My son just won the pip tribunal. From 0 points to the enhanced daily living and standard mobility. No assessments for 5 years. And DWP didn't turn up. Keep the faith
Today as in 31,October, I attended my PIP Tribunal which was pure torture because my health condition is Social Anxiety Disorder, so facing the Judge, Doctor and two other people, one by my side who was from the DWP, put me in panic, leaving me crying and shaking almost all of the time that seemed to have no end with one question after another. When the tribunal was over I was asked to wait in another room for a few minutes before being called back in and told I have won the appeal, which for both myself and my lovely wife who was my representative, left us both feeling a great relief with much emotion. Was explained that I would receive the standard rate for both Mobility and Daily living, back dated from March 2021 and would continue to receive until March 2024 before being assessed again. Still can’t believe I won, not just receiving what am entitled too, but also beating the DWP.
Congrats for your effort Colin! Thank heaven for our supportive spouses.. With the height of the wall we somehow are supposed to climb over (whilst being disabled - a paradox I will never be able to wrap my head around) I can't imagine how lonely disableds cope and if they ever get the money they need to crawl out of whatever hole they may find themselves in.
Thanks so much for sharing. I have my hearing in 1 month. I find your point interesting about standing your ground in the hearing. I think i am going to struggle to keep my cool. The whole experience has left me feeling unvalidated and drained. To anyone who made read this applying for PIP. My advice is simple….DO NOT GIVE UP. Send every bit of evidence and jump through every hoop. No matter how much it drains you.
It is shameful what you have been put through . Having to ‘prove’ your disability by initially appealing then fighting in court is humiliating and degrading . Thank you for making this video . 🙏🏻 I hope you have good quality days where possible. Wishing you a peaceful life ☯️ so sorry you get re grilled time after time . It’s incredibly stressful each episode. This video helps others cope . Thank you .
Thank you Julie! To be honest one of my main obstructions has been coming from a background where disability was not really accepted and acknowledged. Even tho I sustained my head injury in childhood it has been hard to get my family to even acknowledge it and a lot of my symptoms were simply put down to behavioural and emotional problems by them - I was an easy scapegoat! This has made it extra hard to stick up for myself and tiring to make quite an emotional journey in my adult life, to acknowledge when, where and how I need help. It is probably a common obstacle to quite a few other disabled people.. so I think really there is a society-wide problem and so I am not really surprised at how confused these Tribunal people are/can be. As a Buddhist I think it's mainly made up of people wanting to deny how fragile we all are as living beings and I really get that! I can't see much of a way out so I just working on visibility and encouraging, by example, others to share. Thank you so much for your support, it really means a lot!
The fighting is exhausting, I don’t think a anyone except those who have to keep fighting for their rights fully understand this. We are not fighting for anything we don’t deserve, it’s our rights at the end of the day. Glad you got what you deserve.
Thanks Sharon, I agree. We are basically looking at institutionalized unkindness - I can't imagine it is good for anyone, even the perpetrators and employees :(
We were lucky with my son. Hr had been receiving benefits for years as he is autistic. We then went through an assessment for PIP and were told he did not qualify. We lodged an appeal and were expecting to go to a tribunal. Instead we received a phone call saying they had looked again at his assessment and as he has a life long condition that doesn't go away they did not understand why he had been turned down. PIP was awarded and backdated. The problem with the whole assessment process is that the assessors do not have experience of your specific condition and are just working from a checklist. They are also incentivised to decline as many claims as possible.
THANK YOU for covering that bit about accepting the lower offer and then being ABLE to Appeal again!! I would never have thought this! I too, on behalf of my son, would have thought I ought to refuse in order to progress. ❤❤❤
Thank you for sharing this. I just want to reiterate what others have said that it's awful that you have had to endure the indignity of having to fight for what you are entitled to. My husband also has epilepsy following a severe stroke many years ago which also rendered him paralysed down his left side. He can barely walk a step without stumbling. He was awarded DLA for life until it was replaced by PIP. He too had to appeal and thankfully won but like yourself he will have to re-apply every 5 years when it is clearly obvious his health and mobility is never going to improve, infact it is worsening with age. As you say, people with disabilities are made to feel like criminals and scroungers.
Hugs! I just wish people would take a moment to stop and think what a toll this takes on people who deserve a simple life after awful circumstances. At least when i do have to re-apply I will keep thinking of how my action raises the visibility (and basic stats) of people who need support to live a somewhat normal life, especially if it goes to tribunal AGAIN!! It's exhausting for everyone involved - I wish you and your husband a swift 're-award' when the time comes!
I am waiting for my tribunal date now. I have no idea how long it will take. My life is in limbo I am getting into debt now. I have sold anything I could sell. I am f*cked. The Tories have blood on their hands so many people have given up and died because of this cruel game they play with people whose lives are already so hard. I am 55 and have congestive heart failure, fibromyalgia, osteoarthritis, chronic pain, social anxiety and depression, brain injury, PTSD, and bots of agoraphobia after being attacked by a stalker a few years ago. I got PIP for the first time just as we went into lockdown. When it came time to renew it. I sent off the paperwork and it has been nearly two years and they knocked me down to basic. Who can live on £107 a month? Everyone keeps saying. ( it will be back-dated ), But it will take 8 months like all the things on the internet are saying. I will not make it that long. The thought of going throw this every time is even more depressing.
It’s like they just issue us with nothing until and unless u appeal! I won my mandatory reconsideration but still taking it to court I want full enhanced as I need
Thanks Emily. Got my tribunal appeal over the phone tomorrow. Its more than a year on from when i was asked if I wanted to claim PIP after having been on DLA for 12 years. Wish me luck!
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work. I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
Hello 2 years ago i was taken of my dla ,I was heart broken I was on top rate dla for 15 years as I have a lot of health issues there's day I cant walk and have broken many bones in my body from falling , I won my case but I only got a little help with the carers end of pip ,mybe someday I will have the energy to fight back again but for now I am greatfull for the mobility end of pip ,so glad to hear u won ❤
Hi Veronica! Thank you for your support - it is so important I think that we fight together so every little win is a win for the disabled community. I am so sorry that they have left you in this mean situation and I hope for your inner energy to rise so that you can fight again! It seems to me that unless you have an able-bodied person who understands ready to advocate for you it can be impossible to fight for one's rights. It is beyond irony 🤢 I am sure that I will have to go through the whole thing again when my review eventually comes up (not that my damaged brain is ever going to somehow 'fix itself'). I have been in at three different courts over the years. As a non-criminal who has never been called for jury service I object to that! Much love to you as you go about your days 🍀
Thank you this was so helpful, I have my tribunal in 2 weeks, I suffer seizures due to an autoimmune disease and been left with a brain injury, Im terrified but I'm ready to have my say, I have applied 5 times and got no 0 points, I'm determined this time to beat this :) well done for beating them xx
You are so welcome Amy :) I think one thing that is happening here is a large (and largely inherited) denial campaign by people who prefer to live in Ableist Culture. These bodies we live in ARE fragile and you have my complete sympathy for your bad luck that resulted in your disability and all power to YOU for continuing to fight for your rights!!
@@amywxm90 Sorry to hear that, but, given you won the initial tribunal,which is a massive bonus, I'd reckon the reapplication will go a lot smoother for you with that added bonus. Keep us updated
Thankyou for sharing, I’m so sorry you have had to go through this. My husband has just lost his carers allowance because he has started receiving his old age pension but he has worked all his life from 15 so why should the pension that he has paid towards for 50 years render him exempt from receiving 65.00 per wk carers allowance. He helps me daily for many hours and just when I thought we would have 600.00 per month extra it’s been upsetting to acknowledge the reality x
3,times I applied for pip ,the 4,th time I went to tribunal at this point I was annoyed angry and so stressed,I told the tribunal the same it's a horrible situation,I won my case ,I have just sent my review back to pip ,I'm ready for another tribunal fight ,if it comes to it I'm not laying back n letting them push me down again,💯🤞💫💕
Good for you! I think they rely on the fact that they are picking a fight with people who are naturally weak (which we are in the way that our DISABILITIES already create challenges for us every single day 🙏) But those of us who can stick up for ourselves and the rights of others like us to live simple balanced lives 💖 should feel confident and heroic in our fight!
Many thanks Emily for the information. I’m shocked that you won’t get pip for life. I’m on pip & have different problems, lately I don’t get out of bed for 24 hours plus. Take care diane 👵🏻👵🏻
I have my pip tribunal hearing via phone tomorrow morning and I'm so scared. I have severe mental health issues including a personality disorder and I have no evidence unfortunately. I'm absolutely terrified I won't get it.
Hugs! Sometimes it is a long road but just take it as practice in getting people to hear your story... This will be a good skill for gaining future evidence too. Well done for all your efforts xx
@@spoton6061 Need another hearing because they want me to get notes from my doctor for some reason so I'll have to wait longer for a decision and go through that crap again. The doctor that I spoke to has made me feel like absolute crap with the way she spoke and the things she said, ended up sat sobbing my eyes out over the whole thing. I wish I never bothered applying tbh.
@@vampirebunnyxo8336 i'm sorry to hear that, but don't give up! you know what helped me do well, it was benefitsandwork forum, just google it, they have specialists that deal with this and guides to help you increase your chances of winning, so many success stories their, i'm one of them, you ask them any questions aswell, I think i 20ish quid for the guides but well worth it, tells you how to structure and stuff and talks about tribunal etc, be sure to check it out, it will defo hlep!
I have my tribunal coming up soon, not looking forward to it, as one the problems I have is my level of concentration is very low, 5 or 10 minutes and I switch off
My tribunal is this Thursday, I am excreting building blocks. It's crazy we have to keep going through this, my problems are permanent and all they do is try to take what we need to live away from us.
