The Path Forward: Remembering Willowbrook - Full Documentary
HTML-код
- Опубликовано: 13 июн 2024
- After watching this film, please take 2 minutes to complete the following survey so we can understand the impact: www.surveymonkey.com/r/Willow...
2022 marked the 50th anniversary of Geraldo Rivera’s New York exposé of Willowbrook State School, which at that time was the largest institution in the world for people with disabilities. This 1972 exposé, entitled Willowbrook: The Last Great Disgrace, shocked the nation and forever changed the treatment of people with disabilities across the country.
In recognition of this landmark moment, the Council on Developmental Disabilities has produced a half-hour documentary highlighting the importance of lessons learned, positive change that resulted, and the legacy of Willowbrook. The Path Forward: Remembering Willowbrook is a celebration of inclusion for people with disabilities in all aspects of community life
Disclaimer : This video was produced before the agency changed its name to the New York State Council on Developmental Disabilities (CDD). It contains references and logos of our former title, The Developmental Disabilities Planning Council (DDPC). Despite the different name, this is the same agency.
Learn More about the Willowbrook Story
Watch the documentary screening event with a panel discussion from key players of the Willowbrook story: • The Path Forward: Reme...
Here more of the story from Geraldo Rivera and Bernard Carabello: • Remembering Willowbroo...
Here more of the story from Dr. Michael Wilkins and Bernard Carabello: • Remembering Willowbroo...
Find the documentary version that is accessible to you.
Watch an audio descriptive version of the documentary: • Audio Descriptive Docu...
Watch the documentary with Spanish captions: • The Path Forward: Reme...
Watch the documentary with captions in Traditional Chinese: • The Path Forward: Reme...
Watch the documentary with captions in Simplified Chinese: • The Path Forward: Reme...
Follow the CDD on Facebook: / nyscdd
Follow the CDD on Instagram: / nyscdd
Follow the CDD on Twitter: / nyscdd
Follow the CDD on LinkedIn: / nyscdd
That could of had been me. I was misdiagnosed at age five of profound mental retardation because I was not talking and did not respond to the psychologist. My patents refused to believe the doctor and took me home and raised me as one of the family. They refused to have me placed in a institution. I am now 60, work as a teacher specializing in autism for over 20 years and living on my own.
God bless
May God bless you.
Those poor people thank God something was done
Thank you for what you do.
God HAS blessed him 😇🙏💯💞
I was born with epilepsy.
Docs told my mom to put me in an institution.
She told them he'll no . And raised me herself.
Thank you momma .
My sister was born in 1978 with a severe form of muscular dystrophy.
Doctors told my mom it would be best for everyone if she were institutionalized.
My mom refused, took her home, and did her best to raise a confident and adept child.
Though wheelchair-bound and unable to use her arms or legs, my sister went on study at Stanford University.
By age 27 she had earned 2 bachelors degrees, 2 masters degrees, and a PhD.
She is now a tenured professor, mother, published author, painter, and has travelled the world.
I, too, earned 2 bachelors degrees, 2 masters degrees and a PhD. My undergraduate degrees were in mathematics and physics, masters degrees in pure and applied mathematics and my PhD in mathematical physics. I suffered from schizophrenia, but triumphed despite my illness. I have been in remission for many years and am enjoying retirement.
That’s incredible. It makes me so sad that was the societal norm was to “lock away” anyone whom was different or “made the family look bad”. She sounds incredible.
Excellent! Perfect examples of what society should know about in order to "change society's attitude" towards the mentally ill as was suggested in this video. There has to be some kind of spark in people that determined, I suppose being raised with love and self-confidence is one of keys! Every child should be raised with both!
Life doesn’t happen to you. It happens for you….
Dr . Wayne Dyer..
Holy wow! I’ll never complain about nonsense again. That is absolutely amazing.
My oldest sister was born with Down's Syndrome. Back in the 50's, people just had their kids put in mental institutions, not my parents. My sister lived at home till her passing at the age of 54. My mom became an advocate for education for the mentally disabled in our home town and was an Special Olympic's coach many years.
May God bless your mom.
What did she die from?
@@Duvmasta
She had many chronic illnesses like most Down's do. Her last year and half was spent in a hospital more than at home with pneumonias and congestive heart failure. She got to where she was vent dependent to keep her oxygenation up. She died of an obstructed bowel that she wouldn't have survived surgery to try to correct.
