2021 School Adaptations for vEDS - Jared Griffin

This presentation is from the 2021 EDS ECHO Summit: Vascular Ehlers-Danlos Syndrome (vEDS). www.ehlers-dan...
Jared Griffin is the Founder & CEO of Annabelle's Challenge, a UK-registered charity supporting patients and families affected by vascular Ehlers-Danlos syndrome.
Jared's daughter, Annabelle, was diagnosed with Vascular EDS in December 2012 aged 3, at that time she was the youngest to be diagnosed in the UK. Jared set up Annabelle's Challenge in January 2013 and works closely with the EDS National Diagnostic Service. His role includes managing the charity, raising funds for research and providing management, support and advocacy for the vascular EDS community.