🏥 ER Trip | My Feeding Tube Isn’t Working! 😱 (10/17/17)
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- Опубликовано: 4 ноя 2024
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Oh no! My heart stopped in my chest on this title. I was so excited for your recent success, and so it’s hard when you have a bump in the road. Tuning in, it’s like I know you personally, and so it’s like we are friends and every setback you have is hard on me too! As viewers, we celebrate the progress and pray during the setbacks. Love ya, Jaquie. Good luck 👍🏻🍀
well said - I feel the same way.
Oh gosh, I hope you get your tube fixed/replaced soon. Stay strong. At least you've got Harlow.
What? No wheelchair coming Wednesday......was SO looking forward to you getting more independence. Do not lose faith and remember that wonderful things do come for those patient enough to wait. New feeding tube this week instead of a wheelchair, sometimes you get want you need instead of what you want. Hang in there and we'll keep supporting you through this endeavor.
I've been watching your videos for 3 months, your so motivational!
I JUST WANT TO GIVE YOU A HUG.
Unfortionaly I don't have the economic to fly from Sweden to US Florida
BUT I'M WITH YOU IN MINDE AND HOPING THAT WHRN YOU READ THIS THAT GOD HAS REACHED IN TO YOUR JUJUMUM GRABD THE KINCK AND TUGGED IT STRATE FOR GOOD!!! 😊😘😉
KEEP MOVINH FORWARD!
Oh, and THANKS to Judd for his service!
Stay strong sweetie. But remember that you can stay strong with tears🙂. Praying for you and Judd.
Oh Jaquie watching that I felt like I could have just hugged you and cried with you ..... stay strong and I hope everything turns out well for you... sending you thoughts of love and support and a massive huge hug for you and Harlow too .... PS Harlow take good care of your Mum while Judd is away xxxx
I swear I dont know how you manage to stay so patient and positive. I would probably be swearing like a sailor and throwing things. But your ability to stay patient is helping me to learn a little as well. Praying that this gets sorted out very soon and you are not in too much discomfort.
I'm so sorry... I hope your weelchair will arrive soon and that the kink will be solved soon... I'm so sorry Jaquie💕💚
I understand frustrations with current situations you're going through. I myself lost my mom in January and my dad just passed away on 10/11. I'm in college and the rest of the family isn't around so I feel so alone and left out but watching your videos help me a lot because you're so positive.
I hope things turned around soon. You do have so much support and have a great additude . I hope that Judd comes back soon.
Oh no! I hope this all gets sorted out super soon. Hang in there, Jaquie!
Prayers sweetheart, you have a lot on your plate but you always push through and I admire that about you so much.
Please hold strong! Your great and we all love you
Chin up Jaquie. I will be praying for you too.
On top of everything my skin suddenly became reactive to the Tegaderm and/or the prep stuff I had been successfully using for months :/ Hoping it is a fluke thing and will settle soon.
+Chronically Jaquie go to the drugstore and get some Flonase (generic is fine). Spray it on the area a bit before you re-access your port and let it dry. When it's dry you can clean it and get sterile and do your normal accessing and it will reduce the irritation. I react to all adhesives bc I react to everything lol. My pain dr told me to do this when I was on fentanyl patches and it works. It's amazing. Hang in there fellow army wife!
I wish I saw this comment earlier! I'm also allergic to all adhesives, and just had my 48 hour heart monitor, and I reacted pretty badly. I need to try that Idea the next time!
There is a cavilon spray made by 3M that we use for dressings in the nursing home. It forms a barrier on your skin that will still allow dressings to stick. May help with reactions.
armywife4life78 I react with horrible hives and big blisters any time I have to use any adhesive product, I will have to keep this in mind next time and will have to use this tip. Thank you for this!
Ohh Jaquie bless you! Chin up my lovely, they’ll fix it for you and you’ll be back up in no time! I know it mustn’t be easy without Judd but We’ve got your back lovely! Sending you lots of love and thank you for bringing us on your adventure❤️❤️
I want you to know that even with this setback you have given me the motivation I need to finally after over 10 years with GP, say YES to a feeding tube! So THANK YOU!
