Proctocolectomy Wound Care | Let's Talk IBD

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  • Опубликовано: 21 окт 2024

Комментарии • 214

  • @adrianaeamaya
    @adrianaeamaya 4 года назад +87

    Maggie, I am an adult med-surg RN and have been watching your videos since nursing school because you are just awesome and make super helpful and interesting videos! And I just wanted to say THANK YOU! I had a patient last week who was recovering fron perforated diverticulitis and had a new colostomy. He was very anxious and uncertain and worried about his new ostomy. I was able to use everything I've learned from you to really help him! Thank you for teaching me so much! I felt so grateful to you as I was caring for him. Thanks for being awesome!

  • @gaynormartin804
    @gaynormartin804 Месяц назад

    You are the sweetest and such a positive person. You are a pillar of softness on the outside but I bet in takes being a pillar of strength on the inside to remain calm and get you through the rough days. I never knew a thing about your disease and have found your channel fascinating. I'm sure you don't see it that way but the information you share makes me see how we could take life and health for granted at any time and we should be grateful every day. Thank you for your humor and charm and for sharing your experiences with everyone!

  • @alanbower8175
    @alanbower8175 Год назад +2

    You are so brave not only to endure but to present honestly this affliction you are dealing with. I wish you the best fortune that life has to offer. Sweet lady!

  • @andreatownes988
    @andreatownes988 4 года назад +68

    Maggie, I had the same surgery as you, so I also have a Barbi butt. I found that while I was healing, I wore disposalble underware and it made me feel much more confident if I had to go out. I wore the ones that can above my bag, so I didn't have pressure on the stoma, nor my bag. If you get leakage from your butt wound or the products you have to use on your butt it's absorbed into the disposalble underware. My clothes were protected and I rarely had embarrassing situations. I continue to wear them, if I have places to go, as insurance. I hope this info helps you or someone else.

  • @shauntelle3005
    @shauntelle3005 2 года назад +1

    God I love you so much. My boyfriend’s ileostomy with the proctecolectomy was broken into two parts because of his long time being on a high-dose of prednisone and being a high blood risk. I was pretty unclear what all went into things and your channel has helped so much learn and become a better partner for the loml. My boyfriend is so, so scared and nervous for the proctecolectomy. Just because of the nerve damage with the man-hood region. I hope things work out for us/him when the time comes for the second procedure but I wanted to thank you for you being vulnerable and honest. It helps even ppl w/o any GI disease become educated and better informed to be compassionate and understanding rather than judgmental.

  • @DonnaWrightRN
    @DonnaWrightRN 4 года назад +12

    Maggie, I do not have IBD our Crohn’s. I’m a nurse (retired) and I love your positive attitude, and the simple way that you explain all of this. You’re professional and don’t talk over our heads. If I were 30 years younger, we would be good friends.

  • @PaigeA6741
    @PaigeA6741 4 года назад +64

    “It really was just a pain in the butt” -literally

  • @barbaraconnolly9000
    @barbaraconnolly9000 4 года назад +11

    You are right, you can call it what you want and humour is so very important.

  • @diegosaurusrex8652
    @diegosaurusrex8652 4 года назад +10

    You’re awesome. I’ve been following your videos for about two years. As a colorectal cancer survivor (with no rectum) , I can relate to some of your videos. Keep doing good things, and keep getting better :-)

  • @sandyh5653
    @sandyh5653 3 года назад +3

    Thank you for sharing something so personal for the benefit of others.

  • @Joyce-dd3fm
    @Joyce-dd3fm 4 года назад +42

    You have such a positive attitude. God bless you Maggie. Zak is wonderful too!

  • @unicornsarereal4254
    @unicornsarereal4254 4 года назад +5

    You’re so incredibly intelligent and you present your information better than most doctors! Healing prayers

  • @kristyoconnell6571
    @kristyoconnell6571 4 года назад +1

    Hi! I’m 3 weeks post-op same surgery. I’m in agony. I thought I’d be able to handle this post-op pain a lot better than I am. I had almost all of my colon removed in February 2020. They left my very inflamed sigmoid, rectum and anus to be removed at another date (3 weeks ago) My rectum was so inflamed for so long that it attached itself to my vaginal wall. The incision in the vaginal wall had to be repaired internally so I’ve got some extra stitches (yay)! I’ve had IBD for 21 years now, I’m 42. My stitches are still in place and are unbearably uncomfortable. I’m hoping when they are removed some of the pain will cease. Thank you Maggie, for your very personal videos and your upbeat personality. It’s nice to see that I’m not experiencing this alone and that I’m not the only person who is, what I refer to as, SANS BUMHO. OR in English, without bumho! I live in a very small town of 3,000 and have no family or support other than my husband. YOU GIVE ME HOPE! Thank you...

