Had the laser surgery to remove prostate in July 2015. My psa was 7.5 (had doubled) and gleason score was 3+4 . They said cancer had not spread out of prostrate. But 18 months later psa started to rise again and subsqently had 35 radiation treatments. PSA score went to zero. But now constant pain in hip. Will get psa score this week and see Dr. According to the video I may now be a candidate for bone hip metastases . Hate this cancer crap it never leaves u alone. At least the videos give me information and hope. I am determined to get psmapetscan to learn my options.
I had a Robot Assisted Prostatectomy April 28th, 2020. I had Gleason 9, Grade cancer, but only had a PSA of 8.4 at the time of the surgery. They did not check my PSA for 12 weeks after surgery because of a potential false positive, but when the finally did, my PSA was 52+. Thinking something may be wrong we did another test a week later and it was over 67, two weeks after that it was over 165 in August of that year. I was immediately transferred to oncology care in lieu of my urologist. They put me on hormone therapy, Lupron and Erleada and by March of 2021 it was down to 0.20. However since then it has been rising is now back to just under 12 in about a year. My doctor seems to be reluctant to do imaging with the PSMA-PET scan, but to me this is going to be the only way to really get to why my PSA is exploding. According to bone scans and CT Scans in the first part of January, everything is stable and some locations have been resolved. Am I right to demand the PSMA scan? And they have told me that they have one.
Late reply here, but according to the information from Dr. Kwon and these educational videos a PET PSMA should be repeated every 3 months if I understood correctly. PSA every 4-6 weeks. Your Dr. should know that PET PSMA is superior in finding metastatic lesions (the ones smaller in size). I hope you insisted on it. Have you ever had one?
Sorry to hear that Supo. Feel free to contact our helpline if you have any questions about optimal treatment or anything like that. Our contact information is here: pcri.org/helpline
Diagnosed in March 2022 with Gleason 4+4 after biopsy, PSA was 8.12. After being referred to Radiology Oncologist treatment recommended was IMRT (28 treatments) and 18 months of hormone therapy composed of Casodex (daily) and Lupron (every 3mos.) Second opinion at Stanford concurred. In April, one Mets sclerotic area on left hip ilium after CT Scan. Bone biopsy confirmed positive. Treating doctor wants to include 6 months Chemotherapy because of the bone mets. Stanford says since only one area on bone mets, it can be radiated and that the chemotherapy wouldn’t be necessary. I’m inclined to go with Stanford doctor recommendation.
First of all, appreciate the details as you are not alone in Stage 4 at diagnosis. Have you gone ahead with that treatment plan (minus chemo?) and, if so, what portions of it are simultaneous. And how is it going? From what I’ve heard, hitting it early and hard is the way to go and it sounds like that is the plan you and your docs have in mind.
My brother in law died on March 10, 2024 after being diagnosed only 5 months earlier. Prostate cancer became bone cancer. Unfortunately, he either had no prostate cancer symptoms of ignored them. By the time he was a doctor, it was too late. Guys, please, get yearly bloodwork at the very least.
Why is the FDA not fast-tracking the approval of Lutetium? It is a sad statement about health care in the United States when our patients are forced to travel to other countries to receive this potentially life extending treatment, and must pay all expenses (which can be astronomical) out-of-pocket. Nearly all of the patients who do this have run out of other treatment options.
I had prostate surgery last year. Psa went up over the year. A PMSA pet scan shows spots on left should, left 5th rid and on the spleen. I will be doing l7pron for life. A blocker drug for the testosterone and predizone. Waiting to start. Also, doing chemo 1 every 3 weeks for a 18 weeks. See wlhat works .. dr. Told me to continue to run,bike,swim ( triathlete) and boxing a heavy bag.
All very interesting. The question then is, what exactly causes so many to die from this each year? It seems there would be both a primary and secondary cause of death, e.g., liver failure secondary to Pca, etc. I'd like to know the breakdown. I enjoy your videos !
