I have fibromyalgia. It is nasty. I'm 37 years old and I cannot work, socialise well and enjoy life as a result of severe daily pain, fatigue, mood swings, IBS, tinnitus, dizzy spells, weight issues, etc. Fms isn't just about pain. There are hundreds of symptoms associated with this neurological disability. Doctors don't take it seriously sadly. 😒
I was lucky enough, in 1990 (when the vast majority of doctors didn't believe it existed), that my doctor DID know it existed, but before diagnosing me, he ran several tests to make sure it wasn't RA or some other painful disease. Once he got the results of the tests, he sent me to a specialist who agreed that I had fibro.
Yep! That's because they don't understand it- Most doctors are ego maniacs. Just work on it naturally. That works better anyway. Doctors only know meds. Meds don't really cute.
Likewise (and I'm 38 yrs old)... I feel a lot of compassion for you Silver Moon. I can't work either, socialize well or enjoy life, exactly like you wrote. I experienced so much gaslighting from local doctors, so I did my own research and after months of trial and error (CBT and EMDR aggravated my symptoms, for example), I can tell you that so far the only therapy that's actually helping me is Somatic Experiencing. Learning about Autonomic Nervous System (ANS) dysregulation via Polyvagal Theory has changed my life in that regard... Fibromyalgia really seems to be an issue of ANS dysregulation, which also explains why we have so many horrible symptoms... When the ANS can't regulate itself, the whole system falls apart. Somatic Experiencing works really well to reprogram the responses of the ANS (which is "Autonomous", i.e., automatic, it's got nothing to do with willpower) so that "normal" life events no longer trigger survival responses from either the Sympathetic nervous system (fight or flight), or the Dorsal Vagal system (shutdown), or a combination of both (freeze), and when you do get triggered by stressful life situations, your ANS can self-regulate back to Ventral Vagal like a person without Fibromyalgia. Also, I self-medicate with CBD, it helps with anxiety. It's not enough on its own, but it's a good support while I go through my therapeutic journey. Sending a lot of love and compassion to you and everyone with FM.
It’s the same for Traumatic Brain Injury (TBI) survivors. Because others can’t SEE the problems we experience, they don’t believe we have issues. As if life isn’t hard enough trying to function while having a brain injury, people dismissing our pain, brain fog, etc. makes it SO MUCH harder!
My Fibro came from a TBI. Fatigue is one of my biggest symptoms, along with thinking, I don't process things as fast. I have over 20 symptoms so you can guarantee a few are visiting daily. Best wishes and do hope you find some healing. X
I have had fibromyalgia for over 20 years this pain is no joke. I'm in the middle of a flare right now. I am in so much pain I'm glad I came across this video.
I have fibromyalgia also since 2004. Going to physical therapy right now for frozen shoulder, tennis elbow and plantar fasciitis. I really feel fibro could be the cause for these problems. What a painful mess. Does anyone else here think that maybe this fibromyalgia is a blood flow circulation problem of some sort? Sometimes when I have to get my blood drawn, the blood doesn't come out. I wanted to say for my tennis elbow I've been using something called a flex bar, starting out with the red one, least tension... you twist it with your good arm while holding the other end with your bad arm, straighten your arms out in front of you and untwist the bar slowly with your bad arm. Kind of hard to explain how you do it but it has been very helpful, much more helpful than doing stretches. Doing stretches for my shoulder to get my range of motion back. Frozen shoulder and tennis elbow on the same arm.
@@Blueskys1972 I'm the opposite when my blood is drawn or I get a shot. I don't stop bleeding for a while. Yet my legs are blue. Though the blue didn't start until I got COVID. And I was sick long before that. Since many of us feel better as long as we stay active, it could be circulation related. I also felt MUCH better when I used to use a jacuzzi at a gym. Sadly, remaining active all the time isn't sustainable. Especially since we're already exhausted and don't recover well. I finally gave up on moving. I couldn't keep it up. And now I barely can anymore. 😢
@@anyascelticcreations I didn’t know how awful this condition is. I’m sorry you are in such pain and I hope this video helps you in some way. Many prayers and good thoughts for you and all who suffer from this❤️
"Some of our astute followers have noticed me slurring my words. I am not drunk but working with Brad it would be justifiable. I had 6 infected cysts removed from my mouth (noncancerous) and I have residual scar tissue and numbness. I will try to do better. Thanks Bob."
Any such people should get it themselves. It can be truly misery. And so many kill themselves over it as the pain becomes too much. Doctors can be the biggest ego maniac idiots ever- and don't like to diagnose what they can't explain.
As a nurse practitioner student I can tell you that these guys hit all the key points! Lifestyle modifications are so important and people tend to be most successful at making these changes when they “habit stack” meaning you change one thing first and once that is established you add a new habit. Sleep, diet, and exercise are key. Medications, cognitive behavioral therapy, and physical therapy round out the treatment options. Awesome presentation! This has helped me think more about how I will approach my fibromyalgia patients as a new nurse practitioner.
@DAVID&MARY there’s no known cure, but lifestyle changes can help a lot. You need to minimize anything causing inflammation in your body. Have you seen a rheumatologist?
No, no cure but can go into remission for months or years.. I had a great day, exercise, felt strong. Next day my muscles were so sore I hardly got out of my chair. Today - no pain at all! So yes, my muscles were probably sore, but that overwhelming pain was fibromyalgia, the amplification of what was happening. Learning to live with the uncertainty is important.
It was so nice to hear Chris talk about the pain levels. I live in southern Wv and have been to Dr after Dr. No one understands. My daughter poked me with her finger and couldn't understand why I yelled. To me it felt like a knife stab.
Yes! My husband didn't understand until recently that it hurt when he grabbed knee. Most people it tickles, but it really hurt me, and he wasn't even doing it hard.
I was first diagnosed with fibromyalgia before it had an official name. Back then, in 1990 the rheumatologist called it muscle rheumatism. I was in my very early 20's. It sort of went away after a year or two, but came back with a vengeance when I hit my 40's when I was officially diagnosed with fibromyalgia. Now, a decade later, I have fine tuned my meds with the help of my GP and rheumatologist. I still have pain but it's not debilitating, and don't have flares as often as I used to. Dietary changes hadn't make a difference for me at all, not even cutting out sugar or gluten. What really made a difference for me is listening to my body. To eat when I am hungry and to rest when I am tired. I cut down all unnecessary activities, and learned to say no when I am not up to something. I do yoga daily, but I adjust my practice to my ability at the moment. Accepting my limitations and understanding that I am not this syndrome were the most valuable lessons I have learned.
I cut out everything bad from my diet, too. Just like everyone says. No gluten, sugar, soy, msg, you name it. If it was toxic, I didn't eat it. I worked out, too. And I still felt awful. I looked great. But I felt awful. So I gave up on everything. Now I look about how I feel and can barely move. Unfortunately, I have no medical support. I'm on my own.
@@santievandermerwe Thank you. You did give really good advice, though. I tend to not eat until my blood sugar is crashing. And I used to push myself way too hard. Maybe I should listen to my body more. But I'm glad that you have found ways to feel a bit better. Thank you for the kind words. Hugs.
I was finally diagnosed with fibromyalgia in spring of 2021. I started taking Cymbalta. Within 2 months pain, brain fog, memory problem, and constantly feeling of needing to pee were mostly gone. I moved from PNW, Seattle, Washington to Mexico City. Away from a lot of stress and memories of domestic abuse. My pain was always bad with cold weather. Felt like I had ice under my skin in left shoulder, wrist and ankle. Would make me cry. And unable to focus or think. Last fall I went off Cymbalta because it was causing side affects. Feeling of vibrating in legs, sometimes abdomen. I have only had a couple of bad days when I over did it and ate wheat ( gluten). Maybe the warmer weather has helped. Usually 70 to 85 all year round. Now I feel normal which is extra special after years of feeling horrible.
I found this video when looking for a way to get rid of a big knot. Y’all made me cry. Thank you for acknowledging this horrible condition and make it so others can understand.
I got fibromyalgia after a toxic chemical exposure. It still amazes me that so many healthcare providers think if the patient is a woman it's all in her head or she is exaggerating but that same doctor will take a man with fibromyalgia seriously. 😾Time after time in support groups we hear about the differences in the time given and the treatments given by docs for their men vs women patients. Thank you for this video, it is *so* helpful and so very *needed*. BTW, support groups are not only a good place to share this video, you will help others, get help and make friends there. 💟
I suppose it depends. When I was first diagnosed with fibromyalgia I didn't understand really what it was still (yes even after years of tests for other auto immune conditions). I was in so much pain I went to the hospital, hoping to get some kind of relief from a really bad flare. I had a female doctor come into the room and she yelled at me that everything was all in my head and that I was wasting her time and I'm a hypochondriac and she slammed the door and walked out of the room. Mind you I was still very freshly diagnosed, I didn't even know yet if fibromyalgia was even dangerous, I was just desperate for help and information. Because of that woman, I will never go to a hospital ever again in pain.
Finally someone who understands us. I have RA and Fibromyalgia 😓 I used to be very active, and it is frustrating feeling in pain every single day. Sometimes I can't even comb my hair.
I have a friend who has fibromyalgia, I didn't trully understand what it was when she explained it to me but now I do, so thank you for the explanation. I'm going to show her this video and your channel too.
I've had it since 1990 (dx in 1994) after an auto accident, and no matter what, I couldn't explain it to my husband. I think he thought I was making it up. I came across a really good article online about it and sent it to him. Now, he gets it. Your friend is lucky to have you.
😟 HAVING LUPUS and FIBROMYALGIA it's a VERY miserable/bitter/depressing/anxious LIFE...THANK-YOU FOR UNDERSTANDING and ADDRESSING IT DOCTORS...AMEN!!! 🙏😔🙏
ruclips.net/video/n1Qm5x7Lxgc/видео.html Dr Stash Gormack has helped me. I flagged it up here because she talks in one of her videos about additional complications and lupus was one of them. The vitamin B content she talks about is an important follow up on what she has to say about Vitamin D. Her content is relevant to insomnia, fybro, IBS/digestive issues and she mentions Lupus too. Among many other things. It's long and detailed but I pulled out the bits I needed and had someone help me
So greatful for your recording. When my body is burning it feels like someone threw a bucket of acid over me or like someone putting a hot iron on me and burning me. Incredibly painful.
Excellent, respectful tone to this conversation. Nailed it! Truly an essential element when listening to something about FM and trying to gain more strategies for managing these health challenges. Much appreciated. Good info too.
I was diagnosed with fibromyalgia just over a year ago now & wanted to thank you for making this video and being so inclusive and understanding of the condition. I tried Cymbalta for about 5 months after getting diagnosed and it was horrible. I don’t remember months of my life. It’s insane. So I do agree, medication can do wonders with fibro, but can also do much harm. Make sure you find a provider you trust when making choices on medication. I was just thrown Cymbalta and was given no other real guidance. So I just want to say I truly appreciate this video and how much of an emphasis you put on lifestyle changes, rather than just medicine.
Great job guys! I was diagnosed with fibromyalgia in '96. Very little was known. An arthritis Dr recommend I get some books out at the time on the subject. What I learned: 1. Sleep ( get the TV and radio out of the bedroom.) And check your problems at the bd door. Only stress when you are in a certain spot at home and no where else. It takes practice! 2. Reduce stress from work, toxic relationships and family as much as possible. Boy did I clean house on those toxic ppl😆. I use melatonin to help me sleep. 3 exercise. I use biofeedback exercises and walking. Good luck everyone, I feel your pain ❣️
I'll advice you recommended Dr Obinyan on RUclips, he cured my wife from fibromyalgia with his herbal supplement, my wife can now sleep peaceful with no more pains....
Once it flares up, it lasts for months. Every single second of my life..I am in pain. I understood that my diet and emotions cause it. I am also vitamin deficient. Yogurt, fresh fruits, lots of vegetables. I don't take any medication. Thanks for talking about it. Atleast some one recognises it. 🙏
Fibromyalgia is not caused by your emotions or your diet. Please read into medical literature. Diet can make it worse by eating lots of sugar, too many carbs, etc…. Good Luck
@@stephaniekeller4449 My start after we were hit my a school bus in 1977. I was diagnosed by 3 doctors in 2004. I have a huge flare up after Pfizer shot and reacted to other medication since the accident. Never have I been in since the Pfizer shots. Those with this painful and debilitating disease need to be very careful with new medication.
Yes I've been suffering with fibromyalgia for 10 years my bones and muscles ache all the time. Hard to sleep restless 😬 memory loss, I'm 60 year old always in pain. Yes I 😢 alot. Hands hurt 🤕🤕🤣 people don't understand it . Yes I have osteoporosis, rheumatoid arthritis inflammation of arthritis deteriorating phones in my hands in between my fingers. And when you look at me I look like nothing wrong but my pain level 15 all the time. Thank you for making this video 📸 maybe people will understand more, when I say I hurt until you walk in my shoes 👟👟.
Ask doctor about 30 mg of Cymbalta it will change your life. I fully understand just touching this tablet to type hurts me. Classical music helps too violin and light piano
Linette fibromyalgia originates in the central nervous system and tells your muscles they hurt sometimes it does feel like your bones hurt, stiffness. Try taking a hot shower soaking in a tub, or a whirlpool. It will help you relax and loosen your muscles. You are not crazy. Its real but you will get better please try to lower your stress level, and don't worry if they believe you they just don't understand. It took my mother many years she would take my hand and I would say mom that hurts she never understood until she watched a tv program she said Anna fibromyalgia is real, I am sorry I didn't know.
Very spot on. I've suffered with fibro for quite a few yrs and learming to be in tune with your body and what it's telling you is essential. I often tell people fibro feels like you're coming down with the flu and that feeling might be better some days, but it never entirely goes away. In this fibro journey, I had to realize that narcotics were gonna kill me and I also had to learn that I needed to do physical things on my own terms. I would often get asked from people, "Why you going hiking, you know you'll hurt terribly tomorrow." I would answer, "Because, I'm gonna live today and if I hurt tomorrow then I'll deal with it then. Today I'm doing what makes me happy." I wasn't going to let fibro make me feel like I was just waiting to die anymore. I wasn't 90 yrs old and I was no longer gonna act like it. One day at a time! Thanks for this, it's great info.