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
I have just had a review for my daughter who was diagnosed with autism ,ocd , severe anxiety and BD. Though she’s been on DLA since age 12 then pip age 18 they have no given her nil points . I’m in shock and scared . The assessment was a lady who seemed to understand but now I’ve received this letter . How can they go from PIP at enhanced rate to nil is beyond me ! I’m going to appeal. There was a lot of discrepancies in the letter from them . She’s on meds they said she’s not !! Lots more lies !
They love to lie! Good luck in your appeal, I have found quite often their lies can fall flat when dragged out into the light - this has happened often to me in tribunal. YOU know what she has been receiving and you both worked hard to receive it with honest claims over the years. Keep the faith and look after your stamina during this hard time 💪♥️
I've got tribunal soon. Had DLA over 12rs High care -low mobility.. 2017 took it of me. Had under 8points 1st time did appeal.. then reaplyed Jan 2019. Severe learning difficulties & autism.. 🤔 hopefully I succeed 🙏 also DWP lied etc on assessment.. mine is long term since been little boy. 😒
Very well articulated, thank you for clearing up a few points, too, because you are long term, you should not have to be held to account again about your disability. Please put your mind at rest, and yes i do understand.
Tribunal tomorrow 3pm. The worst part is imagining I was doing ok. Until this and having to face up to how fugged up I am. Can I get on a bus to see my son? No. Can I drive or ride a bike? No. There are many things I would like to do - join groups, have friends, go swimming. At home in my room with my music and jigsaw puzzles I can say everything is ok. Tomorrow they force me to confront my mental illness and I do my only coping mechanism - get drunk tonight so I care less tomorrow.
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work. I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
I used to suffer with grand mal seizures as a child, but eventually grew out of it. However, I'm certain it's left me with some degree of damage, as I struggle with certain aspects as an adult. And i was diagnosed with autism last year. Do you know if it's still possible to have brain damage, despite growing out of it?
Yes I think so it is very possible still to have damage - tho the brain probably has adapted around it. There can be different types of seizures too that are not as easy to spot as grand mal but they can sometimes be disruptive too... It is tough to have to work with these things when we have had the challenge in the past when other people did not have that challenge, I think it can set us back developmentally! I am glad you got your diagnosis too - how have things been for you practically and emotionally since you got your confirmation?
Hi, I am waiting for the 16th of May to see if DWP replies to the tribunal and then get a date. Did they go thru every part of the assessment with you like preparing and eating food and the rest?
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work. I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
I was on dla from around 12 years old was forced to apply for Pip my hearing is over the phone on 10th Jan and I'm worried sick as I'm not sure what evidence i need to gather due to my mental health I have burried my head in the sand. im angry because i dont know how to fight it.
Hugs Lee, that sucks :( I remember being put 'through the wringer' in a good way by a guy who was volunteering at the Citizen's Advice Bureau so I could fill in my form with clarity and gravity. I really needed it after years of being encouraged to NOT look directly at my difficulties and disability. My advice is during your hearing don't let them rush you, remember to breathe into the spaces so you can communicate your experience well. Also.. this hearing is not the end, whatever the result you will have learnt from this experience and go on to build a better case for yourself. I hope this helps and I wish you luck!
Hearing this makes me so sad and scared because I have to have my tribunal by telephone because of the pandemic. I have autism which is a disability as trying to live everyday by myself is a real struggle to me. Like, I have to be focused on one thing and really struggle to do ordinary house chores. Not cos I'm physically incapable. But because I just get overwhelmed mentally. And if there are other people around then it's harder cos I have to focus on socialising and doing something else. This inability to just do normal things in a reasonable time period is so suffocating... and hoe I communicate with others isnt great. I can hear what they say and I can sort of talk. But I cant read very well their mood by their facial expression or any of that other body language. But the thing I get from the DWP and even my parents is that they think I'm not disabled enough. They say 'you do have a disability. But you need to be more disabled.' And what hurt more is that my parents have been the worst supporters in this. I only found out in the last couple of years about my autism and dyslexia but I have had it all my life but just never knew about it... because I could mask and I slipped through the net because I could get through school with ok grades. I never got extra help. Never got a seperate room or extra time in exams and never allowed to use a laptop for them despite having slow handwriting... And the DWP used the fact that I got through school against me. Just the whole time I've been through this... they've treated me like a criminal. Like, I'm trying to mooch off the benefit system. And it makes me doubt myself. I almost threw the towel in a few times because the stress became too much. The only reason I didnt was that one of my friends has been super supportive of me. She was so angry at what they said about me. Even angrier than I was. Like I was upset but I was just sad about it because I was and still am used to being dismissed when it comes to my difficulties. But she was passionately against what they said. And ironically the DWP guy who answered the call for me to deliver the forms. I was so scared and nervous asking for the forms. and he was nice and said to me 'don't be scared or nervous, you deserve this as much as anybody else'. And knowing now about how the DWP screws almost everyone over. I get the feeling he was subtley communicating to me that he knows the system is bull and that I've got to get through it. I just wish I didnt have to feel like I'm being treated as a criminal. I know I deserve that benefit. But they make you feel like a monster just for applying. Like you're lying, when you know you're not...
Hugs Storylover! I understand the thing about parents - mine were pretty crap about my epilepsy too but I kinda get it as a parent myself, people find it hard to understand disability and parents are just the same in that :( Society has not quite yet got around to making disability visible enough that it can be accepted and the problems that come with it addressed. This has been reflected in the Government, even, choosing the wrong people to judge at Tribunal - people who are unqualified to comprehend the struggle people are asking for help with! My struggle with disability also began in childhood at school but tbh the real work only started in adulthood when I met my understanding husband who helped me to get the acknowledgement, support and benefit that I deserved. I had to get over my guilt complex for not just 'pulling myself together'... it's pretty sick :( You are right about the DWP people too.. most of them are just humans, desperate for work and therefore just having to do their job. In this life I think it's important for YOU to become the expert on YOU, take care of yourself and give yourself what you need to become strong and have the stamina to fight this fight. There are so many behind you in similar situations and your wins will become theirs. That is what has helped me keep going, that and, whilst rolling my eyes at them gently, leaving my family's attitudes behind me. Thank you for your response, I hope it was not too triggering but your words mean a lot - to me and to other people who visit this video!
@@Emilysvisions Thanks. And your video meant a lot to me. It's hard to push away the feelings/thoughts like 'you're trying to victimise yourself.' Or 'you're not as bad as this other person'. And I know that these are internalised bad thoughts that are being fed to me... I'm honestly trying but I cant say I dont have days where I feel like that. Especially when people close to me say stuff similar. Like, I remember trying to explain to my brother who's neurotypical and doesn't have a disability why the system is so stacked against disabled people like with PIP and that society in general isn't geared to accommodate us until people remember we exist. The hardest thing about being an expert in ME is expressing ME because my disability specifically makes it harder to understand others and communicate/express to them. It's hard to focus on so many things and how overwhelming it gets... and it's hard to explain a mental thing and how that's overwhelming rather than explaining how a physical disability causes too much pain. Cause that's simple to understand, it's tricky to explain why your brain gets overloaded, overwhelmed and so paralyses you mentally with anxiety. Like, I had to clean my whole flat the other day and I barely made a dent in 12 hours. I cleaned some of the dishes, took some recycling out and then I gave a quick sweep. But this was spread throughout 12 hours. Not in one go... That is not normal. And the DWP tried to claim when I did the assessment that the time I take to complete tasks don't matter. They do so matter! It shouldn't take a whole day to perform simple tasks. If I could hire a cleaner for my flat at uni I would. Maybe I can... I dont knoe... i dont have the money for one. I had to get a studio flat because I just couldnt live with other people and it was near impossible to cook or eat food in the kitchen for me because there are many days I just want to eat with no talking. Seeing all this written out. I know how much I struggle and the passionate friend I told you about sees it so much. Sometimes clearer than me. Because she's straight up said to me 'They're talking rubbish, you're obviously disabled.' When for so long it was just pushed to me as 'you're fine. Just need to be a bit less lazy and do it quicker or something like that'.
I had someone kind phone me once too from the dwp. I had decided to cancel my claim because it had been months and i was getting more and more stressed especially with how they kept being nasty on the phone about how the assessment date they gave me was when i had a hospital appointment and said to me that I cant change it and so i cancelled bc i was like well im not cancelling an important medical appointment. Someone from the dwp phoned me like a month later and said he was wondering if i wanted to re open my claim and said i shouldnt worry and that I had nothing to lose really so i did and I got awarded 7 months later
AT the Newcastle upon Tyne St James Gate PIP assessment office they have a whiteboard in the canteen set out as a league table depicting the leading assessor for DECLINING claims. Some of the worst assessors who often lead the board are those who themselves have a disability their attitude is "If I can work, so can they" According to one assessor there, "We ARE encouraged to decline as many applications as possible EVEN those we can clearly see SHOULD get the award". "This is to see how many bother to pursue their claim further". "What GALLS me the most is that if you state you have a drink and or drug dependency you GET the FULL maximum award AUTOMATICALLY plus a SPECIAL payment to assist them with seeking treatment BUT there is NO follow up to see if this SPECIAL payment is in fact used for the purpose it is issued for" The comments ARE real actual quotes by an assessor
Hi Donna Commending your bravery! Make sure that you prepare something that you like to give to yourself after the session. It may help knowing that you have a reward coming and you certainly will have earnt yourself however it goes. Good luck xxx
Been denied mandatory reconsideration, been given 4 points each. I’m suffering so much with Migraine Vertigo for 8 years. First time to apply PiP and already making my symptoms worst . I have all my documents from my ENT Consultant who referred me to Neurologist and from my Neurologist Consultant who diagnosed me with Migraine Vertigo and was given meds to manage it but because of Covid I no longer manage by my Neuro but Gp and was given another meds today to try for 4 weeks then back to Neurologist. I am having second thoughts on appealing as this is damaging my health, I might get deny again😢 my assessment said I have no problem going to places and can read maps and drive to my destination well when I can’t even drive and don’t have a car at all. I feel like dying everyday Migraine Vertigo is no joke I can’t even go anywhere without feeling dizzy.
