Life has changed...
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- Опубликовано: 23 авг 2024
- Here's an update for you on the crazy medical drama from the last few weeks! Please like if you enjoyed this and subscribe for more videos every Monday and Thursday :)
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When you DO get to Disney, make sure you stop first at City Hall in Magic Kingdom...they will get you set up with the Disable Access Pass, which is very easy to set up, and acts as almost an extra set of Fastpasses for the entire visit....even if you are almost healed, you STILL will qualify...and as the spouse of a Disabled wife, I completely empathize with how much of a gut-punch this has been to Ian; You both have the best attitudes about this and both myself and Carolyn wish you the speediest return to full health!
Thank you so much Ed :)
I wouldn't be so sure...I think they've changed the disabled access pass to cognitive disabilities only. That's the impression I got when doing research for our february visit with an autistic child. They've really cut down on giving it out to "physical" disabilities and moving towards people who don't understand the concept of queuing or will suffer high anxiety when they have to queue for long periods of time.
From someone who has dealt with spinal damage for years,(4 back surgeries) I can tell you a positive attitude is everything! Prayers for you and your hubby and best wishes for a speedy recovery. Your determination to become self sufficient reminds me alot of myself.
Thanks Elizabeth :) It really is scary but I refuse to let it beat me :)
It sounds like you have a much more serious version of the sensation one feels when you might have your leg tucked under your other for awhile and it has completely fallen asleep when you try to get up...So very sorry you have to go through this...Thank you so very much for being as AMAZINGLY open about this as you are!
That's exactly what it feels like along with a feeling of being squeezed really tightly all the time. Such a bizarre feeling. Thank you so much for all the messages of support while I was in Hospital. It really helped me to stay positve and meant alot :)
As I get to know you through your journey of both channels …I just want to share that I had a similar situation….Than goodness the MRI was the first test and most revealed for my diagnosis….My surgery corrected the situation and kept me out of wheel chair ….I do have autoimmune disease and I am in my 50’s but drs said still too young for this degree of stenosis which was calcium on the vertebrae causing the spinal cord to be closing off…so I’m so glad that you are n the road to recovery….it’s been 2 years since surgery and at my one year anniversary…I celebrated by going to Disney World ….I did use an upwalker so I conquered walking 10-12 miles per day in the parks ….But I wish you a full recovery
Much ❤️ from TEXAS
I know the hospital you were at and my husband has been treated there numerous times. It would of been nice if you had named it so recognition for the excellent treatment you have received, especially as so many people have so much negativity for our NHS
So glad you are home and moving forward.
Thanks Shelley :)
It's awesome that you are on the mend and so nice to see you home. Remember walk before you can run and take things slowly. It took me 2 years, a coupke of months in rehabilitation to somewhat recover from my operation and 13 years on im proud of what I have achieved and will achieve in the coming years. Will be thinking of you both and will make an extra wish at Cinderella wishing well, next week to help with your recovery xxx
Thanks so much Helen :)
You poor thing :( my son had a lumber puncture just days old and your explanation has just made me cry. He's ok now and 2 years old. Hope you are okay and a shame you are no longer doing your solo trip but it's always nice having a trip to Orlando with someone new I think. It makes it exciting showing them around xx
Poor thing, I'm so glad he's ok now :) I can't wait to see my friends reaction to Diagon Alley and Hogsmeade. It's great going with people who haven't been before :)
So glad to hear the diagnosis is nothing sinister. Sounds really frustrating though 😣 and glad to hear you've not had to cancel your trip, it must be a great focus/goal. You sound really determined to make a full and speedy recovery. So so glad to see you both looking so well and happy. Love the mugs! Xxx
Thanks Ellie :) The Disney trip in November is such a great focus to be as well as possible by then. xx
It's scary what life throws at you sometimes! This has reminded me not to take my body for granted. Your positive attitude is so inspiring - I can only wish there were more people in the world that have the same outlook as you. X
Thank you Becca :) It really is crazy that something like this can just happen out of nowhere! It's made me appreciate every single day now :) x
So happy to see you are home and looking so well. Wow you have had such a worrying time over the last few weeks and I don't really know what to say other than I think it is fantastic that you are both being so positive. But I think you are absolutely right to think that your age and general health will definitely increase your chances of a full and quick recovery. I am sure it will be a full recovery because you are just such a positive person and with Ian's love and support you will get there. Thank you for doing this update Victoria and Ian and I am sending positive vibes (and pixie dust!) your way x
Thank you Susan :) I'm making really good progress already so that's really encouraging for a full recovery. Ian has been amazing along with friends, family and all you lovely subscribers sending positive thoughts my way. I'm very lucky :) x
It was such a relief to find out that isn't wasn't anything too serious and that you got mostly good new back. Lots of thoughts are being sent your way, and Ian's for being a great support person for you, for a speedy recovery ☺. You are such a strong person and I will definitely be waiting for more updates on your progress!