@@deniseshannon4645 why do many people with downs syndromes have many chronic illnesses?
that is just wonderful sweetie your parents didn't want her to suffer like millions of othrs god bless you as well as your family your mom is an angel god bless, from New Jersey..
I am the younger sister of a Willowbrook resident. My brother was what was called Profoundly retarded in the 60s. He was initially in building 1, the main building. It was ok in there. Then,when he got older he was in building 3 I believe. It was one of the dormitories. I’ll never forget the stench. He was 11 when he died. I was 9. We went almost every Sunday. What a nightmare. My brother had little awareness, but I’m sure he was extremely physically uncomfortable in those narrow hospital beds day after day. I’m almost 63. It haunts me to this day that he was left there.
This is why we must maintain freedom of the press. The press tells us the stories we don't know about. Stories we don't know we need to hear. Once they tell the story, people can act.
The press??? They are useless today
They are doing same to the elderly in these corporate- for-profit nursing homes, You may hear a rare news article occasionally when things have gotten so bad they were closed but they just open up in a different name
Freedom of the press? What country are you referring to.
@@Jeffei-qs7kp Even in 1972 it was corrupt. Now it's LONG gone.
It’s definitely gone. They are talking about AI taking over journalism smh
I work for a wonderful company that serves individuals with intellectual disabilities. I am so happy how far we’ve come as a society. 3 clients to 1-2 staff members in a home with their own bedrooms. Clean homes, fresh food, opportunities, jobs, friendships, medical care, etc. it’s amazing…
My Grandmother, Francis Olivero, was murdered while being held at the Willowbrook.
She will never be forgotten❤️💐
I'm so sorry
I'm so sorry for your loss 😢
I worked at Broome Developmental in Binghamton NY..we received and cared for many Willowbrook residences after its closing ..I am FOREVER IMPACTED BY MY EXPERIENCE..Godbless these souls..
I would love to hear some stories. Did you ever have anyone tell you any good memories?
I remember my aunt allowed her son to be placed there. He turned up dead. The autopsy showed he had swallowed a butter knife, and no one on staff was aware.
My son has nonverbal autism and I can't imagine just dropping him off with strangers and forgetting he exists. They were just babies. Surely living without the child was harder than enduring through.
Bernard is a true survivor, hero and a legend!
He's obviously a genius😊.
He really is. It’s incredible what our mind can do when we don’t put limitations on people. In the documentary made for the 25 year anniversary, he said it was like being in a concentration camp, and I was like wow amazing how after enduring so much, he still went on to learn history and has such a profound vocabulary. I wouldn’t doubt if the treatment in that place disabled children even more, or killed them. 😢. So he’s incredible for making it out and going on to help so many.
I just want to sit down and talk Bernard for hours. What an amazing advocate. It amazes me that his name isn’t a household name.
Geraldo changed my life and I didn't even know it until the year 2000 😊 I have epilepsy and I didn't know that before his broadcast it was normal for parents to drop children off at those types of places of they had epilepsy. My parents decided to keep me because they refused to trust me to anu of those places. So thank you Geraldo. You didn't find a treasure in that tomb because you didn't realize that you were the treasure for more people than you could ever imagine!
That's sad because epilepsy is a medical condition, not a developmental disability. Most forms of epilepsy are easily treated. Phenobarbital and dilantin are frequently used, and there are many others.
Reinhold Von Treffencaunbowz, MBBS, PhD
He was a light in a truly dark place as I’m sure many others were as well. “If all you see is darkness when you look around, maybe you just haven’t realized you are the light”
I have a family member with an intellectual disability in New York State. This could have very easily been him. Because of advocacy, hard work and a lot of sacrifices on behalf of my grandparents and his siblings, he is a contributing member of society with an active social life, a purpose and is loved and values by his numerous nieces and nephews
This video absolutely broke my heart. Every child and adult there deserved to be loved for who the were and cared for with dignity. They suffered more than we can know for no good reason. I feel the shame that the administration should have felt, but didn't. Thank you Geraldo and all who had the courage to take a stand for these precious human beings. Each one was "fearfully and wonderfully made in the image of God" and deserve to be remembered. 😢❤
Amen and may God Bless those precious souls.
