Recently diagnosed and trying to better understand MM, whilst at the same time trying to emotionally process the diagnosis and prognosis, so this is so helpful thanks 🙏🏻
A number of posts below (i.e. entered before 07/07/24) mention that "... my oncologist has not explained all these options ...". My experience is that it is extremely important to have MM specialist looking at your case. Not just an oncologist or a transplant specialist or a hematologist but somebody whose main focus is multiple myeloma. I understand that a smaller hospitals may not have such people. If this is the case try to find somebody you can see 3-4 times per year in a larger city/hospital or even somebody you can meet on line. The point is that MM is an area of very active research, there are dozen (or more) options to go with, new drugs are approved every year and not every doctor has time to follow it up.
Relatively healthy female over 60 y/o, with Bone Scan results without signs of malignancy in 2022, and no evidence of malignancy in an abdominal MRI......first jab= abdominal pain diagnosed as diverticulitis sent home with antibiotics......second jab= severe abdominal pain diagnosed as diverticulitis, no fever, sent home with antibiotics....pain persited went to ER , abdominal CT scan showed perforated diverticulitis and was sent for surgery, colostomy was performed......4 months later colostomy was reversed and surgeon found many adherences, woman recovered but later presents severe episodes of lower back pain and skeletal survey study shows compression fracture on L3 and "oil drops" like spots on skull, labs results show Immunoglobulin Gammas, kappa chains and M protein high picks so bone marrow biopsy performed last week....todays diagnosis is multiple myeloma😢
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Very informative,thank you
Recently diagnosed and trying to better understand MM, whilst at the same time trying to emotionally process the diagnosis and prognosis, so this is so helpful thanks 🙏🏻
Unfortunately, my oncologist hasn't explained all of this to me, so the information was extremely helpful...thank you 👍
A number of posts below (i.e. entered before 07/07/24) mention that "... my oncologist has not explained all these options ...". My experience is that it is extremely important to have MM specialist looking at your case. Not just an oncologist or a transplant specialist or a hematologist but somebody whose main focus is multiple myeloma. I understand that a smaller hospitals may not have such people. If this is the case try to find somebody you can see 3-4 times per year in a larger city/hospital or even somebody you can meet on line. The point is that MM is an area of very active research, there are dozen (or more) options to go with, new drugs are approved every year and not every doctor has time to follow it up.
By "Transplant", what are you transplanting?
Bone marrow
Stem cells from own patient's bone marrow
Relatively healthy female over 60 y/o, with Bone Scan results without signs of malignancy in 2022, and no evidence of malignancy in an abdominal MRI......first jab= abdominal pain diagnosed as diverticulitis sent home with antibiotics......second jab= severe abdominal pain diagnosed as diverticulitis, no fever, sent home with antibiotics....pain persited went to ER , abdominal CT scan showed perforated diverticulitis and was sent for surgery, colostomy was performed......4 months later colostomy was reversed and surgeon found many adherences, woman recovered but later presents severe episodes of lower back pain and skeletal survey study shows compression fracture on L3 and "oil drops" like spots on skull, labs results show Immunoglobulin Gammas, kappa chains and M protein high picks so bone marrow biopsy performed last week....todays diagnosis is multiple myeloma😢
I pray you are doing well ❤ I'm sorry for your diagnosis,do hang in there.😢