I have nocturnals too. I think my brain tries to fight them off because I do the turning thing too. I have had many hallucinations of shape and colors and jellyfish like creatures as I was waking up and now recently waking up with my hands shaking.. But, the feeling of dread or fear or like something isn't right, is the worst. It is hard to describe.
@@ginamoses6139 i got it on 2012, but on 2020 i waking up bruised and my tounge bitten, well it happen again. but i havent got it from 2013 to 2019, this thing is weird asf. doctor telling me that i am having TLE DVA, weird blood vein growth in my brain.
This video…I have been lost the last few months trying to deal with these symptoms and waiting on a neurology appointment. The is video perfectly describes everything that I’m feeling and experiencing ! Thanks for being so public with your journey.
I have recently joined u guys in having nocturnal seizures at 30. I wake up dizzy, forgetful and sometimes it takes a couple days to feel normal. My muscles get really sore all over my body and I am single so there's no one to intervene if I need help. It sucks
If you experience partial seizures or in your case nocturnal seizure what you should do is drink a cold drink , like a smoothie or a frappe drink and ofcourse cold water when you have seizures. This will cool your brain and surely will make your muscles better. Eat meals like Fish and greenery vegetables. A good advice is watch a comedy program which will just take your stress away. ( who's line is it anyway ) that's a great show. Always keep a cold water bottle with you when you go for a drive, or a walk. Good luck
I so appreciate you and this channel. Thank you or your vulnerability. For Complex Partial Seizures being so common there isn’t much in terms of lifestyle examples, experiences shared, or even support ANYWHERE. Perhaps it’s because everyone is different (hence the complex in the name) So, thank you for sharing your experiences here on RUclips. I have experienced similar seizures but it’s hard to know much of anything unless someone else sees me experience them. I get very tripped out be cause i “know” something’s gone on, but not remembering (not having proof) makes me feel unsettled. On top of the hazy/ anxiety/ fatigue migraine stuff I feel post seizure.
I have the exact same thing. The weirdest thing is with the memories. Something feels so familiar but for the love of god you can not pin down what it is. It’s part of the partial seizures and happens quite often for me. Thanks for sharing. You are not the only one with this crap. Hang in there.
I have Nocturnal Seizures for over 23 years. when i have these is usually just as a fall asleep or 4-5am in the morning. Tiredness is one of the triggers. I never had a seizure in the day or when i am awake.
I suffer from exact same thing but Im being tested and having scans and seeing a neurologist but even the neurologist don't really fully understand but Im trying hard to get some help
Me too. Had it a week ago. I know I was tired before I went to sleep but I really didn't expect that it was gonna come. It's hard to tell cause I don't really have these "auras" that some people are experiencing. Thanks for this
Thanks, my daughter has just started with night time seizures. I feel so useless. The doctors are still diagnosing and I felt a little lost your videos helped with my worries. Nice to have it explained in English.
How is your daughter's health now ? Your daughter should put a cold towel on her forehead for about 10 to 15 minutes before bed time. That will surely make a difference. If she has seizures during her sleep, make sure she drinks cold water immediately, this 100% relieves the seizures pain immediately. I hope your daughter gets well.
Did you take any medication ma'am?coz my son had a nocturnal too and hes taking anti epilepsy but its not working good...if do you have any suggestions it much appreciated thank you and god bless America...im from Philippines
@@elcrispino5689 Yes sure, there is a medicine called lamotrigine or lamictal. This medicine works great for seizures. Another important suggestion is to give your son cold water immediately after he has a seizure as this will cool the brain and relax the body. If he has any weakness afterwards, then he should drink a smoothie or frappe ( something ice blended ) as this will cool and relax the brain and body.
You are definitely not mad! I have nocturnal tonic clonic seizures and I wake up wondering if I’ve had a seizure to be told that I woke up early in the morning and went to the bathroom. I don’t remember getting up or TALKING TO MY GF. It’s a bizarre feeling and I can’t offer any advice, I can only tell you that you’re not alone. I’m happy to learn that I’m not alone either.
Hi Annie! I have felt all of these things & uncertainties! It is so frustrating & I too have felt absolutely crazy going through the cycle of “did I have a seizure or was it just a regular dream?” This actually happened last night. I have complex partial seizures as well & have had several nocturnal seizures. What happens with me is I will literally dream that I’m having a seizure (all of the same things that happen to me when I’m awake & having one will always be happening in my dream - something goes numb, exhaustion kicks in, I go in & out of consciousness, I start weeping, my head hurts). It happens right before I wake up & usually when I wake up I am so exhausted physically that it feels near impossible to fully wake up.
My father age,71 (almost) is having such nocturnal seizures since 2016. Its me who is only attendant of him who is nursing him in his postictal state. Dear Annie watching you and listening your worthy experiences is very informative. I shalla pray for you to God that He bless you with complete recovery and a joyful healthy life. Amin
So my seizures are only in my sleep i wake up to it and i feel my face twitching heart racing then i cant speak and I'm kinda like paralyzed. I have had them for almost 3 years and i need help it drives me insane.
Hi Birdman, I do also get seizure attract during the sleep only. Its really scary and bad feeling. I afraid to sleep if my wife is not around. Sometime I get symptom before seizure happening. many times I try to call for help but I can't make enough notice. I am taking the medicine ; Natriumvalproaat Sandoz chrono 500 mg tablet since year 2015. In the beginning it did work perfectly , now I seems not working. Of course, I'm still in touch with doctor.
Oh my god I am going through the exact same thing. I have nocturnal epilepsy and I only just got diagnosed. At first the doctors though it was panic attacks but it's nice to know that lots of others have to deal with this too.
I think I've been having these as well. I use to have these episodes about 9 or 10 years ago but I was told by my doctor it was an anxiety disorder/panic attack because I was conscious when they happened. Then I had to deal with family members saying it was a demonic attack. This year I've started experiencing the same thing but only as I'm falling asleep or in the middle of sleeping. I started to Google the symptoms I've been having and came upon nocturnal frontal seizures. I never new this was a thing but it fits my symptoms exactly. I definitely need to speak with my doctor about this.
i am 15, but i experience something very similar. i cant sleep right now because of this actually and it’s 5 am! but, since march 2020 i would seize in my sleep. the odd thing was it was only 5-8 am or so. there have been multiple times where i had a grand mal while sleeping but i thought i was in an ambulance or hospital with my mom crying next to me which was the exact opposite. i also get paralyzed and can’t do anything(obviously) but i am completely conscious only making it 10x worse.
Hi, I have night time seizure every 3 months or so. I know how you feel trying to describe it but mine seems to be a de ja vue feeling, a funny sensation happens in my stomach and I also swallow quite a bit but the worst thing for me is that for a few days later I feel very edgy, anxious, and a bit removed from reality. When I told my neurologist this he said that this is quite a common occurrence, hope this helps a bit
Hello , I also get night time seizure particularly when I am about to awake every 2-3 months . I feel completely unconscious for 2-3 hours ,for 6-7 hrs head pain but then everything is normal.100 percent normal . Did Ur seizures go away .What did your doctor say?
@@0zimale total unconscious when one happens . Afterwards muscle pain ,confusion etc. Had been on medication since 3 years no benefit .occurs one in every around 2-3 month
I have complex partial seizures. I also have the deja vu moment prior to the seizure. I have had 3 seizures with severe arm movements and going unconscious. 2 of these seizures were at night. The first one I must have had after my husband left for work, which would have been a few hours before I wake up. I woke later that morning in a lot of pain and greatly confused. The second one I had my husband was able to call for medical help. It lasted well over 5 minutes. When I have these nocturnal seizures I don't realize it at the time. You are not alone. I am so glad I found your videos. Thanks for sharing your story because I thought I was the only one.
I have written an important and detailed description of the partial seizures below the video separately. Please read that and see if that is of any help for your seizures difficulties. If you have any questions, please do ask below that message. I hope your health is getting much better now. If you have any partial seizures, please immediately drink cold water afterwards as this will relax your brain and body immediately. One more important advice is, if your body is weak throughout the day, you should drink an ice blended drink. If you choose a frappe, it will relieve the pain of your body. Good luck
I was diagnosed as having photosensitive epilepsy when I was 10. I also was a sleepwalker and sleep eater. 5 years ago a friend witnessed me have a seizure while I was asleep and I fell off the bed and broke my back. To my knowledge that was the first sleeping seizure I ever had. For the last 3 years I’ve been waking up with crazy bruises and feeling terrible. Well a week ago I woke up unable to get up and I obviously had broken ribs. I went to the hospital and 3 days later I found out I have nocturnal epilepsy and now I’m completely freaked out. I have a watch thing that monitors for seizures and can call 911 for me. I am wearing a lifevest wearable defibrillator in case my heart stops. Suddenly I’m terrified of epilepsy. I’m 48 I’ve had seizures since I was 10. I was never afraid. I was embarrassed. Also now I think this is why I was a random bed wetter 🤷🏻♀️ I have no memory of anything. I saw the video from the hospital and I couldn’t believe it was me. I was walking around and doing the most random stuff. I kept falling down and walking into walls. No wonder I’m bruised up like a battered wife!!!!!!! I think every time I’ve woken up with a wet bed I probably had a seizure. My license has been suspended which who cares, I wasn’t about to be driving a car around anyway but it’s officially medically suspended- I’m afraid to go to sleep. And right now I am nursing 3 broken ribs and a broken left foot. I woke up with broken bones from these seizures 🤷🏻♀️ As if I wasn’t odd enough now I know I have this creepy condition . I just can’t emotionally handle my life right now.
If you are facing any sort of seizures, don't ignore it. If someone is around you, make sure you are given a cold glass of water immediately which will cool your brain and will take away the symptoms of the seizures. Moreover, make sure you are in a sitting position are relaxed before completing your sleep If you wake up during a seizure, drink cold water immediately.
*This is video is me off loading a very confusing time. I was confused about what was happening to me during this* However a 24 EEG has confirmed focal seizures that happen at night. Thanks everyone for not making me feel like this isn't a thing.
Hi Annie, The first step after any types of a seizure is to drink a cold glass of water immediately, this will cool the brain. If you have any body weaknesses, drink a smoothie or a frappe, this will also relax the body. Yes having a seizure during my sleep has happened but you should drink cold water and stay calm. Ignoring and remaining in bed is not a good idea at all. If your sleep has been disturbed from a seizure, make sure your body is relaxed enough to complete your sleep after drinking cold water. It's important not to miss a full day meal. Skipping meals can give a partial seizure especially missing breakfast. Avoid: 1) smoking and smelling cigarettes 2) being around chemical factories 3) being areas of detergent and similar products. These can cause any types of seizure. I hope my advice was helpful. Thank you for making such a great video. Please let me know if this worked for you. Good luck
Thank you so much for this. My first neurologist tells me it's all just anxiety despite having massive strokes and grand mal seizures after those along with them showing up on an EEG. I have found a different one but the hang up of the first neurologist who just told me to get my psychiatrist to up my anxiety meds and go away still linger on me.
I'm so sorry you had that experience! It drives me MAD when doctors don't trust their patients... When I had my first seizure I didn't have health insurance, so I went to the ER not knowing what else to do. The doctor that saw me dismissed everything I said and was convinced I "just fainted". Refused to do any tests and sent me home. It was a horrible experience that has stayed with me too. 😖
I hope you 2 are getting well. You should talk to your neurologist about a medication call Lamictal, it's very good to reduce seizures. Some points which you can take care of on your own: 1)Always drink a glass of cold water after your seizure and after your body is stable 2) if you still feel weak then you should drink a frappe or something ice blended, this will relax your body 3) keep yourself away from smoking or anything that affects the brain 4) avoid amusement park rides as this can worsen any types of seizures 5) always keep a cold water bottle with you whether you are out for a walk, drive or anywhere else. Watch comedy programs, this will keep your health better. Eat a fresh fish meal and eat greenery vegetables, this will add benefits to your health Good luck and I hope your health stays well
i got nocturnal seizure in 2012, almost died from chocking from saliva. my dad telling me that i am not breathing for 1,5 hours. he (my dad) is scared and cried that i am died that night. i remembered alot that "realistic unsettling dream" out of body experience. i even draw all of my experience from it.
I have nocturnal seizures and when I'm dreaming and the dream turns weird and haunted all of a sudden for no reason at all, that's when I know it's coming and when it does all I see, feel and hear is pure horror and terror, I thought I was the only one in the family who had it but then I asked my mother about it and realized why I experience nocturnal seizures, I inherited it from her unfortunately.
GojiraNoKyokai this happened to me last night. I have experienced it many times but never quite as dramatic as the one I had in my sleep last night. I dreamt I was in a car crash and felt my brain hit the front of my skull. It was awful, it seems to get worse each time it happens but my body almost resists the seizure by making me jerk dramatically and then I come out of it wide awake. It seems this is quite common? I was only diagnosed 1.5 years ago. Any advice would be appreciated. Thank you
I have the same thing happen to me. I am just NOW putting 2 and 2 together. For the past year I would have this sudden content/emotion in my dreams that is like an overwhelming doom and gloom/depression/anxiety that I am trying to escape. The dreams are SUPER vivid and lucid. Couple weeks ago, finally caught the tail end of a seizure and what precipitated it was that exact same feeling while dreaming.
@Angela Marie The good news is, you should be able to get a clear diagnosis especially after the casino. The tricky part is, stress and anxiety will cause more health problems than the seizure if you continue to let them eat away at you. I would recommend getting diagnosed by a neurologist. In the meantime, take it easy, do yoga, meditate, don't drink or take any medications that make it worse. Clean up your diet and be thankful you're still here 👏🏻
Stay away from caffeine and chocolate. I have partial onsets. I start to fall asleep, then suddenly start feeling VERY weird. Like, non-local and dizzy, and I stop breathing. It's not apnea, it's neurological. I then start tensing in my abdomen, and my my pelvic floor muscles start contracting. At this point, I start hallucinating metallic colors, all very deep sea aquatic in nature. I have an extreme anxiety/panic response. My heart races, but is very weak and shallow. This happens every time I start drifting, for hours. Before this began about 9 years ago, I suffered from severe nightmares and sleep paralysis upon waking, every night. Literally, every night. This is horrifying, when it happens. Keeps me awake all night. Chocolate really triggers it.