And sadly it was not the only one, many people throughout history have been thrown away due to not meeting societal standards. It breaks my heart as well.
For the past 27,years I work with children with different abilities. I gave also worked with adults that were from Willowbrook. The stories where horrific. I'm glad this place was shut down.
Thank you for giving a voice to those “inmates” that couldn’t speak for themselves. It’s unfortunate that there were those living beings that were “placed” at Willowbrook, but I hope we have learned and pray that there is never another place that treats humans the way they did.
Geraldo is my hero. My sister is mentally handicapped and this story touched me deeply. Blame it on crap doctors who told parents to give up their handicap child.
No, that's the way it was back then
@@jolenehendrickson8915 I knew lots of mentally handicapped children whose family did not abandon them including my sister despite bad doctors
I was in the chemist one day and a woman said "The doctor knows best ".
I didn't know the woman but I said no, doctors don't know everything.
@@bernadettekennedy2981 My mom told me that my grandma (her mother) thought I belonged in an institution. Thankfully, my mom disagreed and did not put me in one. I have mild to moderate MR. (The new labeling sucks)
@@Rebeccasweet100 EXACTLY! I'm very weary of doctors, mostly because (unlike nurses) most of them refuse to connect with their patients.
I taught in a residential school for students with emotional and intellectual disabilities. When I shared with someone at my church. He said," oh you work with those unloveables." He got it wrong.
WoW how horrible and so sad......
You work with the loveables!!!
Those residential institutions were downright terrible! However, just as bad was patients not having support systems when they were thrown out of the hospitals they lived in. Look where deinstitutionalization has got us now, rampant drug addiction, homelessness through the stratosphere, waste of law enforcement and jail resources arresting and imprisoning the mentally ill for things like disorderly conduct, etc. Those people still often end up institutionalized anyways, the asylum has been replaced by the homeless shelter, the jail\prison, and the group home.
This is what I also was thinking about what while watching this video. The whole story is heartbreaking for sure and what happened to those people while in institutions are inhumane and shouldn't be repeated but what is a substitution for the system that question was not answered at all. What we have now are thousands of people out on the street without proper care or system to back them up.
If it was only 50 years ago - how in the hell do people believe the evils at play in 2023 are all that different from whatever tf permitted this quality of life to the vulnerable. its mind blowing honestly.
There is a present day documentary winterbourne view the nasty treatment of vulnerable disabled people it is now closed its disgusting
@@lindacarr4442 watching it now thank you Linda
Its worse now. Hopefully with Kowalskis winning against JHACH, people will feel compelled to research the current state of affairs in this country and maybe even follow the money.
I've worked in these places back in Illinois in the 1960s. I am a recovering RN.
My brother is mentally challenged and in rural NYS, there are NO resources. It's sickening.
We ask for change. We demand change ! why cant we demand these things in 2023 ???? we need to do so much better !
This was me and my now deceased twin brother from ages 3 to 9 til we were put into abusive foster care I still have PTSD from the memories and I'll always resent my parents for putting us there abandoned to a jacked up situation
Where you at in Willowbrook ?
Based on diagnoses and previous behaviors, I would have been institutionalized as a child and adults. I am happy that I exist after places like Willowbrook were shut down.
This is truly devastating! Bless the whistleblowers!
The Willowbrook expose' really shook me as a kid. I never forgotten about it. I'm glad to see the fulfilling life, Bernard got to have. Thanks Geraldo... It needed to be shown.
I volunteered at Great Oaks Center in Beltsville, MD for 7 years. It closed in 1991 due to abuse of residents and funding cuts. The residents there had developmental disabilities, many of them regressed as there were few real programs to help them.
I needed this, keeps me humble and im perspective of why I continue to work in this feild for such shitty pay. We have a long way to go but now we are empowered to give them hope and a life they can be proud to live ❤
this is such a great follow-up to the big willowbrook 25 years after documentary, its great to see Bernard still alive and kickin' ass !
I grew up on Staten Island at the time, and the bus to the mall would go through Willowbrook. Eerie quiet. Then Geraldo's report came out, which I watched and of course it was horrific. A few years ago, I saw some footage from it. I suspect and hope it's the closest I'll ever come to having a PTSD-like experience.
That's so creepy to think you just happen to be riding right by.
