Living with FOCAL DYSTONIA as a GUITAR PLAYER. 😔
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- Опубликовано: 9 фев 2025
- loosing the ability to play the guitar as I was used to has redefine the course of my career and my life.
A lot of things happened all these years and here I share with you some thoughts with you.
Something is true, I will make music no matter what, And I wont give up.
My music: linktr.ee/andr...
Te deseo todo el animo del mundo y ojala te recuperes, se fuerte. 💪🏻❤️
You're an inspiration sir
I wish you success in your journey of healing!
“There are two wolves inside you. One is evil. It is anger, envy, sorrow, regret, greed, arrogance, self-pity, guilt, resentment, inferiority, lies, false pride, superiority, and ego. The other is good. It is joy, peace, love, hope, serenity, humility, kindness, benevolence, empathy, generosity, truth, compassion, and faith. This same fight is going on inside you-and inside every other person, too. The one that wins is the one you feed.” ~
I pray you can recover from this. I suffered a neurological pain that floats around different places of my body after having open heart surgery. Doctors know about it but have no cure...
Lately I've been noticing I'm having trouble holding on to my guitar pick. I drop things all the time and I have to focus when carrying items.
Good luck with your search for a cure!
Hello Jeff, sad to hear about that 😖 I also hope you find your way to keep doing what you love despite the circumstances, thank you so much for your support
@Andrew-Roz thank you and good luck to you as well!
I can’t imagine what an emotional and hard journey this has been, sometimes it’s like the hardest moments in our lives are the times when we really discover new ways of being and open our eyes for a different view on life,
You are so strong and I’m so happy that you discovered a new path in music, You are an amazing and inspirational musician with or without a guitar and we are all rooting for your recovery💖💖💖🎧🎹🎵
Thank you so much for your kind and sincere words I’m really happy to feel your support and it fills me with inspiration and courage to continue this journey despite the limitations. I not give up, it’s a promise!
I do have focal dystonia for 15 years now! I do music as a hobby, but without it, it maybe could have become even more. However I still play, changes my style, focused on writing songs and started to experiment with different genres and playing techniques which smothered my symptoms. The journey ain't over yet...
Stay Strong Andrew!
Thank you so much 🙏🙏🙏
I wish you a speedy recovery.
I wish you the best…
ANDRES !!!! LO LAMENTO MUCHO !!! QUE BARBARIDAD !!!! CÓMO TE FUE A PASAR ESO !!!! SOLO ESPERAMOS QUE SEA REVERSIBLE Y QUE EN UNOS MESES PUEDAS RECUPERAR TU DESTREZA !!!
Muchas gracias por tu apoyo y comprensión 🙏🙏 tengo fe en que voy a salir de esta algún día!!!
Hola Andrew... Realmente te admiro muchísimo,amo la guitarra como vos y no me puedo imaginar lo que seria vivir lo que estas viviendo...De corazón te deseo con toda la fuerza y luz que salgas adelante con tu tratamiento y espero ansioso tus proximos videos...Sos una inspiracion para mi y para muchos.Te felicito de verdad por tu coraje y por tus ganas de seguir con tu vida y con la música aprendiendo otros instrumentos...Te deseo un excelente año... Abrazo de luz ✨✨✨
Muchas gracias por tu apoyo y comprensión en verdad lo aprecio 🙏🙏🙏🙏
Im sorry to hear this in your journey.i hope u will recover and continue your music journey.you are great musian.all the best from Malaysia.
So sorry to hear you're going through this. It's heartbreaking. And it's inspiring to hear that you're moving forward constructively, exploring other options in music. I've had lifelong pain from playing guitar and know what it's like to explore all the avenues for healing. Wishing you all the best with you music and life.
i'm really sorry bro! Music is still full of possibilities! :)
Hey, bro. I just wanted to let you know that you’re an awesome guy, and that you are loved. Bless you for this video, and bless you for you for your vulnerability and courage. Thank you, from the bottom of my heart. You are loved. Take care, brother. You are gifted with intelligence.