Thanks so much Amber :)
I am so happy you are able to be home! It's amazing how bored you can get when you aren't having test, etc. Glad Ian has you home as well because it is so tough on the hubby when one is stuck in the hospital, too. FYI, I had a few surgeries and for awhile had some real difficulty walking for long stretches without suddenly needing to sit. I bring this up because, for Disney, I purchased a rollator (walker with wheels, a seat and a storage basket). I am 5'10" and really wide hipped though the height is adjustable. I am more than happy to loan it to you come this fall. I can drop it at your resort any time before you come. I'm sure your doc will have something for your use, but in case you just get a regular walker and don't want a full wheelchair (which I also have and can loan you), let me know. This isn't just one of those courtesy things, either, I truly mean it so follow up at any time if you'd like to borrow it. Can't wait to see more of your vlogs and again, very happy you are home!
That really is so kind, thank you so much. I'm not sure what level of mobility I'll have back by the next trip but I'll be sure to let you know if I need to take you up on your kind offer :) Hopefully I'll have made a really good recovery by then but the Doctors just aren't able to say as it''s different for everyone. I'm very determined though :) The support I've had from so many of you has been truly amazing and I feel very lucky to have such wonderful people looking out for me. xx
So happy to see you're home with Ian! Had some medical issues myself and there's nothing like being home, recovering!! Thank you for sharing this with us and speedy recovery!!
Thank you :)
So glad you are home and starting the recovery process! This does sounds like a crazy fluke!
So glad you gave your husband for support!
Glad you are staying positive over this whole ordeal!
Thank you for sharing with us! 💖💖💖
Thanks Joi :)
Vic, I am so sorry to hear this news but I am glad that you are working so hard and gaining some feeling and strength back. Stay positive and keep your chin up. Ian, way to be so supportive and loving during this time. Must not be easy for either of you, but together you can get through way more than you can alone.
Thanks Michelle :) xx
Thank you for updating us! You've been in my prayers and they will continue for a full and speedy recovery. I'm also praying for Ian. I know this has been hard for him, too. (Loved the wink he gave you when he said, "that's why we've got to keep an eye on you.") Love and hugs and lots of pixie dust to both of you!
Thank you Vicki :)
So happy to hear you are home & getting better as each day goes by. Thank you sharing. Sending good thoughts your way!
Thanks Dana :)
I'm sorry you guys are going through this but you have such a great attitude about it. I hope you continue to get better! Much love from Florida ❤️
Thank you :)
Such an amazing attitude!!! The world needs more people like you! God bless on a quick recovery! I am going to WDW in November too!!
Thank you :) I'll be there towards the end of November. Come and say hi if you see me :)
Hello!!
I've only just found both of your channels!! Can't believe I've not seen any before as they're both amazing!!
I'm so sorry to hear of the really tough time you're having. Life can really knock you for six sometimes.
I kept having (and still having) very similar issues, I'd loose feeling in my legs and get pins and needles. I'd get so many dislocations and walking became nearly impossible. I've since found out I have a condition I was actually born which has gotten worse as I've got older. It affects all areas, mobility, pain, also some issues with my heart and circulation. So I'm now a wheelchair user. It can be very difficult to accept that change. It was for me, I didn't even want to sit in a wheelchair, be it took me a long time to go and test some to see what was right for me.
But now I'm glad to say that they make my life so much easier and given me freedom again.
We do Disney, and I have a special Disney Vlogging chair that has a special arm for my vlogging camera! In the uk I use a powerchair instead of a self propel chair, but use one in the US.
