Thank you for watching! For those of you who want to know how I treat my migraines I just posted an updated video about this: ruclips.net/video/Dx1-MVwb1sU/видео.html. and I also have a Migraine Playlist: ruclips.net/video/OjKH46ABLx0/видео.html
My newest video on migraine is about how to avoid getting headaches and migraines from your perfume. Please check it out if that’s something that interests you ruclips.net/p/PL-gd5jNQbBGiO_K1EMFq9bXZOAPQBdwRw&si=4D-Ir3f9M1M93_NS
My deepest empathy as I also suffer from it. It is a lonely desease because no one understands struggles to mantain a normal life. I am started to call it my unwanted friend came to vissit. The worst is the inability to go to work while having one. It has a great impact on my life. I lost jobs due to it. Afraid to drive be cause not knowing and how severe the incident will be. Currently walking with a cane due to balance issues and have a permenant lisp and frequantly have hand tremmors. It is quit embarassing when you have one in public as you look like a imbecile.
I’m also a RUclipsr suffering with Hemiplegic Migraines, and chronic migraines. It is good to know we are not alone. Thanks for sharing your story. I can totally relate to the driving and loosing the brain and it is so very scary. @gain, thanks for sharing.
I am so sorry to hear that we have some of the same struggles and I definitely have been conflicted about sharing on the internet so very glad to hear that this made you feel less alone
Do you have your migraine pain in n the upper body so confused as neurogist says it's this type of migraine especially with me having normal type 25 years ago.the rhumo says it's fybromyalgia
Thanks you for sharing! I have HMs and was diagnosed a few months ago after a year of being bedridden. I thought I was dying for several months. I don’t know anyone who has it! Most people think I’m “emotional” or overeating unfortunately. I have all the symptoms you mentioned.
I’ve gotten a lot better over time. There is a big difference between having a medical condition that is untreated and one that’s more or less managed. Things can get a lot better ❤️ Are you seeing a neurologist now?
Thanks for sharing your journey with HM. your journey sounds very much like mine and I actually feel a sense of relief when I hear stories like this. Obviously I am very sorry you suffer with these awful migraines and the symptoms that come with them. But, meeting people like yourself who know exactly how it feels. No matter how much support we have with family and friends, we still feel lonely and find it so hard to socialise amd work. I have had to stop working as a personal fitness coach as my cognitive function is awful with daily brain fog. I've taken a few months off to see if I can get my symptoms under control. I also have the diagnosis of FND which I find hard to accept. I always believed, like you, that I have MS or something like that. But I'm still within the process of diagnosis for other illnesses I believe.. Again, thanks so much for sharing your symptoms and I really hope.yoir symptoms have improved lately? Chris
Just lost my mum to severe ms I have fybromyalgia or migraine IBS.the link for us both is hypomobility hsd or eds still awaiting testing and that includes Asperger's add which found out I have since sons diagnosis though my father had CFS now ok was his thyroid.seams Asperger's add were prone to all these things
I definitely find the headaches were easier to deal with for me. Originally as a teen, I had the headaches, but as I got older it turned into exclusively aura and stroke symptoms. While the headaches were agonizingly painful, they didn't impact my ability to work, drive, etc to the same degree as the stroke symptoms and aura. Sometimes I got almost completely blind for hours so I can no longer drive unfortunately.
Sending hugs and strength from afar. You should check out my migraine playlist especially the videos on giving up coffee and how I treat my migraines now. I still get migraines but way less and have not had a hemi plegic one in over a year
Hi, my name is Alicia, i started having these types of migraines at 15 years old at 30 I was diagnosed with MS. And until i heard your video it was never mentioned to me that the two might possibly coincide...but I had always felt that they had to be related. Thank you so much for humbling yourself to become vulnerable enough to share this part of your life with us. You shed some clarity for me to day and that is worth more than I can explain, just to finally know I'm not crazy or trying to embellish on my illnesses which unfortunately I do have some people who treat me as if I am exaggerating my condition. I've learned you can't fix stupid and inoray they never go through it. Stay strong sister. You've got a new friend through me if you'd like.
Sending hugs and strength. I’m surprised that no one made the connection because one of the first things my neurologist did was send me for CT. I had one MS type lesion at the time so he said you don’t have MS but you don’t not have it b/c MS basically means multiple lesions. I was basically told no alcohol, no coffee, no processed foods and to exercise and to keep My weight under control. Unhealthy habits might push me into having diagnosable MS or autoimmune disease
My mum has severe ms hypomobilty Asperger's am sure as myself undiagnosed yet.but I have migraine pain shoulders armpits 25/7 neurologist says I have this.rhomotologist says it's fybromyalgia same pain as migraine to me with no headache
Your story sounds exactly like mine! My first two years of dealing with this the neuro thought I had M.S.! My breakthrough occurred when I had an episode at work and they called an ambulance and the hospital diagnosed me with a TIA. My neuro came back and diagnosed me with these special little migraines
I don't feel you overshare! I love your videos and your realness! I was thinking of doing a video about not fitting in, in life LOL! I think that sometimes certain people cross our paths for a reason! I am glad you found your new friend. Yes I am not very trusting! Yes I would love to hear more of your story! X
Go for it! Sometimes when we share we actually feel so much less alone, and people who are going through similar things feel the same. I have definitely found that people who grew up in cities or who have had some pretty negative experiences have a harder time trusting people and there's nothing wrong with that. The only thing is that by not sharing you sometimes become more isolated and impacted by stresses in your life. Putting some trust in other people makes it easier for them to trust us and trust is basically the foundation that allows relationships to grow and flourish.
Wow your story resonates with me.I am still waiting for a diagnosis but this makes so much sense.The other day I collapsed with stroke like symptoms.I have been dealing with my left side very weak since November.I really thank you for sharing this
Hi ya from Australia. I have FHM. Thanks for making this video and increasing awareness. Can’t tell you how many times people assume I just get really bad headaches. I have FHM but I have also had common migraine episodes too. I’ve almost always got symptoms of the HM daily though. It’s a lot to deal with and it’s made easier when others understand more accurately what the symptoms are.
Sending hugs and strength from afar. FHM episodes are really scary and I also get other types of migraines. They’ve definitely affected my entire life and changed my path. Its harder to deal with sometimes and other times I’m okay with it
I am also a hemiplegic migraine sufferer. The worst part for me is the loss of speech and not able to remember peoples name or places. It scared me to death. I pray that you find relief and get through this. My Nero started me on veparmil but idk if it’s working yet because it’s only been a week. I have also been researching devices such a gamacore or STM’s devices that u can use to help with aura.
I agree, the speech and memory component isn’t just unpleasant, it’s potentially VERY unsafe.Things have gotten a lot better. I still get migraines but they are far less severe and fewer migraine days. Botox is something that a lot of people agree has helped them. If you pay for it out of pocket even one time before it’s approved by your health insurance then it’s impossible to get approved for your migraines so I suggest talking to your doctor and finding out from the health insurance what will qualify you for Botox treatment
Thank you for sharing because i too am a hemiplegic migraine and it has been so bad it is hard to explain to other people when you just want to be alone when mine come on i get very scared not remembering things can't focus
i’m so sorry you have to deal with migraines. i can’t imagine the pain & how it can affect your plans or daily things you need to do. i don’t have it but my brothers & mom do, & i see how it affects them. thanks for speaking out on this so others can understand you & spreading awareness is always good 🤍
It's also very hard on close family but in a different way. I'm sure really it's really hard for you to watch people that you love suffer, and not be able to do anything about it. Sending you hugs from afar
Loved this video! I am so glad that we found each others accounts. Following along with your journey has helped me tons especially just feeling like I am not alone and my feelings are valid. You have been the first person who understands the symptoms and feelings migraines can give you and its relieving knowing it's not just me. You are helping so many people with these videos! Keep it up! As always, sending my love! ❤️
@@annaswanson5903 Lately, I have been doing a lot better which I am so thankful for, but there’s always something a little off! Still working on figuring it all out! Thanks for asking!