  • @pjwalker5412
    @pjwalker5412 4 года назад +14

    I had a rectal fissure. I don’t think the public understands how painful this problem is. It took a year to get healing and relief. I used topical lidocaine which did give relief. I used a sitz bath for bowel movements and cleaning. Adult disposal diapers were a great help.

    • @Golddusttwin1
      @Golddusttwin1 3 года назад +1

      That sounds terribly painful. I hope you’re doing better and continuing to heal.

    • @AudreeAdam
      @AudreeAdam 3 года назад +1

      It can be really painful. I had that problem after a rape when I was 12, I didn't tell my parents because I was afraid. My dad still doesn't know, my mom learned about it when I was... 25 or so. It was so painful and it took about a year and half, two years maybe to get healed for me too. It took so long because I used over-the-counter creams instead of something prescribed by a doctor.

  • @rvagal2106
    @rvagal2106 4 года назад +3

    Maggie you’ll get through this time, healing will happen and the difficulties of “now” will become distant memories. But I want to let you know how absolutely fabulous you are looking! So incredibly healthy and filled with energy and life. It’s wonderful to see you thriving.

  • @vertfemme6215
    @vertfemme6215 3 года назад +1

    As someone who has to practice CIC 4-5 times a day due to an autoimmune disease, I admire your poise, humor and positive behavior in dealing with the cards that life has dealt you. My husband has been my caregiver. Zak sounds like a prince. For future reference, if you need a flexible mirror, look into a catheter mirror. It wraps around your leg and it adjustable. Just an idea.

  • @franceswomble8083
    @franceswomble8083 4 года назад +1

    I have wondered what happened to people who were suffering from this illness. I am shock that it is such a serious illness. WOW I didn't know! I haven't known anyone with this illness also. You are so brave young woman for sharing your journey. I am sure other's with this illness will be so glad to have you to look to for encouragement. I am praying for you to heal fully from your surgery.

  • @amandaanderson8254
    @amandaanderson8254 4 года назад +7

    You explain things so well. I have a family member with chrons and through your videos I have learned so much to be supportive to her

  • @cindy5995
    @cindy5995 4 года назад +9

    I came upon your channel a few months ago, I have zero medical issues like you have. I’m totally hooked on you two. Cutest couple ever, I pray for your health and enjoy watching you do life together. Love from a grandma in Florida 🌴, former Pennsylvanian, Go Steelers!💛

    • @LetsTalkIBD
      @LetsTalkIBD  4 года назад +3

      Aww thank you so much! But oh man, Steelers?! Nooooo! 🤣❤

    • @abbycat2142
      @abbycat2142 4 года назад

      We’re 🦅 fans here!

    • @cindy5995
      @cindy5995 4 года назад

      AbbyCat214 Yikes!😀 all in good fun,,,,,

  • @THICCpikachu
    @THICCpikachu 4 года назад +38

    I had to pack my now hubby’s pilonidal cyst while it healed, we had been dating for like 4 months when it exploded in bed one day! Talk about bonding, u gotta keeper if they help with that kind of wound care.

    • @Fluteperson01
      @Fluteperson01 3 года назад +2

      I had one my my now husband packed mine, we were engaged, in return I did dressing changes on his 2nd degree burns BID, I have also had him help me post partum, its true love ...

    • @alexandralamberton5615
      @alexandralamberton5615 3 года назад +1

      I found out I had C diff a week into dating my partner. It definitely makes you get some boundaries out of the way early

    • @jenbingham0914
      @jenbingham0914 3 года назад +5

      I have my own experience with a polinoidil cyst. It filled up very badly about 25 years ago and it required a surgical drainage. It healed fine, bust left a small opening at the top of my tailbone. Fast forward to about 5 years ago. I had not had any issues with out over those years until out of the blue I felt that familiar pressure. I was hoping it would just go away. I was wrong, it filled completely back up again. I was in the bathroom and gently cleaned the are after using the bathroom, and it ruptured. Badly. I screamed for my bf (who does not deal with this stuff very well, he is great, but the overall grossness turns his stomach pretty badly) and he came in to see me obviously doubled over in pain, standing in the bathtub because the stuff would just not stop coming out. I keep a supply of freshly washed and bleached rags and towels in a container on hand (I also suffer from Hidradenitis so dealing with open would and abscesses is nothing new to me) so he grabbed them as they are the closest thing to sterile I have. He ended up using the shower to gently run water over the area while through lots of tears, I squeezed to empty it as much as possible. After that was all done, he helped me place a clean dry rag over the cyst secured with medical tape to catch the drainage. But bless his heart twice a day he helped me gently wash the area with surgical scrub and gauze to keep it clean, and he was just a godsend. Sounds like your hubby is lucky to have you to help. I honestly do not know how I would have gotten through that healing process without him. Fortunately it has been about 5 years with no refilling. But that man has done so much to help me recover after multiple surgeries and procedures including taking the responsibility of caring for 48 staples in my back from a 5 level spinal fusion. Somehow he was able to push aside his queasiness to care for me. Having a fantastic partner that cares so much about you that they are willing to help care for things that are relatively disgusting, and even in embarrassing situations can truly make all the difference in the world!