I also have focal dystonia (I play the cornet). Dystonia is indeed not a body problem. It's a brain problem, caused by stressful life events. Also by fear of your symptoms and the daily focus on them. Your body is totally fine. You can practice 24 hours a day, but that wil make it worse. You must as you said address the root cause of the problem and the cause and solution lie in the brain. See the work of Ruth Chiles (The Focal Dystonia Cure) and Dan Buglio (Pain Free You). Also many publications about TMS. Focal dystonia is a form of TMS. Treating the body wil not help you, because your body is not the problem. Thank you for sharing your story and I wish you the best. There is a way out, but it’s not easy. It’s all about your mindset and creating a new relationship with your symptoms.
I wish you all the best man, I have really enjoyed your content for quite some time now - hope you achieve your musicial visions in other ways!! Best wishes from Vienna 🤞🌞
Thank you so much Leon! I really appreciate that! 🙏🙏
Hey man, sorry to hear this. You are not alone! I also have it and have had it for 9 years or so. It has had a profound impact on my life. Doors have closed but other doors have opened as well because of it. If you ever feel like talking about it you can send me a message. All the best, Jon
Thank you so much Jon for your support, it’s sad to hear that others like your are also struggling with this condition, thank you for being open and kind, I think finding the support on others specially guitar players, makes us feel a bit less affected by this and find hope, since there’s others that have recovered successfully,
Thank you again, and I wish my best for you too
Hey man, you should check Julian Lage interview with Rick Beato he talks about how he managed to recover from his left hand dystonia and what a phenomenal player.
I've got dystonia but it is in my right (picking) hand. The best thing I've done is practice extremely slow, that's the only thing I've seen progress with. I'm now able to play chords slowly and without any tension. I'm practicing this on single lines but I'm not there yet.
There is hope, there are a lot of musicians that recovered from it but they all say it takes a long time and extreme discipline to not try to play like before, no noodling what so ever otherwise you're reinforcing the old dystonic pathways.
I'm wishing you all the best, I don't know where you're living but if you can try to work with a physical therapist that knows musicians posture and has experience with dystonia that's really great. For anyone really, whether we have dystonia or not actually but hey we all tends to ignore that 😂
Hope you have some improvements fast ! 😊
wish u the best man
I wasn’t aware of your issue. I totally feel you. I couldn’t live without music. Wishing you a speedy recovery. I have tendinitis on both of my arms too from my job, it sucks. I really hope you find the proper treatment to take care of your issue. Corstisol injections made the pain go away on my tennis elbow tendons.
Thank you hector for your support,
Music is everything to me as well and I won’t give up!!
Uy bro, te deseoa mejor recuperación posible. Ojalá puedas volver a ejecutar esos licks de Malmsteen que me ayudaron como no imaginas, la buena y que puedas salir adelante de esta
I can relate to your troubles, as a multi instrument player, I suffer from rheumatoid arthritis since I was 40, now I’m 59 and the pain has increased up to a level that I need plenty of painkillers to play for more that 30 minutes. I used to love playing live but now I mostly compose and record music, short sessions to avoid the pain. My problem has no solution, I hope you will find a cure or a relief for yours. All my good vibrations and prayers.
Thank you for sharing your story marco, it’s sad to hear that, but I’m glad you are also trying to move on and make music. Thanks for your support
Jesus dude. I have just watched this video and I am absolutely devastated to hear what you've been through. I really hope that you doing better now. Don't give up. The world needs people like you.
Выздоравливай, дружище. Гитарное сообщество с тобой!
Thank you for your support
I feel you man..i have FD over 15 years on my right hand, so its impossible to hold the pick accurately. Keep it up!!
Debes comenzar a beber agua con limón, sal y bicarbonato diario, yo estaba empezando con problemas en mi brazo derecho se sentía Horrible los choques eléctricos en mi antebrazo, debes dejar de comer azúcar, y harinas, todo alimento que sea procesado, estrictamente retirar esa alimentación, y empezar una dieta Cetogenica, llena de carnes. Así vas a poder contrarrestar los problemas eléctricos neurológicos en tu cuerpo. Yo evité muchos problemas con este consejo que te doy, y lo que si te puedo decir es que las medicinas farmacéuticas solo sirven para aliviar el problema no para erradicarlo. Espero puedas aplicar mi consejo de experiencia propia y puedas comentarme en algún futuro, saludos desde Ecuador.