Fybro can be a lot worse than that. Extremely worse. The people I know who have it a lot worse have a nightmare being understood. Very little contact with others, very limited communication. And many thinking they already know because they know someone who has it not so bad. Those who have it not so bad please do those who suffer worse a favour and highlight this 😊
@@deborahbeattie9103 Oh l agree. When l hear people describing going out to walk a trail or still working their job l am genuinely bemused. Honestly l think too myself, they haven't got fibro!!! They would struggle to get ready and into the car to even make the journey to the trail if they had!! Then l remind myself that not everyone suffers to the same degree. I would hate to minimize their pain even though it is obviously not equal to mine and many other hundreds and thousands of pain warriors on the planet. Over generalizations are incredibly unhelpful when discussing this condition. Be sensitive and compassionate to other suffers.
Great outlook. Fear of pain post activity is real but in all honesty fibro has a mind of its own so you can be in pain whether or not you've been active.
@@af5825 I’m a musician, so while music soothes me, it also “wakes up” a large portion of my brain to hear all the nuances of the music itself, they style and timbre of the instruments being played, etc. Left to listen to music, I’m up all night. Listening to tapes of people talking quietly, meant to relax, works better for me.
Fibromyalgia. Thank you for bringing light to this Fibromyalgia. 1. Rest. Dark. No phones ECT...blue light keeps you awake. 2. Same set time. If you are working different shifts. Oops.I changed to only working day shift. 3.Shawn Stevenson 4.red night light sleepy. 5. Blue awake. Red sleep.
Thank you so much for your video…I feel HEARD and comforted.. I have had Fibromyalgia for 28 years..No joke .. It took 11 years before being diagnosed ..the pain was unbearable , flares, IBS . , Arthritic pain , aches everywhere EVERYWHERE …All kinds of tests , all I wanted was an Honest Answer..I’ve aged since, I’m 71 now ,unfortunately it has followed me over the years ..I use a walker now and try to get around the best I can ..You get so used of the pain , you learn to live with it..There are people worst of than me and I am very conscious of that and tomorrow is another day…Many thanks Bob and Brad for your Video .Much appreciated… 🕊🦋
The doc who diagnosed me prescribed prozac and Vicodin. Big mistake and knew it so I didn't take them. Never went back. I have IBS also. Fibro is awful and it has ruined my life. Thanks guys for the tips. BTW, when you start an antidepressant, you'll put on 50 lbs before you know it.
The antidepressant they put me on took away all of my emotions. A family member could have died and I wouldn't have shed a tear. I literally felt like a robot only making rational decisions. After I finally got off of it and it got out of my system I was horrified. It literally stole my life for a long time.
@@pookiehoney That happened to me too. I had to go through a couple of them to find the right one for me. Cymbalta was the one that actually helped, for me.
@@pookiehoney Was that Lamictol, by any chance? It was a long time ago that I took anything like that. And I'm probably spelling it wrong. But that's how I felt on it. The horror of having no emotions at all. Only I couldn't even feel the horror of it. Just a terrible void. I got off that one as fast as I could. And eventually gave up on antidepressants entirely. If I'm remembering the right drug. One gave me rage and another one took away all emotion. I remember that Lamictol was one that I tried to remember the name of so that I never took it again.
ruclips.net/video/n1Qm5x7Lxgc/видео.html I have watched a few videos by this lady. If she doesn't mention vit B in this one it's important too and will be on another video. This stuff was very relevant to me. I knew part of it and can confirm what she says from my experience and I have followed through on the Vit B part. It has helped me too. As Fybro being a set of symptoms they have ruled out other causes for. I understand it could be a different (unknown) cause from one person to the next. And therefore different things work for different people. The advice this neurologist shares helped me a lot. I truly hope you find an answer that works for you 💗
I've been dealing with full body fibromyalgia and the pain I explain feels like gout throughout your whole body but worst with the nerves. You don't know if it last a day, weeks, months. I wouldn't be able to move or walk.
Yep. When I'm asked where I hurt I say everywhere. It's definitely worse in areas that are otherwise injured. Like my arthritic and twisted spine. But the pain is everywhere.
Have you guys checked crps? Its old name was rsd, allodynia, causalgia. Stanford university video says fidromyalgia is just one form of crps, which can spread everywhere because the nerves in the spine can shortcut and affect also the nerve up and down the spine. Fast opioids and fast tramadol can help, but a lot of crps people get some help from also Noritren and other serotonin meds and gabapentine etc. of course it is always better to treat the body but if you got a nerve trap, its like a continuous irritation until that trapped nerve is being treated properly. Anyway infrared heatlamp can help, tens can help (helped me across the palms and soles 4 leads) But yea I have heard sleeping helps a lot.
This literally was a Godsend, I’ve had fibromyalgia for almost 8 years now and I’ve been so down and depressed and considered suicide because so many people don’t consider it a thing or say it’s because I’m not super skinny. And seeing professionals talk about it like it’s real just I cannot even express how much it means. Thank you😭❤️
Hello Get rid of your Fibromyalgia naturally with dr omo herbal medicine very good and active my Fibromyalgia are gone after 1month of using Dr Omo herbal medicine xx
How many men on here have Fibro? I’ve had it since I’ve been mid 30s. I don’t recall a day without pain. Going gluten free has helped quite a bit, but I still have pains. Hard to cut grass etc without hurting severely the next day.
I now wear a brace for my shoulders (the kind you get for posture but a thicker padded one), a back brace and heavy leather garden gloves when cutting the grass. Makes a big difference because you're not injuring/straining the muscles so much...and I just do it slower than I used to! Worth a try TB.
I've had it as long as I can remember, as I child I didn't say anything. Unable to concentrate in school, sitting it chairs was torture. Had feet surgery which helped the feet pain. 32 now. Meditation and therapy. I found the wim hof method works if your in a really bad way.
Yes sir, been dealing with issues for a long while but now worse in my thirties. I think I've noticed a pattern with diet and am trying a grain free diet again. Pain and sensation issues for me are mostly around my pelvis where I've had dysfunction. Physical therapy and hypnotherapy help me.
Thank you for acknowledging the reality of FM (and essentially CFS/ME which I'm not convinced are actually different medical issues.) Long COVID doesn't seem to be substantially different than these conditions either and it's helping to bring more light to these very challenging issues that many of us quietly live with. It's also clear that they're related to an overstimulated immune response. The big question is whether there is a continued low level viral infection or if the body just can't seem to turn off its immune response. Finally, science is exploring that and hopefully the medical community stops shaming those whose conditions they just don't understand. Let's hope the science catches up soon. If your doctor shames you, find a different doctor. They work for you! I'm also glad that you acknowledge that just practicing good sleep hygiene might not be enough for these conditions. I am concerned though that you mixed regular sleep with the needs regarding these conditions. They prevent organic sleep because the body is constantly stimulated by the immune response and inflammation. Addressing the inflammation seems to help the most and not falling into self judgement about having to take medications to help us sleep because sleep is the most essential element of healing. I've lived with this for 31 years and have thrived thanks to medications, low carb healthy whole foods nutrition, supplements (Co-Q10, NAC, quercetin, B vitamins, magnesium malate and glycinate, zinc, moderate exercise, meditation, breathing, and mild yogic and natural flexibility and strength training including barefoot training. And never giving up on life. I've also found that massage helps a lot. I have never taken an opioid and would never recommend it. And have time outs and don't feel guilty about them. Most importantly, calibrate your life and reduce your stress levels as best you can. Walking in nature is your best friend - even if it's hard at first. Enjoy the stops along the way when you need to take breaks to notice nature. But, learn what you're body will tolerate and don't push it too hard. It will improve over time as you encourage it. Enjoy and celebrate the little wins. Know that it WILL get better. Much love to all of you who are struggling with this. It will change your life, perhaps in some ways for the better. It will force you to live your life with intention. Try to see the gift in it. It amplifies your compassion for those who are ill and focuses your efforts on the things that are truly important. I am now a life coach and I know many life coaches with this condition.
This is definitely me. I struggled with this my entire adult life. (47 in September) I pushed through so I looked healthy and fit. Most people didn't take my pain seriously because I looked fine. I couldn't even get diagnosed and was treated like a hypochondriac. I gave up this past year. I stopped moving. I gained weight and lost strength. It's impossible to hide it now. Now at least I look almost as bad as I feel.
Me too. But think taking Gabapentin doesn't help with weight gain. Also have sleep apnea so super extreme tiredness was a big problem. Don't let anybody tell you you are a hypochondriac! The suffering is real. Delicate hugs my friend x
@@kerryemmett2058 Thank you! It does feel nice to talk to similar people who understand. You're right. Our suffering is real and we shouldn't let people tell us otherwise. I'm actually glad that my hair is going gray now because people finally stopped telling me that I should be able to do what they can. No longer looking fit probably stopped that, too. I didn't realize that gabapentin causes weight gain. I don't have medical coverage and quit going to the dr years ago. I take Mucinex DM, which can help with the pain. And ibuprofen and alieve. But I had considered going again someday and asking for gabapentin. My mum takes it for restless legs, which I also have. Something that works better for pain seems like a nice idea, too. I hear you on the exhaustion, too. As a lifelong insomniac I can definitely relate. Delicate hugs to you, too! 🤗
Gabapentin has been a godsend for me. My pain went from about an 8 everyday for years to about a 2 at most. But, I have also cut out the white foods and boxed stuff...hamburger helper, mac and cheese, etc., anything that has a "seasoning" packet. It should be labeled poison packet.
I think a very important point that wasn’t really emphasized was depression and anxiety. Stress plays a huge role in this condition. It fires up the nervous system and also symptoms. The mind is a powerful thing and can make us sick or well. People don’t get sick over night. It is an accumulation of events and attacks on our body. Environmental, physical, mental and emotional. Dr. Joe Dispenza does an amazing job of explaining how our mind can help us heal. Ultimately this condition is a result of trauma whether it be physical or emotional or both. After 12 years of having fibromyalgia, I really wish I would have spent more time focusing on the emotional…I truly believe I would have made more progress. And yes progress is possible. I believe with all of my being anything can be healed.
Thank you for this wonderful video - I’ve had fibro since I was 16 (had glandular fever and never really recovered). Took 10 years to be diagnosed and another 10 years to start the long journey towards recovery. I still experience daily pain and fatigue but my symptoms have improved greatly. In particular my sleep is vastly improved (thanks amitriptyline and physiotherapy) and flare ups don’t happen as often, aren’t as severe and only last a few days instead of months (or years) like they used to. I hope everyone suffering from this awful illness finds the right combination of medication / therapy / exercise etc for them to recover.
Just got my diagnosis a month ago, and this video almost made me cry 😭 Never felt so validated after being told the pain is just in my head ect....thank you guys! Especially when you said that about hitting a tenderspot on a doorknob or something.....happens way yo frequently (im a clums), and everytime it feels like my joint is going to litterally pop of, it hurts so bad 😥
I was bite by a mosquito around 2010 I got meningitis and I almost died. I was fine no fibromyalgia before this. Once I got over the meningitis I was never the same. Around then is when my fibromyalgia started. I have noticed if I have stress is a huge trigger. I’m 53 and I’m 5 foot tall. I take care of my 34 year old daughter she is a spastic quadriplegic with Cerebral Palsy. She taller than me she like an 8 month old in a woman body.I physically have to wrestle her every day. I’m very muscular. My muscles are unfortunately rock hard and hurt. It like my muscles never relax even when I lay down to attempt to relax my muscles always feel engaged. I have osteoarthritis my knees and fingers and bone to bone. I’m struggling. I try to not complain but I can hardly take the pain. Everyone just assumes I can handle everything put on my plate. Im hanging on by a thread. The only hope I have is in Jesus. My faith keeps me going.
Good tips! My ex (fajter to my child) always complained that I always is in pain). One day he wanted my attention he poked me quite hard in the side. I lost my breath, and tears immediately started running from my eyes. Emberrasing because we were in public, but the First time he really finally grasped that it is not a choice. He used to complain for me going to the gym 5 times a week, but now he understands. I need it. I am not superficial, I just need to ”reset my bodys alarm button”. I go to gym or grouptraining - sometimes I am strong and powerful, other times I am slow and weak - the instructors know that about me and don’t push me. The best feeling in the world is tough spinning - but I need to warm up and also have space to accept and adapt to beeing ”done” for the day afterwords. I cant have a week off training, I have accepted that. The saddest part is that I don’t expect to be able to have a partner. I don’t feel anyone would stand someone who has to adapt their days the way I do. But I have my child that I focus on, and 2 cats. Cats are good because they tolerate not going for a walk a bad day. They Bring laughter when Acting funny/silly, takes my mind off the pain and when I have a flate they know instantly and give cuddles and relaxation. So my life is good, family cats, workout Books, movies and Tea is the loves of my life! ❤️❤️❤️❤️❤️
You sound a lot like me. Only I don't have a kid. And I gave up on working out when I couldn't continue anymore. But I know what you mean about thinking you'll probably not have a partner. I may not again either. It's lonely. But I have no one to justify myself to anymore. No one to criticize me. And you're right about our cats. They love us on the good days and the bad days. And they seem to understand how we're feeling at the time. My kitties go with the flow well and don't seem to mind. PS, when you said how your ex poked you hard to get your attention, I wanted to poke him hard with a screwdriver so he'd know a tiny bit of how it felt. Not that I ever would. But the thought did cross my mind. Hugs.
Fibromyalgia is crushing. Migraines, TMJ, GERD, IBS. Feels like the muscles are trying to rip themselves off the bone. Drugs are all we have. Heartbreaking. Nerves just scream
Yes, and the ppl who overdose make it hard to get it. The people who sell it make it hard to get it. The goody goody two shoes, like my 87 year old mil, who ridicules ANYONE who takes medicines of ANY KIND, calls you a drug addiction, makes it hard to be around her. People think you have to have an arm sliced off, a physical pain they can see, in order to have an illness. You know what? I dint give a shit what people think anymore. When you wake up and you feel like so.ebody beat the crap outta you every night, you finally say, wtf?