  • @christypflanz2567
    @christypflanz2567 4 года назад +3

    Thank you sooo much for sharing, I am 9 weeks post op tomorrow and feeling no hope of closing my wounds. I am ordering medihoney today!!! Thank you thank you thank you!!!🥰

  • @karendeakin8861
    @karendeakin8861 4 года назад +21

    You really do some brilliant videos so clearly explained but never scary ! Thank you very much

  • @LechLecha893
    @LechLecha893 3 года назад

    Keep on taking control. Keep on owning it. When you do, you help my patients.

  • @cosplaypaige5891
    @cosplaypaige5891 4 года назад +4

    I thought stitches thru the entire bottom of my foot and tendons sucked. I know that had to suck! But you’re really teaching so many of us. Hate anyone has to go through it though

  • @kellirobertson6370
    @kellirobertson6370 3 года назад

    You are ABSOLUTELY PHENOMENAL your HUMOR and JUST the WORD DISABILITY is fantastic. We all have hurdles and things to over come and how we deal with them on an individual level is TOO EACH THERE OWN. My disability is different from yours as yours is mine . People judgements of others is ridiculous. Do you and whatever that means for us all if this makes sense!!✌

  • @mselva81
    @mselva81 4 года назад +1

    I had a pilonidal cyst two years ago - hydrofera blue, promogran prisma, a stint on a wound vac, and my wonderful mother and sister were the keys to my wound care plan. It took about 9 months post-surgery for the last little bit - up by my tailbone, too - to heal. You’ll get there - good luck!

  • @kathystych6215
    @kathystych6215 4 года назад +1

    I love the wonderful attitude you have towards your ordeal. And Sam is wonderful towards everything.

  • @leahcurds8965
    @leahcurds8965 4 года назад +1

    Oh Maggi, ive been following you, to learn about the stoma. As my friend has been going through, this procedure, due to bowel cancer. Youve helped me understand so much more, and appreciate your you tubes. Also, my Aunt who hs now paseed, had crohns disease all of her adult life. She never spoke much about it. I like to be able to support my friend as much as possible. So thank you so much. Your doing very well, under your circumstances. Take care.

  • @vivianpennington5330
    @vivianpennington5330 3 года назад +3

    Great advice. After lots of experiments , I use the mirrors just like you . I’m an older lady with Crohns and glad to learn all I can. Thanks

  • @LuckyLarry
    @LuckyLarry 4 года назад +6

    The barn is huge! Looks like a beautiful space for celebrations...y’all are so brave to undertake that project!

  • @wandadevers9598
    @wandadevers9598 4 года назад +2

    I admire your courageous attitude. I have Crohns too but in remission for many years.

  • @serenityherold3002
    @serenityherold3002 4 года назад +4

    I love alginate dressing so much! My husband had a bad accident that left a terrible wound on his toe a couple/few years ago that was bad enough for him to need to go to Urgent Care. When he came home from Urgent Care, they had dressed his toe with alginate dressing. I had no idea how to care for his wound, or change the dressing, so I called the Urgent Care and the nurse I spoke with gave me a really thorough lesson on using it. I always have some on hand now. Medihoney is new to me. Thank you for talking about it! I'll get some and add that to my wound care kit!

  • @AnnetteCarolanFourie
    @AnnetteCarolanFourie Месяц назад

    Love your chickens and Zak's mug

  • @oddds
    @oddds 3 года назад

    I don't have this condition...but a relative of mine almost had to have this procedure and as a kid it terrified me. Watching these videos is kind of helping me heal.

  • @Jefuslives
    @Jefuslives 3 года назад

    Thank you so much for these very informative videos. I too was worried about post surgical pain, but it turned out that the constant pain from the condition itself was far worse for me.

  • @eloyhernandez5156
    @eloyhernandez5156 4 года назад +3

    Hi Maggie, i just went threw my surgery on 8/25 got my bag and they also closed my backside. Im currently going threw wound care due to it not healing. I still have draining threw out the day so i do wear pull ups. It's big change in a person's lifestyle, but i have great family support. Thank you for your suggestions.

  • @researchplease
    @researchplease 4 года назад +6

    I used hydrofera blue on my wound and my husband dressed mine. He's the best husband in the world. It is healed all the way now

  • @jenniferkelly1797
    @jenniferkelly1797 Год назад

    That manuka honey is amazing!! I have it just in a jar and use if I burn or cut myself. Just put a little tiny bit on cut and it’s healed in like a day or 2. Great stuff!!

