Found this helpful thanks uncle for allowing us to watch you... I don't know why I was like come on come on comme on you can seeing him taking his baby steps... So for thise non medics.. This is due to NPH ( normal pressure hydrocephalus) .. Classical triad of dementia, urinary disturbance and gait disturbance... Which improves on CSF tap ( shunting is done ) .. Gait is called apraxic / magnetic - ie. Slow, short - stepped, unsteady turns, like glued to the surface.. Hope you learn something intresting today / get to recall peeps
Thank you for posting, this is very helpful! I have a 35 year old special needs daughter with hydrocephalus...She has a VA shunt... I have noticed that lately..this pass week that she's been dragging her feet and lifts her weight from side to side when walking.. She recently had an MRI and has a follow up appointment with Neuro July 19th...
Thank you for posting this video. It seems to me the normal part of the walk relates to the length of a typical distance walked in the home and also a self-discipline directed toward another person.
My father had this exact same thing. Hydrocephalus is a progressive disease if not treated with a brain shunt. He never had shunt surgery. Eventually, in addition to the main 3 symptoms (gait disturbance, dementia, and urinary incontinence) he also developed crippling arthritis, a complete inability to walk, fecal incontinence, and severe dementia. He also had diabetes and experienced several mini strokes without realizing it.
Hi. I am sorry to hear that. Do you think a shunt could have helped to avoid those illnesses? I'm trying to get as much information I can about shunts. Thank you.
@@LanceAnderson77 My dad has improved since the surgery. His gait has improved. He is taking full steps. He is walking 4x as fast as he was before. His urinary incontinence has decreased (which is so helpful for mood!), and he is overall much clearer mentally. He is 81 years old, so this is improving his quality of life. My dad was so brave to do it and go through all of that at his age. Any surgery with anesthesia is a risk. He and I were both pretty scared but we made it through. I wish the best for your family - this is hard stuff.
I reviewed the results of the MRI and it clearly showed the ventricles very enlarged. Twice the size of some considered normal size. I asked for a spinal drain also and my daughter , a close friend and I noticed some improvement that lasted several weeks. On the report of the LP the amount of fluid drain was recorded as ".6" . It didn't say .6 oz. or any other measured unit. The doctor at Mayo was confused and also thought it was a very small amount and pretty much a waste of time.
Which doctor would you believe? The original doctor that diagnosed her with Alzhiemers or the one at Mayo Clinic that said she didn't? After talking to my mothers original doctor about the possibility of NPH, she became angry , but a month later during her appointment Dr. Rosca told my mother she felt sure she didn't have Alzheimers and refered her to an neurologist. I believe the doctors don't always know . Some are greedy, some think they are the only ones that can learn medicine.
My father is currently in the hospital after having gait problems, falls, and the CT shows enlarged ventricles and said something about NPH. My father also has some cognitive decline, and incontinence that may or may not be due to prostate radiation therapy or general weaknesses. The treating physician doesn't seem to want to pursue it because ( ultimately) ' many times shunts don't work). I'm frustrated because I live far away and due to covid I cannot visit him in the facility. How can I get a 2nd opinion. My dad has diabetes and may not be a good surgical candidate, but isn't it better to understand IF NPH is causing his problems? Otherwise with physical therapy even help him?
If she has a noticeably different or abnormal gait then you might try searching for video's about abnormal gaits on youtube. One particular one may possibly tell you what the problem is . If not there is a good chance it can put you on the right road. If I can find it I will send it to you. Parkanson can be very easy to confuse with NPH in certain cases as far as gait.
Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….