I feel like people don't understand what it is like to have epilepsy. People don't get what it's like to not have a full night of sleep and to wake up 5 times a night because of this.
Yes you are absolutely correct. An advice keep a cold water bottle with you and whenever you get up, drink some cold water. It will relieve the pain immediately. Most probably you will stay asleep and not have to get up in pain again. I have written a detailed guideline under the video chats separately which can be very helpful for you. Please read that message. Good luck.
I used to gouge my skin off, upon waking. A sudden grab, very hard. Would make me bleed. I'd feel like I was hit by a bus, very fatigued, and just felt like total shit. This started 7 years ago, but stopped a few years back.
Thanks for sharing this. It’s so difficult to describe. I’m undiagnosed but today I was napping and I felt/remember my arms legs out of control and then woke up fairly well from it but usually I feel like I’ve been drugged at night afterwards and I keep trying to become alert but keep passing out instead.
When you are calm after having a seizure, you should drink cold water immediately as this will cool your brain and body immediately. You should drink a frappe or something ice blended as this will further cool your brain and body Eat fish meals Eat full day meals. Watch a comedy program to reduce stress. Always keep a water bottle with you wherever you go because this is the first liquid which will relieve the pain of a seizure. You should avoid smoking or anything that affects the brain. Avoid amusement park rides as this can worsen seizures. Avoid being around Chemical factories. Good luck and I hope you stay well
I used to have nocturnal seizures before. It was trauma induced cause I had an accident which involved my nose and the stairs. It took about three years after that accident before it manifested. First time it triggered, I had no memory of any discomfort whatsoever. Its like, I closed my eyes, then bam! I opened it again and its morning and there's lots of people asking me if I'm okay and I was just "Wait, I was in my room just a while ago. Why are we on the streets now?". When people around me described what happened, it was not the usual siezures where the patient shakes violently and their eyes roll behind their heads. Mine was that I had a rugged breathing, as if I was gasping for air. Some parts of my body, like my fingernails, eyelids and lips, turns blue possibly from a lack of oxygen. All that while I was asleep. I could only imagine the horror of all those peole especially my parents seeing a 6 year old child in that state. After that first trigger, we tried a lot of tests consulted a bunch of specialist, quacks and licensed alike. Some blamed thhe supernatural, others said it was my heart or my being overweight, and there were even people who blamed my parents for it. But, when someone suggested an EEG (ElectroEncephaloGram), that's where it was all revealed. For a while, I use to sleep and wake up like I haven't slept at all. Apparently, it had something to do with my siezures affecting my REM sleep stage, which made me not have dreams in between sleeps which they said helps relax the body systems while that 7-8 hours of maintenance break is being done inactively. Fortunately, I was diagnosed early so there were some interventions before it could escalate. I used to think those 5 years of medication was just bad case of the flu and that my parents were just overreacting cause like I said, I don't know what's happening to me and it just occurs when I sleep so no one except for my family, the neighbours and my teachers knew about my condition. But, when I researched about it years later, I found out how serious my case was. Based on what I've read, nocturnal siezures can worsen if let untreated and worst case scenario is that the heart muscles can get affected and I could've died from cardiac arrest in my sleep. Thank God, its all behind me know and over a decade later, I haven't had a single episode ever since.
good shirt. and ya: the remembrance is so hazy! having one with a vague notion of the trailer shaking, and a sense of falling up: thinking my body tossed itself up out of bed. really strange. getting them around naps too because so tired often.
Same. Me today. Grand mal one for me. Very scary. Would love to know if it was legit or not. My heart was elevated when I woke up. And I have a headache as well and my body’s a bit sore and I just feel off
Like i had seizures twice or thrice today in dreams idk if its real bc in my dream i was trying to get up next thing i know i was wigh mom and reached but idk when i actually woke up i was on my bed
I have had "nocturnal" seizures for over 30 years. I generally feel a high level of anxiety beginning about 5 or 6 o'clock in the evening. I think this is because I actually fear going to sleep because I know what is going to happen to me after I finally doze off. My first seizure happens 1 1/2 hours into the night. I assume this has something to do with that particular sleep stage. Next, I generally start to have bizarre dreams and thrash around in the bed. The only word I can use to describe how this makes me feel is...torment. Finally, when I wake up, one of two things happen. Either I have a seizure and will blurt out something like a racial slur or a curse word, or I will lie in bed with the feeling of being "on the edge" of having a seizure, which keeps me frozen in place for 20-30 minutes. I have been placed on almost every medication known to man, to no avail. I am not a candidate for epilepsy surgery, as I found this out in Jan. of 2019. My next hope is deep brain stimulation. If I could find something that would help me sleep even 20% better, the risk would be worth it to me.
Thank you for sharing your videos. We are going through the process of getting a firm diagnosis and medication management with my 18 month old! We appreciate your experiences because he is going through a lot of the same things.
I had one just the other night. I woke up the next day feeling like my head was going to explode and I would throw up at any moment. One thing I remember from my childhood, is that I only had them when I was sick, but I'm not sure if I had them because I was sick, or if I felt sick because I had one.
To validate your experience A neurosurgeon I met with just confirmed to me that it CAN be a thing!! a lot of activity goes on in our brains when we're sleeping, and epilepsy is all about brain activity. I experience EXACTLY what you describe and I more or less have a diagnosis of nocturnal partial complex epilepsy. nothing ever caught on an EEG but I have some structural abnormalities in my temporal lobe. the events are sooo weird and scary. I describe the episodes as violent waves of crippling fear where I'm mostly conscious but also asleep. Sometimes I wake up "half way" in my bed super confused and panicked. Through this journey, has anyone suggested to you that you might be experiencing sleep paralysis, hypnogogia or hypnopompic hallucinations? While I did get an epilepsy diagnosis years ago, I and some other doctors have been suspicious that I am suffering from non-eplieptic night terrors that I just listed. Not sure if that's been the case for you. But since speaking with the surgeon I'm back to believing the episodes are seizures. lmk your thoughts and please be well!!
Also do you have a neurologist? Try finding the best one you can in your area or in nearby cities because you shouldn't be alone in trying to figure this out and there are people out there who really understand the complexities of the brain !!
If you've been diagnosed with epilepsy and the events happen while you're asleep it's like epilepsy. Have you ever had night terrors or sleep paralysis as a child? Do you recall not being able to move when you woke up and struggling ? That should be it, and within 10-30 seconds you should be able to wake up. It's a bit scary but it shouldn't ruin your whole day or make you feel exhausted. If it does. You likely had a seizure, not a bad nightmare.
Thank you so much. I don't feel quite so alone now💜 You described my seizures exactly and mine have been ONLY nocturnal🤷♀️. It takes a village. Thank you again.
I have clusters of nocturnal seizures each month usually during a full moon. There is amnesia afterwards and I feel like I got off at the wrong bus stop or something. Mine occur when I transition from REM sleep to consciousness, or shortly after I wake up. Generalized tonic clonic and partial seizures happen in my story. Sometimes I don’t start breathing after it’s done and someone’s got to slap my chest pretty hard, then I’ll starting inhaling again. It’s pretty scary for everyone involved but I have always come through month after month for over 22 years now. I’m obviously still supposed to be here. Yoga, meditation, and cannabis all help very well to reconnect with mind/body and reality again afterwards
Exactly same is the case with i am also getting nocturnal seizures each month from past 1 year when I am about to wake from sleep. It's such a horrible experience sometimes i fear to go to sleep.
My husband has been the same since 2016, he has been in icu three times with cluster grand mal seziures which he has 90% nocturnal but he has had EMDR and also on cannabis oil from sapphire clinic, it has made a massive difference to his life he doesn’t get half of the auras now but he has cut dairy out too, we know the oil is working but it’s annoying still not exactly knowing where they are come from, I have brought him out of some with distraction but when he’s already asleep it’s hard too❤️
@@kshitijjaiswal234 be happy they occur while resting. The last thing you want is having a seizure while driving or in a small room where you could fall and hit your head. Bed is the safest spot to have a seizure!!
What you describe is exactly what happened to me last night. I want sure whether it was a dream or really happened. I partially remember taking my TV remote, turning TV on then off then doing the same thing again. So I'm pretty certain I had one last night and i also woke up with a migraine. Your video helped me not feel like I'm losing my mind.. no pun intended. Thank you
I can finally put the words on what has been happening to me since I was a kid. I used to do sleep apnoea and then this evolved into these nocturnal seizures. Usually I am partly conscious and having a bad dream when this happens and I can feel my body moving and having a resistance pushed against and I can also feel that I am opening my mouth very wide as if I wanted to scream usually I do wake up with a very strange feeling and for the next hours or days I am very tired I have no muscle strength at all and I’m feeling very lightheaded and I need to take long long naps yesterday I had to take my day off from work and I slept until 9 pm.
I think I just had one last night my head felt like it was firing off so many signals/ electricity I was half sleeping half awake I tried to roll out of bed but it wouldn't let me it just pulled me back in . After I woke up my head was all fuzzy and I feel sick and exhausted. Im really shook up about it.
I can actually see the flashes almost like strobe effect behind my closed eyes.. it was particularly bad last night and then an hour later I had what I call a partial seizure- never been fully diagnosed thanks to Covid and Drs not seeing anyone .. I’ve had several upon waking but never at night. Lucky me lol
@@justjulia8007 havent got diagnosed either I've only had two of these one year apart each other but this one was just more scary not sure if I I have more while sleeping. The ones that I did have were also when waking
@@justjulia8007 same here but for me it happens suddenly I see flashes and it feels like I was being electrocuted but then it ends like after an instant
Yes, these are symptoms of partial seizures. You need to keep a cold water bottle with you and immediately drink the water after having the seizure. If you are feeling weak afterwards, drink a frappe or something ice blended. This will relax your body. Sometimes it's better to choose a fresh fish meal ( not fast food ) and greenery vegetables. There are things you should avoid as well. I have written a detailed message belowin the chats , please read that Good luck
Maltese? I lay here tonight with my 14 yr old in my arms . Tears roll from my eyes and blood from my heart . I will hold him as long as it takes. We are home where he feels safe and comfortable, away from the cold rooms and scary feelings . Bless him and 🙏
I'm only nocturnal epileptic. Doctors hate when I say what it is, because they don't want to sound too assuming. I'm looking into the epilepsy surgery.
This is so helpful and reassuring. You described what I have suffered from for ten years. I had a seizure last night and it was as you detailed in this video
I have nocturnal seizures. I had one today (6-3-2021) for the first time in a year and a half. I believe partial seizures while awake are more like panic attacks. I've had what I thought were auras or partial seizures but they are panic attacks. My sister and uncle has panic attacks. Mine did not start until my nocturnal seizures started. I'm pretture sure that my panic attacks have caused a seizure while im awake, but not every time. The feeling I have afterward is a feeling of desolation, emptyness, destruction, misery....it does goes away. When they first started in 2018, it was really bad. Felt doomed, like my world was ending...not because i was having health problems, but because of the oppressive nature that it puts your mind in. Proverbs 3:24-26 (KJV): 24 When thou liest down, thou shalt not be afraid: Yea, thou shalt lie down, and thy sleep shall be sweet. 25 Be not afraid of sudden fear, Neither of the desolation of the wicked, when it cometh. 26 For the Lord shall be thy confidence, And shall keep thy foot from being taken. Proverbs 3:24-26 (NASB): When you lie down, you will not be afraid; When you lie down, your sleep will be sweet. 25 Do not be afraid of sudden fear Nor of the onslaught of the wicked when it comes; 26 For the Lord will be your confidence And will keep your foot from being caught. Philippians 4:4-9 4 Rejoice in the Lord always; again I will say, rejoice! 5 Let your gentle spirit be known to all men. The Lord is near. 6 Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. 7 And the peace of God, which surpasses all comprehension, will guard your hearts and your minds in Christ Jesus. 8 Finally, brethren, whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things. 9 The things you have learned and received and heard and seen in me, practice these things, and the God of peace will be with you.
Ok, I stumbled across this video because I was trying to find answers to whether a dream seizure or dream fainting is actually happening to the body. I'll try and explain. I first noticed this 14 years a go at uni. I got freshers flu and so slept during the day. I had been cold so bundled myself up in my duvet and then overheated. But I couldn't wake up. I knew I needed to wake up, and I would for a few seconds and then I would go straight back into my dream where I would pass out or have a seizure. I just thought I was ill and having lucid dreams. But this has happened on and off over the years. Usually day time sleeping when I'm ill, tired or stressed, when I get too hot whilst asleep. I've only fainted once in my life and as I was going I remember saying to myself 'yep this is fainting' because I had experienced it in my dreams. Today I came home from work. Stressed, not having slept much last night and feeling like I wanted to puke my guts up. I slept 16.30-18.50. I set my alarm for 18.15 and I set several alarms 5 mins apart as I find it hard to wake. Everytime my alarm went off, I woke to turn it off and fell straight back into the dream where I would be fainting, but could feel it coming and so put myself on the floor, or whilst I was on the floor feeling ill I would start twitching slightly like a seizure. (This is all in my dream btw). Is it a dream or is it happening? Does anyone know? I've never had a fit, my brother is epileptic, full tonic clonic which started when he was 12. I do experience dissociation, which I put down to trauma rather than absences. Sorry for the long comment- just interested to know if others here experience anything like what I've described.
Hi, I've written a partial seizure detailed message. Please see if that answers your questions. Maybe it can answer questions for your brother as well. I hope you stay well
Thank you so much for being open about your experience with epilepsy. Can I start with saying that I found your 2015 video when I was diagnosed with CPS and it bought me to tears to know that someone else was experiencing what I am. I felt more at ease but also sad that you too have to go through this. I have had complex partial nocturnal seizures in the past but as you say they are really bizarre to pin point. One time I remember feeling really hot and uncomfortable so I kept turning over and over. This built up and I started feeling really strange and scared. In the end I removed myself to the bathroom and that’s when the aura built up and it turned into a seizure. I felt terrible the next day, almost hungover and I felt like I was walking on waves. I totally get what you mean, it’s a really bizarre and scary experience during the day, let alone at night! Have you increased your medication at all?
Sounds similar to what just happened to me. Scary because it was my first time actually aware. It started and I was hot, could NOT get comfortable got the life of me. Tossed and turned for hours. Then the event happened... the seizure. Probably only lasted 10 or 15 seconds..