  • @jonkicker1278
    @jonkicker1278 4 года назад

    I had a doctors appointment with my Endocrinologist in Chambersburg PA today. I had forgotten how beautiful it is in Pennsylvania.
    It's been a few years since I have been there. I didn' like my last Endocrinologist and I like DO's because they tend to spend more time with their patients. It's a hike from Virginia, but it is worth it to me to have a good doctor.
    I loved and enjoyed the drive.

  • @helenewebster9462
    @helenewebster9462 3 года назад

    Mom's Doctors told me nothing for Colostomy Care. I was not informed if Mom needed rectum surgery nor informed me about leakage that she had from rectum. I was under the impression in 2013 that there where no leakage; but to my horror in 2015 or 16 Mom did still have rectum drainage. Now I realized this possibly was the reason for her Chronic UTI Infections. Thank you for the information.

  • @longtabsigo
    @longtabsigo 4 года назад

    You get to call it WHATEVER YOU LIKE!! It is you, it is your life, it is your condition. You keep going gurl!!

  • @patriciaconstantino4669
    @patriciaconstantino4669 4 года назад +5

    If I had 1/4 of your attitude and positivity I’d be in much better shape!!!! You have the best attitude and seem to live your life to the fullest😊 Cannot understand what would possibly offend someone by the term “Barbie butt”....really???? 🤔

  • @adrianlowe9369
    @adrianlowe9369 4 года назад +3

    I had the Barbie Bum 6 weeks ago, after a partial bowel removal and 20 year of Crohns. Luckily for me, I am healing well and only have nerve pain. Using humour at these times is a great way to get through them, and thanks for the video, it's good to see this talked about. All the best with your recovery.

  • @margithammer8835
    @margithammer8835 4 года назад +14

    What if you lean forward when you pee, like tilt your pelvis so the pee flows toward your front?

  • @AudreeAdam
    @AudreeAdam 3 года назад

    Barbie butt really makes me laugh. Good for you for keeping your sense of humor, it's so important!

  • @nightshadekelly
    @nightshadekelly 3 года назад +2

    This sounds so stressful. Your awsome getting through this.

  • @bethsanford1513
    @bethsanford1513 3 года назад

    Thanks for posting.
    Because of cancer, I’m about to under go the same surgery and it’s good to know what to expect.
    Your videos have been a big help to me. You explain things so well.
    And I like calling it a Barbie Butt.
    Ostomate for life!

  • @victoriatucker6271
    @victoriatucker6271 4 года назад +7

    Thank you for educating people.

  • @miken.4693
    @miken.4693 3 года назад +1

    I’m compelled to watch just based on the title and too much curiosity. I didn’t even know this was medically possible!

  • @kimmaguire5865
    @kimmaguire5865 4 года назад +3

    You are a great teacher!! I started watching your channel because I have know someone that has had this surgery. Love listening to you and love your honesty

  • @sugarcoma7662
    @sugarcoma7662 4 года назад +2

    Hope you start doing better.. i love your channel it helps me so much. I've had bowel resection and severe adhesions. Radical hysterectomy and 3 other stomach surgeries. I am also a nurse. Love you sweetheart

  • @suzannelegg7423
    @suzannelegg7423 4 года назад

    Pretty chickens. I have had rectal cancer twice. If it comes back again I will have the surgery you had and you are so informative

  • @claudiatighe514
    @claudiatighe514 2 года назад

    You are wonderful! Bless you sweet girl for helping us!💕

  • @JustAnotherBuckyLover
    @JustAnotherBuckyLover 4 года назад

    I struggle with wound healing because of a skin condition (hidradenitis suppurativa), complete with wounds that have been open for years, granulation tissue, etc and like you, I found alginate was a game-changer. It helps so much to reduce the skin maceration and ulceration, especially with sinus tracts that just aren't going to heal any time soon.

  • @femalelucifer1219
    @femalelucifer1219 3 года назад +12

    Respectful question, forewarning of tactical word choices were always considered.
    When you and your fiance /if you and your fiance would like to start a family, would you be able to deliver a baby "normally" or would you have to have a c section. Because one only thinks of how delicate your wounded area is and how damaging that process is normally let alone for your delicate healed. .. in your own words "barbie butt"

  • @Justin-zt6nr
    @Justin-zt6nr 4 года назад +1

    Mesalt works amazing. It healed the wound in my stomach super quickly where they pulled my colon out during the first surgery. The nurses were incredibly impressed at how quick it closed up. I just had a proctocolectomy with barbie butt and it is working wonders for me just 1.5 weeks into it. I put a strip of mesalt down first then some gauze on top. Just a suggestion for anyone to try.