I am really sorry you are experiencing this! and it's horrid to hear the lies they tell you about yourself, when it is obvious they have not been listening!!! It is hard to do this all for the first time because things that are usually part of the fight are a new shock to you each time (not something anyone with a disability can handle well - or should handle either). Remember to give yourself as much self care as you can through this marathon, do you have a carer or advocate to help you? If not I recommend reaching out to charities and others who help people in similar situations. You can find people who at least will be kind and understanding your situation. Also remember with a long term condition you should pace yourself and take your own time (I often need time to heal between tackling things head on). Someone said to me in response to this video the other day 'you look fine'.. Ignorance is rife but at the end of the day You are the best expert on Your needs - whether to fight or lay low to prepare for a future fight is a very personal decision. Good luck ❤️
Yes it is hard to know what will happen but quite likely things will be put on hold even though there is an even greater need for the monetary support at this time :( I think people with special needs will need to keep their nose to the ground about what help our Government is going to give all its people. *sends hugs*
Yes but they want them over the telephone or a long wait i had a call yesterday off them the courts and need to ring to see if i would like to swap to telephone call or not been waiting almost 2years for a hearing it's very daunting but scared over phone and scared for face to face as well. Really dont know what to do
Just an update here. They cancelled my tribunal on the day because someone "went off sick" Lol, imagine them being too sick to review how sick you are. Jeezus. Anyway... New tribunal date is tomorrow at 3:30pm Could not be more terrified and thinking death would be better
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work. I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
If you had put in a default judgement in you,d not need a hearing. And the court would have more time to deal with these stooges.🐽How stressful being integrated like that.
Yes I agree, I think it is stressful all round! It needs to be thought about in a new way so that vulnerable people can stop being persecuted... I felt for the people who are paid to do the work as well as myself!
I don't really know about the specifics of that - I hope that others who have experience will respond to your post. I only know from my experience that I have often had to appeal for a claim, after years of having a successful claim for a permanent disability, when my 'time was up'. So it may be a case that it is always worth appealing - tho the irony of us having to do extra work to prove that we cannot work or are finding life difficult is not lost on me! Good luck!
I attended a court hearing a few years ago ...... THEY COULDN'T HAVE BEEN MORE KIND ! . The staff were lovely and caring and i think all they wanted (really) was to ensure i wasn't a "Joe Soap" who didn't exist !!! . The letters are intimidating prior to the hearing ..(YES) ... but i think that is to deter fraudsters !!!! . ... I knew somebody that had THIRTEEN houses ...(oh plus his own and his villa in Spain) ... ALL on "Benifit Fraud" ... (a paper millionaire) ......... SO ???........ the money they saved off him will be directed to YOU ... plus you'll get more money !!! . In fairness to this government ...for right or for wrong ... THANKS FOR READING
Hugs Gemma! I hope you get your date soon - waiting is awful. I think the practicalities of these things are often overlooked - did you have to actually be nervous before and travel to the court to be turned away? The emotional and financial costs of such a day in itself can take its toll. Be kind to yourself whilst you are facing this challenge (on top of the regular challenge of having to cope with life with a disability)
I am disabled British national insurances number owner for along life and I pick up chronicle mental illness in UK more than that I was insured for along life now I am trying to get a right for pip and the right to go back to UK so advise me and direct me please i am now in my native country Algeria cause i lost all my British document in uk among these documents my chek book and my British national insurances number i made British visa request bt i got refuse
I am sorry I can't help you :( I am just a little lady in UK trying her best with what she manages to get together.. just sharing my experience. I am no expert at life or any of these things! There are now far better videos out there with advice and things - I was trying to start some general conversation about this topic because it was more buried at the time and it seems to have helped because a lot of people are now talking about these things. Good luck in your search!
I have 2 developmental disabilities and a life changing and severe brain injury, and my last PIP assessment got me 0 points on everything. Apparently I have a normal gait. Right, I got bullied all through school for walking like a monkey, and after the brain injury, I had to learn to walk again. I have a very obvious Dyspraxic gait, that is not a normal gait! I struggle to process and interpret all forms of communication, which puts me at massive risk of physical assault, verbal abuse and exploitation from scams. I have to ask my parents or friends to look through unexpected text messages or emails to make sure they are legit. I am a massive falls risk through being Dyspraxic, apparently I can walk 200m safely. Allegedly I go to football matches regularly. I can't keep myself safe in public, my cousin is my carer at my beloved Villa, whether we go or not depends on if he fancies the game, if he is free that weekend and if he can get tickets so that we can sit together to watch our heroes. Safe to say, that is a very rare treat. I can apparently make budgeting decisions and manage my money. Yeah OK. I need to be prompted by my parents to keep an eye on my bank account and ask their advice about spending because I have impulsive tendencies to buy stuff that I want, without considering if I can afford it, my priorities are very poor in that respect. Therefore I clearly need the benefit. I have disabilities that will never improve, yet apparently, my needs have changed. I would love to know how. My needs will never change with what I have!
Same i got asked if all my family members work i pissed me right of as my sister works as a teacher my brother works in construction and my mum a full time house cleaner for the elderly
@@Emilysvisions Good news, I managed to get enhanced mobility on MR from 4 points, however no change on daily still at 4 points, i'll take that to appeal!
did anyone get any money for for 4 points is classed for anything what's the point of 4 points if you can't be awarded any money if you have applied 3 times like and they know of these difficulties are permanent why do they keep making people more ill by making them apply to tribunals for mental health patients this can cause adverse effects and more problems to their symptoms to be worsening I don't think I will go to tribunals but tell them I want my case to be herd over the phone and make a huge complaint to the Ombudsman services regards giving less points and back yourself up that way as of a person with health issues big or small it's still an health issue and anyone can apply to pip regardless of working or not what I don't understand is that ive ready if they know you are working they hold that against you, because it showes you can get transport or drive to and from work and you can happily do your shifts at work even if you get a letter from your manager to support you it doesn't count for anything, you have to say that your struggling with work and you cannot function during work hours becsue that's how I feel if they want you to better yourself they should help people so they get stronger and are able to work instead they are not of any help people with mental health issues would be in so much agony if they attended a tribunal as I wouldn't have the strength to go so I would have to also do it over the phone but I would not let them see as this is very wrong its as if they humalate your privacy and personal like they don't care your a human being and you get treated like Alian of some sort, thank fully I had a good person who was kind towards me and I could talk to her, and she was very understanding and said I did really well and I should be proud of myself, at this I don't think I was proud of myself because dwp make the decision and not her, she asked how would I have felt if I had to come to the centre I said I would have felt traumatized by the whole situation I haven't herd nothing back yet only that they have my report now from that assessment I was told that what you write on the form should be the same when asked in the assessment so basically you need to repeat the same stuff or any changes that have occurred during that time gap, I told her I can't remember things and words so can she give me time to explain, she was okay about it. but I felt I didn't expaline well as I wanted because I would have needed longer time to expaline as I was so slow in explaining things after that day till now uts been a almost a weeks I'm still feeling the effects it's so difficult. I do understand people can lie on this form and that's why we get trick questions to catch us out if we are liying but if your medical report has your symptoms on that and you medication no one is lying as she asked one particular question that was based on my medical issue, and she said talk me through that as it was what I put on my form as it adds lots of problems to my mental health and other daily things so after that she moved on to how it effect me. it was very hard to explain as dealing with with explaining when you have mental issues is hard for them to see the whole picture and it's you who goes through the pain and not them so you know how you cope on a daily. I also think they have your past old papers too to compare things not just new information becaue the lady wanted to know my old stuff too as well as my new stuff and how long I'm having these issues. I was asked do I go to the sales at first I thought she meant do I work in sales but she means sales shopping I said if I cant go out and feel the way I do would really want root though sales shopping I would be exhausted. I said I don't need anything other than getting better for the next day so I save my energy. it's all rubbish they system has changed for pip in terms of how they delegate people's affairs and personal stuff they have gone worse, not changed its all thr same the only difference is they are all working from hoke but I think someone was listening to that call as I spoke to the lady because I could hear interference during the call but that's a good things because at least they can hear how you feel as they judge you on that too they test how you react on the phone so that goes against you too by I struggled to speak it was so difficult I had to sit myself on the floor because I was having enxeity and had to bite my teeth to keep answering after the call I was gasping for water and then became lethargic and tired I needed to put my head down as it was very overwhelming and lots pressure so thats why it's not healthy for people to do these assessment who are not well. they just treat it as another benefit and have your doctors and mess information to grant this. would lot less hassle for the tribunals assorsor and the government. appeals are in my opinion a waste of time if you go though appeal some people win after one year it's just ridiculous what if your health goes more bad before they can help you, it's not nice at all for anyone to go through this stuff, I find little tasks so hard to fulfill and kick myself why I can't do them so going to a tribunals is difficult.