You sound really positive which is amazing, and the best way to look at things.
I'm not an expert on things, but I know what it's like to have a big change, so if you very need a shoulder to cry, shout or laugh on, I'm available!!!
Big hugs Stacy xx
I just went to find you on twitter, and to my shock you were following me, and I feel awful that I didn't know and hadn't followed back!!! So sorry! Also huge thank you for following me!!! But I have rectified that now!!!! 💗
Thank you so much Stacy :) It sounds like you've adapted really well even if it wasn't easy at first. The Disney vlogging chair sounds amazing! I really have no idea how well recovered I'll be by November. I'm making good progress with walking but I can only do short walks at the moment which wouldn't be any good at Disney! I may need a chair or possibly might need to just do the parks in shorter bursts with more breaks. I'll have to just wait and see. I currently still have severe numbness in my legs and torso so it's uncomfortable constantly but I'm hopeful the medication I'm on will help with that. Thanks again for your encouragement and kind words, it means a lot :) xx
Hi Victoria and Ian, thanx so much for doing this update. I'm wishing you a speedy recovery Victoria, you are so brave, stay strong you will get there my lovely. Much love to you both and those mugs are awesome :) xx
Thank you so much :) xx
It was so good to see and hear from you again! I'm sorry you have to go through all this; but I know from experience that your positive attitude will get you thru your recovery process. Sending hugs and prayers to you and Ian :)
Thanks so much Angie :)
Glad to see you are getting better! And it is awesome to see you are both so positive! You have an awesome husband and you are just the best! Nothing but good vibes and positive energy for you! 💯👍❤️🎊🍾
Thank you. He really is the best :)
The Hospital you were in is very similar to one of the facilities that we have around here (my daughter's Physical Therapist is located there) that looks exactly like an Embassy Suites.
It's so great to see that you are back home with Ian, where you belong. Hospitals really aren't fun at all! Sounds weird but I have a great love for that hospital too as my mum was treated there when she was very poorly. It's absolutely amazing and brilliant care! I hope you rest up and recover quickly and safely. X
Thanks Jade :) It really was great, they looked after me very well xx
So glad you are home. You have such an amazing attitude to all of this! I hope you have the fastest and fullest recovery! Hugs to you both x
Thank you claire :) x
Thank you for sharing this update. I have been worrying about you. I'm glad you are progressing and feeling better. This must have been crazy and scary to go through. You are both so strong. Take Care! 💛💐
Thanks Lana :) It really was so scary but I'm just glad I'm home and that it wasn't anything even worse :) I'm making pretty good progress so far so I'm hopeful of being able to walk ok for my Disney trip in November :) x
I'm so pleased that you are feeling so positive about all that's happened to you. I'm sure you'll make a full recovery and hope it's very soon. X
Thanks Catherine :)
I had no idea that you were not feeling well. I'm so sorry to hear that. I have been watching your trip with Lisa. I'm thinking of you and hope you can still do your trip to Disney in Nov. You are such a wonderful person. Take care! Ian you are doing a great job taking care of your beautiful wife.
Thank you so much Pam :) I'm still doing the trip in November no matter what so hopefully I'll have made good progress by then :)
I didn't know you had a vlog channel and while I've been following your main channel I just started here. I think your attitude (both of your attitudes) so positive and pushing forward is amazing! I hope that if ever Im in a situtation as dificult, I can have that fortitude! I wish you all the best and look forward to seeing your progress! xoxoxo
Thank you so much Melina :)
We're so glad you're looking okay, I hope that whatever the problem is it's short lasting and completely curable!!! 👨⚕️👩⚕️
All our love and best wishes for the future beautiful lady xo❣ox
I didn't realize that you were unwell or that you have this channel so when this video popped up in my suggestions, I was so concerned and surprised to hear. So glad to hear that despite your scare that you are doing a bit better and that you have such a positive attitude. Sending prayers and pixie dust to you and Ian. Subscribing now and looking forward to seeing your healing. ❤️❤️❤️
Thank you so much :) x
oh, my! I only became a follower in 2020. I had no idea. i am so glad you are now well!
I am so sorry that you've not been well! Keep staying positive because you are brilliant and you've got this!! Thinking of you! Hugs!!
