Dealing With Loneliness with Heather Madsen, Writer, [Overcomer]
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- Опубликовано: 9 сен 2024
- #loneliness #overcomers
Heather Madsen experienced a lot of loneliness in her life due to being born with a rare syndrome that makes her look different from others, as well as having a severe hearing impairment and autism. Heather is a gifted writer and speaker and in this talk, she talks about how to deal with loneliness as well as tells a personal story about her loneliness when her brother, Logan Madsen, moved out after they lived together in their apartment.
Both Heather and her brother Logan were born with two rare syndromes and were also diagnosed with autism in their mid and late 20s.
Watch other talks by Heather Madsen:
• HEATHER MADSEN, WRITER...
Read Heather's Blog:
www.debbiejord...
Watch Debbie Jorde and Logan Madsen’s Mom and Son Vlog:
• VLOG: Mom & Son, Q & A...
Learn more about our family on Debbie Jorde's RUclips channel. Find talks about accepting and overcoming challenges we’ve given to the general public, medical students, caseworkers at government offices, medical personnel, caregivers, and others. Find other videos such as a Mom and Son Vlog, news stories about their family, slide shows of Logan’s art, slideshows of photos of Heather and Logan from childhood to adulthood, and more.
Debbie Jorde RUclips Channel Link
/ @debbiejorde
Visit Debbie Jorde's website, all about overcoming challenges:
www.debbiejord...
Visit Logan Madsen's website to learn more and to view & purchase paints, prints, and greeting cards:
www.loganmadse...
Watch the award-winning documentary LOGAN'S SYNDROME on Amazon and other streaming sites: Amazon link: amzn.to/2TDguhx
Watch Debbie Jorde and Logan Madsen’s Mom and Son Vlog: • VLOG: Mom & Son, Q & A...
Debbie Jorde’s memoir, EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE’S CHALLENGES, is available on Amazon. Learn more and find a link to the paperback, ebook, and audible book on amazon:
www.debbiejord...
Watch the trailer to EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE’S CHALLENGES: • 2-min Book Trailer, EI...
Every year, for the past 30 years, Debbie, Heather, and Logan speak to the first-year medical students in their human genetics course in Dr. Lynn Jorde's course. They talk about living with rare Miller syndrome, a rare lung disease called primary ciliary dyskinesia, PCD, and autism. Debbie shares what their births were like when they were born in 1977 and 1980 before good scans were available to warn her about their disabilities.
Debbie Jorde is married to Dr. Lynn B. Jorde, Chairman of the Human Genetics Department at the University of Utah. Dr. Jorde describes Miller Syndrome at this link:
• Dr. Lynn Jorde Describ...
Debbie Shares the Births of her 2 Babies with 2 Rare Disabilities in Dr. Lynn Jorde's Genetics. Debbie Jorde
• Mother Shares Births o...
Living with 2 Rare Syndromes & Autism, Logan Madsen, Artist, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Living with 2 Rare Syndromes & Autism, Heather Madsen, Writer, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Debbie, Heather, and Logan speak publicly about accepting and overcoming challenges and how they do it daily. Watch their talks on Debbie Jorde's RUclips playlist, accepting and overcoming challenges: • Accepting & Overcoming...
Debbie's family became the first family ever to have their entire DNA sequenced and the first family documented to have two children born with Miller syndrome, which affects only 30 people worldwide.
KSL News reporter, John Daley, interviewed Dr. Lynn Jorde, Chairman of the Human Genetics Department at the University of Utah School of Medicine and President of the American Society of Human Genetics for 2011 about sequencing the entire genome of his wife, Debbie Jorde, and her children, Heather and Logan Madsen.
Scientists found the gene that causes Miller syndrome and also the gene that causes Heather and Logan's lung disease, Primary Ciliary Dyskinesia (PCD) answering their 33-year-old question, "Why did this happen?" Heather is a writer. Some of her writings are published in "Eight Fingers and Eight Toes." Logan Madsen is an artist.
Watch the news stories:
• 2 Rare Diseases Miller...
Sadly, Heather Madsen, writer, and public speaker passed from advanced endometrial cancer on July 23, 2021. Although Heather won’t be with us physically to record our vlog videos, she is always in our hearts and we will share stories, writings, and experiences with and about Heather. You can watch the celebration of Heather’s life on Debbie Jorde RUclips:
• Full Event: Celebratin...
We are all overcoming challenges together! We are overcomers!
Thank you!