it in my heart that this is the right path! You inspires me to seek my diagnosis and to not be afraid of the hard path, I know I'll find a balance between college and health to achieve my dream
You have helped my family out so much. Daughter and husband have EDS and POTS. I am so thankful for you. I purchased an Embr Wave for my daughter and she loves it. I also purchased some ice packs from the company you recommend. I was wondering where you get that pill holder and Arnica cream from? You didn't mention it in your giveaway.
Since you have PoTs, EDs and Gastroparesis. Have you looked into seeing if you have Median arcuate ligament syndrome (MALS)? Half of people with Pots has it. And MALs causes Gastroparesis.
Translucent skin can appear in pretty much any type of Ehlers Danlos syndrome. I have it with hypermobile type Ehlers Danlos syndrome. Do you have any of the other traits of vascular type EDS? If you get diagnosed with any type of EDS, your doctor will want to run an echocardiogram to check on your heart and other structures. Scans like that will give you some piece of mind.
@@SmellyAlpaca I get intercostal muscle pain with my hEDS, which can be really painful in the chest/ribs. Hoping you can get in to see a geneticist to screen you and to determine whether or not they should screen you for vEDS. People with vEDS tend to have a lot of severe health issues with skin and organ tears/perforations and other issues, but every EDS patient can present differently.
@@Dulcimerist thank you I see a geneticist in November. I am just scared because I actually have a friend with veds and we have similar symptoms, and neither of us has characteristic facial features. I hope you find a way to deal with what you are going through as well. 💜💜💜💜💜💜💜💜
People can have transparent skin in some other types, and some people in general have it without EDS, so could just be a coincidence on top of hEDS, for example. I think if you're worried about EDS / vEDS, it's important to see a doc and hopefully they'll be able to let you know more.
Hiya Izzy, recently found your channel & thank you ever so for bringing so much awareness! My problem is I’ve been suffering with what I believe is hEDS my whole life but only found out what it was until I was maybe 50 (I’ll be 62 next month). No doctor I can find knows what it is & I have to educate them, very frustrating! I’m in Westchester & I *think* you’re in NYC, correct? No one I’ve called from the EDS website has called me back & I’ve been trying for the past 3 years. As I age it’s getting worse, to the point I might have to give up my beloved manual transmission Mini Cooper soon so I’d like to get a real diagnosis & proper PT (I refuse PT as I always wind up in the ER as they don’t understand). My kiddo got diagnosed via his chiro & PT, we then sat & traced it back thru my mother, grandmother (sadly neither alive to ask about anyone else further back). Any thoughts as to where I can go for help in the NYC/Westchester area? Thanks so much for all you do & best of luck with uni! Jet 🧡🎸🎶⚡️ PS this was a great video & yes I’ve noticed more people that exhibit EDS symptoms now more than ever, agree it’s likely 1 in 500 perhaps even less.
they are including Those that don't have severe EDS3 previously called hypermobility syndrome in with EDS3 So people with full blown severe EDS3 is still much more rare. Years ago it was much harder with docs refusing to Even acknowledge my pain etc. Amazing I'm still alive. Jesus made that possible without Him I would be dead already
Diagnosed just this week! Of course, super late in life, 39, Dx with POTS as well. Full year of research, tests to conclude it as HEDS. My life would have been so different had I known… Sooo,… much shame/blame, whole life, always struggling in dance (major in college and hips and ankles were pushing the breaks, early on), so many employers verbally abused me for what I now know were result of POTS, people judging me as being high, when I had a migraine/brain fog, always PUSHED myself, many surgeries and complications….
I understand what you are saying when one person can be diagnosed with the same thing that you have diagnosed at an earlier age and how frustrating it can be? There are a few things that I have felt like for years that I may have had but at the time didn't know what they were because when I was in my 20s back in the early 2001s doctors didn't want to diagnose with one of the things that I now know I have. Today 05 OCT 2021 I finally was diagnosed with Gastroparesis? I wish that when I was younger I would have been officially diagnosed with this because it would have really helped me instead of being blown off for years? EDS and POTS are of course other things that I believe that I may have and I believe that I have had these of some sort for years but again when I was younger? I know that the Zebra is the symbol for EDS but what is the symbol for Gastroparisis?