I must have a case for medical malpractice or even negligence since none of what he said about early detection being extremely rare prevented my bone metastasis. Anyone out there know a good attorney for me to contact about this ?
Hi, very informative video. My father is suffering from prostrate cancer, metastasized, spread to lungs as well according to reports. My fathers PSA is 5.369. For somedays blood from throat and urine was there. They performed CT Scan, lungs and prostrate biopsy. Gleason score is 4+3= 7 and grade group is 3. Dr. recommended hormonal therapy and to go under chemotherapy. Patient has given Degarelix 120 injection and blood from throat and urine has stopped. We are very fearful to go under chemotherapy since I had seen some known persons who collapsed during chemotherapy. Any suggestion for me shall be highly appreciable. Thank you
Look up Joe tippins protocol. I'm 3 plus months into it and clear psa..had bone spot radiation and lupron shots also with gleason 9...so far so good...
i dont understand when you are saying if a person is willing to excise and keep the muscle mass but then knowing that the person is probably suffering from very low T"s 🤔
I wish Dr Scholz would stop referring to regular PSA testing as the 'proper thing'. Such terminology places the blame on patients who are under enough stress as it is. Many men who are diagnosed with aggressive, metastatic prostate cancer are under the age of 50. In Australia men without family history are not encouraged to have regular PSA tests until they turn 50. My husband was diagnosed with stage 4 prostate cancer at 45 years old. We were completely blindsided by the diagnosis, as was our GP and oncologist. The way language is used is important, particularly when you are talking to a vulnerable and distressed population.
Help! Help! - I’m seeing my orthopedic on Friday hopefully 🙏 to guide me into my next steps? I had a lost biopsy March 2022’ my psa around that time was 6-12’ after a few years gradually moving up ‘ By the time I decided and eventually get approved for a 2nd biopsy prostate my psa went from 16 to 32 - and doing a PET-CT was 64 and my annual with my PC after biopsy and PET-CT he told me annual lab 132 psa! - my trouble started about 4-5 months ago’ right Hip locking up ‘ painful to get upright’ limping while walking in pain’ lower back pain’ all constant especially pain sleeping and both knees’ night pain! Cancer spread to bone per biopsy and eat-CT - why so much pain and walking and bending right hip locking up pain?
I had prostate removed...3 months clear psa...6 weeks later .21 psa...did psma scan with 1 spot on hip bone...3 radiation treatments with lupron on board and started Joe tipping protocol and 2 months later undetectable. Staying on Joe tipping protocol..fenbendazole...liver blood looks good. Good luck 👍
I have stage 4 lung cancer! Then metastases on my femur bone and tail bone. I am 77yers old. i am going through radiation and chemo! Thank God i feel no pain Very tired and weak!
Wonderful, always. Isn’t your host a Priceless Gem Doctor. Brilliant, Beautiful, Articulate, so comfortable with format, camera, etc..... As if God sent her to you / us. Thank you so much
61 years old. My PSA in 2020 was 3.9. Two years later PSA 7.4. One month later 8.5. Prostate Biopsy found 4 + 4 =8 Stage 4. Having my Prostate taken out soon. Going Tuesday for bone scan. Will find if The cancer has jumped from Prostate to my Pelvic area. Or more. Really scared at this point. Surgery is weeks away. Because the surgeon will be on Holiday and conventions. Gives me time to regroup and look at my options. But don't want wait. Where do I go from here? 6-18-2022. Shawn.
@@factfactory3663 After talking with my Radical Robotic Prostate Surgeon. My wife and I decided to have the surgery. I passed the bone scan. No mastitis to any bones yet. We believe the cancer is still inside the Prostate. My Surgeon is a very a busy Doctor. More tests like MRI and chest x-ray are needed before surgery. My Doctor interviewed me. I interviewed him. He is rated 4.95 out out of 5. I feel going into surgery. That this is the best route for me. I feel like a walking time bomb. Waiting is the hardest part. At 61 I am still working. Researching the Robotic Surgery. I do alot of heavy lifting so I believe I will need to be healed very well along with the inconsistencie issue's must be close to full resolved. To go back to work. Best case. I am without any cancer. Worst case chemical castration. Shawn.