You are so right, sleep is difficult with this illness, because if you turn over or even move just a little whilst you are sleeping, the extreme pain will cause you to wake suddenly. It is the pain all over the body that prevents sleep even though you are exhausted and want to sleep. This also applies to exercise, which sometimes feels impossible for the same reason; how do you exercise when joints and even the bones in your feet hurt. Cutting out inflammatory food (milk products) from the diet helps. It is also difficult for others to understand, because you still look ok. Blood flow is another problem because of severe cramps. Thank you both for addressing this.
I have had FM for decades. Luckily I had a sympathetic Dr. I have learned by myself a lot over the years but this put it all together for me once more. Thank you.
To say sleep without medicine is simplicistic; we know that's a key to the disease. Our brains have trouble getting into and maintaining deep sleep and they dont' know why. (Actually, my Dad, a physician, diagnosed me with some fibrositis, the old name, about 1984!) Your PT expertise is helpful in that we have pain but they tell us move and it won't be as bad. Today I couldn't even do a cobra stretch, I was having such a pain/stiffness day. (I don't think you addressed it, but we have a lot of stiffness.) Also stress that we have bad days and we shouldn't force exercise those days. Take our meds, move when we can, and when not, no guilt, rest and get better.
Fantastic video! Unfortunately, I've been suffering with FM for 12 years now. I was treated horribly by many doctors and other people before finally getting diagnosed. A couple drs told me to go see a Psychiatrist bc it was just all in my head. Thank you for the validation.
Re: non-restorative vs restorative sleep, not only is it important to sleep in a dark coolish room, but you need to have natural light when you wake up in the morning. I was living in a dark space with little natural light, and I would wake up literally feeling like I had never been to sleep. Then we moved to a different home, where there were more windows and some natural light would come in at dawn, and my sleep patterns totally normalized and I felt less achy.
In the winter I use a gradually brightening light to help me wake up. Routine is HUGE. Trick your brain like it's your baby, beginning to shut down an hour before you need to be asleep. Mindfully SLOW down! Make a cup of tea with chamomile, valerian, lavender... Focusing on each part of the process, understanding that there is magic here that is going to help you sleep. When you wash your face and hands, do it gently, S L O W L Y. swish your hands through the water, cup your hands and pour it over your arms. Do it by candle light or nightlight. S L O W L Y.
I think one of the avenues that needs to be explored is hyperparathyroidism. High calcium levels can make your muscles contract hard and ache horrifically. I had fibromyalgia(past tense) and once diagnosed with primary hyperparathyroidism, after surgery it has resolved. Fibromyalgia is never a primary diagnosis. That’s according to one of my doctors! Something else is going on in your body. It needs to be found and hopefully fixed.
At first I was diagnosed with Reflex Sympathetic Dystrophy Syndrome. I went through so much traumatic treatment only to years later be diagnosed with FM. Lordy Lordy! Have mercy on me and those who suffer with this crap.
Omg! WHERE is this brilliant dr plz? I totally agree however I have heard of these brilliant Dr's exist, however the out of pocket expense is a killer😔
As soon as I started hearing reports about Covid Long Haulers I thought "oh no--they've got CFIDs/Fibromyalgia/ME like me" It is about so much more than just pain & fatigue.The HPA axis. It involves the endocrine system (thyroid & other hormonal dysfunction), autoimmune dysfunction, gut dysfunction (GERD, IBS, acid reflux & food sensitivies) Mast cell disregulation & proinflammatory cytokines (aka mastocytosis) Sleep disorders. It's been found through testing that people with fibro can't clear lactic acid from their muscles like normal people can after exercise & have higher indicators for systemic inflammation.
@@yensid4294 That's kind of what I thought, too. Now so many more people are going to feel like I do. Mine did get worse after getting COVID. But honestly, I'm used to feeling this way anyway. I do feel for the people who are used to being healthy and now suddenly aren't.
Tears fall as I watch this video. Both my Mom and son died within 2 months of one another last year; I had pain issues for several months, and after losing my sweet family, it really flared. I have daily pain in hips, shoulders, upper back, knees, etc...now diagnosed. Struggling with fatigue and little sleep. I press on...Thank you for this video.
I have been so ashamed to talk about my fibromyalgia symptoms now that I've listened to you there are a couple of things that I don't do however watching your podcast I'm going to talk to my doctor thank you and I'll keep watching
Chris, I about lost it when you demonstrated white noise. It was useful, but priceless! Thank you for that. Brad, I finally decided to check out tictok because of you guys. Tictok, like twittter, is just irritating. I like full versions of Bob and Brad (and Chris, and the others). Plus, yesterday I found myself on the floor (without falling) and actually managed to get up again in a minute... that is totally thanks to years of Bob and Brad-ing! Thanks for all you offer everyday.
I feel so validated 😔 my chiropractor just started doing vagal nerve stimulation and it has been game changing for me! I have TONS of bad days still…but she helped out of an awful flare that lasted for almost 3 months. I have finally started exercising again. She also urged me to clean up my diet. My next step is starting to take sulfur crystals daily.
I am also suffering flare up pains..so much fatigue and sprains. No one believe ,understand or empathy. The doctors hardly know about it various ,endless difficulties. Thank you so much for the effort,
Any day Bob is off is a good day. But seriously, I have fibromyalgia and my recovery from exercise takes days & days. I do find that adhering to a Keto or Carnivore Diet helps immensely. Especially avoiding inflammatory dairy products and seed oils. Try to stick to coconut oil, olive oil, butter, or lard. I’ve lost 150lbs on Keto - from 321lbs to 170lbs in 2.5 years. I’ve also found steam sauna sessions very helpful to get rid of lactic acidosis buildup post-exercise.
Fibro and MS sufferer here. Good sleep is almost unobtainable even with drugs. I sleep a few hours at a time. The next week I sleep 14 hours at a time. It's like trying to find your way through a house of horror. You never know what you will find around the next corner. I take Gabapentin, Baclofen, Cymbalta, Delta 8 marijuana, Kratom
@@sleepinglioness5754 same here I totally sympathise. 💗 I have watched a few of her videos. I can't remember if she talks about Vitamin B here. If not that's important too. She found that people being treated with vitamin D then became vitamin B deficient.( Happened to me just like she says. ) And that a couple of the B vitamins are important in sleep too. It's worth seeing too. Another important key I found was that if your sunbathing to make vit D it uses up magnesium. Magnesium also helps with relaxation and sleep.
@@deborahbeattie9103 This is the B video. Interesting about D + affect on B and your comment on magnesium. I've always had problems with all 3! Every doctor should listen to her/this videos/talks. Maybe they wouldn't be so quick to be prescribing anti-depressants and antibiotics for everything they don't understand. Excellent video! Thanks again Deborah.
So glad I came across this, because I still have issues with FM and CFS. Too bad it wasn't sooner. However, here is my story, if you don't mind. It might help someone else. My fibromyalgia (FM) diagnosis came in 1998. All my joints would swell up. I had several sized clothes to wear. I didn’t know what size shoes I would be able to wear each day. When I first put my feet on the floor in the morning, my feet felt like I was walking on small pebbles. My bed kept getting harder and I would keep putting soft toppers on it. My body felt like my finger was always in a light socket. Headaches, nausea, shooting pain were a constant threat. Now, a few months before the start of all my symptoms, I had suffered a severe case of flu where my temperature had reach 103º for about two to three days. I ended up in the ER and received three bags of fluid within 45 minutes. That was in the spring. That summer, I went for a 15 to 20 minute walk and when I got back to work, couldn’t stand up. I, again, ended up in the ER and received two bags of fluid. It was shortly after that when the problems started. By the next year, I had the diagnosis of FM and within three years, a diagnosis of Chronic Fatigue Syndrome (CFS). The initial doctor I happen to get seemed to be about finding the cause of my complaints. I went through all kinds of tests over the next month. He did not dismiss me, otherwise, I would probably be bed ridden by now. Since then it has been a struggle, but the saving grace was a diet change and knowing my limits. I became a vegetarian/vegan/raw foods’ person for over five years. However, I gained more weight, my cholesterol increased, the blood sugar problem I already had increased, the arthritis pain increased, blood pressure was beginning to be a problem, and the severity of my FM and CFS increased. So, I gave up trying a diet claimed by authorities as the IT diet and went back to my favorite food ... meat. I lost weight, cholesterol came down, blood sugar problem went away, arthritis slowed, blood pressure normal, my osteoblasts improved, and my FM and CFS calmed down. My sleep is still an issue, but I’m working on it. I’ve also found that the right massage therapist is essential. I also realized that for me, I had to give up all forms of sugar, starchy vegetables, and all grains. I still adjust my diet when necessary, but it is still mainly the carnivore way of eating. Oh, and I rarely get sick now.
I have stage 4 fibromyalgia and I wouldn’t wish it on my worst enemy. I am disabled at this point and can’t even swallow food or sleep laying down. I never got proper treatment because doctors didn’t believe it. We now know that my primary conditions are autoimmune diseases: Scleroderma and Schogrens and secondary is fibromyalgia. My new rheumatologist says that people with fibromyalgia almost always have a more serious underlying disease. Thank you for doing this video. This is so helpful for people.
When I had it, I could barely walk to the mailbox the day after I went shopping. I told my Dr. and pharmacist that I was in pain. I thought it might be the Statins. They both ignored my complaints and actually UPPED my dosage. I was on "L" for 15 years. After being poisoned that long, I got off it myself and felt better in 2 weeks. Diet helps a lot - processed foods, especially wheat and sugar bring back some symptoms, but no where near as bad. No accident that F showed up at the same time statins did.
Statins cause muscle pains quite often. Anyone taking statins,and developes muscle pain,must get CPK done----- CPK is high if there is muscle damage---- Statins must be stopped. Statin-induced muscle pain is not Fibromyalgia---- it is toxic side effect of statins---rhabdomyolysis, meaning muscle damage.
I feel like somebody invisible stabs me suddenly throughout my body! Or it feels like someone is punching you really hard everywhere! No exaggeration here! Makes me Yelp. It’s a daily fight against pain everyday! Sometimes can’t walk for a few days at a time. Big limp etc. Cuz the pain is horrendous! Deep breath now. 😍😘
Talk to your doctor about Cymbalta take about 4 hrs before you want to go to bed in 3 days you will be amazed. Whoever put this medication together truly understood what fibromyalgia is. Frankly, believe God gave them wisdom. Gloria, may God heal you comfort you, give you peace and ease your pain. I truly understand how you feel, there is hope please try to stay stress free.
I get those, too! The sudden stabs! I live with kitties and no humans, but when I suddenly cringe and call out in pain I imagine what a person would say. They would ask what happened and I would say that I have no idea - that it just happens sometimes. I get the constant pain and big limps, too. I can barely walk at all this week and can't at all without limping. At least I don't look "normal" anymore.
My friend has fibromyalgia and it has been bad recently. We just started doing an evening aquafit class and she said that her pain disappears in the pool and she is also sleeping a bit better now.
Same here! Medically retired veteran with a life of both physical and emotionally traumatic events one after another. Before and after my military service. Whenever I go to the pool or went to Destin, Fl over the summer, I feel like a new person. Its astonishing. I cannot make sense of it.
@@dvsupreme6883 It really a strange one, I don't understand it at all. I'm sorry to hear that you have had such a difficult life. I hope you keep going to the pool for a happy life. 😊
I have fibromyalgia and I told my husband I always feel like my skin is on fire when I have a flare up. He took a picture of my back with his thermal camera that he used at work, (he’s electrical mechanical engineer) wanted to see if any hot spots showed up on me and sure enough on the right side of my back and at my sacrum all showed up red on the picture, but only on the spots where I was hurting, not the whole back. So I thought that was pretty interesting, whether it’s nerve or muscle it was giving off heat and to me thats inflammation.
When I have a flare I say my skin feels scalded kinda like when you have a fever or the flu. And yes the heat is an inflammatory response! I had open heart surgery when I was 14 and have had fibro since. I have told my family for yrs that I thought it had to do with surgery or anesthesia because I was fine before. I’m 53 now and just got a diagnosis about 5 yrs ago. No one takes me serious including Drs. Thx for sharing about the heat gun. Interesting
I had a significant neck and back injury in July of 2015. I was in pain for 6 straight months and got around 15 epidurals, then had first fibromyalgia flare in January 2016. I stayed inside my condo in pain until June when I mustered up the courage and made a commitment to put my swimsuit on and go sit on the steps of the pool for 15 mins. Just sit there, and, at the very least, increase my Vitamin D level. After those 15 mins, I got all the way in the pool and gently moved my arms and legs around. Within a week, I had made it up to an hour and had gone from just moving my arms and legs to walking slowly from side to side of the pool. The pain and fatigue calmed down, I re-built muscle that I had lost and lost weight, I slept better, and the vitamin D helped my depression and anxiety. If I don't get in the pool or walk now, all my symptoms come right back.. GETTING IN THE POOL WAS A GODSEND TO ME! Don't tell yourself that you cannot exercise because exercise and movement is the most important thing you can do to eliminate the symptoms.
I was told first it all in my head,then I got oh you have fibromyalgia, in the 80s , 2016 now being told I have M?S? good grief .. all I know I feel like crap every day
Don't forget about GABA (NOT gabapentin, and 5-HTP). Sleep is elusive. For years doktors told me not to exercise!! To stay in bed! This hurt me so much. I was getting stiffer and stiffer. I still haven't found that "even medium" - if I don't do enough I hurt more, if I do too much I hurt more. Don't be hard on yourself, just keep trying.
Excellent! Thank you ! I went to a PT clinic and there was not any understanding of Fibromyalgia . It was so disappointing and discouraging as I need appropriate treatment to build strength. Keep up the good work! WHERE are YOU?
I was bedridden with fibromyalgia some years ago. I suspect it's a cluster of conditions with similar symptoms as people have such diverse experiences. Now I'm never pain free, but can do quite a lot. I have to pace myself learning that in practice is so hard as. In fibro you don't feel bad as straight away. It could be a couple of days before you feel the consequences. Keeping a diary is crucial to understanding your own condition and limits. I was not happy about pain school but when I discovered the tutor had fibro, herself, I learned so much it changed my life.
Inflammation of the joints caused from eating a poor diet like white stuff, wheat products, sugar etc. I went on a gluten free diet also cutting out lactose and soy products. Amazing how much better l feel. Don't Yelp out in pain like l used to.....take D3, zinc, B's, collagen, magnesium and lysine. We have to be our own health advocate. Too many quacks out there who want to write prescriptions. Protect yourself.