@@aleextinsleey that’s great 🎉🎉🎉 You move to Hawaii right? Do you thing the change in pace or weather has helped? And yeah, I totally know what you mean by feeling better but something is always a little off. Sending hugs and prayers from afar 💜
@@annaswanson5903 I did move over there for a few months but I am back home for the summer. Not sure what’s going to happen after, but just gonna go with the flow! I do think being there helped them so maybe it it weather and elevation! Crazy how those things can totally affect you!
@@aleextinsleey Wow! That must have been a good time! I've heard you get Island fever so I am sure that it is also nice to be back home. Are you still going to UC Davis in the Fall?
Thank you for posting this video. You really explained the nature and extent of disabling factors that accompany migraine. It’s more than a bad headache.
I found out in 2018 that i have hemiplegic migraine.I am glad to hear u can do things even tho are difficult.In my case i had an attack and after that attack i never been the same.I cant walk more than 20 stept by myself i cant stay in light or hear people talking loud.I wake up every morning paralised i cant move at all my left arm and face are completely shut down.I often fall down on stairs and i lose concious.For some people gets very bad.I hope u keep it like that or recover completely
Hi dear, this was such a good video. I can completely relate. It sounds like we had the same type of migraine, it is severely debilitating. It for so bad for me at one point that my neurologist sent me to the hospital bc I had stroke symptoms and involuntary eye movements. Mine were supposedly brought on by head trauma and were made worse by stress, my life was super stressful at the time. I was referred to a physical therapist who specialized in migraines and it decreased them to about 1 per week. I could always tell when I was about to get a migraine bc I would become really confused beforehand, I actually forgot my husbands name once, again, your story sounds super familiar. The memory issues and brain fog would last for days to weeks afterward, I was in graduate school at the time and it made everything really hard. I also had a similar experience with some people not understanding and being very offended and rude. I was in a group project (which I completed early btw) but lost control of my eyes while I was driving to our meeting. I had to pull over and ask Siri to call my husband who took me to the hospital where I stayed for 3 days being tested for stroke, tumors, seizures, etc. he also texted the people I did the project with for me to let them know what happened. While I was in the hospital, one of my group members complained to the teacher that I wasn’t participating. 🤦🏼♀️ and we were in grad school to be counselors, to this day I truly hope that person is not actually a counselor, I don’t see any evidence of empathy in her. This is a great resource, I don’t think a lot of people Realize how lonely migraine life can be. Mine COMPLETELY went away when I started having kids. I actually showed up to my neurologist appointment, I went every three months and told her I hadn’t had any migraines in the last month. The first thing she asked is if I could be pregnant. I said “no” and had no idea that I actually was. Lol so I will probably control the migraines hormonally after this pregnancy. We aren’t having any more kids which means the migraines could come back, but can clearly be controlled hormonally. I will probably try the ear piercing. So sorry you are going through this, thanks for sharing your story!
@@annaswanson5903 wow what an interesting article! I’ve heard Botox works really well for controlling them. I never would have imagined that my migraines would go away, I for too a point where I didn’t remember what it was like to not have a migraine. I was ALWAYS either having a migraine or having the resulting soreness And stiffness from one that I was coming out of. And I felt the same as you about the kids thing. Chad and I had not been able to have kids and when I started getting migraines I didn’t think we would be a good fit for kids after that, since I was so debilitated. It’s crazy though how our bodies work. We got unexpectedly pregnant with our first daughter and I could feel myself “having migraines” while I was pregnant with her (it’s like I could feel my brain doing what it would normally do during a migraine) but it wouldn’t be debilitating.) And since having both kids I have had 1 within the first month of having each child and it is severe at first but goes away very quickly and doesn’t have the same headache hangover that I would have before. Your hormones go a little crazy after you have a baby, just trying to reach a balance again, so I think that’s probably why it happens. I would also have neuropathy and have had NONE since having kids. It can be scary if you want kids to wonder if migraines will get in the way. I feel that I have been exactly where you are in many ways. Our surprise pregnancy really fixed everything foe me, And then breastfeeding afterward. I hope you find peace with this and get everything you want Anna!
@@MentalHealthMom Botox definitely helped me A LOT and it also becomes more effective the longer you've been getting it because it builds up in your system BUT you can't have injections when you're trying to get pregnant or pregnant because it's a neurotoxin. Thanks so much for your kind words, they are definitely very comforting. I am a big believer, I think that my faith has helped me a lot whenever I face difficult things and I really feel like things work out. There are good things that have come from experiencing migraines and I may not be able to see if I'll be a parent or what that's gonna look like, but if it is meant to be it will be. I could also be a foster parent or adopt an older child so I don't feel stressed about it but it is definitely an important thing I'm thinking about
@@annaswanson5903 yes I knew it couldn’t be taken when trying to get pregnant, we were about to try Botox then I got pregnant. Your mindset and faith truly are inspiring! And you are right, things will definitely work out for you beautifully
I’ve recently finally found out my symptoms are most likely hemiplegic migraines too. It’s great to hear and be able to relate to someone elses experience with similar symptoms so thank you for sharing xx
Sending you hugs and strength from afar! It’s not an easy thing to go through and it’s good to know we’re not alone. Have you found anything that helps with the migraines
@@annaswanson5903 nothing just yet. I’ve downloaded the migraine buddy app to try and find all my triggers and so early stages. I’ve had migraine with aura since I was 8 yrs old but they’ve obviously got much worse over the past 12 years and more so since feb this year x
@@flourishthesoulacademy that’s exactly what happened to me. I think hormones for me are a big factor and being on birth control didn’t get rid of migraines but did help
Thank you for sharing. I have migraines with aura, my last ones I had the same kind of brain fog and difficulty speaking and recalling names. I’m am going to make another appointment with a neurologist. I feel dehydration and lack of sleep play a big part in bringing on mine. I have been reading about how magnesium plays a big role too. Thank you again for sharing, I’m glad I found this video.❤
I just want to say thank you for saying that part about forgetting names. Im so bad with it. I've got hm, and the auras are so varied. some days I'm so cloudy.
@@annaswanson5903 i was just diagnosed a few months ago, and it was really nice to hear from someone else that also has hemiplegic migraines, so few people have it. My doctors are clueless about it, I dont know anyone with it. Its nice to hear about your experiences.
@@annaswanson5903 I hadn't started to suffer from the regular auras until the last few years. I experience auras multiple times a day right now, and its been miserable. They're always followed by headaches. 1-4 times a day.
I HAVE HAD HEMAPLEGIC MIGRAINE SINCE I WAS 9YEARS OLD .AM NOW 52 AND IT KEEPS GETTING WORSE. I WONT SAY AM HAPPY OTHER PEOPLE HAVE THIS TYPE OF MIGRAINE. BUT AM GLAD OTHER PEOPLE UNDERSTAND .FAMILY KEEP TELLING ME JUST FORGET THE HEADACHE AND GET OVER THIS .I GET REALLY DEPRESSED ABOUT MY MIGRAINES IT MAKES MY LIFE SO DIFFICULT.
Yikes!! 😳 I am very cautious about driving and avoid long drives and I honestly have had this fear in the back of my mind. That really sucks! What are the steps for getting your license back? What state are you in?