  • @kellirobertson6370
    @kellirobertson6370 3 года назад

    Just subscribed!!! YOUR POSITIVE VIBE is AMAZING .
    THANKS FOR SHARING.✌

  • @britty9465
    @britty9465 4 года назад +1

    Maggie those mirrors are great for lots of things. I used them when I was learning to self cath

  • @miriambarnett2782
    @miriambarnett2782 4 года назад

    Another great video Maggie!! I love your chickens!! And your place. You were the first you tuber I started following after my colectomy. I’m thankful that my bottom healed up really well. Although it took a long time to get used to the way it feels now. God Bless you and Zak. Take care!💕

  • @gerdienverhagen5405
    @gerdienverhagen5405 4 года назад

    Hi there, I am a wound nurse from the Netherlands. The product you use are great for your wound! If it leakes more though, you could also try a hidrofiber (such as Aquacel), if needed added with antibacterial silver (AG). It can't break becease of a fiber string and absorbes better than a alginate. An alginate is more natural though. good luck!

    • @LetsTalkIBD
      @LetsTalkIBD  4 года назад

      Thanks so much!! I may switch to hydrofiber because I think I need just a little more absorption!

  • @beverlyelliott1100
    @beverlyelliott1100 3 года назад

    As I started watching this I was so hoping you were using Medihoney. Then you said it. It is great!

  • @mariedonna1488
    @mariedonna1488 3 года назад

    You are simply awesome! I wish you the best.
    I am an RN, also. This compliment is for you I'll share my little story sometime. 😊

  • @india239
    @india239 3 года назад

    Most humiliating moment as student nurse- dr came to look at a leg ulcers. When I put the dressing on I failed to lift off the backing. It was clear and I was unfamiliar with it. Lesson learnt- make sure I fully understand a new bit of kit. The patient was totally fine, it didn’t cause any issues bug I felt bad and was mortified

  • @jhors7777
    @jhors7777 3 года назад

    Best wishes to you Maggie!!

  • @PB-cs5ph
    @PB-cs5ph 4 года назад +6

    I had exactly the same procedure done on me, however I got a serious MRSA infection 7 weeks post op which re-opened all wounds from my surgery. I developed sepsis, but luckily after 5 months I beat the infection. My anal wound took up to 5 years to close. I had numerous surgical procedures to clean the wound from over granulation. Thankfully it is now closed now. What I would recommend is that you keep on top of your immune system, to make sure that you don't get an infection.

    • @gaylelizabeth
      @gaylelizabeth Год назад +1

      @@WoodlandDance - oh my goodness ~ I feel for you and your daughter ~ I had my colostomy in March of 2022 ~ then my rectum stopped having peristalsis so the natural mucous our body secretes hardened in my anus and it felt like hardened glass … my gastroenterologist and colorectal surgeon recommended I have my rectum and anus removed due to anal and rectal stenosis… ugh. So on February 21 2023 I had proctectomy surgery ~ and developed a wound dehiscence 6cm deep I have wound care nurses coming to my house to unpack and pack it three times a week ( I was in the hospital for a month ) this wound is the most painful thing I’ve ever endured in my entire life ~ i can totally relate to how your daughter must feel ~ I send you both hugs and I hope things are going better now for the both of you~ if you or your daughter would like to keep in touch … I’m open !

    • @WoodlandDance
      @WoodlandDance Год назад +2

      @@gaylelizabeth Oh, Gayle - you have been through it! I send you every good thought, and hope. Yesterday marked 1 year since my daughter's rectum removal surgery. Some of it has healed but there is still an open wound about 1 1/2 to 2 " long. The community nurses stopped coming last summer - there just aren't enough of them. So our hospital wound care nurse had to teach me how to do it. We go see the wound care nurse 1x a week for silver nitrate (ouch), and the rest of the time I do the daily dressing changes. I really hope your progress is coming along. It's very difficult isn't it? Having people always 'down there' looking over your bottom is - ugh - not nice! There's some loss of dignity to be sure. I don't know if your stitches were left in, but my daughter's were all removed after her infection, and the wound left to heal by secondary intention. I've had to teach myself alot about chronic/complex wound healing. Our current focus is managing biofilm. Thank you for reaching out; sharing your story; and showing you care. xoxoxo