I am 82 years old and start to walk unsteadily and have short term memory loss. I heard that this is because of excess hydrocephalus problem that can be corrected by putting shunt in. These procedure is done a lot in Thailand for older people. I wonder in the US it is not done to help release the problem for old age people. Reply
A lumbar puncture is a procedure where a needle is inserted through your lower back to your subarachnoid space (this is the space in between your spinal cord and your vertebrae which is filled with cerebrospinal fluid and it goes from the very lower end of your spinal chord all the way up to the inside of your brain). This is done in order to decrease the pressure inside your brain which would be the cause of your symptoms in the case you have a NPH. This is done to temporally relief symptoms in patients with NPH or NPH suspicion. If symptoms do improve then treatment using a cerebral shunt will be effective and you will be appointed to surgery. To diagnose NPH we actually do it with a CT head scan that shows certain features in the ventricles that are classic of NPH. Though some prefer a MRI (preferably a T2 type which highlights water and fat) it is more expensive than a CT and also more annoying since you have to be hours inside a very noisy machine without moving. A CT scan is good enough in most of the cases. It is extremely important that if you have symptoms of NPH (the classic symptoms are alterations of your gait {you would be walking like with your feet stuck to the floor, like in the video}, urinary incontinence and major cognitive impairment (dementia)) you must consult a physician (specifically a *Neurologist*), because if treated on time all the symptoms are potentially reversible. If you wait too long then damage may become irreversible.
@@Schatten2712 it's been two months of hemorrhage surgery. My father is discharged but on 2nd April 2022 a CT scan show he has HYDROCEPHALUS in the brain doctor said we have to put shunt in the for draining fluid in the abdomen. Now my question is the shunt surgery is life threatening and he had this disease from one month. We have time or not??
Eric... It was hard for me to think I new more than the doctor did, but I simply wasn't convinced the doctor was right, so I took my mother to Mayo Clinic and was so glad I didn't believe the doctor. I don't think anyone gets Alzhiemers after a two hour nap.
Thanks for posting this. I'd suggest that the gait was better in the first half because the patients wasn't concentrating on it then. It was when he noticed it that he got "stuck" -- also classic.
@nawarusa @nawarusa MRI is not the correct test - a CATSCAN shows the size of the ventricles - enlarged ventricles is the classic symptom, none are definitive though. Sometimes people don't know they have NPH until they get the shunt installed. If it helps, it's NPH. Sometimes it can takes months to stabilize, for many lucky people, it's instantaneous. A spinal drain can mimic the effects of a shunt and is worthwhile prior to installing one to see what effect drainage using a shunt might do.
My mother walks exactly like the man in this video. I have read many articles on NPH and she has all the symtoms. Two doctors have told her she has alzhiemers, but she only has a few of `the symptoms. I asked her doctor about having another MIR to check more closely for the possibility of NPH because I just was just having a hard time believeing she has Alzhiemers due to the lack of symtoms and her ability to still think fairly well. MRI showed no signs of NPH. Any suggestions?
I don't think this is the right place for this but if anyone knows of a discussion board I could post this , please let me know. Sever years ago my mother was very healthy both mind and body. One night my mom and dad went to bed and she fell asleep. A short time later ( one to two hours) dad noticed something wrong. She wouldn't respond to questions and mostly just stared. Unable to walk my dad carried her to the car and drove her to the hospital where I met them. In the emergency room she lay there wondering where she was and who all these people were including me. A nurse started to take her pulse and my mom yanked her arm away and told her not to touch her. She had absolutely no idea what was going on. An hour later the doctor came out said he couldn't seem to find anything wrong. Then he asked me if this was her normal behavior or does she seem different? I couldn't believe he asked that. As calm as I explained to him that just a couple of hours earlier she was perfectly normal both physically and mentally. I went on to tell him how she has always seemed to be above average in intelligence and just as sharp thinking as him or me. He went to see her again. 45 minutes later him came back out and said " We think she may have had a TIA ". He had no idea. The next morning I went back to see her and she was much better. Not like she was before this episode but was able to talk , knew who I was and other family members. She just appeared to be tired and maybe a little slower thinking than normal. Within a few days she was back driving helping at the office etc. but not 100%. I noticed she seemed to have lost her edge and noticed she would forget small things now and then. She may have been 80 to 90% herself. Her condition stayed pretty much the same for a few years until one afternoon we were at a house my dad build in the country about two hours away.My dad told me to go upstairs and check on mom. She had went to take a nap but that was three hours ago. When I got up there she was trying to get out of the bed and pretty much in the same state of mind when my dad took her to the emergency room. Again she didn't know who I was, couldn't walk , talk, and had no idea where she was. On the way to the hospital she tried to simply get out of the truck while going 60 miles an hour. I guess she wasn't