@@annaswanson5903 My neurologist and my eye doctor both documented i am ok to drive. i sent these documents to DMV. DMV still refuses to reinstate my license. Now i hire an attorney to help me with the appeals process. . i suffer from this type of migraine since i am 15 years old i am 57 now .i am a male. .most of my female relatives suffer from it i get this type of migraines rarely once every 6 years
Hi Anna..thank you for sharing this. I only get these every now and again and the worst symptom for me is to feel like my head is being drilled. The only thing that works is trying to sleep in the dark but it makes me feel so nauseated. Im sorry it has impacted your social life so much and the symptoms. . I didnt know how many other symptoms can occur with migraines. Much love to you, you are such a strong person 💗
Sending you hugs and strength from afar. I can't imagine that it is that easy to get a quite dark sleep with all the munchkins running around your house. Migraine nausea to me also makes it so much harder to walk around or sit up when I have a migraine. Have you ever tried Pepti-Calm for it? I sometimes take Pepto Bismol and it works almost instantly
Great to watch your video, l suffer hemiplegic migraine as well as cluster headache and bilateral cluster headache. Yes, they get you down, especially the paralysis...work are supportive but it's embarrassing to have this and having to go to A&E to rule out stroke.
My very first migraine at the age of 12 was a HM. The right side of my body went numb and I fell down the stairs trying to get to the principal’s office. I also get aphasia, visual disturbances, weakness, inability to read and comprehend, pretty severe confusion and tinnitus. Since that first one, I’ve had common migraines, migraines with aura, hemiplegic and ocular migraines. I’m 40 now 😑 These experiences are nothing short of traumatizing.
@@annaswanson5903 They are very inconsistent. Every 6-12 months as a teen, then less and less frequent. I’ve had one recently, and the previous one was 6 years ago. Pretty tough to nail down a trigger 😐 Still super scary, even though I know what’s happening and what will come next in these auras.
I am 61 and have had migraines since I was 11. The Hemiplegic Migraines showed up 21 years ago, it took over a year before I was diagnosed, yes, still to this day am treated like I am faking this illness and have been through many horror stories. Yes, I to have had confusion, I have trouble with words I know how to spell it, see it in my minds eye, I can't say it. I did have a head injury and my doctor said that it was not a cause of this. My doctor is at the Mayo Clinic, Rochester MN, Dr. Cutrer, coo- t- rear. I have been shunned by my family and was accused of faking my illness so I wouldn't have to be with my husband at hospice, yet no one drove the 2 hours up and back from the Mayo Clinic, cooked and froze food, the list goes on. I didn't fake my illness, I am all so a diabetic and have anxiety, trying to keep it together as my husband had cancer and knowing there was no cure only to find that it would go into remission so he would live longer.
Hi Anna, I'm a 10+ year migraine sufferer and was diagnosed with Hemiplegic Migraines in September 2021. My migraines were absolutely awful and were always in the same area, they were constant then I'd get a few weeks off them then they would return with a vengeance. Out of nowhere I suffered a Hemiplegic migraine, I had no idea what was happening to me, I was talking to a parent at my sons school once I had dropped him off and I lost my peripheral vision and I thought " what the hell is going on? Am I extremely tired ? " so I managed to drive home then things got gradually worse, the left hand side of my body became completely numb and I could barely speak. To top that off I was alone, I managed to phone an ambulance and made it to the hospital. So long story short I had a few more Hemiplegic migraine episodes which each sent me to hospital as they were so severe then I was prescribed Topiramate which has completely stopped my Hemiplegic migraines and my normal migraines. I still can't believe I don't get headaches anymore its so strange, I'm so glad I haven't got a Hemiplegic migraine since I've started the medication. I cant deny it but I do live in some fear that I will start getting them again but I'm hoping that day never comes. I hope if you try Topiramate it works as well for you as it has for me. William
Wow! That sounds very scary! I have been getting botox for 3 years now and that has helped tremendously. I am currently looking into getting a good abortive medication because I still get migraines but I have also a lot of lifestyle changes that helped a lot. I don't drink alcohol or coffee anymore, or eat aged cheese, etc and I meditate and exercise regularly. All of these things have helped me a lot!!
For 6 years I went to the doctor with hemiplegic migraines and they said come back if it gets worse!!! Which it did and I did but they just repeated it.
I am so sorry you had to go through this, truthfully I think a lot of doctors are not educated enough on migraines or other common headache disorders. Most people think that migraines are just used as an excuse not to do stuff which really makes me mad.
I had symptoms for at least 15 years. I have been to 12 different Neurologists and to supposedly the best hospitals in the United States. It wasn't until the 12th Neurologist that happened to have another patient with hemiplegic migraines, that I was diagnosed. I believe mine are from repeated head and neck trauma from driving truck for 35 years. Monthly Emgality has reduced the severity of the episodes, but still average 15 a month. I hope this is legible, because I am on day 2 of symptoms, because of a storm passing through. God bless everyone with this terrible disease.
Sending you hugs and strength from afar, I can imagine how much that truly sucks. Do you find that you're also not feeling great leading up to and after the main migraine attack
I been really scared of these symptoms because thought I was dying, I been having one side of my body numb and feels like I'm having a heart attack or a stroke, been having painful numbness on neck, arm and leg along with unsteady vertigo, which the symptoms are terrifying and only had , I never experienced something like this before I'm glad I'm not alone on this, will it go away on its own?
Hi Delepent, sorry it took me a while to respond. I think everyone has their own experience and what works for me, may not help everyone. Personally, I feel it's very important to figure out what is causing you to have migraines and seeking medical help is important. I also think that diet and exercise are very important. I honestly believe that giving up coffee and alcohol and exercising every day was super important for me. I am sure this is likely not what you were hoping I would say. I am sorry that you are going through this but I haven't had hemiplegic migraines in several years so it is possible to stop having them but it was a lot of work for me
Aw Anna I'm sorry! My momma really gets bad migraines I don't think that she gets the same as you but hers are pretty severe. She ends up in the E.R to get some sort of shot. And I want to say she was on a medication called dopamax or something like that. I'm so sorry you have to deal with it. I'm glad you have support there for you. I'm praying for you girly ! 🙏
@@annaswanson5903 thank you I appreciate it! Hey I'm waiting to hear back from a few girls about sharing their testimony are you still for it for July?
@@JamesandMercyDavis Hi Mercy, I would love to and I am sorry about the delayed response. I am actually an orthodox christian, I was married in a byzantine church and I just want to share that with you before participating
@@annaswanson5903 Hey Anna I don't really know much about Orthodox Christian. I guess I just call myself a Christian I know there is so many denomination out there. Id love to hear your story I'm trying to figure out a date if you wanna email me I can't talk more there 💞
@@JamesandMercyDavis I think it’s 90% the same but the main difference in ideology is that the Gregorian church believes Jesus is fully divine and fully human, in one physis. While historically a major point of controversy within Christianity is that many churches believe that the humanity and divinity were two different natures. BUT, the difference between the two Christological formulations is essentially semantic and does not reflect any significant difference in belief about the nature of Christ. They also emphasize the apostolic nature of the church because they believe that this means the authority of the church comes directly from Chris through the apostles
I didn't want to sound overly dramatic but migraine sufferers are supposed to go to the ER when they have attacks to make sure that it's not a heart attack or stroke
Hi Your vids really helpful thanks for sharing , Ive been using migraleve and kelp and fever few with essential oils to cope ..I hope all is well with you Jay
Thanks for talking about this. It was the same for me sometime in my early thirties they got way more frequent. Luckily I only have them once in a blue moon but they’re always pretty scary. Hope you’re managing them and living well.
Gosh sorry to hear that! I’m still getting migraines and they’re less frequent. I’ve realized that I have a slow thyroid and slow circulation so running daily has been a huge help. Still trying to find an abortive medication that works.
