I’m so sad to know about these neurological disorders that cause so much harm to kids& sadness & hardship to their families. I know some can & should be diagnosed at birth by a simple blood test. I don’t know if Hunter’s syndrome is one of them but certainly more needs to be done to address the deficiency of medical care for these kids. There are many politicians out there right now touting the sanctity of life. What are y’all doing about this??!! If you love a child’s life so much, Do Something!!
I also have an extremely rare dis order. All the medical field offers are pills that really don't do Anything to quell the symptoms. Less than a few million are *diagnosed (*2 people not knowing) so not much research.
As Creator created his creatures in their own image, I can only speculate that All of the dis orders and dis eases Are created by the equivalent of the opposite of Creator
My brother has it, so sad.
So heartbreaking and so unfair!
I’m so sad to know about these neurological disorders that cause so much harm to kids& sadness & hardship to their families. I know some can & should be diagnosed at birth by a simple blood test. I don’t know if Hunter’s syndrome is one of them but certainly more needs to be done to address the deficiency of medical care for these kids. There are many politicians out there right now touting the sanctity of life. What are y’all doing about this??!! If you love a child’s life so much, Do Something!!
Sad how no money is spent on this for the small amount of kids who aren't apparently worth for trial
I also have an extremely rare dis order. All the medical field offers are pills that really don't do Anything to quell the symptoms.
Less than a few million are *diagnosed (*2 people not knowing) so not much research.
Thanks for that. Cheers
ابني حسوني من العراق هو احد أطفال hunter
اني هم ولدي اثنين بيهم متلازم هنتر 😭
@@user-uu9ve9gw9x ابني الله يرحمه كالو هانتر مره ومره هالار واتوفه بعمر ٩سنوات
@@user-mg4sq9oj1rنفس اخي تقريبا عنده هنتر توفى بعمر ٩
ابني عنده هذا المرض وعمره خمسه سنوات بس حتى مشي ما يمشي😥 هم اكو علاج الهم
اخي توفى مواليد ٩٤توفي ٢٠٠٢تقريبا رحمه الله تعالى
As Creator created his creatures in their own image, I can only speculate that All of the dis orders and dis eases Are created by the equivalent of the opposite of Creator