Little Known Facts About Dementia
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- Опубликовано: 16 июн 2024
- To learn more about dementia and how to care for someone with dementia without the overwhelm, watch this free training: www.dementiacareclass.com/yt
That training will also show you how you can be a part of the Care Course.
In terms of hallucinations, it's important to rule out urinary tract infections which are quite easily treated with antibiotics.
My mom has chronic UTIs and it always presents as severe confusion.
I’m a retired nurse and I have seen this My aunt was confused it turned out that she had a urine infection once on antibiotics she became better Always check
Whenever I visited my parents, my Father would say that there was something "wrong" with your Mom. Why he devulged his concerns to me, I don't know. Out of all of her 7 children, I was the one she seemed to get agitated with the most. With time she got worse and more argumentative. I resorted to just agreeing with her unless it was about something that might harm her. I could write a novel, but dementia/alzheimers is such a horrible disease. 😢
When I worked in nursing homes years ago I tried to go wherever that person is. And many times one in the family feels a lot different in the way they get treated by the patient. We see that with the care partner more angry or selecting them as they feel that person feels you are able to understand and love them, won't leave them,etc. and they have to get these emotions out. I had one lady who refused to talk to her son but he tell her about his day.,ask her how she was ,compliment her about something, etc. When he left one time he asked if she is talking. I told him yes, A lot, and a lot about him. Just wait outside so she can't see you. I went in and oh I see someone was here and helped you with your lunch already...she said that was my wonderful son. He comes to see me and I am glad, he is the best son so kind, but I don't want to bother.him. oh I see then went outside her room and he was in tears. Thanked me, I will never think she doesn't love or wish me to leave her alone again. I told him it seems it is very good you come as she loves these visits
I was so exhausted after caring for my father (hasn't been diagnosed yet) along with my mom. That i couldn't attend this live. I am glad i get to at least watch it now. 🙏
I wish Primary Care physicians were more knowledgeable and helpful with this since they see them more often. They’re always triple booked by their admission, nod their heads when you explain things yet aren’t really listening or helpful. They forget that family members are not trained caregivers or professionals, this is hard enough 7 days a week and badly could use their guidance
I’m so sorry to hear this. My PCP is all ears and time, for both of us (hubby and me) 25+ years of great health care. He isn’t under a Hospital name. He does send patients to the hospitals for test and whatever , but it’s the hospital YOU pick. He has even helped me deal with my mother’s and now my sister’s dementia and my sister lives 1,000 miles a way. Mom passed @88 a few years ago. She couldn’t remember her kids. 😢
Maybe find a new PCP , who isn’t under the pressure of hospital regulations? Or just one that will listen to you and NOT feel rushed. I understand, I have been through a few specialists because they don’t listen to what you say to them. You’re limited to 15 minute max visit, that includes the nurse taking info, height/weight, BP, and oxi meter/heart rate and the reason for your visit! So the time with the actual Dr was around 5-7 minutes! 🤬🙄😮
Best of luck to you. Take care of yourself. 🙏🌎☮️♥️
My father-in-law had executive functioning dementia. I kept saying for years *there is something wrong with your father" to my husband. I'm going to have brought it up to my mother-in-law that I was worried about memory issues she said oh we are not going to talk about that if we don't talk about it it doesn't happen. It was always will cross that bridge when we get to it is very frustrating for us family members who can see something is wrong but people fail to acknowledge that there is truly something wrong.
Time loss is brain loss. Best of luck dealing with this.
@@Auggies1956 thanks. I was their full time primary care giver for the past 7 years. She was legally blind and he had the dementia. I lived next door so it just became my responsibility to be the one to do it. They have both passed in the last 18 months. His last year was confined to a bed/chair and non verbal. I wouldnt wish it on anyone. Very sad to watch it/do it.
@@carolyn6001 I was diagnosed with early onset dementia last fall. I'm on a drug that has restored my speech to near-perfect. But I have all the symptoms just relatively mild at this time. Sad to say my Linda I'm sure may have it, not accepting, she will not see the doctor.
@@Auggies1956 wishing you well.