I'm in the midst of an attack now. It's going on day 7 of slurred speech, right arm/hand weakness, tiredness/dizziness, and back/neck pain. I'm exercising daily and using heat. I'm not sure what else to do. I don't want to take drugs. I only get these about once a year.
My son has been given a working diagnosis of this recently. It was terrifying for us all. He lost use of limbs, slurred speech which then went all together, difficult to swallow, and very deep slow breathing. When he eventually came round he didn't know us or himself for a good hour after then vomiting and light shyness. He is 14.
I’m so sorry 😞 I still get migraines but I’ve now gone years without another hemi plegic migraine so please don’t lose hope. Some of the best advice I could have gotten was no alcohol, no caffeinated coffee and minimal or no caffeine, no processed foods and that I needed daily exercise. Lifestyle changes and meditation are both important. Nerve block medication is easy to get approved as it’s considered safer than Botox and it’s very effective. You’ll have to work with medical professionals to find effective treatments but there are a lot of options.
@@annaswanson5903 thank you for your reply we are in the UK so right now we've been told wait and see what happens, bless him he has cochlear implants is being investigated for autism and was born with an under developed left hand, he's been through so much and now this he is so loved and I'm so proud of him. He swims for a local club and trains with a national para- development squad which helps him with anxiety etc. Again thank you for your reply x
I was just diagnosed with this today I do not get migraines very rarely I get them I do have numbness and tingling in my arms hands feet and legs brain fog and vertigo do you always have the migraines with all of these symptoms or no? I'm seriously starting to wonder if I have this or it could be something else thank you for your video it is very knowledgeable
Sorry to hear that you’re also having bad migraines. Migraine headaches are a complex neurological condition but that doesn’t mean that they are or are not caused by some other condition. Hopefully your neurologist can help you determine if all the symptoms are related to migraine or not. Let me know what you find out 😊❤️💐
i have been feeling this since march, my main symptom is that i cant feel the left side of my head and face. its been numb since march 16 and since then, my vision and speech are affected from time to time. i dont know how to fix this 😔
You should go see a doctor. To me this sounds more like Bell’s palsy, a sudden weakness in the muscles on one half of the face. Bell's palsy may be a reaction to a viral infection. It rarely occurs more than once.
I had never heard of this or come across information about it. It looks like this is done at the Reed Migraine Center and Dr. Reed invented the surgical implantation of a device that stimulates the occipital nerve. This is the opposite of what I do with botox and nerve block injections. I have not had a hemiplegic migraine in years and when I do get a migraine now they are pretty manageable and infrequent. I wish you best of success and support whatever decision you feel is best for you, but doctors make a lot of money from surgeries like this and I just hope that every option has been explored because it does seem very invasive. I would like to understand how you cam to the decision to do this.
@@annaswanson5903 I’ve had almost daily migraines for close to 17 years and have tried everything. I’ve got a few friends who are doctors and have done a lot of research on the procedure. It’s very effective with a very high success rate. Luckily I live 40 minutes away from RMC and don’t have to travel out of state. I’m really looking forward to getting it done. I’ll keep you posted.
@@annaswanson5903 I’ve had almost daily migraines for close to 17 years and have tried everything. I’ve got a few friends who are doctors and have done a lot of research on the procedure. It’s very effective with a very high success rate. Luckily I live 40 minutes away from RMC and don’t have to travel out of state. I’m really looking forward to getting it done. I’ll keep you posted.
Thank you for sharing sweet girl. I’m just newly diagnosed with Hemiplegic migraines, and to be real I am so scared that I’m having panic attacks. It helps to to from other sufferers, and there is life after the diagnosis. My question is how are you treating your migraines? Anti seizure meds, high blood pressure meds, or something else?
Hey Ann, sorry to hear you’re feeling this way. Things definitely get better. Here is a link to my playlist for migraines. It has loads of videos about what I do for migraines. Hope they’re helpful ❤️
I’m hoping it’s not that. I’ve actually been doing well and not having many migraines and I think supplements have helped a lot. I made a short about the ones I take My #daily #supplements that help me with my #migraines #herbalmedicine #migraine #migrainerelief ruclips.net/user/shortsXOJnikT_nE8?feature=share and I hope you’re able to recover soon. If you find a treatment plan that is helping you and you’re not having migraines anymore, you still need to get the treatments and keep your routine the same for two years and then after the two years you can try reducing and eliminating the treatment. I really hope you can get back some sense of having a normal life. It’s possible
I've had HM over 30 years so i 100% relate to how you feel. It's the aphasia, ataxia and everything but the headache that suck. I can manage the head ache...figured that one out about 10 years. I loose half my vision. It's the worst experience. I have had my whole side paralyzed. It's soooo terrible. Brain fog is gross...
I also suffer from hemiplegic migraines and it's not fun. I feel like I'm losing my mind and touch with reality when I get them.. my husband always takes care of me when I get a migraine coming on.
@@annaswanson5903 Not as of late, but I keep trying with the assistance of my doctor to 'experiment' with new meds, and hopefully there will be a breakthrough.
@@candytiger644 what are you doing for treatment. None of the abortive medications work for me but I’ve been getting Botox for about three years as well as nerve block injections and an iv treatment
@@annaswanson5903 They had tried me on Fioricet, but that made me nauseated and too tired. Then I tried gabapentin which just also made tired. I got Botox twice before and I'd had a n allergic reaction to.. it sucks because there's not much of a ball park that I can try since I'm allergic to lots of medicine out there. But, I see they coming out with tons of new medicines, so....all hope's on that end! 🙂
I agree but, I am not getting and have never received disability benefits. While you can apply for disability, it's very hard to be approved for it with migraine as the sole basis and it can take a long time to go through the process.
Thank you for watching! For those of you who want to know how I treat my migraines I just posted an updated video about this: ruclips.net/video/Dx1-MVwb1sU/видео.html. and I also have a Migraine Playlist: ruclips.net/video/OjKH46ABLx0/видео.html
My newest video on migraine is about how to avoid getting headaches and migraines from your perfume. Please check it out if that’s something that interests you ruclips.net/p/PL-gd5jNQbBGiO_K1EMFq9bXZOAPQBdwRw&si=4D-Ir3f9M1M93_NS
My deepest empathy as I also suffer from it. It is a lonely desease because no one understands struggles to mantain a normal life.
I am started to call it my unwanted friend came to vissit.
The worst is the inability to go to work while having one. It has a great impact on my life. I lost jobs due to it. Afraid to drive be cause not knowing and how severe the incident will be.
Currently walking with a cane due to balance issues and have a permenant lisp and frequantly have hand tremmors.
It is quit embarassing when you have one in public as you look like a imbecile.
Sending you hugs and strength from afar. I’m so sorry that you’re going through this ❤️❤️❤️
I’m also a RUclipsr suffering with Hemiplegic Migraines, and chronic migraines. It is good to know we are not alone. Thanks for sharing your story. I can totally relate to the driving and loosing the brain and it is so very scary. @gain, thanks for sharing.
I am so sorry to hear that we have some of the same struggles and I definitely have been conflicted about sharing on the internet so very glad to hear that this made you feel less alone
Do you have your migraine pain in n the upper body so confused as neurogist says it's this type of migraine especially with me having normal type 25 years ago.the rhumo says it's fybromyalgia
Thank you for sharing your experience with hemiplegic migraines . I too have this condition.
Sending you hugs and strength from afar
Thanks you for sharing! I have HMs and was diagnosed a few months ago after a year of being bedridden. I thought I was dying for several months. I don’t know anyone who has it! Most people think I’m “emotional” or overeating unfortunately. I have all the symptoms you mentioned.
I’ve gotten a lot better over time. There is a big difference between having a medical condition that is untreated and one that’s more or less managed. Things can get a lot better ❤️ Are you seeing a neurologist now?
