didn't make it thru the entire video. but here is what happened: i was a very good high school cross country and track runner, near state champion. amazingly, from age 17 on, at which time i also needed glasses, my track times progressively and mysteriously deteriorated. although i won a college race, i knew something was wrong. i cannot run at all since my 20s. i never thought about it much, as had professional, non physical jobs. but medicare age, +65, have had 3 retinal detachments. "marfan syndrome" by mayo clinic lays out my symptoms exactly: RRD, lens dislocation, slender build w long limbs, crowded teeth w braces at 15 all indicating a collagen deficiency (see collagen by cleveland clinic). i prob have stickler's disorder, one of +200 connective tissue disorders. it would take a $1500 genetic test to confirm this which i prob won't order. i can still breath fine, and for me, it is best not to think too much about it.
I have LoeysDeitz syndrom, another of those 200+ connective tissue disorders. My local hospitals would not test for less than $1500 per test as you noted. But I was able to find a lab on line that would do the testing for only $56. I had my local hospital draw the blood. They packed it in dry ice for me. I had to pay to overnight the sample. But they were able to test for much less. That was 10 years ago but I am sure that you may be able to find a cheaper lab if you shop around. I had to get quotes from 20+ labs before I lucked out. The lab was in Massachusetts but well worth the search.
@@vaughnnaber1079 thanks so much for the tip on the testing. i will try shopping around for labs. a diagnosis would explain just an awful lot of things about my greater family
Me gustaría información tengo un niño con autismo. O y recientemente te diagnosticado con loeyz Diets
didn't make it thru the entire video. but here is what happened: i was a very good high school cross country and track runner, near state champion. amazingly, from age 17 on, at which time i also
needed glasses, my track times progressively and mysteriously deteriorated. although i won a college race, i knew something was wrong. i cannot run at all since my 20s. i never thought about
it much, as had professional, non physical jobs. but medicare age, +65, have had 3 retinal detachments. "marfan syndrome" by mayo clinic lays out my symptoms exactly: RRD, lens dislocation,
slender build w long limbs, crowded teeth w braces at 15 all indicating a collagen deficiency (see collagen by cleveland clinic). i prob have stickler's disorder, one of +200 connective tissue
disorders. it would take a $1500 genetic test to confirm this which i prob won't order. i can still breath fine, and for me, it is best not to think too much about it.
I have LoeysDeitz syndrom, another of those 200+ connective tissue disorders. My local hospitals would not test for less than $1500 per test as you noted. But I was able to find a lab on line that would do the testing for only $56. I had my local hospital draw the blood. They packed it in dry ice for me. I had to pay to overnight the sample. But they were able to test for much less. That was 10 years ago but I am sure that you may be able to find a cheaper lab if you shop around. I had to get quotes from 20+ labs before I lucked out. The lab was in Massachusetts but well worth the search.
@@vaughnnaber1079 thanks so much for the tip on the testing. i will try shopping around for labs. a diagnosis would explain just an awful lot of things about my greater family