I am a sufferer of FA and I find this video particularly inspirational. Having been diagnosed this year It leaves me with the hope that I will still be walking when they find a cure. The Sun is Shining :-D
My twin brothers have FA. This video is is a small insight to what parents ,families and researchers feel, and it is quite touching. I hope more people see it. And do something. RIP Benjamin James. - Robert.
Peace be with you, Thanks for the information and awareness to this Friedreich's Ataxia ,Until now I don't know about this, May ALLAH bless them and take their pain away, Ameen.
My Fiance has Friedreich Ataxia. We've been together for over ten years now. I have Tourette Syndrome and we have two kids. Cure or no cure... it doesn't deteriate the things that matter. Like "FAMILY"
My God. I have never heard of this before...and I like to think of myself as a fairly well-educated and informed person re: rarer medical disorders...my husband and my mom both have rare rheumatological disorders (Still's Disease and Giant Cell Arteritis, respectively). Thank you for this, and my heart goes out to the sufferers and their families.
My girlfriend was just diagnosed with FA a month ago. She is the strongest most beautiful girl I have ever met. I love her to death and that's never gonna change.
My best friend has FA. she is a beautiful caring girl and, knowing that she doesn't have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly. i also have a disability. ehlers-danlos syndrome, but then we have someone who understands each other. If someone is having a bad emotional day, because of what they have to deal with, or if there having a bad physical day. we are there for each other. all day every day.
My aunt suffered from FA. She died in 1997, after battling it for 20 years. She never lost hope. She is my mums favourite, my mom lost her sweet sister to this Monster.
Is it not possible to synthesize frataxin and give it to the people affected by this? That may not be a cure, but it could help manage the symptoms to buy those afflicted a little more time.
Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….
@sp0rk6 same. she is a beautiful caring girl and, knowing that she wont have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly.
I am a sufferer of FA and I find this video particularly inspirational. Having been diagnosed this year It leaves me with the hope that I will still be walking when they find a cure. The Sun is Shining :-D
My twin brothers have FA. This video is is a small insight to what parents ,families and researchers feel, and it is quite touching. I hope more people see it. And do something. RIP Benjamin James. - Robert.
This story has touched me in a way you can't imagine, May Allah heal the sick and those who's in need,, God bless you all ..
Peace be with you, Thanks for the information and awareness to this Friedreich's Ataxia ,Until now I don't know about this, May ALLAH bless them and take their pain away, Ameen.
My sympathy goes out to all those suffering from this .. thank you minstral for sharing this!
I hope those who can help will do so.
You're all in my prayers
My Fiance has Friedreich Ataxia. We've been together for over ten years now. I have Tourette Syndrome and we have two kids. Cure or no cure... it doesn't deteriate the things that matter. Like "FAMILY"
My God. I have never heard of this before...and I like to think of myself as a fairly well-educated and informed person re: rarer medical disorders...my husband and my mom both have rare rheumatological disorders (Still's Disease and Giant Cell Arteritis, respectively).
Thank you for this, and my heart goes out to the sufferers and their families.
It’s been 13 years since this video. How had research come along ?
My girlfriend was just diagnosed with FA a month ago. She is the strongest most beautiful girl I have ever met. I love her to death and that's never gonna change.
My best friend has FA. she is a beautiful caring girl and, knowing that she doesn't have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly. i also have a disability. ehlers-danlos syndrome, but then we have someone who understands each other. If someone is having a bad emotional day, because of what they have to deal with, or if there having a bad physical day. we are there for each other. all day every day.
How are you...
Hope you are doing well
LOVE ALL OF THEM WHO LOVE THEIR CHILD.......I FULLY UNDERSTOOD THEIR FEELINGS AFTER MY SON WAS BORN.....
May ALLAH helps you all...All dat i can pray for u......
My aunt suffered from FA. She died in 1997, after battling it for 20 years. She never lost hope. She is my mums favourite, my mom lost her sweet sister to this Monster.
May Allah heal all the patients
and help them find the cure Ameen
Is it not possible to synthesize frataxin and give it to the people affected by this? That may not be a cure, but it could help manage the symptoms to buy those afflicted a little more time.
Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….
@sp0rk6 same. she is a beautiful caring girl and, knowing that she wont have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly.
this breaks my heart
My Allah heal you❤️
God
made me cry
1 OF THE LADIES MIGHT HAVE GRAVES DS
try #AVACEN