The Expert Series S5E8 - Lupus and the Eyes
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- Опубликовано: 6 окт 2024
- This month's episode of The Expert Series focuses on how lupus can affect your vision.
Dr. Michelle Petri, founder and director of Johns Hopkins Lupus Center, discusses the importance of maintaining eye health when you have lupus and what to be mindful of when taking prescribed medications.
Thank you for Lupus & the Eyes discussion. I was diagnosed with SLE when I was 22; now I am 76. I was one of Dr. Petri's first patients and still am. I value her expert information and care. I appreciate the care she has given me over the years. I was on hydochloroquine over 30 yrs. I was taken off of it 2018 because of negative side effects. So far, I am doing fine without it. Thank God. My advice is trust God, do what your doctors suggest; take your meds, eat healthy foods & get plenty of rest.
Thank you for the Lupus Expert Series-very instructive & helpful.
I really, truly appreciate your comment. I'm 34, I was diagnosed about two years ago and it just sucks, it's scary, and so many stories are even more scary. It gives me hope to hear that it might just be alright from someone who has been dealing with this longer than I have . I really appreciate your comment.
@@nonamenojane You will still be able to live a full beautiful. What really helped me are my faith in Christ, proper diet- not much meat, exercise and a strong support group of family and friends, especially including others who have and understand Lupus. May God bless you. You have a full life of joy ahead of you.
Thank you for the hope..
I would like to know if anybody with lupus is suffering from the severe pain that I am . I'm being treated as a drug seeker yet I can't even walk without pain management. This has caused me and my family extreme distress because I have always been my family support I was extremely active in work and working out since age is f 12 now I'm 54 and became severely disabled at 43 . I suffer from severe depression because I am not able to do the thing I love and now have become a burden to my children. If not can walk I'm the happiest person but the non movement causes even more pain . . I'm so tired of being treated like a drug seeker but the fact is pain medication gave me my quality back. .if they could figure out why I'm having soo much pain and treat that I would need the pain medicine. I welcome any studies and 24hr camera in my home to figure this out. I want my life back I still am Worth something to people who care about me .
I have went through similar ... God is the only only one that is keeping me alive and going
Have you been also diagnosed with Fibromyalgia? It causes lots of pain too.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...
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Pray, 🙏
I was diagnosed at age 25 with SLE. Now I’m 50 and diagnosed with Sjrogens and Fibromyalgia with SLE.
Me too how are you doing ? I'm having a hard time believing that this disease has caused me this amnt of disability.
@@sXcSigMa3367 Hi 👋🏾. How are you doing? I’m doing my best not to cry everyday. It’s hard to be happy even though some things are worth smiling 🙂 about. But I believe it’s the combination of SLE, Fibromyalgia, Sjrogens and Perimenopause. The stiffness and pain and weakness/fatigue and concern for blood sugar/Pre-Diabetes isn’t helping. I only take Prednisone and Hydroxychloroquine when I feel I have no choice in order to feel better.
@@sXcSigMa3367 I still work part-time. SSDI took my check in March of this year after I’d been getting it since 2008. They say because I worked over one month in 12/2018. It’s been kinda like a bad dream and our family was evicted due to lack of ability to pay after my check stopped. My husband is a Disabled Navy Vet.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...
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These videos about specific effects of lupus on various body systems have been so helpful to me. Knowing that the information in these videos is coming from an expert is especially helpful and, in some way, comforting. Thanks for creating these 🖤 they've been impactful for me as someone with Lupus trying to learn as much as I can. I honestly deal with anxiety and fear by learning as much as possible about the fear. This info not only educated me, it also encouraged me because the factual information is way more optimistic and reassuring than my anxiety likes to dream up as possible. Appreciate y'all.
We're here for you! 💜
I have skin lupus and sjogren's. Never took plaquenil or other meds. My eye pressure is usually 30 so the eye techs freak when they test me. I tell them first now. I take no medications except medical marijuana and CBD salve for skin eruptions. In the summer the doctors wanted me to take prednisone but it made me feel gross and caused me to gain weight. Now listening to this I understand so much more. Thank you! Also, with COVID, I've been out of the sun and indoors more so less flare-ups. Good luck to all those dealing with the range of symptoms of Lupus, etc.. Eat good food and be well. Be kind to yourself. You matter.