Gastroparesis is extremely common with POTS and EDS. EDS and POTS often go hand in hand. Personally, I believe that EDS causes POTS because if it causes tissue and skin to be more stretchy, that could be why our arteries and veins don’t constrict blood properly leading to blood pooling. Some types of EDS you can genetically test for now, but not the Hypermobile kind. If you have someone do a scan on your heart they may be able to tell if you have vascular EDS. Don’t give up and keep speaking up for yourself, be assertive!
I was diagnosed this Sept after I'd just turned 40. I literally feel her mom's pain 😂. And watching the two of you reminds me of how I used to be 😢 😂 At least I can help my son with preventive care! ♥
Questions for Izzy!: hello, so imagine your 37… with what Camille and you described in this video, how would someone be a predictable employee in a high stress intellectual traveling role? Or any job for that matter…? What do we do now?
I’m so scared of getting a full dislocation. When I even have my joints lock up it’s so painful. I haven’t fully dislocated anything yet but it seems to get worse the older I get
Great video, you both amaze and inspire me!! I've been trying to get into science for a while but can't get through the degree due to symptoms. You both make me think one day I might manage it/something similar :D
School can be so difficult sometimes for me, especially when my symptoms are particularly bothersome. I know a lot of people who have taken around half the course load and finished a few years later, so if that's something you think you can do, that could be an awesome thing to look into! There's also a lot of other ways to get involved with science that don't necessarily require a degree, like part time remote research, etc, You might already know all of this but I didn't so I just wanted to throw them out there!
@@IzzyKDNA I'm so impressed that you've made it this far into studying despite your symptoms, it's not easy! I think that you're describing part-time study, I have tried a few times already but that's also become too much for me unfortunately. Part time remote research sounds absolutely perfect for me, thank you I hadn't heard of it! I'm in Australia so will have to look at the requirements here. Good luck with your genetic counseling :D
Yes! Just have been so busy with school and havent been feeling well for the past month or so. but im starting to feel better and have lots of videos in the works, so stay tuned!
@@IzzyKDNA This is a good think making priorities that continue you down that road to the vision with success, Seemed like yesterday I said, Hey, You'd make a great EDS Geneticist, and look at you Go! God Bless You Get Some Rest & Happy Holidays too
Pour ceux qui suspecte un syndrome ehlers-danlos, c'est hyper-important de faire des diagnostics avant la puberté pour les gamins de votre famille. Si oui, vous faites un diagnostic, même malade, l'enfant fera peut-être faire des concours de miss, sinon ce sera la psychiatrie, l’errance médicale, la solitude et la chaise roulante et une certaine haine pour le corps médical, sa famille, etc..
pourquoi je me fatigue pour des crétins, pour que ma nièce puisse être miss si elle le veut en étant diagnostiqué avant l'adolescence, car sinon c'est peut être la chaise roulante (big up aux médecins qui disent c'est génétique on peut rien faire, vous méritez un point ducon)
@@IzzyKDNA LOL! Compliment indeed btw. Lastly, you wrote me the sweetest longest comment a while back on one of your vids. I remember it and I heard you friend. Just could not re-locate it lol. Have an amazing week. Thank you for all the information. ❤️
![[Full Episode] Invisible Illnesses & Ehlers Danlos Syndrome with Meghan O'Rourke | I Weigh EP 157](http://i.ytimg.com/vi/VlFTaFkkfWM/mqdefault.jpg)
![I was misdiagnosed [CC]](/img/1.gif)
I wasn't diagnosed until age 50. I'm so glad to be able to arm my children with knowledge and help them get into preventive mode now, so that they will not struggle the way I have. Raising awareness in the medical community is so needed. Being treated like a crazy person when something is genuinely wrong is not ok.
3 years ago when I told a doctor I had EDS they were like what’s that? Now when I tell them they know what it is! The word is getting out and Zebras aren’t alone anymore. People like you Izzy & Miss America are the reason, thank you! 💕
Nah , not even now do they know what it is. 85 % of medical professions are utterly clueless , never heard of it. Maybe 90%
This is amazing. I'm only 24 and my EDS has gotten to the point where I am lucky if I can do normal daily activities and I honestly feel so jealous of people like this who can do things like school and omg pageants!!! But the fact that the word is getting out there and the research is getting better and better gives me so much hope. Like maybe I'll actually be able to not use my wheelchair and maybe I'll get to do amazing things like these ladies! Ughhh so amazing!!
Hang in there. I started having symptoms in my late 20's and wasn't diagnosed for 10 years.