@@straightupkuaaina2922 I use the topical spray made by NOW. It doesn't smell (some are foul) and by spraying it on your skin, you bypass the gut. It can still possibly upset the gut but it's better than ingesting magnesium if your GI is sensitive. NOW also makes an excellent D3 liquid. One drop equals 1000 IUs so you save money.
Hello! 👏 Every person who has said they've been able to fix it or make it better always talks about eating healthier, fixing gut health and vitamin and mineral deficiencies. Every one of them. It makes me think we're all suffering from diseases that arise from severe deficiencies. Look up some of them and what happens and it literally seems like we have the beginnings of these problems. Add in the fact that most food is poisoned and deficient in vitamins and minerals. Then add in being overloaded with poisons and pesticides in our food and our body products. We're slowly dying from lack of nutrition and being poisoned to death.
25 percent or more case are a result of targeting , research targeted individual and how your local law enforcement and communities receive funding , through non consensual human experimentation.
I wonder too but the subject is still taboo in many countries and for many people. It sure can help for sleep, pain, and for feeling hungry, for people with cancer for exemple, but I can't recommend it if people didn't try to exercise and eating better first. (I'm not a specialist of any kind, it's just my personnal view).
@@anyascelticcreationsCbd affected me the same way. I now use Delta 8 products. It is marijuana without the Delta 9 THC that is illegal (Cannabis is still illegal in my state). Only choose Indica strains! Delta 8 is very mild but works way better than CBD, in my case. If you have a local vape shop, they probably have it. Changed my life in many ways. Helped me kick the opiates. Edited to add: If you are new to cannabis, use very small doses at the beginning.
I live where it’s legal. Cannabis helped me stop all of my prescription pain meds. Antidepressants too. I felt so much better to just get that poison out of my system. A small amount goes very far for someone with no tolerance so be very careful dosing in the beginning if you ever try it. Use a hybrid or an indica for bad pain but they will make you tired. Use a sativa for daytime. Do your own research on what strains are good for what. Then if you smoke it take ONE TINY LITTLE BABY PUFF AND STOP. You will instantly regret doing more because you don’t need it and you’ll get too high. Good news is if you do get a bit too high just lie down and chill a while and you’ll come down. If you do edibles which I recommend over smoking for several reasons such as smelling like smoke, coughing and hacking, smoking up the joint, etc. do very little to start. Most people overdose in the beginning and get super high and freak out because they took several times more than they should have. A friend of mine ate 10 milligrams and was super high. I would suggest taking only 2 milligrams to start. They have some gummies that low or you could half a 5 mg. Never more than 5 for sure and I think a newbie would still get really high off of that. I take 10 to 30 at a time depending on how bad I feel etc. but my tolerance is high because I’ve been using it for several years. If used correctly it will be the best pain relief you’ve ever had. No pain killers were ever this good. The first time I used it and got relief to the point where I remembered what it was like to live without constant pain I cried in relief and for how much pain I was in. You don’t realize how much you put up with because you are used to suffering 24/7. One reason why the pharmaceutical companies want it to stay illegal. Everywhere it’s become legal a large amount of people stop their prescription meds.
Living with fibro since 1985 diagnosis. Started the ketogenic lifestyle the end of 2019 and feel much better. Also quit using any nightshade plants, high oxilate veggies and high omega six nuts. Moving easier on this plan I started. Also put. My type 2 diabetes into remission since then.
The treatments that weren't mentioned that have helped me are: massage, heat, a glass of wine, foam rolling, avoiding nightshades, pacing myself and rest.
Have you ever try to exercise when every part of your body hurts? Sometimes you cannot get out bed because of the pain.THERE is no remission for fibromyalgia it an lifetime illnesses some day are better than others.Sometime having good cognitive therapy can help you decide what will be your best treatment options.
I have fibro and when i use the Yeast Free Diet by Doug Kaufman, I feel better and pain levels are around a 2 which is tolerable. Sugar is biggest offender !! Edit: Removing sugar, msg, "natural flavor" and all prepackaged food greatly helped reverse the effects/symtoms of fibro. My doctor had no answers for well over 10 years I suffered. Then I started doing my own research and investgating. It has been about 14 years now and all I can say is DO not take for granted the western medicine diagnosis as God's truth. Please believe that you are able to reverse many many autoimmune issues! I am a gardener and beekeeper as well as go to a day job M-F. There are some days that have higher pain than others but today it's usually due to working to hard or too much. Fibro is reversible depending on how hard you want to be well and fight for your health. knowthecause.com/ Blessings dear ones!
@@cherylmcnutt9905 takes time and persistence, I believe you can do it. It took me almost a year to clean up candida which is main contributor to brain fog, pain and low energy. Choose live food, organic if possible, no prepacked cookies, pasta, breads....crackers, chips etc.
@@notyourblonde Problem is I also have a Traumatic Brain Injury (TBI) - my car was T-boned by a speeding bus years ago. So, combining the pain and having to use a cane to walk with shopping and food preparation are very difficult. I’ve been living on granola bars, Delivery pizza and salad throughout the pandemic. Not that healthy, but I have few alternatives. When I can afford it (which is not often living on Disability), I opt for gluten-free pizza, as I DO feel less pain & bloating, but it’s an extra $4 for a medium pizza, which only lasts for 3 days. It’s hard because before my accident, I was a computer professional. Now, I can barely read a few paragraphs before my head starts to hurt. Thrown in with of all my other injuries are eyes that no longer track when I try to read, so my reading is very slow and comprehension is worse because each eye is sending different text on the page to my brain, making it hard to understand and impossible to retain. Finding brain specialists who will take Medicare, let alone new Medicare patients is almost impossible! It’s taken me more than 18 months to find a doctor to treat me for depression (can’t wait for August!). The world is created for healthy people. Those with multiple health issues are left to fend for themselves, and if you add brain injury to that, you are screwed every which way you turn! I’m sorry for venting. It’s been a tough week. I can no longer afford to stay in my house, so I have to sell and downsize to a condo, and I hate condo living, but there’s no other choice. That bus driver rushing home because he was off the clock ruined my life. He came flying over a hill and crashed straight into the passenger side of my car (otherwise I’d be dead, I’m told). Didn’t even bother to put on the breaks, to hide how fast he was going. The County that owns the buses had never turned on the black boxes “as a cost-saving measure,” which was true, because they saved the County 10s-of-thousands of dollars that I have had to spend on care and rehabilitation. And because my brain was so damaged, I didn’t know how to find a lawyer to hold them accountable. Thanks for listening.
@@cherylmcnutt9905 prayers that Almighty God the Father place a person in your path that will help you with the natural healing process. HE in His infinite power and glory made a marvelous human body capable of regeneration.
I see many tauma patients for trauma therapy. Many suffer from autoimmune disorders, all these things you speak of plus others. Things that stimulate the Vagus Nerve seem to help. Thanks for posting this. I am going to share with sone of my therapy clients!!
I have fibromyalgia 35 years ago, I was an prednisone for 5 years, every doctor I see say it was my head until I move and the doctor I see he say you can not continuously taken prednisone, it took 1 year for cutting completely off, I told my husband I will not leave like this . So he went to the doctor I was seeing , he send me to Cleveland Clinic en Ohio , finally the give a name 😢 what a relief someone’s tell me I am not crazy.the took blood a lot.everything I was normal.my best think is until depress medication , I can not be with out it. And after so many years I Lear to manage it. Because the medication for fibromyalgia never works for me .
finally someone really said it...we look normal and healthy but inside we feel miserable.Am suffering from it since i was 7-8 and now am 19...i was just diagnosised 4 month ago with it as my parents didn't believed me and delayed the treatment till i was 17.After that the doctor's thought i had this pain only my imagination where i felt real pain and undergone psychotherapy as i had major depression and PTSD but i was pissed off cz they wasn't help my pain in anyway.Finally i get fortunate that one doctor finaly said i had fibromaylgia and the pain i feel is real.I was always pissed off or more like sad cz they said my pain doesn't exists!
Diagnosed years ago with fm and chronic pain gone after almost 2 years. Still some dull aches at times. Three things helped: stretching type exercise, learning to completely relax body & mind and hot tub with really good jets for massage of back and neck
Hi to you both I'm going through a bad patch with iit at the moment I've really enjoyed your video you know what your talking about Thank you so much ❤
Employ a physical therapist. Start very slowly to develop core muscle strength. And give it a good year . I am fortunate to live in a retirement community and my physical therapist is just down the hall
I appreciate this video. You show a great increase of understanding here over the first one you did. However, you need to lose the FM Workbook. It’s a response that is too simplistic for a complicated condition that we are still learning more about. @9:50 you share how we don’t want to move because it hurts. I’m going to fine tue hat statement from my perspective as a patient of FM. I am reluctant to move, hesitant to move, slow to move. I move slow. This is true because of my FM. However, I have to share emphatically that I want to move. Oh how I would love to package my symptoms in a little box and put it on a shelf. I would then move. I would be running marathons, climbing mountains. I’d be an avid skier. I’d chase pets. I’d would still be working in education. Additionally, I’ve spent years telling people that I want a nap. Until I realized that I don’t want a nap. My body expresses a need for a nap all the time, but I Don’t Want A Nap! I want to be active. I want to move. Pease don’t tell people that I don’t want to move.
Low carb has helped alot. Meat n veg. Prioritise protein. Almost no sugar. No sugary fruits. Walking. Celecoxib. Rest. Hobbies. Work. Friends. Swimming. Aquaerobics. Hot spas. Plan retirement well!
I got very tired of doctors telling me I had a mental disorder. I don't know why anyone could think I would spend my time making up the torture I've been through! It's not as bad as it used to be... it only took 6 years to get a diagnosis. Actually, there is now a definitive test available, but most doctors don't even know about it, and I don't know of any insurance company that pays for it... it's called a functional MRI. The techs who do that will pinch the patient in the operating unit, and watch the activity in the pain center of the brain. Fibromyalgia brains massively over-react, and DON'T LET GO of it properly. Hm. P.S. Fibromyalgia has been reclassified from rheumatology to a NEUROLOGICAL disorder...progress!
There’s nothing more aggravating than doctors who genuinely think it’s all in your head (regardless of what type of pain). Why can’t they just say: * I don’t know what’s wrong *
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I have fibromyalgia. It is nasty. I'm 37 years old and I cannot work, socialise well and enjoy life as a result of severe daily pain, fatigue, mood swings, IBS, tinnitus, dizzy spells, weight issues, etc. Fms isn't just about pain. There are hundreds of symptoms associated with this neurological disability. Doctors don't take it seriously sadly. 😒
Silver Moon try asking your doctors to check your blood for calcium, parathyroid hormone and vitamin D in the same blood draw. Best wishes to you!!
I was lucky enough, in 1990 (when the vast majority of doctors didn't believe it existed), that my doctor DID know it existed, but before diagnosing me, he ran several tests to make sure it wasn't RA or some other painful disease. Once he got the results of the tests, he sent me to a specialist who agreed that I had fibro.
Yep! That's because they don't understand it- Most doctors are ego maniacs. Just work on it naturally. That works better anyway. Doctors only know meds. Meds don't really cute.
Likewise (and I'm 38 yrs old)... I feel a lot of compassion for you Silver Moon. I can't work either, socialize well or enjoy life, exactly like you wrote. I experienced so much gaslighting from local doctors, so I did my own research and after months of trial and error (CBT and EMDR aggravated my symptoms, for example), I can tell you that so far the only therapy that's actually helping me is Somatic Experiencing.
Learning about Autonomic Nervous System (ANS) dysregulation via Polyvagal Theory has changed my life in that regard... Fibromyalgia really seems to be an issue of ANS dysregulation, which also explains why we have so many horrible symptoms... When the ANS can't regulate itself, the whole system falls apart. Somatic Experiencing works really well to reprogram the responses of the ANS (which is "Autonomous", i.e., automatic, it's got nothing to do with willpower) so that "normal" life events no longer trigger survival responses from either the Sympathetic nervous system (fight or flight), or the Dorsal Vagal system (shutdown), or a combination of both (freeze), and when you do get triggered by stressful life situations, your ANS can self-regulate back to Ventral Vagal like a person without Fibromyalgia.
Also, I self-medicate with CBD, it helps with anxiety. It's not enough on its own, but it's a good support while I go through my therapeutic journey.
Sending a lot of love and compassion to you and everyone with FM.
@@kayeszymanski6945 u cant see it in blood
It’s the same for Traumatic Brain Injury (TBI) survivors. Because others can’t SEE the problems we experience, they don’t believe we have issues. As if life isn’t hard enough trying to function while having a brain injury, people dismissing our pain, brain fog, etc. makes it SO MUCH harder!
My Fibro came from a TBI.
Fatigue is one of my biggest symptoms, along with thinking, I don't process things as fast. I have over 20 symptoms so you can guarantee a few are visiting daily.
Best wishes and do hope you find some healing. X
I have had fibromyalgia for over 20 years this pain is no joke. I'm in the middle of a flare right now. I am in so much pain I'm glad I came across this video.
I'm right there with you. Crying as I write. Hugs.
I have fibromyalgia also since 2004. Going to physical therapy right now for frozen shoulder, tennis elbow and plantar fasciitis. I really feel fibro could be the cause for these problems. What a painful mess. Does anyone else here think that maybe this fibromyalgia is a blood flow circulation problem of some sort? Sometimes when I have to get my blood drawn, the blood doesn't come out. I wanted to say for my tennis elbow I've been using something called a flex bar, starting out with the red one, least tension... you twist it with your good arm while holding the other end with your bad arm, straighten your arms out in front of you and untwist the bar slowly with your bad arm. Kind of hard to explain how you do it but it has been very helpful, much more helpful than doing stretches. Doing stretches for my shoulder to get my range of motion back. Frozen shoulder and tennis elbow on the same arm.
@@Blueskys1972 I'm the opposite when my blood is drawn or I get a shot. I don't stop bleeding for a while. Yet my legs are blue. Though the blue didn't start until I got COVID. And I was sick long before that.