@@Carmensandiego_ Just about every Saturday for a few years. The bus would stop a few times while on the grounds, which were huge. Rarely a nurse or attendant would get on or off, very quiet. I can't imagine what must have been going on in their minds.
This is the first documentary that made me cry...
It’s happening now in nursing homes. It’s sick
You are so true
Exactly
My father in law was in a nursing home. Watching this I was thinking the same thing! People wake up ,stop in to any nursing home and say hi! I know you will be totally blown away with the care that is considered acceptable. 😢I was so discouraged and outraged by his mistreatment and lack of basic care I literally packed a bag and stayed with him . If I could have removed him I would of in a heart beat. His daughter had power of attorney and couldn’t be bothered . I did the only thing I could. I stayed !! It was an eye opener to see the constant mistreatment. The rough handling,lack of simple basic care such as washing his face. He was an amazing man,he loved everyone and looked after everyone!Now he is totally bedridden,cannot even take a sip of water without assistance much less eat .Needed total care! I also witnessed numerous times others were treated badly and left on their own with no assistance.R.I.P.
@@jaimeeedwards5296 I’m sorry bc I’m a nurse in one but I’m tired and I care just too much about elderly people. So I stay so that at least someone can be their advocate. It’s all about money nowadays. I don’t care these are human beings that had lives. They had children jobs family. No one should be treated like they are and all because why they got old and sick. We are all going to get old that’s inevitable. You better believe that.
@@jaimeeedwards5296 treat folks how you want to be treated
People at my elementary school sp.ed said that I should be sent there if I didn't obey. My mom didn't know what it was, in the 1980s it was still the thing to do with learning disabled kids, just send them away. I thank Rivera for bringing this article to light and showing what kind of hell hole it was. 1970s to 1980s was a huge deal for ADA and Geraldo is a hero.
My mom had to pull me out of schools due to the treatments of learning disabilities before 1997. In 1998, my life changed entirely when i would to go to college. I never want ADA to ever go away
We have come a long way
Why didn't you just do your homework and behave?
Thank you God and thank you Geraldo
So there were places like Willowbrook all over NYS, Sunmount in Tupper Lake, JNAdams near Perrysburg NY are two, Sonyea, earlier known as Craig Svhool in the finger lakes. I worked at an ARC in northern New York taking care of some survivors of Willowbrook and reading their case histories broke my heart. I was born with congenital hypothyroidism and could have wound up among these children…and I NEVER forgot it!
It's just very sad how we as human beings treat each other. No matter what because no one is perfect.
Living coffins for devalued people. That one line is too much for me. I'm not sure I can get that out of my mind.
its not just letchworth and willowbrook, just about every single state and county institution in every state was like this, a few good exceptions were a few of the private owned and ran places were decent, but most of these places were just deplorable and cruel and inhumane. i do feel however that yes, while quite a few do great in the community, there are so many that just do not and cannot really participate in the community and do better in a sheltered institution or structured environment, they should have changed how these were run, make sure clients had their own belongings, clothes, privacy, cleanliness, human and civil rights; and also, institutionalization should have only been a last resort, not a primary choice, and not for young children , but after over 20 years of working in social services, i can say that, yeah, community supports can be great, but one size does not fit all, and, abuse and mistreatment, denial of dignity and rights sadly happens quit often with home and community support programs and in group homes: plus, because of these type places shuttered slowly over the decades, is a large part of why we have such severe homeless problems, as around 70 to 80 percent of them are mentally ill and or disabled, we have left it up to ''personal choice'' to get treatment when by default most of these folks are incompetent and cannot make a sound decision as ill and unstable as they are, so the institutions should not have been shut down, they should have revamped the system and policies , and mental health screening and treatment needs to, at times, be mandatory for those who clearly cannot manage themselves on their own.
I've worked with adults with disabilities for 25 years and this makes me sick and I'm 60 yrs old
Every human being deserves to be treated with Love and respect.I am glad this hospital is Gone.
Now they just end up alone and with no protection while being trafficked through foster care.
This went up to the 1989's as a young kid living in Puerto Rico we knew who Geraldo was we knew he was feom the island and when he came on TV and showed this my mom cried.
Shout out to Geraldo, I'm glad u ever took any time to intervein. Bless these human beings, 🙏 I hope they found peace and the Angels.
So, so profoundly sad....