    • @gaylelizabeth
      @gaylelizabeth Год назад

      @@WoodlandDance oh gosh ~ firstly thank you my friend for showing you care ~ 💝~ and responding… truly means so much to me 🦋 after my ostomy surgery ( had complications there ~ stoma prolapsed , became necrotic , had a revision and within less then 24 hours had a mesentery bleed- woke up in ICU learned they found blood in all 4 quadrants of my abdomen and I had 5L of blood transfused - this all happened with the first two weeks post operatively . After that tho my stoma has been fabulous 🙏🏼 thank goodness 😅
      Your Maggie has certainly been through extensive recovery ❤️‍🩹 ~ as have you ! You two are battling the toughest and most painful area to heal with these types of complications ~ ugh - you are so right - it’s not the greatest always having someone “ down there “ - but we surely can’t do if ourselves … it sounds very much like Maggie is dealing with a very complex wound ~ with a one year anniversary you’ve come quite a long , exhausting way I’m sure, and it makes me so sad … she’s so young too 😢
      I’m relieved you are able to care for her wound at home. May I ask is she able to sit and/or walk ?
      I’m still very early on I know and unable to sit at all … perhaps it’s because the wound feels like it’s continuing to dehisce although I’ve read most people feel that sensation … I just have so many thoughts and questions -
      I had a JP drain left in after surgery that was removed at day ten ~ from what I understand my surgeon used internal dissolvable sutures , and externally he used some type of surgical glue ? The dehiscence I have is about an inch and a half long and 2 and 1/2 inches deep. My six week appointment is coming up on April 6 2023 although if my pain still keeps increasing and it still keeps draining bloody fluid ( it had stopped prior to the dehiscence) I may go to hospital before then as I’m 64 years of age .., and my like Maggie’s had been through so much in the last few years.
      If you’d like to hear how my story got started I’d be honored to share .
      I’m so grateful you responded and I will surely continue to pray for you and your daughter.
      Do you have medical background ? Teaching yourself all that you have is really quite an accomplishment!
      Biofilms and secondary intention … phew - I’m not sure what my surgeon is going to say or do with me at this point. I currently live in Arizona ( just six years ) all my family lives in Maryland. I wasn’t planning on staying out here this long ~ long story ~ involves getting sepsis from a simple hemmorhoid banding - in 2020-
      My life partner John , whom I’ve known since we were 15 is not able to take care of me ~ my family of course is - but I’m struggling to get well enough to fly home ! I’ve got two daughters and 4 grown grandson’s and one granddaughter who just turned 7 - I haven’t been home since January of 2020 ! Oh my I’m writing a novelette here. Thank you again for your kindness , and caring. I will continue to think of and pray for you both - please continue to stay in touch if you like ~ I’m surely willing -
      I’m interested to learn what you’ve learned about managing biofilms ~ ( yikes) lots of hugs and love , your friend , Gayle
      This is the one - I’m editing and adding this sentence in hopes you’ll get a message about it 🌹 let me know 😊

    • @gaylelizabeth
      @gaylelizabeth Год назад +1

      @@WoodlandDance did you receive my long reply ? It seems as if it’s disappeared!? Please let me know as I shared quite a bit - perhaps to much and the tube may have removed ? Yikes - if this has happened I’ll re write my response my friend 💗

    • @WoodlandDance
      @WoodlandDance Год назад +1

      @@gaylelizabeth I'm not sure? I read the comment you originally left - and then responded. Next is your message (above). Was there another one? 🌹

  • @Slastukin67
    @Slastukin67 4 года назад +2

    Barred Rocks and Rhode Island Reds? And Barbie Butt is freakin' hilarious! People are too easily offended.

  • @KatieT81
    @KatieT81 3 года назад

    I hope it continues to heal nicely for you! Some wounds can be so difficult. I had a surgery and ended up with a huge long tunnel across my stomach. The dr stuck the wood end of a long q tip and couldn't reach the end. 🙄 I spent lots of hours packing that thing.

  • @amaza888
    @amaza888 3 года назад +1

    Hi! This might have been talked about before, but I'm curious as to why no vacuum-assisted closure device? I had it after my pilonidal cyst removal and it worked incredibly well. Not the same surgery of course. Just curious.

  • @industryqueen
    @industryqueen 3 года назад

    Maggie. Do you use a silver sulfadiazine cream? It helped greatly when my Aunts diabetic issued complicated her ability to heal. Much love to you sweet girl for being such a courageous advocate. 💜

  • @kingjasOPB
    @kingjasOPB 4 года назад +7

    I used medihoney when I had 2nd and 3rd degree burns from my knee to my ankle. I have a few scars, but it healed way better than normal (I heal very slowly).

    • @shelikestuff
      @shelikestuff 4 года назад +1

      Medi honey is so hit or miss .. I’ve had patients with wounds and it turns them totally necrotic , was never my favorite .

    • @kingjasOPB
      @kingjasOPB 4 года назад +1

      There's always that risk of the honey either being the wrong kind of honey, or contamination during application or processing. They were super expensive though, so I got some raw manuka honey and after making plasters soaked in chamomile, I put the honey down and the plaster over that. I have the advantage though of being an herbalist. I've got training and I'm not a layperson, but it's so easy to mess up. The wound site needs to be sterile, the dressing needs to be sterile, your hand do too and so on. I've seen it go really badly though.