I am not sure if what I’m experiencing, but nocturnal seizures seem to be the closest. 2 years ago was the first time it happened, it woke me up with extreme pressure from both ears and then I got horrible pain a-crossed my brain, it was like the pressure in my ears went from one to another. It felt as if I was having a Charley horse in my brain. At the same time I was in a state of not entirely awake but awake enough to realize what was happening. I was paralyzed and my eyes kept rolling into the back of my head, I also had an aura of dark red and black spots. Ever since it started 2 years ago I have got at least two each month, at a minimum. I brushed it off but I am in collage now, and I have not been getting sleep so I have had these events occur once a week now. I feel that it is seizures and they occur when I’m sleeping, mainly before I wake up. Today I got 4 hours of sleep and took a nap when I got done with class. I awaked and had one happen, although this time I noticed my face twitching, major teeth chatting and I kept blinking in and out of reality. This video and reading the comments makes me feel that it could be nocturnal, or at least ones that happen during sleep.
Nocturnal partials are the primary ones my husband has! On the rare occasions he has had a grand mal, it has been just as he has been falling asleep. His SLEEPING EEG shows the abnormalities and not the waking one. Before they did that one, they couldn't pin down the specifics. Sometimes he remembers he had nocturnal one, sometimes he doesn't. ,
Anyone have seizures at night and you can breathe for a second and the next you cant? It also happened to me when thinking or being in a specific position
About a year a ago I had my first nocturnal seizure. I kind of sat up looked at my boyfriend and my boyfriend said it sounded like I said something but mumbled whatever it was. Then started to seize and fell off the bed and continued. Him and his mom tried to wake me up. Ed also almost lost his fingers cuz he put them in my mouth thinking I was going to swallow my tongue. When I woke up I felt so weird. I've since had at least 4-6 more and each time I had stayed asleep after having the 1st seizure I stayed asleep but would end up having a 2nd and then would wake up. I have only gone to the er so far. I need to see a neurologist but haven't been able to make it cuz of Covid and the changes that came with it like needing Id at a new doctor. But hoping to make it there soon. Since I started having them I have had memory loss, lots of Deva, headaches, and muscle pain.
You can do a couple of things. After having a seizure and having control of your body, stay as calm as you can and drink cold water as this will cool your brain and body immediately. If you are still unwell throughout the day you should drink a frappe or something ice blended as this will further relax your body. Get proper sleep and eat your full day meals. Watch a comedy program to reduce stress. Eat fish meals. Always keep a cold water bottle with you wherever you go because this is the first liquid which will relieve your seizure. Avoid: Smoking or anything that affects the brain and body. Amusement park rides as this can worsen seizures. Being around Chemical factories. Good luck and I hope you stay well.
I’m currently suffering from partial seizures and am being seen for it and every time I’ve had/have one, it’s always at night, most of the time WHILE I’m sleeping! It’s so strange. My fiancé actually records me while it happens, which is helpful. I always swallow and do a lot of lip smacking
Make sure you drink cold water immediately after you have a partial seizure in your sleep or during any activities as this will cool your brain and body immediately. If your body is weak the same day, you should drink an ice blended drink like a frappe as this will relax your body. Make sure to keep a cold water bottle next to your bed at all times as this will be the first thing you need after experiencing a partial seizure during your sleep. A recommendation, ask your doctor about a medication called Lamictal or lamotrigine as this medication is great to reduce partial seizures
I’ve been convinced I’ve had several either upon waking up or falling asleep. It happened last night and what you’re describing is exactly how I experience them at night; you wake up very sure SOMETHING happened yet as you say it’s so hazy and I cannot pry my eyes open!! My arms went stiff and my head turned and I keep remembering trying to just open my eyes. I wondered if I had a night terror, but I’ve never had that. Matter of fact I’ve never been officially diagnosed even though I’ve been hospitalized twice for “partial onset seizure” .. and it’s like my bed is trembling until I realize it’s actually me. Then I am quite unaware of where my body is in space and time. Very bizarre. But yes, this is actually how it all started for me. Usually upon waking up. Last night was the first one I can recall happening about an hour after I had fallen asleep. Today I feel sore in my upper body, my left side neck is sore and my eyes hurt. Do feel odd. Ps. Totally unrelated, but I’m a huge Downton Abby fan.. actually my second go around watching all the seasons. I cannot help but notice you do sound uncannily similar to a character called, Anna ( Mrs. Bates ) .. you have a lovely accent and voice! ♥️ 🇺🇸
i don't know if it is a dream or a sezuire that is making me hallucinate because i feel like i am tumbling and floating around my room and my hands are invisible
I only suffer from nocturnal seizures, never had one in the day.. I have had one every sort of 3 months recently and I wake up with a absolutely butchered tongue.. I am not aware of anything that happens during this time or anything for the next sort of 20 minutes.. The next day it's just a weird feeling to get your head around.. Does anyone know if they stop you driving if your having nocturnal seizures?
I suffer from really bad sleep deprevation which causes me to have siezures through the night or the next day. And I feel tired, dizzy, have an aching body from head to toe. And I also get tension headaches and cluster headaches. I also can't function or concentrate and need to sleep all day every day until I recover.
An advice Any time you are having dizziness or tired after having a seizure drink a glass of cold water and if you are still having dizziness, drink a frappe or eat greenery vegetables and a fresh fish meal. This will help your body relax
Mine Happen when I wake up with a headache and I lift my head from my pillow then I end up feeling dizzy and exhausted and sleep deprived and dizzy. Then I end up having a seizure whilst asleep or when I wake up in the morning. My neurologist said I have complex partial siezures in my sleep. I get up to go to the toilet or get a cup of water and I get a headache and feel dizzy and tired and exhausted then I end up on the floor having a complex partial siezure
At first I thought seizures during sleep wasn’t a thing, but every now and then my body stiffens up during my sleep and sometimes I feel something at the very back of my head, I can’t control it at all, but one thing I’m sure of is that it wakes me up and I could hear everything around me, is that only me? It’s weird I can’t describe it but I can’t determine exactly if that’s a seizure or not 🤦🏻♀️
If you are having pain in one spot and it seems like severe pain and you become stiff during this , yes - this is a partial seizure which can remain in pain for 5 seconds to 8 or 10 seconds. After a partial seizure, you need to drink cold water because this will relax your brain and body immediately. If you are weak later on after the partial seizure, drink a blended drink like a frappe. Believe me this drink cools and relaxes the body immediately. Please don't ignore this pain, it worsens Let me know how this goes. Good luck
I have read many comments here - I do not have seizures in the day and unsure what I have are seizures - as when they start ( the shock/ feeling of dread /panic) forces me to do all it takes to get out of it. Always scream "NO" or some swear words and have slammed my hand into a wall to stop falling (ouch!) Comments here such as "falling", "being swallowed by the bed", "terror" "panic" "heart racing" etc, I relate. I remember them all and can get them dozens of times a night (always on that going to sleep or waking up transistion) I do not get paralysed (this i believe is parasomnia or hypnagogia) For myself, I have been told ....after 3 sleep studies, MRI - a dozen doctors, I have PTSD / bipolar/ anxiety / depression. The symptoms I have, fit (not fully) with "Nocturnal panic attacks", "Hypnic Jerks", "Restless Leg Syndrome". Zopiclone helps 80% of the time to get me to sleep but I can't avoid the morning attacks. I have had this for many years. Exhausted during the day.
I have nocturnal partial seizures. It’s like my usual ones but between them I am partially asleep. It will last the entire night. Just like in the day, they are painful and cause panic and nausea.
You should drink cold water after you experience partial seizures immediately, this will cool your brain. To get better afterwards depends differently on everyone. Drink a smoothie or a frappe, this will make your body normal and will take any pain you have away. Eat meals like Fish, greenery vegetables and to take away any further difficulties you have watch a comedy program. Good luck
Hi,I have the same as you,my nocturnal ones would wake me up and I would be breathless and have a feeling of strangulation which would end up with my arms feeling heavy,the last one I had I was almost sick retching very frightening. Am on meds now and i have not had any more
Can you share more about your experience? How old is your child, what do the seizures look like, etc. My 2yr was diagnosed with focal seizures in September but I've noticed that he does alot of twitching/jumping while sleeping the past fre days.
@@domoniquebateman5252 what does yours look like? My family has autosomal dominant nocturnal frontal lobe epilepsy running through it, but only 3 of almost 30 relatives have been tested and are known to have it. Only one of the 3 has active seizures requiring medication.
Have him checked by a neurologist 40 seizures are too many and not having epilepsy not checked is dangerous. Ask the doctor for a medicine called lamotrigine or Lamictal. Always keep a water bottle by your son because that is the first liquid he will need after a seizure and make sure he eats well all 3 meals of the day and sleeps well. Have some comedy programs available for him because this will reduce any worries or difficulties he has and this is also important for epilepsy people. Make sure your son is with someone during his sleep.
Last night I was really tired and had a headache all day (I was really hungover) I went on a walk too so I was really exhausted and went to bed at about 8 o’clock. I woke up at 1 in the morning and couldn’t get back to sleep. At some point I managed to fall back into a deep sleep only to be woken up shaking and convulsing uncontrollably, feeling suffocated and claustrophobic. I often sleep with the covers over my ears and so I was really confused for a few seconds trying to figure out what was going on and scream for help. Of course I couldn’t and was left basically having my body being short of breath as the convulsive shaking continued. I kept thinking “I’m having a seizure and no one can hear me” so I was relatively conscious of the situation but I fell immediately back to sleep only to wake up in the morning, exhausted and confused. I at first assumed it was sleep paralysis and my mind playing tricks but upon research and hearing others stories it seems sleep paralysis leaves you paralysed where as I was shaking uncontrollably and quite extremely. I can remember feeling almost disgusting and horrible at the way my body was shaking, the strangest thing I have ever experienced. Does this sound like a nocturnal seizure?
Hi, there are many reasons this could have happened including the seizures, but normally if you have a seizure that involves shaking (tonic clonic seizures) you will not remember it. Obviously I recommend talking to your doctor about it and they might recommend and EEG to test for seizure if they see fit. Hope you get answers
i wake up kicking swinging and sit up like i just got hit by a cattle prod...its happening often and i have no idea why, its always accompanied with a feeling of dread and fear and kicks off an adrenaline rush that makes falling back asleep a nightmare its 6.49 am and i dont want to go to sleep cause it feels like im going to be attacked as soon as im vulnerable! fml.
I think i had one today, i was very stressed before sleeping. In my dream my head felt like it had so much electricity/energy and i thought id die. Is that how you or others feel too?
I think I just had one last night my head felt like it was firing off so many signals/ electricity I was half sleeping half awake I tried to roll out of bed but it wouldn't let me it just pulled me back in . After I woke up my head was all fuzzy and I feel sick and exhausted. Hope this helps
This is a partial seizure. You need to immediately drink cold water. I have written a detailed message in the chats. Please read that. It'll be helpful for you
Hey Annie. I’ve had sleep paralysis my whole life and when I have it I use it to lucid dream. Yesterday I was feeling super super tired. Like you could just put your head down and fall asleep right away. So I figured I could slip into sleep paralysis. I then slipped into it and for me it’s hypnagogic so it occurs right when I fall asleep. So I woke up frozen as normal for sleep paralysis, but my body felt like it was having an earthquake. And it was stronger in my head than in my body. I don’t know if it was just a hallucination cause you get a lot of hallucinations in sleep paralysis. I don’t know, what do you think?
And when you say you feel like you’re imaging it like that’s what I’m saying too!! I really can’t tell if it’s real or a hallucination and it’s driving me crazy
I get the sleep paralysis with earthquake on the inside too. I had it during a sleep study and felt like I was wide awake, but they told me I didn’t wake that much.
This is the best explanation I have read! I experience this with the earthquake feeling. I can fight it off but I’m confused as to whether it’s a form of a seizure or sleep paralysis ? I used to hallucinate as a child but now if I try to sleep I just get that constant falling sensation which eventually leaves my brain feeling like it’s deprived from oxygen and this earthquake comes on
My mum has full blown nocturnal seizures and most of the time she doesnt remember she has them unless she has bitten her tongue whilst she is having one...but what i have seen is when my mum gets very irritable or having a very stressed day I can tell that she will have one...I've seen my mum have fits my whole life, well as long as I can remember and it really not nice to see someone you love go through something like this and you cant do anything about it....but my mum says the same as you where she feel like she dreams them and is in two mind whether shes had one or not...but today she actually had one whilst awake which is very very strange as that's happened only once when I was very young and she was hospitalized for a few days to do some test and even the doctors cant tell us why. But as a loved one watching someone go through this I do sympathize with you....your not going crazy x
I stopped getting them and I miss it. From age 14 to 40's I had them. It stopped the day I got fed up and stopped fighting it. It was an amazing out of body experience when I let it happen. Now that I know it has stopped. I miss it. It's a gift.
Which type of a seizure do you have ? There are different names of seizures. Perhaps partial seizure. This is when you will have a severe headache and afterwards a specific part of the brain will be hurting badly and will feel like electric movement with severe pain in that area and your body will be stiff. Sometimes there is also shortage of breath.
Last week I woke up to paramedics telling me I am waking from a seizure, I barely woke up for them and I am a light sleeper too so now I know I was clonic tonic like she said
Hi ,I've just come across your video .Yes ,mine continue through the night ( I will have many through the day ).,go to bed ,sleep for 2 hours then turn my head sharply to the left many times .I will have an horrific nightmare that repeats They're now trying to tell me these are ' dissociative seizures !'
Hello, my name is Daisy. I have partial-complex. I also I have anxiety, ptsd, insomniac, anxiety about going to sleep (I got severe after mom died), I’ve tried exhausting this to Neuro, been through the EEG and MRI, they said I out grew them or misdiagnosed after 20 yrs, and that it’s psychological. Depression, Anxiety, PTSD, and Bipolar. Anyways, I have these where I actually see myself having seizures but they are grand mal looking ones, choking me, and feel like I am either crying or talking... Or trying to tell someone... almost out of body experience...they are not the same as dreaming or nightmares. Mouth is dry and feel like someone has been choking me. I have learned to move on from anxiety about epilepsy issues in general.