aware that we were even moving. After arriving at the hospital they checked her and admitted her. The next day she seemed to be somewhat better. Knew who I was , and most everyone else, but wasn't near at all herself. Simple questions were hard for to answer and some she just had no clue. After a few days passed she did begin to improve but nothing at all like last time. We couldn't let her drive and when she began to cook something in the kitchen it scared us to death. One very interesting thing, was her gait. She walked while looking at the floor with tiny short steps. An absolute perfect match to a "NPH Magnetic Gait". Normal Pressure Hydrocephalus. If anyone thinks they may know someone with an abnormal such as this gait or would like to know what NPH Magnetic Gait looks like, type or paste ruclips.net/video/hziyFfJTrQo/видео.html in RUclips. My mom walked exactly like that. Many doctors have misdiagnose NPH as Alzheimer's. Nearly 400,000. One doctor that specializes in NPH said that many doctors simply don't take the time to talk to the patient and just don't take their time. He went on to say that many doctors see a patient, that's 75 years old with symptoms of short term memory lossmaking hasty diagnosis , short term memory loss, Incontinence , confusion, speech difficulties, and behavioral changes. In other words, NPH symptoms are very similar to Alzheimer and the diagnosis is simply wrong. A very sad but life giving fact is that for many NPH patients there is a one hour surgery involving a shunt in the brain that allows the built up spinal fluid to drain allowing the pressure that is mashing on parts of the brain causing these problems in many cases to simply go away, and sometimes by the end of the day return back to who they were after 10 or 15 years confined to a wheel chair and unable to preform simple math such as 3+2. One returned to his dental practice , another resumed his work as an engineer, and one woman began to play the piano for her church after she became unable 15 years earlier. She had played 40 years for her church until she was misdiagnosed with Alzheimer. About 4 years after my mothers second episode I decided to go check on my mother She had decided to go to bed one night around 10 o'clock like she always did. When I walked in her bedroom there she was trying to get out of the bed just like before. My dad, my cousin and myself helped her up and into her wheel chair that she used on and off. Again, she didn't know who we were and appeared very confused and didn't talk. She recovered somewhat and was able to walk a little bit on her on but would forget in the middle of a sentence, burn food to charcoal, try to eat a lid to a jar of jelly she thought was a piece of toast and be convinced my dad was having an affair with his sister. His sister and her husband were staying in the house and helping out with my mother and my father which was very sick with throat cancer during that time. Soon she began to loose her balance and would fall injuring herself. It broke our hearts but we had no choice but to put her into an assisted living facility. Now she is in a nursing home. Its horrible. I am just not able to tell all the other things, well not briefly anyway. After I talked to her doctor about the possibility of her problems being something other than Alzheimer's, she became very angry. A month later when I took mom back, the same doctor began telling my mom that she wasn't at all sure if her problem was in fact Alzheimer. She wouldn't even look at me as I sat in the room. The doctor went on to tell her that she is positive its not Alzheimer and was going to pull that from her chart. The doctor went on to tell her that she is going to send her to a neurologist. To cut this short, I finally talked to the Mayo Clinic and flew her there for several doctor appointments and test they had scheduled for her. She never had Alzheimer, but the first doctor that saw her after an hour of reading my mom medical records looked at me and said ... My first thought was the same as yours. NPH. I felt like God was going to give my mother back to us and she was going to be just fine with that one hour shunt surgery. But then the doctor went on to say , BUT, you mother is not a good candidate for that surgery. My heart sank. I should have simply just asked if anyone has ever heard of anyone going into this severe dementia type state within an hour or so? The doctors are missing something and it is just so hard for me to figure out the cause of her problem. Im not a brain surgeon, or even an MD. I'm just a used car dealer. I would be glad to finish this story if anyone is interested or answer any questions. I know there has to be several things I forgot and left out, some probably very important. One thing I just remembered was that the four ventricals in her brain were extremely enlarged from the spinal fluid that wasn't able to drain causing pressure. If anyone has someone that may have experienced anything similar or may have some knowledge of what may have happened in this case please contact me. I'm sure I have missed if not forgotten many things. One important one I just remembered was that her MRI showed the ventricles in the brain to be extremely swollen which made NPH an even more possibility. The Mayo Clinic also agreed with this. The enormous amount of spinal fluid was unable to drain causing the pressure to mash on certain parts of the brain. I had a spinal tap ordered which drained some of the fluid in order to see any improvement. There was, although it was only slight, it was noticed by several family members and lasted a few weeks. If anyone has someone they think may have the same or similar condition or has any knowledge of the things I've described please contact me. jimmyleelafarlett@yahoo.com I apologize for all the mistakes I made. I'm just tired and will try to come back and finish this.