I have been diagnosed with prostate cancer with skeletal metastasis, My PSa was820. I am on harmon therapy for the last two months with Leuprollide accetate and Abiraterone accetate. My PSA has come down to 27. I am feeling stiffness in my knees and legs and get tired on walking. I do walking of 30 to 40 minutes. Should I opt for chemotherapy now? Please advise. I am of 70 years
Hello, Feel free to contact our free helpline. We have a patient advocate who will call you and may be able to provide you with some information: pcri.org/helpline
I had been checked yearly, however in one year my PSA went from 4 to 19, ended up having a biopsy, Gleason score of 9, had radiation nu surgery because cancer had spreads into some lymphnodes. now after a year, it has spread into right rib# 8 and in lower spine, Xtandi and Lupron injections twice a year
65 Year old father 226PSA and gleascon score 9 after biopsy. Bone scan and CT scan came back clear except for one 10mm right external illiac lymph node involvement. All bones and organs were clear from these scans on SEP 3rd 2022. Nov 10 2022 he started 240mg of firmagon. Since the bone scan and CT Scan are two months old they are having him redo these two scans.. can I ask you what the odds are that this has spread further over the 2 months from the September scans to the Nov 10th firmagon treatment? Oncologist is also telling his he will likely have a 5 year life expectancy if any further spread.Do we accept this or do we have treatment options that could give him better odds at a 10+ year lifespan? Asking so I know what to ask when I go with him to the next appointment on Dec 9th
Age 74 yrs Gleason score 4+3 in situ adenoma carcinoma of prostate recent treatment, prognosis with & without treatment . PSA since feb reducing 15 , 13, now 11.4 ng/ ml
Greetings, Thank you so much for your candid objective priceless information ladened videos. My story,..... Prostate cancer diagnosis at 46 , has finally metastasized to brain, MRI showed what looked like miningioma, surgeon went in and found prostate metastasis , other spots possibly,trying to decide on psma pet ct experimental trial going on now or just go with what’s been approved already, disqualifying me from future trial use of this new contrast agent, real delima UCLA is participating $3k I think...worth it.?.?..
Hello, please call us at 310-743-2116 (or you can send an email at pcri.org/helpline) and we will set you up with a call from a patient advocate to discuss your situation. There are never any costs for this service.
Kudos for trying, but the female presenter's voice is still (at times) barely audible - projected at what sounds like less than half his volume - and she tends to swallow the last few words of most questions. Really appreciate the Closed Captions you've added!
Had the laser surgery to remove prostate in July 2015. My psa was 7.5 (had doubled) and gleason score was 3+4 . They said cancer had not spread out of prostrate. But 18 months later psa started to rise again and subsqently had 35 radiation treatments. PSA score went to zero. But now constant pain in hip. Will get psa score this week and see Dr. According to the video I may now be a candidate for bone hip metastases . Hate this cancer crap it never leaves u alone. At least the videos give me information and hope. I am determined to get psmapetscan to learn my options.
I had a Robot Assisted Prostatectomy April 28th, 2020. I had Gleason 9, Grade cancer, but only had a PSA of 8.4 at the time of the surgery. They did not check my PSA for 12 weeks after surgery because of a potential false positive, but when the finally did, my PSA was 52+. Thinking something may be wrong we did another test a week later and it was over 67, two weeks after that it was over 165 in August of that year. I was immediately transferred to oncology care in lieu of my urologist. They put me on hormone therapy, Lupron and Erleada and by March of 2021 it was down to 0.20. However since then it has been rising is now back to just under 12 in about a year. My doctor seems to be reluctant to do imaging with the PSMA-PET scan, but to me this is going to be the only way to really get to why my PSA is exploding. According to bone scans and CT Scans in the first part of January, everything is stable and some locations have been resolved.
Am I right to demand the PSMA scan? And they have told me that they have one.