@@carolyn6001 I share this so others know. Many thanks...
My LO started to lose memory quite late in his journey. He began with poor social skills, generalized anger, unable to carry out a plan, etc
Hi, wish I found you a year ago. Your information is so valuable. Both my parents died 6 months apart from each other. Both had dementia .
Great video! Thank you for being the nurse advocate. Nobody knows every disease, or every med. People stop giving someone a dirty look because the nurse will lose her license if she diagnoses, because you want free advice. Pretty much free everything. Yes, there are things people know but if they know you better, they know people will confuse and use what was said against them.
OMG. I wish this video was available a year ago when my mom was diagnosed with vascular dementia a year ago. This helps to explain to family/friends as they are not convinced my mom has dementia because she 'remembers' people, but has trouble with day to day activities such as writing, sometimes has word salad.
Exactly. I have MCI and people don’t understand because they are uninformed, so they act like nothing is wrong with me and don’t understand the trouble I have with executive functioning and some of my ADLs. That makes it even harder.
Thank you for all your help, advice and wisdom. 👊🏼
You are amazing!!! I'm pretty sure I've watched all of your videos. Going through this with my mom. I couldn't comment for a while but now it allowed me. My mom is way gone. I don't even know this person. Sad and awful disease. I have her in a memory care center now after having her in my guest house for some time. I just was not qualified to take care of her any longer. I still go to the facility to shower her as she insists no one can. It's hard to understand her as she says "words" that are not real words. I just nod and smile and try to figure out what she may be going through. Why can't she say normal words? She has had hallucinations that were REAL for her.
Im at the point where the memories of dad prior to the onsetvbegan to appear. While I'm thankful that those memories are returning, it makes his loss all the more poignant.
THANK YOU!! Love and appreciation to you!
The ĺose of exec. Func. Was eye opener for me. The more I read the more I find symptoms I had denied. Working now to learn all I can for my honey. His daughter moving next door. ❤
My Father seemed to live in two worlds. He would be sitting in his room working on a cross word puzzle or watching tv saying, "I see you, get back in those walls. Little bastards". And more conversations with what ever was coming out of the walls at other times. Also, coming out of the sink drains. Then I or someone would come in his room, he knew we heard him and he was embarrassed by what he said. He knew we couldn't see what he was seeing , he knew his perception, reality, wasn't right but couldn't alter it. Thank you for this video. God I pray this isn't genetic for me.
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Sounds like Lewy body dementia
@@rebeccabaxterbard8073 Thank you, will research that.
My mom has Lewy Body (it’s similar to schizophrenia to me). She also hallucinates about people coming through the walls among many others about children. Not to mention the paranoia that people are stealing from her and trying to poison her. Unfortunately it’s the caregiver that gets accused.😢😢😢
@@SOZO_xo Thank you for sharing that , that must have been horrible for you to see it happen. Kind of scary too because one can't seem to make it all better or alright for them.
Hearing this after the fact is so strangely freeing...I still can't hardly believe it's over...5 months after it's finally, final.I am here for you this time for your Dad if u ever need to vent.....🎯
When mom started having uti infections and was seeing things that wasn't there, I knew that she had dementia too. She had mini strokes of the brain in the past.
My family has been told that it is difficult to request an autopsy after death of a loved one with dementia, unless there is a question of why the person died. It is also said to be very costly if you can convince the medical examiner to explore the type or confirmation of dementia. I dont understand this because so many people could find comfort in knowing what their loved one was dealing with and what might be in the gene pool or future of their kids.
My Husband has been Diagnosed with Early Onset Alzheimer's Dementia, he was diagnosed quickly through a Lumbar Puncture initially, there was also MRIs and Other Testing, he Has just about all of those functions you said, or doesnt have however you would put it. Thank God he's in Slow Progression. We tried the Speech Therapy hoping it would help with Our Communication, but that's really not what it is, I have my Own Health issues So as a Caretaker it's a Real Balancing Act.
