Hi just had surgery in Oct. for lung net tumors. However just had MRI and CT scan. Still other tumors and many many nodules in both lungs!! Hope to get an answer on what’s next. Here from FL..
Why are symptoms of NETS never discussed? I was dianosed almost 2 years ago. Stage 4 i have had severe diarrhea for 2 years. Octeatide did not help, no medication has helped, no diet has helped. I spend at least 15 to 20 times a day in bathroom. I had reversal of illeostomy in September. I had an awful surgeon for emergency surgeries 2 years ago and spent 2 months in hospital. I am now on Oxyplatin/Folfax to try reduce size of tumors in hopes of slowing diarrhea. Symptoms are killing me nutritionally as i am not absorbing food, meds.nothing. I've been to Mayo, local Neuroendocrine oncologist and theyve tried everything. I am exhausted and sick. Cancer womt kill me but symptoms will?
Hi just had surgery in Oct. for lung net tumors. However just had MRI and CT scan. Still other tumors and many many nodules in both lungs!! Hope to get an answer on what’s next. Here from FL..
Hi!!!
My name is Jennifer and I'm located in Dubuque, IOWA
I’m new here…I’m currently undergoing diagnostics for carcinoid cancer
So sorry and you are in the right place. I got diagnosed in 2020, Stage 4 and the knowledge I have received online has been invaluable.
Why are symptoms of NETS never discussed? I was dianosed almost 2 years ago. Stage 4 i have had severe diarrhea for 2 years. Octeatide did not help, no medication has helped, no diet has helped. I spend at least 15 to 20 times a day in bathroom. I had reversal of illeostomy in September. I had an awful surgeon for emergency surgeries 2 years ago and spent 2 months in hospital. I am now on Oxyplatin/Folfax to try reduce size of tumors in hopes of slowing diarrhea. Symptoms are killing me nutritionally as i am not absorbing food, meds.nothing. I've been to Mayo, local Neuroendocrine oncologist and theyve tried everything. I am exhausted and sick. Cancer womt kill me but symptoms will?
Boris gave me PTSD. Mistakes are understandable but not taking responsibility is not. He made too many mistakes in my case.