For me, the pain eased a bit each decade. I am now in my 50's and it's better now than when I was in my 20's. Hormones definitely play a role in exacerbating pain.
@@marygoff3332ime 43 though muscle pain has got worse since 36 though some symptoms have got better thus is worse ime sure thyroid etc has lot to do with it is your fybromyalgia pain better now that's great
I just made the call today to a rheumatologist! I’m hopeful that I’ll get the answers I’m looking for~ Especially now that I’m in nursing school and planning on a very physical career, I need to get this figured out
I’m in the same boat in backwoods Canada. Fingers figuratively crossed for us both (literal finger crossing is unwise for me atm 😁)
It can be helpful to print out the diagnostic criteria checklist for hypermobile Ehlers Danlos syndrome to bring with you to the appointment, to help ensure you're properly screened. Wish I had done this for the first rheumatologist appointment I had in 1996, as it would've been better for me to be properly screened and diagnosed back then instead of having everything delayed until 2013.
I'm wishing you the best at the rheumatologist!!!
I'll begin my journey on friday when I'll have my first appointment as well!! Good luck for us 3
Wishing you all the luck!
I am 56 and in the process of getting my daughter diagnosed. She already has been diagnosed with POTs and I’m sure she has EDS which leads me to believe that the 20 year struggle I had to get diagnosed with fibromyalgia 16 years ago was wrong and that I have EDS too. It’s such a help to have people like you bringing education and awareness to sufferers and the general public.
Eds makes central sensitisation from the autism do you have SPD to I have all them.diagnosed now
Both of y’all were so confident and natural. I love seeing people like her crush interviews with their intelligence even though they get stereotyped as airheads just because of their hobbies. Really cool video!!
A loved one was just diagnosed with this. I am in tears seeing your shining beautiful courageous faces. Thank you so much for putting yourself out on a limb and doing this.
I just did my interview to be part of the Norris Lab study 2 days ago. I'm so excited to be a part that research!
I have been following you for 2 years now and I just wanted to say thank you! I got diagnosed with hEDS today after suspecting it for 2 years and bringing it up to my doctor about a year ago. When I found out my 2nd cousin had it and as her mom was explaining I thought that’s where all my pain could be coming from. I went straight to RUclips and found you! You have been the biggest help to me along this journey and helped me find a lot more of my symptoms that were related to EDS. You are truly doing so much for this community. From helping us figure out if we have EDS or other connective tissue disorders to helping us manage our pain and other symptoms. Again a HUGE thank you from me and all the other people you have helped!!❤️
This is great. Good to see someone in what is traditionally thought of as a vital, energetically demanding role who is dealing with EDS. Having that out there gives young men and women permission to work around needed accommodations and still fulfill those roles, rather than avoid them. Thanks!
Totally agree!!
Thank you. My daughter and son this last year officially have the EDS diagnosis with all the co morbidities. Genetics say it's from me. In hindsight that explains a lot. So I have my 14 year old watching your videos. She can take it all in from someone like you way more than anyone in a white coat. Love your spirit and personality in conveying hard things.
Myself and two of my children have been diagnosed in the last 6 months.
@@crystalallen3907 I'm sorry. It's a lot to absorb especially if also dealing with all the co morbidities. My daughter seemed to pull all those cards
I thought I had EDS for a while. Two of my children have symptoms so I took them to get checked, and they were diagnosed with EDS. I have my own appt this coming week! I am hoping I will finally get my own diagnosis at 35!
I turn 48 and I got diagnosed with EDS, mine is the Classical type. I’m constantly in chronic pain and I deal with chronic fatigue! I have a picture of my doctor’s paperwork that says that I have it. My Neurologist is the one that did the diagnostic. I would like to host a “ Bowling 🎳 for the cure to end EDS” event at my local bowling alley. I work there as a housekeeper, too.
After so many years watching your channel and feeling my symptoms progress little by little, I finally scheduled a rheumatologist appointment for friday!! I'm really hoping she knows at least a little bit about EDS even tho I'm not 100% sure it is what I have, I wrote everything I feel in my phone so I don't miss a thing, and honestly the perspective of having a name and being able to find more effective ways of dealing with it is amazing. It happened 3 years ago when I realized I am autistic and I'm feeling it happening in the next months.
