Emma Watson, Kermit the Frog & Elodie on How The Plunge for Elodie Began | Venture into Cures 2022

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  • Опубликовано: 6 фев 2025
  • 6-year-old Elodie Kubik was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB). Like all children with EB, Elodie is missing a critical protein that binds the layers of the skin together, making it extremely fragile and causing severe pain and wounds, both internal and external. Emma Watson and Kermit the Frog joined Elodie for the 3rd annual Venture into Cures event to help raise awareness and funds for EB. Today, there are no treatments for this life-threatening disease. We're on a mission to change that - and we're proud to say a cure is just within reach.
    Learn more about the work and impact of EB Research Partnership at ebresearch.org
    Help us reach that goal by making a donation to life-saving research at give.ebresearc....
    Watch the full Venture Into Cures event at • 2022 Venture into Cure...

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