As for (hugely major) lifestyle factors for demetia prevention, get started with Dale Bredesen's book The End of Alzheimers (and related videos, researchers, doctors, and clinics). Other great names are David Perlmutter, Mindy Pelz, Ben Bikman, Jason Fung, Natasha Campbell-McBride, Sally Fallon Morrell, Dom D'Agostino, Sten Ekberg ...
My mom looked amazing at my daughter's wedding in 2005 at 80 years old, 2 weeks later she got the worst case of shingles, which precipitated onset of dementia 😢 My mom had 6 years journey til her death 😢
my mother 83 is going through the toughest year. I 😢
Blessings for your family. Thank you for sharing this. It helps us.
my mum is going through the same, she had herpes on her face at 76 and since then until now 83,she is suffering from dementia. She just also got bedridden 2 weeks ago.😪
My mother has dementia to where she has delusions all the time. I will tell her nobody is coming to dinner but she wants me or her to cook them dinner all day. She can't get off that suggestion. Sometimes she is terrified and can' t sleep and she will be up for 24 hours plus. Then in a couple of days she will be a happy go lucky lost person. She asks me every night, where do I sleep? I live in an insane asylum! She hides her purse every day. On a side note when my blood sugar was uncontrolled I had terrible memory issues. I thought I had dementia also. Got sugar straight and my mind fixed itself. Whew!
I give care to my mom who has some type of dementia but I have no clue what type. Since I’ve started following this channel I’ve learned more about how to care better for my mom than any information I’ve gotten from her PCP. I will be asking more questions from her doctor now that I know more. This might mean getting a different doctor but not sure at this time. Thank you for sharing this information it gives me so much hope on this journey with my mom.
@@mballer Don't forget, doctors are bound by patient privacy laws. In California at least, I had no right to ask for better treatment for my mom until legal conservatorship was established. It didn't matter that her PCP told me he knew she was losing it; he was just an employee of a big HMO with lots of attorneys on board.
@@MyCleverHandle0o
In addition to my previous comment, the sequence of events that manifest in my life are interesting. One topic leads to another. Immediately following my viewing of this video I tuned in a PBS series called “Professor T” season 1 episode 1. “Anatomy of A Memory” is the title.
My mother is displaying so many signs! She has also been mentally ill for many years. But so many things have been red flags lately! We are in an interim period. It is May, and after testing and scans we are now waiting for an appointment in October!
She is also addicted to prescription pain medication. She has fallen and had to be transported to ER , but sadly her primary care doctor continues to prescribe narcotics ! God help us!
October is a long time to wait, so sorry. You probably know what it is by watching these videos. Going off pain meds hard on the brain. She’ll be more of a wreck if you do that. I know because I went off them. Had no idea they affected my brain so much.Been over three years.Glad I’m off, but very bad brain damage. Now I’m taking care of husband with dementia, only 66 ys old, and have fibromyalgia depression, pain , anxiety ect. Don’t know how old she is, but pain med may be least of your worries.God Bless you.. Sorry you have to wait so long!
I am a Retired Registered Nurse who took care of Dementia patients in a Nursing Home.
This helps so much! I'm feeling slightly less terrified of what is coming, which makes it really hard to focus on what's happening now.
Nice job, as usual..... Thank you!
Thank you so much Natalie!
Thank you....
Great information. TY!
GREAT, I have dementia... since I retired I don't give a darn if my house is clean or dishes are done, in fact I tend to ignore as much work as possible.
In the Dallas, TX area - I take my mom to "The FriendsPlace" in Richardson. She loves it and helps so much. They have two location in DFW (Texas)
Very interesting. Thanks for this video!
Informative.
How do you deal someone who accuses you of messing with their things when you're not
You apologize, distract them and move on. Adult Daycare helps. You can get back to the paperwork or whatever you were looking through while they're at daycare.
@@mballer It was the case with my mom. Luckily, I found thirty years' of her bank statements, complete with actual cancelled checks, strewn all over the house. Little piles in her bedroom, which my brother had taken over. Little piles in the family room. Bigger stacks in the trunk of her car. It's like she knew someone would have to come in and sort everything out to find out where she stood financially. Which was in a deep hole, courtesy of my brother who had been forging checks every month right after her Social Security was auto-deposited. Enough evidence to have him tossed out on a restraining order. Thanks Mom!