I have grandmal seizures. I have since I was 2. Plus i have had nocturnal seizures and complex partial. At age 7 i was playing tag. I remember walking or running and i couldn't stop when my brother was yelling at me. I went to the highway. I was told i layed down and had a seizure. Cars came to a stop. Almost crashing. My mom had to comeget me. As far as night or sleep seizures. I have had many. Most of the time i wake up dried blood in my mouth. I have bit the inside of my cheek . I have blood and saliva on my pillow or throw up on me and my pillow. I most of the time wake up with a headache and stomachache and confused. Nocturnal seizure for me are rough. I try to stay on my side when I sleep. I live on a deadend road now not on a highway any more. Im 52 now with 2 children. But u had a real warning. Your body let you know what happened to you.
Few weeks ago I had sleep paralysed before waking up. I woke up to electric feeling going from my feets all through my body up to the brain. I wasn’t able to move take a breath and open my eyes I tried to call for help but I couldn’t say a word. It lasted around 10 seconds then I snap out of it. I thought that Iam dying. Few days after I was soo scared to go sleep because every time I tried to go sleep right before drift off I felt this electric shock go through my body wich waked my up to panic attack 😢
I was on tegrotol for 5 years from aged 8 till 14. I'm fortunate to only had nocturnal epilepsy due to cracking my head when I was 7. I'm now 25 and been off meds and seizure free for 10 years. However I'm a bloke and the side effect I had was It made one of my pecks slightly bigger than the other. I'm happy to be alive but have no self confidence as a result 😑🙏🖖 watching this its good to know I wasn't alone. Coming of tablets my god those mood changes 😬😬🙈
Hi Annie, first of all thank you for your kind words, my name is Declan from Galway Ireland I have been epileptic for 30 years thankfully it is under control to medication and right frontal lobe surgery but this year am going through a lot of nocturnal seizures have 5 in this month alone have had 3 nocturnal seizures over the last 3 nights all meds taken and plenty of sleep got am going down to my neurological team in Galway in the next week day after am weak and tired like a full blown seizure, weird as it seems have absolutely no seizure activity in the daytime nothing at all it all happens at night to you and those dearest to you wishing you a merry Christmas and a Prosperous New Year 2025 and best of health to you and those dearest to you hope all is well cheers Declan
My “time of the month” usually gives me more seizures in my sleep and I will have a nocturnal seizure very close to when I’m about to come on. I have moments as well where I have been known to sleep walk.
This has been happening to me the last 6 month's. Most of the time when I sleep on my side and waking me up in the morning. Like a machine gun in my face but no pain. I know it happened. It wasn't a dream. Thank you for this. I thought I was going nuts!
This is so relatable from last 5 months i am having similar symptoms i wake up at night jittery and shaking and from time to time have nightmares that i do not are really nightmares or not but when i wake up from them its a strange feeling like fighting to wake up and my legs and hands are stretched have gone to multiple doctors all say its anxiety but I dont know what is wrong
My 3 year old son is having tonic clonic Seizures multiple times a night hes been needing his rescue medicine almost every night and to go into hospital I'm exhausted cos I canny stop watching him on the baby monitor and from in the hospital I sit all night and watch him and press the nurses botten when he has them. I always worry I won't wake up and he will get stuck in a Seizure without help, it's all so new to me I hate seeing him suffering, he comes out of it screeming terrified sometimes he has a panic attack cos he is so freaked out or he will pass out and wake up drowsy falling about the place and slurring his words. I hate it I hope they can get him on the right medication soon
How is your son doing now ? Ask his doctor about a medicine called lamotrigine or Lamictal as this medication is a great choice for epilepsy people. Make sure he eats properly and doesn't miss his meals. ( Breakfast, lunch and dinner ) on time and make sure he gets proper sleep. Taking medication 12 hours apart is extremely important. Make him a fruit smoothie as this will help him if he gets weak or if he has a seizure. Keep him away from amusement park rides as this can worsen seizures. I hope your son stays well. ❤
As far as I am aware, mine happen right at the brink of dreaming and still being sort of awake. And usually it will be small jerks, sometimes a big one which sends an electrical shock through my body. And sometimes my left side will shake for a second or two. Varies. Not sure why.
@@chooky4626 i have not yet. Im taking 150mg lamotrigine twice a day and it helps some but doesnt stop them completely. They put me on vimpat and lamotrigine at the same time at one point and it actually did really good but my body didnt like the side affects or the vimpat. So they referred me to MUSC Epilepsy center in Charleston so they can figure out what they need to put me on to stop them. I go in April so hopefully ill get some answers and i hope that you can too.
After having a seizure, you should drink cold water immediately If you are still unwell throughout the day, you should drink a frappe or something ice blended as this will further relax your body. Watch a comedy program to reduce stress Eat your full day meals Get proper sleep Avoid smoking or anything that affects the brain and body Avoid amusement park rides as this can worsen seizures Being around Chemical factories. Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective to reduce seizures. Medication can only reduce seizures but chances are you'll get the seizures again. Good luck all and I hope you stay well
Hi I've been diagnosed with epilepsy since 2015 I've never had seizures during the day.. To me even if I'm on my bed they will never come ever but the moment I'm really really in a deep sleep then they will come... I've lived with epilepsy for years and I've never had seizures under the daylight
Thank you so much, I know exactly what these are, the symptoms your explaining now make sense to me. Was diagnosed in December post road traffic accident, and iv not been right since. So pushed to get this looked into but covid put a hold on it. Can I ask when your in this semi conscious state of sleep I jerk, like jump and I then fully wake up, does this sound familiar to you. Iv been started on lamotrigine which has helped. ? ?
We do have partial seizures in our sleep! I have frontal lobe epilepsy and I have them in the day and in my sleep. I wake up sweaty af and confused and shaky so yes we do have them in our sleep
My girlfriend has numerous nocturnal seizures like this. It always freaks me out because I’m never sure what triggered it or what we can do to prevent them. I usually just end up holding her until it’s over (they’re never longer than 30 seconds), and most of them she’s not even aware that they’ve happened. She gets the auras that one is coming, and then has multiples throughout that same night. It makes both of us become fearful of falling asleep while she “feels funny”, and this feeling can last for days, but being sleep deprived increases the likelihood that one will happen. Does anyone have any tips or understanding as to why this happens and how to prevent them?
What has the doctor said ? What medication is she taking ? Lamictal is a great medicine. If she has a seizure then give her a glass of water immediately as this will cool her body and relieve the pain of the seizure. Don't wait for her seizure to end. Watch some comedy programs. Keep her away from amusement park rides as this is a disadvantage for a seizure. She shouldn't consume anything that will affect the brain. Do let me know how everything is going
Hi I’ve been having weird sensations in my sleep at times and had a hard time finding anything about it online. I have rhythmic movements upwards and the wave motion semi wakes me up. I have frontal and temporal lobe epilepsy. I noticed a few months ago my 6 year old having the same motion in her sleep. It’s not obvious to see, but body palpitations is the best way I can think to describe it.
I did wake up or the seizure woke me up one night. It is scary and being half asleep because the confusion is worse. Most of mine are daytime ones. I hate the feeling of “oh no, not again” and that I’m fading away. I am on 400 mg x2 daily and rarely have one now. You are NOT mad😉
I usually have it only when I’m sleeping in my back. Sleeping on my side I’ve only had it like 5 times but majority of the time I don’t get it sleeping on my side.
I feel so frightened as I am waking up around 4am and can’t sleep for a couple or hour .. but when I go back sleep I wake and if a don’t move I can’t feel my back arching and my muscles tighten .. it has been happening for a couple of years but I keep thinking I’m dreaming but more resent it’s happened when I’m more awake .. I literally feel a very weird feeling in my head and it travels down my body into my back and all the muscles tense up so tight. It only last till a move. I’ve been experiencing such terrible fatigue in the daytime. I am struggling to stay awake after 8pm too. Is this what anyone has experienced? I have also felt complete fear .. it’s hard to explain. I am 56 female with rheumatoid arthritis. I am feeling pretty scared tbh and heading to the doctors this wk. The main reason I have been is because i was on tramadol for pain and thought it was maybe that but I’ve been off of that now for a couple of months and it’s just getting worse x please can anyone help xxx
I get nocturnal seizures only and dont get up immediately.. my whole body really hurts in the morning and its been 2 years i am experiencing it on and off essp when i am sleep deprived and over working myself with studies they disappear when i am not studying... i get so confused about them... i dont know exaclty what's the triggering point..... its exhausting
I don't have seizures anymore since 2001 but i been having nocturnal seizures it's a sensation that i can't explain to my doctor i have this feeling in my brain sometimes when I wake up my tongue hurts a lot i think I bit it or sometimes i wake up with a severe headache and all confused
Am 46 now and have had these as long as I remember. They kind of bring me out of sleep with that feeling of deja vu and fear/ dread; feel very rough physically for the next 24 hours and get a bit mixed up emotionally. Then I’m completely back to my normal happy self. Is it like this for anyone else too? Medications can’t seem to control it. Btw this is my son’s account. I have nothing to do with Fortnite 😂
You need to drink cold water immediately after having a seizure as this will cool your brain and body. If you are still unwell throughout the day, drink a frappe or something ice blended as this will further relax your body. Watch a comedy program to reduce stress Always eat your full day meals Get proper sleep Eat fish meals Always keep a cold water bottle with you wherever you go because this is the first liquid which will relieve the pain of seizures. Avoid smoking or anything that affects the brain and body. Avoid amusement park rides as this can worsen seizures Avoid being around Chemical factories. If you are driving and feel you have a seizure or do have a seizure, immediately park your car on the side of the road and stay as calm as you can and drink cold water. Drive only after your health is well. Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective to reduce seizures. Good luck and I hope you stay well
Yeah I have them too mine are frontal lobe and start as partial affecting my right side usually but then progress into generalised tonic clonic. It's fairly hard as yeah I have them in clusters when they do happen and have a massive headache and have difficulty speaking afterwards but I can understand what people are saying to me it's weird when I come around. This year I was induced into a coma after refusing to take the meds as in the UK they said they were psychogenic but back home and in Italy said its frontal lobe epilepsy and all to say its been a journey and particularly frontal lobe seizures can be mistaken for psychogenic ones and that has costed my life in multiple occasions and I been mistreated and neglected because of that which even if it was that then they shouldn't be acting like that. I have some terrible memories coming round and I experienced seizures since I was 1 and a half years old first febrile which according to my family happened at least 2x and then more subtle ones since i was 5 or 6 years old but at the time they didn't know those were seizures then I came to the UK at 12 years old and believe at 14 I started having full blown tonic clonic ones, that now I know start partially after spending months in the neurology ward and intensive care in the hospital . My story is long so I won't bother you with details but it's it's hard and had to go to rehab because I had so many and being in a coma that it messed up with my brain and body and I had to regain muscle that I'd lost but yeah seizures suck but I'm comforted knowing and I know this but you always think it's you and you only experiencing that so thanks for sharing, I and many others I'm sure appreciate it.
If it is confirmed that you have epilepsy, then you should take this more seriously to avoid getting worse seizures. You need to drink cold water immediately after having a seizure. If you are still unwell throughout the day, you should drink a frappe or something ice blended as this will further relax your body. Watch comedy programs to reduce your stress. Eat your full day meals. Get proper sleep. Avoid smoking or anything that affects the brain and body. Avoid amusement park rides as this can worsen seizures. Avoid being around Chemical factories. Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective for epilepsy. Good luck and I hope you stay well
I bite the sides of my tongue, will have random twitches and extremely vivid/lucid dreams. I'll have what feels like dreams that last forever, 10+ differently themed dreams that are very odd, sometimes nightmares.
I did so many times had nocturnal seizures. I'm a complex partial epileptic person. And yes its hard to pinpoint what's been happening. It's like I'm having tonic clonic fits right after explosive waking up from my slumber. Sometimes I can tell that my whole body convulsing but my wakefulness seems comes and goes without me being able to control it. While having it I feel like I'm having hallucinations while watching me convulsing outside of my own body. Afterwards I know I'm having a night fit when I see I wet my pillow with my drools or wet my bed or all my pillows were thrown all over.
I have nocturnals too. I think my brain tries to fight them off because I do the turning thing too. I have had many hallucinations of shape and colors and jellyfish like creatures as I was waking up and now recently waking up with my hands shaking.. But, the feeling of dread or fear or like something isn't right, is the worst. It is hard to describe.
The same thing happens, my body starts tensing uncontrollable
Same .tell me how do you fight with it fr
This type of seizure is so rare.. really rare..im glad to know that i am not alone
Me too I just had these exact seizures last night
@@theMaraudersrock what do you think the best solution for this kind of seizure?
@@ginamoses6139 i got it on 2012, but on 2020 i waking up bruised and my tounge bitten, well it happen again. but i havent got it from 2013 to 2019, this thing is weird asf. doctor telling me that i am having TLE DVA, weird blood vein growth in my brain.
its not that rare lol. not at all. A lot of people have nocturnal partials.
I'm with you guys too.I had one too .
This video…I have been lost the last few months trying to deal with these symptoms and waiting on a neurology appointment. The is video perfectly describes everything that I’m feeling and experiencing ! Thanks for being so public with your journey.
I have recently joined u guys in having nocturnal seizures at 30. I wake up dizzy, forgetful and sometimes it takes a couple days to feel normal. My muscles get really sore all over my body and I am single so there's no one to intervene if I need help. It sucks
I’m so sorry. How did you find out you were having them
If you experience partial seizures or in your case nocturnal seizure what you should do is drink a cold drink , like a smoothie or a frappe drink and ofcourse cold water when you have seizures.
This will cool your brain and surely will make your muscles better.
Eat meals like Fish and greenery vegetables.
A good advice is watch a comedy program which will just take your stress away. ( who's line is it anyway ) that's a great show.
Always keep a cold water bottle with you when you go for a drive, or a walk.
Good luck
I have the exactly same thing mate at 40, I empathize with your situation.. it’s not easy
I so appreciate you and this channel. Thank you or your vulnerability. For Complex Partial Seizures being so common there isn’t much in terms of lifestyle examples, experiences shared, or even support ANYWHERE. Perhaps it’s because everyone is different (hence the complex in the name) So, thank you for sharing your experiences here on RUclips. I have experienced similar seizures but it’s hard to know much of anything unless someone else sees me experience them. I get very tripped out be cause i “know” something’s gone on, but not remembering (not having proof) makes me feel unsettled. On top of the hazy/ anxiety/ fatigue migraine stuff I feel post seizure.