I remember when the story came out and how angry and said I felt. When I moved to Staten Island and went to Willow Brook Park, I remembered that story. I'm so glad that it's over. And thank you to Geraldo Rivera for doing this expose.
It makes your heart hurt to know what these poor souls were forced to live like. Never should we ever allow those of us who are not able to be whole to be put away and live under such deplorable conditions. We as a human being need to have a responsibility to those born with a disability to see they get the help, the care, the love snd the resources that they deserve. They are Gods children and we have a responsibly to help them achieve all that they can and with dignity and care.
wow it's wonderful to see you and Bernard together again . especially now
Rivera is an Angel
Where are the former residents now and is their care really any better today than it was at the time?
The cover-up in current care today for those with developmental disabilities is greater that it was at the time. Little progress has been made. The care today is just covered up better.
Thank you for sharing your stories. We need to ensure that this never happens again.
This is heartbreaking 😢😢😢
I just finished reading The Lost Girls of Willowbrook and immediately watched this. Just super heartwarming to see so much good coming from something so horrible. ❤
So it's obviously a very wonderful thing that Willowbrook was closed. However, what happened to the patients that didn't have anywhere to go? It seems like there's a lot of disabled people living and dying on the streets. Sleeping in storm drain tunnels and such. Is there anything available for them? Are there care facilities available and enough space and staff?
In Europe it's the same
They follow the advice, or should i say orders, of the big brother USA.
We're sick.of their bullshit here!
No, there isn't! This is the part people fail to recognize!
@@ang_ro they just get thrown to the wolves. 💔😪😪
I don't understand the people who worked there, day one I would have shouted it to the hills and back - people say "oh, you don't know what you would do until put into that situation..." But let me tell you, some of us are not designed to sit back and shut up, even if it isn't in our best interest... NO WAY would I have just gone to work there every day and kept coming back without doing anything...I would have gotten another job and kept on shouting about it until somebody heard me!
I have a child with a learining disabilitie it is hard work but you should never give up hard work but rewarding u.k
They were understaffed…they could only get lazy people like the resentful key stealing scum bag in this documentary..Leaving would do no good, getting more staff and funding would have…
I ABSOLUTELY AGREE!!! 💔💔💔
You might want to follow the Kowalskis if you really want to know
Many of the residents were put into residential homes with adequate staffing. I worked for 28 years at a day habilitation for the mentally and physically challenged. They were all adults. There are so many programs now for parents to help their children. It can be a tough job but also very rewarding.
Staffing issues are there. And the new employee's unfortunately alot of them can't put there phones down and do there job like they should.
There really isnt "so many programs".
@@purpleprose1315There aren't. I have 2 developmentally disabled children. The state-provided respite services were an absolute joke, and they are what I need most. It's very difficult to be a caregiver, going above and beyond what most parents do. It's impossible to do it well without breaks or self-care. My kids do attend school and receive therapy, which I am very grateful for....but I'm the one who takes them to school and therapy. I feel as if the pendulum has swung away from "Just put them away" to "They're with the parents 24/7/365, whether the parents can handle it or not." Neither extreme is right.
I'd never heard of Willowbrook before. I have a new respect for Geraldo Rivera after watching this.
We had a beautiful state school here in Vineland NJ. I would go with my mother, she was a lab tech she'd go once a month for blood draws. It was clean, well funded but by the town because the feds didn't give enough of a budget so the town kicked in. We had food, clothes drives and so many people volunteered so did doctors and PT therapist. But then Nixon shut em all down. Never knew where they all went. I guess the start of homelessness it seems.
Where were these kids parents? Those parents didn’t want their own kids but they expected the governments to care for them F..king unbelievable.
I’d like to show this video for a workshop in the future through my nonprofit called Lilly Theatre Company. We focus on Inclusion Education and Diversity through the arts. Our nonprofit is very small but hoping to make a difference in this world as best we can. Willowbrook has always been on my mind since I first saw the story about it through my training as a direct care specialist in NY. They wanted us to learn the history of how this country treated developmentally disabled. I was floored and it always stayed in my mind. Once I started masters program at Berklee I decided be about Advocacy through my professional work. People need to know the history. I’m grateful for the changes this country has made but we still have a ways to go. Powerful story. Love and respect for all those suffered and their families at Willowbrook. May healing continue in their lives. ❤
That's great! please email or call our office and we can provide some materials for your screening. information@ddpc.ny.gov (518) 4896-7505 ask for Gina.