    • @chenickematthys9384
      @chenickematthys9384 4 года назад

      Maybe you're diabetic. They heal slower than the normal

    • @kingjasOPB
      @kingjasOPB 4 года назад

      @@chenickematthys9384 Slow healing, for me, isn't related to diabetes. I've got ehlers danlos syndrome that address with scarring, and gastroparesis that at the time was being particularly awful so I was severely underweight. The nurses had me on a "if it stays down, have as much as you want" diet namely with things high in protein. I ate so much peanut butter.

  • @judyconstantino9838
    @judyconstantino9838 4 года назад +1

    Maggie, are you a nurse? You seem very comfortable and knowledgeable discussing your health issue So!

    • @LetsTalkIBD
      @LetsTalkIBD  4 года назад +4

      I am! Figured I better put this medical experience to use :) thanks!

  • @pattypatten1626
    @pattypatten1626 3 года назад

    Your so amazing, helping so many❤️

  • @beautywearsboots6458
    @beautywearsboots6458 4 года назад +2

    You've shared before that you are no stranger to wound healing struggles. Is this possibly related to the fact that you have an autoimmune condition?
    ETA: have you looked into any kind of absorbent underwear? Some of the ones designed for periods have a leak-proof layer that goes all the way up the back. May help with the leaking through clothes issues

    • @LetsTalkIBD
      @LetsTalkIBD  4 года назад +1

      It definitely could be that! So many reasons and its always hard to pinpoint. That is a great idea!

  • @GayleDichazi
    @GayleDichazi 4 года назад

    Maybe get a small video camera for your phone to watch your wound! I looked down a drain earlier with one and it came to mind watching your video. Bless you and Zak!

  • @nabywanieks
    @nabywanieks 4 года назад +2

    This sounds so so similar. With my fistulotomies. I had so many and the worst places to have them. This helps a lot in case I come out of remission and this is an option one day.

  • @melaniepoulton6738
    @melaniepoulton6738 4 года назад +2

    Your so positive! I went through a very similar situation, and after seven months the wounds are closed. I have a question regarding your ostomy bag (sorry I should have asked when you talked about your sores related to the flange) how often do you change your bag and flange? Do you change it more often when the skin underneath is sore? or always try and change it the same amount of time?

    • @LetsTalkIBD
      @LetsTalkIBD  4 года назад

      Hi there! I change it every 3 days or so unless the skin is weeping. In that case, the flange peels off on its own

    • @melaniepoulton6738
      @melaniepoulton6738 4 года назад

      @@LetsTalkIBD Thank you-I have been told to change it every 5-7 days, and sometimes when I do the skin under it Is bleeding so badly. I appreciate you getting back to me-have a great day!!

  • @barbmckinnon1283
    @barbmckinnon1283 6 месяцев назад

    Maggie, I know you’re not a doctor but you are a nurse and you have gone through this Barbie butt surgery. I take no offence to that term. I have a very complex fistulas that of horse shoot from my right over to my left and I have five setons that constantly drain. I am being advised by my surgeon to have the ostomy but what are your thoughts on also having the Barbie butt surgery? Just your thoughts, that’s all I am asking . I know it’s a big surgery however I don’t want to deal with two areas. Meaning I have the ostomy surgery and still have leakage from the setons. Very personal for me to write this, I would love to hear your thoughts. ❤❤❤

  • @CarlaH704
    @CarlaH704 4 года назад +6

    God bless you. God bless you. God bless you.

  • @jonkicker1278
    @jonkicker1278 4 года назад +2

    Thank you for sharing. It was a lot of good information.

  • @АнгелПобеды
    @АнгелПобеды 4 года назад +1

    Hi Maggie! I'm new here and I love you and your channel! 💖 😊 I had the same operation, burbie butt or better ken butt, two years ago but the wound hasn't healed yet. I feel very uncomfortable.😞 The wound drains and is constantly wet. I need to wear sanitary pads and wound dressing. Surgeon has no solution to suggest because said that a fistula has been created that does not allow the wound to heal. The only solution suggests is to wash the wound with Betadine and hydrogen peroxide and when there is outbreak of fistula I'll need to take antibiotics... 😞 I will try what you suggest and I hope that some of them will work for me and there will be some progress in wound healing. Thank you very much for sharing your experience with all of us who face similar issues! God bless you and Zak! 💚💛💚

    • @codename495
      @codename495 4 года назад

      Try adult incontinence underwear perhaps?

    • @АнгелПобеды
      @АнгелПобеды 4 года назад

      @@codename495 No, I didn't try adult underwear. I use sterile gauze for wound and sanitary napkins to keep underwear from getting dirty.

    • @jeanetteh.9240
      @jeanetteh.9240 3 года назад

      If you have access, consider seeing a wound specialist. It sounds like your surgeon may not have the expertise you now require. Your family doctor might be able to help you find someone, if Googling doesn't turn up anyone in your area.