I have the exact same thing. The weirdest thing is with the memories. Something feels so familiar but for the love of god you can not pin down what it is. It’s part of the partial seizures and happens quite often for me. Thanks for sharing. You are not the only one with this crap. Hang in there.
Reading this/your comment is such a relief.. I feel so much better knowing i’m not alone…
I have Nocturnal Seizures for over 23 years. when i have these is usually just as a fall asleep or 4-5am in the morning. Tiredness is one of the triggers. I never had a seizure in the day or when i am awake.
Same thing recently started happening to me
I suffer from exact same thing but Im being tested and having scans and seeing a neurologist but even the neurologist don't really fully understand but Im trying hard to get some help
@@funchanel1792same I’ve been dying for help. I do not want this to effect me later in my life.
What medication are you using?
Me too. Had it a week ago. I know I was tired before I went to sleep but I really didn't expect that it was gonna come. It's hard to tell cause I don't really have these "auras" that some people are experiencing. Thanks for this
Thanks, my daughter has just started with night time seizures. I feel so useless. The doctors are still diagnosing and I felt a little lost your videos helped with my worries. Nice to have it explained in English.
How is your daughter's health now ?
Your daughter should put a cold towel on her forehead for about 10 to 15 minutes before bed time. That will surely make a difference.
If she has seizures during her sleep, make sure she drinks cold water immediately, this 100% relieves the seizures pain immediately.
I hope your daughter gets well.
How is your daughter's health now.
I hope she is recovering from partial seizures with the medication
I just was diagnosed with epilepsy, everything you talked about is what I’ve been going through the last 17 years
Did you take any medication ma'am?coz my son had a nocturnal too and hes taking anti epilepsy but its not working good...if do you have any suggestions it much appreciated thank you and god bless America...im from Philippines
@@elcrispino5689
Yes sure, there is a medicine called lamotrigine or lamictal. This medicine works great for seizures.
Another important suggestion is to give your son cold water immediately after he has a seizure as this will cool the brain and relax the body. If he has any weakness afterwards, then he should drink a smoothie or frappe ( something ice blended ) as this will cool and relax the brain and body.
You are definitely not mad! I have nocturnal tonic clonic seizures and I wake up wondering if I’ve had a seizure to be told that I woke up early in the morning and went to the bathroom. I don’t remember getting up or TALKING TO MY GF.
It’s a bizarre feeling and I can’t offer any advice, I can only tell you that you’re not alone. I’m happy to learn that I’m not alone either.
Hi Annie! I have felt all of these things & uncertainties! It is so frustrating & I too have felt absolutely crazy going through the cycle of “did I have a seizure or was it just a regular dream?”
This actually happened last night.
I have complex partial seizures as well & have had several nocturnal seizures. What happens with me is I will literally dream that I’m having a seizure (all of the same things that happen to me when I’m awake & having one will always be happening in my dream - something goes numb, exhaustion kicks in, I go in & out of consciousness, I start weeping, my head hurts). It happens right before I wake up & usually when I wake up I am so exhausted physically that it feels near impossible to fully wake up.
My father age,71 (almost) is having such nocturnal seizures since 2016. Its me who is only attendant of him who is nursing him in his postictal state. Dear Annie watching you and listening your worthy experiences is very informative. I shalla pray for you to God that He bless you with complete recovery and a joyful healthy life. Amin
So my seizures are only in my sleep i wake up to it and i feel my face twitching heart racing then i cant speak and I'm kinda like paralyzed. I have had them for almost 3 years and i need help it drives me insane.
Hi Birdman, I do also get seizure attract during the sleep only. Its really scary and bad feeling. I afraid to sleep if my wife is not around. Sometime I get symptom before seizure happening. many times I try to call for help but I can't make enough notice. I am taking the medicine ; Natriumvalproaat Sandoz chrono 500 mg tablet since year 2015. In the beginning it did work perfectly , now I seems not working. Of course, I'm still in touch with doctor.
Oh my god I am going through the exact same thing. I have nocturnal epilepsy and I only just got diagnosed. At first the doctors though it was panic attacks but it's nice to know that lots of others have to deal with this too.
I think I've been having these as well. I use to have these episodes about 9 or 10 years ago but I was told by my doctor it was an anxiety disorder/panic attack because I was conscious when they happened. Then I had to deal with family members saying it was a demonic attack. This year I've started experiencing the same thing but only as I'm falling asleep or in the middle of sleeping. I started to Google the symptoms I've been having and came upon nocturnal frontal seizures. I never new this was a thing but it fits my symptoms exactly. I definitely need to speak with my doctor about this.
i am 15, but i experience something very similar. i cant sleep right now because of this actually and it’s 5 am! but, since march 2020 i would seize in my sleep. the odd thing was it was only 5-8 am or so. there have been multiple times where i had a grand mal while sleeping but i thought i was in an ambulance or hospital with my mom crying next to me which was the exact opposite. i also get paralyzed and can’t do anything(obviously) but i am completely conscious only making it 10x worse.
I want to add to this, if any of you that have commented on my comment has these issues make sure your not a diabetic because thats what im doing now
Hi, I have night time seizure every 3 months or so. I know how you feel trying to describe it but mine seems to be a de ja vue feeling, a funny sensation happens in my stomach and I also swallow quite a bit but the worst thing for me is that for a few days later I feel very edgy, anxious, and a bit removed from reality. When I told my neurologist this he said that this is quite a common occurrence, hope this helps a bit
Hello , I also get night time seizure particularly when I am about to awake every 2-3 months . I feel completely unconscious for 2-3 hours ,for 6-7 hrs head pain but then everything is normal.100 percent normal .
Did Ur seizures go away .What did your doctor say?
The dejvu feelings are horrible.
Stress and seizures are linked in many cases.
@@0zimale so , now you are ok on medication ?
Which medicines has your doctor prescribed?.
@@anshulkedia8802 no meds at the moment, this is all new. What are your symptoms....
@@0zimale total unconscious when one happens . Afterwards muscle pain ,confusion etc. Had been on medication since 3 years no benefit .occurs one in every around 2-3 month
I have complex partial seizures. I also have the deja vu moment prior to the seizure. I have had 3 seizures with severe arm movements and going unconscious. 2 of these seizures were at night. The first one I must have had after my husband left for work, which would have been a few hours before I wake up. I woke later that morning in a lot of pain and greatly confused. The second one I had my husband was able to call for medical help. It lasted well over 5 minutes. When I have these nocturnal seizures I don't realize it at the time. You are not alone. I am so glad I found your videos. Thanks for sharing your story because I thought I was the only one.
I have written an important and detailed description of the partial seizures below the video separately.
Please read that and see if that is of any help for your seizures difficulties.
If you have any questions, please do ask below that message.
I hope your health is getting much better now.
If you have any partial seizures, please immediately drink cold water afterwards as this will relax your brain and body immediately.
One more important advice is, if your body is weak throughout the day, you should drink an ice blended drink. If you choose a frappe, it will relieve the pain of your body.
Good luck
I was diagnosed as having photosensitive epilepsy when I was 10. I also was a sleepwalker and sleep eater.
5 years ago a friend witnessed me have a seizure while I was asleep and I fell off the bed and broke my back. To my knowledge that was the first sleeping seizure I ever had.
For the last 3 years I’ve been waking up with crazy bruises and feeling terrible. Well a week ago I woke up unable to get up and I obviously had broken ribs. I went to the hospital and 3 days later I found out I have nocturnal epilepsy and now I’m completely freaked out. I have a watch thing that monitors for seizures and can call 911 for me. I am wearing a lifevest wearable defibrillator in case my heart stops. Suddenly I’m terrified of epilepsy. I’m 48 I’ve had seizures since I was 10. I was never afraid. I was embarrassed.
Also now I think this is why I was a random bed wetter 🤷🏻♀️
I have no memory of anything. I saw the video from the hospital and I couldn’t believe it was me. I was walking around and doing the most random stuff. I kept falling down and walking into walls. No wonder I’m bruised up like a battered wife!!!!!!!
I think every time I’ve woken up with a wet bed I probably had a seizure.
My license has been suspended which who cares, I wasn’t about to be driving a car around anyway but it’s officially medically suspended- I’m afraid to go to sleep.
And right now I am nursing 3 broken ribs and a broken left foot. I woke up with broken bones from these seizures 🤷🏻♀️
As if I wasn’t odd enough now I know I have this creepy condition . I just can’t emotionally handle my life right now.
At least it was diagnosed and you have a good doctor looking out for you. If you weren't made for this journey, then it wouldn't happen to you.
If you are facing any sort of seizures, don't ignore it. If someone is around you, make sure you are given a cold glass of water immediately which will cool your brain and will take away the symptoms of the seizures. Moreover, make sure you are in a sitting position are relaxed before completing your sleep
If you wake up during a seizure, drink cold water immediately.
*This is video is me off loading a very confusing time. I was confused about what was happening to me during this* However a 24 EEG has confirmed focal seizures that happen at night.
Thanks everyone for not making me feel like this isn't a thing.
Hi Annie,
The first step after any types of a seizure is to drink a cold glass of water immediately, this will cool the brain.
If you have any body weaknesses, drink a smoothie or a frappe, this will also relax the body.
Yes having a seizure during my sleep has happened but you should drink cold water and stay calm. Ignoring and remaining in bed is not a good idea at all.
If your sleep has been disturbed from a seizure, make sure your body is relaxed enough to complete your sleep after drinking cold water.
It's important not to miss a full day meal. Skipping meals can give a partial seizure especially missing breakfast.
Avoid:
1) smoking and smelling cigarettes
2) being around chemical factories
3) being areas of detergent and similar products.
These can cause any types of seizure.
I hope my advice was helpful.
Thank you for making such a great video.
Please let me know if this worked for you.
Good luck
Thank you for making me feel like I'm not crazy.
Thank you so much for this. My first neurologist tells me it's all just anxiety despite having massive strokes and grand mal seizures after those along with them showing up on an EEG. I have found a different one but the hang up of the first neurologist who just told me to get my psychiatrist to up my anxiety meds and go away still linger on me.
I'm so sorry you had that experience! It drives me MAD when doctors don't trust their patients... When I had my first seizure I didn't have health insurance, so I went to the ER not knowing what else to do. The doctor that saw me dismissed everything I said and was convinced I "just fainted". Refused to do any tests and sent me home. It was a horrible experience that has stayed with me too. 😖
I hope you 2 are getting well.
You should talk to your neurologist about a medication call Lamictal, it's very good to reduce seizures.
Some points which you can take care of on your own:
1)Always drink a glass of cold water after your seizure and after your body is stable
2) if you still feel weak then you should drink a frappe or something ice blended, this will relax your body
3) keep yourself away from smoking or anything that affects the brain
4) avoid amusement park rides as this can worsen any types of seizures
5) always keep a cold water bottle with you whether you are out for a walk, drive or anywhere else.
Watch comedy programs, this will keep your health better.
Eat a fresh fish meal and eat greenery vegetables, this will add benefits to your health
Good luck and I hope your health stays well
i got nocturnal seizure in 2012, almost died from chocking from saliva. my dad telling me that i am not breathing for 1,5 hours. he (my dad) is scared and cried that i am died that night. i remembered alot that "realistic unsettling dream" out of body experience. i even draw all of my experience from it.
I have nocturnal seizures and when I'm dreaming and the dream turns weird and haunted all of a sudden for no reason at all, that's when I know it's coming and when it does all I see, feel and hear is pure horror and terror, I thought I was the only one in the family who had it but then I asked my mother about it and realized why I experience nocturnal seizures, I inherited it from her unfortunately.
GojiraNoKyokai this happened to me last night. I have experienced it many times but never quite as dramatic as the one I had in my sleep last night. I dreamt I was in a car crash and felt my brain hit the front of my skull. It was awful, it seems to get worse each time it happens but my body almost resists the seizure by making me jerk dramatically and then I come out of it wide awake. It seems this is quite common? I was only diagnosed 1.5 years ago. Any advice would be appreciated. Thank you
I have the same thing happen to me. I am just NOW putting 2 and 2 together. For the past year I would have this sudden content/emotion in my dreams that is like an overwhelming doom and gloom/depression/anxiety that I am trying to escape. The dreams are SUPER vivid and lucid. Couple weeks ago, finally caught the tail end of a seizure and what precipitated it was that exact same feeling while dreaming.
@Angela Marie The good news is, you should be able to get a clear diagnosis especially after the casino. The tricky part is, stress and anxiety will cause more health problems than the seizure if you continue to let them eat away at you. I would recommend getting diagnosed by a neurologist. In the meantime, take it easy, do yoga, meditate, don't drink or take any medications that make it worse. Clean up your diet and be thankful you're still here 👏🏻
Stay away from caffeine and chocolate. I have partial onsets.
I start to fall asleep, then suddenly start feeling VERY weird. Like, non-local and dizzy, and I stop breathing. It's not apnea, it's neurological.
I then start tensing in my abdomen, and my my pelvic floor muscles start contracting. At this point, I start hallucinating metallic colors, all very deep sea aquatic in nature.
I have an extreme anxiety/panic response. My heart races, but is very weak and shallow. This happens every time I start drifting, for hours.
Before this began about 9 years ago, I suffered from severe nightmares and sleep paralysis upon waking, every night. Literally, every night.
This is horrifying, when it happens. Keeps me awake all night. Chocolate really triggers it.
I feel like people don't understand what it is like to have epilepsy. People don't get what it's like to not have a full night of sleep and to wake up 5 times a night because of this.
Yes you are absolutely correct.
An advice keep a cold water bottle with you and whenever you get up, drink some cold water. It will relieve the pain immediately. Most probably you will stay asleep and not have to get up in pain again.
I have written a detailed guideline under the video chats separately which can be very helpful for you. Please read that message.
Good luck.
Monthly cycle triggers these, too. At most, 2 weeks before starting menstruation, and sometimes before ovulation.
I used to gouge my skin off, upon waking. A sudden grab, very hard. Would make me bleed. I'd feel like I was hit by a bus, very fatigued, and just felt like total shit. This started 7 years ago, but stopped a few years back.
Thanks for sharing this. It’s so difficult to describe. I’m undiagnosed but today I was napping and I felt/remember my arms legs out of control and then woke up fairly well from it but usually I feel like I’ve been drugged at night afterwards and I keep trying to become alert but keep passing out instead.