@@sharonkour9721 No money 4 points, but I ended up appealing further after MR. Got 12 points for daily and mobility just before the tribunal date they decided to change it before the tribunal thankfully, but i sent in extra stuff like occupational therapist letter with all.my aids that I require, I only got them between the MR and tribunal stage but was a game changer for me.
No-one as far as I can see. When I get the support I need I am a far more stable and happy member of society.. so really if I win, everyone wins. I feel fairly sure this is the case for most disabled people in our country - scoring based on numbers rather than actual affect in human society is inappropriate (to put it politely 🙄)
@@tuguybear930 At the top maybe lol.. The people who have to put us through it face to face - I doubt they are being paid much more than minimum wage and having to stick to quotas with heavy pressure from their bosses 😓
I have sent the review form back to them at the beginning of February that is my plan this time to take them to the tribunal I look after my mother and I'm her appointee she suffers with dementia last stage of copd and she has had 7 operations on her legs she's on the wheelchair I don't understand why dwp keep calling her for the reviews every 18 months this is 4th reviews since late 2016 I have emailed mp and forwarded all the medical evidences to them and asking to write on my behalf to dwp which they did it 3 weeks ago we are asking for on-going awards this time if they comeback with fix awards again i will start the process to the tribunal
You are a real hero keeping up the consistent effort - remember to look after yourself and give yourself things you like and need in-between times. It seems so frustrating that this issues are a long time battle between things that make no sense and the amount of stamina we can naturally generate. There is such reduced stamina when facing these stressful things. All I can do is celebrate your work and know that you are learning with every step. Thank you so much for sharing Hooman!
@@Emilysvisions Dear Emily thanks very much I really touched by your kind words! As you know it is very difficult to look after parents with high level of needs since 2007 I am just London ban I can't go anywhere my mother wont stay with anyone else apart of me we try to get help from our local council which it didn't really workout properly but this morning it's look like puzzle has been solved we've new awards letter from dwp this morning they awards my mother on ongoing basis and they said we will be in touch again after February 2031 to see if things are change which is fantastic I was ready to fight it this time but I think they just a bit embarrassed to giving her fix awards I did sent them 649 pages medical evidence last month and mp wrote to them as well when we got the letter this morning I couldn't believe it I read it 3 times this time decision was prerty quick they made the decision in 23 days since they have received the completed review form back, best of luck and best wishes to you Emily 👍
Hi i just had my tribunal hearing few weeks ago and i have recieved a result few days after the hearing took place, i was represented by cab and they believed i had a strong case, however at the tribunal they kept asking me all sorts of questions for example past studies and driving a car which i havent done since being dignosed with mental health, the results came through and they have stuck to assessors report which was 6 points, i assumed i would be given a fair trial even my cab advisor was highlighting points which i should have been awarded for but didnt recieve, im going give it some time before i re-apply the whole procedure extremely stressfull am fortunate enough i have great family support feel sorry for people who have little support
@@tahirmohammed2279 I am sorry to hear that you are facing on-going issue with them just give it sometimes and reapply again they did drive me mad then we've got the result wishing you good luck
@@tahirmohammed2279 I totally agree! It shouldn't really be a battle specifically designed for people who struggle with life already to fight. I am glad you can take some time out and gather your strength whilst surrounded by supportive family. I'm glad people are sharing their stories - I feel reading them helps people who can be very isolated in their experience :(
I'm glad you are OK (not happy exactly?) with your result - you only say you 'won'. You don't say what they decided your extra costs of your disability are - I doubt you're going to get enough to actually cover them, plus: I can't buy what I need (don't know about you?) & I'm supposed to search for the right people & employ them = can't really. We need accessible & free at the point of use Public Services that are designed for & appropriate for our needs, often; plus lump sums for e.g. new up-to-date PC & bed/mattress, tech & so on = 'not allowed' by National insurance which pays out a measley pittance compared to private insurance schemes & compared to the amounts decided by disability/costs experts for those who win a personal injury legal case here in the UK - which is a pittance compared tho the sums often(?) awarded in the USA for similar injuries+. I was very injured by NHS medics here in the UK in 2005 then they lied, denied, covered-up, faked my med records and pretended nothing had gone wrong & that I wasn't/am not injured = they neglected all my injuries, so did my GP. No money can compensate us for all the things we can no longer do & for mega pain & fatigue and so much more; we need everything & everywhere to be easily accessible so we need as little help as possible = independence and choice. All the best to you. P.S. Mega years of stress with this process - a killer, & without help loads of us can't do it - let alone to present our case the best way possible, I couldn't even though I tried very hard & repeatedly; their questions & 'descriptors' & choices of answers don't fit me and my disability & injuries = not fit for purpose, it's very discriminatory & favours those suffering mostly from mobility difficulties, which I do but they apparently haven't properly understood how & how much (nor loads of the other things I must try to deal with 24/7, alone) even after stupid Tribunal = rubbish & insulting and a mega waste of our limited time & energy - and huge waste of Public Funds = our money; we do not consent to this nor the discriminations against certain groups of vulnerable disabled/ill people and all the extra harms these cause - to all of us indirectly....
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work. I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
Indeed, I save my energy up for videos like these, or luckily grab a moment when I am not experiencing too many symptoms - and then collapse after. I do not make these videos for pleasure.. but rather for the others it seems to help who have similar problems. Perhaps yours are different and so you cannot understand. If that is so it could be seen as a type of un-ability itself and I therefore have sympathy for you!
@Emilysvisions l make videos UK based l had cancer this year...suffer from depression... but l don't show it. Thank God he is not on your tribunal. Like yourself, l always psyche myself up and ignore these low-life 🪱
Because I have seizures that pretty much shut off my brain three to four times a week, which can take a day to recover my consciousness and energy from. (Some have longer effect but in general they are like that). Such situations would be pretty frustrating for an employer (even if you decided to leave any concern from my experience out of it). I managed to find a window of energy and ability to record this video for the sake of those who can empathise with this condition and situation. To return the 'non offence'.. I am actually pleased for you that you find it hard to imagine just how disabling it is! Though it does explain somewhat why MANY disabled people who are struggling in the world find it hard to survive, get their perfectly innocent needs met, and feel confident within what can be an impossible situation!
@@Emilysvisions I'm in a wheelchair and dialysis and I don't get pip I know what disability is Emily but I do think that for your disability to be questioned is valid...no offence
@@draftycash3492 it is quite usual for humans to assume things about each other and no guarantee that they will see things eye to eye. I shared my experience here to help others through making this whole process more visible (rather than wishing to be interviewed further). I am sorry you have not got PIP, it sounds like you should be, but our disabilities are very different and I think it is important to avoid being competitive! I have been on disability benefits for a long time (DLA before PIP). I still have to fight hard to retain them and once won I work hard to recover my fitness and help others as much as is possible for me as an individual :) It is a little offensive to ask personal questions on a public forum, some people would be quite upset! I won't be asking you for personal details either but wish you well on your journey.
@@Emilysvisions I ain't applied for it....i still work, I was just curious about your condition, you said ya brain stops working, I thought when that happened you died...what is the name of the condition you have?
Cheers Keith but the video is about something that actually happened in the past - i.e. lived experience. Whether you like it or not there is nothing crap about that 🤣
My dad was rejected won his appeal my mum was rejected won her appeal what a bunch of scumbags im thankful I work full time cus I dont want this shit ...congratulations
My son just won the pip tribunal. From 0 points to the enhanced daily living and standard mobility. No assessments for 5 years. And DWP didn't turn up. Keep the faith
Snap!
There was, in my case, myself and a rep from the CAB on my side, the bailiff, and, on the bench, a magistrate, a social worker and a doctor!
If the DWP don’t turn up do you not just automatically win your case?
Today as in 31,October, I attended my PIP Tribunal which was pure torture because my health condition is Social Anxiety Disorder, so facing the Judge, Doctor and two other people, one by my side who was from the DWP, put me in panic, leaving me crying and shaking almost all of the time that seemed to have no end with one question after another. When the tribunal was over I was asked to wait in another room for a few minutes before being called back in and told I have won the appeal, which for both myself and my lovely wife who was my representative, left us both feeling a great relief with much emotion. Was explained that I would receive the standard rate for both Mobility and Daily living, back dated from March 2021 and would continue to receive until March 2024 before being assessed again. Still can’t believe I won, not just receiving what am entitled too, but also beating the DWP.
Congrats for your effort Colin! Thank heaven for our supportive spouses.. With the height of the wall we somehow are supposed to climb over (whilst being disabled - a paradox I will never be able to wrap my head around) I can't imagine how lonely disableds cope and if they ever get the money they need to crawl out of whatever hole they may find themselves in.
@@Emilysvisions 💓
Thanks so much for sharing. I have my hearing in 1 month. I find your point interesting about standing your ground in the hearing. I think i am going to struggle to keep my cool.
The whole experience has left me feeling unvalidated and drained.
To anyone who made read this applying for PIP. My advice is simple….DO NOT GIVE UP.
Send every bit of evidence and jump through every hoop. No matter how much it drains you.
It is shameful what you have been put through . Having to ‘prove’ your disability by initially appealing then fighting in court is humiliating and degrading . Thank you for making this video . 🙏🏻 I hope you have good quality days where possible. Wishing you a peaceful life ☯️ so sorry you get re grilled time after time . It’s incredibly stressful each episode. This video helps others cope . Thank you .