Thanks for sharing your journey with HM. your journey sounds very much like mine and I actually feel a sense of relief when I hear stories like this. Obviously I am very sorry you suffer with these awful migraines and the symptoms that come with them. But, meeting people like yourself who know exactly how it feels. No matter how much support we have with family and friends, we still feel lonely and find it so hard to socialise amd work. I have had to stop working as a personal fitness coach as my cognitive function is awful with daily brain fog. I've taken a few months off to see if I can get my symptoms under control.
I also have the diagnosis of FND which I find hard to accept. I always believed, like you, that I have MS or something like that. But I'm still within the process of diagnosis for other illnesses I believe..
Again, thanks so much for sharing your symptoms and I really hope.yoir symptoms have improved lately?
Chris
Sending hugs and strength! How are you feeling today?
Just lost my mum to severe ms I have fybromyalgia or migraine IBS.the link for us both is hypomobility hsd or eds still awaiting testing and that includes Asperger's add which found out I have since sons diagnosis though my father had CFS now ok was his thyroid.seams Asperger's add were prone to all these things
I definitely find the headaches were easier to deal with for me. Originally as a teen, I had the headaches, but as I got older it turned into exclusively aura and stroke symptoms. While the headaches were agonizingly painful, they didn't impact my ability to work, drive, etc to the same degree as the stroke symptoms and aura. Sometimes I got almost completely blind for hours so I can no longer drive unfortunately.
Sending hugs and strength from afar. You should check out my migraine playlist especially the videos on giving up coffee and how I treat my migraines now. I still get migraines but way less and have not had a hemi plegic one in over a year
Hi, my name is Alicia, i started having these types of migraines at 15 years old at 30 I was diagnosed with MS. And until i heard your video it was never mentioned to me that the two might possibly coincide...but I had always felt that they had to be related. Thank you so much for humbling yourself to become vulnerable enough to share this part of your life with us. You shed some clarity for me to day and that is worth more than I can explain, just to finally know I'm not crazy or trying to embellish on my illnesses which unfortunately I do have some people who treat me as if I am exaggerating my condition. I've learned you can't fix stupid and inoray they never go through it. Stay strong sister. You've got a new friend through me if you'd like.
Sending hugs and strength. I’m surprised that no one made the connection because one of the first things my neurologist did was send me for CT. I had one MS type lesion at the time so he said you don’t have MS but you don’t not have it b/c MS basically means multiple lesions. I was basically told no alcohol, no coffee, no processed foods and to exercise and to keep My weight under control. Unhealthy habits might push me into having diagnosable MS or autoimmune disease
My mum has severe ms hypomobilty Asperger's am sure as myself undiagnosed yet.but I have migraine pain shoulders armpits 25/7 neurologist says I have this.rhomotologist says it's fybromyalgia same pain as migraine to me with no headache
Your story sounds exactly like mine! My first two years of dealing with this the neuro thought I had M.S.! My breakthrough occurred when I had an episode at work and they called an ambulance and the hospital diagnosed me with a TIA. My neuro came back and diagnosed me with these special little migraines
Oh man!! I’m so sorry to hear this. How have you been feeling recently?
I don't feel you overshare! I love your videos and your realness! I was thinking of doing a video about not fitting in, in life LOL! I think that sometimes certain people cross our paths for a reason! I am glad you found your new friend. Yes I am not very trusting! Yes I would love to hear more of your story! X
Go for it! Sometimes when we share we actually feel so much less alone, and people who are going through similar things feel the same. I have definitely found that people who grew up in cities or who have had some pretty negative experiences have a harder time trusting people and there's nothing wrong with that. The only thing is that by not sharing you sometimes become more isolated and impacted by stresses in your life. Putting some trust in other people makes it easier for them to trust us and trust is basically the foundation that allows relationships to grow and flourish.
Wow your story resonates with me.I am still waiting for a diagnosis but this makes so much sense.The other day I collapsed with stroke like symptoms.I have been dealing with my left side very weak since November.I really thank you for sharing this
That is so scary!! Sending hugs and strength from afar
Hi ya from Australia. I have FHM. Thanks for making this video and increasing awareness. Can’t tell you how many times people assume I just get really bad headaches. I have FHM but I have also had common migraine episodes too. I’ve almost always got symptoms of the HM daily though. It’s a lot to deal with and it’s made easier when others understand more accurately what the symptoms are.
Sending hugs and strength from afar. FHM episodes are really scary and I also get other types of migraines. They’ve definitely affected my entire life and changed my path. Its harder to deal with sometimes and other times I’m okay with it
I am also a hemiplegic migraine sufferer. The worst part for me is the loss of speech and not able to remember peoples name or places. It scared me to death. I pray that you find relief and get through this. My Nero started me on veparmil but idk if it’s working yet because it’s only been a week. I have also been researching devices such a gamacore or STM’s devices that u can use to help with aura.
I agree, the speech and memory component isn’t just unpleasant, it’s potentially VERY unsafe.Things have gotten a lot better. I still get migraines but they are far less severe and fewer migraine days. Botox is something that a lot of people agree has helped them. If you pay for it out of pocket even one time before it’s approved by your health insurance then it’s impossible to get approved for your migraines so I suggest talking to your doctor and finding out from the health insurance what will qualify you for Botox treatment
Sending you hugs and strength from afar
Thank you for sharing because i too am a hemiplegic migraine and it has been so bad it is hard to explain to other people when you just want to be alone when mine come on i get very scared not remembering things can't focus
sending you hugs and strength from afar
i’m so sorry you have to deal with migraines. i can’t imagine the pain & how it can affect your plans or daily things you need to do. i don’t have it but my brothers & mom do, & i see how it affects them. thanks for speaking out on this so others can understand you & spreading awareness is always good 🤍
It's also very hard on close family but in a different way. I'm sure really it's really hard for you to watch people that you love suffer, and not be able to do anything about it. Sending you hugs from afar
Thank you for sharing. I finally feel like my symptoms are real. I felt like I was just weak or just lazy.
OMG, no! Comments like this make me feel like this isn’t an overshare, so thank you and please consider watching my video on giving up coffee
Loved this video! I am so glad that we found each others accounts. Following along with your journey has helped me tons especially just feeling like I am not alone and my feelings are valid. You have been the first person who understands the symptoms and feelings migraines can give you and its relieving knowing it's not just me. You are helping so many people with these videos! Keep it up! As always, sending my love! ❤️
Thanks Alex! How are you feeling? Have your migraines gotten any better?
@@annaswanson5903 Lately, I have been doing a lot better which I am so thankful for, but there’s always something a little off! Still working on figuring it all out! Thanks for asking!
@@aleextinsleey that’s great 🎉🎉🎉 You move to Hawaii right? Do you thing the change in pace or weather has helped? And yeah, I totally know what you mean by feeling better but something is always a little off. Sending hugs and prayers from afar 💜
@@annaswanson5903 I did move over there for a few months but I am back home for the summer. Not sure what’s going to happen after, but just gonna go with the flow! I do think being there helped them so maybe it it weather and elevation! Crazy how those things can totally affect you!
@@aleextinsleey Wow! That must have been a good time! I've heard you get Island fever so I am sure that it is also nice to be back home. Are you still going to UC Davis in the Fall?
Thank you for posting this video. You really explained the nature and extent of disabling factors that accompany migraine. It’s more than a bad headache.