Just as you and the doctors at the Mayo clinic suspect, sounds like she definitely has NPH. What I'm wondering is why the doctors at the Mayo clinic said she wasn't a good candidate for the shunt surgery. What constitutes a good candidate? There are physical therapists who specialize in neurological conditions such as this one who would be happy to evaluate and treat your mother. Ask the doctor about getting referred to a neuro PT if you haven't already done so and see what they can do for you.
I've read hundreds and hundred of pages on NPH. You seem to have some symptoms of NPH, but several of them don't relate to NPH at all that I know of. I'm sure you have talked to a doctor about this, who else?
I think what happens is that he has enough energy (nutrition) for the brain cells for a small amount of time. That when he's first walking . Then he runs out and he starts to struggle. I have seen all of this and worse since the person I know stopped walking in April. She was hospitalized a week, thrown in rehab and left in bed and unexercised one month. Then sent home helpless. No neurologist saw her. She had a diagnosis of Parkinsons for eight years. So they gave her a couple of visits with a neurologist, and gave her l-dopa. I started staying with them three months ago and realized it wasn't typical Parkinson's. We got a new organizational neurologist. Neurologist ordered MRI which showed enlargement. It seems to be taking a long time to get things done. I'm wondering if we should get second opinions now. I'm praying we get the spinal test soon. The neurologist has put it off for a month saying the patient needs to get stronger. The patient can't stand. We are trying guided water exercise, vibrating plate passive exercise of the leg and rocking chair foot push for a little exercise. I'm wondering if we need to go elsewhere. That there is a problem with the organization. If anyone has an opinion please direct message me.
Thank you for your comment. Some massage and torso bending may help. How are the kidney functions? I hope the moving around (and greener diet) will help.
As a medical student, this is very helpful! Thank you to you and the patient for posting this.
Goo kha
The ultimate example of generousity is a scientist sharing his knowledge and experience .. Thank you 💖
Found this helpful thanks uncle for allowing us to watch you... I don't know why I was like come on come on comme on you can seeing him taking his baby steps... So for thise non medics.. This is due to NPH ( normal pressure hydrocephalus) .. Classical triad of dementia, urinary disturbance and gait disturbance... Which improves on CSF tap ( shunting is done ) ..
Gait is called apraxic / magnetic - ie. Slow, short - stepped, unsteady turns, like glued to the surface.. Hope you learn something intresting today / get to recall peeps
Source : dr. Mohan sunil kumar sir MARROW 😊
Thank you to you and the patient for posting this.
waw, this is more intense than what I originally thought. Thanks for the upload!
Thanks to you and the patient🙏🏻
Thank you for posting, this is very helpful! I have a 35 year old special needs daughter with hydrocephalus...She has a VA shunt... I have noticed that lately..this pass week that she's been dragging her feet and lifts her weight from side to side when walking.. She recently had an MRI and has a follow up appointment with Neuro July 19th...
Alll the best
How is she?
Thank you for posting this video. It seems to me the normal part of the walk relates to the length of a typical distance walked in the home and also a self-discipline directed toward another person.