Thank you so much :)
Wishing you a very speedy recovery. Your positive attitude is so admirable. Love to you both.
Jo xx
Thank you Jo :) x
So glad to see you are on the mend wishing you a speedy recovery sending Disney hugs to you both xx xx
Thanks Liz :) x
Best wishes and good luck on a speedy healing process. Stay positive and keep smiling!!!
Thanks Brandy :)
I've been thinking about you and wondering how you've been doing. Thanks for updating. Will be pulling for you and keeping you in our thoughts. You've got this!
Thank you so much kara :)
so glad to see your home with Ian but sorry to hear you have been so unwell sending lots of love ps when in physio just see world showcase waiting for you at the end major motivation get well soon love from charlotte in Scotland xxx
Thank you Charolotte :) Having a Disney trip booked in a few months is the best motivation to get better :) x
Glad you are home. Glad you are doing better. praying for a full recovery!
Thanks Bridget :)
Aww Victoria I'm so pleased that you are back home and making progress. I can't say anything different to what everyone else has said, you are a wonderful lady and Ian has been wonderful too.
I love your hospital 😃👍
I myself was rushed into hospital last Saturday in incredible pain and only came out this Friday evening, I still have to go back in for an operation once the infection has gone down. It turns out it was gallstones and need it removed, I did feel sorry for myself and I didn't see your updated blog. You know I had been following you and asking how you and Ian are.
Well I'm sat up on the sofa in pain and managed one hours sleep but you have given me the kick up the bum that I needed after hearing your update.
I will try my best to think of you but I know I'm a grouchy cow when I don't get enough sleep hahaha
On the plus side you could always hire a motorised buggy for you November trip to help you around the park and not get too tired xxx
You take care sweetheart....onwards and upwards xxxx
Love to you both xxxx night night xxxx
Hi Sue :) Gallstones are awful, my cousin had them and said the pain was similiar to child birth! So sorry you've also been in hospital. I'm having a similiar problem with sleep due to the steroids as they cause terrible insomnia. Getting no sleep really takes it out of you so don't give yourself a hard time about being grumpy as it's completely understandable. I hope your operation goes well and you don't have to wait too long to get it over with :) Thank you so much for your messages and support over the last few weeks :) xx
so glad to hear your'e home and progressing well you look great too I really admire how positive you both are being such a lovely couple xx
Thank you Joanne :)
So nice to hear you guys are staying so positive. Hopefully you make a 100% recovery. Good luck to the both of you. 🌈🌈
Thanks Natacha :)
Wonderful news. Best wishes for continued recovery. Sounds like you two are a great team!
Thanks Mimi :)
just seen your vlog and glad to see your getting sorted and still have a smile on your face. Wishing you both all the best . xxx
Thank you :) xx
I know you said you felt your vlogs were a bit samey and you wanted to mix it up a bit but I feel this was a bit drastic! Great news that you're home & recovering and both you & Ian are smiling.
I know! I do like to be different but I think I might have taken it a bit too far this time ;)
Thank goodness you're home! Glad you have a diagnosis... feel better soon. Hugs!! 😘
Thanks Debbie :) x
Your hubby is so supportive what a keeper speedy recovery💕
He really is amazing :) I'm very lucky x
Waw how frightening. Hope you'r recovery will be a speedy one. Thinking of you and Ian x
Thanks Kirsty :) x
Hope you have a speedy recovery. Sounds like you are going at it with a great attitude and a great partner. I really enjoy all your vlogs and look forward to your upcoming videos!
Thank you so much :)
Sending HUGE amounts of love. Glad you've got a reason behind the craziness. Xx
Thanks Rhys :) It's good to know what the problem is even though it is crazy and so random! x
Sounds like you are making a good recovery - I hope you are totally back to right very soon! Rare diagnoses are scary as hell.
Thanks Kali :) It's so crazy to have something happen out of nowhere like this. I couldn't believe it when they said there are only around 300 cases of it per year in the Uk and only around 1400 in the U.S!