Yvette, sending you hugs and strength from afar
I found out in 2018 that i have hemiplegic migraine.I am glad to hear u can do things even tho are difficult.In my case i had an attack and after that attack i never been the same.I cant walk more than 20 stept by myself i cant stay in light or hear people talking loud.I wake up every morning paralised i cant move at all my left arm and face are completely shut down.I often fall down on stairs and i lose concious.For some people gets very bad.I hope u keep it like that or recover completely
OMG 😳 I’m so sorry to hear that!! I’m lucky because I still get migraines but I haven’t had a hemi plegic one in over a year. Don’t lose hope
Hi dear, this was such a good video. I can completely relate. It sounds like we had the same type of migraine, it is severely debilitating. It for so bad for me at one point that my neurologist sent me to the hospital bc I had stroke symptoms and involuntary eye movements. Mine were supposedly brought on by head trauma and were made worse by stress, my life was super stressful at the time. I was referred to a physical therapist who specialized in migraines and it decreased them to about 1 per week. I could always tell when I was about to get a migraine bc I would become really confused beforehand, I actually forgot my husbands name once, again, your story sounds super familiar. The memory issues and brain fog would last for days to weeks afterward, I was in graduate school at the time and it made everything really hard. I also had a similar experience with some people not understanding and being very offended and rude. I was in a group project (which I completed early btw) but lost control of my eyes while I was driving to our meeting. I had to pull over and ask Siri to call my husband who took me to the hospital where I stayed for 3 days being tested for stroke, tumors, seizures, etc. he also texted the people I did the project with for me to let them know what happened. While I was in the hospital, one of my group members complained to the teacher that I wasn’t participating. 🤦🏼♀️ and we were in grad school to be counselors, to this day I truly hope that person is not actually a counselor, I don’t see any evidence of empathy in her. This is a great resource, I don’t think a lot of people
Realize how lonely migraine life can be. Mine COMPLETELY went away when I started having kids. I actually showed up to my neurologist appointment, I went every three months and told her I hadn’t had any migraines in the last month. The first thing she asked is if I could be pregnant. I said “no” and had no idea that I actually was. Lol so I will probably control the migraines hormonally after this pregnancy. We aren’t having any more kids which means the migraines could come back, but can clearly be controlled hormonally. I will probably try the ear piercing. So sorry you are going through this, thanks for sharing your story!
Wow! I wish I had known you when you were going through all of this so I could have been there for you
@@annaswanson5903 wow what an interesting article! I’ve heard Botox works really well for controlling them. I never would have imagined that my migraines would go away, I for too a point where I didn’t remember what it was like to not have a migraine. I was ALWAYS either having a migraine or having the resulting soreness And stiffness from one that I was coming out of. And I felt the same as you about the kids thing. Chad and I had not been able to have kids and when I started getting migraines I didn’t think we would be a good fit for kids after that, since I was so debilitated. It’s crazy though how our bodies work. We got unexpectedly pregnant with our first daughter and I could feel myself “having migraines” while I was pregnant with her (it’s like I could feel my brain doing what it would normally do during a migraine) but it wouldn’t be debilitating.) And since having both kids I have had 1 within the first month of having each child and it is severe at first but goes away very quickly and doesn’t have the same headache hangover that I would have before. Your hormones go a little crazy after you have a baby, just trying to reach a balance again, so I think that’s probably why it happens. I would also have neuropathy and have had NONE since having kids. It can be scary if you want kids to wonder if migraines will get in the way. I feel that I have been exactly where you are in many ways. Our surprise pregnancy really fixed everything foe me,
And then breastfeeding afterward. I hope you find peace with this and get everything you want Anna!
@@MentalHealthMom Botox definitely helped me A LOT and it also becomes more effective the longer you've been getting it because it builds up in your system BUT you can't have injections when you're trying to get pregnant or pregnant because it's a neurotoxin. Thanks so much for your kind words, they are definitely very comforting. I am a big believer, I think that my faith has helped me a lot whenever I face difficult things and I really feel like things work out. There are good things that have come from experiencing migraines and I may not be able to see if I'll be a parent or what that's gonna look like, but if it is meant to be it will be. I could also be a foster parent or adopt an older child so I don't feel stressed about it but it is definitely an important thing I'm thinking about
@@annaswanson5903 yes I knew it couldn’t be taken when trying to get pregnant, we were about to try Botox then I got pregnant. Your mindset and faith truly are inspiring! And you are right, things will definitely work out for you beautifully
@@MentalHealthMom sending you lots of hugs and prayers for a happy healthy pregnancy. Hope you’re having an amazing Father’s Day 💜
I’ve recently finally found out my symptoms are most likely hemiplegic migraines too. It’s great to hear and be able to relate to someone elses experience with similar symptoms so thank you for sharing xx
Sending you hugs and strength from afar! It’s not an easy thing to go through and it’s good to know we’re not alone. Have you found anything that helps with the migraines
@@annaswanson5903 nothing just yet. I’ve downloaded the migraine buddy app to try and find all my triggers and so early stages. I’ve had migraine with aura since I was 8 yrs old but they’ve obviously got much worse over the past 12 years and more so since feb this year x
@@flourishthesoulacademy that’s exactly what happened to me. I think hormones for me are a big factor and being on birth control didn’t get rid of migraines but did help
Thank you for sharing I too live with Hemiplegic migraines & I can relate it very debilitating. So thank for sharing your Hemiplegic migraine Journey.
Sending hugs and strength from afar
Thank you for sharing. I have migraines with aura, my last ones I had the same kind of brain fog and difficulty speaking and recalling names. I’m am going to make another appointment with a neurologist. I feel dehydration and lack of sleep play a big part in bringing on mine. I have been reading about how magnesium plays a big role too. Thank you again for sharing, I’m glad I found this video.❤
You are so welcome! I really hope you are able to get better ❤️🩹
I just want to say thank you for saying that part about forgetting names. Im so bad with it. I've got hm, and the auras are so varied. some days I'm so cloudy.
I am glad that you appreciate the video, it's definitely one where I have wondered if it is TMI or if it helpful.
@@annaswanson5903 i was just diagnosed a few months ago, and it was really nice to hear from someone else that also has hemiplegic migraines, so few people have it. My doctors are clueless about it, I dont know anyone with it. Its nice to hear about your experiences.
@@annaswanson5903 I hadn't started to suffer from the regular auras until the last few years. I experience auras multiple times a day right now, and its been miserable. They're always followed by headaches. 1-4 times a day.
I HAVE HAD HEMAPLEGIC MIGRAINE SINCE I WAS 9YEARS OLD .AM NOW 52 AND IT KEEPS GETTING WORSE. I WONT SAY AM HAPPY OTHER PEOPLE HAVE THIS TYPE OF MIGRAINE. BUT AM GLAD OTHER PEOPLE UNDERSTAND .FAMILY KEEP TELLING ME JUST FORGET THE HEADACHE AND GET OVER THIS .I GET REALLY DEPRESSED ABOUT MY MIGRAINES IT MAKES MY LIFE SO DIFFICULT.
sending you hugs and strength from afar
i had a migraine while a police officer stop, my license was suspended due to medical reasons in my state.
Yikes!! 😳 I am very cautious about driving and avoid long drives and I honestly have had this fear in the back of my mind. That really sucks! What are the steps for getting your license back? What state are you in?
@@annaswanson5903 My neurologist and my eye doctor both documented i am ok to drive. i sent these documents to DMV. DMV still refuses to reinstate my license. Now i hire an attorney to help me with the appeals process. . i suffer from this type of migraine since i am 15 years old i am 57 now .i am a male. .most of my female relatives suffer from it i get this type of migraines rarely once every 6 years
Hi Anna..thank you for sharing this. I only get these every now and again and the worst symptom for me is to feel like my head is being drilled. The only thing that works is trying to sleep in the dark but it makes me feel so nauseated. Im sorry it has impacted your social life so much and the symptoms. . I didnt know how many other symptoms can occur with migraines. Much love to you, you are such a strong person 💗
Sending you hugs and strength from afar. I can't imagine that it is that easy to get a quite dark sleep with all the munchkins running around your house. Migraine nausea to me also makes it so much harder to walk around or sit up when I have a migraine. Have you ever tried Pepti-Calm for it? I sometimes take Pepto Bismol and it works almost instantly
@@annaswanson5903 i have never tried that before. But thanks for letting me know. I will see if its available here 🥰
Great to watch your video, l suffer hemiplegic migraine as well as cluster headache and bilateral cluster headache. Yes, they get you down, especially the paralysis...work are supportive but it's embarrassing to have this and having to go to A&E to rule out stroke.