When you are calm after having a seizure, you should drink cold water immediately as this will cool your brain and body immediately.
You should drink a frappe or something ice blended as this will further cool your brain and body
Eat fish meals
Eat full day meals.
Watch a comedy program to reduce stress.
Always keep a water bottle with you wherever you go because this is the first liquid which will relieve the pain of a seizure.
You should avoid smoking or anything that affects the brain.
Avoid amusement park rides as this can worsen seizures.
Avoid being around Chemical factories.
Good luck and I hope you stay well
I used to have nocturnal seizures before. It was trauma induced cause I had an accident which involved my nose and the stairs. It took about three years after that accident before it manifested. First time it triggered, I had no memory of any discomfort whatsoever. Its like, I closed my eyes, then bam! I opened it again and its morning and there's lots of people asking me if I'm okay and I was just "Wait, I was in my room just a while ago. Why are we on the streets now?". When people around me described what happened, it was not the usual siezures where the patient shakes violently and their eyes roll behind their heads. Mine was that I had a rugged breathing, as if I was gasping for air. Some parts of my body, like my fingernails, eyelids and lips, turns blue possibly from a lack of oxygen. All that while I was asleep. I could only imagine the horror of all those peole especially my parents seeing a 6 year old child in that state. After that first trigger, we tried a lot of tests consulted a bunch of specialist, quacks and licensed alike. Some blamed thhe supernatural, others said it was my heart or my being overweight, and there were even people who blamed my parents for it. But, when someone suggested an EEG (ElectroEncephaloGram), that's where it was all revealed. For a while, I use to sleep and wake up like I haven't slept at all. Apparently, it had something to do with my siezures affecting my REM sleep stage, which made me not have dreams in between sleeps which they said helps relax the body systems while that 7-8 hours of maintenance break is being done inactively. Fortunately, I was diagnosed early so there were some interventions before it could escalate. I used to think those 5 years of medication was just bad case of the flu and that my parents were just overreacting cause like I said, I don't know what's happening to me and it just occurs when I sleep so no one except for my family, the neighbours and my teachers knew about my condition. But, when I researched about it years later, I found out how serious my case was. Based on what I've read, nocturnal siezures can worsen if let untreated and worst case scenario is that the heart muscles can get affected and I could've died from cardiac arrest in my sleep. Thank God, its all behind me know and over a decade later, I haven't had a single episode ever since.
good shirt. and ya: the remembrance is so hazy! having one with a vague notion of the trailer shaking, and a sense of falling up: thinking my body tossed itself up out of bed. really strange. getting them around naps too because so tired often.
I feel like I have dreams of having seizures, and wondering if I had one or just a dream.
Same. Me today. Grand mal one for me. Very scary. Would love to know if it was legit or not. My heart was elevated when I woke up. And I have a headache as well and my body’s a bit sore and I just feel off
Same its so samee
Like i had seizures twice or thrice today in dreams idk if its real bc in my dream i was trying to get up next thing i know i was wigh mom and reached but idk when i actually woke up i was on my bed
I have had "nocturnal" seizures for over 30 years. I generally feel a high level of anxiety beginning about 5 or 6 o'clock in the evening. I think this is because I actually fear going to sleep because I know what is going to happen to me after I finally doze off. My first seizure happens 1 1/2 hours into the night. I assume this has something to do with that particular sleep stage. Next, I generally start to have bizarre dreams and thrash around in the bed. The only word I can use to describe how this makes me feel is...torment. Finally, when I wake up, one of two things happen. Either I have a seizure and will blurt out something like a racial slur or a curse word, or I will lie in bed with the feeling of being "on the edge" of having a seizure, which keeps me frozen in place for 20-30 minutes. I have been placed on almost every medication known to man, to no avail. I am not a candidate for epilepsy surgery, as I found this out in Jan. of 2019. My next hope is deep brain stimulation. If I could find something that would help me sleep even 20% better, the risk would be worth it to me.
Try marijuana for sleep like a baby. You're welcome.
@@Baxfam1 how does it affect epilepsy and the nocturnal seizures. Is it possible for you to give any information?
Thank you for sharing your videos. We are going through the process of getting a firm diagnosis and medication management with my 18 month old! We appreciate your experiences because he is going through a lot of the same things.
I had one just the other night. I woke up the next day feeling like my head was going to explode and I would throw up at any moment.
One thing I remember from my childhood, is that I only had them when I was sick, but I'm not sure if I had them because I was sick, or if I felt sick because I had one.
To validate your experience A neurosurgeon I met with just confirmed to me that it CAN be a thing!! a lot of activity goes on in our brains when we're sleeping, and epilepsy is all about brain activity. I experience EXACTLY what you describe and I more or less have a diagnosis of nocturnal partial complex epilepsy. nothing ever caught on an EEG but I have some structural abnormalities in my temporal lobe. the events are sooo weird and scary. I describe the episodes as violent waves of crippling fear where I'm mostly conscious but also asleep. Sometimes I wake up "half way" in my bed super confused and panicked.
Through this journey, has anyone suggested to you that you might be experiencing sleep paralysis, hypnogogia or hypnopompic hallucinations? While I did get an epilepsy diagnosis years ago, I and some other doctors have been suspicious that I am suffering from non-eplieptic night terrors that I just listed. Not sure if that's been the case for you. But since speaking with the surgeon I'm back to believing the episodes are seizures. lmk your thoughts and please be well!!
Also do you have a neurologist? Try finding the best one you can in your area or in nearby cities because you shouldn't be alone in trying to figure this out and there are people out there who really understand the complexities of the brain !!
If you've been diagnosed with epilepsy and the events happen while you're asleep it's like epilepsy. Have you ever had night terrors or sleep paralysis as a child? Do you recall not being able to move when you woke up and struggling ? That should be it, and within 10-30 seconds you should be able to wake up. It's a bit scary but it shouldn't ruin your whole day or make you feel exhausted. If it does. You likely had a seizure, not a bad nightmare.
Thank you so much. I don't feel quite so alone now💜 You described my seizures exactly and mine have been ONLY nocturnal🤷♀️. It takes a village. Thank you again.
I have clusters of nocturnal seizures each month usually during a full moon. There is amnesia afterwards and I feel like I got off at the wrong bus stop or something. Mine occur when I transition from REM sleep to consciousness, or shortly after I wake up. Generalized tonic clonic and partial seizures happen in my story. Sometimes I don’t start breathing after it’s done and someone’s got to slap my chest pretty hard, then I’ll starting inhaling again. It’s pretty scary for everyone involved but I have always come through month after month for over 22 years now. I’m obviously still supposed to be here. Yoga, meditation, and cannabis all help very well to reconnect with mind/body and reality again afterwards
Exactly same is the case with i am also getting nocturnal seizures each month from past 1 year when I am about to wake from sleep. It's such a horrible experience sometimes i fear to go to sleep.
My husband has been the same since 2016, he has been in icu three times with cluster grand mal seziures which he has 90% nocturnal but he has had EMDR and also on cannabis oil from sapphire clinic, it has made a massive difference to his life he doesn’t get half of the auras now but he has cut dairy out too, we know the oil is working but it’s annoying still not exactly knowing where they are come from, I have brought him out of some with distraction but when he’s already asleep it’s hard too❤️
@@kshitijjaiswal234 be happy they occur while resting. The last thing you want is having a seizure while driving or in a small room where you could fall and hit your head. Bed is the safest spot to have a seizure!!
What you describe is exactly what happened to me last night. I want sure whether it was a dream or really happened. I partially remember taking my TV remote, turning TV on then off then doing the same thing again. So I'm pretty certain I had one last night and i also woke up with a migraine. Your video helped me not feel like I'm losing my mind.. no pun intended. Thank you
I can finally put the words on what has been happening to me since I was a kid. I used to do sleep apnoea and then this evolved into these nocturnal seizures. Usually I am partly conscious and having a bad dream when this happens and I can feel my body moving and having a resistance pushed against and I can also feel that I am opening my mouth very wide as if I wanted to scream usually I do wake up with a very strange feeling and for the next hours or days I am very tired I have no muscle strength at all and I’m feeling very lightheaded and I need to take long long naps yesterday I had to take my day off from work and I slept until 9 pm.
I think I just had one last night my head felt like it was firing off so many signals/ electricity I was half sleeping half awake I tried to roll out of bed but it wouldn't let me it just pulled me back in . After I woke up my head was all fuzzy and I feel sick and exhausted. Im really shook up about it.
same here 😓
I can actually see the flashes almost like strobe effect behind my closed eyes.. it was particularly bad last night and then an hour later I had what I call a partial seizure- never been fully diagnosed thanks to Covid and Drs not seeing anyone .. I’ve had several upon waking but never at night. Lucky me lol
@@justjulia8007 havent got diagnosed either I've only had two of these one year apart each other but this one was just more scary not sure if I I have more while sleeping. The ones that I did have were also when waking
@@justjulia8007 same here but for me it happens suddenly I see flashes and it feels like I was being electrocuted but then it ends like after an instant
Yes, these are symptoms of partial seizures.
You need to keep a cold water bottle with you and immediately drink the water after having the seizure.
If you are feeling weak afterwards, drink a frappe or something ice blended. This will relax your body.
Sometimes it's better to choose a fresh fish meal ( not fast food ) and greenery vegetables.
There are things you should avoid as well.
I have written a detailed message belowin the chats , please read that
Good luck
Maltese? I lay here tonight with my 14 yr old in my arms . Tears roll from my eyes and blood from my heart . I will hold him as long as it takes. We are home where he feels safe and comfortable, away from the cold rooms and scary feelings . Bless him and 🙏
I'm only nocturnal epileptic. Doctors hate when I say what it is, because they don't want to sound too assuming. I'm looking into the epilepsy surgery.
This is so helpful and reassuring. You described what I have suffered from for ten years. I had a seizure last night and it was as you detailed in this video
I have nocturnal seizures. I had one today (6-3-2021) for the first time in a year and a half. I believe partial seizures while awake are more like panic attacks. I've had what I thought were auras or partial seizures but they are panic attacks. My sister and uncle has panic attacks. Mine did not start until my nocturnal seizures started. I'm pretture sure that my panic attacks have caused a seizure while im awake, but not every time. The feeling I have afterward is a feeling of desolation, emptyness, destruction, misery....it does goes away. When they first started in 2018, it was really bad. Felt doomed, like my world was ending...not because i was having health problems, but because of the oppressive nature that it puts your mind in.
Proverbs 3:24-26 (KJV):
24 When thou liest down, thou shalt not be afraid:
Yea, thou shalt lie down, and thy sleep shall be sweet.
25 Be not afraid of sudden fear,
Neither of the desolation of the wicked, when it cometh.
26 For the Lord shall be thy confidence,
And shall keep thy foot from being taken.
Proverbs 3:24-26 (NASB): When you lie down, you will not be afraid;
When you lie down, your sleep will be sweet.
25 Do not be afraid of sudden fear
Nor of the onslaught of the wicked when it comes;
26 For the Lord will be your confidence
And will keep your foot from being caught.
Philippians 4:4-9
4 Rejoice in the Lord always; again I will say, rejoice!
5 Let your gentle spirit be known to all men. The Lord is near.
6 Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.
7 And the peace of God, which surpasses all comprehension, will guard your hearts and your minds in Christ Jesus.
8 Finally, brethren, whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things.
9 The things you have learned and received and heard and seen in me, practice these things, and the God of peace will be with you.
How lovely of you to share such encouraging scriptures! Thank you for that. ♥️
These are my exact symptoms I completely understand it’s so hard to explain but you did a great job
Ok, I stumbled across this video because I was trying to find answers to whether a dream seizure or dream fainting is actually happening to the body.
I'll try and explain.
I first noticed this 14 years a go at uni. I got freshers flu and so slept during the day. I had been cold so bundled myself up in my duvet and then overheated. But I couldn't wake up. I knew I needed to wake up, and I would for a few seconds and then I would go straight back into my dream where I would pass out or have a seizure.
I just thought I was ill and having lucid dreams.
But this has happened on and off over the years. Usually day time sleeping when I'm ill, tired or stressed, when I get too hot whilst asleep.
I've only fainted once in my life and as I was going I remember saying to myself 'yep this is fainting' because I had experienced it in my dreams.
Today I came home from work. Stressed, not having slept much last night and feeling like I wanted to puke my guts up. I slept 16.30-18.50. I set my alarm for 18.15 and I set several alarms 5 mins apart as I find it hard to wake. Everytime my alarm went off, I woke to turn it off and fell straight back into the dream where I would be fainting, but could feel it coming and so put myself on the floor, or whilst I was on the floor feeling ill I would start twitching slightly like a seizure. (This is all in my dream btw).
Is it a dream or is it happening? Does anyone know?
I've never had a fit, my brother is epileptic, full tonic clonic which started when he was 12.
I do experience dissociation, which I put down to trauma rather than absences.
Sorry for the long comment- just interested to know if others here experience anything like what I've described.
Hi,
I've written a partial seizure detailed message. Please see if that answers your questions. Maybe it can answer questions for your brother as well.
I hope you stay well
Thank you so much for being open about your experience with epilepsy. Can I start with saying that I found your 2015 video when I was diagnosed with CPS and it bought me to tears to know that someone else was experiencing what I am. I felt more at ease but also sad that you too have to go through this. I have had complex partial nocturnal seizures in the past but as you say they are really bizarre to pin point. One time I remember feeling really hot and uncomfortable so I kept turning over and over. This built up and I started feeling really strange and scared. In the end I removed myself to the bathroom and that’s when the aura built up and it turned into a seizure. I felt terrible the next day, almost hungover and I felt like I was walking on waves. I totally get what you mean, it’s a really bizarre and scary experience during the day, let alone at night! Have you increased your medication at all?
Sounds similar to what just happened to me. Scary because it was my first time actually aware. It started and I was hot, could NOT get comfortable got the life of me. Tossed and turned for hours. Then the event happened... the seizure. Probably only lasted 10 or 15 seconds..