That is SUPER rare. I'm glad you pushed to get the better resources as opposed to letting them send you home with painkillers. My dad had similar symptoms to yours and his PCP told him, in no uncertain terms, to head to the big hospital right away and REFUSE to go home without an MRI. The PCP suspected it was spinal stenosis, which is kind of the opposite of your issue, and he ended up being absolutely correct. It all worked out, but it taught us not to just accept being sent away with 0 answers when something is horribly wrong with us! I have a very different issue, an ear condition that I self-diagnosed correctly, but two ENTs told me the condition I thought I had was "too rare" to occur in someone of my age with my symptoms. I demanded a referral to a teaching hospital and guess what? I ended up being correct. The ENTs at Stanford University gave me the answers I needed. And, I discovered that what I have is NOT really as rare as many ENTs want you to believe it is! It's also fixable, which is something the other ENTs wouldn't acknowledge. Ugh!
Good to see you looking well Victoria! I bet both you and Ian are happy to be home 😃
Thank you :)
Glad your home and starting to improve👍🏻 hope your recovery is speedy 🍀 xxx
Thanks Clare :)
Praying for you and Ian...glad you are getting better!
Thank you :)
I've had a lumber puncture it's horrific.. first time they tried 4 times and hit a nerve and didn't get any fluid 2nd time they got it straight away! ☹ hope things get better for you xx ❤
It's awful isn't it!? An experience I never want to repeat! xx
Glad you're on the mend. Love watching your videos!
Thank you :)
So glad you're home and continuing to progress ❤
Thanks Alex :)
So happy your feeling alot better Victoria, and glad Ian is good to.... looking forward to seeing more quality vlogs soon 😉😉😉 xx
Thank you :) xx
Sending so much love xxx
I'm glad your home, just don't push yourself too far. Def look into the das pass for your next trip. Have u considered getting a chiropractor in aswell as physio. I've had similar issues and the chiropractor was much better than physio xxx
I'll definitely look into a chiropractor, I'm willing to try everything that may help. I'm being super careful but working hard at the same time and making good progress already :)
That's fantastic. It is expensive but completely worth it. Mine gets worse when I'm pregnant and I had weekly physio after having my second pregnancy and third time round someone suggested a chiropractor and I went while pregnant and then afterwards and I was more mobile within 2 weeks than I had ever been doing physio. If I'm honest I thought it was a load of rubbish but was willing to try anything and was pleasantly surprised.
Glad you're recovering at home. 🛌
You have a good man giving you support and taking care of you.💑 👍
Hope you get well before your Disney trip in November. 🏰🌐🚝🛫🎢🌞🛅❤
Thank you :) I really do, he's amazing :)
Oh my goodness Im just seeing this! Ok, so I want to share a doctor with you. Look up Dr. Terry Wahls. She has a diet called the Wahls Protocol. The inflammation and inability to walk makes me think this would be beneficial for you to seriously check out. Her story is specifically Multiple Sclerosis, which is different, but I have a gut feeling that this would help you a lot anyway. You got this, pretty lady!!!!! Big hugs coming to you from the USA! 💕💗💕💗
Thank you so much, I'll look into it :) I'm happy to try anything that might help :) xx
Aww Victoria been away for a couple of weeks and just seen this hope you recover fully soon xx
Thanks Dawn :)
Love Southmead. Glad ur on the mend. Xx
I'm so srry to hear this.:( I know you are an avid WDW visitor & this has to be a huge change for you. Get Well Soon!
P.S. Have you thought about seeing a chiropractor?
Yes, a few people have suggested a chiropractor so I'll look into that :)
Oh my goodness. Now I see why you work from home 💕
I don't mean to sound crazy but I read that going on a whole foods plant based diet can cure inflammations. Just search on Google. I follow the diet and I feel so much better now.
Thanks Carrie I'll look into it :)
Have you had to take a medical leave from work because of this? I'm so glad that you are feeling better to come home.
Thankfully I work from home so I've been able to carry on pretty much as soon as I got back and I'm able to be flexible for Dr and physio appointments so I'm very lucky.
👍👍 sending U both lots of hugs xxx
Thanks Sophie :) x
Just wondering if this had anything to do with your bad foot whilst in florida?
I don't think it was related but I guess you never know with this kind of thing.
best of luck
Thank you :)
Wishing you a speedy recovery, take it easy and do as you're told 😄
I will, I promise :) Thanks Jan