I am a student in the area where your husband was most likely called and I just wanted to thank you and him for being brave enough to come into our community and try to keep everyone safe given the current situation at UF. Much love!!
It's ok to cry Jaquie. You have to let that frustration out somehow so you can summon the strength to carry on. It really sucks that Judd is being called out right now. I'm glad your mom is still living with you even though she has to work. God never gives you more than you can handle (although I have been in situations that I think God has forgotten about me, but He always brings through it.) He will bring you through this too. I truly believe that and I know you do too. I'm praying for you and thinking about you,
Noo!!! If anything can go wrong, it usually does. Don't mind me, I'm an eternal pessimist, haha! I would be panicking so much if my stoma (from the bladder) wasn't working (it sometimes happens), I admired how calm you seemed at the beginning. And Janice's comment was hilarious! She seems to have a similar sense of humour as me. Body transplant! :D
I'm always just amazed at how independent you are; I have terrible anxiety and I'm very dependent on my husband, I couldn't imagine having to deal with all your daily struggles and problems like this, particularly without having a partner there. You're amazing.
I watch you vlogs almost on a daily basis but have never commented. Everything will work out for you. Just Keeping Moving Forward as you always say. You give me the strength to try to keep moving forward as well. I get depressed because of the constant pain I am in everyday, but you are an inspiration to not just me, but to a lot of people. I just want you to know, we are behind you 100% and things will get better for you. You are in my prayers.
You’re so motivational and you really make me grateful for everything, just like you are. I cannot believe how positive you are, you’re absolutely amazing!
Your voice mail from Janice made me crack up! So sorry that you're having all these problems with your tube. Hope they can get resolved as quickly as possible.
I love your positive attitude Jaquie. You will indeed get past this. I love how you are looking into going back to college and on to a wonderful career that you enjoy. That would be so awesome!
Its so hard, your positive attitude no matter what happens really inspire me to keep pushing and staying positive. Thank you so much Jaquie!
Jacquie you are so sweet and try so hard to be positive with such difficult circumstances. I'm praying for you tonight and always!
I would be super frustrated too! I'm sorry this is happening but you're super strong & you'll get through this! You're a very strong person & my thoughts are with you!
I'm so thankful for your channel/videos. I've been struggling with a lot of abdominal pain for over 3months & I've had a CT scan, an ultrasound, a HIDA scan, & multiple blood tests, but the doctors still can't find the cause of my pain. You have helped me find some peace through this difficult journey! Thank you!!! 💛
I hope you get better Jaquie! you've helped me so much by watching your blogs when I'm stuck on bed rest from a surgery, and thanks to your videos I am slowly convincing my parents on getting me a service dog! ^^
Oh, Jacque, it will be okay! Keep having faith. A week from now you'll look back on this and you'll be grateful it is all in your past!
You are such a strong and resilient person. I don't know many people who would be able to go through all you have to deal with and still be able to vlog and smile and be patient and appreciative. This is another frustrating setback but you've been moving in the right direction and you've been improving so much lately. Hopefully, you and your doctors will find something that works better for you. In your words, keep moving forwards. Sending love and prayers for you and your family x
Also, definitely agree with Janiece's comment. Or maybe we can build factories with order to design bodies. That would be cool. I'd like an extra hand and eyes in the back of my head, so I can work on my laptop, eat and watch TV efficiently at the same time.
I am so sorry that things are getting messed up, Praying for you and Judd. You've got this!
We all love you and are here for you ❤
It’s like when Judd does leave, I realize how much he’s fun to have in the vlogs. Lol, hope you feel better and can get it fixed.
Keeping fingers, toes and cat tails crossed for you to get your replacement tubing ASAP! (Though if you find a supplier for a body transplant, I want in. ) I hope you got a good nights rest after such a hectic day.
We can't always have good days. Hope you have a better tomorrow. Keep moving forward. BTW loved Janice's comment lol
My husband says I need a new body all the time lol.
MC I really need a new brain!