This was sickening and I lived about a quarter of a mile away from Willowbrook State school, and I cannot believe what went on there - I was no older than 25 when it was dismantled due to Geraldo Rivera. A lot of the residents there were not all mentally challenged, some had Autism, Asperger‘s , etc but back then there wasn’t any special needs agencies or doctors, so everybody got thrown into one pot. My husband‘s mother worked there, either in the kitchen or laundry room and the stories he told me, cannot be repeated, because it was heartbreaking?
Why on earth didn't you report them?
I remember that expose. It was huge. It really changed the world.
I worked in the the early 70s in Canada in a place like for mentally handy cap people it was not like this it was wonderful and fun we really took care of them.
Omg!! This was humanity at the very worst, we should be ashamed that this happened, I'm sick watching this and I didn't even know about this place!!
Its worse now.
My son has a deletion on his fourth chromosome which can cause a multitude of symptoms, but his mostly manifests as developmental delays and a harmless heart murmur. He didnt talk until 5, and he is 7 now with about toddler level speech. I feel I am his guardian and protector. I cant imagine ever letting someone else take over as his main caregiver.
I remember. Shocking and horribly sad
..even today 50 years after it closed...
Rip all the children and adults that were committed to willowbrook asylum that were forgotten
Rich for Bobby to say this at the start.... Given what his father did to his daughter.
Omg my Aunt was in this horrible place!
3 steal doors installed by someone in authority for toddler area tells me to silence the crying.
Oh my heart. How could humanity be so cruel. 😢
THANK you for uploading this. I see so many familiar faces from the "25 years on" documentary, God love them!
I always wondered what happened to the “inmates” after this story first aired. Thanks for the follow up. ❤
Inmates? No! Each one is a person just like the rest of us who haven’t ever lived in such deplorable conditions.
@@cathykrus6433the word is in quotes due to Rivera using the word in an interview. I doubt they meant to be disrespectful.
This is what happens when our government runs things. Don't just blame the doctors. My mother was an RN who had such a heart for these people that she spent the last 20 years of her career working with them and advocating for them. Spent the rest of her life volunteering for this cause and senior centers. God I miss her and wish I had her temperament and patience.
No this is what happens when funding is removed for TRIVIAL things. The truth is the Americans with Disabilities Act came to be by the actions and inactions of the public. The government is just as strong as we put a voice to it. The problem we have had problems in thr past with Eugenics and others who would rather people like me stay behind a closed door. Just read the accounts of the past, the infantalization of the learning disabled, physically disabled and mentally disabled has existed for years.
Also corporate greed also plays into it, remember that lobotomies were corporate and also so was testing, I remember the RADIO ACTIVE OATMEAL experiment which was as stupid as it was done without parents or patients' knowledge of what they consented too.
The whole thing was corporate greed in the long run because companies had guinepigs who were considered too stupid to know what was happening. And hospitals so greedy for funding to help.
Geraldo and Jane Kurtin really were the people who helped to expose the abuse of people with physical and intellectual disabilities in institutions. Had they not done this brave work, who knows what laws would’ve been prevented from being passed.
A portion of our society wants no responsibility. That don't want to help those less fortunate then them. That party of society that says, 'I'll pray for you and let God deal with it !" are the hippocrates we have to deal with. It' TOO EASY TO SAY IT'S GOD'S WILL. WE HAVE TO CARE !
How insanely ironic... the quote on the wall @ 18:23
This is always so difficult to watch - so sad and unbelievable conditions
For those who aren't aware disablity day of mourning happens every year in March. There is also a website where those with disabilities who have list there lives as a result of situations like this/at the hands of parents/caregiver can be listed.
50 years wow time flys by this made cry
This makes me glad that my son who has autism was born in 1997 not 1967 or earlier. I know that if he had been born at that time or earlier my husband I would have been heavily pressured to put our son in such a horrible place.
“They were living coffins for devalued people.” That is horrible. To be reduced like that. If only those patients were treated differently, it could have been revolutionary. Those hospitals of torture could have been “healing hospitals” places of spirituality, love and education. Perhaps that will be the future approach to mental illness. More love, less judgment.