Also I'm really into genetics as well and I just realized after almost 2 years studying languages at college 😂 but here the system is different so I'll have to go through 6 years of med school and then 3 years of specialization to have my degree, and I plan on working as a doctor to help people find their diagnosis. Even tho I'll probably have to drop my graduation after more than 75% of it completed, I just feel it in my heart that this is the right path! You inspires me to seek my diagnosis and to not be afraid of the hard path, I know I'll find a balance between college and health to achieve my dream
We haven’t seen a new video in 3 months, I hope you are doing ok. This winter has been painful and eye-opening in my hEDS life…. Stay safe Izzy!
This is such a cool validating video! We are not alone!
Loved the video!
thanks!! LOVE YOU
You have helped my family out so much. Daughter and husband have EDS and POTS. I am so thankful for you. I purchased an Embr Wave for my daughter and she loves it. I also purchased some ice packs from the company you recommend. I was wondering where you get that pill holder and Arnica cream from? You didn't mention it in your giveaway.
Since you have PoTs, EDs and Gastroparesis. Have you looked into seeing if you have Median arcuate ligament syndrome (MALS)? Half of people with Pots has it. And MALs causes Gastroparesis.
Hi I have tons of symptoms definitely have Eds but I have transparent skin is that only vascular because I don’t wanna have vascular
Translucent skin can appear in pretty much any type of Ehlers Danlos syndrome. I have it with hypermobile type Ehlers Danlos syndrome. Do you have any of the other traits of vascular type EDS? If you get diagnosed with any type of EDS, your doctor will want to run an echocardiogram to check on your heart and other structures. Scans like that will give you some piece of mind.
@@Dulcimerist I do have chest pains but a teacher at my school with heds says for her it is just a muscle thing
Thanks btw
@@SmellyAlpaca I get intercostal muscle pain with my hEDS, which can be really painful in the chest/ribs. Hoping you can get in to see a geneticist to screen you and to determine whether or not they should screen you for vEDS. People with vEDS tend to have a lot of severe health issues with skin and organ tears/perforations and other issues, but every EDS patient can present differently.
@@Dulcimerist thank you I see a geneticist in November. I am just scared because I actually have a friend with veds and we have similar symptoms, and neither of us has characteristic facial features. I hope you find a way to deal with what you are going through as well.
💜💜💜💜💜💜💜💜
People can have transparent skin in some other types, and some people in general have it without EDS, so could just be a coincidence on top of hEDS, for example. I think if you're worried about EDS / vEDS, it's important to see a doc and hopefully they'll be able to let you know more.
Hiya Izzy, recently found your channel & thank you ever so for bringing so much awareness! My problem is I’ve been suffering with what I believe is hEDS my whole life but only found out what it was until I was maybe 50 (I’ll be 62 next month). No doctor I can find knows what it is & I have to educate them, very frustrating! I’m in Westchester & I *think* you’re in NYC, correct? No one I’ve called from the EDS website has called me back & I’ve been trying for the past 3 years. As I age it’s getting worse, to the point I might have to give up my beloved manual transmission Mini Cooper soon so I’d like to get a real diagnosis & proper PT (I refuse PT as I always wind up in the ER as they don’t understand). My kiddo got diagnosed via his chiro & PT, we then sat & traced it back thru my mother, grandmother (sadly neither alive to ask about anyone else further back). Any thoughts as to where I can go for help in the NYC/Westchester area? Thanks so much for all you do & best of luck with uni! Jet 🧡🎸🎶⚡️ PS this was a great video & yes I’ve noticed more people that exhibit EDS symptoms now more than ever, agree it’s likely 1 in 500 perhaps even less.
they are including Those that don't have severe EDS3 previously called hypermobility syndrome in with EDS3 So people with full blown severe EDS3 is still much more rare. Years ago it was much harder with docs refusing to Even acknowledge my pain etc. Amazing I'm still alive. Jesus made that possible without Him I would be dead already
Diagnosed just this week! Of course, super late in life, 39, Dx with POTS as well. Full year of research, tests to conclude it as HEDS. My life would have been so different had I known… Sooo,… much shame/blame, whole life, always struggling in dance (major in college and hips and ankles were pushing the breaks, early on), so many employers verbally abused me for what I now know were result of POTS, people judging me as being high, when I had a migraine/brain fog, always PUSHED myself, many surgeries and complications….