I am not sure if what I’m experiencing, but nocturnal seizures seem to be the closest. 2 years ago was the first time it happened, it woke me up with extreme pressure from both ears and then I got horrible pain a-crossed my brain, it was like the pressure in my ears went from one to another. It felt as if I was having a Charley horse in my brain. At the same time I was in a state of not entirely awake but awake enough to realize what was happening. I was paralyzed and my eyes kept rolling into the back of my head, I also had an aura of dark red and black spots. Ever since it started 2 years ago I have got at least two each month, at a minimum. I brushed it off but I am in collage now, and I have not been getting sleep so I have had these events occur once a week now. I feel that it is seizures and they occur when I’m sleeping, mainly before I wake up. Today I got 4 hours of sleep and took a nap when I got done with class. I awaked and had one happen, although this time I noticed my face twitching, major teeth chatting and I kept blinking in and out of reality. This video and reading the comments makes me feel that it could be nocturnal, or at least ones that happen during sleep.
Nocturnal partials are the primary ones my husband has! On the rare occasions he has had a grand mal, it has been just as he has been falling asleep. His SLEEPING EEG shows the abnormalities and not the waking one. Before they did that one, they couldn't pin down the specifics.
Sometimes he remembers he had nocturnal one, sometimes he doesn't. ,
Anyone have seizures at night and you can breathe for a second and the next you cant? It also happened to me when thinking or being in a specific position
About a year a ago I had my first nocturnal seizure. I kind of sat up looked at my boyfriend and my boyfriend said it sounded like I said something but mumbled whatever it was. Then started to seize and fell off the bed and continued. Him and his mom tried to wake me up. Ed also almost lost his fingers cuz he put them in my mouth thinking I was going to swallow my tongue. When I woke up I felt so weird. I've since had at least 4-6 more and each time I had stayed asleep after having the 1st seizure I stayed asleep but would end up having a 2nd and then would wake up. I have only gone to the er so far. I need to see a neurologist but haven't been able to make it cuz of Covid and the changes that came with it like needing Id at a new doctor. But hoping to make it there soon. Since I started having them I have had memory loss, lots of Deva, headaches, and muscle pain.
You can do a couple of things.
After having a seizure and having control of your body, stay as calm as you can and drink cold water as this will cool your brain and body immediately.
If you are still unwell throughout the day you should drink a frappe or something ice blended as this will further relax your body.
Get proper sleep and eat your full day meals.
Watch a comedy program to reduce stress.
Eat fish meals.
Always keep a cold water bottle with you wherever you go because this is the first liquid which will relieve your seizure.
Avoid:
Smoking or anything that affects the brain and body.
Amusement park rides as this can worsen seizures.
Being around Chemical factories.
Good luck and I hope you stay well.
I’m currently suffering from partial seizures and am being seen for it and every time I’ve had/have one, it’s always at night, most of the time WHILE I’m sleeping! It’s so strange. My fiancé actually records me while it happens, which is helpful. I always swallow and do a lot of lip smacking
Make sure you drink cold water immediately after you have a partial seizure in your sleep or during any activities as this will cool your brain and body immediately.
If your body is weak the same day, you should drink an ice blended drink like a frappe as this will relax your body.
Make sure to keep a cold water bottle next to your bed at all times as this will be the first thing you need after experiencing a partial seizure during your sleep.
A recommendation, ask your doctor about a medication called Lamictal or lamotrigine as this medication is great to reduce partial seizures
I’ve been convinced I’ve had several either upon waking up or falling asleep. It happened last night and what you’re describing is exactly how I experience them at night; you wake up very sure SOMETHING happened yet as you say it’s so hazy and I cannot pry my eyes open!! My arms went stiff and my head turned and I keep remembering trying to just open my eyes. I wondered if I had a night terror, but I’ve never had that. Matter of fact I’ve never been officially diagnosed even though I’ve been hospitalized twice for “partial onset seizure” .. and it’s like my bed is trembling until I realize it’s actually me. Then I am quite unaware of where my body is in space and time. Very bizarre.
But yes, this is actually how it all started for me. Usually upon waking up. Last night was the first one I can recall happening about an hour after I had fallen asleep. Today I feel sore in my upper body, my left side neck is sore and my eyes hurt. Do feel odd.
Ps. Totally unrelated, but I’m a huge Downton Abby fan.. actually my second go around watching all the seasons. I cannot help but notice you do sound uncannily similar to a character called, Anna ( Mrs. Bates ) .. you have a lovely accent and voice! ♥️ 🇺🇸
Honestly sounds more like a demonic possession than anything
@@walterwhite1 so weird, it actually was. You must have the same spiritual connection to know such a thing!! I’m truly amazed. Thank you 🙏
i don't know if it is a dream or a sezuire that is making me hallucinate because i feel like i am tumbling and floating around my room and my hands are invisible
I only suffer from nocturnal seizures, never had one in the day.. I have had one every sort of 3 months recently and I wake up with a absolutely butchered tongue.. I am not aware of anything that happens during this time or anything for the next sort of 20 minutes.. The next day it's just a weird feeling to get your head around.. Does anyone know if they stop you driving if your having nocturnal seizures?
In Netherlands, if your seizure only happens during the sleep then you can still have driving licence, my doctor told.
This just happened to me on the 9th and they told me I can't drive I go to a neurologist on the 30th
@@xlindybae2820 yes in canada license is revoked
I suffer from really bad sleep deprevation which causes me to have siezures through the night or the next day. And I feel tired, dizzy, have an aching body from head to toe. And I also get tension headaches and cluster headaches. I also can't function or concentrate and need to sleep all day every day until I recover.
An advice
Any time you are having dizziness or tired after having a seizure drink a glass of cold water and if you are still having dizziness, drink a frappe or eat greenery vegetables and a fresh fish meal.
This will help your body relax
Mine Happen when I wake up with a headache and I lift my head from my pillow then I end up feeling dizzy and exhausted and sleep deprived and dizzy. Then I end up having a seizure whilst asleep or when I wake up in the morning. My neurologist said I have complex partial siezures in my sleep. I get up to go to the toilet or get a cup of water and I get a headache and feel dizzy and tired and exhausted then I end up on the floor having a complex partial siezure
At first I thought seizures during sleep wasn’t a thing, but every now and then my body stiffens up during my sleep and sometimes I feel something at the very back of my head, I can’t control it at all, but one thing I’m sure of is that it wakes me up and I could hear everything around me, is that only me? It’s weird I can’t describe it but I can’t determine exactly if that’s a seizure or not 🤦🏻♀️
Exactly! Just had a similar experience.
Same here
If you are having pain in one spot and it seems like severe pain and you become stiff during this , yes - this is a partial seizure which can remain in pain for 5 seconds to 8 or 10 seconds.
After a partial seizure, you need to drink cold water because this will relax your brain and body immediately.
If you are weak later on after the partial seizure, drink a blended drink like a frappe. Believe me this drink cools and relaxes the body immediately.
Please don't ignore this pain, it worsens
Let me know how this goes.
Good luck
I have read many comments here - I do not have seizures in the day and unsure what I have are seizures - as when they start ( the shock/ feeling of dread /panic) forces me to do all it takes to get out of it. Always scream "NO" or some swear words and have slammed my hand into a wall to stop falling (ouch!) Comments here such as "falling", "being swallowed by the bed", "terror" "panic" "heart racing" etc, I relate. I remember them all and can get them dozens of times a night (always on that going to sleep or waking up transistion) I do not get paralysed (this i believe is parasomnia or hypnagogia) For myself, I have been told ....after 3 sleep studies, MRI - a dozen doctors, I have PTSD / bipolar/ anxiety / depression. The symptoms I have, fit (not fully) with "Nocturnal panic attacks", "Hypnic Jerks", "Restless Leg Syndrome". Zopiclone helps 80% of the time to get me to sleep but I can't avoid the morning attacks. I have had this for many years. Exhausted during the day.
I have nocturnal partial seizures. It’s like my usual ones but between them I am partially asleep. It will last the entire night. Just like in the day, they are painful and cause panic and nausea.
You should drink cold water after you experience partial seizures immediately, this will cool your brain. To get better afterwards depends differently on everyone.
Drink a smoothie or a frappe, this will make your body normal and will take any pain you have away.
Eat meals like Fish, greenery vegetables and to take away any further difficulties you have watch a comedy program.
Good luck
Hi,I have the same as you,my nocturnal ones would wake me up and I would be breathless and have a feeling of strangulation which would end up with my arms feeling heavy,the last one I had I was almost sick retching very frightening. Am on meds now and i have not had any more
What meds?
@@mojav3_ lamotrigine 150 mgs twice a day
My son was diagnosed yesterday with frontal lobe epilepsy and he was having up to 40 seizures a night. We are new to this and im scared to sleep
Can you share more about your experience? How old is your child, what do the seizures look like, etc. My 2yr was diagnosed with focal seizures in September but I've noticed that he does alot of twitching/jumping while sleeping the past fre days.
@@domoniquebateman5252 what does yours look like? My family has autosomal dominant nocturnal frontal lobe epilepsy running through it, but only 3 of almost 30 relatives have been tested and are known to have it. Only one of the 3 has active seizures requiring medication.
Have him checked by a neurologist
40 seizures are too many and not having epilepsy not checked is dangerous.
Ask the doctor for a medicine called lamotrigine or Lamictal.
Always keep a water bottle by your son because that is the first liquid he will need after a seizure and make sure he eats well all 3 meals of the day and sleeps well. Have some comedy programs available for him because this will reduce any worries or difficulties he has and this is also important for epilepsy people. Make sure your son is with someone during his sleep.
Last night I was really tired and had a headache all day (I was really hungover) I went on a walk too so I was really exhausted and went to bed at about 8 o’clock. I woke up at 1 in the morning and couldn’t get back to sleep. At some point I managed to fall back into a deep sleep only to be woken up shaking and convulsing uncontrollably, feeling suffocated and claustrophobic. I often sleep with the covers over my ears and so I was really confused for a few seconds trying to figure out what was going on and scream for help. Of course I couldn’t and was left basically having my body being short of breath as the convulsive shaking continued. I kept thinking “I’m having a seizure and no one can hear me” so I was relatively conscious of the situation but I fell immediately back to sleep only to wake up in the morning, exhausted and confused. I at first assumed it was sleep paralysis and my mind playing tricks but upon research and hearing others stories it seems sleep paralysis leaves you paralysed where as I was shaking uncontrollably and quite extremely. I can remember feeling almost disgusting and horrible at the way my body was shaking, the strangest thing I have ever experienced. Does this sound like a nocturnal seizure?
Hi, there are many reasons this could have happened including the seizures, but normally if you have a seizure that involves shaking (tonic clonic seizures) you will not remember it. Obviously I recommend talking to your doctor about it and they might recommend and EEG to test for seizure if they see fit. Hope you get answers
i wake up kicking swinging and sit up like i just got hit by a cattle prod...its happening often and i have no idea why, its always accompanied with a feeling of dread and fear and kicks off an adrenaline rush that makes falling back asleep a nightmare its 6.49 am and i dont want to go to sleep cause it feels like im going to be attacked as soon as im vulnerable! fml.
I think i had one today, i was very stressed before sleeping. In my dream my head felt like it had so much electricity/energy and i thought id die. Is that how you or others feel too?
I think I just had one last night my head felt like it was firing off so many signals/ electricity I was half sleeping half awake I tried to roll out of bed but it wouldn't let me it just pulled me back in . After I woke up my head was all fuzzy and I feel sick and exhausted. Hope this helps
Yea and I was like ”damn is a seizure really how am gonna die”
drink water if it attacks again, it worked for me
This is a partial seizure.
You need to immediately drink cold water.
I have written a detailed message in the chats.
Please read that. It'll be helpful for you
It usually happens when I’m falling asleep or waking up! And it’s very scary!😔
Hey Annie. I’ve had sleep paralysis my whole life and when I have it I use it to lucid dream. Yesterday I was feeling super super tired. Like you could just put your head down and fall asleep right away. So I figured I could slip into sleep paralysis. I then slipped into it and for me it’s hypnagogic so it occurs right when I fall asleep. So I woke up frozen as normal for sleep paralysis, but my body felt like it was having an earthquake. And it was stronger in my head than in my body. I don’t know if it was just a hallucination cause you get a lot of hallucinations in sleep paralysis. I don’t know, what do you think?
And when you say you feel like you’re imaging it like that’s what I’m saying too!! I really can’t tell if it’s real or a hallucination and it’s driving me crazy
EXACTLY THE SAME WITH ME. please reply to me if you find anything out
I get the sleep paralysis with earthquake on the inside too. I had it during a sleep study and felt like I was wide awake, but they told me I didn’t wake that much.
anyone got any audiotary hallucinations? (when experiencing the seizure)
This is the best explanation I have read! I experience this with the earthquake feeling. I can fight it off but I’m confused as to whether it’s a form of a seizure or sleep paralysis ? I used to hallucinate as a child but now if I try to sleep I just get that constant falling sensation which eventually leaves my brain feeling like it’s deprived from oxygen and this earthquake comes on
My mum has full blown nocturnal seizures and most of the time she doesnt remember she has them unless she has bitten her tongue whilst she is having one...but what i have seen is when my mum gets very irritable or having a very stressed day I can tell that she will have one...I've seen my mum have fits my whole life, well as long as I can remember and it really not nice to see someone you love go through something like this and you cant do anything about it....but my mum says the same as you where she feel like she dreams them and is in two mind whether shes had one or not...but today she actually had one whilst awake which is very very strange as that's happened only once when I was very young and she was hospitalized for a few days to do some test and even the doctors cant tell us why. But as a loved one watching someone go through this I do sympathize with you....your not going crazy x
I stopped getting them and I miss it. From age 14 to 40's I had them. It stopped the day I got fed up and stopped fighting it. It was an amazing out of body experience when I let it happen. Now that I know it has stopped. I miss it. It's a gift.
?????
@@tweezboog9084 when I stopped fighting the nocturnal paralysis it was better. The more you fight it the worse it feels. Just allow it to happen.
Is depression a trigger for seizures?
I didn't have any seizure for 6 years, until yesterday. I was very depressed
It might something called Pseudoseizures, also called psychogenic nonepileptic seizures (PNES) www.medicalnewstoday.com/articles/322016
I feel very depressed right before a seizure. I feel like its a symptom, not a trigger. But you could be different.
Which type of a seizure do you have ?
There are different names of seizures.
Perhaps partial seizure.
This is when you will have a severe headache and afterwards a specific part of the brain will be hurting badly and will feel like electric movement with severe pain in that area and your body will be stiff.
Sometimes there is also shortage of breath.