Quality of care, as was noted in this story has to do with the quality and quantity of the staff and adequate funding. It is not due to the environment.(eg. state facility, group home, supported living, etc)
Back in 1996 I was supposed to go one of two Maine State psychiatric hospitals but their doors was closed they weren't taking any patients in so I was diverted to a private psychiatric hospital I was there for 3 months and when I got out a few years later I got a case manager from the state come to find out parents sued the state over the hospital treatment for the patients they're not just kids but the adults too and because I was supposed to go but I was diverted I got what they called on the station wagon I was able to get a case manager phone service turned on an apartment electric turned on and dental services and it just makes me want to cry think about I could have been stuck inside one of them hospitals in Maine permanently because I suffered severely but I'm able to get by I drive my car I take care of myself make sure my bills are paid but that going to I cannot find mental health help anymore it's gone downhill I'm a come on I got the best health insurance in the world medicare-medicaid you would think I would get all the services I need but you because I moved to a different state have to follow the state rules and you know every hospitals have a psychiatric privatized or commercial or state it still should have a psychiatric ward or two or three you know that pit you feeling your stomach like you're going to cry it's there but I've been crying so much past couple days I don't know if I could do it it all started with the curse of psychiatrist doesn't believe that my ADHD doesn't warrant medication when I got home when I went for my walk for the first time in the five years I've been walking everyday I cried for three-quarters of my walk every song I listen to Just even brought even more tears because the doctor doesn't believe that I need medication what is going on with these medical professionals these days I wonder how many got their license other crackerjack box instead of going to school and learning something
The difference is now that we still don't receive proper treatment or the medications we need. Now we just sleep outside , the government saves money and the only difference is now that we're a burden on a families and loved ones. It's a horrible history and a horrible reality. Maybe one day we'll get better , I think its unfair too throw us out on the street at every turn.
Most definitely you are speaking my language.
It’s our responsibility to take care of the disabled…❤❤❤❤❤
Amen to that. 👍
I was actually surprised that it wasn’t just a government run business that used its budget to pay staff and adhere to human rights laws without any kind of financial corruption from those who have college degrees to work in any other sales industry
Makes me scared for kids with disability. I hope they are never treated this way.
'Devalued people' truest thing ever. 😭 And we did not stop then we are still doing it now. But somehow now it is more whitewashed and politically correct. I have a friend with an Autistic son and it has been tough for them to get help. But it can be done, differently abled people are worth taking care of. They are human beings worth of love. Breaks my heart to know that even now they are treated as less and their voices are silenced.😭
Thank you for this video.
Thank you.
I worked there summers 1971 1972, We where collages kids hired to take some the kids swimming. I Would have 9 kids and enough clothes for 5. It's a dumping ground for the unwanted, the smell, was bad, very very bad, flies everywhere. I still have nightmares of those 2 summers. Thank you for taking them down
This was in my lifetime. A school friend of mine had an older sister who was at Willowbrook. Her parents had to grease some palms to get her out. It took about a month, during which time they fattened her up, cleaned her up, but still, she was underweight, had callouses on her elbows, knees, toes, and the palms of her hands, and she stank. The reason she was there was because she had Down Syndrome, a mental age of what was misdiagnosed as three or four. She received no therapy, no education, not even proper care. She was not toilet trained. Turned out she learned to care for herself, read, navigate around Queens by bus. She lived in a regular group home with assistants who supervised chores, taught or coached residents, etc. She had a part time job and became an artist. Several of her paintings hang in the state capital in Albany. She later moved to California with her sister after the deaths of their parents. She enjoyed fairly good health until her late 40’s and passed of a heart condition at age 52.
In the 1980’s they shipped much of willowbrook clients up across the street from me. Into an old TB hospital, then a veterans hospital, and now OPWDD office for people with disabilities. A few of the willowbrook clients are still a live today, I believe. I worked in the institution for 10 years. The abuse is still rampant in these places. I turned whistleblower back in 2009. I was retaliated against by the state. I had a union lawyer and I maintained my job in an arbitration but the state never let me return. I had video of the abuse and sent it to the NY state inspectors general’s office, they wanted me arrested. It is a very long story over many years, but I could write a book on what they put me through. Everything is covered up in these places, because all they do is hire trash from the top down to run these places. All the scum employees get full benefits, vacation, sick leave, personal leave, holiday pay, dental, retirement and their all criminals and pill poppers, o well, this is the shit hole world we live in.