Since many of us feel better as long as we stay active, it could be circulation related. I also felt MUCH better when I used to use a jacuzzi at a gym.
Sadly, remaining active all the time isn't sustainable. Especially since we're already exhausted and don't recover well. I finally gave up on moving. I couldn't keep it up. And now I barely can anymore. 😢
@@anyascelticcreations I didn’t know how awful this condition is. I’m sorry you are in such pain and I hope this video helps you in some way. Many prayers and good thoughts for you and all who suffer from this❤️
What do you do for the pain?
"Some of our astute followers have noticed me slurring my words. I am not drunk but working with Brad it would be justifiable. I had 6 infected cysts removed from my mouth (noncancerous) and I have residual scar tissue and numbness. I will try to do better. Thanks Bob."
Oh my, sorry to hear that, prayers for you 🙏
You look well...but God will fix that.
Wishing you well
Wishing you a speedy recovery.
Love you guys! 😍
Glad you made this video. A lot of PT’s and even doctors think fibromyalgia is a joke. Thank you for bringing awareness to the condition!
Any such people should get it themselves. It can be truly misery. And so many kill themselves over it as the pain becomes too much. Doctors can be the biggest ego maniac idiots ever- and don't like to diagnose what they can't explain.
Happy to help!
Thank you
Fibromyalgia makes you CRAZY!
Yes, thank you!
As a nurse practitioner student I can tell you that these guys hit all the key points! Lifestyle modifications are so important and people tend to be most successful at making these changes when they “habit stack” meaning you change one thing first and once that is established you add a new habit. Sleep, diet, and exercise are key. Medications, cognitive behavioral therapy, and physical therapy round out the treatment options. Awesome presentation! This has helped me think more about how I will approach my fibromyalgia patients as a new nurse practitioner.
@DAVID&MARY there’s no known cure, but lifestyle changes can help a lot. You need to minimize anything causing inflammation in your body. Have you seen a rheumatologist?
No, no cure but can go into remission for months or years..
I had a great day, exercise, felt strong. Next day my muscles were so sore I hardly got out of my chair. Today - no pain at all! So yes, my muscles were probably sore, but that overwhelming pain was fibromyalgia, the amplification of what was happening.
Learning to live with the uncertainty is important.
It was so nice to hear Chris talk about the pain levels. I live in southern Wv and have been to Dr after Dr. No one understands. My daughter poked me with her finger and couldn't understand why I yelled. To me it felt like a knife stab.
Tell her you are hypersensitive to please try and understand.
My mom is the same , I understood it better as I got older . She was and is always in pain.
I'm that way, too. I love the comfort of my kitties laying on me. But if they step in just the right spots it sends me through the roof.
Yes! My husband didn't understand until recently that it hurt when he grabbed knee. Most people it tickles, but it really hurt me, and he wasn't even doing it hard.
Yeah it affects the nerves and nerve pain is just awful. You honestly don't know if you actually broke a bone- or it's just nerves.
I was first diagnosed with fibromyalgia before it had an official name. Back then, in 1990 the rheumatologist called it muscle rheumatism. I was in my very early 20's. It sort of went away after a year or two, but came back with a vengeance when I hit my 40's when I was officially diagnosed with fibromyalgia. Now, a decade later, I have fine tuned my meds with the help of my GP and rheumatologist. I still have pain but it's not debilitating, and don't have flares as often as I used to. Dietary changes hadn't make a difference for me at all, not even cutting out sugar or gluten. What really made a difference for me is listening to my body. To eat when I am hungry and to rest when I am tired. I cut down all unnecessary activities, and learned to say no when I am not up to something. I do yoga daily, but I adjust my practice to my ability at the moment. Accepting my limitations and understanding that I am not this syndrome were the most valuable lessons I have learned.
I cut out everything bad from my diet, too. Just like everyone says. No gluten, sugar, soy, msg, you name it. If it was toxic, I didn't eat it. I worked out, too. And I still felt awful. I looked great. But I felt awful. So I gave up on everything. Now I look about how I feel and can barely move. Unfortunately, I have no medical support. I'm on my own.
@@anyascelticcreations , I am sorry you are having such a hard time.
@@santievandermerwe Thank you. You did give really good advice, though. I tend to not eat until my blood sugar is crashing. And I used to push myself way too hard. Maybe I should listen to my body more. But I'm glad that you have found ways to feel a bit better. Thank you for the kind words. Hugs.
what med have you found to be the most helpful?
I was finally diagnosed with fibromyalgia in spring of 2021. I started taking Cymbalta. Within 2 months pain, brain fog, memory problem, and constantly feeling of needing to pee were mostly gone.
I moved from PNW, Seattle, Washington to Mexico City. Away from a lot of stress and memories of domestic abuse.
My pain was always bad with cold weather. Felt like I had ice under my skin in left shoulder, wrist and ankle. Would make me cry. And unable to focus or think.
Last fall I went off Cymbalta because it was causing side affects. Feeling of vibrating in legs, sometimes abdomen.
I have only had a couple of bad days when I over did it and ate wheat ( gluten).
Maybe the warmer weather has helped.
Usually 70 to 85 all year round.
Now I feel normal which is extra special after years of feeling horrible.
I found this video when looking for a way to get rid of a big knot. Y’all made me cry. Thank you for acknowledging this horrible condition and make it so others can understand.
Thank you for posting this video. I suffer with fibromyalgia and the pain is unreal from head to toe from waking up to going to bed.
have you tried serrapeptase yet? it helped me
I got fibromyalgia after a toxic chemical exposure. It still amazes me that so many healthcare providers think if the patient is a woman it's all in her head or she is exaggerating but that same doctor will take a man with fibromyalgia seriously. 😾Time after time in support groups we hear about the differences in the time given and the treatments given by docs for their men vs women patients. Thank you for this video, it is *so* helpful and so very *needed*. BTW, support groups are not only a good place to share this video, you will help others, get help and make friends there. 💟
I suppose it depends. When I was first diagnosed with fibromyalgia I didn't understand really what it was still (yes even after years of tests for other auto immune conditions). I was in so much pain I went to the hospital, hoping to get some kind of relief from a really bad flare. I had a female doctor come into the room and she yelled at me that everything was all in my head and that I was wasting her time and I'm a hypochondriac and she slammed the door and walked out of the room. Mind you I was still very freshly diagnosed, I didn't even know yet if fibromyalgia was even dangerous, I was just desperate for help and information. Because of that woman, I will never go to a hospital ever again in pain.
Finally someone who understands us. I have RA and Fibromyalgia 😓 I used to be very active, and it is frustrating feeling in pain every single day. Sometimes I can't even comb my hair.
I understand. I have fibromyalgia, RA, Sjogren's, and Lupus. I don't know what it is that is causing my pain. Oh I have neuropathy also.
Thank you for your respectful way of shedding light on the devastating/debilitating suffering of so many . . .
The empathy of this video is amazing. I thank you!
I have a friend who has fibromyalgia, I didn't trully understand what it was when she explained it to me but now I do, so thank you for the explanation. I'm going to show her this video and your channel too.
I've had it since 1990 (dx in 1994) after an auto accident, and no matter what, I couldn't explain it to my husband. I think he thought I was making it up. I came across a really good article online about it and sent it to him. Now, he gets it. Your friend is lucky to have you.
It can be like having the flu..plus being in a car wreck and being covered in electric razor wire...plus much more- And a head cold. It's not fun.
@@lalaland962 Mine was caused from the whiplash from a semi truck hitting me in my car.
😟 HAVING LUPUS and FIBROMYALGIA it's a VERY miserable/bitter/depressing/anxious LIFE...THANK-YOU FOR UNDERSTANDING and ADDRESSING IT DOCTORS...AMEN!!! 🙏😔🙏
I’m 33 years old I was diagnosed 8 years ago with lupus and now with fibro about 2 years ago. It sucks.
@@marirod8167 🙏😢🙏
@@marirod8167 🙏 GOD BLESS YOU BEAUTIFUL!!! 🙏🌹💪👑🙏 STAY STRONG Ms. Mari. PRAYER has helped me so much!!! 🙏☺🙏
ruclips.net/video/n1Qm5x7Lxgc/видео.html
Dr Stash Gormack has helped me. I flagged it up here because she talks in one of her videos about additional complications and lupus was one of them. The vitamin B content she talks about is an important follow up on what she has to say about Vitamin D.
Her content is relevant to insomnia, fybro, IBS/digestive issues and she mentions Lupus too. Among many other things. It's long and detailed but I pulled out the bits I needed and had someone help me
#MeToo
So greatful for your recording.
When my body is burning it feels like someone threw a bucket of acid over me or like someone putting a hot iron on me and burning me. Incredibly painful.
Excellent, respectful tone to this conversation. Nailed it! Truly an essential element when listening to something about FM and trying to gain more strategies for managing these health challenges. Much appreciated. Good info too.
I was diagnosed with fibromyalgia just over a year ago now & wanted to thank you for making this video and being so inclusive and understanding of the condition. I tried Cymbalta for about 5 months after getting diagnosed and it was horrible. I don’t remember months of my life. It’s insane. So I do agree, medication can do wonders with fibro, but can also do much harm. Make sure you find a provider you trust when making choices on medication. I was just thrown Cymbalta and was given no other real guidance. So I just want to say I truly appreciate this video and how much of an emphasis you put on lifestyle changes, rather than just medicine.
For those of you looking for his name in the links (I couldn’t find it), it’s Adriaan Louw - that’s the correct spelling.
Thank you!
Thankyou!
Great job guys! I was diagnosed with fibromyalgia in '96. Very little was known. An arthritis Dr recommend I get some books out at the time on the subject. What I learned: 1. Sleep ( get the TV and radio out of the bedroom.) And check your problems at the bd door. Only stress when you are in a certain spot at home and no where else. It takes practice! 2. Reduce stress from work, toxic relationships and family as much as possible. Boy did I clean house on those toxic ppl😆. I use melatonin to help me sleep. 3 exercise. I use biofeedback exercises and walking. Good luck everyone, I feel your pain ❣️
I'll advice you recommended Dr Obinyan on RUclips, he cured my wife from fibromyalgia with his herbal supplement, my wife can now sleep peaceful with no more pains....
Hahaha I hear u on cleaning out toxic people! Vital for stress reduction.
Cheers
I like frequencies or listening to sleep stories on RUclips. Love Shawn Stevenson.
It is so refreshing to see Docs talk so openly about FM, its challenges and the reality of it. Thank you for this amazing video!
Once it flares up, it lasts for months. Every single second of my life..I am in pain. I understood that my diet and emotions cause it. I am also vitamin deficient. Yogurt, fresh fruits, lots of vegetables. I don't take any medication. Thanks for talking about it. Atleast some one recognises it. 🙏
Yes it does! Me too
Fibromyalgia is not caused by your emotions or your diet. Please read into medical literature. Diet can make it worse by eating lots of sugar, too many carbs, etc…. Good Luck
@@stephaniekeller4449 exactly!
I had the worse flare up immediately after getting Pfizer shots. You are people don't understand.
@@stephaniekeller4449 My start after we were hit my a school bus in 1977.
I was diagnosed by 3 doctors in 2004. I have a huge flare up after Pfizer shot and reacted to other medication since the accident. Never have I been in since the Pfizer shots. Those with this painful and debilitating disease need to be very careful with new medication.
Yes I've been suffering with fibromyalgia for 10 years my bones and muscles ache all the time. Hard to sleep restless 😬 memory loss, I'm 60 year old always in pain. Yes I 😢 alot. Hands hurt 🤕🤕🤣 people don't understand it . Yes I have osteoporosis, rheumatoid arthritis inflammation of arthritis deteriorating phones in my hands in between my fingers. And when you look at me I look like nothing wrong but my pain level 15 all the time. Thank you for making this video 📸 maybe people will understand more, when I say I hurt until you walk in my shoes 👟👟.
Ask doctor about 30 mg of Cymbalta it will change your life. I fully understand just touching this tablet to type hurts me. Classical music helps too violin and light piano
Linette fibromyalgia originates in the central nervous system and tells your muscles they hurt sometimes it does feel like your bones hurt, stiffness. Try taking a hot shower soaking in a tub, or a whirlpool. It will help you relax and loosen your muscles. You are not crazy. Its real but you will get better please try to lower your stress level, and don't worry if they believe you they just don't understand. It took my mother many years she would take my hand and I would say mom that hurts she never understood until she watched a tv program she said Anna fibromyalgia is real, I am sorry I didn't know.
Left you a few comments
@@af5825 thank you so much
Very spot on. I've suffered with fibro for quite a few yrs and learming to be in tune with your body and what it's telling you is essential. I often tell people fibro feels like you're coming down with the flu and that feeling might be better some days, but it never entirely goes away. In this fibro journey, I had to realize that narcotics were gonna kill me and I also had to learn that I needed to do physical things on my own terms. I would often get asked from people, "Why you going hiking, you know you'll hurt terribly tomorrow." I would answer, "Because, I'm gonna live today and if I hurt tomorrow then I'll deal with it then. Today I'm doing what makes me happy." I wasn't going to let fibro make me feel like I was just waiting to die anymore. I wasn't 90 yrs old and I was no longer gonna act like it. One day at a time! Thanks for this, it's great info.
Fybro can be a lot worse than that. Extremely worse. The people I know who have it a lot worse have a nightmare being understood. Very little contact with others, very limited communication. And many thinking they already know because they know someone who has it not so bad. Those who have it not so bad please do those who suffer worse a favour and highlight this 😊
@@deborahbeattie9103 Oh l agree. When l hear people describing going out to walk a trail or still working their job l am genuinely bemused.
Honestly l think too myself, they haven't got fibro!!! They would struggle to get ready and into the car to even make the journey to the trail if they had!! Then l remind myself that not everyone suffers to the same degree. I would hate to minimize their pain even though it is obviously not equal to mine and many other hundreds and thousands of pain warriors on the planet. Over generalizations are incredibly unhelpful when discussing this condition. Be sensitive and compassionate to other suffers.
Great outlook. Fear of pain post activity is real but in all honesty fibro has a mind of its own so you can be in pain whether or not you've been active.
Sleep is hard when you’re in pain… 😩
Try classical music particularly a violin or piano not the music videos that use synthesizers pure instruments is very helpful
Try California Poppy extract. Don't give up. Pray.