Yep, it is embarrassing 🙈 but also I don’t think we should feel ashamed because it’s not something we have any control over ❤️
Hi Anna, how are you keeping? I had an attack some 4 weeks ago, just about getting back to normal, just still a little weak in my right hand.
My very first migraine at the age of 12 was a HM. The right side of my body went numb and I fell down the stairs trying to get to the principal’s office. I also get aphasia, visual disturbances, weakness, inability to read and comprehend, pretty severe confusion and tinnitus.
Since that first one, I’ve had common migraines, migraines with aura, hemiplegic and ocular migraines. I’m 40 now 😑 These experiences are nothing short of traumatizing.
I’m so sorry to hear this! How are you doing now?
@@annaswanson5903 They are very inconsistent. Every 6-12 months as a teen, then less and less frequent. I’ve had one recently, and the previous one was 6 years ago. Pretty tough to nail down a trigger 😐 Still super scary, even though I know what’s happening and what will come next in these auras.
I am 61 and have had migraines since I was 11. The Hemiplegic Migraines showed up 21 years ago, it took over a year before I was diagnosed, yes, still to this day am treated like I am faking this illness and have been through many horror stories.
Yes, I to have had confusion, I have trouble with words I know how to spell it, see it in my minds eye, I can't say it. I did have a head injury and my doctor said that it was not a cause of this.
My doctor is at the Mayo Clinic, Rochester MN, Dr. Cutrer, coo- t- rear.
I have been shunned by my family and was accused of faking my illness so I wouldn't have to be with my husband at hospice, yet no one drove the 2 hours up and back from the Mayo Clinic, cooked and froze food, the list goes on. I didn't fake my illness, I am all so a diabetic and have anxiety, trying to keep it together as my husband had cancer and knowing there was no cure only to find that it would go into remission so he would live longer.
Sending hugs and strength from afar ❤️
Hi Anna, I'm a 10+ year migraine sufferer and was diagnosed with Hemiplegic Migraines in September 2021. My migraines were absolutely awful and were always in the same area, they were constant then I'd get a few weeks off them then they would return with a vengeance. Out of nowhere I suffered a Hemiplegic migraine, I had no idea what was happening to me, I was talking to a parent at my sons school once I had dropped him off and I lost my peripheral vision and I thought " what the hell is going on? Am I extremely tired ? " so I managed to drive home then things got gradually worse, the left hand side of my body became completely numb and I could barely speak. To top that off I was alone, I managed to phone an ambulance and made it to the hospital. So long story short I had a few more Hemiplegic migraine episodes which each sent me to hospital as they were so severe then I was prescribed Topiramate which has completely stopped my Hemiplegic migraines and my normal migraines. I still can't believe I don't get headaches anymore its so strange, I'm so glad I haven't got a Hemiplegic migraine since I've started the medication. I cant deny it but I do live in some fear that I will start getting them again but I'm hoping that day never comes. I hope if you try Topiramate it works as well for you as it has for me.
William
Wow! That sounds very scary! I have been getting botox for 3 years now and that has helped tremendously. I am currently looking into getting a good abortive medication because I still get migraines but I have also a lot of lifestyle changes that helped a lot. I don't drink alcohol or coffee anymore, or eat aged cheese, etc and I meditate and exercise regularly. All of these things have helped me a lot!!
Hi, I've had HM for 33 years ! It sucks !
For 6 years I went to the doctor with hemiplegic migraines and they said come back if it gets worse!!! Which it did and I did but they just repeated it.
I am so sorry you had to go through this, truthfully I think a lot of doctors are not educated enough on migraines or other common headache disorders. Most people think that migraines are just used as an excuse not to do stuff which really makes me mad.
I had symptoms for at least 15 years. I have been to 12 different Neurologists and to supposedly the best hospitals in the United States. It wasn't until the 12th Neurologist that happened to have another patient with hemiplegic migraines, that I was diagnosed. I believe mine are from repeated head and neck trauma from driving truck for 35 years. Monthly Emgality has reduced the severity of the episodes, but still average 15 a month. I hope this is legible, because I am on day 2 of symptoms, because of a storm passing through. God bless everyone with this terrible disease.
I’m a migraine sufferer aswell, it usually lasts for 3 days and it is so painful and usually I can’t function properly
Sending you hugs and strength from afar, I can imagine how much that truly sucks. Do you find that you're also not feeling great leading up to and after the main migraine attack
@@annaswanson5903 yes most definitely, I’m like a zombie before and after an attack, it’s terrible 😞
My daughter and grand daughter have this.
I'm so sorry to hear that, sending hugs and strength from afar
I been really scared of these symptoms because thought I was dying, I been having one side of my body numb and feels like I'm having a heart attack or a stroke, been having painful numbness on neck, arm and leg along with unsteady vertigo, which the symptoms are terrifying and only had , I never experienced something like this before I'm glad I'm not alone on this, will it go away on its own?
Hi Delepent, sorry it took me a while to respond. I think everyone has their own experience and what works for me, may not help everyone. Personally, I feel it's very important to figure out what is causing you to have migraines and seeking medical help is important. I also think that diet and exercise are very important. I honestly believe that giving up coffee and alcohol and exercising every day was super important for me. I am sure this is likely not what you were hoping I would say. I am sorry that you are going through this but I haven't had hemiplegic migraines in several years so it is possible to stop having them but it was a lot of work for me
Aw Anna I'm sorry! My momma really gets bad migraines I don't think that she gets the same as you but hers are pretty severe. She ends up in the E.R to get some sort of shot. And I want to say she was on a medication called dopamax or something like that. I'm so sorry you have to deal with it. I'm glad you have support there for you. I'm praying for you girly ! 🙏
Mercy, I'm sorry to hear about your Mom. Sending you hugs and prayers from afar because it isn't easy to watch someone that you love suffer.
@@annaswanson5903 thank you I appreciate it!
Hey I'm waiting to hear back from a few girls about sharing their testimony are you still for it for July?
@@JamesandMercyDavis Hi Mercy, I would love to and I am sorry about the delayed response. I am actually an orthodox christian, I was married in a byzantine church and I just want to share that with you before participating
@@annaswanson5903 Hey Anna I don't really know much about Orthodox Christian. I guess I just call myself a Christian I know there is so many denomination out there.
Id love to hear your story I'm trying to figure out a date if you wanna email me I can't talk more there 💞
@@JamesandMercyDavis I think it’s 90% the same but the main difference in ideology is that the Gregorian church believes Jesus is fully divine and fully human, in one physis. While historically a major point of controversy within Christianity is that many churches believe that the humanity and divinity were two different natures. BUT, the difference between the two Christological formulations is essentially semantic and does not reflect any significant difference in belief about the nature of Christ. They also emphasize the apostolic nature of the church because they believe that this means the authority of the church comes directly from Chris through the apostles
sending love 💗 this sounds so scary at times.