Muchas gracias Jerson por tus recomendaciones y por tu apoyo, definitivamente estoy mejorando todos mis hábitos respecto a mi salud en general y a mi estilo de vida y dentro de los cuales están tus recomendaciones, un saludo desde Colombia
last time i played my spanish guitar well was 2015, and then i had focal dystonia in my right hand and still after 9 year i cant play a simple arpeggios, 😢
no cure so far.tried everything.
Hey Andrew, I've been suffering with this condition since September 2013. I still can't play like before but I've started getting some improved results basically by conciously dropping as much tension as possible and playing with smaller movements. Even if I'm playing relaxed I try to relax even more by focusing on playing as relaxed as possible. Even if I feel im relaxed I try to drop even more tension and play even looser. It takes a HUGE amount of mental focus and the dystonic movements still happen but they are less than before and I end up managing to play for longer periods of time. However this takes a lot of concentration and focus. Sometimes the dystonia kicks off hardcore and I need to put the instrument down but overall it works better than the previous way of playing, basically the old neural pathways are burned out and ******. But this new approach looks quite promising. Have you tried it? Focusing on relaxing the shoulders and arms also helps and ive switched the guitar to the classical guitar position. That also really helps. It looks like I got dystonia from years of bad posture, slouching over the guitar and playing with tension and my body just gave up and now I have to play in a more relaxed state.
Thank you for sharing your story, I really feel the same way. I didn’t noticed how bad my posture was and how much tension I was having while I played the guitar. I also feel reducing the tension as much as possible makes it better and also gives me hope, as you said, it’s hard! And it takes so much mental effort cause you’re brain is trying all the time to go back to “the normal way” 😖😖😖 it’s not easy to retrain your brain when your symptoms are being triggered all the time, bu I believe and I will keep working on getting more relaxed and aware of my body every time I play. I’m sending you all my best wishes for your recovery I believe it’s possible. Thank you again.
❤🔥❤
This sounds oddly like me, except in my case I have been drawing for almost nine years now. The first traces I do with my pen are okay, but after four of them my hand starts tensing and my pinky completely curl in, the pain extends up to my elbow then and my arm keeps twitching
Im truly sorry to hear that 😖 I share your experience and frustration, I’m not an expert but it seems your case is what they call “writer’ s cramp” I really believe there’s a way out of this, for me it’s helping to be aware of the tension while I’m playing and do it really slow, but I strongly encourage you to find help with a therapist or a neurologist, perhaps the Botox injections make the symptoms less intense,
There is a surgery namely deep brain stimulation which help musicians to regain their strength. I am also suffering from dystonia it kills my playing
Sad to hear you also struggle with it. I've heared a bout the surgery and I think it's the last resource in case you are not able to find resolution to FD with other tratements.
@Andrew-Roz yes only DBS might help
Noo!! This like a Jason Becker arch all over again! :(
😣😣
I'm just wondering how long you have had this condition please?
Since November 2018
Do you have it when you type?
Sometimes I feel some symptoms being triggered while typing
@ I have it when I play guitar and when I type. I received my first Botox injection 2 weeks ago, but I haven’t noticed any improvement yet. My ring and pinky fingers curl on my fretting hand.
@@RickyGA1985 I've heard that it can take a while for the Botox to work. I really hope it works for you and give you some relief.
hi. i have the same problem. Im starting a therapy with a mexican girl with testimonial, and i just had a 1 lesson. until this day, how's going with you? have you seen any recovey??
Hello! I completely understand-it's such a complex process. I've had to stop and restart my sessions many times because of anxiety and mental struggles related to FD. I’ve noticed that practicing consciously and slowly helps, even if it takes a lot of effort and time. It’s frustrating not to see immediate progress, but I’m staying determined and doing my best. Keep believing in yourself and working on your sessions-you’ve got this! I’ll keep working on mine too.
Cheers!
@ Creo que hablamos español 😂😂.
Yo tuve que dejar una semana los ejercicios, porque tuve que viajar por trabajo, y no podía hacerlos.
Espero mejorar y volver a mi habilidad anterior o mejor.
Ojalá igual puedas tu.