How did you get tested for skin lupus I been taking prednisone for almost two years with other allergy medication but my skin is not clearing up and I keep having a bunch of flareups that look like hives that’s all over my body, I have other symptoms like mouth sores fatigue etc. but my doctor keeps telling me that it’s an allergic reaction but I’ve even been out of state to other peoples places and this keeps happening and I keep flaring up and nothing is being done. Plus I keep telling them I have something going on and not till I talked to my aunt about my mom did I think it was lupus because she had fatigue a bunch of other symptoms and a rash that went across her cheeks and nose which I’m thinking was probably the butterfly rash from lupus but unfortunately my mom has been deceased for three years so I can’t really ask her about anything.
@@ljordan7201 Hi. Sorry you're going through a rough time. I had the hives looking thing all over, just like you've described. Went to rheumatologist and was sent to main hospital for specialist care. Went to Dr. Werth at Penn (University of Pennsylvania Hospital) in Philadelphia. Amazing doctor and hospital. They can do telemed so give them a call.. They did biopsy of skin eruptions. I was then diagnosed with skin Lupus, Sjogren's and possible Grave's. I have some other chronic conditions too. It's so hard to advocate for ourselves when we aren't well. Find a new doctor to get a second opinion at the very least. Also, keeping a log of symptoms and if related to food or environment. Sorry about your mom's passing, truly. My mom passed recently too, in 2019. I wish you well.
@@sunnydaze1 thank you so much!!! I’m in Pittsburgh I even went down the food thing cutting out pop gluten anything I could do on my own. I will try to get a appointment with them. I tried to look at food and environmental factors but even when I went to Kentucky to see my family I was still doing the same thing. I’m sorry to hear about your mom as well. It’s hard for me to get family health things my dad passed when I was 16 so I don’t know much about family health. I’m sorry to hear about your mom as well. It’s hard and a different kind of pain and life after I hope you are doing well.
@@ljordan7201 Sorry for delayed reply. I hope you are doing good too and have a nice Thanksgiving weekend. I'm sorry for the loss of your father at such a young age. That must have been very confusing and difficult. I wish you well. Thank you for your condolences and take good care of you.
This is very informative and helpful. Thank you.
I been having weird eye pains, they told me to to get my eyes checked every 6 months since I take hydroxychloroquine 200mg two times a day with prednisone for the sle lupus I have, along with other tons of meds.
Can you do a video on macular degeneration? Is it more prominent in lupus patients?
THANK YOU SO MUCH FOR THIS INFORMATION . USC DID NOT EXPLAIN THIS TO ME. I HAVE HAD SIGNIFICANT EYE VISION LOSS . I WENT OFF OF PREDNISONE WHEN THE SEVERE SYMPTOMS STARTED AFFECTING ME . I THOUGHT MAYBE PLAQUENIL. WAS CAUSING MY EYE LOSS . SO I STOPPED TAKEN IT.
See another eye dr
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...
This was so informative, thank you. I would like to know if there are any other lupus caused retinal complications like epiretinal membrane.
I have csr now but not from recent meds. I don’t know what to do?? The way it was briefly said on here makes it sound like it’s the end of the world?
Add more anthocyanin rich foods to your diet, especially dark berry juices.
I have anterior uveitis. It keeps switching between both eyes. Doctors don't know what's causing it. I told them about the lupus. I must say it's a very painful condition.
Can lupus cause glaucoma?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...
I need a good rheumatologist, ms specialist and retina and neur op dr in Los Angeles please 🙏
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...
I have horrible swelling around my eyes that comes and goes. I also get rashes on them too at times. My eye lid is puffy. My eye underneath has an actual hanging bag of fluids and this skin stretches and when it goes down it leaves behind damage and wrinkles and loose skin. I look sick and I hate it. What can I use for it? I also get red eyes inside too. I never realized needed to go to dr during! I usually just deal with stuff and just tell my dr some of my symptoms at my check up. I have Dermatomyositis and Lupus and more. Can the eye drops of prednisone help this fluid under skin? I already take lasix and it doesn’t help the eyes. Is the eye drops of prednisone as dangerous and damaging as the pill or injection or IV form?
What was the 2 medicines that’s better than prednisone?
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