I’m really sorry this day was particularly sucky. I’ll be keeping you in my prayers ❤️
This sounds like what happens when things go crazy with me! It seems like everything happens all at once. It always passes eventually! Stay strong, and sending you lots of spoons! Remember its okay to get emotional or frustrated. It happens, especially when you are dealing with chronic illness. Feel better! You will get through this, and you have tons of people on your side!
Hey! I’ve been watching your videos for a while now and I love watching you and all the adventures you all go on 💞 I don’t personally suffer from any chronic illnesses, and I can’t imagine how hard it must be, but I do suffer from quite a few mental ones, and your videos always remind me that even if you are going through a troubling time, everything will be alright! Thanks you, and I hope you’re ok! ❤️
If this looks like it might be an ongoing problem, I'd be asking my doctor if it was possible to order a spare replacement tube to have on standby. That way he could order the next one when he switches it out and there would be no waiting. Going multiple days without nutrition every few months is not ideal when it's a simple switch. If he has a spare one on hand and can change it out faster, then it shouldn't adversely affect the weight gain and progress you have already made.
Lyndel Turner it's not as simple as that most hospitals at least the bigger hospitals have access to whatever size they need and yes it can be pretty simply replaced by IR it's the frustration of waiting and with Jacquies body I don't know if IR can do it or if her GI prefers IR undersedation or anesthesia. It's just not as simple as having an extra on hand. That isn't the issue, if it was just the g tube easy fix just change it out, but with the gj tube it has to be wire lead into the jujunum. There's a lot more to it and depending on her Drs and their game plan not everyone will have the same plan. I'm sure she wishes it was just as easy to have an extra tube to ease the waiting game, but i like you thinking to speed things up, but i have a feeling with her special situations and possible side effects her drs would take more precautions, but I could be wrong.Like my son's Drs told me if his ever stops flushing or we have issues with not being able run feeds they want me to.stop feeds, depending on how long he's been without feeds get to er to confirm it's out of jujunum, if it is have them pull the tube and I have the back up coreflow they want me to put in till we can make our 6 to 8 hour trip to his hospital where IR can simply replace it, they might keep him for a night just because last time it dislodged 24 hours after put in.
My point was that not having one on hand could mean she has to go longer without nutrition unnecessarily. That not having one on hand could mean that there is an added wait, on top of the other complications posed by Jaquie's situation. I in no way intended to trivialize the procedure when using the word 'simple'. I do understand that they sedated Jaquie for her last replacement, and understand that there is a likelihood that they may likely do so for this instance. The difference being that if her GI did have a spare on hand, he may be able to get her on his schedule to replace it without having to wait the 'extra' time for it to arrive.
Jaquie gave me the impression in this vlog, that she believes, this could be a reoccurring situation due to the positioning of her tube/button. If it is a foreseeable reoccurring complication I would expect a specialist to be prepared for that eventuality in future by securing an additional GJ tube/button for when this occurs.
I understand what you're saying now, sorry I misunderstood, but I'm not saying it's never done but I have yet to see it done especially in an immune deficit person because it is another probable source of infection, and that could be very dangerous. I like your thinking but I doubt that it's feasible, but again I could be wrong. I just pray she gets it replaced and a plan in place in case this does become a frequent occurance.
I would assume they come in sterile packaging much like all medical supplies, so there would be no risk of infection.
Yes that is true they do but if they were to place another site for it to go into that is a hole that is cut into the body and stomach with the j part of the tube wire fed into the jujunum. It's not the packaging that is a risk it is the risk once it is out of the package into the body because as soon as it hits the air it's nonsteril unless done in the operating room where the entire environment is sterile plus it's a foren object into the body which always gives risk of infection and the body not tolerating it. It is constant care to keep these sites clean because it leads directly into the body. Same thing with the port site where Infusions are done there's a risk there as well in cases like Jacquies and my son the Drs decided the the benefits outweigh the risk but that doesn't mean that infection to any of the sites anyone has isn't a factor because it comes in sterile packaging.
Hey Jaquie wow, what a rollercoaster. Hang in there. I had an awful day Monday but getting some sleep helped a lot, I felt much better. Hang on and good luck!