My mother Inlaw said people were on her deck barbecuing
Now she says there’s a guy sleeping on a bench in my backyard (I don’t have a bench )
She put a dishcloth in the microwave thinking it was meat
Half the time she doesn’t know who I am
Thinks her sister stole her glasses
thank you dear for this important access to information!!
There are also existing menta illnesses lay below the dementia diagnosis. That further complicates
My mom screamed at me about needing to buy sneakers with Velcro closures. I tried telling her those weren't in style anymore and would probably be hard to find unless we bought online. She screamed again about not putting any credit card info "out there." Now, she knew buying online would be a sophisticated, potentially dangerous thing. And she could remember the word "Velcro" and what that was. But she couldn't remember how to tie her own shoes, and didn't want anyone to know. Hence, the screaming. Then I dealt a hand of cards for gin rummy after dinner. She couldn't match the suits or the numbers. That's when my stomach hit the floor. She wasn't just being cranky. She was demented. The beginning of a three year decline. Vascular dementia, progressed very fast. Brain scans revealed several lesions caused by TIAs.
There are shoes with shoelaces that slip on now. Young kids also love them.
@@mballer Ok. But I guess I should tell you this all started 18 years ago. She died in 2008. And with the rancor between all four of us siblings, I had to wait A LONG time to get legal conservatorship established. When we went to her bank with proof of my brother's thievery, they closed her account because she was "not a desirable customer." The Sheriff's office wouldn't press charges against my brother because her memory was so far gone, she would have been an "unreliable witness." She couldn't remember when she had actually given him money to pay the household utility bills and when he had just stolen it from her. The bank wouldn't press charges against my brother because he had a documented history of mental illness, and without a police report, they would be exposed to a possible lawsuit by my brother's victim's advocate attorney. So I had to wait to get legal conservatorship established. NINE MONTHS of court hearings, psych doctors' evaluations and reports, and testimony from other people my brother had stolen from. When I had put my own money into buying things for her care and comfort, I was never to be reimbursed. I gave up my work and my social life to care for my mom. She became the baby I never had. I didn't have a whole lot of money I could also give up.
@@mballer Most people struggle financially. That's why I took care of my Ma who suffered from Alz dementia and heart and artery disease. She did make provision for a funeral policy anything else was beyond her means. As difficult as it was, I thank God for the honour of taking care of her. She was loved so much while with us. She will always be loved and I miss her so very much.💜
Even seeing a professional is not going to necessarily give one the answers. I know someone who went to neurosurgeons and was diagnosed with Lewy Body, appeared to have definitive systems but they just did a new “tissue biopsy” to confirm and he was told he did not have Lewy Body. To me, dementia is dementia and it doesn’t change much (not even available resources) to have a specific diagnosis. I “think” my husband has Frontal temporal and/or Vascular but who reallly knows.
My husband has end stage renal disease and is on kidney dialysis three days a week. He has not gotten a dementia diagnosis, and yet it is clear that he has impairment. He is letting go of personal hygiene, and has fits of uncontrollable anger. He has bad halitosis but he refuses to see a dentist. He refuses to shave and bathe. He sleeps a lot and watches the same tv show all day. He has hearing loss so he wants me to take him to all his medical appointments, yet he refuses to wear hearing aids. I KNOW this is not the man I married....
I am a caregiver ca. You explain sundowners and how to handle it
My husband has Parkinson’s and we are beginning to see him have problems with his executive functions. Thank you for this video
Please share information on Parkinson’s disease dementia
First time watching. Mom has some form of Dementia. But question… does what TYPE they have, change how they’re cared for? Different medications? So is the type important?
How can you assure someone who refuses to get diagnosed gets a diagnose? I ask because a friend blames everything on his wife, she is the weird one. He treats her badly yells at her does not do what she asks him to do ( for ex. doing the laundry), changes medication, double the dose, lost interest in actions he used to like, get‘s to bed late at night and does not show up in the morning. He starres into nowhere , is no longer willing to take his belt off for the toilette. Uses shower gels which don‘t smell good anymore etc. She get‘s no help unless he is diagnosed. What to do?