My father had this exact same thing. Hydrocephalus is a progressive disease if not treated with a brain shunt. He never had shunt surgery. Eventually, in addition to the main 3 symptoms (gait disturbance, dementia, and urinary incontinence) he also developed crippling arthritis, a complete inability to walk, fecal incontinence, and severe dementia. He also had diabetes and experienced several mini strokes without realizing it.
Hi. I am sorry to hear that.
Do you think a shunt could have helped to avoid those illnesses? I'm trying to get as much information I can about shunts. Thank you.
@@perujakta shunts or lumbar puncture can improve gait very fastly
I'm so sorry. It must have been really hard to watch him go through that. My dad is having the VP shunt surgery in a week and I'm really nervous.
@@lisadurden2399
Has he improved since the procedure? We’ve been trying to convince my father to do it for five years.
@@LanceAnderson77 My dad has improved since the surgery. His gait has improved. He is taking full steps. He is walking 4x as fast as he was before. His urinary incontinence has decreased (which is so helpful for mood!), and he is overall much clearer mentally. He is 81 years old, so this is improving his quality of life. My dad was so brave to do it and go through all of that at his age. Any surgery with anesthesia is a risk. He and I were both pretty scared but we made it through. I wish the best for your family - this is hard stuff.
I reviewed the results of the MRI and it clearly showed the ventricles very enlarged. Twice the size of some considered normal size. I asked for a spinal drain also and my daughter , a close friend and I noticed some improvement that lasted several weeks. On the report of the LP the amount of fluid drain was recorded as ".6" . It didn't say .6 oz. or any other measured unit. The doctor at Mayo was confused and also thought it was a very small amount and pretty much a waste of time.
Thanks for sharing❤
Thankou for sharing
Wait. The beginning he’s walking very fast but shuffling. The end he’s walking slow but shuffling. Which is it
Which doctor would you believe? The original doctor that diagnosed her with Alzhiemers or the one at Mayo Clinic that said she didn't? After talking to my mothers original doctor about the possibility of NPH, she became angry , but a month later during her appointment Dr. Rosca told my mother she felt sure she didn't have Alzheimers and refered her to an neurologist. I believe the doctors don't always know . Some are greedy, some think they are the only ones that can learn medicine.
My mother has the same gait..she has NPH and the vp shunt procedure will be after 3 days..
So after shunt did ur mother walking became normal?
Was her improve after that?
My father is currently in the hospital after having gait problems, falls, and the CT shows enlarged ventricles and said something about NPH. My father also has some cognitive decline, and incontinence that may or may not be due to prostate radiation therapy or general weaknesses. The treating physician doesn't seem to want to pursue it because ( ultimately) ' many times shunts don't work). I'm frustrated because I live far away and due to covid I cannot visit him in the facility. How can I get a 2nd opinion.
My dad has diabetes and may not be a good surgical candidate, but isn't it better to understand IF NPH is causing his problems? Otherwise with physical therapy even help him?
He is in his late 70's
Hypokinetic or Magnetic Gait?
If she has a noticeably different or abnormal gait then you might try searching for video's about abnormal gaits on youtube. One particular one may possibly tell you what the problem is . If not there is a good chance it can put you on the right road. If I can find it I will send it to you. Parkanson can be very easy to confuse with NPH in certain cases as far as gait.
when does this ger better after surgery
very helpful
The doctor turned out to be wrong. I took her to Mayo Clinic and found out it was NPH.
Well explained by means of video
Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….
I am 82 years old and start to walk unsteadily and have short term memory loss. I heard that this is because of excess hydrocephalus problem that can be corrected by putting shunt in. These procedure is done a lot in Thailand for older people. I wonder in the US it is not done to help release the problem for old age people.