Thank you Julie! To be honest one of my main obstructions has been coming from a background where disability was not really accepted and acknowledged. Even tho I sustained my head injury in childhood it has been hard to get my family to even acknowledge it and a lot of my symptoms were simply put down to behavioural and emotional problems by them - I was an easy scapegoat! This has made it extra hard to stick up for myself and tiring to make quite an emotional journey in my adult life, to acknowledge when, where and how I need help. It is probably a common obstacle to quite a few other disabled people.. so I think really there is a society-wide problem and so I am not really surprised at how confused these Tribunal people are/can be. As a Buddhist I think it's mainly made up of people wanting to deny how fragile we all are as living beings and I really get that! I can't see much of a way out so I just working on visibility and encouraging, by example, others to share. Thank you so much for your support, it really means a lot!
The system is criminal
It is they are biggest benefit fraudsters. How can they suddenly make an offer that means they know you were entitled from the start
The fighting is exhausting, I don’t think a anyone except those who have to keep fighting for their rights fully understand this. We are not fighting for anything we don’t deserve, it’s our rights at the end of the day. Glad you got what you deserve.
Thanks Sharon, I agree. We are basically looking at institutionalized unkindness - I can't imagine it is good for anyone, even the perpetrators and employees :(
We were lucky with my son. Hr had been receiving benefits for years as he is autistic. We then went through an assessment for PIP and were told he did not qualify.
We lodged an appeal and were expecting to go to a tribunal. Instead we received a phone call saying they had looked again at his assessment and as he has a life long condition that doesn't go away they did not understand why he had been turned down. PIP was awarded and backdated.
The problem with the whole assessment process is that the assessors do not have experience of your specific condition and are just working from a checklist. They are also incentivised to decline as many claims as possible.
Thank you for sharing this, I am in the process of doing this myself. I thought you came across so so well. I really appreciated your points x
THANK YOU for covering that bit about accepting the lower offer and then being ABLE to Appeal again!! I would never have thought this! I too, on behalf of my son, would have thought I ought to refuse in order to progress. ❤❤❤
Thank you so much. Your a legend , this was really helpful 🙏
Excellent video, helpful & informative. Well done.
Very useful thanks
Thank you for sharing this. I just want to reiterate what others have said that it's awful that you have had to endure the indignity of having to fight for what you are entitled to. My husband also has epilepsy following a severe stroke many years ago which also rendered him paralysed down his left side. He can barely walk a step without stumbling. He was awarded DLA for life until it was replaced by PIP. He too had to appeal and thankfully won but like yourself he will have to re-apply every 5 years when it is clearly obvious his health and mobility is never going to improve, infact it is worsening with age. As you say, people with disabilities are made to feel like criminals and scroungers.
Hugs! I just wish people would take a moment to stop and think what a toll this takes on people who deserve a simple life after awful circumstances. At least when i do have to re-apply I will keep thinking of how my action raises the visibility (and basic stats) of people who need support to live a somewhat normal life, especially if it goes to tribunal AGAIN!! It's exhausting for everyone involved - I wish you and your husband a swift 're-award' when the time comes!
I am waiting for my tribunal date now. I have no idea how long it will take. My life is in limbo I am getting into debt now. I have sold anything I could sell. I am f*cked.
The Tories have blood on their hands so many people have given up and died because of this cruel game they play with people whose lives are already so hard.
I am 55 and have congestive heart failure, fibromyalgia, osteoarthritis, chronic pain, social anxiety and depression, brain injury, PTSD, and bots of agoraphobia after being attacked by a stalker a few years ago. I got PIP for the first time just as we went into lockdown. When it came time to renew it. I sent off the paperwork and it has been nearly two years and they knocked me down to basic. Who can live on £107 a month? Everyone keeps saying. ( it will be back-dated ), But it will take 8 months like all the things on the internet are saying. I will not make it that long.
The thought of going throw this every time is even more depressing.
You are a very brave lady, God bless. Well done.
Thank you🙏
Thanks for sharing.
Hope you have as wonderful a life as you can x x
This has been really helpful, thank you.
So welcome!
It’s like they just issue us with nothing until and unless u appeal! I won my mandatory reconsideration but still taking it to court I want full enhanced as I need
Thanks Emily. Got my tribunal appeal over the phone tomorrow. Its more than a year on from when i was asked if I wanted to claim PIP after having been on DLA for 12 years. Wish me luck!
Stay firm Karen!
Just got my decision today. Appeal granted! Worth all the effort. Thanks for the support.
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.
I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
Hello
2 years ago i was taken of my dla ,I was heart broken I was on top rate dla for 15 years as I have a lot of health issues there's day I cant walk and have broken many bones in my body from falling , I won my case but I only got a little help with the carers end of pip ,mybe someday I will have the energy to fight back again but for now I am greatfull for the mobility end of pip ,so glad to hear u won ❤
Hi Veronica! Thank you for your support - it is so important I think that we fight together so every little win is a win for the disabled community. I am so sorry that they have left you in this mean situation and I hope for your inner energy to rise so that you can fight again! It seems to me that unless you have an able-bodied person who understands ready to advocate for you it can be impossible to fight for one's rights. It is beyond irony 🤢 I am sure that I will have to go through the whole thing again when my review eventually comes up (not that my damaged brain is ever going to somehow 'fix itself'). I have been in at three different courts over the years. As a non-criminal who has never been called for jury service I object to that! Much love to you as you go about your days 🍀
Very helpful. Thanks Ella! 👍👍👍🌟🌟🌟
Pleased to help by sharing my experience! 👍😌❤️
Thank you this was so helpful, I have my tribunal in 2 weeks, I suffer seizures due to an autoimmune disease and been left with a brain injury, Im terrified but I'm ready to have my say, I have applied 5 times and got no 0 points, I'm determined this time to beat this :) well done for beating them xx
You are so welcome Amy :) I think one thing that is happening here is a large (and largely inherited) denial campaign by people who prefer to live in Ableist Culture. These bodies we live in ARE fragile and you have my complete sympathy for your bad luck that resulted in your disability and all power to YOU for continuing to fight for your rights!!
How did the tribunal go if you don't mind me asking, going through the exact issue with seizures at the mo with 0 points across the board......
@@TheMrSwilly I won the tribunal :) but unfortunately my pip award has just ended and now need to reapply again :(
@@amywxm90 Sorry to hear that, but, given you won the initial tribunal,which is a massive bonus, I'd reckon the reapplication will go a lot smoother for you with that added bonus. Keep us updated
@@amywxm90 hi when you won the tribunal how long was it for? Seems to of ended quickly?
Thankyou for sharing, I’m so sorry you have had to go through this. My husband has just lost his carers allowance because he has started receiving his old age pension but he has worked all his life from 15 so why should the pension that he has paid towards for 50 years render him exempt from receiving 65.00 per wk carers allowance. He helps me daily for many hours and just when I thought we would have 600.00 per month extra it’s been upsetting to acknowledge the reality x
3,times I applied for pip ,the 4,th time I went to tribunal at this point I was annoyed angry and so stressed,I told the tribunal the same it's a horrible situation,I won my case ,I have just sent my review back to pip ,I'm ready for another tribunal fight ,if it comes to it I'm not laying back n letting them push me down again,💯🤞💫💕
Good for you! I think they rely on the fact that they are picking a fight with people who are naturally weak (which we are in the way that our DISABILITIES already create challenges for us every single day 🙏) But those of us who can stick up for ourselves and the rights of others like us to live simple balanced lives 💖 should feel confident and heroic in our fight!
Many thanks Emily for the information.
I’m shocked that you won’t get pip for life.
I’m on pip & have different problems, lately I don’t get out of bed for 24 hours plus.
Take care diane 👵🏻👵🏻
Thanks for the solidarity Diane! Wishing you some smooth and happy days in your own life 💌
I have my pip tribunal hearing via phone tomorrow morning and I'm so scared. I have severe mental health issues including a personality disorder and I have no evidence unfortunately. I'm absolutely terrified I won't get it.
Good luck
Hugs! Sometimes it is a long road but just take it as practice in getting people to hear your story... This will be a good skill for gaining future evidence too. Well done for all your efforts xx
How did it go vampirebunny?
@@spoton6061 Need another hearing because they want me to get notes from my doctor for some reason so I'll have to wait longer for a decision and go through that crap again. The doctor that I spoke to has made me feel like absolute crap with the way she spoke and the things she said, ended up sat sobbing my eyes out over the whole thing. I wish I never bothered applying tbh.
@@vampirebunnyxo8336 i'm sorry to hear that, but don't give up! you know what helped me do well, it was benefitsandwork forum, just google it, they have specialists that deal with this and guides to help you increase your chances of winning, so many success stories their, i'm one of them, you ask them any questions aswell, I think i 20ish quid for the guides but well worth it, tells you how to structure and stuff and talks about tribunal etc, be sure to check it out, it will defo hlep!
I have my tribunal coming up soon, not looking forward to it, as one the problems I have is my level of concentration is very low, 5 or 10 minutes and I switch off
Thanks x
My tribunal is this Thursday, I am excreting building blocks. It's crazy we have to keep going through this, my problems are permanent and all they do is try to take what we need to live away from us.
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
thanks great info
Well done 👌
I have just had a review for my daughter who was diagnosed with autism ,ocd , severe anxiety and BD. Though she’s been on DLA since age 12 then pip age 18 they have no given her nil points . I’m in shock and scared . The assessment was a lady who seemed to understand but now I’ve received this letter . How can they go from PIP at enhanced rate to nil is beyond me ! I’m going to appeal. There was a lot of discrepancies in the letter from them . She’s on meds they said she’s not !! Lots more lies !
They love to lie! Good luck in your appeal, I have found quite often their lies can fall flat when dragged out into the light - this has happened often to me in tribunal. YOU know what she has been receiving and you both worked hard to receive it with honest claims over the years. Keep the faith and look after your stamina during this hard time 💪♥️
I have epilepsy its been controlled almost 6 years! Lack of sleep is a trigger so if I haven't had good sleep I get seizure anxiety and won't go out!