I understand what you are saying when one person can be diagnosed with the same thing that you have diagnosed at an earlier age and how frustrating it can be? There are a few things that I have felt like for years that I may have had but at the time didn't know what they were because when I was in my 20s back in the early 2001s doctors didn't want to diagnose with one of the things that I now know I have. Today 05 OCT 2021 I finally was diagnosed with Gastroparesis? I wish that when I was younger I would have been officially diagnosed with this because it would have really helped me instead of being blown off for years? EDS and POTS are of course other things that I believe that I may have and I believe that I have had these of some sort for years but again when I was younger? I know that the Zebra is the symbol for EDS but what is the symbol for Gastroparisis?
Gastroparesis is extremely common with POTS and EDS. EDS and POTS often go hand in hand. Personally, I believe that EDS causes POTS because if it causes tissue and skin to be more stretchy, that could be why our arteries and veins don’t constrict blood properly leading to blood pooling. Some types of EDS you can genetically test for now, but not the Hypermobile kind. If you have someone do a scan on your heart they may be able to tell if you have vascular EDS. Don’t give up and keep speaking up for yourself, be assertive!
I was diagnosed this Sept after I'd just turned 40. I literally feel her mom's pain 😂. And watching the two of you reminds me of how I used to be 😢 😂 At least I can help my son with preventive care! ♥
Questions for Izzy!: hello, so imagine your 37… with what Camille and you described in this video, how would someone be a predictable employee in a high stress intellectual traveling role? Or any job for that matter…? What do we do now?
I am from India mother of two kids. I am with heds please help me to manage this condition
IZZY
Just finished code brakers
Thanks for another great video!
Glad you enjoyed it!
I’m so scared of getting a full dislocation. When I even have my joints lock up it’s so painful. I haven’t fully dislocated anything yet but it seems to get worse the older I get
When does the gene come out?
Great video, you both amaze and inspire me!! I've been trying to get into science for a while but can't get through the degree due to symptoms. You both make me think one day I might manage it/something similar :D
School can be so difficult sometimes for me, especially when my symptoms are particularly bothersome. I know a lot of people who have taken around half the course load and finished a few years later, so if that's something you think you can do, that could be an awesome thing to look into! There's also a lot of other ways to get involved with science that don't necessarily require a degree, like part time remote research, etc, You might already know all of this but I didn't so I just wanted to throw them out there!
@@IzzyKDNA I'm so impressed that you've made it this far into studying despite your symptoms, it's not easy! I think that you're describing part-time study, I have tried a few times already but that's also become too much for me unfortunately. Part time remote research sounds absolutely perfect for me, thank you I hadn't heard of it! I'm in Australia so will have to look at the requirements here. Good luck with your genetic counseling :D
Man I absolutely love your videos
Ah thank you!!!
Are You Ok Izzy?
Yes! Just have been so busy with school and havent been feeling well for the past month or so. but im starting to feel better and have lots of videos in the works, so stay tuned!
@@IzzyKDNA This is a good think making priorities that continue you down that road to the vision with success, Seemed like yesterday I said, Hey, You'd make a great EDS Geneticist, and look at you Go!
God Bless You
Get Some Rest & Happy Holidays too
Pour ceux qui suspecte un syndrome ehlers-danlos, c'est hyper-important de faire des diagnostics avant la puberté pour les gamins de votre famille.
Si oui, vous faites un diagnostic, même malade, l'enfant fera peut-être faire des concours de miss, sinon ce sera la psychiatrie, l’errance médicale, la solitude et la chaise roulante et une certaine haine pour le corps médical, sa famille, etc..
pourquoi je me fatigue pour des crétins, pour que ma nièce puisse être miss si elle le veut en étant diagnostiqué avant l'adolescence, car sinon c'est peut être la chaise roulante (big up aux médecins qui disent c'est génétique on peut rien faire, vous méritez un point ducon)
Myh11 check
The loud music makes this too hard to listen to.
Hi izzy your beautiful great to see you your stunning love you so much izzy awesome video
She is snappy! I like her. 👍🏻
HAHAHA
@@IzzyKDNA LOL! Compliment indeed btw.
Lastly, you wrote me the sweetest longest comment a while back on one of your vids. I remember it and I heard you friend. Just could not
re-locate it lol.
Have an amazing week. Thank you for all the information. ❤️
Yeah its stupid. Look at all what this chick does it cant be that bad if she can accomplish all this in life and , so its not that bad for her.