After Mary’s story being so easy sounding with her husband, this reminds me the nightmare it sometimes is. God help everyone!
Many of these areas are also deficits in autism. How are autism and dementia differentiated? How can you diagnose dementia in an autistic person?
Get ahold of the best geriatric and forensic psychiatrist in your area. You'll need the expensive testing and evaluation by professionals.
My husband can't speak or understand me. He thought I was a man trying to kill him so he tried to kill me. I am lost and chronically ill. Help!
You need to tell his doctor ASAP! I had a neighbor that killed his wife when his dementia started causing paranoia. It was so sad. It may be time for assisted living if you can for your own safety . My opinion only. I’ve been a caregiver for 23yrs . Hang in there everyone.🙏♥️♥️
I’ll pray for you. I’m chronically ill to. Very hard! Better listen to caregiver advise it’s time for carehome. Hope you can work it out in your State. God bless and keep you. This is so scary! 💖
Get outside care now, don't wait.
Thank you for your video series on this subject. Would you agree that people with Alzheimer’s-dementia are regressing by losing their ability to communicate? Speaking a language that had to be learned initially served the individual in life. As a person ages, these languages and memories are gradually forgotten. What if these people were actually in a progression toward regeneration by transitioning into another incarnation. In effect, increasing their frequency naturally.
My wife is now in this progression. Speaking in the language of English is what we were taught. What if English is not their language anymore? What if speaking in tongues was closer to their frequency now? It would be lovely to explain this to you face to face. Perhaps one day. Thank you.
How do you know if they are actually seeing people that are not there. If they can describe the person and where they were standing can you assume that they are actually SEEING vs day dreaming something?
@@mballer They might also be undiagnosed diabetic. Fluctuating blood sugar levels can play hell with the mind.
Mom only sees things that's not there when she has a bad uti
Has anyone found out how much the course is?? Very interested but money is an issue
$697.
My wife is loosing the ability to walk any distance. Is this normal?
My mom is tired all the time. Is that typical with dementia?
Is paranoia a part of dimensia ?
Yes, always in Lewy Body Dementia my husband has this type.
My mom has paranoia bad!
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Where does mild cognitive impairment fit into all this? Can it progress into dementia?
@@mballer Well, those changes might help. But, depending on what kind of dementia your loved one has, it can progress very quickly anyway, regardless of changes you try to make.
My. Mum has Alzheimer’s with vascular components what does this mean please .
Ask the doctor who threw that terminology out to you. Push for answers.
Just only a suggestion for your mom’s Alzheimer’s. Asked your mums’ doctor whether your mother has got other medical conditions other than her Alzheimer’s and that her Alzheimer’s has got vascular components as you were asking. I just wanted to help with your mums condition.
@@mballer I agree with you but vascular components can be caused by other diseases like stroke, epilepsy, diabetes wherein you can have reduce blood supply in the brain. There is atherosclerosis which can also disrupts the blood supply to the brain. We would like to help this person who asked about vascular components so that if her mums has got underlying disease that lead to her dementia and explain it to her. Maybe her mum may have vascular dementia as well because there is mixed dementia another’s type of dementia which is a combination of Alzheimer’s and vascular dementia
@@mballer If you're going to change someone else's diet without a fully licensed nutritionist's evaluation, you could do more harm than good. Don't forget, you're putting yourself into a potential legal mess if you don't have the legal authority to act on another's behalf. It won't matter if you meant well: No good deed goes unpunished.
It's a curse!
My husband has no idea he is impaired and has lost short term memory. Is that usual?
Where does a person go to get a proper diagnosis? It seems that Family Dr’s are of very little help. No disrespect intended.
Neurologist and neuropsychologist
Have to admit, I clicked for the pretty face.
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Does weight loss a part of dementia? No😅😅😅
My mom is tired all the time. Is that typical with dementia?