I've got tribunal soon. Had DLA over 12rs High care -low mobility.. 2017 took it of me. Had under 8points 1st time did appeal.. then reaplyed Jan 2019. Severe learning difficulties & autism.. 🤔 hopefully I succeed 🙏 also DWP lied etc on assessment.. mine is long term since been little boy. 😒
Hugs Mark.. it's hard to even communicate under such conditions :(
@@Emilysvisions I won my pip appeal 😃...
@@MFobe yay!
Thankyou
got my pip stopped back in march now am waiting for date of tribunal and I have a brain injury aka bleed on the brain
Very well articulated, thank you for clearing up a few points, too, because you are long term, you should not have to be held to account again about your disability. Please put your mind at rest, and yes i do understand.
Tribunal tomorrow 3pm. The worst part is imagining I was doing ok. Until this and having to face up to how fugged up I am.
Can I get on a bus to see my son? No. Can I drive or ride a bike? No.
There are many things I would like to do - join groups, have friends, go swimming.
At home in my room with my music and jigsaw puzzles I can say everything is ok.
Tomorrow they force me to confront my mental illness and I do my only coping mechanism - get drunk tonight so I care less tomorrow.
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.
I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
took 16 a month wait for me and won
Well done 🦄
I used to suffer with grand mal seizures as a child, but eventually grew out of it. However, I'm certain it's left me with some degree of damage, as I struggle with certain aspects as an adult. And i was diagnosed with autism last year. Do you know if it's still possible to have brain damage, despite growing out of it?
Yes I think so it is very possible still to have damage - tho the brain probably has adapted around it. There can be different types of seizures too that are not as easy to spot as grand mal but they can sometimes be disruptive too... It is tough to have to work with these things when we have had the challenge in the past when other people did not have that challenge, I think it can set us back developmentally! I am glad you got your diagnosis too - how have things been for you practically and emotionally since you got your confirmation?
Hi, I am waiting for the 16th of May to see if DWP replies to the tribunal and then get a date. Did they go thru every part of the assessment with you like preparing and eating food and the rest?
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.
I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
I was on dla from around 12 years old was forced to apply for Pip my hearing is over the phone on 10th Jan and I'm worried sick as I'm not sure what evidence i need to gather due to my mental health I have burried my head in the sand. im angry because i dont know how to fight it.
Hugs Lee, that sucks :( I remember being put 'through the wringer' in a good way by a guy who was volunteering at the Citizen's Advice Bureau so I could fill in my form with clarity and gravity. I really needed it after years of being encouraged to NOT look directly at my difficulties and disability. My advice is during your hearing don't let them rush you, remember to breathe into the spaces so you can communicate your experience well. Also.. this hearing is not the end, whatever the result you will have learnt from this experience and go on to build a better case for yourself. I hope this helps and I wish you luck!
Hearing this makes me so sad and scared because I have to have my tribunal by telephone because of the pandemic.
I have autism which is a disability as trying to live everyday by myself is a real struggle to me. Like, I have to be focused on one thing and really struggle to do ordinary house chores. Not cos I'm physically incapable. But because I just get overwhelmed mentally. And if there are other people around then it's harder cos I have to focus on socialising and doing something else.
This inability to just do normal things in a reasonable time period is so suffocating... and hoe I communicate with others isnt great. I can hear what they say and I can sort of talk. But I cant read very well their mood by their facial expression or any of that other body language.
But the thing I get from the DWP and even my parents is that they think I'm not disabled enough. They say 'you do have a disability. But you need to be more disabled.'
And what hurt more is that my parents have been the worst supporters in this. I only found out in the last couple of years about my autism and dyslexia but I have had it all my life but just never knew about it... because I could mask and I slipped through the net because I could get through school with ok grades. I never got extra help. Never got a seperate room or extra time in exams and never allowed to use a laptop for them despite having slow handwriting...
And the DWP used the fact that I got through school against me.
Just the whole time I've been through this... they've treated me like a criminal. Like, I'm trying to mooch off the benefit system. And it makes me doubt myself.
I almost threw the towel in a few times because the stress became too much. The only reason I didnt was that one of my friends has been super supportive of me. She was so angry at what they said about me. Even angrier than I was. Like I was upset but I was just sad about it because I was and still am used to being dismissed when it comes to my difficulties. But she was passionately against what they said.
And ironically the DWP guy who answered the call for me to deliver the forms. I was so scared and nervous asking for the forms. and he was nice and said to me 'don't be scared or nervous, you deserve this as much as anybody else'.
And knowing now about how the DWP screws almost everyone over. I get the feeling he was subtley communicating to me that he knows the system is bull and that I've got to get through it.
I just wish I didnt have to feel like I'm being treated as a criminal. I know I deserve that benefit. But they make you feel like a monster just for applying. Like you're lying, when you know you're not...
Hugs Storylover! I understand the thing about parents - mine were pretty crap about my epilepsy too but I kinda get it as a parent myself, people find it hard to understand disability and parents are just the same in that :( Society has not quite yet got around to making disability visible enough that it can be accepted and the problems that come with it addressed. This has been reflected in the Government, even, choosing the wrong people to judge at Tribunal - people who are unqualified to comprehend the struggle people are asking for help with!
My struggle with disability also began in childhood at school but tbh the real work only started in adulthood when I met my understanding husband who helped me to get the acknowledgement, support and benefit that I deserved. I had to get over my guilt complex for not just 'pulling myself together'... it's pretty sick :(
You are right about the DWP people too.. most of them are just humans, desperate for work and therefore just having to do their job. In this life I think it's important for YOU to become the expert on YOU, take care of yourself and give yourself what you need to become strong and have the stamina to fight this fight. There are so many behind you in similar situations and your wins will become theirs. That is what has helped me keep going, that and, whilst rolling my eyes at them gently, leaving my family's attitudes behind me.
Thank you for your response, I hope it was not too triggering but your words mean a lot - to me and to other people who visit this video!
@@Emilysvisions Thanks. And your video meant a lot to me. It's hard to push away the feelings/thoughts like 'you're trying to victimise yourself.' Or 'you're not as bad as this other person'. And I know that these are internalised bad thoughts that are being fed to me... I'm honestly trying but I cant say I dont have days where I feel like that. Especially when people close to me say stuff similar. Like, I remember trying to explain to my brother who's neurotypical and doesn't have a disability why the system is so stacked against disabled people like with PIP and that society in general isn't geared to accommodate us until people remember we exist.
The hardest thing about being an expert in ME is expressing ME because my disability specifically makes it harder to understand others and communicate/express to them. It's hard to focus on so many things and how overwhelming it gets... and it's hard to explain a mental thing and how that's overwhelming rather than explaining how a physical disability causes too much pain. Cause that's simple to understand, it's tricky to explain why your brain gets overloaded, overwhelmed and so paralyses you mentally with anxiety.
Like, I had to clean my whole flat the other day and I barely made a dent in 12 hours. I cleaned some of the dishes, took some recycling out and then I gave a quick sweep. But this was spread throughout 12 hours. Not in one go... That is not normal. And the DWP tried to claim when I did the assessment that the time I take to complete tasks don't matter. They do so matter! It shouldn't take a whole day to perform simple tasks.
If I could hire a cleaner for my flat at uni I would. Maybe I can... I dont knoe... i dont have the money for one.
I had to get a studio flat because I just couldnt live with other people and it was near impossible to cook or eat food in the kitchen for me because there are many days I just want to eat with no talking.
Seeing all this written out. I know how much I struggle and the passionate friend I told you about sees it so much. Sometimes clearer than me. Because she's straight up said to me 'They're talking rubbish, you're obviously disabled.' When for so long it was just pushed to me as 'you're fine. Just need to be a bit less lazy and do it quicker or something like that'.
I had someone kind phone me once too from the dwp. I had decided to cancel my claim because it had been months and i was getting more and more stressed especially with how they kept being nasty on the phone about how the assessment date they gave me was when i had a hospital appointment and said to me that I cant change it and so i cancelled bc i was like well im not cancelling an important medical appointment. Someone from the dwp phoned me like a month later and said he was wondering if i wanted to re open my claim and said i shouldnt worry and that I had nothing to lose really so i did and I got awarded 7 months later
Mine today 13/09/2022 not looking forward to it but its been 3 yrs and 3 months since I was invited to claim pip.
How did it go?
I'm waiting to hear back for tribunal and they cutting it really short I'm supposed to hear from them by the 27th!
AT the Newcastle upon Tyne St James Gate PIP assessment office they have a whiteboard in the canteen set out as a league table depicting the leading assessor for DECLINING claims. Some of the worst assessors who often lead the board are those who themselves have a disability their attitude is "If I can work, so can they" According to one assessor there, "We ARE encouraged to decline as many applications as possible EVEN those we can clearly see SHOULD get the award". "This is to see how many bother to pursue their claim further". "What GALLS me the most is that if you state you have a drink and or drug dependency you GET the FULL maximum award AUTOMATICALLY plus a SPECIAL payment to assist them with seeking treatment BUT there is NO follow up to see if this SPECIAL payment is in fact used for the purpose it is issued for" The comments ARE real actual quotes by an assessor
Thank you for sharing that! Transparency is immeasurably valuable!
Got my tribunal on Monday. Really dreading it as I have schizoid personality disorder (amongst other things) and using the phone is one of my phobias.