@@af5825 I have a ceiling fan that helps with the “white noise” and cooler setting in the bedroom when trying to sleep.
That’s the truth!
@@af5825 I’m a musician, so while music soothes me, it also “wakes up” a large portion of my brain to hear all the nuances of the music itself, they style and timbre of the instruments being played, etc. Left to listen to music, I’m up all night. Listening to tapes of people talking quietly, meant to relax, works better for me.
Fibromyalgia. Thank you for bringing light to this Fibromyalgia.
1. Rest. Dark. No phones ECT...blue light keeps you awake.
2. Same set time. If you are working different shifts. Oops.I changed to only working day shift.
3.Shawn Stevenson
4.red night light sleepy.
5. Blue awake. Red sleep.
Thank you so much for your video…I feel HEARD and comforted.. I have had Fibromyalgia for 28 years..No joke .. It took 11 years before being diagnosed ..the pain was unbearable , flares, IBS . , Arthritic pain , aches everywhere EVERYWHERE …All kinds of tests , all I wanted was an Honest Answer..I’ve aged since, I’m 71 now ,unfortunately it has followed me over the years ..I use a walker now and try to get around the best I can ..You get so used of the pain , you learn to live with it..There are people worst of than me and I am very conscious of that and tomorrow is another day…Many thanks Bob and Brad for your Video .Much appreciated… 🕊🦋
The doc who diagnosed me prescribed prozac and Vicodin. Big mistake and knew it so I didn't take them. Never went back. I have IBS also. Fibro is awful and it has ruined my life. Thanks guys for the tips. BTW, when you start an antidepressant, you'll put on 50 lbs before you know it.
The antidepressant they put me on took away all of my emotions. A family member could have died and I wouldn't have shed a tear. I literally felt like a robot only making rational decisions. After I finally got off of it and it got out of my system I was horrified. It literally stole my life for a long time.
@@pookiehoney That happened to me too. I had to go through a couple of them to find the right one for me. Cymbalta was the one that actually helped, for me.
@@pookiehoney Was that Lamictol, by any chance? It was a long time ago that I took anything like that. And I'm probably spelling it wrong. But that's how I felt on it. The horror of having no emotions at all. Only I couldn't even feel the horror of it. Just a terrible void. I got off that one as fast as I could. And eventually gave up on antidepressants entirely.
If I'm remembering the right drug. One gave me rage and another one took away all emotion. I remember that Lamictol was one that I tried to remember the name of so that I never took it again.
I take Prozac. It does numb the emotions but I can still feel happy or sad. I’ve also lost 18lbs. It’s not the same for everyone.
ruclips.net/video/n1Qm5x7Lxgc/видео.html
I have watched a few videos by this lady. If she doesn't mention vit B in this one it's important too and will be on another video. This stuff was very relevant to me. I knew part of it and can confirm what she says from my experience and I have followed through on the Vit B part. It has helped me too.
As Fybro being a set of symptoms they have ruled out other causes for. I understand it could be a different (unknown) cause from one person to the next. And therefore different things work for different people. The advice this neurologist shares helped me a lot.
I truly hope you find an answer that works for you 💗
Thank you. May God bless Bob; we miss him, and thanks to the guy who is filling in.
I've been dealing with full body fibromyalgia and the pain I explain feels like gout throughout your whole body but worst with the nerves. You don't know if it last a day, weeks, months. I wouldn't be able to move or walk.
Yep. When I'm asked where I hurt I say everywhere. It's definitely worse in areas that are otherwise injured. Like my arthritic and twisted spine. But the pain is everywhere.
Or talk!
Have you guys checked crps? Its old name was rsd, allodynia, causalgia. Stanford university video says fidromyalgia is just one form of crps, which can spread everywhere because the nerves in the spine can shortcut and affect also the nerve up and down the spine.
Fast opioids and fast tramadol can help, but a lot of crps people get some help from also Noritren and other serotonin meds and gabapentine etc.
of course it is always better to treat the body but if you got a nerve trap, its like a continuous irritation until that trapped nerve is being treated properly.
Anyway infrared heatlamp can help, tens can help (helped me across the palms and soles 4 leads)
But yea I have heard sleeping helps a lot.
@@anyascelticcreations I listened that fasting helps arthritis. It increases stemcells after a few days.
@@lll9409 I've heard good things about occasionally fasting, too. But I'm diabetic, so I can't. Thank you for the suggestion, though. 🤗
Thank you! I have RA and Fibromyalgia. I've been through some very rough days.
This literally was a Godsend, I’ve had fibromyalgia for almost 8 years now and I’ve been so down and depressed and considered suicide because so many people don’t consider it a thing or say it’s because I’m not super skinny. And seeing professionals talk about it like it’s real just I cannot even express how much it means. Thank you😭❤️
Hello Get rid of your Fibromyalgia naturally with dr omo herbal medicine very good and active my Fibromyalgia are gone after 1month of using Dr Omo herbal medicine xx
Xhis RUclips channel youtube.com ruclips.net/channel/UCZJJR-LpB1SVD09hQkt1-GA
Use dr Omo herbs 🌿 his RUclips channel youtube.com ruclips.net/channel/UCZJJR-LpB1SVD09hQkt1-GA
I went true all that I can not be out the Prozac 40 mg and Wellbutrin 300 mg , I try to stop many time but it not work for me . Good luck.
How many men on here have Fibro? I’ve had it since I’ve been mid 30s. I don’t recall a day without pain. Going gluten free has helped quite a bit, but I still have pains. Hard to cut grass etc without hurting severely the next day.
I now wear a brace for my shoulders (the kind you get for posture but a thicker padded one), a back brace and heavy leather garden gloves when cutting the grass. Makes a big difference because you're not injuring/straining the muscles so much...and I just do it slower than I used to! Worth a try TB.
Men are very low in this case. I'm also the one with fibromyalgia from past 4 years now I'm 19
I've had it as long as I can remember, as I child I didn't say anything. Unable to concentrate in school, sitting it chairs was torture. Had feet surgery which helped the feet pain. 32 now. Meditation and therapy. I found the wim hof method works if your in a really bad way.
Yes sir, been dealing with issues for a long while but now worse in my thirties. I think I've noticed a pattern with diet and am trying a grain free diet again. Pain and sensation issues for me are mostly around my pelvis where I've had dysfunction. Physical therapy and hypnotherapy help me.
Thank you for acknowledging the reality of FM (and essentially CFS/ME which I'm not convinced are actually different medical issues.) Long COVID doesn't seem to be substantially different than these conditions either and it's helping to bring more light to these very challenging issues that many of us quietly live with. It's also clear that they're related to an overstimulated immune response. The big question is whether there is a continued low level viral infection or if the body just can't seem to turn off its immune response. Finally, science is exploring that and hopefully the medical community stops shaming those whose conditions they just don't understand. Let's hope the science catches up soon. If your doctor shames you, find a different doctor. They work for you!
I'm also glad that you acknowledge that just practicing good sleep hygiene might not be enough for these conditions. I am concerned though that you mixed regular sleep with the needs regarding these conditions. They prevent organic sleep because the body is constantly stimulated by the immune response and inflammation. Addressing the inflammation seems to help the most and not falling into self judgement about having to take medications to help us sleep because sleep is the most essential element of healing.
I've lived with this for 31 years and have thrived thanks to medications, low carb healthy whole foods nutrition, supplements (Co-Q10, NAC, quercetin, B vitamins, magnesium malate and glycinate, zinc, moderate exercise, meditation, breathing, and mild yogic and natural flexibility and strength training including barefoot training. And never giving up on life. I've also found that massage helps a lot. I have never taken an opioid and would never recommend it. And have time outs and don't feel guilty about them. Most importantly, calibrate your life and reduce your stress levels as best you can.
Walking in nature is your best friend - even if it's hard at first. Enjoy the stops along the way when you need to take breaks to notice nature. But, learn what you're body will tolerate and don't push it too hard. It will improve over time as you encourage it. Enjoy and celebrate the little wins. Know that it WILL get better.
Much love to all of you who are struggling with this. It will change your life, perhaps in some ways for the better. It will force you to live your life with intention. Try to see the gift in it. It amplifies your compassion for those who are ill and focuses your efforts on the things that are truly important. I am now a life coach and I know many life coaches with this condition.
This is definitely me. I struggled with this my entire adult life. (47 in September) I pushed through so I looked healthy and fit. Most people didn't take my pain seriously because I looked fine. I couldn't even get diagnosed and was treated like a hypochondriac. I gave up this past year. I stopped moving. I gained weight and lost strength. It's impossible to hide it now. Now at least I look almost as bad as I feel.
I hope you find some relief soon 🙏 x
@@skinney9542 Thank you very much. Hugs!
Me too. But think taking Gabapentin doesn't help with weight gain. Also have sleep apnea so super extreme tiredness was a big problem. Don't let anybody tell you you are a hypochondriac! The suffering is real. Delicate hugs my friend x
@@kerryemmett2058 Thank you! It does feel nice to talk to similar people who understand. You're right. Our suffering is real and we shouldn't let people tell us otherwise. I'm actually glad that my hair is going gray now because people finally stopped telling me that I should be able to do what they can. No longer looking fit probably stopped that, too.
I didn't realize that gabapentin causes weight gain. I don't have medical coverage and quit going to the dr years ago. I take Mucinex DM, which can help with the pain. And ibuprofen and alieve. But I had considered going again someday and asking for gabapentin. My mum takes it for restless legs, which I also have. Something that works better for pain seems like a nice idea, too.
I hear you on the exhaustion, too. As a lifelong insomniac I can definitely relate.
Delicate hugs to you, too! 🤗
Same here.
Gabapentin has been a godsend for me. My pain went from about an 8 everyday for years to about a 2 at most. But, I have also cut out the white foods and boxed stuff...hamburger helper, mac and cheese, etc., anything that has a "seasoning" packet. It should be labeled poison packet.
This is the first youtube on fibro I've watched that actually gave accurate information. Thank you!
I think a very important point that wasn’t really emphasized was depression and anxiety. Stress plays a huge role in this condition. It fires up the nervous system and also symptoms. The mind is a powerful thing and can make us sick or well. People don’t get sick over night. It is an accumulation of events and attacks on our body. Environmental, physical, mental and emotional. Dr. Joe Dispenza does an amazing job of explaining how our mind can help us heal. Ultimately this condition is a result of trauma whether it be physical or emotional or both. After 12 years of having fibromyalgia, I really wish I would have spent more time focusing on the emotional…I truly believe I would have made more progress. And yes progress is possible. I believe with all of my being anything can be healed.
Thank you for this wonderful video - I’ve had fibro since I was 16 (had glandular fever and never really recovered). Took 10 years to be diagnosed and another 10 years to start the long journey towards recovery. I still experience daily pain and fatigue but my symptoms have improved greatly. In particular my sleep is vastly improved (thanks amitriptyline and physiotherapy) and flare ups don’t happen as often, aren’t as severe and only last a few days instead of months (or years) like they used to. I hope everyone suffering from this awful illness finds the right combination of medication / therapy / exercise etc for them to recover.
Just got my diagnosis a month ago, and this video almost made me cry 😭 Never felt so validated after being told the pain is just in my head ect....thank you guys!
Especially when you said that about hitting a tenderspot on a doorknob or something.....happens way yo frequently (im a clums), and everytime it feels like my joint is going to litterally pop of, it hurts so bad 😥
I was bite by a mosquito around 2010 I got meningitis and I almost died. I was fine no fibromyalgia before this. Once I got over the meningitis I was never the same. Around then is when my fibromyalgia started. I have noticed if I have stress is a huge trigger. I’m 53 and I’m 5 foot tall. I take care of my 34 year old daughter she is a spastic quadriplegic with Cerebral Palsy. She taller than me she like an 8 month old in a woman body.I physically have to wrestle her every day. I’m very muscular. My muscles are unfortunately rock hard and hurt. It like my muscles never relax even when I lay down to attempt to relax my muscles always feel engaged. I have osteoarthritis my knees and fingers and bone to bone. I’m struggling. I try to not complain but I can hardly take the pain.
Everyone just assumes I can handle everything put on my plate. Im hanging on by a thread.
The only hope I have is in Jesus.
My faith keeps me going.
Good tips! My ex (fajter to my child) always complained that I always is in pain). One day he wanted my attention he poked me quite hard in the side. I lost my breath, and tears immediately started running from my eyes. Emberrasing because we were in public, but the First time he really finally grasped that it is not a choice.
He used to complain for me going to the gym 5 times a week, but now he understands. I need it. I am not superficial, I just need to ”reset my bodys alarm button”.
I go to gym or grouptraining - sometimes I am strong and powerful, other times I am slow and weak - the instructors know that about me and don’t push me.
The best feeling in the world is tough spinning - but I need to warm up and also have space to accept and adapt to beeing ”done” for the day afterwords.
I cant have a week off training, I have accepted that.
The saddest part is that I don’t expect to be able to have a partner. I don’t feel anyone would stand someone who has to adapt their days the way I do. But I have my child that I focus on, and 2 cats.
Cats are good because they tolerate not going for a walk a bad day. They Bring laughter when Acting funny/silly, takes my mind off the pain and when I have a flate they know instantly and give cuddles and relaxation.
So my life is good, family cats, workout Books, movies and Tea is the loves of my life! ❤️❤️❤️❤️❤️
You sound a lot like me. Only I don't have a kid. And I gave up on working out when I couldn't continue anymore. But I know what you mean about thinking you'll probably not have a partner. I may not again either. It's lonely. But I have no one to justify myself to anymore. No one to criticize me. And you're right about our cats. They love us on the good days and the bad days. And they seem to understand how we're feeling at the time. My kitties go with the flow well and don't seem to mind.
PS, when you said how your ex poked you hard to get your attention, I wanted to poke him hard with a screwdriver so he'd know a tiny bit of how it felt. Not that I ever would. But the thought did cross my mind. Hugs.
You definitely have to have a slower pace and quieter lifestyle.
God bless you.
Fibromyalgia is crushing. Migraines, TMJ, GERD, IBS. Feels like the muscles are trying to rip themselves off the bone. Drugs are all we have. Heartbreaking. Nerves just scream
Yes, and the ppl who overdose make it hard to get it. The people who sell it make it hard to get it.