Reply
a lumbar puncture should relieve symptoms if it is really NPH
Thank you for your kind response. What is a lumbar puncture? i
A lumbar puncture is a procedure where a needle is inserted through your lower back to your subarachnoid space (this is the space in between your spinal cord and your vertebrae which is filled with cerebrospinal fluid and it goes from the very lower end of your spinal chord all the way up to the inside of your brain). This is done in order to decrease the pressure inside your brain which would be the cause of your symptoms in the case you have a NPH. This is done to temporally relief symptoms in patients with NPH or NPH suspicion. If symptoms do improve then treatment using a cerebral shunt will be effective and you will be appointed to surgery.
To diagnose NPH we actually do it with a CT head scan that shows certain features in the ventricles that are classic of NPH. Though some prefer a MRI (preferably a T2 type which highlights water and fat) it is more expensive than a CT and also more annoying since you have to be hours inside a very noisy machine without moving. A CT scan is good enough in most of the cases.
It is extremely important that if you have symptoms of NPH (the classic symptoms are alterations of your gait {you would be walking like with your feet stuck to the floor, like in the video}, urinary incontinence and major cognitive impairment (dementia)) you must consult a physician (specifically a *Neurologist*), because if treated on time all the symptoms are potentially reversible. If you wait too long then damage may become irreversible.
@@Schatten2712 it's been two months of hemorrhage surgery. My father is discharged but on 2nd April 2022 a CT scan show he has HYDROCEPHALUS in the brain doctor said we have to put shunt in the for draining fluid in the abdomen. Now my question is the shunt surgery is life threatening and he had this disease from one month. We have time or not??
thanks
Catherine Circle
Eric... It was hard for me to think I new more than the doctor did, but I simply wasn't convinced the doctor was right, so I took my mother to Mayo Clinic and was so glad I didn't believe the doctor. I don't think anyone gets Alzhiemers after a two hour nap.
Thanks for posting this. I'd suggest that the gait was better in the first half because the patients wasn't concentrating on it then. It was when he noticed it that he got "stuck" -- also classic.
Wrong. I have NPH. The gait getting worse has nothing to do with concentration. The nerve impulses quickly attenuate when walking.
@nawarusa @nawarusa MRI is not the correct test - a CATSCAN shows the size of the ventricles - enlarged ventricles is the classic symptom, none are definitive though. Sometimes people don't know they have NPH until they get the shunt installed. If it helps, it's NPH. Sometimes it can takes months to stabilize, for many lucky people, it's instantaneous. A spinal drain can mimic the effects of a shunt and is worthwhile prior to installing one to see what effect drainage using a shunt might do.
is is same as Parkinson's ??? i mean the gate
Yes they can be similar
@@tashik8151 no Parkinson's has festinant gait
Short steps with pacing
@@muralikrishna6915 thank you for the reply. I will observe the two in greater detail now.
Parkinson’s has shuffling gate
Beverly Plains
Which Mayo clinic?
Mortimer Locks
209 Kuphal Haven
thanx
I would believe the doctor.
592 Dietrich Burg
My mother walks exactly like the man in this video. I have read many articles on NPH and she has all the symtoms. Two doctors have told her she has alzhiemers, but she only has a few of `the symptoms. I asked her doctor about having another MIR to check more closely for the possibility of NPH because I just was just having a hard time believeing she has Alzhiemers due to the lack of symtoms and her ability to still think fairly well. MRI showed no signs of NPH. Any suggestions?
Bashirian Glen
I don't think this is the right place for this but if anyone knows of a discussion board I could post this , please let me know.
Sever years ago my mother was very healthy both mind and body. One night my mom and dad went to bed and she fell asleep. A short time later ( one to two hours) dad noticed something wrong. She wouldn't respond to questions and mostly just stared. Unable to walk my dad carried her to the car and drove her to the hospital where I met them. In the emergency room she lay there wondering where she was and who all these people were including me. A nurse started to take her pulse and my mom yanked her arm away and told her not to touch her. She had absolutely no idea what was going on. An hour later the doctor came out said he couldn't seem to find anything wrong. Then he asked me if this was her normal behavior or does she seem different? I couldn't believe he asked that. As calm as I explained to him that just a couple of hours earlier she was perfectly normal both physically and mentally. I went on to tell him how she has always seemed to be above average in intelligence and just as sharp thinking as him or me. He went to see her again. 45 minutes later him came back out and said " We think she may have had a TIA ". He had no idea.