Late reply here, but according to the information from Dr. Kwon and these educational videos a PET PSMA should be repeated every 3 months if I understood correctly. PSA every 4-6 weeks. Your Dr. should know that PET PSMA is superior in finding metastatic lesions (the ones smaller in size). I hope you insisted on it. Have you ever had one?
Bless you all for such invaluable discussion for us all men🙏
As always very informative. Thank you!
This channel is a gold mine of credible information. Thank you so much for the work you do.
My Father was diagnosed with Advanced pc 1 year ago, he is in treatment but seeing him in so much pain is hard to deal with 😥
Sorry to hear that Supo.
Feel free to contact our helpline if you have any questions about optimal treatment or anything like that. Our contact information is here: pcri.org/helpline
Diagnosed in March 2022 with Gleason 4+4 after biopsy, PSA was 8.12. After being referred to Radiology Oncologist treatment recommended was IMRT (28 treatments) and 18 months of hormone therapy composed of Casodex (daily) and Lupron (every 3mos.) Second opinion at Stanford concurred.
In April, one Mets sclerotic area on left hip ilium after CT Scan. Bone biopsy confirmed positive. Treating doctor wants to include 6 months Chemotherapy because of the bone mets. Stanford says since only one area on bone mets, it can be radiated and that the chemotherapy wouldn’t be necessary. I’m inclined to go with Stanford doctor recommendation.
First of all, appreciate the details as you are not alone in Stage 4 at diagnosis.
Have you gone ahead with that treatment plan (minus chemo?) and, if so, what portions of it are simultaneous.
And how is it going?
From what I’ve heard, hitting it early and hard is the way to go and it sounds like that is the plan you and your docs have in mind.
My brother in law died on March 10, 2024 after being diagnosed only 5 months earlier. Prostate cancer became bone cancer. Unfortunately, he either had no prostate cancer symptoms of ignored
them. By the time he was a doctor, it was too late. Guys, please, get yearly bloodwork at the very least.
Saw a doctor, not was a doctor.
Lutetium 177 IS now available in the US. It is called PLUVICTO.
Pluvicto is not a cure but monoclonal antibodies has. 100% success with no side effects !
4004 psa. Reduced to teens. Now up to near 800 rising. Thoughts?
Why is the FDA not fast-tracking the approval of Lutetium? It is a sad statement about health care in the United States when our patients are forced to travel to other countries to receive this potentially life extending treatment, and must pay all expenses (which can be astronomical) out-of-pocket. Nearly all of the patients who do this have run out of other treatment options.
I had prostate surgery last year. Psa went up over the year. A PMSA pet scan shows spots on left should, left 5th rid and on the spleen. I will be doing l7pron for life. A blocker drug for the testosterone and predizone. Waiting to start. Also, doing chemo 1 every 3 weeks for a 18 weeks.
See wlhat works .. dr. Told me to continue to run,bike,swim ( triathlete) and boxing a heavy bag.
Kaiser is killing me..
All very interesting. The question then is, what exactly causes so many to die from this each year? It seems there would be both a primary and secondary cause of death, e.g., liver failure secondary to Pca, etc. I'd like to know the breakdown. I enjoy your videos !
Hello, our prostate cancer helpline may be able to help with your question. Please feel free to contact us here: pcri.org/helpline
@@DG-ie5ip Dennis how did this turn out for you? Was there more cancer?
I must have a case for medical malpractice or even negligence since none of what he said about early detection being extremely rare prevented my bone metastasis. Anyone out there know a good attorney for me to contact about this ?
Hi, very informative video. My father is suffering from prostrate cancer, metastasized, spread to lungs as well according to reports. My fathers PSA is 5.369. For somedays blood from throat and urine was there. They performed CT Scan, lungs and prostrate biopsy. Gleason score is 4+3= 7 and grade group is 3. Dr. recommended hormonal therapy and to go under chemotherapy. Patient has given Degarelix 120 injection and blood from throat and urine has stopped. We are very fearful to go under chemotherapy since I had seen some known persons who collapsed during chemotherapy. Any suggestion for me shall be highly appreciable. Thank you
Hey how is your father now......... kindly update my father is detected with similar bone and lung mets
@@jerrysingh1617 what his symptoms before diagnosis may I know?