  • @yomama8873
    @yomama8873 4 года назад +1

    Very interesting Hope you heal soon💜💜💜

  • @researchplease
    @researchplease 4 года назад +2

    I also had a wound vac for a couple of months.

  • @lonniedye7068
    @lonniedye7068 2 месяца назад

    Maggie I had the same procedure 9 weeks ago. My wound is not healing at all plus there is a tunnel that extends 11.1 centimeters in at the 12:00. Taking antibiotics now and the home care nurses come every day and change my dressings. Don’t know what I would do without them. Total wound care is also involved. As of now the wound is not healing at all. Hopefully someone will figure this out. The surgeons are saying that the radiation therapy I took has damaged the tissue which I don’t doubt.

  • @nabywanieks
    @nabywanieks 4 года назад +4

    My husband does all my dressings. He is a saint. Lol I use the same mirror

    • @cougartown5429
      @cougartown5429 4 года назад

      My husband changed my bag every other day I requested it. I have been reconnected. I did not handle my bag very well. I got C- Diff. I went Sepsis. I hadn’t heard of ileostomy before and when I get off life support I learned I had one. What a breath taking moment for me.. My best to
      Maggie and bless all of you..

  • @paulajarrett6437
    @paulajarrett6437 3 года назад

    I had the same surgery 19 years ago. The butt was the slowest to heal. I had no drainage. I had phantom poop pains. I just sat on the toilet n that worked. Are you doing too much for your butt? I’m on my way Hurd ileostomy because of hernias. I no longer have to use any products. One day you won’t need any either! Best of luck!!

    • @LetsTalkIBD
      @LetsTalkIBD  3 года назад

      Thankfully mine healed! (This video is from a while ago)

  • @ashkakak9983
    @ashkakak9983 3 года назад +2

    I have Crohn’s as well, and yes it’s a very shitty condition to have. God bless and tc.

    • @kimberlyarroyo7993
      @kimberlyarroyo7993 3 года назад

      Do you know if everybody with Crohs will eventually have to have their anus removed?

  • @anitahalvorson6586
    @anitahalvorson6586 4 года назад +1

    omg love how you had to spell w a l k for the dogs. i did that with my dog.

  • @bread9173
    @bread9173 3 года назад

    To avoid peeing on gauze. There are these plastic things I use when hiking that kinda aims my pee flow like a funnel. These would probably help a lot.

  • @gaylelizabeth
    @gaylelizabeth Год назад

    I just had the BB surgery and have had a 2 1/2 inch deep dehiscence that is about 2 inches in length. It’s the most painful thing ever - having to have it packed and unpacked every other day. I’ve already had one hospitalization because if it ( no MRI 😔) is there any thing I can do about the pain? This is considered pretty deep in a 64 year old woman … any recommendations would be greatly appreciated 🙏🏼

  • @anikabaddeleyrollingbackwa7341
    @anikabaddeleyrollingbackwa7341 4 года назад +2

    Love your hair

  • @tamarak9393
    @tamarak9393 4 года назад +2

    I just love your chickens. I would sit in the field all day with the chickens. How many eggs do you get everyday. I love eggs it’s how I get most of my protein.

  • @seregadogua5797
    @seregadogua5797 4 года назад

    Hello LetsTalkIBD as a health spouse. Little fellow INTO throwing himself! health to you, happiness and joy in life.

  • @a.kbeast8781
    @a.kbeast8781 4 года назад +3

    Best wishes for your health. May God give you beautiful ,healthful amazing life. And you are cute!

  • @5p674
    @5p674 4 года назад +1

    Healthy looking chickens. You. look healthy too!

  • @Fluteperson01
    @Fluteperson01 3 года назад +1

    can i ask if you have used laser therapy? Im a veterinary technician and we use Laser therapy all the time, we also use sugar and honey dressings, we have used it in infected anal glands, horse tendon wounds, major road rash. we even use is post op during spays, and its been shown to reduce inflammation in wounds, and joints.

  • @faithinhumanity3390
    @faithinhumanity3390 4 года назад

    Thank you for sharing your experience!

  • @millisagable1318
    @millisagable1318 4 года назад +1

    Girl I'm in love with your make up!!! You know my mom and grandma didnt know what barbie butt meant tell I explained it.
    The thought of feeling it open sounds freaky af.
    Do u have a video about why you had to get a ostomy?

  • @jeremycrystal5949
    @jeremycrystal5949 2 года назад

    After you had the surgery how do you change the dressing (on your butt) on your own?

  • @keillamx
    @keillamx 4 года назад

    wow i just found you. thank you soo much for all this info💗

  • @amandapatterson2974
    @amandapatterson2974 3 года назад

    OMG Barbie Butt!! I laughed so hard I almost pee'd my pants!!! lol