The next morning I went back to see her and she was much better. Not like she was before this episode but was able to talk , knew who I was and other family members. She just appeared to be tired and maybe a little slower thinking than normal. Within a few days she was back driving helping at the office etc. but not 100%. I noticed she seemed to have lost her edge and noticed she would forget small things now and then. She may have been 80 to 90% herself. Her condition stayed pretty much the same for a few years until one afternoon we were at a house my dad build in the country about two hours away.My dad told me to go upstairs and check on mom. She had went to take a nap but that was three hours ago. When I got up there she was trying to get out of the bed and pretty much in the same state of mind when my dad took her to the emergency room. Again she didn't know who I was, couldn't walk , talk, and had no idea where she was. On the way to the hospital she tried to simply get out of the truck while going 60 miles an hour. I guess she wasn't aware that we were even moving.
After arriving at the hospital they checked her and admitted her. The next day she seemed to be somewhat better. Knew who I was , and most everyone else, but wasn't near at all herself. Simple questions were hard for to answer and some she just had no clue. After a few days passed she did begin to improve but nothing at all like last time. We couldn't let her drive and when she began to cook something in the kitchen it scared us to death.
One very interesting thing, was her gait. She walked while looking at the floor with tiny short steps. An absolute perfect match to a "NPH Magnetic Gait". Normal Pressure Hydrocephalus. If anyone thinks they may know someone with an abnormal such as this gait or would like to know what NPH Magnetic Gait looks like, type or paste ruclips.net/video/hziyFfJTrQo/видео.html in RUclips. My mom walked exactly like that. Many doctors have misdiagnose NPH as Alzheimer's. Nearly 400,000. One doctor that specializes in NPH said that many doctors simply don't take the time to talk to the patient and just don't take their time. He went on to say that many doctors see a patient, that's 75 years old with symptoms of short term memory lossmaking hasty diagnosis , short term memory loss, Incontinence , confusion, speech difficulties, and behavioral changes. In other words, NPH symptoms are very similar to Alzheimer and the diagnosis is simply wrong. A very sad but life giving fact is that for many NPH patients there is a one hour surgery involving a shunt in the brain that allows the built up spinal fluid to drain allowing the pressure that is mashing on parts of the brain causing these problems in many cases to simply go away, and sometimes by the end of the day return back to who they were after 10 or 15 years confined to a wheel chair and unable to preform simple math such as 3+2. One returned to his dental practice , another resumed his work as an engineer, and one woman began to play the piano for her church after she became unable 15 years earlier. She had played 40 years for her church until she was misdiagnosed with Alzheimer.
About 4 years after my mothers second episode I decided to go check on my mother She had decided to go to bed one night around 10 o'clock like she always did. When I walked in her bedroom there she was trying to get out of the bed just like before. My dad, my cousin and myself helped her up and into her wheel chair that she used on and off. Again, she didn't know who we were and appeared very confused and didn't talk.
She recovered somewhat and was able to walk a little bit on her on but would forget in the middle of a sentence, burn food to charcoal, try to eat a lid to a jar of jelly she thought was a piece of toast and be convinced my dad was having an affair with his sister. His sister and her husband were staying in the house and helping out with my mother and my father which was very sick with throat cancer during that time. Soon she began to loose her balance and would fall injuring herself. It broke our hearts but we had no choice but to put her into an assisted living facility. Now she is in a nursing home. Its horrible.
I am just not able to tell all the other things, well not briefly anyway. After I talked to her doctor about the possibility of her problems being something other than Alzheimer's, she became very angry. A month later when I took mom back, the same doctor began telling my mom that she wasn't at all sure if her problem was in fact Alzheimer. She wouldn't even look at me as I sat in the room. The doctor went on to tell her that she is positive its not Alzheimer and was going to pull that from her chart. The doctor went on to tell her that she is going to send her to a neurologist.