Oh my goodness girl! I’m praying for you! Everything happens for a reason! I had a really bad day too on Tuesday as well. So your not alone! Have Hope!😘❤️
Jaquie is such a strong person , 👍 i would be on the floor crying . I even get sad when i watch her in some of her videos.
You just can't catch a break! Every time it seems like things are finally coming together for you and you're on an upswing, everything just falls apart. I'm so sorry, and I feel for you. Know that you're in my thoughts and I'm sending all the positive vibes your way. I hope the change happens quickly and goes smoothly, that you and your care team can figure out how to prevent this in the future. Also hoping Judd gets back as soon as possible.
Saying a prayer for you, Jaquie. Everything will be okay. Stay strong!
Sending all the best vibes Jaquie!!! Hope everything gets settled soon. You have a ton of support and are so strong. Keep moving forward!
Please know that i am with you during this difficult time and that all my wishes are for these issues you have been having to be sorted out as quickly as possible x Also thoughts with Judd too to keep him safe
Sending my love! ❤️It sucks when there's problems like this when you just want to be better again.
You have a time to be frustrated but you also have an amazingly positive attitude. You are in my thoughts and prayers, God bless!
I’m so sorry that this has come all at once :( I’ve had a really rubbish day today too, so can sort of empathise. But I don’t know how you find the energy to keep moving forward. You are so strong, sending you all my best wishes xx
I am so sorry this day was so hard for u 😔 but like u said it WILL get better! We're here to go thru it with u and support u thru th good days and bad ones! 👍
hang in there Jaquie you got this never give up we are rooting for you
Bless your heart Jaquie. I wish I could do something to help you. When it rains it pours. I know you have the support of Janiece and your mom while Judd is away. Hang in there. Know that all your vlog friends are also here for you. Ask Harlow for extra snuggles.
Oh no :( Praying for you both. Hopefully things will pick up soon.
Oh Jaquie, hope they can solve it! I know what it's like to feel down from medical issues, it sucks. I just hope you can get your nutrition as soon as possible!
Oh no! That was quite a set of unfortunate events and I understand that you feel down... It's very frustrating when we make progress in one area only for something else to have a setback. You missing Judd also doesn't help. And if you couldn't really get any nutrition for an entire day.. well, I know I get "hangry" when I just skip one meal. I hope they can switch the tube out really soon so you can get back to moving forward. Can they give you nutrition in some other temporary way if things move too slowly? Can you get calories through an IV? I'm totally clueless about that sort of thing. But as you said, things will work out. We're all hoping it will be sooner rather than later!
Oh, Jaqui - we're sorry it's all such a mess-& no Judd! May tomorrow be a better day, Sweetheart.❤️
Old nursing trick to try and get rid of clogs... use very small syringe (even smaller than what you had. 10cc works pretty well), but good old meat tenderizer will usually work, especially when RC Cola and/or Coke have failed. Kinks are a pain in the... tummy.
You do such a good job of staying positive. That is why I love your videos. But sometimes things just suck! And I am sorry you are going through this, but I know you will keep moving forward! My thoughts and prayers are with you right now.
I hope you feel better and get the new feeding tube quickly Jaquie
I don't know what to say, you poor girl, but I am sending love and comfort across the Atlantic to you, and I keep my fingers crossed for a speedy resolution to your feeding tube problems.
You’re in my prayers Jackie!!
aaawwhhh Jaquie, pull through girl! determination and prayers for you!
I work in the ER we get so many people coming in for problems with their tubes. We get so many people in with feeding tube problems and port problems. It's interesting to see you vlog your side of the problem
I hope you feel better and get all the " kinks" whole heartedly worked out! God bless you, Harlow, Judd, your mom and Janice and get hubby. Much love and blessings from B.C., LINDA 😇
Oh no.😢
Prayers to you❤, Judd and Harlow🐶 Hugs and positive vibes from Oregon.🌴
Seems like it's always two steps forward and one step back. Oh, life!