I didn't want to sound overly dramatic but migraine sufferers are supposed to go to the ER when they have attacks to make sure that it's not a heart attack or stroke
Hi
Your vids really helpful thanks for sharing , Ive been using migraleve and kelp and fever few with essential oils to cope ..I hope all is well with you
Jay
Glad the video helped and glad that you have some things that help you cope. May you have many migraine free days. - A
Be strong sister my right hand is not working since I was a child as a result I had been suffering with migraine
Sending strength from afar
Yes I have them I feel for you
Sending hugs and strength from afar
Thanks for talking about this. It was the same for me sometime in my early thirties they got way more frequent. Luckily I only have them once in a blue moon but they’re always pretty scary. Hope you’re managing them and living well.
Gosh sorry to hear that! I’m still getting migraines and they’re less frequent. I’ve realized that I have a slow thyroid and slow circulation so running daily has been a huge help. Still trying to find an abortive medication that works.
I'm in the midst of an attack now. It's going on day 7 of slurred speech, right arm/hand weakness, tiredness/dizziness, and back/neck pain. I'm exercising daily and using heat. I'm not sure what else to do. I don't want to take drugs. I only get these about once a year.
Ugh 😩 that’s a tuffy- hard for me to tell you what you should do but hopefully you are starting to feel better now. Did anything work?
@annaswanson5903 Just over a week later I went to a massage therapist. I'm definitely doing better, though the symptoms haven't fully disappeared yet.
@@ancientfriend glad you’re starting to feel better. I’m sure the message helps❤️❤️❤️
My son has been given a working diagnosis of this recently. It was terrifying for us all. He lost use of limbs, slurred speech which then went all together, difficult to swallow, and very deep slow breathing. When he eventually came round he didn't know us or himself for a good hour after then vomiting and light shyness. He is 14.
I’m so sorry 😞 I still get migraines but I’ve now gone years without another hemi plegic migraine so please don’t lose hope. Some of the best advice I could have gotten was no alcohol, no caffeinated coffee and minimal or no caffeine, no processed foods and that I needed daily exercise. Lifestyle changes and meditation are both important. Nerve block medication is easy to get approved as it’s considered safer than Botox and it’s very effective. You’ll have to work with medical professionals to find effective treatments but there are a lot of options.
@@annaswanson5903 thank you for your reply we are in the UK so right now we've been told wait and see what happens, bless him he has cochlear implants is being investigated for autism and was born with an under developed left hand, he's been through so much and now this he is so loved and I'm so proud of him. He swims for a local club and trains with a national para- development squad which helps him with anxiety etc. Again thank you for your reply x
I didn't know migraines could cause paralysis. Thanks for sharing.
Any time 💞
I was just diagnosed with this today I do not get migraines very rarely I get them I do have numbness and tingling in my arms hands feet and legs brain fog and vertigo do you always have the migraines with all of these symptoms or no? I'm seriously starting to wonder if I have this or it could be something else thank you for your video it is very knowledgeable
Sorry to hear that you’re also having bad migraines. Migraine headaches are a complex neurological condition but that doesn’t mean that they are or are not caused by some other condition. Hopefully your neurologist can help you determine if all the symptoms are related to migraine or not. Let me know what you find out 😊❤️💐
i have been feeling this since march, my main symptom is that i cant feel the left side of my head and face. its been numb since march 16 and since then, my vision and speech are affected from time to time. i dont know how to fix this 😔
You should go see a doctor. To me this sounds more like Bell’s palsy, a sudden weakness in the muscles on one half of the face. Bell's palsy may be a reaction to a viral infection. It rarely occurs more than once.
I’m having the Reed Procedure done for my hemiplegic migraines
I had never heard of this or come across information about it. It looks like this is done at the Reed Migraine Center and Dr. Reed invented the surgical implantation of a device that stimulates the occipital nerve. This is the opposite of what I do with botox and nerve block injections. I have not had a hemiplegic migraine in years and when I do get a migraine now they are pretty manageable and infrequent. I wish you best of success and support whatever decision you feel is best for you, but doctors make a lot of money from surgeries like this and I just hope that every option has been explored because it does seem very invasive. I would like to understand how you cam to the decision to do this.
@@annaswanson5903 I’ve had almost daily migraines for close to 17 years and have tried everything. I’ve got a few friends who are doctors and have done a lot of research on the procedure. It’s very effective with a very high success rate. Luckily I live 40 minutes away from RMC and don’t have to travel out of state. I’m really looking forward to getting it done. I’ll keep you posted.
@@annaswanson5903 I’ve had almost daily migraines for close to 17 years and have tried everything. I’ve got a few friends who are doctors and have done a lot of research on the procedure. It’s very effective with a very high success rate. Luckily I live 40 minutes away from RMC and don’t have to travel out of state. I’m really looking forward to getting it done. I’ll keep you posted.
Could you please tell me what the reed procedure is ? my daughter was just recently diagnosed with hemopolegic migraines.
My neurologist says my migraine what I have in my shoulders armpits 24/7 is migraine
Interesting, what type of migraine do they think it is?
Thank you for sharing sweet girl. I’m just newly diagnosed with Hemiplegic migraines, and to be real I am so scared that I’m having panic attacks.
It helps to to from other sufferers, and there is life after the diagnosis. My question is how are you treating your migraines? Anti seizure meds, high blood pressure meds, or something else?
Hey Ann, sorry to hear you’re feeling this way. Things definitely get better. Here is a link to my playlist for migraines. It has loads of videos about what I do for migraines. Hope they’re helpful ❤️
I also thought it was MS or Lyme I’m waiting for tests
I’m hoping it’s not that. I’ve actually been doing well and not having many migraines and I think supplements have helped a lot. I made a short about the ones I take My #daily #supplements that help me with my #migraines #herbalmedicine #migraine #migrainerelief
ruclips.net/user/shortsXOJnikT_nE8?feature=share and I hope you’re able to recover soon. If you find a treatment plan that is helping you and you’re not having migraines anymore, you still need to get the treatments and keep your routine the same for two years and then after the two years you can try reducing and eliminating the treatment. I really hope you can get back some sense of having a normal life. It’s possible
I've had HM over 30 years so i 100% relate to how you feel. It's the aphasia, ataxia and everything but the headache that suck. I can manage the head ache...figured that one out about 10 years. I loose half my vision. It's the worst experience. I have had my whole side paralyzed. It's soooo terrible. Brain fog is gross...
Betsy sending you hugs and strength from afar❤️❤️❤️
Are you on any type of disability because of this I have the same issue and I'm wondering if I can go on some type of assistance ? ❤
No, I am self employed but, here is a link to more information www.ssa.gov/benefits/disability/
I nvr thought migrane can be that bad! 🥺
I think most people think it's just a bad headache but thanks for watching and I'm glad you can understand migraine disorder better now
Sounds like Blood flow.
100
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I also suffer from hemiplegic migraines and it's not fun. I feel like I'm losing my mind and touch with reality when I get them.. my husband always takes care of me when I get a migraine coming on.
Ugh, they’re the worst! 😑 Have you found any treatments that work?
@@annaswanson5903 Not as of late, but I keep trying with the assistance of my doctor to 'experiment' with new meds, and hopefully there will be a breakthrough.
@@candytiger644 what are you doing for treatment. None of the abortive medications work for me but I’ve been getting Botox for about three years as well as nerve block injections and an iv treatment
@@annaswanson5903 They had tried me on Fioricet, but that made me nauseated and too tired. Then I tried gabapentin which just also made tired. I got Botox twice before and I'd had a n allergic reaction to.. it sucks because there's not much of a ball park that I can try since I'm allergic to lots of medicine out there. But, I see they coming out with tons of new medicines, so....all hope's on that end! 🙂
Its actually a disability 😢, on its own😢.
I agree but, I am not getting and have never received disability benefits. While you can apply for disability, it's very hard to be approved for it with migraine as the sole basis and it can take a long time to go through the process.
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