To cut this short, I finally talked to the Mayo Clinic and flew her there for several doctor appointments and test they had scheduled for her. She never had Alzheimer, but the first doctor that saw her after an hour of reading my mom medical records looked at me and said ... My first thought was the same as yours. NPH. I felt like God was going to give my mother back to us and she was going to be just fine with that one hour shunt surgery. But then the doctor went on to say , BUT, you mother is not a good candidate for that surgery. My heart sank.
I should have simply just asked if anyone has ever heard of anyone going into this severe dementia type state within an hour or so? The doctors are missing something and it is just so hard for me to figure out the cause of her problem. Im not a brain surgeon, or even an MD. I'm just a used car dealer. I would be glad to finish this story if anyone is interested or answer any questions. I know there has to be several things I forgot and left out, some probably very important. One thing I just remembered was that the four ventricals in her brain were extremely enlarged from the spinal fluid that wasn't able to drain causing pressure.
If anyone has someone that may have experienced anything similar or may have some knowledge of what may have happened in this case please contact me.
I'm sure I have missed if not forgotten many things. One important one I just remembered was that her MRI showed the ventricles in the brain to be extremely swollen which made NPH an even more possibility. The Mayo Clinic also agreed with this. The enormous amount of spinal fluid was unable to drain causing the pressure to mash on certain parts of the brain. I had a spinal tap ordered which drained some of the fluid in order to see any improvement. There was, although it was only slight, it was noticed by several family members and lasted a few weeks.
If anyone has someone they think may have the same or similar condition or has any knowledge of the things I've described please contact me.
jimmyleelafarlett@yahoo.com
I apologize for all the mistakes I made. I'm just tired and will try to come back and finish this.
Just as you and the doctors at the Mayo clinic suspect, sounds like she definitely has NPH. What I'm wondering is why the doctors at the Mayo clinic said she wasn't a good candidate for the shunt surgery. What constitutes a good candidate?
There are physical therapists who specialize in neurological conditions such as this one who would be happy to evaluate and treat your mother. Ask the doctor about getting referred to a neuro PT if you haven't already done so and see what they can do for you.
I've read hundreds and hundred of pages on NPH. You seem to have some symptoms of NPH, but several of them don't relate to NPH at all that I know of. I'm sure you have talked to a doctor about this, who else?
There is at least one support group on Facebook
Thank you for sharing.
Please share it.
475 Abshire Junction
I think what happens is that he has enough energy (nutrition) for the brain cells for a small amount of time. That when he's first walking . Then he runs out and he starts to struggle.
I have seen all of this and worse since the person I know stopped walking in April. She was hospitalized a week, thrown in rehab and left in bed and unexercised one month. Then sent home helpless. No neurologist saw her. She had a diagnosis of Parkinsons for eight years. So they gave her a couple of visits with a neurologist, and gave her l-dopa. I started staying with them three months ago and realized it wasn't typical Parkinson's. We got a new organizational neurologist. Neurologist ordered MRI which showed enlargement. It seems to be taking a long time to get things done. I'm wondering if we should get second opinions now.
I'm praying we get the spinal test soon. The neurologist has put it off for a month saying the patient needs to get stronger. The patient can't stand. We are trying guided water exercise, vibrating plate passive exercise of the leg and rocking chair foot push for a little exercise. I'm wondering if we need to go elsewhere. That there is a problem with the organization.
If anyone has an opinion please direct message me.
Thank you for your comment. Some massage and torso bending may help. How are the kidney functions? I hope the moving around (and greener diet) will help.
464 Ayana Fort
Friesen Highway
Spencer Keys
Tyrel Keys
Magnetic apraxia / Magnetic gait , Frontal Lobe Damage .
McCullough Rest
The one in Minn. Im sorry I was so late in replying.
Pat Summit
00715 Fay Light
Delpha Mews
Jerome Points
breitbasig & kleinschrittig
Ja
Renner Rapids
62949 Larkin Parks
84336 Bogan Rest