Long covid survivor here and since my CFS dx I notice I can only work 3-5 months at a time then have to take 6 months off before getting a new temp assignment or job. Its not ideal but I cant seem to pace enough to keep a job long term. I also work only remotely. So far this works for me. Until I find better ways to pace and my 3 young children are older maybe I can work more hours for longer stretches. Sending all my empathy to those struggling to work while having ME/CFS, this is a tough road to travel but do not give up. Love yourself and be patient while your body heals.
Good tips for us wired folk. Also try the 20% rule. Try do everything in your day, 20% slower. Make an effort to breathe slower, eat slower, type slower, talk slower. This actually has quite a calming effect on ones system.
I have mixed feelings about that kind of advice. When I'm having a flare up, that's it, I have it and I can't do anything. But when the flare up ends and I start feeling normal before it comes back again, I can behave pretty much like an athlete, ride my bike 30Km without a crash and even lift weights. I can be in that state for weeks before a new flare up starts rendering me competely useless, photophobic, tired and wired, with muscle twitches and unable to recover by sleeping. When it starts it starts. When it ends it ends. Nothing I do cause either.
This was awesome Toby. Almost everything is in this. When I get in this state, limiting screens is the biggest tip, as well as walk slower, move slower, eat slower, write slower etc. This teaches the nervous system to slow down.
Yes, a balance between the sympathetic and parasympathetic nervous systems. Too much movement or not enough calories seems to worsen the wired problem.
Long covid survivor here and since my CFS dx I notice I can only work 3-5 months at a time then have to take 6 months off before getting a new temp assignment or job. Its not ideal but I cant seem to pace enough to keep a job long term. I also work only remotely. So far this works for me. Until I find better ways to pace and my 3 young children are older maybe I can work more hours for longer stretches. Sending all my empathy to those struggling to work while having ME/CFS, this is a tough road to travel but do not give up. Love yourself and be patient while your body heals.
Good tips for us wired folk. Also try the 20% rule. Try do everything in your day, 20% slower. Make an effort to breathe slower, eat slower, type slower, talk slower. This actually has quite a calming effect on ones system.
Not really helpful advice when you do closed captioning professionally. Gotta go fast
This helps me.x
I have mixed feelings about that kind of advice. When I'm having a flare up, that's it, I have it and I can't do anything. But when the flare up ends and I start feeling normal before it comes back again, I can behave pretty much like an athlete, ride my bike 30Km without a crash and even lift weights. I can be in that state for weeks before a new flare up starts rendering me competely useless, photophobic, tired and wired, with muscle twitches and unable to recover by sleeping. When it starts it starts. When it ends it ends. Nothing I do cause either.
Great insights and management strategies to work towards improved function. It makes sense but it’s easier said than done. Small steps forward.
alert wanna do stuff but keep yawning and wanting to sleep at the same time .
I literally love you so much. I'm in so much pain. Thank you for this
I'm currently on the road to recovery I've successfully got rid of coffee and screen time now I just need to cut down on cocaine
did it work ??
This was awesome Toby. Almost everything is in this. When I get in this state, limiting screens is the biggest tip, as well as walk slower, move slower, eat slower, write slower etc. This teaches the nervous system to slow down.
Really helpful and oh so true!
the rest of my beer would go to waste if i decided to go to sleep.
Thanks Toby! Great video and so very true/spot on for me.
Yes, this is what happens to me. Thanks Toby.
Sounds good! Thanks!
Thank you for this insight & tips.
Thanks toby
Yes, a balance between the sympathetic and parasympathetic nervous systems. Too much movement or not enough calories seems to worsen the wired problem.
EXACTLY!
i constantly need that dopamine rush
where is the link to the other video?
😊
Starts at 1:50