@@BimboTV no symptoms at all just some gas and weakness
Look up Joe tippins protocol. I'm 3 plus months into it and clear psa..had bone spot radiation and lupron shots also with gleason 9...so far so good...
i dont understand when you are saying if a person is willing to excise and keep the muscle mass but then knowing that the person is probably suffering from very low T"s 🤔
I wish Dr Scholz would stop referring to regular PSA testing as the 'proper thing'. Such terminology places the blame on patients who are under enough stress as it is. Many men who are diagnosed with aggressive, metastatic prostate cancer are under the age of 50. In Australia men without family history are not encouraged to have regular PSA tests until they turn 50. My husband was diagnosed with stage 4 prostate cancer at 45 years old. We were completely blindsided by the diagnosis, as was our GP and oncologist. The way language is used is important, particularly when you are talking to a vulnerable and distressed population.
I would like to know what is the prognosis of a person with bone metastases at age 60?
Hello, our prostate cancer helpline may be able to help with your question. Please feel free to contact us here: pcri.org/helpline
@@ThePCRINo body replies at this site
I have been diagnosed with prostate cancer with skeletal metastatsis.my PSa was 820. I am getting hormone therapy for the last two months with
How are you feeling now? What was ur Gleason score
What are your symptoms bro
Help! Help! - I’m seeing my orthopedic on Friday hopefully 🙏 to guide me into my next steps?
I had a lost biopsy March 2022’ my psa around that time was 6-12’ after a few years gradually moving up ‘
By the time I decided and eventually get approved for a 2nd biopsy prostate my psa went from 16 to 32 - and doing a PET-CT was 64 and my annual with my PC after biopsy and PET-CT he told me annual lab 132 psa! - my trouble started about 4-5 months ago’ right Hip locking up ‘ painful to get upright’ limping while walking in pain’ lower back pain’ all constant especially pain sleeping and both knees’ night pain! Cancer spread to bone per biopsy and eat-CT - why so much pain and walking and bending right hip locking up pain?
Look up Joe tippins protocol...I'm 3 months in with success after bone spot radiation and lupron and on months 3 of protocol and clear psa...good luck
My sister is also suffering from bone metastasis. Waitnig for er pr result .
I had prostate removed...3 months clear psa...6 weeks later .21 psa...did psma scan with 1 spot on hip bone...3 radiation treatments with lupron on board and started Joe tipping protocol and 2 months later undetectable. Staying on Joe tipping protocol..fenbendazole...liver blood looks good. Good luck 👍
Pluvicto is not a cure ! It will only buy you some time until AOH 1996 discovered y the City of Hopembecomes available.
I have stage 4 lung cancer! Then metastases on my femur bone and tail bone. I am 77yers old. i am going through radiation and chemo! Thank God i feel no pain Very tired and weak!
And now?
Wonderful, always. Isn’t your host a Priceless Gem Doctor. Brilliant, Beautiful, Articulate, so comfortable with format, camera, etc..... As if God sent her to you / us. Thank you so much
How do i get in touch with him..i am from india and need suggestions
In USA, psma pet scan has been FDA approved at UCSF and UCLA only as of 2021.
F18 PET scans have also been approved in mid 2021.
61 years old. My PSA in 2020 was 3.9. Two years later PSA 7.4. One month later 8.5. Prostate Biopsy found 4 + 4 =8 Stage 4. Having my Prostate taken out soon. Going Tuesday for bone scan. Will find if The cancer has jumped from Prostate to my Pelvic area. Or more. Really scared at this point. Surgery is weeks away. Because the surgeon will be on Holiday and conventions. Gives me time to regroup and look at my options. But don't want wait. Where do I go from here? 6-18-2022. Shawn.