The goody goody two shoes, like my 87 year old mil, who ridicules ANYONE who takes medicines of ANY KIND, calls you a drug addiction, makes it hard to be around her. People think you have to have an arm sliced off, a physical pain they can see, in order to have an illness. You know what? I dint give a shit what people think anymore. When you wake up and you feel like so.ebody beat the crap outta you every night, you finally say, wtf?
You are so right, sleep is difficult with this illness, because if you turn over or even move just a little whilst you are sleeping, the extreme pain will cause you to wake suddenly. It is the pain all over the body that prevents sleep even though you are exhausted and want to sleep. This also applies to exercise, which sometimes feels impossible for the same reason; how do you exercise when joints and even the bones in your feet hurt. Cutting out inflammatory food (milk products) from the diet helps. It is also difficult for others to understand, because you still look ok. Blood flow is another problem because of severe cramps. Thank you both for addressing this.
Thank you so much for this video. ❤️ It’s so nice to feel acknowledged by health professionals like you. I’m tired of being told it’s in my head.
I have had FM for decades. Luckily I had a sympathetic Dr. I have learned by myself a lot over the years but this put it all together for me once more. Thank you.
To say sleep without medicine is simplicistic; we know that's a key to the disease. Our brains have trouble getting into and maintaining deep sleep and they dont' know why. (Actually, my Dad, a physician, diagnosed me with some fibrositis, the old name, about 1984!)
Your PT expertise is helpful in that we have pain but they tell us move and it won't be as bad. Today I couldn't even do a cobra stretch, I was having such a pain/stiffness day. (I don't think you addressed it, but we have a lot of stiffness.) Also stress that we have bad days and we shouldn't force exercise those days. Take our meds, move when we can, and when not, no guilt, rest and get better.
Fantastic video! Unfortunately, I've been suffering with FM for 12 years now. I was treated horribly by many doctors and other people before finally getting diagnosed. A couple drs told me to go see a Psychiatrist bc it was just all in my head. Thank you for the validation.
Sorry for you situation. Brad
@@BobandBrad Thank you! I appreciate it.
Re: non-restorative vs restorative sleep, not only is it important to sleep in a dark coolish room, but you need to have natural light when you wake up in the morning. I was living in a dark space with little natural light, and I would wake up literally feeling like I had never been to sleep. Then we moved to a different home, where there were more windows and some natural light would come in at dawn, and my sleep patterns totally normalized and I felt less achy.
In the winter I use a gradually brightening light to help me wake up. Routine is HUGE. Trick your brain like it's your baby, beginning to shut down an hour before you need to be asleep.
Mindfully SLOW down! Make a cup of tea with chamomile, valerian, lavender... Focusing on each part of the process, understanding that there is magic here that is going to help you sleep.
When you wash your face and hands, do it gently, S L O W L Y. swish your hands through the water, cup your hands and pour it over your arms. Do it by candle light or nightlight. S L O W L Y.
I think one of the avenues that needs to be explored is hyperparathyroidism. High calcium levels can make your muscles contract hard and ache horrifically. I had fibromyalgia(past tense) and once diagnosed with primary hyperparathyroidism, after surgery it has resolved. Fibromyalgia is never a primary diagnosis. That’s according to one of my doctors! Something else is going on in your body. It needs to be found and hopefully fixed.
At first I was diagnosed with Reflex Sympathetic Dystrophy Syndrome. I went through so much traumatic treatment only to years later be diagnosed with FM. Lordy Lordy! Have mercy on me and those who suffer with this crap.
Omg! WHERE is this brilliant dr plz?
I totally agree however I have heard of these brilliant Dr's exist, however the out of pocket expense is a killer😔
Thanks for this. I was recently dx with this and chronic fatigue syndrome following suffering from Covid Long Haulers Syndrome.
I feel you. I've had this for many years. But having COVID last year definitely made it worse.
As soon as I started hearing reports about Covid Long Haulers I thought "oh no--they've got CFIDs/Fibromyalgia/ME like me" It is about so much more than just pain & fatigue.The HPA axis. It involves the endocrine system (thyroid & other hormonal dysfunction), autoimmune dysfunction, gut dysfunction (GERD, IBS, acid reflux & food sensitivies) Mast cell disregulation & proinflammatory cytokines (aka mastocytosis) Sleep disorders. It's been found through testing that people with fibro can't clear lactic acid from their muscles like normal people can after exercise & have higher indicators for systemic inflammation.
@@yensid4294 That's kind of what I thought, too. Now so many more people are going to feel like I do. Mine did get worse after getting COVID. But honestly, I'm used to feeling this way anyway. I do feel for the people who are used to being healthy and now suddenly aren't.
Tears fall as I watch this video. Both my Mom and son died within 2 months of one another last year; I had pain issues for several months, and after losing my sweet family, it really flared. I have daily pain in hips, shoulders, upper back, knees, etc...now diagnosed. Struggling with fatigue and little sleep.
I press on...Thank you for this video.
Aww Rachel I'm so sorry. That sounds so hard and traumatic
I have been so ashamed to talk about my fibromyalgia symptoms now that I've listened to you there are a couple of things that I don't do however watching your podcast I'm going to talk to my doctor thank you and I'll keep watching
So glad you guys did this video. Thank you!
Chris, I about lost it when you demonstrated white noise. It was useful, but priceless! Thank you for that. Brad, I finally decided to check out tictok because of you guys. Tictok, like twittter, is just irritating. I like full versions of Bob and Brad (and Chris, and the others). Plus, yesterday I found myself on the floor (without falling) and actually managed to get up again in a minute... that is totally thanks to years of Bob and Brad-ing! Thanks for all you offer everyday.
It’s so difficult and awful. What you are giving here is hope. Thank you.
I feel so validated 😔 my chiropractor just started doing vagal nerve stimulation and it has been game changing for me! I have TONS of bad days still…but she helped out of an awful flare that lasted for almost 3 months. I have finally started exercising again. She also urged me to clean up my diet. My next step is starting to take sulfur crystals daily.
Any update?
I am also suffering flare up pains..so much fatigue and sprains. No one believe ,understand or empathy.
The doctors hardly know about it various ,endless difficulties. Thank you so much for the effort,
physio for knots. acupuncture, acupressure, homeopathy. kottakkal manasamritham for rest . tremendous improvement but in year 13 of fm. Tc
Any day Bob is off is a good day. But seriously, I have fibromyalgia and my recovery from exercise takes days & days. I do find that adhering to a Keto or Carnivore Diet helps immensely. Especially avoiding inflammatory dairy products and seed oils. Try to stick to coconut oil, olive oil, butter, or lard. I’ve lost 150lbs on Keto - from 321lbs to 170lbs in 2.5 years. I’ve also found steam sauna sessions very helpful to get rid of lactic acidosis buildup post-exercise.
When I have a fybro flare up the pain brings you to tears and just a child touch and feels like a sledgehammer
Fibro and MS sufferer here. Good sleep is almost unobtainable even with drugs. I sleep a few hours at a time. The next week I sleep 14 hours at a time. It's like trying to find your way through a house of horror. You never know what you will find around the next corner.
I take Gabapentin, Baclofen, Cymbalta, Delta 8 marijuana, Kratom
God love you Sweetyhide...you have a monumental challenge. I admire you for your strength.
ruclips.net/video/n1Qm5x7Lxgc/видео.html
@@deborahbeattie9103 Very good...thanks Deborah. It's been years since I've been able to sleep properly. Destroys your life.
@@sleepinglioness5754 same here I totally sympathise. 💗 I have watched a few of her videos. I can't remember if she talks about Vitamin B here. If not that's important too. She found that people being treated with vitamin D then became vitamin B deficient.( Happened to me just like she says. ) And that a couple of the B vitamins are important in sleep too. It's worth seeing too.
Another important key I found was that if your sunbathing to make vit D it uses up magnesium. Magnesium also helps with relaxation and sleep.
@@deborahbeattie9103 This is the B video. Interesting about D + affect on B and your comment on magnesium. I've always had problems with all 3! Every doctor should listen to her/this videos/talks. Maybe they wouldn't be so quick to be prescribing anti-depressants and antibiotics for everything they don't understand. Excellent video! Thanks again Deborah.
So glad I came across this, because I still have issues with FM and CFS. Too bad it wasn't sooner. However, here is my story, if you don't mind. It might help someone else. My fibromyalgia (FM) diagnosis came in 1998. All my joints would swell up. I had several sized clothes to wear. I didn’t know what size shoes I would be able to wear each day. When I first put my feet on the floor in the morning, my feet felt like I was walking on small pebbles. My bed kept getting harder and I would keep putting soft toppers on it. My body felt like my finger was always in a light socket. Headaches, nausea, shooting pain were a constant threat. Now, a few months before the start of all my symptoms, I had suffered a severe case of flu where my temperature had reach 103º for about two to three days. I ended up in the ER and received three bags of fluid within 45 minutes. That was in the spring. That summer, I went for a 15 to 20 minute walk and when I got back to work, couldn’t stand up. I, again, ended up in the ER and received two bags of fluid. It was shortly after that when the problems started. By the next year, I had the diagnosis of FM and within three years, a diagnosis of Chronic Fatigue Syndrome (CFS). The initial doctor I happen to get seemed to be about finding the cause of my complaints. I went through all kinds of tests over the next month. He did not dismiss me, otherwise, I would probably be bed ridden by now. Since then it has been a struggle, but the saving grace was a diet change and knowing my limits. I became a vegetarian/vegan/raw foods’ person for over five years. However, I gained more weight, my cholesterol increased, the blood sugar problem I already had increased, the arthritis pain increased, blood pressure was beginning to be a problem, and the severity of my FM and CFS increased. So, I gave up trying a diet claimed by authorities as the IT diet and went back to my favorite food ... meat. I lost weight, cholesterol came down, blood sugar problem went away, arthritis slowed, blood pressure normal, my osteoblasts improved, and my FM and CFS calmed down. My sleep is still an issue, but I’m working on it. I’ve also found that the right massage therapist is essential. I also realized that for me, I had to give up all forms of sugar, starchy vegetables, and all grains. I still adjust my diet when necessary, but it is still mainly the carnivore way of eating. Oh, and I rarely get sick now.
I have stage 4 fibromyalgia and I wouldn’t wish it on my worst enemy. I am disabled at this point and can’t even swallow food or sleep laying down. I never got proper treatment because doctors didn’t believe it. We now know that my primary conditions are autoimmune diseases: Scleroderma and Schogrens and secondary is fibromyalgia. My new rheumatologist says that people with fibromyalgia almost always have a more serious underlying disease. Thank you for doing this video. This is so helpful for people.
MCAS is the underlying disease
When I had it, I could barely walk to the mailbox the day after I went shopping. I told my Dr. and pharmacist that I was in pain. I thought it might be the Statins. They both ignored my complaints and actually UPPED my dosage. I was on "L" for 15 years. After being poisoned that long, I got off it myself and felt better in 2 weeks. Diet helps a lot - processed foods, especially wheat and sugar bring back some symptoms, but no where near as bad. No accident that F showed up at the same time statins did.
Statins cause muscle pains quite often. Anyone taking statins,and developes muscle pain,must get CPK done----- CPK is high if there is muscle damage---- Statins must be stopped. Statin-induced muscle pain is not Fibromyalgia---- it is toxic side effect of statins---rhabdomyolysis, meaning muscle damage.
I feel like somebody invisible stabs me suddenly throughout my body! Or it feels like someone is punching you really hard everywhere! No exaggeration here! Makes me Yelp. It’s a daily fight against pain everyday! Sometimes can’t walk for a few days at a time. Big limp etc. Cuz the pain is horrendous! Deep breath now. 😍😘
Talk to your doctor about Cymbalta take about 4 hrs before you want to go to bed in 3 days you will be amazed. Whoever put this medication together truly understood what fibromyalgia is. Frankly, believe God gave them wisdom. Gloria, may God heal you comfort you, give you peace and ease your pain. I truly understand how you feel, there is hope please try to stay stress free.
@@af5825 I’m on cymbalta but I take it in the morning, so maybe I should try before going to bed. Thanks so Much 💕💜
I get those, too! The sudden stabs! I live with kitties and no humans, but when I suddenly cringe and call out in pain I imagine what a person would say. They would ask what happened and I would say that I have no idea - that it just happens sometimes. I get the constant pain and big limps, too. I can barely walk at all this week and can't at all without limping. At least I don't look "normal" anymore.
@@anyascelticcreations this is so tough for us! so sorry. gentle hugs 🥰🙂
@@gloriaklopping8713 Yes, it is. It somehow feels a little better to know we're not alone in this, though. Gentle hugs to you, too.
My friend has fibromyalgia and it has been bad recently. We just started doing an evening aquafit class and she said that her pain disappears in the pool and she is also sleeping a bit better now.
Same here! Medically retired veteran with a life of both physical and emotionally traumatic events one after another. Before and after my military service.
Whenever I go to the pool or went to Destin, Fl over the summer, I feel like a new person. Its astonishing. I cannot make sense of it.
@@dvsupreme6883
It really a strange one, I don't understand it at all.
I'm sorry to hear that you have had such a difficult life. I hope you keep going to the pool for a happy life. 😊
thank you so much foar all these great tips and for the support.
I have fibromyalgia and I told my husband I always feel like my skin is on fire when I have a flare up. He took a picture of my back with his thermal camera that he used at work, (he’s electrical mechanical engineer) wanted to see if any hot spots showed up on me and sure enough on the right side of my back and at my sacrum all showed up red on the picture, but only on the spots where I was hurting, not the whole back. So I thought that was pretty interesting, whether it’s nerve or muscle it was giving off heat and to me thats inflammation.