Hi Donna Commending your bravery! Make sure that you prepare something that you like to give to yourself after the session. It may help knowing that you have a reward coming and you certainly will have earnt yourself however it goes. Good luck xxx
@@Emilysvisions Thanks so much, and for the top tip. Great idea to have something else to focus on afterwards instead. :)
Been denied mandatory reconsideration, been given 4 points each. I’m suffering so much with Migraine Vertigo for 8 years. First time to apply PiP and already making my symptoms worst . I have all my documents from my ENT Consultant who referred me to Neurologist and from my Neurologist Consultant who diagnosed me with Migraine Vertigo and was given meds to manage it but because of Covid I no longer manage by my Neuro but Gp and was given another meds today to try for 4 weeks then back to Neurologist. I am having second thoughts on appealing as this is damaging my health, I might get deny again😢 my assessment said I have no problem going to places and can read maps and drive to my destination well when I can’t even drive and don’t have a car at all. I feel like dying everyday Migraine Vertigo is no joke I can’t even go anywhere without feeling dizzy.
I am really sorry you are experiencing this! and it's horrid to hear the lies they tell you about yourself, when it is obvious they have not been listening!!! It is hard to do this all for the first time because things that are usually part of the fight are a new shock to you each time (not something anyone with a disability can handle well - or should handle either). Remember to give yourself as much self care as you can through this marathon, do you have a carer or advocate to help you? If not I recommend reaching out to charities and others who help people in similar situations. You can find people who at least will be kind and understanding your situation. Also remember with a long term condition you should pace yourself and take your own time (I often need time to heal between tackling things head on). Someone said to me in response to this video the other day 'you look fine'.. Ignorance is rife but at the end of the day You are the best expert on Your needs - whether to fight or lay low to prepare for a future fight is a very personal decision. Good luck ❤️
In wondering if my tribunal hea ring still still go ahead because of coronavirus?
Yes it is hard to know what will happen but quite likely things will be put on hold even though there is an even greater need for the monetary support at this time :( I think people with special needs will need to keep their nose to the ground about what help our Government is going to give all its people. *sends hugs*
Thank you keep safe
Yes but they want them over the telephone or a long wait i had a call yesterday off them the courts and need to ring to see if i would like to swap to telephone call or not been waiting almost 2years for a hearing it's very daunting but scared over phone and scared for face to face as well. Really dont know what to do
I'm in the middle of this nightmare,reduced it twice in 3 monrths.Im so p'off !!!
It's such a drag, it's scary and you have to put everything else on hold :(
Just an update here. They cancelled my tribunal on the day because someone "went off sick"
Lol, imagine them being too sick to review how sick you are.
Jeezus. Anyway...
New tribunal date is tomorrow at 3:30pm
Could not be more terrified and thinking death would be better
How did it go? :)
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.
I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
If you had put in a default judgement in you,d not need a hearing. And the court would have more time to deal with these stooges.🐽How stressful being integrated like that.
Yes I agree, I think it is stressful all round! It needs to be thought about in a new way so that vulnerable people can stop being persecuted... I felt for the people who are paid to do the work as well as myself!
Does anyone get pip for a bad heart got a stint put in and got damaged heart was refused pip
I don't really know about the specifics of that - I hope that others who have experience will respond to your post. I only know from my experience that I have often had to appeal for a claim, after years of having a successful claim for a permanent disability, when my 'time was up'. So it may be a case that it is always worth appealing - tho the irony of us having to do extra work to prove that we cannot work or are finding life difficult is not lost on me! Good luck!
I attended a court hearing a few years ago ...... THEY COULDN'T HAVE BEEN MORE KIND !
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The staff were lovely and caring and i think all they wanted (really) was to ensure i wasn't a
"Joe Soap" who didn't exist !!!
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The letters are intimidating prior to the hearing ..(YES) ... but i think that is to deter fraudsters !!!!
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...
I knew somebody that had THIRTEEN houses ...(oh plus his own and his villa in Spain) ... ALL on "Benifit Fraud" ... (a paper millionaire) ......... SO ???........ the money they saved off him will be directed to YOU ... plus you'll get more money !!!
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In fairness to this government ...for right or for wrong ... THANKS FOR READING
Just applied for tribunal
Good luck Jayjay - remember you deserve to be supported!
@@Emilysvisions im getting support from shelter, but im scared i dont have a case
Hi I've been awarded pip for daily living , enhanced and mobility enhanced what am I entitled to, can any one help me out here, thanks
This is really usefu x
Thank you Empress :)
I went to tribunal in December and it was adjourned so I'm waiting for a new date, it could be anytime now and I'm dreading it!
Hugs Gemma! I hope you get your date soon - waiting is awful. I think the practicalities of these things are often overlooked - did you have to actually be nervous before and travel to the court to be turned away? The emotional and financial costs of such a day in itself can take its toll. Be kind to yourself whilst you are facing this challenge (on top of the regular challenge of having to cope with life with a disability)
@@Emilysvisions yes I had to go there to be turned away 😫 is just agonizing waiting x
Thank you keep safe
Hope it went well!
@@gemmalangford5244 how did it go?
I am disabled British national insurances number owner for along life and I pick up chronicle mental illness in UK more than that I was insured for along life now I am trying to get a right for pip and the right to go back to UK so advise me and direct me please i am now in my native country Algeria cause i lost all my British document in uk among these documents my chek book and my British national insurances number i made British visa request bt i got refuse
I am sorry I can't help you :( I am just a little lady in UK trying her best with what she manages to get together.. just sharing my experience. I am no expert at life or any of these things! There are now far better videos out there with advice and things - I was trying to start some general conversation about this topic because it was more buried at the time and it seems to have helped because a lot of people are now talking about these things. Good luck in your search!
I have 2 developmental disabilities and a life changing and severe brain injury, and my last PIP assessment got me 0 points on everything. Apparently I have a normal gait. Right, I got bullied all through school for walking like a monkey, and after the brain injury, I had to learn to walk again. I have a very obvious Dyspraxic gait, that is not a normal gait! I struggle to process and interpret all forms of communication, which puts me at massive risk of physical assault, verbal abuse and exploitation from scams. I have to ask my parents or friends to look through unexpected text messages or emails to make sure they are legit. I am a massive falls risk through being Dyspraxic, apparently I can walk 200m safely.
Allegedly I go to football matches regularly. I can't keep myself safe in public, my cousin is my carer at my beloved Villa, whether we go or not depends on if he fancies the game, if he is free that weekend and if he can get tickets so that we can sit together to watch our heroes. Safe to say, that is a very rare treat. I can apparently make budgeting decisions and manage my money. Yeah OK. I need to be prompted by my parents to keep an eye on my bank account and ask their advice about spending because I have impulsive tendencies to buy stuff that I want, without considering if I can afford it, my priorities are very poor in that respect. Therefore I clearly need the benefit. I have disabilities that will never improve, yet apparently, my needs have changed. I would love to know how. My needs will never change with what I have!
Why was I asked about what car was at the house how many children I had wtf
So invasive when your appeal should be about your own self and personal needs 😮💨
Same i got asked if all my family members work i pissed me right of as my sister works as a teacher my brother works in construction and my mum a full time house cleaner for the elderly
Hey there, do you remember if you had to swear an oath at the tribunal?
No I didn't have to do that - I think they were partly there to establish whether i WAS telling the truth on the extended forms I had to fill in.
@@Emilysvisions Good news, I managed to get enhanced mobility on MR from 4 points, however no change on daily still at 4 points, i'll take that to appeal!
did anyone get any money for for 4 points is classed for anything what's the point of 4 points if you can't be awarded any money if you have applied 3 times like and they know of these difficulties are permanent why do they keep making people more ill by making them apply to tribunals for mental health patients this can cause adverse effects and more problems to their symptoms to be worsening I don't think I will go to tribunals but tell them I want my case to be herd over the phone and make a huge complaint to the Ombudsman services regards giving less points and back yourself up that way as of a person with health issues big or small it's still an health issue and anyone can apply to pip regardless of working or not what I don't understand is that ive ready if they know you are working they hold that against you, because it showes you can get transport or drive to and from work and you can happily do your shifts at work even if you get a letter from your manager to support you it doesn't count for anything, you have to say that your struggling with work and you cannot function during work hours becsue that's how I feel if they want you to better yourself they should help people so they get stronger and are able to work instead they are not of any help people with mental health issues would be in so much agony if they attended a tribunal as I wouldn't have the strength to go so I would have to also do it over the phone but I would not let them see as this is very wrong its as if they humalate your privacy and personal like they don't care your a human being and you get treated like Alian of some sort, thank fully I had a good person who was kind towards me and I could talk to her, and she was very understanding and said I did really well and I should be proud of myself, at this I don't think I was proud of myself because dwp make the decision and not her, she asked how would I have felt if I had to come to the centre I said I would have felt traumatized by the whole situation I haven't herd nothing back yet only that they have my report now from that assessment I was told that what you write on the form should be the same when asked in the assessment so basically you need to repeat the same stuff or any changes that have occurred during that time gap, I told her I can't remember things and words so can she give me time to explain, she was okay about it. but I felt I didn't expaline well as I wanted because I would have needed longer time to expaline as I was so slow in explaining things after that day till now uts been a almost a weeks I'm still feeling the effects it's so difficult. I do understand people can lie on this form and that's why we get trick questions to catch us out if we are liying but if your medical report has your symptoms on that and you medication no one is lying as she asked one particular question that was based on my medical issue, and she said talk me through that as it was what I put on my form as it adds lots of problems to my mental health and other daily things so after that she moved on to how it effect me. it was very hard to explain as dealing with with explaining when you have mental issues is hard for them to see the whole picture and it's you who goes through the pain and not them so you know how you cope on a daily. I also think they have your past old papers too to compare things not just new information becaue the lady wanted to know my old stuff too as well as my new stuff and how long I'm having these issues. I was asked do I go to the sales at first I thought she meant do I work in sales but she means sales shopping I said if I cant go out and feel the way I do would really want root though sales shopping I would be exhausted. I said I don't need anything other than getting better for the next day so I save my energy. it's all rubbish they system has changed for pip in terms of how they delegate people's affairs and personal stuff they have gone worse, not changed its all thr same the only difference is they are all working from hoke but I think someone was listening to that call as I spoke to the lady because I could hear interference during the call but that's a good things because at least they can hear how you feel as they judge you on that too they test how you react on the phone so that goes against you too by I struggled to speak it was so difficult I had to sit myself on the floor because I was having enxeity and had to bite my teeth to keep answering after the call I was gasping for water and then became lethargic and tired I needed to put my head down as it was very overwhelming and lots pressure so thats why it's not healthy for people to do these assessment who are not well. they just treat it as another benefit and have your doctors and mess information to grant this. would lot less hassle for the tribunals assorsor and the government. appeals are in my opinion a waste of time if you go though appeal some people win after one year it's just ridiculous what if your health goes more bad before they can help you, it's not nice at all for anyone to go through this stuff, I find little tasks so hard to fulfill and kick myself why I can't do them so going to a tribunals is difficult.