Last week I woke up to paramedics telling me I am waking from a seizure, I barely woke up for them and I am a light sleeper too so now I know I was clonic tonic like she said
Hi ,I've just come across your video .Yes ,mine continue through the night ( I will have many through the day ).,go to bed ,sleep for 2 hours then turn my head sharply to the left many times .I will have an horrific nightmare that repeats They're now trying to tell me these are ' dissociative seizures !'
Hello, my name is Daisy. I have partial-complex. I also I have anxiety, ptsd, insomniac, anxiety about going to sleep (I got severe after mom died), I’ve tried exhausting this to Neuro, been through the EEG and MRI, they said I out grew them or misdiagnosed after 20 yrs, and that it’s psychological. Depression, Anxiety, PTSD, and Bipolar. Anyways, I have these where I actually see myself having seizures but they are grand mal looking ones, choking me, and feel like I am either crying or talking... Or trying to tell someone... almost out of body experience...they are not the same as dreaming or nightmares. Mouth is dry and feel like someone has been choking me. I have learned to move on from anxiety about epilepsy issues in general.
I have grandmal seizures. I have since I was 2. Plus i have had nocturnal seizures and complex partial. At age 7 i was playing tag. I remember walking or running and i couldn't stop when my brother was yelling at me. I went to the highway. I was told i layed down and had a seizure. Cars came to a stop. Almost crashing. My mom had to comeget me. As far as night or sleep seizures. I have had many. Most of the time i wake up dried blood in my mouth. I have bit the inside of my cheek . I have blood and saliva on my pillow or throw up on me and my pillow. I most of the time wake up with a headache and stomachache and confused. Nocturnal seizure for me are rough. I try to stay on my side when I sleep. I live on a deadend road now not on a highway any more. Im 52 now with 2 children. But u had a real warning. Your body let you know what happened to you.
Few weeks ago I had sleep paralysed before waking up. I woke up to electric feeling going from my feets all through my body up to the brain. I wasn’t able to move take a breath and open my eyes I tried to call for help but I couldn’t say a word. It lasted around 10 seconds then I snap out of it. I thought that Iam dying. Few days after I was soo scared to go sleep because every time I tried to go sleep right before drift off I felt this electric shock go through my body wich waked my up to panic attack 😢
I was on tegrotol for 5 years from aged 8 till 14. I'm fortunate to only had nocturnal epilepsy due to cracking my head when I was 7. I'm now 25 and been off meds and seizure free for 10 years. However I'm a bloke and the side effect I had was It made one of my pecks slightly bigger than the other. I'm happy to be alive but have no self confidence as a result 😑🙏🖖 watching this its good to know I wasn't alone. Coming of tablets my god those mood changes 😬😬🙈
Hi Annie, first of all thank you for your kind words, my name is Declan from Galway Ireland I have been epileptic for 30 years thankfully it is under control to medication and right frontal lobe surgery but this year am going through a lot of nocturnal seizures have 5 in this month alone have had 3 nocturnal seizures over the last 3 nights all meds taken and plenty of sleep got am going down to my neurological team in Galway in the next week day after am weak and tired like a full blown seizure, weird as it seems have absolutely no seizure activity in the daytime nothing at all it all happens at night to you and those dearest to you wishing you a merry Christmas and a Prosperous New Year 2025 and best of health to you and those dearest to you hope all is well cheers Declan
My “time of the month” usually gives me more seizures in my sleep and I will have a nocturnal seizure very close to when I’m about to come on. I have moments as well where I have been known to sleep walk.
I have them in my sleep and during the day time whenever I'm ovulating!! Its hormone related! Estrogen to be exact.
This has been happening to me the last 6 month's. Most of the time when I sleep on my side and waking me up in the morning. Like a machine gun in my face but no pain. I know it happened. It wasn't a dream. Thank you for this. I thought I was going nuts!
This is so relatable from last 5 months i am having similar symptoms i wake up at night jittery and shaking and from time to time have nightmares that i do not are really nightmares or not but when i wake up from them its a strange feeling like fighting to wake up and my legs and hands are stretched have gone to multiple doctors all say its anxiety but I dont know what is wrong
My 3 year old son is having tonic clonic Seizures multiple times a night hes been needing his rescue medicine almost every night and to go into hospital I'm exhausted cos I canny stop watching him on the baby monitor and from in the hospital I sit all night and watch him and press the nurses botten when he has them. I always worry I won't wake up and he will get stuck in a Seizure without help, it's all so new to me I hate seeing him suffering, he comes out of it screeming terrified sometimes he has a panic attack cos he is so freaked out or he will pass out and wake up drowsy falling about the place and slurring his words. I hate it I hope they can get him on the right medication soon
How is your son doing now ?
Ask his doctor about a medicine called lamotrigine or Lamictal as this medication is a great choice for epilepsy people.
Make sure he eats properly and doesn't miss his meals. ( Breakfast, lunch and dinner ) on time and make sure he gets proper sleep.
Taking medication 12 hours apart is extremely important. Make him a fruit smoothie as this will help him if he gets weak or if he has a seizure. Keep him away from amusement park rides as this can worsen seizures.
I hope your son stays well. ❤
Greetings everybody,
How are your health going ?
I hope all of you are recovering well from any meditation you are doing for your seizures
As far as I am aware, mine happen right at the brink of dreaming and still being sort of awake. And usually it will be small jerks, sometimes a big one which sends an electrical shock through my body. And sometimes my left side will shake for a second or two. Varies. Not sure why.
This happens to me and it's hell ... have you found any relief
@@chooky4626 i have not yet. Im taking 150mg lamotrigine twice a day and it helps some but doesnt stop them completely. They put me on vimpat and lamotrigine at the same time at one point and it actually did really good but my body didnt like the side affects or the vimpat. So they referred me to MUSC Epilepsy center in Charleston so they can figure out what they need to put me on to stop them. I go in April so hopefully ill get some answers and i hope that you can too.
@@shampoo6563 Good luck!
After having a seizure, you should drink cold water immediately
If you are still unwell throughout the day, you should drink a frappe or something ice blended as this will further relax your body.
Watch a comedy program to reduce stress
Eat your full day meals
Get proper sleep
Avoid smoking or anything that affects the brain and body
Avoid amusement park rides as this can worsen seizures
Being around Chemical factories.
Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective to reduce seizures.
Medication can only reduce seizures but chances are you'll get the seizures again.
Good luck all and I hope you stay well
Hi I've been diagnosed with epilepsy since 2015 I've never had seizures during the day.. To me even if I'm on my bed they will never come ever but the moment I'm really really in a deep sleep then they will come... I've lived with epilepsy for years and I've never had seizures under the daylight
Thank you so much, I know exactly what these are, the symptoms your explaining now make sense to me. Was diagnosed in December post road traffic accident, and iv not been right since. So pushed to get this looked into but covid put a hold on it. Can I ask when your in this semi conscious state of sleep I jerk, like jump and I then fully wake up, does this sound familiar to you. Iv been started on lamotrigine which has helped. ? ?
Wow! Thank you for your videos. I was just DX with simple partials but what you do at night… I do too! I never put 2+2 together until now!
I know what you mean I'm trying to explain it to everybody what's going on but I can't really explain it!! You are not alone.
We do have partial seizures in our sleep! I have frontal lobe epilepsy and I have them in the day and in my sleep. I wake up sweaty af and confused and shaky so yes we do have them in our sleep
I was sweaty and shaky last night when I had an episode. I’m waiting to see a neurologist
My girlfriend has numerous nocturnal seizures like this. It always freaks me out because I’m never sure what triggered it or what we can do to prevent them. I usually just end up holding her until it’s over (they’re never longer than 30 seconds), and most of them she’s not even aware that they’ve happened. She gets the auras that one is coming, and then has multiples throughout that same night. It makes both of us become fearful of falling asleep while she “feels funny”, and this feeling can last for days, but being sleep deprived increases the likelihood that one will happen. Does anyone have any tips or understanding as to why this happens and how to prevent them?
What has the doctor said ?
What medication is she taking ?
Lamictal is a great medicine.
If she has a seizure then give her a glass of water immediately as this will cool her body and relieve the pain of the seizure. Don't wait for her seizure to end.
Watch some comedy programs.
Keep her away from amusement park rides as this is a disadvantage for a seizure. She shouldn't consume anything that will affect the brain.
Do let me know how everything is going
Hi I’ve been having weird sensations in my sleep at times and had a hard time finding anything about it online. I have rhythmic movements upwards and the wave motion semi wakes me up. I have frontal and temporal lobe epilepsy. I noticed a few months ago my 6 year old having the same motion in her sleep. It’s not obvious to see, but body palpitations is the best way I can think to describe it.
I did wake up or the seizure woke me up one night. It is scary and being half asleep because the confusion is worse. Most of mine are daytime ones. I hate the feeling of “oh no, not again” and that I’m fading away. I am on 400 mg x2 daily and rarely have one now. You are NOT mad😉
I usually have it only when I’m sleeping in my back. Sleeping on my side I’ve only had it like 5 times but majority of the time I don’t get it sleeping on my side.
This has happened to me too , I’m glad I’m not the only one.
I feel so frightened as I am waking up around 4am and can’t sleep for a couple or hour .. but when I go back sleep I wake and if a don’t move I can’t feel my back arching and my muscles tighten .. it has been happening for a couple of years but I keep thinking I’m dreaming but more resent it’s happened when I’m more awake .. I literally feel a very weird feeling in my head and it travels down my body into my back and all the muscles tense up so tight. It only last till a move. I’ve been experiencing such terrible fatigue in the daytime. I am struggling to stay awake after 8pm too.
Is this what anyone has experienced? I have also felt complete fear .. it’s hard to explain.
I am 56 female with rheumatoid arthritis.
I am feeling pretty scared tbh and heading to the doctors this wk. The main reason I have been is because i was on tramadol for pain and thought it was maybe that but I’ve been off of that now for a couple of months and it’s just getting worse x please can anyone help xxx
I get nocturnal seizures only and dont get up immediately.. my whole body really hurts in the morning and its been 2 years i am experiencing it on and off essp when i am sleep deprived and over working myself with studies they disappear when i am not studying... i get so confused about them... i dont know exaclty what's the triggering point..... its exhausting
I don't have seizures anymore since 2001 but i been having nocturnal seizures it's a sensation that i can't explain to my doctor i have this feeling in my brain sometimes when I wake up my tongue hurts a lot i think I bit it or sometimes i wake up with a severe headache and all confused
I have something going off in my head it last 16 secs & mostly happen at night feel like I'm going crazy at times ugh
Am 46 now and have had these as long as I remember. They kind of bring me out of sleep with that feeling of deja vu and fear/ dread; feel very rough physically for the next 24 hours and get a bit mixed up emotionally. Then I’m completely back to my normal happy self. Is it like this for anyone else too? Medications can’t seem to control it. Btw this is my son’s account. I have nothing to do with Fortnite 😂
Exactly same thing for me. I'm 25 I've had them since I was 7. I get them every time I'm ovulating on my cycle.
You need to drink cold water immediately after having a seizure as this will cool your brain and body.
If you are still unwell throughout the day, drink a frappe or something ice blended as this will further relax your body.
Watch a comedy program to reduce stress
Always eat your full day meals
Get proper sleep
Eat fish meals
Always keep a cold water bottle with you wherever you go because this is the first liquid which will relieve the pain of seizures.
Avoid smoking or anything that affects the brain and body.
Avoid amusement park rides as this can worsen seizures
Avoid being around Chemical factories.
If you are driving and feel you have a seizure or do have a seizure, immediately park your car on the side of the road and stay as calm as you can and drink cold water.
Drive only after your health is well.
Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective to reduce seizures.
Good luck and I hope you stay well
I have exactly the same! Aura seizures only. Caused my heart to stop. Menstrual cycle makes them more prominent during perimenopause!
Yeah I have them too mine are frontal lobe and start as partial affecting my right side usually but then progress into generalised tonic clonic. It's fairly hard as yeah I have them in clusters when they do happen and have a massive headache and have difficulty speaking afterwards but I can understand what people are saying to me it's weird when I come around. This year I was induced into a coma after refusing to take the meds as in the UK they said they were psychogenic but back home and in Italy said its frontal lobe epilepsy and all to say its been a journey and particularly frontal lobe seizures can be mistaken for psychogenic ones and that has costed my life in multiple occasions and I been mistreated and neglected because of that which even if it was that then they shouldn't be acting like that. I have some terrible memories coming round and I experienced seizures since I was 1 and a half years old first febrile which according to my family happened at least 2x and then more subtle ones since i was 5 or 6 years old but at the time they didn't know those were seizures then I came to the UK at 12 years old and believe at 14 I started having full blown tonic clonic ones, that now I know start partially after spending months in the neurology ward and intensive care in the hospital . My story is long so I won't bother you with details but it's it's hard and had to go to rehab because I had so many and being in a coma that it messed up with my brain and body and I had to regain muscle that I'd lost but yeah seizures suck but I'm comforted knowing and I know this but you always think it's you and you only experiencing that so thanks for sharing, I and many others I'm sure appreciate it.
If it is confirmed that you have epilepsy, then you should take this more seriously to avoid getting worse seizures.
You need to drink cold water immediately after having a seizure.
If you are still unwell throughout the day, you should drink a frappe or something ice blended as this will further relax your body.
Watch comedy programs to reduce your stress.
Eat your full day meals.
Get proper sleep.
Avoid smoking or anything that affects the brain and body.
Avoid amusement park rides as this can worsen seizures.
Avoid being around Chemical factories.
Ask your doctor for a medicine called lamotrigine or Lamictal as this medication is more effective for epilepsy.
Good luck and I hope you stay well
I bite the sides of my tongue, will have random twitches and extremely vivid/lucid dreams. I'll have what feels like dreams that last forever, 10+ differently themed dreams that are very odd, sometimes nightmares.
Glad for mentioning it, I have those partial seizures at night.
I did so many times had nocturnal seizures. I'm a complex partial epileptic person. And yes its hard to pinpoint what's been happening. It's like I'm having tonic clonic fits right after explosive waking up from my slumber. Sometimes I can tell that my whole body convulsing but my wakefulness seems comes and goes without me being able to control it.
While having it I feel like I'm having hallucinations while watching me convulsing outside of my own body.
Afterwards I know I'm having a night fit when I see I wet my pillow with my drools or wet my bed or all my pillows were thrown all over.