What happened with you now please tell me my father's PSA level is 80 ng/ml
@@factfactory3663 After talking with my Radical Robotic Prostate Surgeon. My wife and I decided to have the surgery. I passed the bone scan. No mastitis to any bones yet. We believe the cancer is still inside the Prostate. My Surgeon is a very a busy Doctor. More tests like MRI and chest x-ray are needed before surgery. My Doctor interviewed me. I interviewed him. He is rated 4.95 out out of 5. I feel going into surgery. That this is the best route for me. I feel like a walking time bomb. Waiting is the hardest part. At 61 I am still working. Researching the Robotic Surgery. I do alot of heavy lifting so I believe I will need to be healed very well along with the inconsistencie issue's must be close to full resolved. To go back to work. Best case. I am without any cancer. Worst case chemical castration. Shawn.
How did the robotic surgery work out?
@@shawnbeck2303 how you doing Shawn
Look up Joe tippins protocol...I'm on it with good results
I have been diagnosed with prostate cancer with skeletal metastasis, My PSa was820. I am on harmon therapy for the last two months with Leuprollide accetate and Abiraterone accetate. My PSA has come down to 27. I am feeling stiffness in my knees and legs and get tired on walking. I do walking of 30 to 40 minutes. Should I opt for chemotherapy now? Please advise. I am of 70 years
Hello,
Feel free to contact our free helpline. We have a patient advocate who will call you and may be able to provide you with some information: pcri.org/helpline
Please guide me my father's PSA level is 80 ng/ml
Docetaxil seems to be the best drug today.
Nice 👍🏻 lady 🎉
I had been checked yearly, however in one year my PSA went from 4 to 19, ended up having a biopsy, Gleason score of 9, had radiation nu surgery because cancer had spreads into some lymphnodes. now after a year, it has spread into right rib# 8 and in lower spine, Xtandi and Lupron injections twice a year
Have you considered Chemo?
my sister is suffering from bone bonemetastasis....i dont know what haapen this case...plz give yr suggestion
Is your sister fine now?
65 Year old father 226PSA and gleascon score 9 after biopsy. Bone scan and CT scan came back clear except for one 10mm right external illiac lymph node involvement. All bones and organs were clear from these scans on SEP 3rd 2022. Nov 10 2022 he started 240mg of firmagon. Since the bone scan and CT Scan are two months old they are having him redo these two scans..
can I ask you what the odds are that this has spread further over the 2 months from the September scans to the Nov 10th firmagon treatment?
Oncologist is also telling his he will likely have a 5 year life expectancy if any further spread.Do we accept this or do we have treatment options that could give him better odds at a 10+ year lifespan?
Asking so I know what to ask when I go with him to the next appointment on Dec 9th
Age 74 yrs Gleason score 4+3 in situ adenoma carcinoma of prostate recent treatment, prognosis with & without treatment . PSA since feb reducing 15 , 13, now 11.4 ng/ ml
Greetings, Thank you so much for your candid objective priceless information ladened videos.
My story,..... Prostate cancer diagnosis at 46 , has finally metastasized to brain, MRI showed what looked like miningioma, surgeon went in and found prostate metastasis , other spots possibly,trying to decide on psma pet ct experimental trial going on now or just go with what’s been approved already, disqualifying me from future trial use of this new contrast agent, real delima UCLA is participating $3k I think...worth it.?.?..
Hello, please call us at 310-743-2116 (or you can send an email at pcri.org/helpline) and we will set you up with a call from a patient advocate to discuss your situation. There are never any costs for this service.
I'm going through this now.
What's your symptoms
Informative
Kudos for trying, but the female presenter's voice is still (at times) barely audible - projected at what sounds like less than half his volume - and she tends to swallow the last few words of most questions. Really appreciate the Closed Captions you've added!
Perfectly clear on my Apple MacBook Pro - upgrade ?
I felt she had a beautiful, soothing voice, very clear on my iPad. Maybe check your equipment?