Praying for you, To bad they, with all the technology we have in science in medical field that they haven’t come up with a solution. It’s obviously an ongoing problem, not only with you but with other people. Much love to you. Persevere and stand strong. Hugs from Donna & Kitty 🙏🏼❤️🐾🌈
Hang in there girl! At least Judd will be in country. I can say my husband is in the Georgia Air National Guard and he and his aircraft were called to Puerto Rico. Right now they are sling loading sand bags to repair a dam. There is no cell service in most of the are so he messages me when he can. It reminds me of when he went to Kosovo just after we got married 16 years ago when I was lucky enough to hear from him once a month. Hang in there bc you have got this! It could be worse. If you need anything or just want to talk to another army wife feel free to contact me on messenger through Facebook armywife4life78 Casey Thompson or instagram beautybroken78. I'm here for you. Sending hugs your way!
Bad days come and they go, like everything else, this will also pass. You have the best mindset but it still sucks. No shame in that. Sending so much love and support your way!
much hugs to you! it sucks when things like this happen i know how that happens with my own health issues and such. when it rains it pours... you'll make it through.
Hopefully tomorrow is a better day, and maybe your new tube will give you less problems 💚
HUGE Bummer!! Hope they get this fixed quickly.
We love you! We’ll be praying for you!
love you so much 😍❤️ You give me soooo much hope. and i love your family!!!
Its good that you have a bigger hospital near you. We only have a very small hospital 30mins away and the bigger one is two hours away (but it still isn't that good) so mostly if there is a problem that our small hospital if it is an emergency people are flown by helicopter to the city, which happened to my mum and we couldn't all go in the helicopter with her so my little brother and I had to take a seven hour train trip to meet up with my mum and dad in the city. It has been a hectic couple of weeks
Oh Jaquie hang in there girl. Sending prayers your way. God bless
God bless Judd and keep him safe!
Positive prayers coming your way sweeetie
So sorry!!!! You did a great job trying to handle all of that....it was so much!!! Hugs!!!
Praying for you . You are so strong and so positive. I'm really sorry you have to do this. Your mom is so sweet. I love you stay positive girl. God bless.
Sending prayers for you. I know how difficult this is for you, and I wish there was more I could do. Just know you have the support of your family, friends, and RUclips family to get you through all this.
I'm sorry frustrating things are happening. I do hope that all will go right soon!
I'll be praying for you from Spain!! I'm sure things will get better
I'm so sorry :( Hoping this gets solved quickly.
Sending prayers. ❤️ Stay positive. I hope you get the new tube very soon.
Sorry for all the frustration Jaquie! I know you're stressed, but you'll get through this! Hopefully your wheelchair will be there soon.
Keeping you in my prayers! 💖 you Jaquie!
I'm so sorry to read that. Your a inspiration to us so we r all praying for you. Next tube will be the one.....
OH Jaquie I am so sorry things are not going well for you right now. God will work it out. Be strong and know that you are not alone.
Hugs! I pray it all works out!
What a rough day :( I hope they can resolve the tube issues asap and you can get back on your nutrition. :) x
Oh carp. I'm so sorry about everything! This too will pass but it sure is tough. Just do your best, that's all you can do. Peace to you.
You are a trooper'
Keep up the positive attitude.
Glad before today you have been improving In other areas.
Snuggle with Harlow..'
It seems like with chronic illness there are days/weeks when things are going along normally and then there are days/weeks when EVERYTHING goes wrong; it's as if there's no in between. That's how things tend to go for me anyways. I really feel for you; you must be feeling just so frustrated and exhausted. My pup and I send you lots of extra love and spoons
I know how you feelwith Judd getting called to work at the most inconvenient times. My sister is in the army and always has things related to the army to do on most of the family’s birthdays. Especially mine.
Let go let God. I work on that all the time. You've got this. And we'll all be thinking of/praying for you.
I’m sorry you poor thing shit happens I’m praying for you just keep moving forward life is too short don’t give up on hope I’m on your side 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Can your doctor order an extra feeding tube for you? So when your feeding tube stops working or kinks or anything like that you can replace it immediately (or at least very quickly) instead of having to wait a few days for a new one to arrive?
Sophie Van Der Sinckt replacing a g tube orj tube is easy.. however she has a GJ tube which involves threading an extension from the stomach to the intestines and cannot be done at home
Im going to guess he is part of the national guard.....you are soooo resilient. God Bless you.