Hi Alex, I just want you to know that what you went through to try and help your patients, and to expose the mistreatment of our society’s most vulnerable was not in vain. You are a hero. I’m sorry for what happened to you, just trying to tell the truth. This world can be an awful place- feel good in the fact that at least you didn’t add to it! You. Did. Good. Not many can say that ❤
You lie!😮
I Love U Sir for Fighting for Those Beautiful Children
have a nice life brought me here
From 1965 (when Kennedy visited) to 1972 nothing much was done. I lived in Staten Island in the 1980s for four years and drove by Willowbrook at least once a week and never even knew it.
Thank goodness 😅 for that! I hope all of the residents were well cared for thanks to that KEY 🔑 and Geraldo 💕✨
My Prayers go out to all the Souls, and for the people who gave them, A voice! God Bess! ❤
Although I don’t know what it is like to be the parent of a seriously disabled child. I have two cousins who are mentally disabled but they have incredible personalities and they are both very smart people in their own ways also two of the friendliest and caring people you would ever meet. I remember when I was a kid my two cousins are about 10 years older than me. It was great growing up with them though they were older than me. I had a different opinion of the mentally disabled then my peers did. So, in high school I offered to volunteer to help with the kids in our school who had the same or similar disabilities as my cousins. I was never nervous or scared of the special students like most of the other students in my school were. That was in the early 90’s. I’m middle aged and I have a couple of good friends who have children who have developmental disabilities or mental disorders that are considered to be a handicap. I have to say Kudos to the Man and Woman who spoke up about the conditions of Willowbrook and to Geraldo for the expose’ and showing the world that they didn’t need more funding they needed empathy and compassion. They needed to be treated like human beings and not like animals. 😢
50 years ago… is not a long time. I have been on a psychiatric ward in a big hospital for 8 days before in my early adulthood. I will never forget the screams and banging I heard from down the halls. I will never forget when I watched a woman who was obviously well off considering her designer clothes and dripping with diamonds and gold jewelry, drop off her non verbal son who was hitting himself and punching himself in the face. I could also see that, this wasn’t the boys first time on the ward because the Doctors and Nurses seemed so familiar with the patient and his mother. I watched them but boxing gloves on him and when that didn’t stop him they put him in restraints in an empty padded room. I was traumatized by this sight and at the same time I felt like the mother was burnt out and didn’t know what else to do. So, she depended upon the hospital psych ward to get her boy back to calm. So much I didn’t understand about mental illness and my own mental health issues that were brought into light from that stay. I had to admit myself though, I wasn’t in a good place in my mind. I was suffering and, I saw no hope for my self in the future. I was only 32 years old then. I still suffer with Bipolar Disorder, PTSD Major Depressive Disorder, ADHD and Anxiety paired with Panic Attacks. Not to mention I have Chronic Lyme disease and that is also a neurological condition. I was born in the late 70’s I was a child in the 80’s and a teenager in the 90’s I went into health care in a nursing home after high school and I dealt with some serious neglect from the other nurses I was in dietary and would bring them their food. I had witnessed a woman roll out of her bed and the nurse yelled at her for it and told her if she didn’t stop falling off the bed that she was going to have to sleep on the floor. 😢 As dietary aid I wasn’t supposed to do anything that was considered the nurses job. I went to the nurses station to tell them what I had just heard from the nurse about the woman who rolled off the bed and May I just add that the Thud! I heard was alarming and the nurse didn’t even check her out for scratches or anything like that just plopped her back on the bed. I didn’t stay at that job for long maybe 4 months. It’s closed down now and it has been for probably 15 close to 20 years now. I still am bothered by the lack of care I witnessed in this facility. It was called Sunrise or was it Sunbridge Rehab? Center in Worcester Massachusetts. I’m glad that over the years the care for the mentally disabled has improved but, like Bernard says in the video it’s still not 100% we still have a ways to go before the stigma is lifted. 🤲🏼❤️🩹
I have a severely mentally disabled child. I won't let him go anywhere without me or his daddy because he can't tell me anything that anyone might do. I trust no one with him and I never will. I would never desert my child no matter what. He's my baby and nobody can care for him like I or his daddy can.
@@Mandaxx25 Sending many blessings your way. You and your husband are doing the right thing. Blessings of Love, Strength and, Grace to you and your family.