@@sharonkour9721 No money 4 points, but I ended up appealing further after MR. Got 12 points for daily and mobility just before the tribunal date they decided to change it before the tribunal thankfully, but i sent in extra stuff like occupational therapist letter with all.my aids that I require, I only got them between the MR and tribunal stage but was a game changer for me.
I've been on dlafor 20 years
A therapeutic keto diet can get rid of the seizures its been used in epilepsy since the 1920s' for this specific problem.
Thanks. I have heard it has helped many with their daily lives - love the name!
I had dla indefinitely, went to over pip and got Turned down
Who is scoring from these constant tribunals?
No-one as far as I can see. When I get the support I need I am a far more stable and happy member of society.. so really if I win, everyone wins. I feel fairly sure this is the case for most disabled people in our country - scoring based on numbers rather than actual affect in human society is inappropriate (to put it politely 🙄)
@@Emilysvisions These tribunal people must be getting paid good money for these farces.
@@tuguybear930 At the top maybe lol.. The people who have to put us through it face to face - I doubt they are being paid much more than minimum wage and having to stick to quotas with heavy pressure from their bosses 😓
I have sent the review form back to them at the beginning of February that is my plan this time to take them to the tribunal I look after my mother and I'm her appointee she suffers with dementia last stage of copd and she has had 7 operations on her legs she's on the wheelchair I don't understand why dwp keep calling her for the reviews every 18 months this is 4th reviews since late 2016 I have emailed mp and forwarded all the medical evidences to them and asking to write on my behalf to dwp which they did it 3 weeks ago we are asking for on-going awards this time if they comeback with fix awards again i will start the process to the tribunal
You are a real hero keeping up the consistent effort - remember to look after yourself and give yourself things you like and need in-between times. It seems so frustrating that this issues are a long time battle between things that make no sense and the amount of stamina we can naturally generate. There is such reduced stamina when facing these stressful things. All I can do is celebrate your work and know that you are learning with every step. Thank you so much for sharing Hooman!
@@Emilysvisions Dear Emily thanks very much I really touched by your kind words! As you know it is very difficult to look after parents with high level of needs since 2007 I am just London ban I can't go anywhere my mother wont stay with anyone else apart of me we try to get help from our local council which it didn't really workout properly but this morning it's look like puzzle has been solved we've new awards letter from dwp this morning they awards my mother on ongoing basis and they said we will be in touch again after February 2031 to see if things are change which is fantastic I was ready to fight it this time but I think they just a bit embarrassed to giving her fix awards I did sent them 649 pages medical evidence last month and mp wrote to them as well when we got the letter this morning I couldn't believe it I read it 3 times this time decision was prerty quick they made the decision in 23 days since they have received the completed review form back, best of luck and best wishes to you Emily 👍
Hi i just had my tribunal hearing few weeks ago and i have recieved a result few days after the hearing took place, i was represented by cab and they believed i had a strong case, however at the tribunal they kept asking me all sorts of questions for example past studies and driving a car which i havent done since being dignosed with mental health, the results came through and they have stuck to assessors report which was 6 points, i assumed i would be given a fair trial even my cab advisor was highlighting points which i should have been awarded for but didnt recieve, im going give it some time before i re-apply the whole procedure extremely stressfull am fortunate enough i have great family support feel sorry for people who have little support
@@tahirmohammed2279 I am sorry to hear that you are facing on-going issue with them just give it sometimes and reapply again they did drive me mad then we've got the result wishing you good luck
@@tahirmohammed2279 I totally agree! It shouldn't really be a battle specifically designed for people who struggle with life already to fight. I am glad you can take some time out and gather your strength whilst surrounded by supportive family. I'm glad people are sharing their stories - I feel reading them helps people who can be very isolated in their experience :(
I'm glad you are OK (not happy exactly?) with your result - you only say you 'won'. You don't say what they decided your extra costs of your disability are - I doubt you're going to get enough to actually cover them, plus: I can't buy what I need (don't know about you?) & I'm supposed to search for the right people & employ them = can't really.
We need accessible & free at the point of use Public Services that are designed for & appropriate for our needs, often; plus lump sums for e.g. new up-to-date PC & bed/mattress, tech & so on = 'not allowed' by National insurance which pays out a measley pittance compared to private insurance schemes & compared to the amounts decided by disability/costs experts for those who win a personal injury legal case here in the UK - which is a pittance compared tho the sums often(?) awarded in the USA for similar injuries+.
I was very injured by NHS medics here in the UK in 2005 then they lied, denied, covered-up, faked my med records and pretended nothing had gone wrong & that I wasn't/am not injured = they neglected all my injuries, so did my GP.
No money can compensate us for all the things we can no longer do & for mega pain & fatigue and so much more; we need everything & everywhere to be easily accessible so we need as little help as possible = independence and choice. All the best to you.
P.S. Mega years of stress with this process - a killer, & without help loads of us can't do it - let alone to present our case the best way possible, I couldn't even though I tried very hard & repeatedly; their questions & 'descriptors' & choices of answers don't fit me and my disability & injuries = not fit for purpose, it's very discriminatory & favours those suffering mostly from mobility difficulties, which I do but they apparently haven't properly understood how & how much (nor loads of the other things I must try to deal with 24/7, alone) even after stupid Tribunal = rubbish & insulting and a mega waste of our limited time & energy - and huge waste of Public Funds = our money; we do not consent to this nor the discriminations against certain groups of vulnerable disabled/ill people and all the extra harms these cause - to all of us indirectly....
Hey thank you for sharing this information.I have a disability and DWP refused me and force me to work.
I want to take DWP to tribunal. How can I start the process ? Do i need lawyer ? which court is it ? Thank you
you look normal to mr with good comunction
Indeed, I save my energy up for videos like these, or luckily grab a moment when I am not experiencing too many symptoms - and then collapse after. I do not make these videos for pleasure.. but rather for the others it seems to help who have similar problems. Perhaps yours are different and so you cannot understand. If that is so it could be seen as a type of un-ability itself and I therefore have sympathy for you!
@@Emilysvisionsignore the pratt
@@bnapblacknewsandalternativ1489 yeah, he is not my dr 😉
@Emilysvisions l make videos UK based l had cancer this year...suffer from depression... but l don't show it. Thank God he is not on your tribunal. Like yourself, l always psyche myself up and ignore these low-life 🪱
Yes I have a brain condition AVM of the brain
How did you get evidence of your brain injury? Please get back to me have a similar issue and I’m getting an mri for it
No offence but why can't you work with your condition
Because I have seizures that pretty much shut off my brain three to four times a week, which can take a day to recover my consciousness and energy from. (Some have longer effect but in general they are like that). Such situations would be pretty frustrating for an employer (even if you decided to leave any concern from my experience out of it). I managed to find a window of energy and ability to record this video for the sake of those who can empathise with this condition and situation. To return the 'non offence'.. I am actually pleased for you that you find it hard to imagine just how disabling it is! Though it does explain somewhat why MANY disabled people who are struggling in the world find it hard to survive, get their perfectly innocent needs met, and feel confident within what can be an impossible situation!
@@Emilysvisions I'm in a wheelchair and dialysis and I don't get pip I know what disability is Emily but I do think that for your disability to be questioned is valid...no offence
@@Emilysvisions may I ask the name of your condition
@@draftycash3492 it is quite usual for humans to assume things about each other and no guarantee that they will see things eye to eye. I shared my experience here to help others through making this whole process more visible (rather than wishing to be interviewed further). I am sorry you have not got PIP, it sounds like you should be, but our disabilities are very different and I think it is important to avoid being competitive! I have been on disability benefits for a long time (DLA before PIP). I still have to fight hard to retain them and once won I work hard to recover my fitness and help others as much as is possible for me as an individual :) It is a little offensive to ask personal questions on a public forum, some people would be quite upset! I won't be asking you for personal details either but wish you well on your journey.
@@Emilysvisions I ain't applied for it....i still work, I was just curious about your condition, you said ya brain stops working, I thought when that happened you died...what is the name of the condition you have?
all those vids are crap its all changed coming for you all but you ain't seen nothing yet and when you think you have you aint
Cheers Keith but the video is about something that actually happened in the past - i.e. lived experience. Whether you like it or not there is nothing crap about that 🤣
My dad was rejected won his appeal my mum was rejected won her appeal what a bunch of scumbags im thankful I work full time cus I dont want this shit ...congratulations