When I have a flare I say my skin feels scalded kinda like when you have a fever or the flu. And yes the heat is an inflammatory response! I had open heart surgery when I was 14 and have had fibro since. I have told my family for yrs that I thought it had to do with surgery or anesthesia because I was fine before. I’m 53 now and just got a diagnosis about 5 yrs ago. No one takes me serious including Drs. Thx for sharing about the heat gun. Interesting
vitamin D3 and fish oil for nerve pain, helps a lot even at low dose if you are deficient (500 - 1000 IU)
I had a significant neck and back injury in July of 2015. I was in pain for 6 straight months and got around 15 epidurals, then had first fibromyalgia flare in January 2016. I stayed inside my condo in pain until June when I mustered up the courage and made a commitment to put my swimsuit on and go sit on the steps of the pool for 15 mins. Just sit there, and, at the very least, increase my Vitamin D level. After those 15 mins, I got all the way in the pool and gently moved my arms and legs around. Within a week, I had made it up to an hour and had gone from just moving my arms and legs to walking slowly from side to side of the pool. The pain and fatigue calmed down, I re-built muscle that I had lost and lost weight, I slept better, and the vitamin D helped my depression and anxiety. If I don't get in the pool or walk now, all my symptoms come right back.. GETTING IN THE POOL WAS A GODSEND TO ME! Don't tell yourself that you cannot exercise because exercise and movement is the most important thing you can do to eliminate the symptoms.
I was told first it all in my head,then I got oh you have fibromyalgia, in the 80s , 2016 now being told I have M?S? good grief .. all I know I feel like crap every day
Don't forget about GABA (NOT gabapentin, and 5-HTP). Sleep is elusive. For years doktors told me not to exercise!! To stay in bed! This hurt me so much. I was getting stiffer and stiffer. I still haven't found that "even medium" - if I don't do enough I hurt more, if I do too much I hurt more. Don't be hard on yourself, just keep trying.
Someone needs to invent a standing pool for one person that I can put in my basement.
Check out swim spas. Can fit in the space of a car in a garage .... not sure about basements.
Like the one Houdini had? LOL.
yes!
Physical therapists sometimes have them.
Excellent! Thank you ! I went to a PT clinic and there was not any understanding of Fibromyalgia . It was so disappointing and discouraging as I need appropriate treatment to build strength. Keep up the good work! WHERE are YOU?
I was bedridden with fibromyalgia some years ago. I suspect it's a cluster of conditions with similar symptoms as people have such diverse experiences. Now I'm never pain free, but can do quite a lot. I have to pace myself learning that in practice is so hard as. In fibro you don't feel bad as straight away. It could be a couple of days before you feel the consequences. Keeping a diary is crucial to understanding your own condition and limits. I was not happy about pain school but when I discovered the tutor had fibro, herself, I learned so much it changed my life.
Exactly. I say it’s as if my body works in slow motion
Inflammation of the joints caused from eating a poor diet like white stuff, wheat products, sugar etc. I went on a gluten free diet also cutting out lactose and soy products. Amazing how much better l feel. Don't Yelp out in pain like l used to.....take D3, zinc, B's, collagen, magnesium and lysine.
We have to be our own health advocate. Too many quacks out there who want to write prescriptions. Protect yourself.
What kind of magnesium do you take?
@@straightupkuaaina2922 I use the topical spray made by NOW. It doesn't smell (some are foul) and by spraying it on your skin, you bypass the gut. It can still possibly upset the gut but it's better than ingesting magnesium if your GI is sensitive. NOW also makes an excellent D3 liquid. One drop equals 1000 IUs so you save money.
@@straightupkuaaina2922 ioic magnesium liquid form: magnesium 95%, chloride 48%, sodium
Hello! 👏 Every person who has said they've been able to fix it or make it better always talks about eating healthier, fixing gut health and vitamin and mineral deficiencies. Every one of them. It makes me think we're all suffering from diseases that arise from severe deficiencies. Look up some of them and what happens and it literally seems like we have the beginnings of these problems. Add in the fact that most food is poisoned and deficient in vitamins and minerals. Then add in being overloaded with poisons and pesticides in our food and our body products. We're slowly dying from lack of nutrition and being poisoned to death.
25 percent or more case are a result of targeting , research targeted individual and how your local law enforcement and communities receive funding , through non consensual human experimentation.
What are your views on Medical marijuana for sleep and pain?
I recommend it!
I wonder too but the subject is still taboo in many countries and for many people. It sure can help for sleep, pain, and for feeling hungry, for people with cancer for exemple, but I can't recommend it if people didn't try to exercise and eating better first. (I'm not a specialist of any kind, it's just my personnal view).
CBD oil helps me but not nearly enough. It only takes some of the edge off for me.
@@anyascelticcreationsCbd affected me the same way. I now use Delta 8 products. It is marijuana without the Delta 9 THC that is illegal (Cannabis is still illegal in my state). Only choose Indica strains! Delta 8 is very mild but works way better than CBD, in my case. If you have a local vape shop, they probably have it. Changed my life in many ways. Helped me kick the opiates.
Edited to add: If you are new to cannabis, use very small doses at the beginning.
I live where it’s legal. Cannabis helped me stop all of my prescription pain meds. Antidepressants too. I felt so much better to just get that poison out of my system. A small amount goes very far for someone with no tolerance so be very careful dosing in the beginning if you ever try it. Use a hybrid or an indica for bad pain but they will make you tired. Use a sativa for daytime. Do your own research on what strains are good for what. Then if you smoke it take ONE TINY LITTLE BABY PUFF AND STOP. You will instantly regret doing more because you don’t need it and you’ll get too high. Good news is if you do get a bit too high just lie down and chill a while and you’ll come down. If you do edibles which I recommend over smoking for several reasons such as smelling like smoke, coughing and hacking, smoking up the joint, etc. do very little to start. Most people overdose in the beginning and get super high and freak out because they took several times more than they should have. A friend of mine ate 10 milligrams and was super high. I would suggest taking only 2 milligrams to start. They have some gummies that low or you could half a 5 mg. Never more than 5 for sure and I think a newbie would still get really high off of that. I take 10 to 30 at a time depending on how bad I feel etc. but my tolerance is high because I’ve been using it for several years. If used correctly it will be the best pain relief you’ve ever had. No pain killers were ever this good. The first time I used it and got relief to the point where I remembered what it was like to live without constant pain I cried in relief and for how much pain I was in. You don’t realize how much you put up with because you are used to suffering 24/7. One reason why the pharmaceutical companies want it to stay illegal. Everywhere it’s become legal a large amount of people stop their prescription meds.
Living with fibro since 1985 diagnosis. Started the ketogenic lifestyle the end of 2019 and feel much better. Also quit using any nightshade plants, high oxilate veggies and high omega six nuts. Moving easier on this plan I started. Also put. My type 2 diabetes into remission since then.
"Sleep Smarter" by Shawn Stevenson is an excellent book. Literally changed my life!
The treatments that weren't mentioned that have helped me are: massage, heat, a glass of wine, foam rolling, avoiding nightshades, pacing myself and rest.
red wine?
@@Valir15 A glass of red or white wine with dinner. It acts as a muscle relaxant.
Thank you for this. Shared to my FB for the many people in my life who just don’t get it.
Have you ever try to exercise when every part of your body hurts?
Sometimes you cannot get out bed because of the pain.THERE is no remission for fibromyalgia it an lifetime illnesses some day are better than others.Sometime having good cognitive therapy can help you decide what will be your best treatment options.
I have fibro and when i use the Yeast Free Diet by Doug Kaufman, I feel better and pain levels are around a 2 which is tolerable. Sugar is biggest offender !!
Edit: Removing sugar, msg, "natural flavor" and all prepackaged food greatly helped reverse the effects/symtoms of fibro. My doctor had no answers for well over 10 years I suffered. Then I started doing my own research and investgating. It has been about 14 years now and all I can say is DO not take for granted the western medicine diagnosis as God's truth. Please believe that you are able to reverse many many autoimmune issues!
I am a gardener and beekeeper as well as go to a day job M-F. There are some days that have higher pain than others but today it's usually due to working to hard or too much. Fibro is reversible depending on how hard you want to be well and fight for your health.
knowthecause.com/
Blessings dear ones!
@@notyourblonde I’d be grateful for having a pain level of 4!
@@cherylmcnutt9905 takes time and persistence, I believe you can do it.
It took me almost a year to clean up candida which is main contributor to brain fog, pain and low energy. Choose live food, organic if possible, no prepacked cookies, pasta, breads....crackers, chips etc.
@@notyourblonde Problem is I also have a Traumatic Brain Injury (TBI) - my car was T-boned by a speeding bus years ago. So, combining the pain and having to use a cane to walk with shopping and food preparation are very difficult. I’ve been living on granola bars, Delivery pizza and salad throughout the pandemic. Not that healthy, but I have few alternatives.
When I can afford it (which is not often living on Disability), I opt for gluten-free pizza, as I DO feel less pain & bloating, but it’s an extra $4 for a medium pizza, which only lasts for 3 days.
It’s hard because before my accident, I was a computer professional. Now, I can barely read a few paragraphs before my head starts to hurt. Thrown in with of all my other injuries are eyes that no longer track when I try to read, so my reading is very slow and comprehension is worse because each eye is sending different text on the page to my brain, making it hard to understand and impossible to retain.
Finding brain specialists who will take Medicare, let alone new Medicare patients is almost impossible! It’s taken me more than 18 months to find a doctor to treat me for depression (can’t wait for August!).
The world is created for healthy people. Those with multiple health issues are left to fend for themselves, and if you add brain injury to that, you are screwed every which way you turn!
I’m sorry for venting. It’s been a tough week.
I can no longer afford to stay in my house, so I have to sell and downsize to a condo, and I hate condo living, but there’s no other choice.
That bus driver rushing home because he was off the clock ruined my life. He came flying over a hill and crashed straight into the passenger side of my car (otherwise I’d be dead, I’m told). Didn’t even bother to put on the breaks, to hide how fast he was going.
The County that owns the buses had never turned on the black boxes “as a cost-saving measure,” which was true, because they saved the County 10s-of-thousands of dollars that I have had to spend on care and rehabilitation. And because my brain was so damaged, I didn’t know how to find a lawyer to hold them accountable.
Thanks for listening.
@@cherylmcnutt9905 prayers that Almighty God the Father place a person in your path that will help you with the natural healing process. HE in His infinite power and glory made a marvelous human body capable of regeneration.
I see many tauma patients for trauma therapy. Many suffer from autoimmune disorders, all these things you speak of plus others. Things that stimulate the Vagus Nerve seem to help. Thanks for posting this. I am going to share with sone of my therapy clients!!
At last someone who knows what they are talking about, thankyou
I have fibromyalgia 35 years ago, I was an prednisone for 5 years, every doctor I see say it was my head until I move and the doctor I see he say you can not continuously taken prednisone, it took 1 year for cutting completely off, I told my husband I will not leave like this . So he went to the doctor I was seeing , he send me to Cleveland Clinic en Ohio , finally the give a name 😢 what a relief someone’s tell me I am not crazy.the took blood a lot.everything I was normal.my best think is until depress medication , I can not be with out it. And after so many years I Lear to manage it. Because the medication for fibromyalgia never works for me .
finally someone really said it...we look normal and healthy but inside we feel miserable.Am suffering from it since i was 7-8 and now am 19...i was just diagnosised 4 month ago with it as my parents didn't believed me and delayed the treatment till i was 17.After that the doctor's thought i had this pain only my imagination where i felt real pain and undergone psychotherapy as i had major depression and PTSD but i was pissed off cz they wasn't help my pain in anyway.Finally i get fortunate that one doctor finaly said i had fibromaylgia and the pain i feel is real.I was always pissed off or more like sad cz they said my pain doesn't exists!
Diagnosed years ago with fm and chronic pain gone after almost 2 years. Still some dull aches at times. Three things helped: stretching type exercise, learning to completely relax body & mind and hot tub with really good jets for massage of back and neck
Hi to you both I'm going through a bad patch with iit at the moment I've really enjoyed your video you know what your talking about Thank you so much ❤
Thank you for understanding this agony
I bought an amethyst heat mat from my local Korean store...omg! Helps so much!
Employ a physical therapist. Start very slowly to develop core muscle strength. And give it a good year . I am fortunate to live in a retirement community and my physical therapist is just down the hall
Thank you for your teaching and sharing this information😀👍
I appreciate this video. You show a great increase of understanding here over the first one you did. However, you need to lose the FM Workbook. It’s a response that is too simplistic for a complicated condition that we are still learning more about. @9:50 you share how we don’t want to move because it hurts. I’m going to fine tue hat statement from my perspective as a patient of FM. I am reluctant to move, hesitant to move, slow to move. I move slow. This is true because of my FM. However, I have to share emphatically that I want to move. Oh how I would love to package my symptoms in a little box and put it on a shelf. I would then move. I would be running marathons, climbing mountains. I’d be an avid skier. I’d chase pets. I’d would still be working in education.
Additionally, I’ve spent years telling people that I want a nap. Until I realized that I don’t want a nap. My body expresses a need for a nap all the time, but I Don’t Want A Nap! I want to be active. I want to move.
Pease don’t tell people that I don’t want to move.
Low carb has helped alot. Meat n veg. Prioritise protein. Almost no sugar. No sugary fruits. Walking. Celecoxib. Rest. Hobbies. Work. Friends. Swimming. Aquaerobics. Hot spas. Plan retirement well!
Wasn't Celebrex banned Jenny for causing heart problems? (Celecoxib is Celebrex) Plus, no/no sugar. Stevia is a good substitute.
Vioxx was banned
As someone who had an extremely horrible time coming off of antidepressant medications, PLEASE try everything else before taking meds!!!
I got very tired of doctors telling me I had a mental disorder. I don't know why anyone could think I would spend my time making up the torture I've been through!
It's not as bad as it used to be... it only took 6 years to get a diagnosis.
Actually, there is now a definitive test available, but most doctors don't even know about it, and I don't know of any insurance company that pays for it... it's called a functional MRI. The techs who do that will pinch the patient in the operating unit, and watch the activity in the pain center of the brain. Fibromyalgia brains massively over-react, and DON'T LET GO of it properly. Hm.
P.S. Fibromyalgia has been reclassified from rheumatology to a NEUROLOGICAL disorder...progress!
24/7, 365 for decades. Beyond insane! Thanks for this video! 👍🏾
There’s nothing more aggravating than doctors who genuinely think it’s all in your head (regardless of what type of pain).
Why can’t they just say: * I don’t know what’s wrong *
Because all pain is processed in the brain. It is all in your head, accept it.
A common personality type for those with fibromyalgia are over achievers. We have a hard time of doing things in moderation. No matter what it is.