🇨🇦. Rushed to emergency at 60 years old with sepsis was advised to sign a DNR at that time. Endometrial cancer was discovered. I am still being impacted by dealing with complications from treatments five years later. I am at home though and that’s great! Judy.
Diagnosed at 53 yrs old with endometrial cancer. I am now 661/2 yrs old. Biggest long term side effect is peripheral neuropathy ( killed nerve endings) from Taxol and Carboplatin chemo). Also lymphedema in lower extremities and pelvis from lymph nodes (28) removal. Also have Levitor Ani syndrome either from surgery nerve damage or from pelvic radiation treatments or brachy therapy ( intra-vaginal) radiation. Lots of residuals but thankful to have survived all these years.
I was diagnosed with the exact cancer and stage that Manda had at the same age too which is kind of interesting. It was June 10th 2021 when I was diagnosed with Stage 2b Hodgkin's lymphoma at 19 years old. My oncologist gave me ABVD chemotherapy and I was on and off it every other week. I eventually went into remission on January 1st 2022 and stayed in remission for nearly 2 years. it wasn't until November or October of 2023 that I started feeling the same tightness in my chest. I was downward spiraling into panic when I noticed how I started to itch the same way I did in 2021. Turns out it was back, thankfully with no b symptoms. I started treatment again a couple months ago and I'm about to get my Stem Cell Transplant in a couple weeks. Right now I feel pretty optimistic that this cancer won't cut my life short but I've been really on edge thinking if I'm gonna go into remission again and relapse a third time. I wanted to see another person's experience to reassure me that maybe I don't have to worry as much. But it's been hard mainly due to a pain in my throat that feels like a lymph node and some pressure on my lower part of my rib cage. No matter the high survival rate of this cancer, my anxiety can get through the roof. "Nothing is ever guaranteed" I think to myself "Its 98% not 100%". Cancer is hard, EXTREMELY hard no matter how survivable it is. Feeling a pain and knowing that it is this sickness sitting in my body is extremely uncomforting. And the intrusive thoughts that come with are very much hard to handle. But it was reassuring hearing Manda's story and knowing that I could very well be 39 just like she is in this video. All I ask for is that this will be the last time I ever see an oncologist for anything in my entire life. That's how I know I made it.
Have you interviewed teenage patients before? I’d like to see how they got through high school during treatment because I’m almost done with mine and trying to start the next chapter of my life by finishing high school without having been in school for several years.
Mimi, First, thank you so much for watching. I think that would be a great topic to cover! Would you be willing to share your story with The Patient Story? If so, please reach out to community@thepatientstory.com
How old were you when you got your cancer diagnosis? How did it impact you? Leave us a comment below 👇
I was 15, I’m 17 and still impacted
29. 4th treatment is tomorrow. feel like my life has been put at a halt.
48. 7 months with a working HL diagnosis, 3 surgical biopsies and another tomorrow. just the diagnosis and inability to pinpoint has crippled my life.
My son was 9😢 .....doing good now though
🇨🇦. Rushed to emergency at 60 years old with sepsis was advised to sign a DNR at that time. Endometrial cancer was discovered. I am still being impacted by dealing with complications from treatments five years later. I am at home though and that’s great! Judy.
Judy, that is great to hear! We will be thinking of you. Thank you for watching!
Diagnosed at 53 yrs old with endometrial cancer. I am now 661/2 yrs old. Biggest long term side effect is peripheral neuropathy ( killed nerve endings) from Taxol and Carboplatin chemo). Also lymphedema in lower extremities and pelvis from lymph nodes (28) removal. Also have Levitor Ani syndrome either from surgery nerve damage or from pelvic radiation treatments or brachy therapy ( intra-vaginal) radiation. Lots of residuals but thankful to have survived all these years.
Thanks for all the hard work you do in sharing these stories
A brave and sweet young Lady
Wishing her all the best
I was 15, I’m 17 and still being impacted. It’s ALL
This story was so touching!! It ended in the best way possible!!
I was diagnosed with the exact cancer and stage that Manda had at the same age too which is kind of interesting. It was June 10th 2021 when I was diagnosed with Stage 2b Hodgkin's lymphoma at 19 years old. My oncologist gave me ABVD chemotherapy and I was on and off it every other week. I eventually went into remission on January 1st 2022 and stayed in remission for nearly 2 years. it wasn't until November or October of 2023 that I started feeling the same tightness in my chest. I was downward spiraling into panic when I noticed how I started to itch the same way I did in 2021. Turns out it was back, thankfully with no b symptoms. I started treatment again a couple months ago and I'm about to get my Stem Cell Transplant in a couple weeks.
Right now I feel pretty optimistic that this cancer won't cut my life short but I've been really on edge thinking if I'm gonna go into remission again and relapse a third time. I wanted to see another person's experience to reassure me that maybe I don't have to worry as much. But it's been hard mainly due to a pain in my throat that feels like a lymph node and some pressure on my lower part of my rib cage. No matter the high survival rate of this cancer, my anxiety can get through the roof. "Nothing is ever guaranteed" I think to myself "Its 98% not 100%". Cancer is hard, EXTREMELY hard no matter how survivable it is. Feeling a pain and knowing that it is this sickness sitting in my body is extremely uncomforting. And the intrusive thoughts that come with are very much hard to handle.
But it was reassuring hearing Manda's story and knowing that I could very well be 39 just like she is in this video. All I ask for is that this will be the last time I ever see an oncologist for anything in my entire life. That's how I know I made it.
Prayers
Have you interviewed teenage patients before? I’d like to see how they got through high school during treatment because I’m almost done with mine and trying to start the next chapter of my life by finishing high school without having been in school for several years.
Mimi,
First, thank you so much for watching. I think that would be a great topic to cover! Would you be willing to share your story with The Patient Story? If so, please reach out to community@thepatientstory.com
@@ThePatientStory ok, I submitted my story survey